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5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></button></div><div class="flex w-full items-center justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><button class="flex w-full items-center justify-between py-5 pl-[36px] pr-4 text-left" aria-expanded="false"><span>Our Impact</span><svg class="size-4 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" 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fill="currentColor"></path></svg></button></div><div id="mobile-dropdown-Events" class="overflow-hidden transition-all duration-[var(--menu-animation-timing)] ease-in-out" style="height:0;opacity:0"><div class="bg-brand-white font-medium text-[#5B5146]"><div><div><div class="flex w-full items-center justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><a target="_self" class="w-full py-5 pl-[36px] pr-4" href="/events">Events</a></div><div class="flex w-full items-center justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><button class="flex w-full items-center justify-between py-5 pl-[36px] pr-4 text-left" aria-expanded="false"><span>Play to Support</span><svg class="size-4 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></button></div><div class="flex w-full items-center justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><button class="flex w-full items-center justify-between py-5 pl-[36px] pr-4 text-left" aria-expanded="false"><span>Celebrate</span><svg class="size-4 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></button></div><div class="flex w-full items-center justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><button class="flex w-full items-center justify-between py-5 pl-[36px] pr-4 text-left" aria-expanded="false"><span>Seasonal</span><svg class="size-4 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></button></div><div class="flex w-full items-center 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justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><button class="flex w-full items-center justify-between py-5 pl-[36px] pr-4 text-left" aria-expanded="false"><span>Fundraise</span><svg class="size-4 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></button></div><div class="flex w-full items-center justify-between border-b border-migrated-gray-lighter text-1 first-of-type:border-t last-of-type:border-none"><button class="flex w-full items-center justify-between py-5 pl-[36px] pr-4 text-left" aria-expanded="false"><span>Plan Your Gift</span><svg class="size-4 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></button></div></div></div></div></div></li><li class="border-b border-migrated-gray-lighter text-1 leading-[1.2rem]"><div class="flex w-full items-center justify-between text-1 font-bold text-brand-black"><button class="flex w-full items-center justify-between px-4 py-5" aria-expanded="false" aria-controls="mobile-dropdown-Make a Difference"><span>Make a Difference</span><svg class="size-3 text-brand-black" 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fill="currentColor"></path></svg></button></div></div></div></div></div></li><li class="border-b border-migrated-gray-lighter text-1 leading-[1.2rem]"><div class="flex w-full items-center justify-between text-1 font-bold text-brand-black"><button class="flex w-full items-center justify-between px-4 py-5" aria-expanded="false" aria-controls="mobile-dropdown-About Us"><span>About Us</span><svg class="size-3 text-brand-black" aria-hidden="true" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M13.2002 5.40477C13.2002 4.74102 12.6639 4.20477 12.0002 4.20477C11.3364 4.20477 10.8002 4.74102 10.8002 5.40477V10.8048H5.4002C4.73645 10.8048 4.2002 11.341 4.2002 12.0048C4.2002 12.6685 4.73645 13.2048 5.4002 13.2048H10.8002V18.6048C10.8002 19.2685 11.3364 19.8048 12.0002 19.8048C12.6639 19.8048 13.2002 19.2685 13.2002 18.6048V13.2048H18.6002C19.2639 13.2048 19.8002 12.6685 19.8002 12.0048C19.8002 11.341 19.2639 10.8048 18.6002 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1<div class="builder-block builder-1fcadcd6cca544648c86239e78d65991 builder-has-component css-jpvirg" builder-id="builder-1fcadcd6cca544648c86239e78d65991"><style data-emotion-css="1qggkls">.css-1qggkls{outline:none;}.css-1qggkls p:first-of-type,.css-1qggkls .builder-paragraph:first-of-type{margin:0;}.css-1qggkls > p,.css-1qggkls .builder-paragraph{color:inherit;line-height:inherit;-webkit-letter-spacing:inherit;-moz-letter-spacing:inherit;-ms-letter-spacing:inherit;letter-spacing:inherit;font-weight:inherit;font-size:inherit;text-align:inherit;font-family:inherit;}</style><span class="builder-text css-1qggkls">Aug 24, 2023, 3:05:00 PM CST</span></div><div class="builder-block builder-66a9edcbdca843dfacdfac352b925e66 builder-has-component css-196zg9k" builder-id="builder-66a9edcbdca843dfacdfac352b925e66"><section class="mt-4 flex flex-col gap-y-4 font-normal antialiased"><h1 class="text-migrated-font-size-30 leading-[2.25rem] text-migrated-red migratedMd:text-[2.125rem] migratedMd:leading-[2.55rem] migratedLg:text-[2.375rem] migratedLg:leading-[2.85rem] min-[1280px]:text-[2.625rem] min-[1280px]:leading-[3.15rem]">What Is An In-Kind Donation?</h1></section></div><div class="builder-block builder-cab1d67d0707421f809ebcc3f7205207 builder-has-component css-196zg9k" builder-id="builder-cab1d67d0707421f809ebcc3f7205207"></div></div><style data-emotion-css="iyfp29">.css-iyfp29.builder-block{display:-webkit-box;display:-webkit-flex;display:-ms-flexbox;display:flex;-webkit-flex-direction:column;-ms-flex-direction:column;flex-direction:column;position:relative;-webkit-flex-shrink:1;-ms-flex-negative:1;flex-shrink:1;box-sizing:border-box;max-width:1240px;-webkit-box-pack:start;-webkit-justify-content:flex-start;-ms-flex-pack:start;justify-content:flex-start;-webkit-align-items:stretch;-webkit-box-align:stretch;-ms-flex-align:stretch;align-items:stretch;gap:40px;}@media only screen and (max-width:640px){.css-iyfp29.builder-block{margin-right:auto;margin-left:auto;display:-webkit-box;display:-webkit-flex;display:-ms-flexbox;display:flex;-webkit-flex-direction:column;-ms-flex-direction:column;flex-direction:column;-webkit-align-items:stretch;-webkit-box-align:stretch;-ms-flex-align:stretch;align-items:stretch;}}</style><div class="builder-block builder-08bd4c9345504e5dbdc84c2d2a05accf css-iyfp29" builder-id="builder-08bd4c9345504e5dbdc84c2d2a05accf"><style data-emotion-css="1gsxoiv">.css-1gsxoiv.builder-block{display:-webkit-box;display:-webkit-flex;display:-ms-flexbox;display:flex;-webkit-flex-direction:column;-ms-flex-direction:column;flex-direction:column;position:relative;-webkit-flex-shrink:0;-ms-flex-negative:0;flex-shrink:0;box-sizing:border-box;
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href="/events/celebrate">Celebrate<svg class="size-4" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 5.65236C8.28646 5.18361 8.28646 4.42236 8.75521 3.95361C9.22396 3.48486 9.98521 3.48486 10.454 3.95361L17.654 11.1536L17.6502 11.1574Z" fill="currentColor"></path></svg></a></li><li><a class="flex items-center justify-center gap-x-2 hover:text-brand-white hover:underline" target="_self" href="/events/seasonal">Seasonal<svg class="size-4" width="24" height="24" viewBox="0 0 24 24" fill="none" xmlns="http://www.w3.org/2000/svg"><path d="M17.6502 11.1574C18.119 11.6261 18.119 12.3874 17.6502 12.8561L10.4502 20.0561C9.98146 20.5249 9.22021 20.5249 8.75146 20.0561C8.28271 19.5874 8.28271 18.8261 8.75146 18.3574L15.104 12.0049L8.75521 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1<script>self.__next_f.push([1,"\"$df\",\"locale\":\"en-US\"}\ne2:[]\ne1:{\"collectionName\":\"Collection: Donation Matching Steps\",\"slug\":\"collection-donation-matching-steps\",\"collectionPriority\":1,\"collectionItems\":\"$e2\",\"type\":\"Grid Collection\",\"gridCollectionColumns\":3}\nd6:{\"metadata\":\"$d7\",\"sys\":\"$da\",\"fields\":\"$e1\"}\nd5:{\"target\":\"$d6\"}\ne3:[]\nd4:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$d5\",\"content\":\"$e3\"}\ne5:{}\ne8:[]\ne9:{}\ne7:{\"nodeType\":\"text\",\"value\":\"There are different ratios for donation matching. Some companies do a direct 1:1 ratio, but others have different standards. Sometimes minimum donation requirements must be met before a gift is matched, which is why it is important to contact your human resources representative and to do your research prior to making a donation.\",\"marks\":\"$e8\",\"data\":\"$e9\"}\ne6:[\"$e7\"]\ne4:{\"nodeType\":\"paragraph\",\"data\":\"$e5\",\"content\":\"$e6\"}\neb:{}\nee:[]\nef:{}\ned:{\"nodeType\":\"text\",\"value\":\"What Are the Benefits of Matching Donations?\",\"marks\":\"$ee\",\"data\":\"$ef\"}\nec:[\"$ed\"]\nea:{\"nodeType\":\"heading-2\",\"data\":\"$eb\",\"content\":\"$ec\"}\nf1:{}\nf4:[]\nf5:{}\nf3:{\"nodeType\":\"text\",\"value\":\"Matching donations through your employer is a great way to maximize the impact of your gift to Childrenâs Medical Center Foundation.\",\"marks\":\"$f4\",\"data\":\"$f5\"}\nf2:[\"$f3\"]\nf0:{\"nodeType\":\"paragraph\",\"data\":\"$f1\",\"content\":\"$f2\"}\nf7:{}\nfa:[]\nfb:{}\nf9:{\"nodeType\":\"text\",\"value\":\"This means that your donation will fund twice the number of patients, programs and services by supporting areas like clinical research, behavioral and mental health and the growing pediatric population of North Texas.\",\"marks\":\"$fa\",\"data\":\"$fb\"}\nf8:[\"$f9\"]\nf6:{\"nodeType\":\"paragraph\",\"data\":\"$f7\",\"content\":\"$f8\"}\nfd:{}\n100:[]\n101:{}\nff:{\"nodeType\":\"text\",\"value\":\"Childrenâs Health specific programs that have benefited from matching donations:\",\"marks\":\"$100\",\"data\":\"$101\"}\nfe:[\"$ff\"]\nfc:{\"nodeType\":\"paragraph\",\"data\":\"$fd\",\"content\":\"$fe\"}\n103:{}\n106:{}\n109:{}\n10c:[]\n10d:{}\n10b:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$10c\",\"data\":\"$10d\"}\n10f:{\"uri\":\"https://give.chi"])</script>
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1<script>self.__next_f.push([1,"ram, you can double or even triple the impact of your charitable match to Childrenâs Health. Corporate matching gift programs are a powerful way to support life-changing care for children while leveraging your employerâs generosity.\",\"marks\":\"$145\",\"data\":\"$146\"}\n143:[\"$144\"]\n141:{\"nodeType\":\"paragraph\",\"data\":\"$142\",\"content\":\"$143\"}\n148:{}\n14c:{\"type\":\"bold\"}\n14b:[\"$14c\"]\n14d:{}\n14a:{\"nodeType\":\"text\",\"value\":\"1. Check if your employer offers a gift matching program\",\"marks\":\"$14b\",\"data\":\"$14d\"}\n149:[\"$14a\"]\n147:{\"nodeType\":\"heading-3\",\"data\":\"$148\",\"content\":\"$149\"}\n14f:{}\n152:[]\n153:{}\n151:{\"nodeType\":\"text\",\"value\":\"Many companies offer corporate matching gift programs to amplify their employeesâ charitable contributions. Contact your HR department or check your companyâs intranet to confirm if a matching gift program is available.\",\"marks\":\"$152\",\"data\":\"$153\"}\n150:[\"$151\"]\n14e:{\"nodeType\":\"paragraph\",\"data\":\"$14f\",\"content\":\"$150\"}\n155:{}\n159:{\"type\":\"bold\"}\n158:[\"$159\"]\n15a:{}\n157:{\"nodeType\":\"text\",\"value\":\"2. Review your employerâs matching gift process\",\"marks\":\"$158\",\"data\":\"$15a\"}\n156:[\"$157\"]\n154:{\"nodeType\":\"heading-3\",\"data\":\"$155\",\"content\":\"$156\"}\n15c:{}\n15f:[]\n160:{}\n15e:{\"nodeType\":\"text\",\"value\":\"Each company has specific guidelines for gift matching, including eligible organizations, match ratios and deadlines. Review your employerâs corporate matching policy to understand the steps needed to request a charitable match for your donation.\",\"marks\":\"$15f\",\"data\":\"$160\"}\n15d:[\"$15e\"]\n15b:{\"nodeType\":\"paragraph\",\"data\":\"$15c\",\"content\":\"$15d\"}\n162:{}\n166:{\"type\":\"bold\"}\n165:[\"$166\"]\n167:{}\n164:{\"nodeType\":\"text\",\"value\":\"3. Submit a corporate matching gift request\",\"marks\":\"$165\",\"data\":\"$167\"}\n163:[\"$164\"]\n161:{\"nodeType\":\"heading-3\",\"data\":\"$162\",\"content\":\"$163\"}\n169:{}\n16c:[]\n16d:{}\n16b:{\"nodeType\":\"text\",\"value\":\"After making your donation to Childrenâs Health, complete your employerâs matching gift form to initiate the corporate matching process. Ensure you include all req"])</script>
1<script>self.__next_f.push([1,"uired details, such as our organizationâs name and donation receipt, to secure the match.\",\"marks\":\"$16c\",\"data\":\"$16d\"}\n16a:[\"$16b\"]\n168:{\"nodeType\":\"paragraph\",\"data\":\"$169\",\"content\":\"$16a\"}\n16f:{}\n173:{\"type\":\"bold\"}\n172:[\"$173\"]\n174:{}\n171:{\"nodeType\":\"text\",\"value\":\"4. Spread the word\",\"marks\":\"$172\",\"data\":\"$174\"}\n170:[\"$171\"]\n16e:{\"nodeType\":\"heading-3\",\"data\":\"$16f\",\"content\":\"$170\"}\n176:{}\n179:[]\n17a:{}\n178:{\"nodeType\":\"text\",\"value\":\"Share the power of gift matching with colleagues to inspire more support for Childrenâs Health. Raising awareness about corporate matching gift programs can multiply the impact of collective giving for children in North Texas.\",\"marks\":\"$179\",\"data\":\"$17a\"}\n177:[\"$178\"]\n175:{\"nodeType\":\"paragraph\",\"data\":\"$176\",\"content\":\"$177\"}\n17c:{}\n17f:[]\n180:{}\n17e:{\"nodeType\":\"text\",\"value\":\"Once youâve confirmed your employerâs match program, head to our \",\"marks\":\"$17f\",\"data\":\"$180\"}\n182:{\"uri\":\"https://donate.childrens.com/campaign/612191/donate?c_src=MatchingGiftArticle\"}\n185:[]\n186:{}\n184:{\"nodeType\":\"text\",\"value\":\"donation form\",\"marks\":\"$185\",\"data\":\"$186\"}\n183:[\"$184\"]\n181:{\"nodeType\":\"hyperlink\",\"data\":\"$182\",\"content\":\"$183\"}\n188:[]\n189:{}\n187:{\"nodeType\":\"text\",\"value\":\" to make your gift and start the match!\",\"marks\":\"$188\",\"data\":\"$189\"}\n17d:[\"$17e\",\"$181\",\"$187\"]\n17b:{\"nodeType\":\"paragraph\",\"data\":\"$17c\",\"content\":\"$17d\"}\n18b:{}\n18e:[]\n18f:{}\n18d:{\"nodeType\":\"text\",\"value\":\"Other Donation Matching Programs to Double Your Support\",\"marks\":\"$18e\",\"data\":\"$18f\"}\n18c:[\"$18d\"]\n18a:{\"nodeType\":\"heading-2\",\"data\":\"$18b\",\"content\":\"$18c\"}\n191:{}\n194:[]\n195:{}\n193:{\"nodeType\":\"text\",\"value\":\"While the standard corporate match is the most popular type of matched donation, there are three other types of donation matching.\",\"marks\":\"$194\",\"data\":\"$195\"}\n192:[\"$193\"]\n190:{\"nodeType\":\"paragraph\",\"data\":\"$191\",\"content\":\"$192\"}\n197:{}\n19a:{}\n19d:{}\n1a0:[]\n1a1:{}\n19f:{\"nodeType\":\"text\",\"value\":\"Volunteer Matching Gifts \u0026 Grants\",\"marks\":\"$1a0\",\"data\":\"$1a1\"}\n19e:[\"$19f\"]\n19c:"])</script>
1<script>self.__next_f.push([1,"{\"nodeType\":\"paragraph\",\"data\":\"$19d\",\"content\":\"$19e\"}\n19b:[\"$19c\"]\n199:{\"nodeType\":\"list-item\",\"data\":\"$19a\",\"content\":\"$19b\"}\n1a3:{}\n1a6:{}\n1a9:[]\n1aa:{}\n1a8:{\"nodeType\":\"text\",\"value\":\"Matching Gift Challenges\",\"marks\":\"$1a9\",\"data\":\"$1aa\"}\n1a7:[\"$1a8\"]\n1a5:{\"nodeType\":\"paragraph\",\"data\":\"$1a6\",\"content\":\"$1a7\"}\n1a4:[\"$1a5\"]\n1a2:{\"nodeType\":\"list-item\",\"data\":\"$1a3\",\"content\":\"$1a4\"}\n1ac:{}\n1af:{}\n1b2:[]\n1b3:{}\n1b1:{\"nodeType\":\"text\",\"value\":\"Board Matching\",\"marks\":\"$1b2\",\"data\":\"$1b3\"}\n1b0:[\"$1b1\"]\n1ae:{\"nodeType\":\"paragraph\",\"data\":\"$1af\",\"content\":\"$1b0\"}\n1ad:[\"$1ae\"]\n1ab:{\"nodeType\":\"list-item\",\"data\":\"$1ac\",\"content\":\"$1ad\"}\n198:[\"$199\",\"$1a2\",\"$1ab\"]\n196:{\"nodeType\":\"unordered-list\",\"data\":\"$197\",\"content\":\"$198\"}\n1b5:{}\n1b8:[]\n1b9:{}\n1b7:{\"nodeType\":\"text\",\"value\":\"Volunteer Matching\",\"marks\":\"$1b8\",\"data\":\"$1b9\"}\n1b6:[\"$1b7\"]\n1b4:{\"nodeType\":\"heading-3\",\"data\":\"$1b5\",\"content\":\"$1b6\"}\n1bb:{}\n1be:[]\n1bf:{}\n1bd:{\"nodeType\":\"text\",\"value\":\"Corporate volunteer matching programs are another form of corporate matching where a company responds to their employeeâs donation of time and service with a gift. Employees track and submit their hours. These hours are totaled and submitted to their employer, who verifies the employeeâs service and sends either a flat gift or a gift based on the number of hours volunteered. \",\"marks\":\"$1be\",\"data\":\"$1bf\"}\n1bc:[\"$1bd\"]\n1ba:{\"nodeType\":\"paragraph\",\"data\":\"$1bb\",\"content\":\"$1bc\"}\n1c1:{}\n1c5:{\"type\":\"bold\"}\n1c4:[\"$1c5\"]\n1c6:{}\n1c3:{\"nodeType\":\"text\",\"value\":\"Here's how volunteer matching works: \",\"marks\":\"$1c4\",\"data\":\"$1c6\"}\n1c8:[]\n1c9:{}\n1c7:{\"nodeType\":\"text\",\"value\":\"Taylor works for Generic Company and volunteers 10 hours at Childrenâs Health. Taylor knows that Generic Company does volunteer matching. Taylor tracks her volunteer time and submits the total hours to Generic Company, who verifies her service. Once verified, Generic Company sends a check to Childrenâs Medical Center Foundation to match Taylorâs volunteer time.\",\"marks\":\"$1c8\",\"data\":\"$1c9\"}\n1c"])</script>
1<script>self.__next_f.push([1,"2:[\"$1c3\",\"$1c7\"]\n1c0:{\"nodeType\":\"paragraph\",\"data\":\"$1c1\",\"content\":\"$1c2\"}\n1cb:{}\n1ce:[]\n1cf:{}\n1cd:{\"nodeType\":\"text\",\"value\":\"Donation Matching Challenges\",\"marks\":\"$1ce\",\"data\":\"$1cf\"}\n1cc:[\"$1cd\"]\n1ca:{\"nodeType\":\"heading-3\",\"data\":\"$1cb\",\"content\":\"$1cc\"}\n1d1:{}\n1d4:[]\n1d5:{}\n1d3:{\"nodeType\":\"text\",\"value\":\"Donation matching challenges are special campaigns, often tied to events like GivingTuesday or North Texas Giving Day, where a donor (usually a company, foundation or individual) pledges to match donations up to a set amount. These challenges aim to inspire increased giving by doubling the impact of qualifying contributions. Childrenâs Medical Center Foundation leverages these matches during targeted campaigns to amplify support for our mission.\",\"marks\":\"$1d4\",\"data\":\"$1d5\"}\n1d2:[\"$1d3\"]\n1d0:{\"nodeType\":\"paragraph\",\"data\":\"$1d1\",\"content\":\"$1d2\"}\n1d7:{}\n1db:{\"type\":\"bold\"}\n1da:[\"$1db\"]\n1dc:{}\n1d9:{\"nodeType\":\"text\",\"value\":\"Here's how donation matching challenges work: \",\"marks\":\"$1da\",\"data\":\"$1dc\"}\n1de:[]\n1df:{}\n1dd:{\"nodeType\":\"text\",\"value\":\"Taylor learns that Generic Company has pledged to match othersâ donations at a dollar-for-dollar rate to Childrenâs Medical Center Foundation up to $10,000. Taylor makes a $100 donation. Taylorâs gift is automatically matched if it meets the criteria that is established before the donation matching challenge is launched.\",\"marks\":\"$1de\",\"data\":\"$1df\"}\n1d8:[\"$1d9\",\"$1dd\"]\n1d6:{\"nodeType\":\"paragraph\",\"data\":\"$1d7\",\"content\":\"$1d8\"}\n1e1:{}\n1e4:[]\n1e5:{}\n1e3:{\"nodeType\":\"text\",\"value\":\"Board Matching\",\"marks\":\"$1e4\",\"data\":\"$1e5\"}\n1e2:[\"$1e3\"]\n1e0:{\"nodeType\":\"heading-3\",\"data\":\"$1e1\",\"content\":\"$1e2\"}\n1e7:{}\n1ea:[]\n1eb:{}\n1e9:{\"nodeType\":\"text\",\"value\":\"Board matching donations are when a company donates on behalf of an employee if they serve on a nonprofit board or advisory committee. This can be in addition to an employee making a donation and the company matching their gift. Check with your human resources representative to see if your employer offers "])</script>
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1<script>self.__next_f.push([1,"\"type\":\"Link\",\"linkType\":\"Environment\"}\n26e:{\"sys\":\"$26f\"}\n271:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n270:{\"sys\":\"$271\"}\n26b:{\"space\":\"$26c\",\"id\":\"9Kk3UKW6xzbIjLOnKSchP\",\"type\":\"Entry\",\"createdAt\":\"2025-02-26T17:05:32.865Z\",\"updatedAt\":\"2026-07-20T20:47:12.672Z\",\"environment\":\"$26e\",\"publishedVersion\":12,\"revision\":5,\"contentType\":\"$270\",\"locale\":\"en-US\"}\n274:{}\n277:{}\n27a:[]\n27b:{}\n279:{\"nodeType\":\"text\",\"value\":\"Companies today are not just expected to generate profits; they are also expected to give back to their communities. Businesses that give back are viewed more positively and people are more likely to trust and support them. Companies interested in social impact have the opportunity to explore corporate philanthropy as one component of a larger subset of charitable giving programs available to them.\",\"marks\":\"$27a\",\"data\":\"$27b\"}\n278:[\"$279\"]\n276:{\"nodeType\":\"paragraph\",\"data\":\"$277\",\"content\":\"$278\"}\n27d:{}\n280:[]\n281:{}\n27f:{\"nodeType\":\"text\",\"value\":\"In this article, weâll explain the many facets of corporate philanthropy, providing insight and recommendations companies can incorporate to make a positive impact on their communities.\",\"marks\":\"$280\",\"data\":\"$281\"}\n27e:[\"$27f\"]\n27c:{\"nodeType\":\"paragraph\",\"data\":\"$27d\",\"content\":\"$27e\"}\n283:{}\n286:[]\n287:{}\n285:{\"nodeType\":\"text\",\"value\":\"What is Corporate Philanthropy? \",\"marks\":\"$286\",\"data\":\"$287\"}\n284:[\"$285\"]\n282:{\"nodeType\":\"heading-2\",\"data\":\"$283\",\"content\":\"$284\"}\n289:{}\n28c:[]\n28d:{}\n28b:{\"nodeType\":\"text\",\"value\":\"Corporate philanthropy is defined as the ways in which a company gives back to its community or promotes the welfare of others. Most commonly, corporations donate money or time to nonprofits to accomplish these goals. Each companyâs charitable giving program will look different based on the companyâs values and its employee base along with other various stakeholders the company serves within the community. The \",\"marks\":\"$28c\",\"data\":\"$28d\"}\n28f:{\"uri\":\"https://hbr.org/2002/12/the-competitive-advantage-of-co"])</script>
1<script>self.__next_f.push([1,"rporate-philanthropy\"}\n292:[]\n293:{}\n291:{\"nodeType\":\"text\",\"value\":\"Harvard Business Review\",\"marks\":\"$292\",\"data\":\"$293\"}\n290:[\"$291\"]\n28e:{\"nodeType\":\"hyperlink\",\"data\":\"$28f\",\"content\":\"$290\"}\n295:[]\n296:{}\n294:{\"nodeType\":\"text\",\"value\":\" refers to this as a competitive advantage that âenables companies to leverage not only their own resources but also the existing efforts of nonprofits and institutionsâ they want to partner with.\",\"marks\":\"$295\",\"data\":\"$296\"}\n28a:[\"$28b\",\"$28e\",\"$294\"]\n288:{\"nodeType\":\"paragraph\",\"data\":\"$289\",\"content\":\"$28a\"}\n298:{}\n29b:[]\n29c:{}\n29a:{\"nodeType\":\"text\",\"value\":\"Popular Types of Corporate Giving Programs\",\"marks\":\"$29b\",\"data\":\"$29c\"}\n299:[\"$29a\"]\n297:{\"nodeType\":\"heading-2\",\"data\":\"$298\",\"content\":\"$299\"}\n29e:{}\n2a1:[]\n2a2:{}\n2a0:{\"nodeType\":\"text\",\"value\":\"1) Matching Gifts\",\"marks\":\"$2a1\",\"data\":\"$2a2\"}\n29f:[\"$2a0\"]\n29d:{\"nodeType\":\"heading-3\",\"data\":\"$29e\",\"content\":\"$29f\"}\n2a4:{}\n2a7:[]\n2a8:{}\n2a6:{\"nodeType\":\"text\",\"value\":\"Matching gifts is \",\"marks\":\"$2a7\",\"data\":\"$2a8\"}\n2ab:{\"type\":\"italic\"}\n2aa:[\"$2ab\"]\n2ac:{}\n2a9:{\"nodeType\":\"text\",\"value\":\"the\",\"marks\":\"$2aa\",\"data\":\"$2ac\"}\n2ae:[]\n2af:{}\n2ad:{\"nodeType\":\"text\",\"value\":\" most popular type of corporate giving.\",\"marks\":\"$2ae\",\"data\":\"$2af\"}\n2a5:[\"$2a6\",\"$2a9\",\"$2ad\"]\n2a3:{\"nodeType\":\"paragraph\",\"data\":\"$2a4\",\"content\":\"$2a5\"}\n2b1:{}\n2b4:[]\n2b5:{}\n2b3:{\"nodeType\":\"text\",\"value\":\"Companies match the donations their employees make to nonprofits that are usually deemed eligible by the company beforehand (e.g., health or educational institutions).\",\"marks\":\"$2b4\",\"data\":\"$2b5\"}\n2b2:[\"$2b3\"]\n2b0:{\"nodeType\":\"paragraph\",\"data\":\"$2b1\",\"content\":\"$2b2\"}\n2b7:{}\n2ba:[]\n2bb:{}\n2b9:{\"nodeType\":\"text\",\"value\":\"The company will typically give a percentage of the donation made by the employee on an annual year to the nonprofit.. In some cases, the company will donate triple the amount of the initial donation, increasing the donorâs impact even more.\",\"marks\":\"$2ba\",\"data\":\"$2bb\"}\n2b8:[\"$2b9\"]\n2b6:{\"nodeType\":\"paragraph\",\""])</script>
1<script>self.__next_f.push([1,"data\":\"$2b7\",\"content\":\"$2b8\"}\n2bd:{}\n2c0:[]\n2c1:{}\n2bf:{\"nodeType\":\"text\",\"value\":\"Benefits of corporate philanthropy and matching programs:\",\"marks\":\"$2c0\",\"data\":\"$2c1\"}\n2be:[\"$2bf\"]\n2bc:{\"nodeType\":\"paragraph\",\"data\":\"$2bd\",\"content\":\"$2be\"}\n2c3:{}\n2c6:{}\n2c9:{}\n2cc:[]\n2cd:{}\n2cb:{\"nodeType\":\"text\",\"value\":\"Employee engagement: Corporate philanthropy and matching programs can help increase employee engagement by providing employees a way to give back to the nonprofits their employees care about the most.\",\"marks\":\"$2cc\",\"data\":\"$2cd\"}\n2ca:[\"$2cb\"]\n2c8:{\"nodeType\":\"paragraph\",\"data\":\"$2c9\",\"content\":\"$2ca\"}\n2c7:[\"$2c8\"]\n2c5:{\"nodeType\":\"list-item\",\"data\":\"$2c6\",\"content\":\"$2c7\"}\n2cf:{}\n2d2:{}\n2d5:[]\n2d6:{}\n2d4:{\"nodeType\":\"text\",\"value\":\"Employee morale: Corporate philanthropy and matching programs can help boost employee morale by showing employees that their company cares about giving back to their communities.\",\"marks\":\"$2d5\",\"data\":\"$2d6\"}\n2d3:[\"$2d4\"]\n2d1:{\"nodeType\":\"paragraph\",\"data\":\"$2d2\",\"content\":\"$2d3\"}\n2d0:[\"$2d1\"]\n2ce:{\"nodeType\":\"list-item\",\"data\":\"$2cf\",\"content\":\"$2d0\"}\n2d8:{}\n2db:{}\n2de:[]\n2df:{}\n2dd:{\"nodeType\":\"text\",\"value\":\"Company reputation: Corporate philanthropy and matching programs can help improve a companyâs reputation by showing that the company cares and is committed to social responsibility.\",\"marks\":\"$2de\",\"data\":\"$2df\"}\n2dc:[\"$2dd\"]\n2da:{\"nodeType\":\"paragraph\",\"data\":\"$2db\",\"content\":\"$2dc\"}\n2d9:[\"$2da\"]\n2d7:{\"nodeType\":\"list-item\",\"data\":\"$2d8\",\"content\":\"$2d9\"}\n2e1:{}\n2e4:{}\n2e7:[]\n2e8:{}\n2e6:{\"nodeType\":\"text\",\"value\":\"Tax benefits: In some cases, corporate philanthropy and matching programs can provide tax benefits for a company.\",\"marks\":\"$2e7\",\"data\":\"$2e8\"}\n2e5:[\"$2e6\"]\n2e3:{\"nodeType\":\"paragraph\",\"data\":\"$2e4\",\"content\":\"$2e5\"}\n2e2:[\"$2e3\"]\n2e0:{\"nodeType\":\"list-item\",\"data\":\"$2e1\",\"content\":\"$2e2\"}\n2c4:[\"$2c5\",\"$2ce\",\"$2d7\",\"$2e0\"]\n2c2:{\"nodeType\":\"unordered-list\",\"data\":\"$2c3\",\"content\":\"$2c4\"}\n2ea:{}\n2ed:[]\n2ee:{}\n2ec:{\"nodeType\":\"text\",\"value\":\"Learn more about "])</script>
1<script>self.__next_f.push([1,"\",\"marks\":\"$2ed\",\"data\":\"$2ee\"}\n2f0:{\"uri\":\"https://give.childrens.com/about-us/resources/donation-matching\"}\n2f3:[]\n2f4:{}\n2f2:{\"nodeType\":\"text\",\"value\":\"how donation matching works\",\"marks\":\"$2f3\",\"data\":\"$2f4\"}\n2f1:[\"$2f2\"]\n2ef:{\"nodeType\":\"hyperlink\",\"data\":\"$2f0\",\"content\":\"$2f1\"}\n2f6:[]\n2f7:{}\n2f5:{\"nodeType\":\"text\",\"value\":\".\",\"marks\":\"$2f6\",\"data\":\"$2f7\"}\n2eb:[\"$2ec\",\"$2ef\",\"$2f5\"]\n2e9:{\"nodeType\":\"paragraph\",\"data\":\"$2ea\",\"content\":\"$2eb\"}\n2f9:{}\n2fc:[]\n2fd:{}\n2fb:{\"nodeType\":\"text\",\"value\":\"2) Matching Dollars for Volunteer Hours\",\"marks\":\"$2fc\",\"data\":\"$2fd\"}\n2fa:[\"$2fb\"]\n2f8:{\"nodeType\":\"heading-3\",\"data\":\"$2f9\",\"content\":\"$2fa\"}\n2ff:{}\n302:[]\n303:{}\n301:{\"nodeType\":\"text\",\"value\":\"Volunteer grants are another incredibly popular type of corporate giving. Companies offer volunteer grants, sometimes referred to as matching time, service credit, volunteer matching, etc., to reward their employeesâ volunteer efforts with a monetary donation to the nonprofit where they serve. The dual benefit of offering volunteer grants is employee engagement and community support. Itâs a way to turn time into money.\",\"marks\":\"$302\",\"data\":\"$303\"}\n300:[\"$301\"]\n2fe:{\"nodeType\":\"paragraph\",\"data\":\"$2ff\",\"content\":\"$300\"}\n305:{}\n308:[]\n309:{}\n307:{\"nodeType\":\"text\",\"value\":\"How it works:\",\"marks\":\"$308\",\"data\":\"$309\"}\n306:[\"$307\"]\n304:{\"nodeType\":\"paragraph\",\"data\":\"$305\",\"content\":\"$306\"}\n30b:{}\n30e:{}\n311:{}\n314:[]\n315:{}\n313:{\"nodeType\":\"text\",\"value\":\"An individual volunteers with a nonprofit on a regular basis.\",\"marks\":\"$314\",\"data\":\"$315\"}\n312:[\"$313\"]\n310:{\"nodeType\":\"paragraph\",\"data\":\"$311\",\"content\":\"$312\"}\n30f:[\"$310\"]\n30d:{\"nodeType\":\"list-item\",\"data\":\"$30e\",\"content\":\"$30f\"}\n317:{}\n31a:{}\n31d:[]\n31e:{}\n31c:{\"nodeType\":\"text\",\"value\":\"The volunteer checks if the nonprofit is eligible for a volunteer grant or matching donation of every hour served from their company.\",\"marks\":\"$31d\",\"data\":\"$31e\"}\n31b:[\"$31c\"]\n319:{\"nodeType\":\"paragraph\",\"data\":\"$31a\",\"content\":\"$31b\"}\n318:[\"$319\"]\n316:{\"nodeType\":\"list-ite"])</script>
1<script>self.__next_f.push([1,"m\",\"data\":\"$317\",\"content\":\"$318\"}\n320:{}\n323:{}\n326:[]\n327:{}\n325:{\"nodeType\":\"text\",\"value\":\"After verifying the nonprofitsâ eligibility, the volunteer submits their application for a volunteer grant to their company.\",\"marks\":\"$326\",\"data\":\"$327\"}\n324:[\"$325\"]\n322:{\"nodeType\":\"paragraph\",\"data\":\"$323\",\"content\":\"$324\"}\n321:[\"$322\"]\n31f:{\"nodeType\":\"list-item\",\"data\":\"$320\",\"content\":\"$321\"}\n329:{}\n32c:{}\n32f:[]\n330:{}\n32e:{\"nodeType\":\"text\",\"value\":\"The company reviews the application and confirms the volunteer hours the volunteer has worked for the nonprofit.\",\"marks\":\"$32f\",\"data\":\"$330\"}\n32d:[\"$32e\"]\n32b:{\"nodeType\":\"paragraph\",\"data\":\"$32c\",\"content\":\"$32d\"}\n32a:[\"$32b\"]\n328:{\"nodeType\":\"list-item\",\"data\":\"$329\",\"content\":\"$32a\"}\n332:{}\n335:{}\n338:[]\n339:{}\n337:{\"nodeType\":\"text\",\"value\":\"The company sends the nonprofit a donation through a giving portal such as Benevity, YourCause or CyberGrants\",\"marks\":\"$338\",\"data\":\"$339\"}\n336:[\"$337\"]\n334:{\"nodeType\":\"paragraph\",\"data\":\"$335\",\"content\":\"$336\"}\n333:[\"$334\"]\n331:{\"nodeType\":\"list-item\",\"data\":\"$332\",\"content\":\"$333\"}\n30c:[\"$30d\",\"$316\",\"$31f\",\"$328\",\"$331\"]\n30a:{\"nodeType\":\"unordered-list\",\"data\":\"$30b\",\"content\":\"$30c\"}\n33b:{}\n33e:[]\n33f:{}\n33d:{\"nodeType\":\"text\",\"value\":\"3) Grant Making Foundations\",\"marks\":\"$33e\",\"data\":\"$33f\"}\n33c:[\"$33d\"]\n33a:{\"nodeType\":\"heading-3\",\"data\":\"$33b\",\"content\":\"$33c\"}\n341:{}\n344:[]\n345:{}\n343:{\"nodeType\":\"text\",\"value\":\"Grant making foundations, or corporate foundations, are a type of corporate giving where businesses establish their own separate-entity foundations as a formalized approach to manage their philanthropic efforts.\",\"marks\":\"$344\",\"data\":\"$345\"}\n342:[\"$343\"]\n340:{\"nodeType\":\"paragraph\",\"data\":\"$341\",\"content\":\"$342\"}\n347:{}\n34a:[]\n34b:{}\n349:{\"nodeType\":\"text\",\"value\":\"Common grants include:\",\"marks\":\"$34a\",\"data\":\"$34b\"}\n348:[\"$349\"]\n346:{\"nodeType\":\"paragraph\",\"data\":\"$347\",\"content\":\"$348\"}\n34d:{}\n350:{}\n353:{}\n356:[]\n357:{}\n355:{\"nodeType\":\"text\",\"value\":\"Capital grants: Money given to a nonprofit to"])</script>
1<script>self.__next_f.push([1," purchase, construct or renovate tangible assets, like a nonprofitâs facility.\",\"marks\":\"$356\",\"data\":\"$357\"}\n354:[\"$355\"]\n352:{\"nodeType\":\"paragraph\",\"data\":\"$353\",\"content\":\"$354\"}\n351:[\"$352\"]\n34f:{\"nodeType\":\"list-item\",\"data\":\"$350\",\"content\":\"$351\"}\n359:{}\n35c:{}\n35f:[]\n360:{}\n35e:{\"nodeType\":\"text\",\"value\":\"General operating grants: General operating grants, also known as an unrestricted grant, is money given to a nonprofit allowing it to use the funds where theyâre needed most.\",\"marks\":\"$35f\",\"data\":\"$360\"}\n35d:[\"$35e\"]\n35b:{\"nodeType\":\"paragraph\",\"data\":\"$35c\",\"content\":\"$35d\"}\n35a:[\"$35b\"]\n358:{\"nodeType\":\"list-item\",\"data\":\"$359\",\"content\":\"$35a\"}\n362:{}\n365:{}\n368:[]\n369:{}\n367:{\"nodeType\":\"text\",\"value\":\"Program-specific grants: Program-specific grants require a nonprofit to submit a proposal for a specific project they need a corporate foundation to fund. The proposal will communicate how the program they are requesting funding for aligns with the corporate foundationâs mission.\",\"marks\":\"$368\",\"data\":\"$369\"}\n366:[\"$367\"]\n364:{\"nodeType\":\"paragraph\",\"data\":\"$365\",\"content\":\"$366\"}\n363:[\"$364\"]\n361:{\"nodeType\":\"list-item\",\"data\":\"$362\",\"content\":\"$363\"}\n34e:[\"$34f\",\"$358\",\"$361\"]\n34c:{\"nodeType\":\"unordered-list\",\"data\":\"$34d\",\"content\":\"$34e\"}\n36b:{}\n36e:[]\n36f:{}\n36d:{\"nodeType\":\"text\",\"value\":\"It is also not a requirement for a company to set up a Foundation to make a charitable donation to a nonprofit.\",\"marks\":\"$36e\",\"data\":\"$36f\"}\n36c:[\"$36d\"]\n36a:{\"nodeType\":\"paragraph\",\"data\":\"$36b\",\"content\":\"$36c\"}\n371:{}\n375:{\"type\":\"bold\"}\n374:[\"$375\"]\n376:{}\n373:{\"nodeType\":\"text\",\"value\":\"Recommendation:\",\"marks\":\"$374\",\"data\":\"$376\"}\n378:[]\n379:{}\n377:{\"nodeType\":\"text\",\"value\":\" If setting up a corporate foundation is something your company would like to pursue further, please seek appropriate legal counsel.\",\"marks\":\"$378\",\"data\":\"$379\"}\n372:[\"$373\",\"$377\"]\n370:{\"nodeType\":\"paragraph\",\"data\":\"$371\",\"content\":\"$372\"}\n37b:{}\n37e:[]\n37f:{}\n37d:{\"nodeType\":\"text\",\"value\":\"If your company is interes"])</script>
1<script>self.__next_f.push([1,"ted in supporting Childrenâs Health with a grant or cash donation, please email \",\"marks\":\"$37e\",\"data\":\"$37f\"}\n381:{\"uri\":\"mailto:[email protected]\"}\n384:[]\n385:{}\n383:{\"nodeType\":\"text\",\"value\":\"[email protected]\",\"marks\":\"$384\",\"data\":\"$385\"}\n382:[\"$383\"]\n380:{\"nodeType\":\"hyperlink\",\"data\":\"$381\",\"content\":\"$382\"}\n387:[]\n388:{}\n386:{\"nodeType\":\"text\",\"value\":\".\",\"marks\":\"$387\",\"data\":\"$388\"}\n37c:[\"$37d\",\"$380\",\"$386\"]\n37a:{\"nodeType\":\"paragraph\",\"data\":\"$37b\",\"content\":\"$37c\"}\n38a:{}\n38d:[]\n38e:{}\n38c:{\"nodeType\":\"text\",\"value\":\"4) Corporate Sponsorships\",\"marks\":\"$38d\",\"data\":\"$38e\"}\n38b:[\"$38c\"]\n389:{\"nodeType\":\"heading-3\",\"data\":\"$38a\",\"content\":\"$38b\"}\n390:{}\n393:[]\n394:{}\n392:{\"nodeType\":\"text\",\"value\":\"Corporate sponsorships, another type of corporate giving, are mutually beneficial partnerships between businesses and nonprofits. Usually, companies will provide financial support for a nonprofitâs event or initiative through sponsorships that align with their values and business goals in exchange for brand exposure. \",\"marks\":\"$393\",\"data\":\"$394\"}\n391:[\"$392\"]\n38f:{\"nodeType\":\"paragraph\",\"data\":\"$390\",\"content\":\"$391\"}\n396:{}\n399:[]\n39a:{}\n398:{\"nodeType\":\"text\",\"value\":\"Tips to keep in mind if youâre considering this type of corporate giving:\",\"marks\":\"$399\",\"data\":\"$39a\"}\n397:[\"$398\"]\n395:{\"nodeType\":\"paragraph\",\"data\":\"$396\",\"content\":\"$397\"}\n39c:{}\n39f:{}\n3a2:{}\n3a5:[]\n3a6:{}\n3a4:{\"nodeType\":\"text\",\"value\":\"Partner with a nonprofit that aligns with your companyâs mission and values. To create a meaningful partnership, sponsor a nonprofit that shares your companyâs commitment to the same causes, has goals and activities that will resonate with your employees, customers and stakeholders to maximize the sponsorshipâs impact.\",\"marks\":\"$3a5\",\"data\":\"$3a6\"}\n3a3:[\"$3a4\"]\n3a1:{\"nodeType\":\"paragraph\",\"data\":\"$3a2\",\"content\":\"$3a3\"}\n3a0:[\"$3a1\"]\n39e:{\"nodeType\":\"list-item\",\"data\":\"$39f\",\"content\":\"$3a0\"}\n3a8:{}\n3ab:{}\n3ae:[]\n3af:{}\n3ad:{\"nodeType\":\"text\",\"value\":\"Clarify objectives and "])</script>
1<script>self.__next_f.push([1,"expectations between your company and the nonprofit. Decide your companyâs level of involvement whether itâs financial support, in-kind giving or employee volunteer opportunities and determine what your company expects to receive in return.\",\"marks\":\"$3ae\",\"data\":\"$3af\"}\n3ac:[\"$3ad\"]\n3aa:{\"nodeType\":\"paragraph\",\"data\":\"$3ab\",\"content\":\"$3ac\"}\n3a9:[\"$3aa\"]\n3a7:{\"nodeType\":\"list-item\",\"data\":\"$3a8\",\"content\":\"$3a9\"}\n39d:[\"$39e\",\"$3a7\"]\n39b:{\"nodeType\":\"unordered-list\",\"data\":\"$39c\",\"content\":\"$39d\"}\n3b1:{}\n3b4:[]\n3b5:{}\n3b3:{\"nodeType\":\"text\",\"value\":\"Leverage engagement with the nonprofit. Get the most out of the sponsorship by actively engaging with the nonprofitâs event or initiative. For example, when sponsoring an event, promote your support through various marketing channels like social media and email to boost brand visibility and connect with your target audience.\",\"marks\":\"$3b4\",\"data\":\"$3b5\"}\n3b2:[\"$3b3\"]\n3b0:{\"nodeType\":\"paragraph\",\"data\":\"$3b1\",\"content\":\"$3b2\"}\n3b7:{}\n3ba:[]\n3bb:{}\n3b9:{\"nodeType\":\"text\",\"value\":\"Childrenâs Health hosts a fun annual event called \",\"marks\":\"$3ba\",\"data\":\"$3bb\"}\n3bd:{\"uri\":\"https://give.childrens.com/get-involved/event-calendar/swing-fore-miracles\"}\n3c0:[]\n3c1:{}\n3bf:{\"nodeType\":\"text\",\"value\":\"Swing Fore Miracles\",\"marks\":\"$3c0\",\"data\":\"$3c1\"}\n3be:[\"$3bf\"]\n3bc:{\"nodeType\":\"hyperlink\",\"data\":\"$3bd\",\"content\":\"$3be\"}\n3c3:[]\n3c4:{}\n3c2:{\"nodeType\":\"text\",\"value\":\", a corporate-focused tournament at Topgolf offering companies sponsorship opportunities and a team building experience for employees to support our mission to make life better for children.\",\"marks\":\"$3c3\",\"data\":\"$3c4\"}\n3b8:[\"$3b9\",\"$3bc\",\"$3c2\"]\n3b6:{\"nodeType\":\"paragraph\",\"data\":\"$3b7\",\"content\":\"$3b8\"}\n3c6:{}\n3c9:[]\n3ca:{}\n3c8:{\"nodeType\":\"text\",\"value\":\"5) Cause Marketing\",\"marks\":\"$3c9\",\"data\":\"$3ca\"}\n3c7:[\"$3c8\"]\n3c5:{\"nodeType\":\"heading-3\",\"data\":\"$3c6\",\"content\":\"$3c7\"}\n3cc:{}\n3cf:[]\n3d0:{}\n3ce:{\"nodeType\":\"text\",\"value\":\"Causing marketing is a type of corporate giving when a company partners wit"])</script>
1<script>self.__next_f.push([1,"h a nonprofit to support their cause. The company will create a marketing campaign to promote its products and services while raising awareness for the nonprofitâs cause simultaneously.\",\"marks\":\"$3cf\",\"data\":\"$3d0\"}\n3cd:[\"$3ce\"]\n3cb:{\"nodeType\":\"paragraph\",\"data\":\"$3cc\",\"content\":\"$3cd\"}\n3d2:{}\n3d5:[]\n3d6:{}\n3d4:{\"nodeType\":\"text\",\"value\":\"The objective of a cause marketing campaign is to call the companyâs audience or customers to action. When the audience or customers are exposed to the companyâs marketing materials promoting both the nonprofitâs cause and the companyâs products or services, it should motivate them to take action to support the nonprofit whether itâs to donate, make a give-back purchase where a portion of the proceeds received are given to the nonprofit, .\",\"marks\":\"$3d5\",\"data\":\"$3d6\"}\n3d3:[\"$3d4\"]\n3d1:{\"nodeType\":\"paragraph\",\"data\":\"$3d2\",\"content\":\"$3d3\"}\n3d8:{}\n3db:[]\n3dc:{}\n3da:{\"nodeType\":\"text\",\"value\":\"Insert Vollemanâs Example of engaging patients to provide artwork, a community-wide vote and then getting a percentage of the proceeds.\",\"marks\":\"$3db\",\"data\":\"$3dc\"}\n3d9:[\"$3da\"]\n3d7:{\"nodeType\":\"paragraph\",\"data\":\"$3d8\",\"content\":\"$3d9\"}\n3de:{}\n3e1:[]\n3e2:{}\n3e0:{\"nodeType\":\"text\",\"value\":\"For example, Vollemanâs Family Farm, a Texas dairy farm, invited Childrenâs Health patients to participate in a bottle design contest for a chance to have their artwork displayed on milk bottles sold across Texas for a limited time. Childrenâs Health and Vollemanâs held a community-wide vote to select the winning design, the patient-designed bottles were sold in stores and a portion of the proceeds were donated to Childrenâs Health.\",\"marks\":\"$3e1\",\"data\":\"$3e2\"}\n3df:[\"$3e0\"]\n3dd:{\"nodeType\":\"paragraph\",\"data\":\"$3de\",\"content\":\"$3df\"}\n3e4:{}\n3e7:[]\n3e8:{}\n3e6:{\"nodeType\":\"text\",\"value\":\"6) In-Kind Donations\",\"marks\":\"$3e7\",\"data\":\"$3e8\"}\n3e5:[\"$3e6\"]\n3e3:{\"nodeType\":\"heading-3\",\"data\":\"$3e4\",\"content\":\"$3e5\"}\n3ea:{}\n3ed:[]\n3ee:{}\n3ec:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$3ed"])</script>
1<script>self.__next_f.push([1,"\",\"data\":\"$3ee\"}\n3f0:{\"uri\":\"https://give.childrens.com/about-us/resources/what-is-an-in-kind-donation\"}\n3f3:[]\n3f4:{}\n3f2:{\"nodeType\":\"text\",\"value\":\"In-kind donations\",\"marks\":\"$3f3\",\"data\":\"$3f4\"}\n3f1:[\"$3f2\"]\n3ef:{\"nodeType\":\"hyperlink\",\"data\":\"$3f0\",\"content\":\"$3f1\"}\n3f6:[]\n3f7:{}\n3f5:{\"nodeType\":\"text\",\"value\":\" is a type of corporate giving that allows companies to donate products, resources and other non-monetary gifts to nonprofits. Giving back as a team at any time of the year can be a fun way for employees to engage, connect and support nonprofits. Year-end or around a holiday is also a popular time of year for companies to give back because of the holiday seasonâs focus on generosity and the personal tax benefits individuals receive.\",\"marks\":\"$3f6\",\"data\":\"$3f7\"}\n3eb:[\"$3ec\",\"$3ef\",\"$3f5\"]\n3e9:{\"nodeType\":\"paragraph\",\"data\":\"$3ea\",\"content\":\"$3eb\"}\n3f9:{}\n3fc:[]\n3fd:{}\n3fb:{\"nodeType\":\"text\",\"value\":\"In-kind donations allow companies to use their unique assets (such as tech firms donating software) to benefit nonprofits and improve their resource allocation.\",\"marks\":\"$3fc\",\"data\":\"$3fd\"}\n3fa:[\"$3fb\"]\n3f8:{\"nodeType\":\"paragraph\",\"data\":\"$3f9\",\"content\":\"$3fa\"}\n3ff:{}\n402:[]\n403:{}\n401:{\"nodeType\":\"text\",\"value\":\"Tips for getting started with in-kind donations:\",\"marks\":\"$402\",\"data\":\"$403\"}\n400:[\"$401\"]\n3fe:{\"nodeType\":\"paragraph\",\"data\":\"$3ff\",\"content\":\"$400\"}\n405:{}\n408:{}\n40b:{}\n40e:[]\n40f:{}\n40d:{\"nodeType\":\"text\",\"value\":\"Understand the nonprofitâs needs. Before making in-kind donations, connect with the nonprofit you intend to support and find out their specific needs. To ensure your companyâs contributions will be relevant and impactful, consider factors like the populations they serve, their mission and their programs that require immediate donations. Childrenâs Health has a couple of much needed items (link to the GIK page) that they update regularly.\",\"marks\":\"$40e\",\"data\":\"$40f\"}\n40c:[\"$40d\"]\n40a:{\"nodeType\":\"paragraph\",\"data\":\"$40b\",\"content\":\"$40c\"}\n409:[\"$40a\"]\n407:{\"nodeType\":"])</script>
1<script>self.__next_f.push([1,"\"list-item\",\"data\":\"$408\",\"content\":\"$409\"}\n411:{}\n414:{}\n417:[]\n418:{}\n416:{\"nodeType\":\"text\",\"value\":\"Keep transparency with the nonprofit. Define the terms and conditions of the donation, including logistical details like delivery, storage and distribution. Be sure to check in with the nonprofit to evaluate the impact of your companyâs donation and any concerns that may emerge.\",\"marks\":\"$417\",\"data\":\"$418\"}\n415:[\"$416\"]\n413:{\"nodeType\":\"paragraph\",\"data\":\"$414\",\"content\":\"$415\"}\n412:[\"$413\"]\n410:{\"nodeType\":\"list-item\",\"data\":\"$411\",\"content\":\"$412\"}\n41a:{}\n41d:{}\n420:[]\n421:{}\n41f:{\"nodeType\":\"text\",\"value\":\"Leverage your employeesâ engagement. Engage your employees in the process of selecting and delivering in-kind donations. For example, a clothing company might donate special T-shirts for patients at a pediatric hospital and hand-deliver them to patients while also getting a chance to meet them.\",\"marks\":\"$420\",\"data\":\"$421\"}\n41e:[\"$41f\"]\n41c:{\"nodeType\":\"paragraph\",\"data\":\"$41d\",\"content\":\"$41e\"}\n41b:[\"$41c\"]\n419:{\"nodeType\":\"list-item\",\"data\":\"$41a\",\"content\":\"$41b\"}\n406:[\"$407\",\"$410\",\"$419\"]\n404:{\"nodeType\":\"unordered-list\",\"data\":\"$405\",\"content\":\"$406\"}\n423:{}\n426:[]\n427:{}\n425:{\"nodeType\":\"text\",\"value\":\"Learn \",\"marks\":\"$426\",\"data\":\"$427\"}\n429:{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"}\n42c:[]\n42d:{}\n42b:{\"nodeType\":\"text\",\"value\":\"ways to donate in-kind\",\"marks\":\"$42c\",\"data\":\"$42d\"}\n42a:[\"$42b\"]\n428:{\"nodeType\":\"hyperlink\",\"data\":\"$429\",\"content\":\"$42a\"}\n42f:[]\n430:{}\n42e:{\"nodeType\":\"text\",\"value\":\" to Childrenâs Health.\",\"marks\":\"$42f\",\"data\":\"$430\"}\n424:[\"$425\",\"$428\",\"$42e\"]\n422:{\"nodeType\":\"paragraph\",\"data\":\"$423\",\"content\":\"$424\"}\n432:{}\n435:[]\n436:{}\n434:{\"nodeType\":\"text\",\"value\":\"Begin Your Corporate Philanthropy Journey\",\"marks\":\"$435\",\"data\":\"$436\"}\n433:[\"$434\"]\n431:{\"nodeType\":\"heading-2\",\"data\":\"$432\",\"content\":\"$433\"}\n438:{}\n43b:[]\n43c:{}\n43a:{\"nodeType\":\"text\",\"value\":\"There are many ways companies can get involved with and support nonprofits. The"])</script>
1<script>self.__next_f.push([1," main benefits are employee engagement and morale, company reputation and the support of a good cause. Speaking of good causes, \",\"marks\":\"$43b\",\"data\":\"$43c\"}\n43e:{\"uri\":\"https://give.childrens.com/ways-to-give/donate/corporate-giving\"}\n441:[]\n442:{}\n440:{\"nodeType\":\"text\",\"value\":\"get involved in corporate philanthropy\",\"marks\":\"$441\",\"data\":\"$442\"}\n43f:[\"$440\"]\n43d:{\"nodeType\":\"hyperlink\",\"data\":\"$43e\",\"content\":\"$43f\"}\n444:[]\n445:{}\n443:{\"nodeType\":\"text\",\"value\":\" with Childrenâs Health to make life better for children!\",\"marks\":\"$444\",\"data\":\"$445\"}\n439:[\"$43a\",\"$43d\",\"$443\"]\n437:{\"nodeType\":\"paragraph\",\"data\":\"$438\",\"content\":\"$439\"}\n447:{}\n44a:[]\n44b:{}\n449:{\"nodeType\":\"text\",\"value\":\"Related Resources\",\"marks\":\"$44a\",\"data\":\"$44b\"}\n448:[\"$449\"]\n446:{\"nodeType\":\"heading-2\",\"data\":\"$447\",\"content\":\"$448\"}\n450:[]\n451:[]\n44f:{\"tags\":\"$450\",\"concepts\":\"$451\"}\n454:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n453:{\"sys\":\"$454\"}\n456:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n455:{\"sys\":\"$456\"}\n458:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"collection\"}\n457:{\"sys\":\"$458\"}\n452:{\"space\":\"$453\",\"id\":\"6MqovB5Z7vEfmEZkLaHj0w\",\"type\":\"Entry\",\"createdAt\":\"2026-07-20T20:47:09.963Z\",\"updatedAt\":\"2026-07-20T20:47:09.963Z\",\"environment\":\"$455\",\"publishedVersion\":5,\"revision\":1,\"contentType\":\"$457\",\"locale\":\"en-US\"}\n45c:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n45b:{\"sys\":\"$45c\"}\n45e:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n45d:{\"sys\":\"$45e\"}\n460:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"articlePage\"}\n45f:{\"sys\":\"$460\"}\n462:{}\n465:{}\n468:{}\n469:[]\n467:{\"data\":\"$468\",\"marks\":\"$469\",\"value\":\"In-kind donations are essential to nonprofits. Learn more about gifts in kind and how nonprofits - including Children's Medical Center Foundation - use them. \",\"nodeType\":\"text\"}\n466:[\"$467\"]\n464:{\"data\":\"$465\",\"content\":\"$466\",\"nodeType\":\"paragraph\"}\n463:[\"$464\"]\n461:{\"data\":\"$462\",\"content\":\"$463\",\"nodeType\":\"document\"}\n46b:[]\n46c:[]\n46a:{\"tags\":\"$46b\",\"concepts\":\"$46c\"}\n46f:{\"typ"])</script>
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1<script>self.__next_f.push([1,"cd1f16329217/thul-JoyJars-L160922009.jpg\",\"webimage\":\"https://assets.childrens.com/m/2f86cd1f16329217/webimage-JoyJars-L160922009.jpg\"}\n4a0:[]\n4a1:[]\n49c:{\"id\":\"0D268B3F-9C8A-4B6A-973BF84BF9157CA5\",\"src\":\"https://assets.childrens.com/m/2f86cd1f16329217/webimage-JoyJars-L160922009.jpg\",\"name\":\"JoyJars(L160922009)\",\"tags\":\"$49d\",\"type\":\"image\",\"width\":500,\"height\":281,\"archive\":0,\"brandId\":\"17C17AAC-49AB-4E0C-BD8132E8C4BAF14D\",\"limited\":0,\"fileSize\":10628440,\"isPublic\":0,\"original\":null,\"copyright\":null,\"extension\":\"$49e\",\"thumbnails\":\"$49f\",\"dateCreated\":\"2025-02-14T17:37:00Z\",\"description\":null,\"orientation\":\"landscape\",\"watermarked\":0,\"dateModified\":\"2025-02-14T17:37:00Z\",\"datePublished\":\"2016-09-22T11:39:16Z\",\"videoPreviewURLs\":\"$4a0\",\"textMetaproperties\":\"$4a1\"}\n49b:[\"$49c\"]\n49a:{\"adminTitle\":\"Media: What is an In-Kind Donation? | Thumbnail\",\"image\":\"$49b\"}\n4a3:[]\n4a4:[]\n4a2:{\"tags\":\"$4a3\",\"concepts\":\"$4a4\"}\n4a7:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n4a6:{\"sys\":\"$4a7\"}\n4a9:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n4a8:{\"sys\":\"$4a9\"}\n4ab:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n4aa:{\"sys\":\"$4ab\"}\n4a5:{\"space\":\"$4a6\",\"id\":\"3EpfHGPcW24Sd3QTh3oLtI\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T18:03:32.381Z\",\"updatedAt\":\"2026-02-17T18:30:23.914Z\",\"environment\":\"$4a8\",\"publishedVersion\":25,\"revision\":7,\"contentType\":\"$4aa\",\"locale\":\"en-US\"}\n4ae:{}\n4b1:{}\n4b4:[]\n4b5:{}\n4b3:{\"nodeType\":\"text\",\"value\":\"In-kind donations, also known as gifts in kind, are non-cash donations like toys, books, and games. At Childrenâs Health â , these donations make a huge difference in the daily life and experiences of our patients, bring comfort and joy throughout their care journey. \",\"marks\":\"$4b4\",\"data\":\"$4b5\"}\n4b7:{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"}\n4ba:[]\n4bb:{}\n4b9:{\"nodeType\":\"text\",\"value\":\"In-kind donations\",\"marks\":\"$4ba\",\"data\":\"$4bb\"}\n4b8:[\"$4b9\"]\n4b6:{\"nodeType\":\"hyperlink\",\"data\":\"$4b7\",\"content\":\"$4b8\"}\n4bd:[]\n4be:{}\n4bc:{\"nodeType\":\"text\",\"value"])</script>
1<script>self.__next_f.push([1,"\":\" \",\"marks\":\"$4bd\",\"data\":\"$4be\"}\n4c0:[]\n4c1:{}\n4bf:{\"nodeType\":\"text\",\"value\":\"are used as special items for celebration and activities that distract children from procedures, that normalize the hospital experience and more. Contributions large and small continue to make a difference in the lives of our patients and families.\",\"marks\":\"$4c0\",\"data\":\"$4c1\"}\n4b2:[\"$4b3\",\"$4b6\",\"$4bc\",\"$4bf\"]\n4b0:{\"nodeType\":\"paragraph\",\"data\":\"$4b1\",\"content\":\"$4b2\"}\n4af:[\"$4b0\"]\n4ad:{\"nodeType\":\"document\",\"data\":\"$4ae\",\"content\":\"$4af\"}\n4ac:{\"adminTitle\":\"Main Content: What Is An In-Kind Donation? | Article\",\"headingLevel\":\"h2\",\"body\":\"$4ad\",\"contentAccordion\":\"Disabled\"}\n4c3:[]\n4c4:[]\n4c2:{\"tags\":\"$4c3\",\"concepts\":\"$4c4\"}\n4c7:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n4c6:{\"sys\":\"$4c7\"}\n4c9:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n4c8:{\"sys\":\"$4c9\"}\n4cb:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n4ca:{\"sys\":\"$4cb\"}\n4c5:{\"space\":\"$4c6\",\"id\":\"4Ofr9MTQSavfprxaYGtsqc\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T21:26:11.911Z\",\"updatedAt\":\"2026-02-17T18:31:33.736Z\",\"environment\":\"$4c8\",\"publishedVersion\":32,\"revision\":7,\"contentType\":\"$4ca\",\"locale\":\"en-US\"}\n4ce:{}\n4d1:{}\n4d4:[]\n4d5:{}\n4d3:{\"nodeType\":\"text\",\"value\":\"Benefits of In-Kind Donations\",\"marks\":\"$4d4\",\"data\":\"$4d5\"}\n4d2:[\"$4d3\"]\n4d0:{\"nodeType\":\"heading-2\",\"data\":\"$4d1\",\"content\":\"$4d2\"}\n4d7:{}\n4da:[]\n4db:{}\n4d9:{\"nodeType\":\"text\",\"value\":\"In-kind donations make a meaningful difference for nonprofits of all sizes. These contributions help provide essential goods and items allowing resources to be allocated to other vital programs. In the following sections, weâll explore the impact of in-kind donations on both recipients and donors, highlighting how these gifts make a difference in the lives of many.\",\"marks\":\"$4da\",\"data\":\"$4db\"}\n4d8:[\"$4d9\"]\n4d6:{\"nodeType\":\"paragraph\",\"data\":\"$4d7\",\"content\":\"$4d8\"}\n4dd:{}\n4e0:[]\n4e1:{}\n4df:{\"nodeType\":\"text\",\"value\":\"Benefits of In-Kind Donations for Nonprofits\",\"marks\":\"$4e0\",\"data\":\"$4e1\"}\n4de:["])</script>
1<script>self.__next_f.push([1,"\"$4df\"]\n4dc:{\"nodeType\":\"heading-3\",\"data\":\"$4dd\",\"content\":\"$4de\"}\n4e3:{}\n4e6:[]\n4e7:{}\n4e5:{\"nodeType\":\"text\",\"value\":\"In-kind donations help nonprofits like Childrenâs Health access items that directly impact the communities we serve. These in-kind donations help us go above and beyond for our patients and free up resources to be directed toward services and programs.\",\"marks\":\"$4e6\",\"data\":\"$4e7\"}\n4e4:[\"$4e5\"]\n4e2:{\"nodeType\":\"paragraph\",\"data\":\"$4e3\",\"content\":\"$4e4\"}\n4e9:{}\n4ec:[]\n4ed:{}\n4eb:{\"nodeType\":\"text\",\"value\":\"Benefits of In-Kind Donations for Donors\",\"marks\":\"$4ec\",\"data\":\"$4ed\"}\n4ea:[\"$4eb\"]\n4e8:{\"nodeType\":\"heading-3\",\"data\":\"$4e9\",\"content\":\"$4ea\"}\n4ef:{}\n4f2:[]\n4f3:{}\n4f1:{\"nodeType\":\"text\",\"value\":\"In-kind donations are valuable because: \",\"marks\":\"$4f2\",\"data\":\"$4f3\"}\n4f0:[\"$4f1\"]\n4ee:{\"nodeType\":\"paragraph\",\"data\":\"$4ef\",\"content\":\"$4f0\"}\n4f5:{}\n4f8:{}\n4fb:{}\n4fe:[]\n4ff:{}\n4fd:{\"nodeType\":\"text\",\"value\":\"In-kind donations allow people to donate to us even when itâs challenging to give money (e.g., donating toys, crafts and board games)\",\"marks\":\"$4fe\",\"data\":\"$4ff\"}\n4fc:[\"$4fd\"]\n4fa:{\"nodeType\":\"paragraph\",\"data\":\"$4fb\",\"content\":\"$4fc\"}\n4f9:[\"$4fa\"]\n4f7:{\"nodeType\":\"list-item\",\"data\":\"$4f8\",\"content\":\"$4f9\"}\n501:{}\n504:{}\n507:[]\n508:{}\n506:{\"nodeType\":\"text\",\"value\":\"Donors can see the immediate impact of their donations \",\"marks\":\"$507\",\"data\":\"$508\"}\n505:[\"$506\"]\n503:{\"nodeType\":\"paragraph\",\"data\":\"$504\",\"content\":\"$505\"}\n502:[\"$503\"]\n500:{\"nodeType\":\"list-item\",\"data\":\"$501\",\"content\":\"$502\"}\n50a:{}\n50d:{}\n510:[]\n511:{}\n50f:{\"nodeType\":\"text\",\"value\":\"In-kind donations can typically be used immediately \",\"marks\":\"$510\",\"data\":\"$511\"}\n50e:[\"$50f\"]\n50c:{\"nodeType\":\"paragraph\",\"data\":\"$50d\",\"content\":\"$50e\"}\n50b:[\"$50c\"]\n509:{\"nodeType\":\"list-item\",\"data\":\"$50a\",\"content\":\"$50b\"}\n513:{}\n516:{}\n519:[]\n51a:{}\n518:{\"nodeType\":\"text\",\"value\":\"In-kind donations free up funds to use for our programs and services \",\"marks\":\"$519\",\"data\":\"$51a\"}\n517:[\"$518\"]\n515:{\"nodeType\":\"paragraph\",\"data\":"])</script>
1<script>self.__next_f.push([1,"\"$516\",\"content\":\"$517\"}\n514:[\"$515\"]\n512:{\"nodeType\":\"list-item\",\"data\":\"$513\",\"content\":\"$514\"}\n4f6:[\"$4f7\",\"$500\",\"$509\",\"$512\"]\n4f4:{\"nodeType\":\"unordered-list\",\"data\":\"$4f5\",\"content\":\"$4f6\"}\n51c:{}\n51f:[]\n520:{}\n51e:{\"nodeType\":\"text\",\"value\":\"Tax Deductible Benefits of In-Kind Donations\",\"marks\":\"$51f\",\"data\":\"$520\"}\n51d:[\"$51e\"]\n51b:{\"nodeType\":\"heading-4\",\"data\":\"$51c\",\"content\":\"$51d\"}\n522:{}\n525:[]\n526:{}\n524:{\"nodeType\":\"text\",\"value\":\"In-kind gifts can be tax deductible if they meet specific requirements, which can vary by type or value of donation. In-Kind donations, or noncash contributions, are subject to specific IRS rules for both donors and recipient organizations. It is important to follow an organizationâs instructions for in-kind donations in order to receive proper acknowledgements for charitable deduction requirements as appropriate. \",\"marks\":\"$525\",\"data\":\"$526\"}\n523:[\"$524\"]\n521:{\"nodeType\":\"paragraph\",\"data\":\"$522\",\"content\":\"$523\"}\n528:{}\n52b:[]\n52c:{}\n52a:{\"nodeType\":\"text\",\"value\":\"Consult a tax professional and IRS guidelines like \",\"marks\":\"$52b\",\"data\":\"$52c\"}\n52e:{\"uri\":\"https://www.irs.gov/publications/p526\"}\n531:[]\n532:{}\n530:{\"nodeType\":\"text\",\"value\":\"Publication 526\",\"marks\":\"$531\",\"data\":\"$532\"}\n52f:[\"$530\"]\n52d:{\"nodeType\":\"hyperlink\",\"data\":\"$52e\",\"content\":\"$52f\"}\n534:[]\n535:{}\n533:{\"nodeType\":\"text\",\"value\":\" and \",\"marks\":\"$534\",\"data\":\"$535\"}\n537:{\"uri\":\"https://www.irs.gov/publications/p561\"}\n53a:[]\n53b:{}\n539:{\"nodeType\":\"text\",\"value\":\"Publication 561\",\"marks\":\"$53a\",\"data\":\"$53b\"}\n538:[\"$539\"]\n536:{\"nodeType\":\"hyperlink\",\"data\":\"$537\",\"content\":\"$538\"}\n53d:[]\n53e:{}\n53c:{\"nodeType\":\"text\",\"value\":\" for more details. \",\"marks\":\"$53d\",\"data\":\"$53e\"}\n529:[\"$52a\",\"$52d\",\"$533\",\"$536\",\"$53c\"]\n527:{\"nodeType\":\"paragraph\",\"data\":\"$528\",\"content\":\"$529\"}\n4cf:[\"$4d0\",\"$4d6\",\"$4dc\",\"$4e2\",\"$4e8\",\"$4ee\",\"$4f4\",\"$51b\",\"$521\",\"$527\"]\n4cd:{\"nodeType\":\"document\",\"data\":\"$4ce\",\"content\":\"$4cf\"}\n4cc:{\"adminTitle\":\"Main Content: What Is An In-Kind Donation? | Benefits of In-Kind"])</script>
1<script>self.__next_f.push([1," Donations\",\"headingLevel\":\"h2\",\"body\":\"$4cd\",\"contentAccordion\":\"Disabled\"}\n540:[]\n541:[]\n53f:{\"tags\":\"$540\",\"concepts\":\"$541\"}\n544:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n543:{\"sys\":\"$544\"}\n546:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n545:{\"sys\":\"$546\"}\n548:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n547:{\"sys\":\"$548\"}\n542:{\"space\":\"$543\",\"id\":\"4SSBcWu1kF8RP4mEeM0qJ4\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:18:06.030Z\",\"updatedAt\":\"2026-09-29T17:04:38.276Z\",\"environment\":\"$545\",\"publishedVersion\":45,\"revision\":10,\"contentType\":\"$547\",\"locale\":\"en-US\"}\n54b:{}\n54e:{}\n551:[]\n552:{}\n550:{\"nodeType\":\"text\",\"value\":\"What to Consider Before Making an In-Kind Donation?\",\"marks\":\"$551\",\"data\":\"$552\"}\n54f:[\"$550\"]\n54d:{\"nodeType\":\"heading-2\",\"data\":\"$54e\",\"content\":\"$54f\"}\n554:{}\n557:[]\n558:{}\n556:{\"nodeType\":\"text\",\"value\":\"There are some considerations to make before making an in-kind donation: \",\"marks\":\"$557\",\"data\":\"$558\"}\n555:[\"$556\"]\n553:{\"nodeType\":\"paragraph\",\"data\":\"$554\",\"content\":\"$555\"}\n55a:{}\n55d:{}\n560:{}\n563:[]\n564:{}\n562:{\"nodeType\":\"text\",\"value\":\"Learn about an organizationâs current needs and information about what they can and cannot accept.\",\"marks\":\"$563\",\"data\":\"$564\"}\n561:[\"$562\"]\n55f:{\"nodeType\":\"paragraph\",\"data\":\"$560\",\"content\":\"$561\"}\n566:{}\n569:{}\n56c:{}\n56f:[]\n570:{}\n56e:{\"nodeType\":\"text\",\"value\":\"Many organizations list their most needed items. Childrenâs Health updates lists for most-needed items for each campus quarterly (\",\"marks\":\"$56f\",\"data\":\"$570\"}\n572:{\"uri\":\"https://image.mc.childrens.com/lib/fe3911717164057f751578/m/1/09b1b8e2-942d-4b11-afc6-4dff7a198dd0.pdf\"}\n576:{\"type\":\"bold\"}\n575:[\"$576\"]\n577:{}\n574:{\"nodeType\":\"text\",\"value\":\"Needed items â Dallas\",\"marks\":\"$575\",\"data\":\"$577\"}\n573:[\"$574\"]\n571:{\"nodeType\":\"hyperlink\",\"data\":\"$572\",\"content\":\"$573\"}\n579:[]\n57a:{}\n578:{\"nodeType\":\"text\",\"value\":\", \",\"marks\":\"$579\",\"data\":\"$57a\"}\n57c:{\"uri\":\"https://image.mc.childrens.com/lib/fe3911717164057f751578/m/1/213f33f7-75d5-4c2a-b76"])</script>
1<script>self.__next_f.push([1,"0-c902bd6a15b4.pdf\"}\n580:{\"type\":\"bold\"}\n57f:[\"$580\"]\n581:{}\n57e:{\"nodeType\":\"text\",\"value\":\"Needed items â Plano\",\"marks\":\"$57f\",\"data\":\"$581\"}\n57d:[\"$57e\"]\n57b:{\"nodeType\":\"hyperlink\",\"data\":\"$57c\",\"content\":\"$57d\"}\n583:[]\n584:{}\n582:{\"nodeType\":\"text\",\"value\":\")\",\"marks\":\"$583\",\"data\":\"$584\"}\n56d:[\"$56e\",\"$571\",\"$578\",\"$57b\",\"$582\"]\n56b:{\"nodeType\":\"paragraph\",\"data\":\"$56c\",\"content\":\"$56d\"}\n56a:[\"$56b\"]\n568:{\"nodeType\":\"list-item\",\"data\":\"$569\",\"content\":\"$56a\"}\n586:{}\n589:{}\n58c:[]\n58d:{}\n58b:{\"nodeType\":\"text\",\"value\":\"Amazon wish lists (see: \",\"marks\":\"$58c\",\"data\":\"$58d\"}\n58f:{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"}\n592:[]\n593:{}\n591:{\"nodeType\":\"text\",\"value\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\",\"marks\":\"$592\",\"data\":\"$593\"}\n590:[\"$591\"]\n58e:{\"nodeType\":\"hyperlink\",\"data\":\"$58f\",\"content\":\"$590\"}\n595:[]\n596:{}\n594:{\"nodeType\":\"text\",\"value\":\" ) are also a great way to see current needed items, including for specific areas for an organization.\",\"marks\":\"$595\",\"data\":\"$596\"}\n58a:[\"$58b\",\"$58e\",\"$594\"]\n588:{\"nodeType\":\"paragraph\",\"data\":\"$589\",\"content\":\"$58a\"}\n587:[\"$588\"]\n585:{\"nodeType\":\"list-item\",\"data\":\"$586\",\"content\":\"$587\"}\n598:{}\n59b:{}\n59e:[]\n59f:{}\n59d:{\"nodeType\":\"text\",\"value\":\"Different organizations have different guidelines about items they cannot accept. Childrenâs Health \",\"marks\":\"$59e\",\"data\":\"$59f\"}\n5a1:{\"uri\":\"https://image.mc.childrens.com/lib/fe3911717164057f751578/m/1/d1e0d38e-9b73-481c-b2d5-454e3b5c7247.pdf\"}\n5a4:[]\n5a5:{}\n5a3:{\"nodeType\":\"text\",\"value\":\"cannot accept these items\",\"marks\":\"$5a4\",\"data\":\"$5a5\"}\n5a2:[\"$5a3\"]\n5a0:{\"nodeType\":\"hyperlink\",\"data\":\"$5a1\",\"content\":\"$5a2\"}\n5a7:[]\n5a8:{}\n5a6:{\"nodeType\":\"text\",\"value\":\".\",\"marks\":\"$5a7\",\"data\":\"$5a8\"}\n59c:[\"$59d\",\"$5a0\",\"$5a6\"]\n59a:{\"nodeType\":\"paragraph\",\"data\":\"$59b\",\"content\":\"$59c\"}\n5aa:{}\n5ad:{}\n5b0:{}\n5b3:[]\n5b4:{}\n5b2:{\"nodeType\":\"text\",\"value\":\"At Childrenâs Health, for the safety of our patients, all items must be new, unused, in its original packaging an"])</script>
1<script>self.__next_f.push([1,"d latex free. Battery-operated toys should have battery cases that secure with screws so that patients cannot pry them open. Any gift-wrapped items cannot be accepted.\",\"marks\":\"$5b3\",\"data\":\"$5b4\"}\n5b1:[\"$5b2\"]\n5af:{\"nodeType\":\"paragraph\",\"data\":\"$5b0\",\"content\":\"$5b1\"}\n5ae:[\"$5af\"]\n5ac:{\"nodeType\":\"list-item\",\"data\":\"$5ad\",\"content\":\"$5ae\"}\n5ab:[\"$5ac\"]\n5a9:{\"nodeType\":\"unordered-list\",\"data\":\"$5aa\",\"content\":\"$5ab\"}\n599:[\"$59a\",\"$5a9\"]\n597:{\"nodeType\":\"list-item\",\"data\":\"$598\",\"content\":\"$599\"}\n567:[\"$568\",\"$585\",\"$597\"]\n565:{\"nodeType\":\"unordered-list\",\"data\":\"$566\",\"content\":\"$567\"}\n55e:[\"$55f\",\"$565\"]\n55c:{\"nodeType\":\"list-item\",\"data\":\"$55d\",\"content\":\"$55e\"}\n5b6:{}\n5b9:{}\n5bc:[]\n5bd:{}\n5bb:{\"nodeType\":\"text\",\"value\":\"Review an organizationâs drop-off policies and scheduling guidelines prior to delivering. Institutions may have preferred drop-off times and locations to ensure donated items can be properly received, stored and distributed (include links to schedulers).\",\"marks\":\"$5bc\",\"data\":\"$5bd\"}\n5ba:[\"$5bb\"]\n5b8:{\"nodeType\":\"paragraph\",\"data\":\"$5b9\",\"content\":\"$5ba\"}\n5b7:[\"$5b8\"]\n5b5:{\"nodeType\":\"list-item\",\"data\":\"$5b6\",\"content\":\"$5b7\"}\n55b:[\"$55c\",\"$5b5\"]\n559:{\"nodeType\":\"unordered-list\",\"data\":\"$55a\",\"content\":\"$55b\"}\n5bf:{}\n5c2:[]\n5c3:{}\n5c1:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$5c2\",\"data\":\"$5c3\"}\n5c0:[\"$5c1\"]\n5be:{\"nodeType\":\"paragraph\",\"data\":\"$5bf\",\"content\":\"$5c0\"}\n54c:[\"$54d\",\"$553\",\"$559\",\"$5be\"]\n54a:{\"nodeType\":\"document\",\"data\":\"$54b\",\"content\":\"$54c\"}\n549:{\"adminTitle\":\"Main Content: What to Consider Before Making an In-Kind Donation?\",\"headingLevel\":\"h2\",\"body\":\"$54a\",\"contentAccordion\":\"Disabled\"}\n5c5:[]\n5c6:[]\n5c4:{\"tags\":\"$5c5\",\"concepts\":\"$5c6\"}\n5c9:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n5c8:{\"sys\":\"$5c9\"}\n5cb:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n5ca:{\"sys\":\"$5cb\"}\n5cd:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n5cc:{\"sys\":\"$5cd\"}\n5c7:{\"space\":\"$5c8\",\"id\":\"5ImXzXeMs1kaDjit2ELAJ8\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T21:28:14.623Z\""])</script>
1<script>self.__next_f.push([1,",\"updatedAt\":\"2026-07-20T20:15:45.715Z\",\"environment\":\"$5ca\",\"publishedVersion\":25,\"revision\":8,\"contentType\":\"$5cc\",\"locale\":\"en-US\"}\n5d0:{}\n5d6:[]\n5d7:[]\n5d5:{\"tags\":\"$5d6\",\"concepts\":\"$5d7\"}\n5da:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n5d9:{\"sys\":\"$5da\"}\n5dc:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n5db:{\"sys\":\"$5dc\"}\n5de:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"accordionBlock\"}\n5dd:{\"sys\":\"$5de\"}\n5d8:{\"space\":\"$5d9\",\"id\":\"5mxLPYdntOmfFXuqybB6Xn\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T21:28:08.053Z\",\"updatedAt\":\"2026-01-15T21:58:31.914Z\",\"environment\":\"$5db\",\"publishedVersion\":14,\"revision\":5,\"contentType\":\"$5dd\",\"locale\":\"en-US\"}\n5e3:[]\n5e4:[]\n5e2:{\"tags\":\"$5e3\",\"concepts\":\"$5e4\"}\n5e7:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n5e6:{\"sys\":\"$5e7\"}\n5e9:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n5e8:{\"sys\":\"$5e9\"}\n5eb:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}\n5ea:{\"sys\":\"$5eb\"}\n5e5:{\"space\":\"$5e6\",\"id\":\"ToVXMxj81YjqJuYPf3l0R\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T17:59:38.013Z\",\"updatedAt\":\"2026-02-17T18:35:45.347Z\",\"environment\":\"$5e8\",\"publishedVersion\":15,\"revision\":5,\"contentType\":\"$5ea\",\"locale\":\"en-US\"}\n5ee:{}\n5f1:{}\n5f4:[]\n5f5:{}\n5f3:{\"nodeType\":\"text\",\"value\":\"Gifts in kind, also referred to as in-kind donations, is a kind of charitable giving in which, instead of giving money to buy needed goods, the goods themselves are given (most often these are tangible items). Gifts in kind are distinguished from gifts of cash or stock. \",\"marks\":\"$5f4\",\"data\":\"$5f5\"}\n5f2:[\"$5f3\"]\n5f0:{\"nodeType\":\"paragraph\",\"data\":\"$5f1\",\"content\":\"$5f2\"}\n5f7:{}\n5fa:[]\n5fb:{}\n5f9:{\"nodeType\":\"text\",\"value\":\"A donation is a monetary gift to a nonprofit. \",\"marks\":\"$5fa\",\"data\":\"$5fb\"}\n5f8:[\"$5f9\"]\n5f6:{\"nodeType\":\"paragraph\",\"data\":\"$5f7\",\"content\":\"$5f8\"}\n5ef:[\"$5f0\",\"$5f6\"]\n5ed:{\"nodeType\":\"document\",\"data\":\"$5ee\",\"content\":\"$5ef\"}\n5ec:{\"adminTitle\":\"FAQ: What is the difference between a donation and an in-kind donation? | In-Kind Donations\",\"subject\":\"What is "])</script>
1<script>self.__next_f.push([1,"the difference between a donation and an in-kind donation?\",\"answer\":\"$5ed\"}\n5e1:{\"metadata\":\"$5e2\",\"sys\":\"$5e5\",\"fields\":\"$5ec\"}\n5fe:[]\n5ff:[]\n5fd:{\"tags\":\"$5fe\",\"concepts\":\"$5ff\"}\n602:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n601:{\"sys\":\"$602\"}\n604:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n603:{\"sys\":\"$604\"}\n606:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}\n605:{\"sys\":\"$606\"}\n600:{\"space\":\"$601\",\"id\":\"7vrueVK2ygICCbIs6PdGdc\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T18:02:25.024Z\",\"updatedAt\":\"2026-02-17T18:36:28.918Z\",\"environment\":\"$603\",\"publishedVersion\":16,\"revision\":5,\"contentType\":\"$605\",\"locale\":\"en-US\"}\n609:{}\n60c:{}\n60f:[]\n610:{}\n60e:{\"nodeType\":\"text\",\"value\":\"No, an in-kind contribution is a non-monetary contribution. Goods offered for free result in an in-kind contribution.\",\"marks\":\"$60f\",\"data\":\"$610\"}\n60d:[\"$60e\"]\n60b:{\"nodeType\":\"paragraph\",\"data\":\"$60c\",\"content\":\"$60d\"}\n612:{}\n615:[]\n616:{}\n614:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$615\",\"data\":\"$616\"}\n613:[\"$614\"]\n611:{\"nodeType\":\"paragraph\",\"data\":\"$612\",\"content\":\"$613\"}\n60a:[\"$60b\",\"$611\"]\n608:{\"nodeType\":\"document\",\"data\":\"$609\",\"content\":\"$60a\"}\n607:{\"adminTitle\":\"FAQ: Can cash be an in-kind donation? | In-Kind Donations\",\"subject\":\"Can cash be an in-kind donation?\",\"answer\":\"$608\"}\n5fc:{\"metadata\":\"$5fd\",\"sys\":\"$600\",\"fields\":\"$607\"}\n619:[]\n61a:[]\n618:{\"tags\":\"$619\",\"concepts\":\"$61a\"}\n61d:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n61c:{\"sys\":\"$61d\"}\n61f:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n61e:{\"sys\":\"$61f\"}\n621:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}\n620:{\"sys\":\"$621\"}\n61b:{\"space\":\"$61c\",\"id\":\"7L8rBaaXZCtAfG4xC6Pww0\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T18:03:09.310Z\",\"updatedAt\":\"2026-02-17T18:36:46.718Z\",\"environment\":\"$61e\",\"publishedVersion\":11,\"revision\":4,\"contentType\":\"$620\",\"locale\":\"en-US\"}\n624:{}\n627:{}\n62a:[]\n62b:{}\n629:{\"nodeType\":\"text\",\"value\":\"In-kind donations, also known as gifts in kind or in-kind contributions, are non-cash donations "])</script>
1<script>self.__next_f.push([1,"like goods and services provided to nonprofit organizations. These can include:\",\"marks\":\"$62a\",\"data\":\"$62b\"}\n628:[\"$629\"]\n626:{\"nodeType\":\"paragraph\",\"data\":\"$627\",\"content\":\"$628\"}\n62d:{}\n630:{}\n633:{}\n636:[]\n637:{}\n635:{\"nodeType\":\"text\",\"value\":\"Toys\",\"marks\":\"$636\",\"data\":\"$637\"}\n634:[\"$635\"]\n632:{\"nodeType\":\"paragraph\",\"data\":\"$633\",\"content\":\"$634\"}\n631:[\"$632\"]\n62f:{\"nodeType\":\"list-item\",\"data\":\"$630\",\"content\":\"$631\"}\n639:{}\n63c:{}\n63f:[]\n640:{}\n63e:{\"nodeType\":\"text\",\"value\":\"Clothing \",\"marks\":\"$63f\",\"data\":\"$640\"}\n63d:[\"$63e\"]\n63b:{\"nodeType\":\"paragraph\",\"data\":\"$63c\",\"content\":\"$63d\"}\n63a:[\"$63b\"]\n638:{\"nodeType\":\"list-item\",\"data\":\"$639\",\"content\":\"$63a\"}\n642:{}\n645:{}\n648:[]\n649:{}\n647:{\"nodeType\":\"text\",\"value\":\"Hand-made crafted items like no-sew blankets\",\"marks\":\"$648\",\"data\":\"$649\"}\n646:[\"$647\"]\n644:{\"nodeType\":\"paragraph\",\"data\":\"$645\",\"content\":\"$646\"}\n643:[\"$644\"]\n641:{\"nodeType\":\"list-item\",\"data\":\"$642\",\"content\":\"$643\"}\n62e:[\"$62f\",\"$638\",\"$641\"]\n62c:{\"nodeType\":\"unordered-list\",\"data\":\"$62d\",\"content\":\"$62e\"}\n64b:{}\n64e:[]\n64f:{}\n64d:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$64e\",\"data\":\"$64f\"}\n64c:[\"$64d\"]\n64a:{\"nodeType\":\"paragraph\",\"data\":\"$64b\",\"content\":\"$64c\"}\n625:[\"$626\",\"$62c\",\"$64a\"]\n623:{\"nodeType\":\"document\",\"data\":\"$624\",\"content\":\"$625\"}\n622:{\"adminTitle\":\"FAQ: What is an example of an in-kind contribution? | In-Kind Donations\",\"subject\":\"What is an example of an in-kind contribution?\",\"answer\":\"$623\"}\n617:{\"metadata\":\"$618\",\"sys\":\"$61b\",\"fields\":\"$622\"}\n652:[]\n653:[]\n651:{\"tags\":\"$652\",\"concepts\":\"$653\"}\n656:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n655:{\"sys\":\"$656\"}\n658:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n657:{\"sys\":\"$658\"}\n65a:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}\n659:{\"sys\":\"$65a\"}\n654:{\"space\":\"$655\",\"id\":\"i7U21arr3FKJgpg3vjApG\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:20:20.762Z\",\"updatedAt\":\"2026-02-17T18:37:13.605Z\",\"environment\":\"$657\",\"publishedVersion\":8,\"revision\":3,\"contentType\":\"$659\",\"locale\":\"en-US\"}\n65d:{}"])</script>
1<script>self.__next_f.push([1,"\n660:{}\n663:[]\n664:{}\n662:{\"nodeType\":\"text\",\"value\":\"In in-kind donation letter is a document used by a nonprofit to acknowledge and document the receipt of non-monetary donations like goods from a donor. It confirms the donation and often includes an estimated fair market value for the donation. This letter is important for both the donor and the organization for tax and record-keeping purposes. \",\"marks\":\"$663\",\"data\":\"$664\"}\n661:[\"$662\"]\n65f:{\"nodeType\":\"paragraph\",\"data\":\"$660\",\"content\":\"$661\"}\n666:{}\n669:[]\n66a:{}\n668:{\"nodeType\":\"text\",\"value\":\"Why itâs important:\",\"marks\":\"$669\",\"data\":\"$66a\"}\n667:[\"$668\"]\n665:{\"nodeType\":\"paragraph\",\"data\":\"$666\",\"content\":\"$667\"}\n66c:{}\n66f:{}\n672:{}\n676:{\"type\":\"bold\"}\n675:[\"$676\"]\n677:{}\n674:{\"nodeType\":\"text\",\"value\":\"For the Donor\",\"marks\":\"$675\",\"data\":\"$677\"}\n679:[]\n67a:{}\n678:{\"nodeType\":\"text\",\"value\":\": the letter allows the donor to claim a charitable deduction for their donation on their tax return, which requires documentation.\",\"marks\":\"$679\",\"data\":\"$67a\"}\n673:[\"$674\",\"$678\"]\n671:{\"nodeType\":\"paragraph\",\"data\":\"$672\",\"content\":\"$673\"}\n670:[\"$671\"]\n66e:{\"nodeType\":\"list-item\",\"data\":\"$66f\",\"content\":\"$670\"}\n67c:{}\n67f:{}\n683:{\"type\":\"bold\"}\n682:[\"$683\"]\n684:{}\n681:{\"nodeType\":\"text\",\"value\":\"For the organization:\",\"marks\":\"$682\",\"data\":\"$684\"}\n686:[]\n687:{}\n685:{\"nodeType\":\"text\",\"value\":\" the letter provides a record of the donation which is needed for tax purposes and record keeping. \",\"marks\":\"$686\",\"data\":\"$687\"}\n680:[\"$681\",\"$685\"]\n67e:{\"nodeType\":\"paragraph\",\"data\":\"$67f\",\"content\":\"$680\"}\n67d:[\"$67e\"]\n67b:{\"nodeType\":\"list-item\",\"data\":\"$67c\",\"content\":\"$67d\"}\n66d:[\"$66e\",\"$67b\"]\n66b:{\"nodeType\":\"unordered-list\",\"data\":\"$66c\",\"content\":\"$66d\"}\n689:{}\n68c:[]\n68d:{}\n68b:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$68c\",\"data\":\"$68d\"}\n68a:[\"$68b\"]\n688:{\"nodeType\":\"paragraph\",\"data\":\"$689\",\"content\":\"$68a\"}\n65e:[\"$65f\",\"$665\",\"$66b\",\"$688\"]\n65c:{\"nodeType\":\"document\",\"data\":\"$65d\",\"content\":\"$65e\"}\n65b:{\"adminTitle\":\"FAQ: What is an in-kind donation letter"])</script>
1<script>self.__next_f.push([1,"? | In-Kind Donations\",\"subject\":\"What is an in-kind donation letter?\",\"answer\":\"$65c\"}\n650:{\"metadata\":\"$651\",\"sys\":\"$654\",\"fields\":\"$65b\"}\n690:[]\n691:[]\n68f:{\"tags\":\"$690\",\"concepts\":\"$691\"}\n694:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n693:{\"sys\":\"$694\"}\n696:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n695:{\"sys\":\"$696\"}\n698:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}\n697:{\"sys\":\"$698\"}\n692:{\"space\":\"$693\",\"id\":\"6Aruoed3U7A4KaWSecFm72\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:20:41.825Z\",\"updatedAt\":\"2026-01-20T15:33:34.268Z\",\"environment\":\"$695\",\"publishedVersion\":5,\"revision\":2,\"contentType\":\"$697\",\"locale\":\"en-US\"}\n69b:{}\n69e:{}\n6a1:{}\n6a2:[]\n6a0:{\"data\":\"$6a1\",\"marks\":\"$6a2\",\"value\":\"Generally, yes. A donor may deduct an in-kind donation as a charitable gift. \",\"nodeType\":\"text\"}\n69f:[\"$6a0\"]\n69d:{\"data\":\"$69e\",\"content\":\"$69f\",\"nodeType\":\"paragraph\"}\n69c:[\"$69d\"]\n69a:{\"data\":\"$69b\",\"content\":\"$69c\",\"nodeType\":\"document\"}\n699:{\"adminTitle\":\"FAQ: Are in-kind donations tax deductible? | In-Kind Donations\",\"subject\":\"Are in-kind donations tax deductible?\",\"answer\":\"$69a\"}\n68e:{\"metadata\":\"$68f\",\"sys\":\"$692\",\"fields\":\"$699\"}\n6a5:[]\n6a6:[]\n6a4:{\"tags\":\"$6a5\",\"concepts\":\"$6a6\"}\n6a9:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n6a8:{\"sys\":\"$6a9\"}\n6ab:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n6aa:{\"sys\":\"$6ab\"}\n6ad:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}\n6ac:{\"sys\":\"$6ad\"}\n6a7:{\"space\":\"$6a8\",\"id\":\"6GBWMleoytLIe6k1IqfUow\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:21:17.663Z\",\"updatedAt\":\"2026-02-17T18:37:37.058Z\",\"environment\":\"$6aa\",\"publishedVersion\":9,\"revision\":4,\"contentType\":\"$6ac\",\"locale\":\"en-US\"}\n6b0:{}\n6b3:{}\n6b6:[]\n6b7:{}\n6b5:{\"nodeType\":\"text\",\"value\":\"Yes. In-kind donations can be gift cards; however, there are certain guidelines on how and when gift cards can be accepted and distributed for use. Please contact \",\"marks\":\"$6b6\",\"data\":\"$6b7\"}\n6b9:{\"uri\":\"mailto:[email protected]\"}\n6bc:[]\n6bd:{}\n6bb:{\"nodeType\":\"text\",\"val"])</script>
1<script>self.__next_f.push([1,"ue\":\"[email protected]\",\"marks\":\"$6bc\",\"data\":\"$6bd\"}\n6ba:[\"$6bb\"]\n6b8:{\"nodeType\":\"hyperlink\",\"data\":\"$6b9\",\"content\":\"$6ba\"}\n6bf:[]\n6c0:{}\n6be:{\"nodeType\":\"text\",\"value\":\" for more information about gift cards.\",\"marks\":\"$6bf\",\"data\":\"$6c0\"}\n6b4:[\"$6b5\",\"$6b8\",\"$6be\"]\n6b2:{\"nodeType\":\"paragraph\",\"data\":\"$6b3\",\"content\":\"$6b4\"}\n6b1:[\"$6b2\"]\n6af:{\"nodeType\":\"document\",\"data\":\"$6b0\",\"content\":\"$6b1\"}\n6ae:{\"adminTitle\":\"FAQ: Are gift cards considered in-kind donations? | In-Kind Donations\",\"subject\":\"Are gift cards considered in-kind donations?\",\"answer\":\"$6af\"}\n6a3:{\"metadata\":\"$6a4\",\"sys\":\"$6a7\",\"fields\":\"$6ae\"}\n5e0:[\"$5e1\",\"$5fc\",\"$617\",\"$650\",\"$68e\",\"$6a3\"]\n5df:{\"adminTitle\":\"Accordion Block: In-Kind Donations | FAQ\",\"heading\":\"Frequently Asked Questions About In-Kind Donations\",\"headingLevel\":\"h2\",\"items\":\"$5e0\",\"style\":\"All items closed\"}\n5d4:{\"metadata\":\"$5d5\",\"sys\":\"$5d8\",\"fields\":\"$5df\"}\n5d3:{\"target\":\"$5d4\"}\n6c1:[]\n5d2:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$5d3\",\"content\":\"$6c1\"}\n6c3:{}\n6c6:[]\n6c7:{}\n6c5:{\"nodeType\":\"text\",\"value\":\"Give In-Kind to Childrenâs Medical Center Foundation\",\"marks\":\"$6c6\",\"data\":\"$6c7\"}\n6c4:[\"$6c5\"]\n6c2:{\"nodeType\":\"heading-2\",\"data\":\"$6c3\",\"content\":\"$6c4\"}\n6c9:{}\n6cc:[]\n6cd:{}\n6cb:{\"nodeType\":\"text\",\"value\":\"Visit our \",\"marks\":\"$6cc\",\"data\":\"$6cd\"}\n6cf:{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"}\n6d2:[]\n6d3:{}\n6d1:{\"nodeType\":\"text\",\"value\":\"gift-in-kind page\",\"marks\":\"$6d2\",\"data\":\"$6d3\"}\n6d0:[\"$6d1\"]\n6ce:{\"nodeType\":\"hyperlink\",\"data\":\"$6cf\",\"content\":\"$6d0\"}\n6d5:[]\n6d6:{}\n6d4:{\"nodeType\":\"text\",\"value\":\" to see more details about our program or schedule your in-kind donation at our Dallas or Plano campus.\",\"marks\":\"$6d5\",\"data\":\"$6d6\"}\n6ca:[\"$6cb\",\"$6ce\",\"$6d4\"]\n6c8:{\"nodeType\":\"paragraph\",\"data\":\"$6c9\",\"content\":\"$6ca\"}\n6d8:{}\n6db:[]\n6dc:{}\n6da:{\"nodeType\":\"text\",\"value\":\"Sources\",\"marks\":\"$6db\",\"data\":\"$6dc\"}\n6d9:[\"$6da\"]\n6d7:{\"nodeType\":\"heading-3\",\"data\":\"$6d8\",\"content\":\"$6d9\"}\n6de:{}\n6e2:{\"type\":\"bold\"}\n6e1:[\"$6e2\"]\n6e3:{}\n6e0:"])</script>
1<script>self.__next_f.push([1,"{\"nodeType\":\"text\",\"value\":\"IRS.gov â \",\"marks\":\"$6e1\",\"data\":\"$6e3\"}\n6e5:[]\n6e6:{}\n6e4:{\"nodeType\":\"text\",\"value\":\"Publication 526, Charitable Contributions â \",\"marks\":\"$6e5\",\"data\":\"$6e6\"}\n6e8:{\"uri\":\"https://www.irs.gov/publications/p526\"}\n6eb:[]\n6ec:{}\n6ea:{\"nodeType\":\"text\",\"value\":\"https://www.irs.gov/publications/p526\",\"marks\":\"$6eb\",\"data\":\"$6ec\"}\n6e9:[\"$6ea\"]\n6e7:{\"nodeType\":\"hyperlink\",\"data\":\"$6e8\",\"content\":\"$6e9\"}\n6ee:[]\n6ef:{}\n6ed:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$6ee\",\"data\":\"$6ef\"}\n6df:[\"$6e0\",\"$6e4\",\"$6e7\",\"$6ed\"]\n6dd:{\"nodeType\":\"paragraph\",\"data\":\"$6de\",\"content\":\"$6df\"}\n6f1:{}\n6f5:{\"type\":\"bold\"}\n6f4:[\"$6f5\"]\n6f6:{}\n6f3:{\"nodeType\":\"text\",\"value\":\"IRS.gov â \",\"marks\":\"$6f4\",\"data\":\"$6f6\"}\n6f8:[]\n6f9:{}\n6f7:{\"nodeType\":\"text\",\"value\":\"Publication 561, Determining the Value of Donated Property â \",\"marks\":\"$6f8\",\"data\":\"$6f9\"}\n6fb:{\"uri\":\"https://www.irs.gov/publications/p561\"}\n6fe:[]\n6ff:{}\n6fd:{\"nodeType\":\"text\",\"value\":\"https://www.irs.gov/publications/p561\",\"marks\":\"$6fe\",\"data\":\"$6ff\"}\n6fc:[\"$6fd\"]\n6fa:{\"nodeType\":\"hyperlink\",\"data\":\"$6fb\",\"content\":\"$6fc\"}\n701:[]\n702:{}\n700:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$701\",\"data\":\"$702\"}\n6f2:[\"$6f3\",\"$6f7\",\"$6fa\",\"$700\"]\n6f0:{\"nodeType\":\"paragraph\",\"data\":\"$6f1\",\"content\":\"$6f2\"}\n704:{}\n707:[]\n708:{}\n706:{\"nodeType\":\"text\",\"value\":\"Related Resources\",\"marks\":\"$707\",\"data\":\"$708\"}\n705:[\"$706\"]\n703:{\"nodeType\":\"heading-2\",\"data\":\"$704\",\"content\":\"$705\"}\n70d:[]\n70e:[]\n70c:{\"tags\":\"$70d\",\"concepts\":\"$70e\"}\n711:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n710:{\"sys\":\"$711\"}\n713:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n712:{\"sys\":\"$713\"}\n715:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"collection\"}\n714:{\"sys\":\"$715\"}\n70f:{\"space\":\"$710\",\"id\":\"56RoGaDM6PAPhVvkEnyVB8\",\"type\":\"Entry\",\"createdAt\":\"2026-07-20T20:15:42.909Z\",\"updatedAt\":\"2026-07-20T20:15:42.909Z\",\"environment\":\"$712\",\"publishedVersion\":6,\"revision\":1,\"contentType\":\"$714\",\"locale\":\"en-US\"}\n718:T4d7,A hospital can be a scary place, especially when you"])</script>
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1ort the hospitalâs priorities. \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Childrenâs Health is fortunate to have the advocacy and support of community affinity group, \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/join-a-group/the-womens-auxiliary\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"The Womenâs Auxiliary to Childrenâs Medical Center\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\". The Auxiliary is a group of women who support Childrenâs Healthâs mission by raising funds for hospital priorities, offering uplifting activities for patient families, providing support and recognition to hospital team members and raising awareness about Childrenâs Health in the community. Aside from volunteering at the hospital, here are just some of the events The Womenâs Auxiliary hosts to get the community involved to make life better for children: \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/event-calendar/mahjong\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"The Womenâs Auxiliary Mahjong Fundraiser\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/family-night-six-flags\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Family Night at Six Flags\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/legacy-love\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Legacy of Love\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/boo\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"BOO Yard Sign Challenge\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/breakfast-santa-spectacular\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Breakfast with Santa Spectacula\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"r\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/santas-workshop\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Santaâs Workshop\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"}],\"nodeType\":\"unordered-list\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Group Services Projects \u0026 Sponsored Events \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"There are specific fundraising events that benef
1it local hospitals that one can attend or volunteer at. Childrenâs Health currently hosts \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"events\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" that the community can participate in or attend like: \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.redballoonleague.com/\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"The Red Balloon League\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/family-night-six-flags\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Family Night at Six Flags\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/legacy-love\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Legacy of Love\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/extra-life\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Extra Life\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/north-texas-giving-day\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"North Texas Giving Day\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/event-calendar/swing-fore-miracles\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Swing Fore Miracles\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/boo\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"BOO Yard Sign Challenge\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/breakfast-santa-spectacular\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Breakfast with Santa Spectacular\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://give.childrens.com/get-involved/featured/santas-workshop\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Santaâs Workshop\",\"nodeType\":\"text\"}
1],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"}],\"nodeType\":\"unordered-list\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Administrative Volunteer Opportunities \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Another way to volunteer at a hospital is to help with their administrative duties. Most hospitals offer administrative volunteer opportunities such as hospital greeters, gift shop workers, information desk helpers and more. Childrenâs Health offers administrative opportunities through both its \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Adult and Student Volunteer Programs\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\".\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Patient-Facing Volunteer Programs \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"If working directly with patients is how youâd like to volunteer at a hospital, most offer opportunities like reading to patients, escorting patients to and from activities, providing entertainment and so much more. Childrenâs Health offers direct-patient-care-volunteer opportunities through its Adult Volunteer and Volunteer Pet Therapy Programs. Some of the ways volunteers can work directly with patients are: \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Holding babies in need of comfort \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Playing with children through toys and games \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Visiting with patients along with your pet \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"}],\"nodeType\":\"unordered-list\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Third-Party Volunteer Organizations and Programs \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Some hospitals partner with third-party organizations to bring in volunteers for specific programs such as reading and pet therapy. Childrenâs Health has a \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/volunteer-dogs\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Volunteer Pet Therapy Program\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" that plays a large part in patient recovery and is naturally one of the most favored programs that the hospital offers. Not only do these volunteers and their furry friends bring smiles to patients, but also to team members and anyone that sees them in passing at Childrenâs Health. Some of the third-party organizations that volunteer at the hospital are: \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"http://www.pawsacrosstexas.org/\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Paws Across Texas\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://petpartners.org/\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Pet Partners\",\"nodeType\":\"text\"}
1],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://minihoovesoflove.org/\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Mini Hooves of Love\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"}],\"nodeType\":\"unordered-list\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"SS7vR0VMNaG6U6INySuSN\",\"type\":\"Entry\",\"createdAt\":\"2025-02-05T16:23:38.283Z\",\"updatedAt\":\"2026-01-29T22:49:43.951Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":16,\"revision\":3,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: Hospital Volunteer Requirements\",\"headingLevel\":\"h2\",\"body\":{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Hospital Volunteer Requirements \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-2\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"After reading about all the fun volunteer opportunities available, you must be asking yourself âCan I volunteer at a hospital?â Letâs find out! Most hospital volunteers must meet specific requirements. At Childrenâs Health, our volunteer program spans across our two hospital campuses: Dallas and Plano â applicants may only apply to volunteer at one location. Volunteers, regardless of where they serve are asked to comply with the following requirements: \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{\"target\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"4Peo6qaQxIjhDzQEykaPie\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T22:08:37.324Z\",\"updatedAt\":\"2026-01-14T22:37:21.403Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":9,\"revision\":3,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"accordionBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Accordion Block: Hospital Volunteer Requirements | FAQ\",\"headingLevel\":\"h2\",\"items\":[],\"style\":\"All items closed\"}}},\"content\":[],\"nodeType\":\"embedded-entry-block\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"OWDqzmGtK3Cs9kThX9eiW\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T22:10:43.561Z\",\"updatedAt\":\"2026-01-29T22:50:26.158Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":8,\"revision\":2,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Main Content: How to Volunteer at a Local Hospital | How to Volunteer at a Local Hospital\",\"headingLevel\":\"h2\",\"body\":{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"How to Volunteer at a Local Hospital \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-2\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Here are five typical steps to take in order to volunteer at a local hospital:\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Contact your local hospital \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Visit your local hospital and ask to speak with their volunteer services department or contact them by phone or email and ask what opportunities they have available. Or you can contact your municipalityâs volunteer center for a list of hospitals in need of volunteer support. Consider the positions available and what way youâd most like to volunteer at the hospital. Decide whether youâd like to work with adult patients, children and adolescents or people with specific illnesses and abilities. To volunteer at Childrenâs Health, \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"start here\",\"nodeType\":\"text\"}
1],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\". \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Complete a volunteer application \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"After deciding which patients youâd like to help, youâll need to complete an application to volunteer at a hospital. You might find the application online or have to request it from someone working in your local hospitalâs volunteer services department. When filling out the application, youâll likely be asked to include your skills and basic work history so that the hospital can determine where youâll serve best. \\n\\nYou could be asked to complete a background check. These are essential to ensure the safety and well-being of patients, doctors, volunteers and other hospital team members. To begin the application process for Childrenâs Health in Dallas, \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/dallas-campus-volunteers\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"start here\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" and for Childrenâs Health in Plano \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/plano-campus-volunteers\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"start here\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\".\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Interview with a volunteer coordinator \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"After completing an application, the next step to volunteering at a hospital is to interview with someone from their volunteer services department. Someone from volunteer services should contact you via email or phone, but it probably doesnât hurt to reach out to them to request a date for your interview â this shows initiative! \\n\\nRemember, your volunteer interview will be like that of a paid position. Youâll probably be asked about your work and volunteer history. They also might like to know why you want to become a volunteer at a hospital. To become a volunteer at Childrenâs Health, volunteer candidates are required to complete an interview process after theyâve completed the required online assessment and application. Be on your way to becoming a Childrenâs Health volunteer in \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/dallas-campus-volunteers\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Dallas here\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" and \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/plano-campus-volunteers\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Plano here\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\".\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Complete a health screen or physical examination \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"To ensure the health and safety of patients, some hospitals require a health screening or physical examination of candidates wanting to volunteer at a hospital, since thereâs a chance theyâll encounter ill or immunocompromised patients. Also, itâs to ensure the candidateâs wellness and ability to complete certain tasks. Childrenâs Health requires new volunteers to get a health check. \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/dallas-campus-volunteers\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"See the health check requirements\",\"nodeType\":\"text\"}
1],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" youâll need to meet as a Childrenâs Health volunteer for both our Dallas and Plano campuses.\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Complete a required training or orientation \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-3\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"In order to volunteer at a hospital, candidates must complete any required training and attend any required orientation session. Every hospital will have its own unique training and orientation process but these usually include safety procedures and other important information. At Childrenâs Health, volunteer candidates are required to complete an online training course and attend an orientation session that we call a âWelcome Session!â \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"See the steps to becoming an adult volunteer at Childrenâs Health.\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" Our Student Volunteer Program and Volunteer Pet Therapy Program are conducted differently. Please visit these web pages to learn more: \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/student-volunteer-program/\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Student Volunteer Program\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"},{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer/volunteer-dogs\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Volunteer Pet Therapy Program\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"list-item\"}],\"nodeType\":\"ordered-list\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"pEih2L2hgow5TdTIC1LCZ\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T22:11:04.373Z\",\"updatedAt\":\"2026-01-29T22:50:40.892Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":6,\"revision\":2,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Main Content: How to Volunteer at a Local Hospital | Find Hospital Volunteer Opportunities\",\"headingLevel\":\"h2\",\"body\":{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Find Hospital Volunteer Opportunities at Childrenâs Health \",\"nodeType\":\"text\"}],\"nodeType\":\"heading-2\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Now that you know how to volunteer at a hospital, we want to invite YOU to help us make life better for children! To get started, visit our \",\"nodeType\":\"text\"},{\"data\":{\"uri\":\"https://www.childrens.com/get-involved/volunteer\"},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"volunteer webpage\",\"nodeType\":\"text\"}],\"nodeType\":\"hyperlink\"},{\"data\":{},\"marks\":[],\"value\":\" and choose which program youâd like to be a part of. We look forward to meeting you! \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]}
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1<script>self.__next_f.push([1,"your interests, age and skills. Types of volunteer opportunities typically offered at hospitals are: \",\"nodeType\":\"text\"}\n801:[\"$802\",\"$805\",\"$80b\"]\n7ff:{\"data\":\"$800\",\"content\":\"$801\",\"nodeType\":\"paragraph\"}\n80f:{}\n812:{}\n813:[]\n811:{\"data\":\"$812\",\"marks\":\"$813\",\"value\":\"Community Affinity Groups\",\"nodeType\":\"text\"}\n810:[\"$811\"]\n80e:{\"data\":\"$80f\",\"content\":\"$810\",\"nodeType\":\"heading-3\"}\n815:{}\n818:{}\n819:[]\n817:{\"data\":\"$818\",\"marks\":\"$819\",\"value\":\"These are groups of volunteers who work in collaboration with the hospital to advance the quality of patient care, services and the patient experience by volunteering their time and fundraising to support the hospitalâs priorities. \",\"nodeType\":\"text\"}\n816:[\"$817\"]\n814:{\"data\":\"$815\",\"content\":\"$816\",\"nodeType\":\"paragraph\"}\n81b:{}\n81e:{}\n81f:[]\n81d:{\"data\":\"$81e\",\"marks\":\"$81f\",\"value\":\"Childrenâs Health is fortunate to have the advocacy and support of community affinity group, \",\"nodeType\":\"text\"}\n821:{\"uri\":\"https://give.childrens.com/get-involved/join-a-group/the-womens-auxiliary\"}\n824:{}\n825:[]\n823:{\"data\":\"$824\",\"marks\":\"$825\",\"value\":\"The Womenâs Auxiliary to Childrenâs Medical Center\",\"nodeType\":\"text\"}\n822:[\"$823\"]\n820:{\"data\":\"$821\",\"content\":\"$822\",\"nodeType\":\"hyperlink\"}\n827:{}\n828:[]\n826:{\"data\":\"$827\",\"marks\":\"$828\",\"value\":\". The Auxiliary is a group of women who support Childrenâs Healthâs mission by raising funds for hospital priorities, offering uplifting activities for patient families, providing support and recognition to hospital team members and raising awareness about Childrenâs Health in the community. Aside from volunteering at the hospital, here are just some of the events The Womenâs Auxiliary hosts to get the community involved to make life better for children: \",\"nodeType\":\"text\"}\n81c:[\"$81d\",\"$820\",\"$826\"]\n81a:{\"data\":\"$81b\",\"content\":\"$81c\",\"nodeType\":\"paragraph\"}\n82a:{}\n82d:{}\n830:{}\n833:{}\n834:[]\n832:{\"data\":\"$833\",\"marks\":\"$834\",\"value\":\"\",\"nodeType\":\"text\"}\n836:{\"uri\":\"https://give.childrens.com/get-involved/event-ca"])</script>
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1<script>self.__next_f.push([1,"ough both its \",\"nodeType\":\"text\"}\n95f:{\"uri\":\"https://www.childrens.com/get-involved/volunteer\"}\n962:{}\n963:[]\n961:{\"data\":\"$962\",\"marks\":\"$963\",\"value\":\"Adult and Student Volunteer Programs\",\"nodeType\":\"text\"}\n960:[\"$961\"]\n95e:{\"data\":\"$95f\",\"content\":\"$960\",\"nodeType\":\"hyperlink\"}\n965:{}\n966:[]\n964:{\"data\":\"$965\",\"marks\":\"$966\",\"value\":\".\",\"nodeType\":\"text\"}\n95a:[\"$95b\",\"$95e\",\"$964\"]\n958:{\"data\":\"$959\",\"content\":\"$95a\",\"nodeType\":\"paragraph\"}\n968:{}\n96b:{}\n96c:[]\n96a:{\"data\":\"$96b\",\"marks\":\"$96c\",\"value\":\"Patient-Facing Volunteer Programs \",\"nodeType\":\"text\"}\n969:[\"$96a\"]\n967:{\"data\":\"$968\",\"content\":\"$969\",\"nodeType\":\"heading-3\"}\n96e:{}\n971:{}\n972:[]\n970:{\"data\":\"$971\",\"marks\":\"$972\",\"value\":\"If working directly with patients is how youâd like to volunteer at a hospital, most offer opportunities like reading to patients, escorting patients to and from activities, providing entertainment and so much more. Childrenâs Health offers direct-patient-care-volunteer opportunities through its Adult Volunteer and Volunteer Pet Therapy Programs. Some of the ways volunteers can work directly with patients are: \",\"nodeType\":\"text\"}\n96f:[\"$970\"]\n96d:{\"data\":\"$96e\",\"content\":\"$96f\",\"nodeType\":\"paragraph\"}\n974:{}\n977:{}\n97a:{}\n97d:{}\n97e:[]\n97c:{\"data\":\"$97d\",\"marks\":\"$97e\",\"value\":\"Holding babies in need of comfort \",\"nodeType\":\"text\"}\n97b:[\"$97c\"]\n979:{\"data\":\"$97a\",\"content\":\"$97b\",\"nodeType\":\"paragraph\"}\n978:[\"$979\"]\n976:{\"data\":\"$977\",\"content\":\"$978\",\"nodeType\":\"list-item\"}\n980:{}\n983:{}\n986:{}\n987:[]\n985:{\"data\":\"$986\",\"marks\":\"$987\",\"value\":\"Playing with children through toys and games \",\"nodeType\":\"text\"}\n984:[\"$985\"]\n982:{\"data\":\"$983\",\"content\":\"$984\",\"nodeType\":\"paragraph\"}\n981:[\"$982\"]\n97f:{\"data\":\"$980\",\"content\":\"$981\",\"nodeType\":\"list-item\"}\n989:{}\n98c:{}\n98f:{}\n990:[]\n98e:{\"data\":\"$98f\",\"marks\":\"$990\",\"value\":\"Visiting with patients along with your pet \",\"nodeType\":\"text\"}\n98d:[\"$98e\"]\n98b:{\"data\":\"$98c\",\"content\":\"$98d\",\"nodeType\":\"paragraph\"}\n98a:[\"$98b\"]\n988:{\"data\":\"$989\",\"content\":\"$98a\",\"nodeType\""])</script>
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1<script>self.__next_f.push([1,"blishedVersion\":16,\"revision\":3,\"contentType\":\"$9ee\",\"locale\":\"en-US\"}\n9f2:{}\n9f5:{}\n9f8:{}\n9f9:[]\n9f7:{\"data\":\"$9f8\",\"marks\":\"$9f9\",\"value\":\"Hospital Volunteer Requirements \",\"nodeType\":\"text\"}\n9f6:[\"$9f7\"]\n9f4:{\"data\":\"$9f5\",\"content\":\"$9f6\",\"nodeType\":\"heading-2\"}\n9fb:{}\n9fe:{}\n9ff:[]\n9fd:{\"data\":\"$9fe\",\"marks\":\"$9ff\",\"value\":\"After reading about all the fun volunteer opportunities available, you must be asking yourself âCan I volunteer at a hospital?â Letâs find out! Most hospital volunteers must meet specific requirements. At Childrenâs Health, our volunteer program spans across our two hospital campuses: Dallas and Plano â applicants may only apply to volunteer at one location. Volunteers, regardless of where they serve are asked to comply with the following requirements: \",\"nodeType\":\"text\"}\n9fc:[\"$9fd\"]\n9fa:{\"data\":\"$9fb\",\"content\":\"$9fc\",\"nodeType\":\"paragraph\"}\na04:[]\na05:[]\na03:{\"tags\":\"$a04\",\"concepts\":\"$a05\"}\na08:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\na07:{\"sys\":\"$a08\"}\na0a:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\na09:{\"sys\":\"$a0a\"}\na0c:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"accordionBlock\"}\na0b:{\"sys\":\"$a0c\"}\na06:{\"space\":\"$a07\",\"id\":\"4Peo6qaQxIjhDzQEykaPie\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T22:08:37.324Z\",\"updatedAt\":\"2026-01-14T22:37:21.403Z\",\"environment\":\"$a09\",\"publishedVersion\":9,\"revision\":3,\"contentType\":\"$a0b\",\"locale\":\"en-US\"}\na0e:[]\na0d:{\"adminTitle\":\"Accordion Block: Hospital Volunteer Requirements | FAQ\",\"headingLevel\":\"h2\",\"items\":\"$a0e\",\"style\":\"All items closed\"}\na02:{\"metadata\":\"$a03\",\"sys\":\"$a06\",\"fields\":\"$a0d\"}\na01:{\"target\":\"$a02\"}\na0f:[]\na00:{\"data\":\"$a01\",\"content\":\"$a0f\",\"nodeType\":\"embedded-entry-block\"}\na11:{}\na14:{}\na15:[]\na13:{\"data\":\"$a14\",\"marks\":\"$a15\",\"value\":\"\",\"nodeType\":\"text\"}\na12:[\"$a13\"]\na10:{\"data\":\"$a11\",\"content\":\"$a12\",\"nodeType\":\"paragraph\"}\n9f3:[\"$9f4\",\"$9fa\",\"$a00\",\"$a10\"]\n9f1:{\"data\":\"$9f2\",\"content\":\"$9f3\",\"nodeType\":\"document\"}\n9f0:{\"adminTitle\":\"FAQ: Hospital Volunteer Requirements\",\"headingLevel\":\"h2"])</script>
1<script>self.__next_f.push([1,"\",\"body\":\"$9f1\",\"contentAccordion\":\"Disabled\"}\n9e5:{\"metadata\":\"$9e6\",\"sys\":\"$9e9\",\"fields\":\"$9f0\"}\na18:[]\na19:[]\na17:{\"tags\":\"$a18\",\"concepts\":\"$a19\"}\na1c:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\na1b:{\"sys\":\"$a1c\"}\na1e:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\na1d:{\"sys\":\"$a1e\"}\na20:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\na1f:{\"sys\":\"$a20\"}\na1a:{\"space\":\"$a1b\",\"id\":\"OWDqzmGtK3Cs9kThX9eiW\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T22:10:43.561Z\",\"updatedAt\":\"2026-01-29T22:50:26.158Z\",\"environment\":\"$a1d\",\"publishedVersion\":8,\"revision\":2,\"contentType\":\"$a1f\",\"locale\":\"en-US\"}\na23:{}\na26:{}\na29:{}\na2a:[]\na28:{\"data\":\"$a29\",\"marks\":\"$a2a\",\"value\":\"How to Volunteer at a Local Hospital \",\"nodeType\":\"text\"}\na27:[\"$a28\"]\na25:{\"data\":\"$a26\",\"content\":\"$a27\",\"nodeType\":\"heading-2\"}\na2c:{}\na2f:{}\na30:[]\na2e:{\"data\":\"$a2f\",\"marks\":\"$a30\",\"value\":\"Here are five typical steps to take in order to volunteer at a local hospital:\",\"nodeType\":\"text\"}\na2d:[\"$a2e\"]\na2b:{\"data\":\"$a2c\",\"content\":\"$a2d\",\"nodeType\":\"paragraph\"}\na32:{}\na35:{}\na36:[]\na34:{\"data\":\"$a35\",\"marks\":\"$a36\",\"value\":\"Contact your local hospital \",\"nodeType\":\"text\"}\na33:[\"$a34\"]\na31:{\"data\":\"$a32\",\"content\":\"$a33\",\"nodeType\":\"heading-3\"}\na38:{}\na3b:{}\na3c:[]\na3a:{\"data\":\"$a3b\",\"marks\":\"$a3c\",\"value\":\"Visit your local hospital and ask to speak with their volunteer services department or contact them by phone or email and ask what opportunities they have available. Or you can contact your municipalityâs volunteer center for a list of hospitals in need of volunteer support. Consider the positions available and what way youâd most like to volunteer at the hospital. Decide whether youâd like to work with adult patients, children and adolescents or people with specific illnesses and abilities. To volunteer at Childrenâs Health, \",\"nodeType\":\"text\"}\na3e:{\"uri\":\"https://www.childrens.com/get-involved/volunteer\"}\na41:{}\na42:[]\na40:{\"data\":\"$a41\",\"marks\":\"$a42\",\"value\":\"start here\",\"nodeType\":\"text\"}\na3f:[\"$a40\"]\na3d:{\"data"])</script>
1<script>self.__next_f.push([1,"\":\"$a3e\",\"content\":\"$a3f\",\"nodeType\":\"hyperlink\"}\na44:{}\na45:[]\na43:{\"data\":\"$a44\",\"marks\":\"$a45\",\"value\":\". \",\"nodeType\":\"text\"}\na39:[\"$a3a\",\"$a3d\",\"$a43\"]\na37:{\"data\":\"$a38\",\"content\":\"$a39\",\"nodeType\":\"paragraph\"}\na47:{}\na4a:{}\na4b:[]\na49:{\"data\":\"$a4a\",\"marks\":\"$a4b\",\"value\":\"Complete a volunteer application \",\"nodeType\":\"text\"}\na48:[\"$a49\"]\na46:{\"data\":\"$a47\",\"content\":\"$a48\",\"nodeType\":\"heading-3\"}\na4d:{}\na50:{}\na51:[]\na4f:{\"data\":\"$a50\",\"marks\":\"$a51\",\"value\":\"After deciding which patients youâd like to help, youâll need to complete an application to volunteer at a hospital. You might find the application online or have to request it from someone working in your local hospitalâs volunteer services department. When filling out the application, youâll likely be asked to include your skills and basic work history so that the hospital can determine where youâll serve best. \\n\\nYou could be asked to complete a background check. These are essential to ensure the safety and well-being of patients, doctors, volunteers and other hospital team members. To begin the application process for Childrenâs Health in Dallas, \",\"nodeType\":\"text\"}\na53:{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/dallas-campus-volunteers\"}\na56:{}\na57:[]\na55:{\"data\":\"$a56\",\"marks\":\"$a57\",\"value\":\"start here\",\"nodeType\":\"text\"}\na54:[\"$a55\"]\na52:{\"data\":\"$a53\",\"content\":\"$a54\",\"nodeType\":\"hyperlink\"}\na59:{}\na5a:[]\na58:{\"data\":\"$a59\",\"marks\":\"$a5a\",\"value\":\" and for Childrenâs Health in Plano \",\"nodeType\":\"text\"}\na5c:{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/plano-campus-volunteers\"}\na5f:{}\na60:[]\na5e:{\"data\":\"$a5f\",\"marks\":\"$a60\",\"value\":\"start here\",\"nodeType\":\"text\"}\na5d:[\"$a5e\"]\na5b:{\"data\":\"$a5c\",\"content\":\"$a5d\",\"nodeType\":\"hyperlink\"}\na62:{}\na63:[]\na61:{\"data\":\"$a62\",\"marks\":\"$a63\",\"value\":\".\",\"nodeType\":\"text\"}\na4e:[\"$a4f\",\"$a52\",\"$a58\",\"$a5b\",\"$a61\"]\na4c:{\"data\":\"$a4d\",\"content\":\"$a4e\",\"nodeType\":\"paragraph\"}\na65:{}\na68:{}\na69:[]\na67:{\"data\":\"$a68\",\"m"])</script>
1<script>self.__next_f.push([1,"arks\":\"$a69\",\"value\":\"Interview with a volunteer coordinator \",\"nodeType\":\"text\"}\na66:[\"$a67\"]\na64:{\"data\":\"$a65\",\"content\":\"$a66\",\"nodeType\":\"heading-3\"}\na6b:{}\na6e:{}\na6f:[]\na6d:{\"data\":\"$a6e\",\"marks\":\"$a6f\",\"value\":\"After completing an application, the next step to volunteering at a hospital is to interview with someone from their volunteer services department. Someone from volunteer services should contact you via email or phone, but it probably doesnât hurt to reach out to them to request a date for your interview â this shows initiative! \\n\\nRemember, your volunteer interview will be like that of a paid position. Youâll probably be asked about your work and volunteer history. They also might like to know why you want to become a volunteer at a hospital. To become a volunteer at Childrenâs Health, volunteer candidates are required to complete an interview process after theyâve completed the required online assessment and application. Be on your way to becoming a Childrenâs Health volunteer in \",\"nodeType\":\"text\"}\na71:{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/dallas-campus-volunteers\"}\na74:{}\na75:[]\na73:{\"data\":\"$a74\",\"marks\":\"$a75\",\"value\":\"Dallas here\",\"nodeType\":\"text\"}\na72:[\"$a73\"]\na70:{\"data\":\"$a71\",\"content\":\"$a72\",\"nodeType\":\"hyperlink\"}\na77:{}\na78:[]\na76:{\"data\":\"$a77\",\"marks\":\"$a78\",\"value\":\" and \",\"nodeType\":\"text\"}\na7a:{\"uri\":\"https://www.childrens.com/get-involved/volunteer/adult-volunteer-program/plano-campus-volunteers\"}\na7d:{}\na7e:[]\na7c:{\"data\":\"$a7d\",\"marks\":\"$a7e\",\"value\":\"Plano here\",\"nodeType\":\"text\"}\na7b:[\"$a7c\"]\na79:{\"data\":\"$a7a\",\"content\":\"$a7b\",\"nodeType\":\"hyperlink\"}\na80:{}\na81:[]\na7f:{\"data\":\"$a80\",\"marks\":\"$a81\",\"value\":\".\",\"nodeType\":\"text\"}\na6c:[\"$a6d\",\"$a70\",\"$a76\",\"$a79\",\"$a7f\"]\na6a:{\"data\":\"$a6b\",\"content\":\"$a6c\",\"nodeType\":\"paragraph\"}\na83:{}\na86:{}\na87:[]\na85:{\"data\":\"$a86\",\"marks\":\"$a87\",\"value\":\"Complete a health screen or physical examination \",\"nodeType\":\"text\"}\na84:[\"$a85\"]\na82:{\"data\":\"$a83\",\"content\":\"$a84\",\"nodeType\""])</script>
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1oy throughout their care journey. \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" \",\"marks\":[],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"are used as special items for celebration and activities that distract children from procedures, that normalize the hospital experience and more. Contributions large and small continue to make a difference in the lives of our patients and families.\",\"marks\":[],\"data\":{}}]}]},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"4Ofr9MTQSavfprxaYGtsqc\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T21:26:11.911Z\",\"updatedAt\":\"2026-02-17T18:31:33.736Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":32,\"revision\":7,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Main Content: What Is An In-Kind Donation? | Benefits of In-Kind Donations\",\"headingLevel\":\"h2\",\"body\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Benefits of In-Kind Donations\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations make a meaningful difference for nonprofits of all sizes. These contributions help provide essential goods and items allowing resources to be allocated to other vital programs. In the following sections, weâll explore the impact of in-kind donations on both recipients and donors, highlighting how these gifts make a difference in the lives of many.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Benefits of In-Kind Donations for Nonprofits\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations help nonprofits like Childrenâs Health access items that directly impact the communities we serve. These in-kind donations help us go above and beyond for our patients and free up resources to be directed toward services and programs.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Benefits of In-Kind Donations for Donors\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations are valuable because: \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations allow people to donate to us even when itâs challenging to give money (e.g., donating toys, crafts and board games)\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Donors can see the immediate impact of their donations \",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations can typically be used immediately \",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations free up funds to use for our programs and services \",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"heading-4\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Tax Deductible Benefits of In-Kind Donations\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind gifts can be tax deductible if they meet specific requirements, which can vary by type or value of donation. In-Kind donations, or noncash contributions, are subject to specific IRS rules for both donors and recipient organizations. It is important to follow an organizationâs instructions for in-kind donations in order to receive proper acknowledgements for charitable deduction requirements as appropriate. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Consult a tax professional and IRS guidelines like \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.irs.gov/publications/p526\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Publication 526\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" and \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.irs.gov/publications/p561\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Publication 561\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" for more details. \",\"marks\":[],\"data\":{}}]}]},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"4SSBcWu1kF8RP4mEeM0qJ4\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:18:06.030Z\",\"updatedAt\":\"2026-09-29T17:04:38.276Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":45,\"revision\":10,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Main Content: What to Consider Before Making an In-Kind Donation?\",\"headingLevel\":\"h2\",\"body\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"What to Consider Before Making an In-Kind Donation?\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"There are some considerations to make before making an in-kind donation: \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Learn about an organizationâs current needs and information about what they can and cannot accept.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Many organizations list their most needed items. Childrenâs Health updates lists for most-needed items for each campus quarterly (\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://image.mc.childrens.com/lib/fe3911717164057f751578/m/1/09b1b8e2-942d-4b11-afc6-4dff7a198dd0.pdf\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Needed items â Dallas\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\", \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://image.mc.childrens.com/lib/fe3911717164057f751578/m/1/213f33f7-75d5-4c2a-b760-c902bd6a15b4.pdf\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Needed items â Plano\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\")\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Amazon wish lists (see: \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" ) are also a great way to see current needed items, including for specific areas for an organization.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{}
1,\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Different organizations have different guidelines about items they cannot accept. Childrenâs Health \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://image.mc.childrens.com/lib/fe3911717164057f751578/m/1/d1e0d38e-9b73-481c-b2d5-454e3b5c7247.pdf\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"cannot accept these items\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\".\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"At Childrenâs Health, for the safety of our patients, all items must be new, unused, in its original packaging and latex free. Battery-operated toys should have battery cases that secure with screws so that patients cannot pry them open. Any gift-wrapped items cannot be accepted.\",\"marks\":[],\"data\":{}}]}]}]}]}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Review an organizationâs drop-off policies and scheduling guidelines prior to delivering. Institutions may have preferred drop-off times and locations to ensure donated items can be properly received, stored and distributed (include links to schedulers).\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"5ImXzXeMs1kaDjit2ELAJ8\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T21:28:14.623Z\",\"updatedAt\":\"2026-07-20T20:15:45.715Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":25,\"revision\":8,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: In-Kind Donations | Accordion\",\"headingLevel\":\"h2\",\"body\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"embedded-entry-block\",\"data\":{\"target\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"5mxLPYdntOmfFXuqybB6Xn\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T21:28:08.053Z\",\"updatedAt\":\"2026-01-15T21:58:31.914Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":14,\"revision\":5,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"accordionBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Accordion Block: In-Kind Donations | FAQ\",\"heading\":\"Frequently Asked Questions About In-Kind Donations\",\"headingLevel\":\"h2\",\"items\":[{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"ToVXMxj81YjqJuYPf3l0R\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T17:59:38.013Z\",\"updatedAt\":\"2026-02-17T18:35:45.347Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":15,\"revision\":5,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: What is the difference between a donation and an in-kind donation? | In-Kind Donations\",\"subject\":\"What is the difference between a donation and an in-kind donation?\",\"answer\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Gifts in kind, also referred to as in-kind donations, is a kind of charitable giving in which, instead of giving money to buy needed goods, the goods themselves are given (most often these are tangible items). Gifts in kind are distinguished from gifts of cash or stock. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"A donation is a monetary gift to a nonprofit. \",\"marks\":[],\"data\":{}}]}]}}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"7vrueVK2ygICCbIs6PdGdc\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T18:02:25.024Z\",\"updatedAt\":\"2026-02-17T18:36:28.918Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":16,\"revision\":5,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: Can cash be an in-kind donation? | In-Kind Donations\",\"subject\":\"Can cash be an in-kind donation?\",\"answer\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"No, an in-kind contribution is a non-monetary contribution. Goods offered for free result in an in-kind contribution.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]}}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"7L8rBaaXZCtAfG4xC6Pww0\",\"type\":\"Entry\",\"createdAt\":\"2025-02-14T18:03:09.310Z\",\"updatedAt\":\"2026-02-17T18:36:46.718Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":11,\"revision\":4,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: What is an example of an in-kind contribution? | In-Kind Donations\",\"subject\":\"What is an example of an in-kind contribution?\",\"answer\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations, also known as gifts in kind or in-kind contributions, are non-cash donations like goods and services provided to nonprofit organizations. These can include:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Toys\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Clothing \",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Hand-made crafted items like no-sew blankets\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]}}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"i7U21arr3FKJgpg3vjApG\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:20:20.762Z\",\"updatedAt\":\"2026-02-17T18:37:13.605Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":8,\"revision\":3,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: What is an in-kind donation letter? | In-Kind Donations\",\"subject\":\"What is an in-kind donation letter?\",\"answer\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In in-kind donation letter is a document used by a nonprofit to acknowledge and document the receipt of non-monetary donations like goods from a donor. It confirms the donation and often includes an estimated fair market value for the donation. This letter is important for both the donor and the organization for tax and record-keeping purposes. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"Why itâs important:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"For the Donor\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\": the letter allows the donor to claim a charitable deduction for their donation on their tax return, which requires documentation.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"For the organization:\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\" the letter provides a record of the donation which is needed for tax purposes and record keeping. \",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]}}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"6Aruoed3U7A4KaWSecFm72\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:20:41.825Z\",\"updatedAt\":\"2026-01-20T15:33:34.268Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":5,\"revision\":2,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: Are in-kind donations tax deductible? | In-Kind Donations\",\"subject\":\"Are in-kind donations tax deductible?\",\"answer\":{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Generally, yes. A donor may deduct an in-kind donation as a charitable gift. \",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"}}},{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"6GBWMleoytLIe6k1IqfUow\",\"type\":\"Entry\",\"createdAt\":\"2025-07-10T17:21:17.663Z\",\"updatedAt\":\"2026-02-17T18:37:37.058Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":9,\"revision\":4,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"faqItem\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"FAQ: Are gift cards considered in-kind donations? | In-Kind Donations\",\"subject\":\"Are gift cards considered in-kind donations?\",\"answer\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Yes. In-kind donations can be gift cards; however, there are certain guidelines on how and when gift cards can be accepted and distributed for use. Please contact \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"mailto:[email protected]\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"[email protected]\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" for more information about gift cards.\",\"marks\":[],\"data\":{}}]}]}}}],\"style\":\"All items closed\"}}},\"content\":[]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Give In-Kind to Childrenâs Medical Center Foundation\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Visit our \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"gift-in-kind page\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" to see more details about our program or schedule your in-kind donation at our Dallas or Plano campus.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"Sources\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"IRS.gov â \",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"Publication 526, Charitable Contributions â \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.irs.gov/publications/p526\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"https://www.irs.gov/publications/p526\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"IRS.gov â \",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"Publication 561, Determining the Value of Donated Property â \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://www.irs.gov/publications/p561\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"https://www.irs.gov/publications/p561\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Related Resources\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"embedded-entry-block\",\"data\":{\"target\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"56RoGaDM6PAPhVvkEnyVB8\",\"type\":\"Entry\",\"createdAt\":\"2026-07-20T20:15:42.909Z\",\"updatedAt\":\"2026-07-20T20:15:42.909Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":6,\"revision\":1,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"collection\"}},\"locale\":\"en-US\"},\"fields\":{\"collectionName\":\"Collection: What Is An In-Kind Donation? | Related Resources\",\"slug\":\"collection-what-is-an-in-kind-donation-or-related-resources\",\"collectionItems\":[{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"1sTfMeLV1lVJ4Xu1PbVLno\",\"type\":\"Entry\",\"createdAt\":\"2025-02-26T17:34:24.969Z\",\"updatedAt\":\"2026-09-18T07:00:19.657Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":31,\"revision\":7,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"articlePage\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Article: How Does Donation Matching Work?\",\"title\":\"Double Your Donation With A Matching Gift\",\"teaserTitle\":\"How Does Donation Matching Work?\",\"teaserText\":{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Donation matching can help your charitable contribution go further. Learn how gift matching works for nonprofits like the Children's Medical Center Foundation.\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"teaserLink\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"3fFHkLqHMOewhCtuDhRJ3L\",\"type\":\"Entry\",\"createdAt\":\"2025-05-21T20:46:02.021Z\",\"updatedAt\":\"2026-09-18T16:07:29.462Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":7,\"revision\":3,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"link\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Link: How Does Donation Matching Work? | Learn More\",\"linkLabel\":\"Learn More\",\"url\":\"https://give.childrens.com/blog/donation-matching\",\"style\":\"Primary Button\"}},\"type\":\"Article\",\"url\":\"/blog/donation-matching\",\"seo\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"32lAtSXbbwxcEFnmcvmg7A\",\"type\":\"Entry\",\"createdAt\":\"2025-02-26T17:27:52.910Z\",\"updatedAt\":\"2026-09-18T14:45:46.959Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":17,\"revision\":7,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"seo\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"How Does Donation Matching Work? - Childrenâs Health SEO\",\"title\":\"Donation Matching | Children's Medical Center Foundation\",\"metaDescription\":\"Double your impact with donation matching at Children's Health. Learn how your gift can go further to help kids in need. Donate today to make a difference.\",\"robots\":\"all\",\"canonicalUrl\":\"/blog/donation-matching\"}},\"mainImage\":[{\"metadata\":{\"tags\":[],\"concepts\":[]}
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Donors can double (or even triple) their contributions to Childrenâs Medical Center Foundation by simply asking your employer if they have an existing donation matching program.\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"How Does Donation Matching Work?\",\"nodeType\":\"text\"}],\"nodeType\":\"heading-2\"},{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"contentAccordion\":\"Disabled\"}},{\"metadata\":{\"tags\":[],\"concepts\":[]}
1,\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"25Jv3L40XeOjOaQHbGzcE3\",\"type\":\"Entry\",\"createdAt\":\"2025-06-18T20:24:42.868Z\",\"updatedAt\":\"2026-07-20T20:45:52.646Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":106,\"revision\":11,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Main Content: Donation Matching | What is Donation Matching?\",\"headingLevel\":\"h2\",\"body\":{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Don't see your employer listed when searching for your company? Reach out to your company's personnel department to explore what options may be available.\",\"marks\":[{\"type\":\"italic\"}],\"data\":{}}]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"What is Donation Matching?\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://donate.childrens.com/campaign/612191/donate?c_src=MatchingGiftArticle\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Donation matching \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"is a fundraising strategy where companies financially match donations that their employees make to nonprofit organizations. This can give the employee an additional reason to donate to charity, while also allowing their donation to have a larger impact. We recommend asking your human resources representative for more information about your employerâs matching gift program, and/or you can see if your employer will match your donation on our \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://donate.childrens.com/campaign/612191/donate?c_src=MatchingGiftArticle\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"donation form\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\". \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"How do matching donations work?\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"embedded-entry-block\",\"data\":{\"target\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"7oMCxBGaFJYmKYXVdLRi7U\",\"type\":\"Entry\",\"createdAt\":\"2025-08-05T18:37:37.839Z\",\"updatedAt\":\"2025-08-05T18:38:19.351Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":9,\"revision\":2,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"collection\"}},\"locale\":\"en-US\"},\"fields\":{\"collectionName\":\"Collection: Donation Matching Steps\",\"slug\":\"collection-donation-matching-steps\",\"collectionPriority\":1,\"collectionItems\":[],\"type\":\"Grid Collection\",\"gridCollectionColumns\":3}}},\"content\":[]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"There are different ratios for donation matching. Some companies do a direct 1:1 ratio, but others have different standards. Sometimes minimum donation requirements must be met before a gift is matched, which is why it is important to contact your human resources representative and to do your research prior to making a donation.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"What Are the Benefits of Matching Donations?\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Matching donations through your employer is a great way to maximize the impact of your gift to Childrenâs Medical Center Foundation.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"This means that your donation will fund twice the number of patients, programs and services by supporting areas like clinical research, behavioral and mental health and the growing pediatric population of North Texas.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Childrenâs Health specific programs that have benefited from matching donations:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/about-us/childrens-medical-research-institute\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Childrenâs Pediatric Research Institute\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/why-give/mental-health\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"School TeleBehavioral Health\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/about-us/news/articles/plano-expansion\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Plano Campus Expansion\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"How to Get Your Employer to Match a Donation\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"By participating in your employerâs matching gift program, you can double or even triple the impact of your charitable match to Childrenâs Health. Corporate matching gift programs are a powerful way to support life-changing care for children while leveraging your employerâs generosity.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"1. Check if your employer offers a gift matching program\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Many companies offer corporate matching gift programs to amplify their employeesâ charitable contributions. Contact your HR department or check your companyâs intranet to confirm if a matching gift program is available.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"2. Review your employerâs matching gift process\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Each company has specific guidelines for gift matching, including eligible organizations, match ratios and deadlines. Review your employerâs corporate matching policy to understand the steps needed to request a charitable match for your donation.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"3. Submit a corporate matching gift request\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"After making your donation to Childrenâs Health, complete your employerâs matching gift form to initiate the corporate matching process. Ensure you include all required details, such as our organizationâs name and donation receipt, to secure the match.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"4. Spread the word\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Share the power of gift matching with colleagues to inspire more support for Childrenâs Health. Raising awareness about corporate matching gift programs can multiply the impact of collective giving for children in North Texas.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Once youâve confirmed your employerâs match program, head to our \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://donate.childrens.com/campaign/612191/donate?c_src=MatchingGiftArticle\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"donation form\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" to make your gift and start the match!\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Other Donation Matching Programs to Double Your Support\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"While the standard corporate match is the most popular type of matched donation, there are three other types of donation matching.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Volunteer Matching Gifts \u0026 Grants\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Matching Gift Challenges\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Board Matching\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Volunteer Matching\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Corporate volunteer matching programs are another form of corporate matching where a company responds to their employeeâs donation of time and service with a gift. Employees track and submit their hours. These hours are totaled and submitted to their employer, who verifies the employeeâs service and sends either a flat gift or a gift based on the number of hours volunteered. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Here's how volunteer matching works: \",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"Taylor works for Generic Company and volunteers 10 hours at Childrenâs Health. Taylor knows that Generic Company does volunteer matching. Taylor tracks her volunteer time and submits the total hours to Generic Company, who verifies her service. Once verified, Generic Company sends a check to Childrenâs Medical Center Foundation to match Taylorâs volunteer time.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Donation Matching Challenges\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Donation matching challenges are special campaigns, often tied to events like GivingTuesday or North Texas Giving Day, where a donor (usually a company, foundation or individual) pledges to match donations up to a set amount. These
1challenges aim to inspire increased giving by doubling the impact of qualifying contributions. Childrenâs Medical Center Foundation leverages these matches during targeted campaigns to amplify support for our mission.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Here's how donation matching challenges work: \",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\"Taylor learns that Generic Company has pledged to match othersâ donations at a dollar-for-dollar rate to Childrenâs Medical Center Foundation up to $10,000. Taylor makes a $100 donation. Taylorâs gift is automatically matched if it meets the criteria that is established before the donation matching challenge is launched.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Board Matching\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Board matching donations are when a company donates on behalf of an employee if they serve on a nonprofit board or advisory committee. This can be in addition to an employee making a donation and the company matching their gift. Check with your human resources representative to see if your employer offers this benefit.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"embedded-entry-block\",\"data\":{\"target\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"1MF7QXSO7nr2ZWfsh7jRXC\",\"type\":\"Entry\",\"createdAt\":\"2025-02-26T17:33:25.116Z\",\"updatedAt\":\"2026-01-14T22:35:17.800Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":14,\"revision\":4,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"accordionBlock\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Accordion Block: Donation Matching | FAQs\",\"heading\":\"Frequently Asked Questions About Donation Matching\",\"headingLevel\":\"h2\",\"items\":[],\"style\":\"All items closed\"}}},\"content\":[]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Related Resources\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"embedded-entry-block\",\"data\":{\"target\":{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"AJxSkQjdLqipPDw0mKv8J\",\"type\":\"Entry\",\"createdAt\":\"2026-07-20T20:45:50.239Z\",\"updatedAt\":\"2026-07-20T20:45:50.239Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":6,\"revision\":1,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"collection\"}},\"locale\":\"en-US\"},\"fields\":{\"collectionName\":\"Collection: What is Donation Matching? | Related Resources\",\"slug\":\"collection-what-is-donation-matching-or-related-resources\",\"collectionItems\":[{\"metadata\":{\"tags\":[],\"concepts\":[]},\"sys\":{\"space\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}},\"id\":\"2UpJ76br2LmskUncAp306M\",\"type\":\"Entry\",\"createdAt\":\"2025-02-26T17:07:21.979Z\",\"updatedAt\":\"2026-09-18T07:00:19.528Z\",\"environment\":{\"sys\":{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}},\"publishedVersion\":27,\"revision\":6,\"contentType\":{\"sys\":{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"articlePage\"}},\"locale\":\"en-US\"},\"fields\":{\"adminTitle\":\"Article: 6 Types of Corporate Philanthropy\",\"title\":\"6 Types of Corporate Philanthropy\",\"summary\":\"Corporate giving is beneficial for companies and the organizations they partner with. Learn about types of corporate philanthropy and how to get involved.\",\"teaserTitle\":\"6 Types of Corporate Philanthropy\",\"teaserText\":{\"data\":{},\"content\":[{\"data\":{},\"content\":[{\"data\":{},\"marks\":[],\"value\":\"Corporate giving is beneficial for companies and the organizations they partner with. Learn about types of corporate philanthropy and how to get involved.\",\"nodeType\":\"text\"}],\"nodeType\":\"paragraph\"}],\"nodeType\":\"document\"},\"teaserLink\":{\"metadata\":{\"tags\":[],\"concepts\":[]}
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1,\"content\":[{\"nodeType\":\"text\",\"value\":\"Companies match the donations their employees make to nonprofits that are usually deemed eligible by the company beforehand (e.g., health or educational institutions).\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The company will typically give a percentage of the donation made by the employee on an annual year to the nonprofit.. In some cases, the company will donate triple the amount of the initial donation, increasing the donorâs impact even more.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Benefits of corporate philanthropy and matching programs:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Employee engagement: Corporate philanthropy and matching programs can help increase employee engagement by providing employees a way to give back to the nonprofits their employees care about the most.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Employee morale: Corporate philanthropy and matching programs can help boost employee morale by showing employees that their company cares about giving back to their communities.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Company reputation: Corporate philanthropy and matching programs can help improve a companyâs reputation by showing that the company cares and is committed to social responsibility.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Tax benefits: In some cases, corporate philanthropy and matching programs can provide tax benefits for a company.\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Learn more about \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/about-us/resources/donation-matching\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"how donation matching works\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\".\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"2) Matching Dollars for Volunteer Hours\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Volunteer grants are another incredibly popular type of corporate giving. Companies offer volunteer grants, sometimes referred to as matching time, service credit, volunteer matching, etc., to reward their employeesâ volunteer efforts with a monetary donation to the nonprofit where they serve. The dual benefit of offering volunteer grants is employee engagement and community support. Itâs a way to turn time into money.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"How it works:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"An individual volunteers with a nonprofit on a regular basis.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The volunteer checks if the nonprofit is eligible for a volunteer grant or matching donation of every hour served from their company.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{}
1,\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"After verifying the nonprofitsâ eligibility, the volunteer submits their application for a volunteer grant to their company.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The company reviews the application and confirms the volunteer hours the volunteer has worked for the nonprofit.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The company sends the nonprofit a donation through a giving portal such as Benevity, YourCause or CyberGrants\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"3) Grant Making Foundations\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Grant making foundations, or corporate foundations, are a type of corporate giving where businesses establish their own separate-entity foundations as a formalized approach to manage their philanthropic efforts.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Common grants include:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Capital grants: Money given to a nonprofit to purchase, construct or renovate tangible assets, like a nonprofitâs facility.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"General operating grants: General operating grants, also known as an unrestricted grant, is money given to a nonprofit allowing it to use the funds where theyâre needed most.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Program-specific grants: Program-specific grants require a nonprofit to submit a proposal for a specific project they need a corporate foundation to fund. The proposal will communicate how the program they are requesting funding for aligns with the corporate foundationâs mission.\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"It is also not a requirement for a company to set up a Foundation to make a charitable donation to a nonprofit.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Recommendation:\",\"marks\":[{\"type\":\"bold\"}],\"data\":{}},{\"nodeType\":\"text\",\"value\":\" If setting up a corporate foundation is something your company would like to pursue further, please seek appropriate legal counsel.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"If your company is interested in supporting Childrenâs Health with a grant or cash donation, please email \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"mailto:[email protected]\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"[email protected]\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\".\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"4) Corporate Sponsorships\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Corporate sponsorships, another type of corporate giving, are mutually beneficial partnerships between businesses and nonprofits. Usually, companies will provide financial support for a nonprofitâs event or initiative through sponsorships that align with their values and business goals in exchange for brand exposure. \",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"Tips to keep in mind if youâre considering this type of corporate giving:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Partner with a nonprofit that aligns with your companyâs mission and values. To create a meaningful partnership, sponsor a nonprofit that shares your companyâs commitment to the same causes, has goals and activities that will resonate with your employees, customers and stakeholders to maximize the sponsorshipâs impact.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Clarify objectives and expectations between your company and the nonprofit. Decide your companyâs level of involvement whether itâs financial support, in-kind giving or employee volunteer opportunities and determine what your company expects to receive in return.\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Leverage engagement with the nonprofit. Get the most out of the sponsorship by actively engaging with the nonprofitâs event or initiative. For example, when sponsoring an event, promote your support through various marketing channels like social media and email to boost brand visibility and connect with your target audience.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Childrenâs Health hosts a fun annual event called \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/get-involved/event-calendar/swing-fore-miracles\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"Swing Fore Miracles\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\", a corporate-focused tournament at Topgolf offering companies sponsorship opportunities and a team building experience for employees to support our mission to make life better for children.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"5) Cause Marketing\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Causing marketing is a type of corporate giving when a company partners with a nonprofit to support their cause. The company will create a marketing campaign to promote its products and services while raising awareness for the nonprofitâs cause simultaneously.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The objective of a cause marketing campaign is to call the companyâs audience or customers to action. When the audience or customers are exposed to the companyâs marketing materials promoting both the nonprofitâs cause and the companyâs products or services, it should motivate them to take action to support the nonprofit whether itâs to donate, make a give-back purchase where a portion of the proceeds received are given to the nonprofit, .\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Insert Vollemanâs Example of engaging patients to provide artwork, a community-wide vote and then getting a percentage of the proceeds.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"For example, Vollemanâs Family Farm, a Texas dairy farm, invited Childrenâs Health patients to participate in a bottle design contest for a chance to have their artwork displayed on milk bottles sold across Texas for a limited time. Childrenâs Health and Vollemanâs held a community-wide vote to select the winning design, the patient-designed bottles were sold in stores and a portion of the proceeds were donated to Childrenâs Health.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-3\",\"data\":{}
1,\"content\":[{\"nodeType\":\"text\",\"value\":\"6) In-Kind Donations\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/about-us/resources/what-is-an-in-kind-donation\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" is a type of corporate giving that allows companies to donate products, resources and other non-monetary gifts to nonprofits. Giving back as a team at any time of the year can be a fun way for employees to engage, connect and support nonprofits. Year-end or around a holiday is also a popular time of year for companies to give back because of the holiday seasonâs focus on generosity and the personal tax benefits individuals receive.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"In-kind donations allow companies to use their unique assets (such as tech firms donating software) to benefit nonprofits and improve their resource allocation.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Tips for getting started with in-kind donations:\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"unordered-list\",\"data\":{},\"content\":[{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Understand the nonprofitâs needs. Before making in-kind donations, connect with the nonprofit you intend to support and find out their specific needs. To ensure your companyâs contributions will be relevant and impactful, consider factors like the populations they serve, their mission and their programs that require immediate donations. Childrenâs Health has a couple of much needed items (link to the GIK page) that they update regularly.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Keep transparency with the nonprofit. Define the terms and conditions of the donation, including logistical details like delivery, storage and distribution. Be sure to check in with the nonprofit to evaluate the impact of your companyâs donation and any concerns that may emerge.\",\"marks\":[],\"data\":{}}]}]},{\"nodeType\":\"list-item\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Leverage your employeesâ engagement. Engage your employees in the process of selecting and delivering in-kind donations. For example, a clothing company might donate special T-shirts for patients at a pediatric hospital and hand-deliver them to patients while also getting a chance to meet them.\",\"marks\":[],\"data\":{}}]}]}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Learn \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/ways-to-give/donate/gift-in-kind\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"ways to donate in-kind\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" to Childrenâs Health.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-2\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Begin Your Corporate Philanthropy Journey\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"There are many ways companies can get involved with and support nonprofits. The main benefits are employee engagement and morale, company reputation and the support of a good cause. Speaking of good causes, \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"https://give.childrens.com/ways-to-give/donate/corporate-giving\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"get involved in corporate philanthropy\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\" with Childrenâs Health to make life better for children!\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"heading-2\",\"data\":{}
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1<script>self.__next_f.push([1,"content\":\"$10c0\"}\n10c5:{}\n10c8:[]\n10c9:{}\n10c7:{\"nodeType\":\"text\",\"value\":\"âIt really started hitting after a couple of weeks,â Sara said. âIt was really hard because that was my last year of high school.â \",\"marks\":\"$10c8\",\"data\":\"$10c9\"}\n10c6:[\"$10c7\"]\n10c4:{\"nodeType\":\"paragraph\",\"data\":\"$10c5\",\"content\":\"$10c6\"}\n10cb:{}\n10ce:[]\n10cf:{}\n10cd:{\"nodeType\":\"text\",\"value\":\"Care team members at Childrenâs Health know hospitalization can be particularly tough for teenagers, so ensuring they get to experience and celebrate big milestones is a critical part of their work. \",\"marks\":\"$10ce\",\"data\":\"$10cf\"}\n10cc:[\"$10cd\"]\n10ca:{\"nodeType\":\"paragraph\",\"data\":\"$10cb\",\"content\":\"$10cc\"}\n10d1:{}\n10d4:[]\n10d5:{}\n10d3:{\"nodeType\":\"text\",\"value\":\"Each year, the Child Life department organizes a prom for the older patients, who can choose a dress or suit and get their hair and makeup done before joining the party. \",\"marks\":\"$10d4\",\"data\":\"$10d5\"}\n10d2:[\"$10d3\"]\n10d0:{\"nodeType\":\"paragraph\",\"data\":\"$10d1\",\"content\":\"$10d2\"}\n10d7:{}\n10da:[]\n10db:{}\n10d9:{\"nodeType\":\"text\",\"value\":\"Andrea O'Neill, Certified Child Life Specialist and program coordinator of Child Life events at Childrenâs Health, organized the dance after a patient she helped care for was unable to attend their prom due to an unexpected hospital
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1<script>self.__next_f.push([1,"$10e8\"]\n10e5:{\"nodeType\":\"paragraph\",\"data\":\"$10e6\",\"content\":\"$10e7\"}\n10ec:{}\n10ef:[]\n10f0:{}\n10ee:{\"nodeType\":\"text\",\"value\":\"âIt was so much fun,â she said. âIâve made a lot of friends with cancer at the hospital, and a lot of them were there.â \",\"marks\":\"$10ef\",\"data\":\"$10f0\"}\n10ed:[\"$10ee\"]\n10eb:{\"nodeType\":\"paragraph\",\"data\":\"$10ec\",\"content\":\"$10ed\"}\n10f2:{}\n10f5:[]\n10f6:{}\n10f4:{\"nodeType\":\"text\",\"value\":\"And after learning Sara wouldnât be able to attend her schoolâs graduation because it fell on the same day she had to go to the hospital to receive chemotherapy, her care team quickly got to work to organize her own ceremony at Childrenâs Health. \",\"marks\":\"$10f5\",\"data\":\"$10f6\"}\n10f3:[\"$10f4\"]\n10f1:{\"nodeType\":\"paragraph\",\"data\":\"$10f2\",\"content\":\"$10f3\"}\n10f8:{}\n10fb:[]\n10fc:{}\n10fa:{\"nodeType\":\"text\",\"value\":\"Surrounded by the people she now considers family, Sara walked down a hospital hallway in her cap and gown to receive her diploma. \",\"marks\":\"$10fb\",\"data\":\"$10fc\"}\n10f9:[\"$10fa\"]\n10f7:{\"nodeType\":\"paragraph\",\"data\":\"$10f8\",\"content\":\"$10f9\"}\n10fe:{}\n1101:[]\n1102:{}\n1100:{\"nodeType\":\"text\",\"value\":\"âI was really grateful for that,â she said. âI got a card signed by them, and we had a little party.â \",\"marks\":\"$1101\",\"data\":\"$1102\"}\n10ff:[\"$1100\"]\n10fd:{\"nodeType\":\"paragraph\",\"data\":\"$10fe\",\"content\":\"$10ff\"}\n1104:{}\n1107:[]\n1108:{}\n1106:{\"nodeType\":\"text\",\"value\":\"In 2025, Sara celebrated another incredible moment at Childrenâs Health â ringing the bell to celebrate the completion of her cancer treatment. \",\"marks\":\"$1107\",\"data\":\"$1108\"}\n1105:[\"$1106\"]\n1103:{\"nodeType\":\"paragraph\",\"data\":\"$1104\",\"content\":\"$1105\"}\n110a:{}\n110d:[]\n110e:{}\n110c:{\"nodeType\":\"text\",\"value\":\"Her family, care team and the friends sheâd made at the hospital gathered with colorful streamers and pompoms to commemorate the extraordinary milestone. They brought gifts and cupcakes, and Sara gave an impromptu speech. \",\"marks\":\"$110d\",\"data\":\"$110e\"}\n110b:[\"$110c\"]\n1109:{\"nodeType\":\"paragraph\",\""])</script>
1<script>self.__next_f.push([1,"data\":\"$110a\",\"content\":\"$110b\"}\n1110:{}\n1113:[]\n1114:{}\n1112:{\"nodeType\":\"text\",\"value\":\"âIt felt surreal. When you first get cancer, the only thing youâre looking forward to is ringing the bell,â Sara said. \",\"marks\":\"$1113\",\"data\":\"$1114\"}\n1111:[\"$1112\"]\n110f:{\"nodeType\":\"paragraph\",\"data\":\"$1110\",\"content\":\"$1111\"}\n1116:{}\n1119:[]\n111a:{}\n1118:{\"nodeType\":\"text\",\"value\":\"Looking forward to the future \",\"marks\":\"$1119\",\"data\":\"$111a\"}\n1117:[\"$1118\"]\n1115:{\"nodeType\":\"heading-2\",\"data\":\"$1116\",\"content\":\"$1117\"}\n111c:{}\n111f:[]\n1120:{}\n111e:{\"nodeType\":\"text\",\"value\":\"When imagining what her future holds, Sara, now 19 years old, dreams big. \",\"marks\":\"$111f\",\"data\":\"$1120\"}\n111d:[\"$111e\"]\n111b:{\"nodeType\":\"paragraph\",\"data\":\"$111c\",\"content\":\"$111d\"}\n1122:{}\n1125:[]\n1126:{}\n1124:{\"nodeType\":\"text\",\"value\":\"âI have a lot of things to say and a lot of things I want to achieve,â she said. \",\"marks\":\"$1125\",\"data\":\"$1126\"}\n1123:[\"$1124\"]\n1121:{\"nodeType\":\"paragraph\",\"data\":\"$1122\",\"content\":\"$1123\"}\n1128:{}\n112b:[]\n112c:{}\n112a:{\"nodeType\":\"text\",\"value\":\"After slowing down and taking a break from dance, theater, choir and skateboarding throughout her cancer journey, Saraâs been getting back into her favorite hobbies. \",\"marks\":\"$112b\",\"data\":\"$112c\"}\n1129:[\"$112a\"]\n1127:{\"nodeType\":\"paragraph\",\"data\":\"$1128\",\"content\":\"$1129\"}\n112e:{}\n1131:[]\n1132:{}\n1130:{\"nodeType\":\"text\",\"value\":\"âIâm really excited to just get my life started again,â she said. âIâm very grateful for where I am now. Iâm happy.â \",\"marks\":\"$1131\",\"data\":\"$1132\"}\n112f:[\"$1130\"]\n112d:{\"nodeType\":\"paragraph\",\"data\":\"$112e\",\"content\":\"$112f\"}\n1134:{}\n1137:[]\n1138:{}\n1136:{\"nodeType\":\"text\",\"value\":\"Inspired by the incredible care team that stood by her through some of the toughest moments of her life, sheâs now in college pursuing a career in nursing. One day, she hopes to serve cancer patients just like her. \",\"marks\":\"$1137\",\"data\":\"$1138\"}\n1135:[\"$1136\"]\n1133:{\"nodeType\":\"paragraph\",\"data\":\"$1134\",\"content\":\"$1135\"}\n11"])</script>
1<script>self.__next_f.push([1,"3a:{}\n113d:[]\n113e:{}\n113c:{\"nodeType\":\"text\",\"value\":\"âItâs so important for the entire family to know that someone out there is supporting you,â Sara said. âFacing cancer is still really hard, but it makes it a little easier when there are others in the community helping take care of you.â \",\"marks\":\"$113d\",\"data\":\"$113e\"}\n113b:[\"$113c\"]\n1139:{\"nodeType\":\"paragraph\",\"data\":\"$113a\",\"content\":\"$113b\"}\n1140:{}\n1143:[]\n1144:{}\n1142:{\"nodeType\":\"text\",\"value\":\"Whether powering our people and programs, both inside the hospitals and within our communities, or furthering our ability to make breakthroughs happen, these extraordinary stories would not be possible without generous support from our donors. \",\"marks\":\"$1143\",\"data\":\"$1144\"}\n1141:[\"$1142\"]\n113f:{\"nodeType\":\"paragraph\",\"data\":\"$1140\",\"content\":\"$1141\"}\n1146:{}\n1149:[]\n114a:{}\n1148:{\"nodeType\":\"text\",\"value\":\"And just like Sara, the people who care for her have big dreams, too. Now these donations are helping build the new Dallas pediatric campus to expand access to treatment for an increasing pediatric population. \",\"marks\":\"$1149\",\"data\":\"$114a\"}\n1147:[\"$1148\"]\n1145:{\"nodeType\":\"paragraph\",\"data\":\"$1146\",\"content\":\"$1147\"}\n114c:{}\n114f:[]\n1150:{}\n114e:{\"nodeType\":\"text\",\"value\":\"âThis is a growing community,â Sara said. âWith this expansion, and with the help of donors, Childrenâs Health will be able to help more kids with complicated needs. Having a hospital for kids where you can get all your care in one place is extremely important.â \",\"marks\":\"$114f\",\"data\":\"$1150\"}\n114d:[\"$114e\"]\n114b:{\"nodeType\":\"paragraph\",\"data\":\"$114c\",\"content\":\"$114d\"}\n1021:[\"$1022\",\"$1028\",\"$102e\",\"$1034\",\"$103a\",\"$1040\",\"$1046\",\"$104c\",\"$1052\",\"$1058\",\"$105e\",\"$1061\",\"$1067\",\"$106d\",\"$1073\",\"$1079\",\"$107f\",\"$1085\",\"$108b\",\"$1091\",\"$1097\",\"$109d\",\"$10a0\",\"$10a6\",\"$10ac\",\"$10b2\",\"$10b8\",\"$10be\",\"$10c4\",\"$10ca\",\"$10d0\",\"$10d6\",\"$10dc\",\"$10e2\",\"$10e5\",\"$10eb\",\"$10f1\",\"$10f7\",\"$10fd\",\"$1103\",\"$1109\",\"$110f\",\"$1115\",\"$111b\",\"$1121\",\"$1127\",\"$112d\",\"$1133\",\"$1139\","])</script>
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1<script>self.__next_f.push([1,"birth. \",\"marks\":\"$1227\",\"data\":\"$1228\"}\n1225:[\"$1226\"]\n1223:{\"nodeType\":\"paragraph\",\"data\":\"$1224\",\"content\":\"$1225\"}\n122a:{}\n122d:[]\n122e:{}\n122c:{\"nodeType\":\"text\",\"value\":\"Although Jordanâs condition remained a mystery for her first two weeks, her care team in Dallas worked tirelessly until they confirmed her diagnosis â Parkes Weber Syndrome, a rare congenital vascular disorder that primarily affects limbs (usually legs), causing soft tissue/bone hypertrophy, pain and high-flow vascular anomalies. \",\"marks\":\"$122d\",\"data\":\"$122e\"}\n122b:[\"$122c\"]\n1229:{\"nodeType\":\"paragraph\",\"data\":\"$122a\",\"content\":\"$122b\"}\n1230:{}\n1233:[]\n1234:{}\n1232:{\"nodeType\":\"text\",\"value\":\"âIt makes me have, like, a bigger leg versus a regular leg,â Jordan, now 9, said. âI was born with it, and Iâm really special. Itâs really cool to have this condition.â \",\"marks\":\"$1233\",\"data\":\"$1234\"}\n1231:[\"$1232\"]\n122f:{\"nodeType\":\"paragraph\",\"data\":\"$1230\",\"content\":\"$1231\"}\n1236:{}\n1237:[]\n1235:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1236\",\"content\":\"$1237\"}\n1239:{}\n123c:[]\n123d:{}\n123b:{\"nodeType\":\"text\",\"value\":\"The right place for Jordan \",\"marks\":\"$123c\",\"data\":\"$123d\"}\n123a:[\"$123b\"]\n1238:{\"nodeType\":\"heading-2\",\"data\":\"$1239\",\"content\":\"$123a\"}\n123f:{}\n1242:[]\n1243:{}\n1241:{\"nodeType\":\"text\",\"value\":\"At first, the familyâs health insurance provider would not cover Jordanâs care at Childrenâs Health because they considered the hospital out-of-network. Her mom, however, had done the research â and she refused to take no for an answer. \",\"marks\":\"$1242\",\"data\":\"$1243\"}\n1240:[\"$1241\"]\n123e:{\"nodeType\":\"paragraph\",\"data\":\"$123f\",\"content\":\"$1240\"}\n1245:{}\n1248:[]\n1249:{}\n1247:{\"nodeType\":\"text\",\"value\":\"âI just knew in my heart that Childrenâs Health was the right place for her, for the care she needed,â Amber said. âIt was the best decision we ever made. It was a fight, but it was worth it. Other places didnât have the resources we needed for Jordan.â \",\"marks\":\"$1248\",\"data\":\"$1249\"}\n1246:[\"$1247\"]\n12"])</script>
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1<script>self.__next_f.push([1,"mpus will provide the foundation needed for innovative research, lifesaving technology and treatments that will make the impossible possible for more families. \",\"marks\":\"$1269\",\"data\":\"$126a\"}\n1267:[\"$1268\"]\n1265:{\"nodeType\":\"paragraph\",\"data\":\"$1266\",\"content\":\"$1267\"}\n126c:{}\n126f:[]\n1270:{}\n126e:{\"nodeType\":\"text\",\"value\":\"âThe big, red balloon is such a great symbol that reminds us that there are people who care, and that thereâs a hospital that has the doctors and resources you need,â Amber said. âThe more Childrenâs Health grows and expands, the easier itâll be for families to find that balloon and get the help and care they might need.â \",\"marks\":\"$126f\",\"data\":\"$1270\"}\n126d:[\"$126e\"]\n126b:{\"nodeType\":\"paragraph\",\"data\":\"$126c\",\"content\":\"$126d\"}\n1272:{}\n1275:[]\n1276:{}\n1274:{\"nodeType\":\"text\",\"value\":\"âA beautiful journeyâ \",\"marks\":\"$1275\",\"data\":\"$1276\"}\n1273:[\"$1274\"]\n1271:{\"nodeType\":\"heading-2\",\"data\":\"$1272\",\"content\":\"$1273\"}\n1278:{}\n127b:[]\n127c:{}\n127a:{\"nodeType\":\"text\",\"value\":\"Jordan isnât a stranger to the colorful corridors of Childrenâs Health. The complications sheâs experienced due to her vascular condition have meant constant visits to the hospital for emergencies and checkups. Once, for example, she spent an extended stay at the Plano campus after experiencing septic shock from a blood infection. \",\"marks\":\"$127b\",\"data\":\"$127c\"}\n1279:[\"$127a\"]\n1277:{\"nodeType\":\"paragraph\",\"data\":\"$1278\",\"content\":\"$1279\"}\n127e:{}\n1281:[]\n1282:{}\n1280:{\"nodeType\":\"text\",\"value\":\"Despite the challenges that come with Jordanâs rare condition, she and her mother donât let the tough times overshadow the incredible moments theyâve gotten to experience. \",\"marks\":\"$1281\",\"data\":\"$1282\"}\n127f:[\"$1280\"]\n127d:{\"nodeType\":\"paragraph\",\"data\":\"$127e\",\"content\":\"$127f\"}\n1284:{}\n1287:[]\n1288:{}\n1286:{\"nodeType\":\"text\",\"value\":\"âItâs a beautiful journey, despite how hard it can be at times,â Amber said. âJordan is always full of joy and brings so much light to those around us.â"])</script>
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1<script>self.__next_f.push([1,"e and programs, both inside the hospital and within our communities, or furthering our ability to make breakthroughs happen, these extraordinary stories would not be possible without generous support from our donors. \",\"marks\":\"$1441\",\"data\":\"$1442\"}\n143f:[\"$1440\"]\n143d:{\"nodeType\":\"paragraph\",\"data\":\"$143e\",\"content\":\"$143f\"}\n1444:{}\n1447:[]\n1448:{}\n1446:{\"nodeType\":\"text\",\"value\":\"Making strides toward the end of his treatment \",\"marks\":\"$1447\",\"data\":\"$1448\"}\n1445:[\"$1446\"]\n1443:{\"nodeType\":\"heading-2\",\"data\":\"$1444\",\"content\":\"$1445\"}\n144a:{}\n144d:[]\n144e:{}\n144c:{\"nodeType\":\"text\",\"value\":\"Childrenâs Health is home to one of the nationâs largest childhood leukemia programs, offering the latest, groundbreaking treatments. \",\"marks\":\"$144d\",\"data\":\"$144e\"}\n144b:[\"$144c\"]\n1449:{\"nodeType\":\"paragraph\",\"data\":\"$144a\",\"content\":\"$144b\"}\n1450:{}\n1453:[]\n1454:{}\n1452:{\"nodeType\":\"text\",\"value\":\"After a new immunotherapy drug called Blinatumomab, which had been recently developed to treat B-cell acute lymphoblastic leukemia â the same kind of cancer Wyatt is facing â the familyâs physicians talked to the family about including it in their sonâs treatment plan. \",\"marks\":\"$1453\",\"data\":\"$1454\"}\n1451:[\"$1452\"]\n144f:{\"nodeType\":\"paragraph\",\"data\":\"$1450\",\"content\":\"$1451\"}\n1456:{}\n1459:[]\n145a:{}\n1458:{\"nodeType\":\"text\",\"value\":\"After the drugâs clinical trials were closed early because the treatment was working so well, doctors rushed to make it available to more children. \",\"marks\":\"$1459\",\"data\":\"$145a\"}\n1457:[\"$1458\"]\n1455:{\"nodeType\":\"paragraph\",\"data\":\"$1456\",\"content\":\"$1457\"}\n145c:{}\n145f:[]\n1460:{}\n145e:{\"nodeType\":\"text\",\"value\":\"Wyatt first received the treatment through an infusion at the hospital for a week. Then, his family was able to take the medicine, which comes in a backpack, home for the rest of the 28-day treatment. \",\"marks\":\"$145f\",\"data\":\"$1460\"}\n145d:[\"$145e\"]\n145b:{\"nodeType\":\"paragraph\",\"data\":\"$145c\",\"content\":\"$145d\"}\n1462:{}\n1465:[]\n1466:{}\n1464:{\"nodeType\":\"text\",\"value\":\"Now"])</script>
1<script>self.__next_f.push([1,", physicians expect Wyatt to reach the end of his treatment by September, a year earlier than expected. \",\"marks\":\"$1465\",\"data\":\"$1466\"}\n1463:[\"$1464\"]\n1461:{\"nodeType\":\"paragraph\",\"data\":\"$1462\",\"content\":\"$1463\"}\n1468:{}\n146b:[]\n146c:{}\n146a:{\"nodeType\":\"text\",\"value\":\"As Childrenâs Health prepares for the future by building the new pediatric campus in Dallas, a joint investment with UT Southwestern Medical Center, Wyattâs family is looking forward to seeing how the health system will help make life better for more kids. \",\"marks\":\"$146b\",\"data\":\"$146c\"}\n1469:[\"$146a\"]\n1467:{\"nodeType\":\"paragraph\",\"data\":\"$1468\",\"content\":\"$1469\"}\n146e:{}\n1471:[]\n1472:{}\n1470:{\"nodeType\":\"text\",\"value\":\"The new campus will further our ability to pioneer innovative academic research and lifesaving technology and treatments with an exclusive focus on the unique needs of children. \",\"marks\":\"$1471\",\"data\":\"$1472\"}\n146f:[\"$1470\"]\n146d:{\"nodeType\":\"paragraph\",\"data\":\"$146e\",\"content\":\"$146f\"}\n1474:{}\n1477:[]\n1478:{}\n1476:{\"nodeType\":\"text\",\"value\":\"âThis will help more and more kids experiencing from the smallest to the biggest of things,â Alysia said. âBeing able to provide a safe, lovable environment not just for the kids, but for the whole community is amazing.â \",\"marks\":\"$1477\",\"data\":\"$1478\"}\n1475:[\"$1476\"]\n1473:{\"nodeType\":\"paragraph\",\"data\":\"$1474\",\"content\":\"$1475\"}\n147a:{}\n147d:[]\n147e:{}\n147c:{\"nodeType\":\"text\",\"value\":\"âThe same little boy with the fiery spiritâ \",\"marks\":\"$147d\",\"data\":\"$147e\"}\n147b:[\"$147c\"]\n1479:{\"nodeType\":\"heading-2\",\"data\":\"$147a\",\"content\":\"$147b\"}\n1480:{}\n1483:[]\n1484:{}\n1482:{\"nodeType\":\"text\",\"value\":\"Wyatt, now 6 years old, continues to have the same energetic, bubbly spirit he had before starting his care journey. His hair has mostly grown back, too. \",\"marks\":\"$1483\",\"data\":\"$1484\"}\n1481:[\"$1482\"]\n147f:{\"nodeType\":\"paragraph\",\"data\":\"$1480\",\"content\":\"$1481\"}\n1486:{}\n1487:[]\n1485:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1486\",\"content\":\"$1487\"}\n1489:{}\n148c:[]\n148d:{}\n148"])</script>
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1<script>self.__next_f.push([1,"seeing Wyatt smiling and playing outside despite facing the impossible teaches them each day that itâs important to live life to the fullest. \",\"marks\":\"$14b0\",\"data\":\"$14b1\"}\n14ae:[\"$14af\"]\n14ac:{\"nodeType\":\"paragraph\",\"data\":\"$14ad\",\"content\":\"$14ae\"}\n14b3:{}\n14b6:[]\n14b7:{}\n14b5:{\"nodeType\":\"text\",\"value\":\"âHeâll have the craziest day, and Iâll suggest being still for a minute, but heâs unstoppable,â Alysia said. âHeâs taught us a lot as parents. Adults tend to dwell on things for so long, and Wyatt will get over things quickly. He doesnât let anything get in the way of living.â \",\"marks\":\"$14b6\",\"data\":\"$14b7\"}\n14b4:[\"$14b5\"]\n14b2:{\"nodeType\":\"paragraph\",\"data\":\"$14b3\",\"content\":\"$14b4\"}\n13af:[\"$13b0\",\"$13b6\",\"$13bc\",\"$13c2\",\"$13c8\",\"$13ce\",\"$13d4\",\"$13da\",\"$13e0\",\"$13e6\",\"$13ec\",\"$13f2\",\"$13f8\",\"$13fe\",\"$1404\",\"$1407\",\"$140d\",\"$1413\",\"$1419\",\"$141f\",\"$1425\",\"$142b\",\"$1431\",\"$1437\",\"$143d\",\"$1443\",\"$1449\",\"$144f\",\"$1455\",\"$145b\",\"$1461\",\"$1467\",\"$146d\",\"$1473\",\"$1479\",\"$147f\",\"$1485\",\"$1488\",\"$148e\",\"$1494\",\"$149a\",\"$14a0\",\"$14a6\",\"$14ac\",\"$14b2\"]\n13ad:{\"nodeType\":\"document\",\"data\":\"$13ae\",\"content\":\"$13af\"}\n13ac:{\"adminTitle\":\"Main Content: 2026 PA - Wyatt | Meet Wyatt\",\"headingLevel\":\"h2\",\"body\":\"$13ad\",\"contentAccordion\":\"Disabled\"}\n13a1:{\"metadata\":\"$13a2\",\"sys\":\"$13a5\",\"fields\":\"$13ac\"}\n14ba:[]\n14bb:[]\n14b9:{\"tags\":\"$14ba\",\"concepts\":\"$14bb\"}\n14be:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n14bd:{\"sys\":\"$14be\"}\n14c0:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n14bf:{\"sys\":\"$14c0\"}\n14c2:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n14c1:{\"sys\":\"$14c2\"}\n14bc:{\"space\":\"$14bd\",\"id\":\"65ArfGij2Tbfdq8yBPlxJv\",\"type\":\"Entry\",\"createdAt\":\"2025-12-17T16:50:11.330Z\",\"updatedAt\":\"2025-12-17T16:50:11.330Z\",\"environment\":\"$14bf\",\"publishedVersion\":5,\"revision\":1,\"contentType\":\"$14c1\",\"locale\":\"en-US\"}\n14c5:{}\n14c8:{}\n14cb:[]\n14cc:{}\n14ca:{\"nodeType\":\"text\",\"value\":\"Meet more Children's Health patients \",\"marks\":\"$14cb\",\"data\":\"$14cc\"}\n14c9:[\"$14ca\"]\n14c7:{\"nodeType\""])</script>
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1<script>self.__next_f.push([1,"ransferred to Childrenâs Health the next day. \",\"marks\":\"$159f\",\"data\":\"$15a0\"}\n159d:[\"$159e\"]\n159b:{\"nodeType\":\"paragraph\",\"data\":\"$159c\",\"content\":\"$159d\"}\n15a2:{}\n15a5:[]\n15a6:{}\n15a4:{\"nodeType\":\"text\",\"value\":\"In the days that followed, physicians discovered one of Victorâs lungs was small and underdeveloped. Genetic testing revealed an underlying genetic condition called 22q deletion syndrome, or DiGeorge Syndrome, which can cause abnormalities with the heart and lungs. \",\"marks\":\"$15a5\",\"data\":\"$15a6\"}\n15a3:[\"$15a4\"]\n15a1:{\"nodeType\":\"paragraph\",\"data\":\"$15a2\",\"content\":\"$15a3\"}\n15a8:{}\n15ab:[]\n15ac:{}\n15aa:{\"nodeType\":\"text\",\"value\":\"âWeâd never experienced anything like this,â Melissa said. âAs a mom, I just kept telling myself that he was going to be OK, that weâre going to go home. But when he was born and I saw how sick he was, my mind went numb.â \",\"marks\":\"$15ab\",\"data\":\"$15ac\"}\n15a9:[\"$15aa\"]\n15a7:{\"nodeType\":\"paragraph\",\"data\":\"$15a8\",\"content\":\"$15a9\"}\n15ae:{}\n15b1:[]\n15b2:{}\n15b0:{\"nodeType\":\"text\",\"value\":\"The beginning of a long care journey \",\"marks\":\"$15b1\",\"data\":\"$15b2\"}\n15af:[\"$15b0\"]\n15ad:{\"nodeType\":\"heading-2\",\"data\":\"$15ae\",\"content\":\"$15af\"}\n15b4:{}\n15b7:[]\n15b8:{}\n15b6:{\"nodeType\":\"text\",\"value\":\"Victor needed a ventilator to help him breathe, and he had his first open heart surgery at just 10 days old. He would ultimately spend the next seven months in the hospital. \",\"marks\":\"$15b7\",\"data\":\"$15b8\"}\n15b5:[\"$15b6\"]\n15b3:{\"nodeType\":\"paragraph\",\"data\":\"$15b4\",\"content\":\"$15b5\"}\n15ba:{}\n15bd:[]\n15be:{}\n15bc:{\"nodeType\":\"text\",\"value\":\"âSeeing him attached to so many machines was shocking and scary,â Melissa said. âHe looked so fragile. I was scared to even hold his hand.â \",\"marks\":\"$15bd\",\"data\":\"$15be\"}\n15bb:[\"$15bc\"]\n15b9:{\"nodeType\":\"paragraph\",\"data\":\"$15ba\",\"content\":\"$15bb\"}\n15c0:{}\n15c3:[]\n15c4:{}\n15c2:{\"nodeType\":\"text\",\"value\":\"The weeks leading up to Christmas felt the most isolating. While friends and family were embracing the holiday spirit, Meliss"])</script>
1<script>self.__next_f.push([1,"a, Victor Sr. and their daughters, Isabella and Sophia, were at the hospital. They leaned on each other and baby Victorâs expert care team. \",\"marks\":\"$15c3\",\"data\":\"$15c4\"}\n15c1:[\"$15c2\"]\n15bf:{\"nodeType\":\"paragraph\",\"data\":\"$15c0\",\"content\":\"$15c1\"}\n15c6:{}\n15c7:[]\n15c5:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$15c6\",\"content\":\"$15c7\"}\n15c9:{}\n15cc:[]\n15cd:{}\n15cb:{\"nodeType\":\"text\",\"value\":\"Christmas and birthday parties at the hospital \",\"marks\":\"$15cc\",\"data\":\"$15cd\"}\n15ca:[\"$15cb\"]\n15c8:{\"nodeType\":\"heading-2\",\"data\":\"$15c9\",\"content\":\"$15ca\"}\n15cf:{}\n15d2:[]\n15d3:{}\n15d1:{\"nodeType\":\"text\",\"value\":\"The family spent Victorâs first Christmas, Isabellaâs 8th birthday and Sophiaâs 5th birthday at the hospital. The experience has given the girls the maturity and compassion that comes from having a loved one face a serious medical issue. They've also learned a lot more about health care than most kids their age. Isabella has taken a special interest in Victorâs care and says she wants to be a nurse when she grows up â at Childrenâs Health. \",\"marks\":\"$15d2\",\"data\":\"$15d3\"}\n15d0:[\"$15d1\"]\n15ce:{\"nodeType\":\"paragraph\",\"data\":\"$15cf\",\"content\":\"$15d0\"}\n15d5:{}\n15d8:[]\n15d9:{}\n15d7:{\"nodeType\":\"text\",\"value\":\"Her dream is especially exciting as Childrenâs Health embarks on its latest venture: a new Dallas pediatric campus. \",\"marks\":\"$15d8\",\"data\":\"$15d9\"}\n15d6:[\"$15d7\"]\n15d4:{\"nodeType\":\"paragraph\",\"data\":\"$15d5\",\"content\":\"$15d6\"}\n15db:{}\n15de:[]\n15df:{}\n15dd:{\"nodeType\":\"text\",\"value\":\"A joint investment with UT Southwestern Medical Center, the new campus will serve as a collaborative center for innovation, academic research, training and the advancement of lifesaving technologies to make life better for children for generations to come. \",\"marks\":\"$15de\",\"data\":\"$15df\"}\n15dc:[\"$15dd\"]\n15da:{\"nodeType\":\"paragraph\",\"data\":\"$15db\",\"content\":\"$15dc\"}\n15e1:{}\n15e4:[]\n15e5:{}\n15e3:{\"nodeType\":\"text\",\"value\":\"âI fully believe she will achieve her dream,â Melissa said. âMany people look at Victor"])</script>
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1<script>self.__next_f.push([1,"essor at UT Southwestern Medical Center, who ran more tests and performed a biopsy on the mass on Octaviaâs neck. \",\"marks\":\"$1748\",\"data\":\"$1749\"}\n1746:[\"$1747\"]\n1744:{\"nodeType\":\"paragraph\",\"data\":\"$1745\",\"content\":\"$1746\"}\n174b:{}\n174e:[]\n174f:{}\n174d:{\"nodeType\":\"text\",\"value\":\"After a couple of days, Dr. Wang called Jessica and Silvino, informing them Octavia had cancer and that they would be setting up an appointment for them to meet with an oncologist. \",\"marks\":\"$174e\",\"data\":\"$174f\"}\n174c:[\"$174d\"]\n174a:{\"nodeType\":\"paragraph\",\"data\":\"$174b\",\"content\":\"$174c\"}\n1751:{}\n1754:[]\n1755:{}\n1753:{\"nodeType\":\"text\",\"value\":\"Octavia was facing rhabdomyosarcoma, a rare childhood cancer that typically begins in a muscle. \",\"marks\":\"$1754\",\"data\":\"$1755\"}\n1752:[\"$1753\"]\n1750:{\"nodeType\":\"paragraph\",\"data\":\"$1751\",\"content\":\"$1752\"}\n1757:{}\n175a:[]\n175b:{}\n1759:{\"nodeType\":\"text\",\"value\":\"A trusting partnership between her parents and care team \",\"marks\":\"$175a\",\"data\":\"$175b\"}\n1758:[\"$1759\"]\n1756:{\"nodeType\":\"heading-2\",\"data\":\"$1757\",\"content\":\"$1758\"}\n175d:{}\n1760:[]\n1761:{}\n175f:{\"nodeType\":\"text\",\"value\":\"Octaviaâs type of cancer required complex treatment that included proton radiation and chemotherapy. \",\"marks\":\"$1760\",\"data\":\"$1761\"}\n175e:[\"$175f\"]\n175c:{\"nodeType\":\"paragraph\",\"data\":\"$175d\",\"content\":\"$175e\"}\n1763:{}\n1766:[]\n1767:{}\n1765:{\"nodeType\":\"text\",\"value\":\"Her journey would stretch for months, but her parents felt confident with the support of their physicians at the Pauline Allen Gill Center for Cancer and Blood Disorders at Childrenâs Health â where a partnership with UT Southwestern gives families access to expert physicians and leading researchers who help provide world-class care. \",\"marks\":\"$1766\",\"data\":\"$1767\"}\n1764:[\"$1765\"]\n1762:{\"nodeType\":\"paragraph\",\"data\":\"$1763\",\"content\":\"$1764\"}\n1769:{}\n176a:[]\n1768:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1769\",\"content\":\"$176a\"}\n176c:{}\n176f:[]\n1770:{}\n176e:{\"nodeType\":\"text\",\"value\":\"Their care team told the family that some chemother"])</script>
1<script>self.__next_f.push([1,"apy drugs can damage cells in the ovaries, which could affect Octaviaâs ability to start a family when she was older. \",\"marks\":\"$176f\",\"data\":\"$1770\"}\n176d:[\"$176e\"]\n176b:{\"nodeType\":\"paragraph\",\"data\":\"$176c\",\"content\":\"$176d\"}\n1772:{}\n1775:[]\n1776:{}\n1774:{\"nodeType\":\"text\",\"value\":\"After consulting with her primary oncologist, Ksenya Shliakhtsitsava, M.D., Pediatric Hematologist/Oncologist at Children's Health and Assistant Professor at UT Southwestern, they decided to preserve one of her ovaries. \",\"marks\":\"$1775\",\"data\":\"$1776\"}\n1773:[\"$1774\"]\n1771:{\"nodeType\":\"paragraph\",\"data\":\"$1772\",\"content\":\"$1773\"}\n1778:{}\n177b:[]\n177c:{}\n177a:{\"nodeType\":\"text\",\"value\":\"âWhatever happens, sheâs got a shot,â her mom, Jessica, said. \",\"marks\":\"$177b\",\"data\":\"$177c\"}\n1779:[\"$177a\"]\n1777:{\"nodeType\":\"paragraph\",\"data\":\"$1778\",\"content\":\"$1779\"}\n177e:{}\n1781:[]\n1782:{}\n1780:{\"nodeType\":\"text\",\"value\":\"Physicians carefully removed one of Octaviaâs ovaries and placed a port in her chest during a minor surgery. The tiny device would help her get the medicine she needed. The next day, she received her first round of chemotherapy. \",\"marks\":\"$1781\",\"data\":\"$1782\"}\n177f:[\"$1780\"]\n177d:{\"nodeType\":\"paragraph\",\"data\":\"$177e\",\"content\":\"$177f\"}\n1784:{}\n1787:[]\n1788:{}\n1786:{\"nodeType\":\"text\",\"value\":\"âIt all happened so, so quickly,â Jessica said. âBut Childrenâs Health does a great job of making everyone feel comfortable and taken care of. We felt like we had a real partnership with her care team.â \",\"marks\":\"$1787\",\"data\":\"$1788\"}\n1785:[\"$1786\"]\n1783:{\"nodeType\":\"paragraph\",\"data\":\"$1784\",\"content\":\"$1785\"}\n178a:{}\n178d:[]\n178e:{}\n178c:{\"nodeType\":\"text\",\"value\":\"A care journey filled with childlike wonder \",\"marks\":\"$178d\",\"data\":\"$178e\"}\n178b:[\"$178c\"]\n1789:{\"nodeType\":\"heading-2\",\"data\":\"$178a\",\"content\":\"$178b\"}\n1790:{}\n1793:[]\n1794:{}\n1792:{\"nodeType\":\"text\",\"value\":\"Octavia, a bubbly, enthusiastic girl, would strictly wear sparkly sequin dresses or jumpsuits to the hospital. \",\"marks\":\"$1793\",\"data\":\"$"])</script>
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1<script>self.__next_f.push([1,"\"4nfRe7bTQ3IFXaRD5BqR3R\",\"type\":\"Entry\",\"createdAt\":\"2025-12-16T17:46:24.156Z\",\"updatedAt\":\"2026-03-19T21:11:39.982Z\",\"environment\":\"$1a7c\",\"publishedVersion\":23,\"revision\":2,\"contentType\":\"$1a7e\",\"locale\":\"en-US\"}\n1a82:{}\n1a85:{}\n1a88:[]\n1a89:{}\n1a87:{\"nodeType\":\"text\",\"value\":\"One afternoon, then-13-year-old Micah came home from school, and his mom asked if he wanted to toss a ball around. Usually bursting with energy, Micah surprised her when he declined. \",\"marks\":\"$1a88\",\"data\":\"$1a89\"}\n1a86:[\"$1a87\"]\n1a84:{\"nodeType\":\"paragraph\",\"data\":\"$1a85\",\"content\":\"$1a86\"}\n1a8b:{}\n1a8e:[]\n1a8f:{}\n1a8d:{\"nodeType\":\"text\",\"value\":\"He told Brittany, his mom, he was having chest pain. \",\"marks\":\"$1a8e\",\"data\":\"$1a8f\"}\n1a8c:[\"$1a8d\"]\n1a8a:{\"nodeType\":\"paragraph\",\"data\":\"$1a8b\",\"content\":\"$1a8c\"}\n1a91:{}\n1a94:[]\n1a95:{}\n1a93:{\"nodeType\":\"text\",\"value\":\"Brittanyâs ears perked up. Given her medical history, she knew symptoms like these deserve quick attention. \",\"marks\":\"$1a94\",\"data\":\"$1a95\"}\n1a92:[\"$1a93\"]\n1a90:{\"nodeType\":\"paragraph\",\"data\":\"$1a91\",\"content\":\"$1a92\"}\n1a97:{}\n1a9a:[]\n1a9b:{}\n1a99:{\"nodeType\":\"text\",\"value\":\"Shortly after giving birth to Micah, she was diagnosed with heart failure. She endured two heart surgeries and ultimately received a heart transplant. And, just as she was adjusting to her new heart, another diagnosis emerged â stage 4 lymphoma. \",\"marks\":\"$1a9a\",\"data\":\"$1a9b\"}\n1a98:[\"$1a99\"]\n1a96:{\"nodeType\":\"paragraph\",\"data\":\"$1a97\",\"content\":\"$1a98\"}\n1a9d:{}\n1aa0:[]\n1aa1:{}\n1a9f:{\"nodeType\":\"text\",\"value\":\"Through each diagnosis and surgery, Micah watched his mother defy the odds. \",\"marks\":\"$1aa0\",\"data\":\"$1aa1\"}\n1a9e:[\"$1a9f\"]\n1a9c:{\"nodeType\":\"paragraph\",\"data\":\"$1a9d\",\"content\":\"$1a9e\"}\n1aa3:{}\n1aa6:[]\n1aa7:{}\n1aa5:{\"nodeType\":\"text\",\"value\":\"But neither of them imagined that one day Micah might need a new heart, too. \",\"marks\":\"$1aa6\",\"data\":\"$1aa7\"}\n1aa9:[]\n1aaa:{}\n1aa8:{\"nodeType\":\"text\",\"value\":\" \",\"marks\":\"$1aa9\",\"data\":\"$1aaa\"}\n1aa4:[\"$1aa5\",\"$1aa8\"]\n1aa2:{\"nodeType\":\"paragraph\",\"data\""])</script>
1<script>self.__next_f.push([1,":\"$1aa3\",\"content\":\"$1aa4\"}\n1aac:{}\n1aaf:[]\n1ab0:{}\n1aae:{\"nodeType\":\"text\",\"value\":\"A heart working overtime \",\"marks\":\"$1aaf\",\"data\":\"$1ab0\"}\n1aad:[\"$1aae\"]\n1aab:{\"nodeType\":\"heading-2\",\"data\":\"$1aac\",\"content\":\"$1aad\"}\n1ab2:{}\n1ab5:[]\n1ab6:{}\n1ab4:{\"nodeType\":\"text\",\"value\":\"The next morning, Brittany took Micah to the pediatrician. The doctor found nothing alarming but referred him to the Heart Center at Childrenâs Healthâ as a precaution. \",\"marks\":\"$1ab5\",\"data\":\"$1ab6\"}\n1ab3:[\"$1ab4\"]\n1ab1:{\"nodeType\":\"paragraph\",\"data\":\"$1ab2\",\"content\":\"$1ab3\"}\n1ab8:{}\n1abb:[]\n1abc:{}\n1aba:{\"nodeType\":\"text\",\"value\":\"Specialized care team members at the Heart Center perform more than 500 cardiac surgeries each year, offering everything from minimally invasive approaches to complex heart surgeries. \",\"marks\":\"$1abb\",\"data\":\"$1abc\"}\n1ab9:[\"$1aba\"]\n1ab7:{\"nodeType\":\"paragraph\",\"data\":\"$1ab8\",\"content\":\"$1ab9\"}\n1abe:{}\n1abf:[]\n1abd:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1abe\",\"content\":\"$1abf\"}\n1ac1:{}\n1ac4:[]\n1ac5:{}\n1ac3:{\"nodeType\":\"text\",\"value\":\"At the hospital, Micahâs EKG reading â which provides information about the heart rhythm, rate and structure â came back highly abnormal. Yousef Arar, M.D., Pediatric Cardiologist at Children's Health and Assistant Professor at UT Southwestern, decided to do an echocardiogram (echo), also known as a cardiac ultrasound, to examine the heart. \",\"marks\":\"$1ac4\",\"data\":\"$1ac5\"}\n1ac2:[\"$1ac3\"]\n1ac0:{\"nodeType\":\"paragraph\",\"data\":\"$1ac1\",\"content\":\"$1ac2\"}\n1ac7:{}\n1aca:[]\n1acb:{}\n1ac9:{\"nodeType\":\"text\",\"value\":\"After reviewing the images, Dr. Arar pulled Brittany aside. \",\"marks\":\"$1aca\",\"data\":\"$1acb\"}\n1ac8:[\"$1ac9\"]\n1ac6:{\"nodeType\":\"paragraph\",\"data\":\"$1ac7\",\"content\":\"$1ac8\"}\n1acd:{}\n1ad0:[]\n1ad1:{}\n1acf:{\"nodeType\":\"text\",\"value\":\"\\\"This is the worst case of hypertrophic cardiomyopathy I've ever seen,â he said. âI donât know how Micahâs organs are getting blood, let alone how heâs running a mile every day.\\\" \",\"marks\":\"$1ad0\",\"data\":\"$1ad1\"}\n1ace:[\"$1acf"])</script>
1<script>self.__next_f.push([1,"\"]\n1acc:{\"nodeType\":\"paragraph\",\"data\":\"$1acd\",\"content\":\"$1ace\"}\n1ad3:{}\n1ad6:[]\n1ad7:{}\n1ad5:{\"nodeType\":\"text\",\"value\":\"Micah's enlarged heart was working overtime. His ejection fraction â the measurement of a heartâs strength â was only 7%. The average ejection fraction is typically 50% or more. He also had ventricular tachycardia, a fast, abnormal heart rhythm from the bottom chambers of his heart. \",\"marks\":\"$1ad6\",\"data\":\"$1ad7\"}\n1ad4:[\"$1ad5\"]\n1ad2:{\"nodeType\":\"paragraph\",\"data\":\"$1ad3\",\"content\":\"$1ad4\"}\n1ad9:{}\n1adc:[]\n1add:{}\n1adb:{\"nodeType\":\"text\",\"value\":\"Brittany felt every maternal fear surge through her body, but their care team made sure the family felt supported throughout their care journey. \",\"marks\":\"$1adc\",\"data\":\"$1add\"}\n1ada:[\"$1adb\"]\n1ad8:{\"nodeType\":\"paragraph\",\"data\":\"$1ad9\",\"content\":\"$1ada\"}\n1adf:{}\n1ae2:[]\n1ae3:{}\n1ae1:{\"nodeType\":\"text\",\"value\":\"Physicians immediately admitted Micah to the acute care cardiology unit and scheduled him for a procedure to implant a device that would help control his heart rhythm. \",\"marks\":\"$1ae2\",\"data\":\"$1ae3\"}\n1ae0:[\"$1ae1\"]\n1ade:{\"nodeType\":\"paragraph\",\"data\":\"$1adf\",\"content\":\"$1ae0\"}\n1ae5:{}\n1ae8:[]\n1ae9:{}\n1ae7:{\"nodeType\":\"text\",\"value\":\"Jordan Ezekian, M.D., Pediatric Electrophysiologist and Assistant Professor at UT Southwestern, consulted on Micahâs care and determined that his heart problems, like his momâs, were likely due to genetics. So, she ordered tests that confirmed that they both had a genetic form of cardiomyopathy. \",\"marks\":\"$1ae8\",\"data\":\"$1ae9\"}\n1ae6:[\"$1ae7\"]\n1ae4:{\"nodeType\":\"paragraph\",\"data\":\"$1ae5\",\"content\":\"$1ae6\"}\n1aeb:{}\n1aee:[]\n1aef:{}\n1aed:{\"nodeType\":\"text\",\"value\":\"\\\"I looked at his momâs chart and his chart, and it seemed clear that there was something going on genetically,â Dr. Ezekian said. âMeanwhile, our transplant team determined he was going to need a heart transplant, just like his mom.â \",\"marks\":\"$1aee\",\"data\":\"$1aef\"}\n1aec:[\"$1aed\"]\n1aea:{\"nodeType\":\"paragraph\",\"data\":\"$1aeb\",\"content\""])</script>
1<script>self.__next_f.push([1,":\"$1aec\"}\n1af1:{}\n1af4:[]\n1af5:{}\n1af3:{\"nodeType\":\"text\",\"value\":\"Once again, Brittany found herself facing the unimaginable. But this time, sheâd be the one watching Micah defy the odds. \",\"marks\":\"$1af4\",\"data\":\"$1af5\"}\n1af2:[\"$1af3\"]\n1af0:{\"nodeType\":\"paragraph\",\"data\":\"$1af1\",\"content\":\"$1af2\"}\n1af7:{}\n1afa:[]\n1afb:{}\n1af9:{\"nodeType\":\"text\",\"value\":\"\\\"Just like that, again, my life literally flipped on a dime,\\\" she said. \",\"marks\":\"$1afa\",\"data\":\"$1afb\"}\n1af8:[\"$1af9\"]\n1af6:{\"nodeType\":\"paragraph\",\"data\":\"$1af7\",\"content\":\"$1af8\"}\n1afd:{}\n1b00:[]\n1b01:{}\n1aff:{\"nodeType\":\"text\",\"value\":\"Incredible moments to be a kid again \",\"marks\":\"$1b00\",\"data\":\"$1b01\"}\n1afe:[\"$1aff\"]\n1afc:{\"nodeType\":\"heading-2\",\"data\":\"$1afd\",\"content\":\"$1afe\"}\n1b03:{}\n1b06:[]\n1b07:{}\n1b05:{\"nodeType\":\"text\",\"value\":\"Micahâs procedure to control his heart rhythm went well, with the Childrenâs Health extracorporeal membrane oxygenation, or ECMO, team on standby to provide support, which, thankfully, Micah did not need. \",\"marks\":\"$1b06\",\"data\":\"$1b07\"}\n1b04:[\"$1b05\"]\n1b02:{\"nodeType\":\"paragraph\",\"data\":\"$1b03\",\"content\":\"$1b04\"}\n1b09:{}\n1b0c:[]\n1b0d:{}\n1b0b:{\"nodeType\":\"text\",\"value\":\"And while Micah waited on his new heart, his hospital stay included some incredible moments to be a kid again thanks to generous donors, such as playing video games with other patients in the playrooms and cuddling with the Pet Therapy dogs. \",\"marks\":\"$1b0c\",\"data\":\"$1b0d\"}\n1b0a:[\"$1b0b\"]\n1b08:{\"nodeType\":\"paragraph\",\"data\":\"$1b09\",\"content\":\"$1b0a\"}\n1b0f:{}\n1b10:[]\n1b0e:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1b0f\",\"content\":\"$1b10\"}\n1b12:{}\n1b15:[]\n1b16:{}\n1b14:{\"nodeType\":\"text\",\"value\":\"And now these donations are powering the future of pediatric health care in North Texas. \",\"marks\":\"$1b15\",\"data\":\"$1b16\"}\n1b13:[\"$1b14\"]\n1b11:{\"nodeType\":\"paragraph\",\"data\":\"$1b12\",\"content\":\"$1b13\"}\n1b18:{}\n1b1b:[]\n1b1c:{}\n1b1a:{\"nodeType\":\"text\",\"value\":\"Childrenâs Health is building a new Dallas pediatric campus, a joint investment with UT Southwestern"])</script>
1<script>self.__next_f.push([1," Medical Center, to expand access to pediatric health care. The new campus will strengthen our collective ability to care for all children, especially for medically complex cases like Micah. \",\"marks\":\"$1b1b\",\"data\":\"$1b1c\"}\n1b19:[\"$1b1a\"]\n1b17:{\"nodeType\":\"paragraph\",\"data\":\"$1b18\",\"content\":\"$1b19\"}\n1b1e:{}\n1b21:[]\n1b22:{}\n1b20:{\"nodeType\":\"text\",\"value\":\"âChildrenâs Health is on the forefront of making sure that every possible advantage is used and making sure that these children heal and heal well,â Brittany said. âI could not be more excited that Childrenâs Health is investing in the future of his health this way.â \",\"marks\":\"$1b21\",\"data\":\"$1b22\"}\n1b1f:[\"$1b20\"]\n1b1d:{\"nodeType\":\"paragraph\",\"data\":\"$1b1e\",\"content\":\"$1b1f\"}\n1b24:{}\n1b27:[]\n1b28:{}\n1b26:{\"nodeType\":\"text\",\"value\":\"The need for peer support \",\"marks\":\"$1b27\",\"data\":\"$1b28\"}\n1b25:[\"$1b26\"]\n1b23:{\"nodeType\":\"heading-2\",\"data\":\"$1b24\",\"content\":\"$1b25\"}\n1b2a:{}\n1b2d:[]\n1b2e:{}\n1b2c:{\"nodeType\":\"text\",\"value\":\"The timeline for a new heart is unpredictable. And while the family waited, Brittany went to a caregiver support group. \",\"marks\":\"$1b2d\",\"data\":\"$1b2e\"}\n1b2b:[\"$1b2c\"]\n1b29:{\"nodeType\":\"paragraph\",\"data\":\"$1b2a\",\"content\":\"$1b2b\"}\n1b30:{}\n1b33:[]\n1b34:{}\n1b32:{\"nodeType\":\"text\",\"value\":\"When she returned, Micah said, âMom, what time is my support group? Iâm the one that is going to have the transplant.â \",\"marks\":\"$1b33\",\"data\":\"$1b34\"}\n1b31:[\"$1b32\"]\n1b2f:{\"nodeType\":\"paragraph\",\"data\":\"$1b30\",\"content\":\"$1b31\"}\n1b36:{}\n1b39:[]\n1b3a:{}\n1b38:{\"nodeType\":\"text\",\"value\":\"Having been through a heart transplant herself, Brittany assured Micah she understood what heâd soon go through and would be glad to talk to him about it. She also had friends from the transplant community who could provide support. \",\"marks\":\"$1b39\",\"data\":\"$1b3a\"}\n1b37:[\"$1b38\"]\n1b35:{\"nodeType\":\"paragraph\",\"data\":\"$1b36\",\"content\":\"$1b37\"}\n1b3c:{}\n1b3f:[]\n1b40:{}\n1b3e:{\"nodeType\":\"text\",\"value\":\"Childrenâs Health also offers patient support groups f"])</script>
1<script>self.__next_f.push([1,"or hospitalized transplant patients, coordinated as often as infection control measures allow. The \\\"Transplant Heroes\\\" patient group, a 4-week program held multiple times a year, is designed for children awaiting or recovering from transplants. This group provides a space for fun and games while promoting understanding of organ transplants, immunosuppression medication, peer communication about medical conditions and coping skills. \",\"marks\":\"$1b3f\",\"data\":\"$1b40\"}\n1b3d:[\"$1b3e\"]\n1b3b:{\"nodeType\":\"paragraph\",\"data\":\"$1b3c\",\"content\":\"$1b3d\"}\n1b42:{}\n1b45:[]\n1b46:{}\n1b44:{\"nodeType\":\"text\",\"value\":\"But Micah wasnât satisfied. He worried about kids who didnât have a mom with similar experiences, like Brittany, or resources like those at Childrenâs Health â who didnât have anyone to guide them through the fears and uncertainties of transplant life. \",\"marks\":\"$1b45\",\"data\":\"$1b46\"}\n1b43:[\"$1b44\"]\n1b41:{\"nodeType\":\"paragraph\",\"data\":\"$1b42\",\"content\":\"$1b43\"}\n1b48:{}\n1b4b:[]\n1b4c:{}\n1b4a:{\"nodeType\":\"text\",\"value\":\"Despite experiencing the impossible, inspiration overtook him. He wanted to develop a way for teens like him to connect from anywhere in the world. \",\"marks\":\"$1b4b\",\"data\":\"$1b4c\"}\n1b49:[\"$1b4a\"]\n1b47:{\"nodeType\":\"paragraph\",\"data\":\"$1b48\",\"content\":\"$1b49\"}\n1b4e:{}\n1b51:[]\n1b52:{}\n1b50:{\"nodeType\":\"text\",\"value\":\"Stepping up to support other teens \",\"marks\":\"$1b51\",\"data\":\"$1b52\"}\n1b4f:[\"$1b50\"]\n1b4d:{\"nodeType\":\"heading-2\",\"data\":\"$1b4e\",\"content\":\"$1b4f\"}\n1b54:{}\n1b57:[]\n1b58:{}\n1b56:{\"nodeType\":\"text\",\"value\":\"When Micah was younger, Brittany taught him about responsibility through the story of âAnybody and Nobodyâ â reminding him that if something needs to be done, anyone can step up to do it. \",\"marks\":\"$1b57\",\"data\":\"$1b58\"}\n1b55:[\"$1b56\"]\n1b53:{\"nodeType\":\"paragraph\",\"data\":\"$1b54\",\"content\":\"$1b55\"}\n1b5a:{}\n1b5d:[]\n1b5e:{}\n1b5c:{\"nodeType\":\"text\",\"value\":\"She never expected Micah to apply that lesson to do something much bigger than washing the dishes or picking up his LEGOs. \","])</script>
1<script>self.__next_f.push([1,"\"marks\":\"$1b5d\",\"data\":\"$1b5e\"}\n1b5b:[\"$1b5c\"]\n1b59:{\"nodeType\":\"paragraph\",\"data\":\"$1b5a\",\"content\":\"$1b5b\"}\n1b60:{}\n1b63:[]\n1b64:{}\n1b62:{\"nodeType\":\"text\",\"value\":\"When Micah said, âI guess weâll have to start our own online support group for teens,â Brittany felt overwhelmed. \",\"marks\":\"$1b63\",\"data\":\"$1b64\"}\n1b61:[\"$1b62\"]\n1b5f:{\"nodeType\":\"paragraph\",\"data\":\"$1b60\",\"content\":\"$1b61\"}\n1b66:{}\n1b69:[]\n1b6a:{}\n1b68:{\"nodeType\":\"text\",\"value\":\"But deep down, she wasnât too surprised. Micah had seen his mom continually bounce back and pursue her dreams during and after her hospitalization. \",\"marks\":\"$1b69\",\"data\":\"$1b6a\"}\n1b67:[\"$1b68\"]\n1b65:{\"nodeType\":\"paragraph\",\"data\":\"$1b66\",\"content\":\"$1b67\"}\n1b6c:{}\n1b6f:[]\n1b70:{}\n1b6e:{\"nodeType\":\"text\",\"value\":\"She had built a life centered on resilience and purpose, so she wasnât surprised her son shared her values and strength. \",\"marks\":\"$1b6f\",\"data\":\"$1b70\"}\n1b6d:[\"$1b6e\"]\n1b6b:{\"nodeType\":\"paragraph\",\"data\":\"$1b6c\",\"content\":\"$1b6d\"}\n1b72:{}\n1b75:[]\n1b76:{}\n1b74:{\"nodeType\":\"text\",\"value\":\"After some brainstorming and planning, Micah and Brittany launched Transplant Teenz, an online support community for teens undergoing or recovering from transplants. \",\"marks\":\"$1b75\",\"data\":\"$1b76\"}\n1b73:[\"$1b74\"]\n1b71:{\"nodeType\":\"paragraph\",\"data\":\"$1b72\",\"content\":\"$1b73\"}\n1b78:{}\n1b7b:[]\n1b7c:{}\n1b7a:{\"nodeType\":\"text\",\"value\":\"In this virtual community, teens find connections and fun through themed squads like the âBinge Brigade,â who watch Netflix together, or the \\\"Foodie Fighters,\\\" who share a love of food and cooking. During meetings, teens work on developing self-compassion or adaptability and discuss the realities of transplant life, like managing multiple medications. \",\"marks\":\"$1b7b\",\"data\":\"$1b7c\"}\n1b79:[\"$1b7a\"]\n1b77:{\"nodeType\":\"paragraph\",\"data\":\"$1b78\",\"content\":\"$1b79\"}\n1b7e:{}\n1b81:[]\n1b82:{}\n1b80:{\"nodeType\":\"text\",\"value\":\"âTeenagers have poorer post-transplant outcomes than younger kids. And thatâs partly because teens arenât great"])</script>
1<script>self.__next_f.push([1," at paying attention to all sorts of things â including taking medicines. So, the idea of having teens support each other is a fantastic one,â said Ryan Davies, M.D., Pediatric Cardiothoracic Surgeon at Childrenâs Health and Professor at UT Southwestern, who ultimately led the heart transplant team that performed Micahâs transplant. \",\"marks\":\"$1b81\",\"data\":\"$1b82\"}\n1b7f:[\"$1b80\"]\n1b7d:{\"nodeType\":\"paragraph\",\"data\":\"$1b7e\",\"content\":\"$1b7f\"}\n1b84:{}\n1b87:[]\n1b88:{}\n1b86:{\"nodeType\":\"text\",\"value\":\"A successful heart transplant \",\"marks\":\"$1b87\",\"data\":\"$1b88\"}\n1b85:[\"$1b86\"]\n1b83:{\"nodeType\":\"heading-2\",\"data\":\"$1b84\",\"content\":\"$1b85\"}\n1b8a:{}\n1b8d:[]\n1b8e:{}\n1b8c:{\"nodeType\":\"text\",\"value\":\"Ten months after Micah got on the transplant list, Brittanyâs phone rang â physicians had found a donor heart match for him. \",\"marks\":\"$1b8d\",\"data\":\"$1b8e\"}\n1b8b:[\"$1b8c\"]\n1b89:{\"nodeType\":\"paragraph\",\"data\":\"$1b8a\",\"content\":\"$1b8b\"}\n1b90:{}\n1b93:[]\n1b94:{}\n1b92:{\"nodeType\":\"text\",\"value\":\"Brittany remembers thinking, âNot only is my kid going to live, heâs going to thrive.â \",\"marks\":\"$1b93\",\"data\":\"$1b94\"}\n1b91:[\"$1b92\"]\n1b8f:{\"nodeType\":\"paragraph\",\"data\":\"$1b90\",\"content\":\"$1b91\"}\n1b96:{}\n1b99:[]\n1b9a:{}\n1b98:{\"nodeType\":\"text\",\"value\":\"In October 2024, Micah received his new heart at Childrenâs Health under the expert care of Dr. Davies, who, along with his transplant team, Brittany called her âdream team.â \",\"marks\":\"$1b99\",\"data\":\"$1b9a\"}\n1b97:[\"$1b98\"]\n1b95:{\"nodeType\":\"paragraph\",\"data\":\"$1b96\",\"content\":\"$1b97\"}\n1b9c:{}\n1b9f:[]\n1ba0:{}\n1b9e:{\"nodeType\":\"text\",\"value\":\"âMicah and Brittany were terrific to work with. They were both so knowledgeable, but also trusting of the process,â Dr. Davies said. âThey definitely did their part to make sure Micah was in the best health possible going into transplant and recovering from it.â \",\"marks\":\"$1b9f\",\"data\":\"$1ba0\"}\n1b9d:[\"$1b9e\"]\n1b9b:{\"nodeType\":\"paragraph\",\"data\":\"$1b9c\",\"content\":\"$1b9d\"}\n1ba2:{}\n1ba5:[]\n1ba6:{}\n1ba4:{\"nodeType\":\"te"])</script>
1<script>self.__next_f.push([1,"xt\",\"value\":\"Micah left the hospital in just two weeks, eager to see friends who couldnât visit him at the ICU. He knew he could trust his new heart when he felt ready to serve a tennis ball to his mom again. \",\"marks\":\"$1ba5\",\"data\":\"$1ba6\"}\n1ba3:[\"$1ba4\"]\n1ba1:{\"nodeType\":\"paragraph\",\"data\":\"$1ba2\",\"content\":\"$1ba3\"}\n1ba8:{}\n1bab:[]\n1bac:{}\n1baa:{\"nodeType\":\"text\",\"value\":\"More than a year after his transplant, Micah is helping train high school football and soccer players â and is considering studying sports medicine when he grows up. \",\"marks\":\"$1bab\",\"data\":\"$1bac\"}\n1ba9:[\"$1baa\"]\n1ba7:{\"nodeType\":\"paragraph\",\"data\":\"$1ba8\",\"content\":\"$1ba9\"}\n1bae:{}\n1baf:[]\n1bad:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1bae\",\"content\":\"$1baf\"}\n1bb1:{}\n1bb4:[]\n1bb5:{}\n1bb3:{\"nodeType\":\"text\",\"value\":\"Micah and his mom continue to build Transplant Teenz, bringing hope to other teens and their families. \",\"marks\":\"$1bb4\",\"data\":\"$1bb5\"}\n1bb2:[\"$1bb3\"]\n1bb0:{\"nodeType\":\"paragraph\",\"data\":\"$1bb1\",\"content\":\"$1bb2\"}\n1bb7:{}\n1bba:[]\n1bbb:{}\n1bb9:{\"nodeType\":\"text\",\"value\":\"âIn my future, I hope to develop Transplant Teenz even more, so it goes global,â Micah said. âAnd also, hopefully, become a trainer for the NFL and maybe, just maybe, become a professional player. Sky is the limit.â \",\"marks\":\"$1bba\",\"data\":\"$1bbb\"}\n1bb8:[\"$1bb9\"]\n1bb6:{\"nodeType\":\"paragraph\",\"data\":\"$1bb7\",\"content\":\"$1bb8\"}\n1bbd:{}\n1bc0:[]\n1bc1:{}\n1bbf:{\"nodeType\":\"text\",\"value\":\"Micah and his mom are grateful for the expert care at Childrenâs Health thatâs provided him a second chance at life and a chance to pursue his dream of attending college âsomewhere sunny.â \",\"marks\":\"$1bc0\",\"data\":\"$1bc1\"}\n1bbe:[\"$1bbf\"]\n1bbc:{\"nodeType\":\"paragraph\",\"data\":\"$1bbd\",\"content\":\"$1bbe\"}\n1bc3:{}\n1bc6:[]\n1bc7:{}\n1bc5:{\"nodeType\":\"text\",\"value\":\"Together, Brittany and Micah plan to make the most of having a second chance. \",\"marks\":\"$1bc6\",\"data\":\"$1bc7\"}\n1bc4:[\"$1bc5\"]\n1bc2:{\"nodeType\":\"paragraph\",\"data\":\"$1bc3\",\"content\":\"$1bc4\"}\n1bc9:{}\n1bcc:[]\n1bcd"])</script>
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1<script>self.__next_f.push([1,"remembers the bruises that suddenly began appearing on her arms and legs, along with the intense headaches and discomfort caused by swollen gums that followed. \",\"marks\":\"$1c9c\",\"data\":\"$1c9d\"}\n1c9a:[\"$1c9b\"]\n1c98:{\"nodeType\":\"paragraph\",\"data\":\"$1c99\",\"content\":\"$1c9a\"}\n1c9f:{}\n1ca2:[]\n1ca3:{}\n1ca1:{\"nodeType\":\"text\",\"value\":\"At first, she didnât think twice about what was happening to her. Maybe she wasnât getting enough sleep, she thought. \",\"marks\":\"$1ca2\",\"data\":\"$1ca3\"}\n1ca0:[\"$1ca1\"]\n1c9e:{\"nodeType\":\"paragraph\",\"data\":\"$1c9f\",\"content\":\"$1ca0\"}\n1ca5:{}\n1ca8:[]\n1ca9:{}\n1ca7:{\"nodeType\":\"text\",\"value\":\"But big bruises continued appearing randomly and, at one point, her gums were so swollen, she struggled to even brush her teeth. \",\"marks\":\"$1ca8\",\"data\":\"$1ca9\"}\n1ca6:[\"$1ca7\"]\n1ca4:{\"nodeType\":\"paragraph\",\"data\":\"$1ca5\",\"content\":\"$1ca6\"}\n1cab:{}\n1cae:[]\n1caf:{}\n1cad:{\"nodeType\":\"text\",\"value\":\"The symptoms âkept coming more frequently, and I started to lose my appetite more and more ⦠which is very big for me because Iâm an eater,â KK said. \",\"marks\":\"$1cae\",\"data\":\"$1caf\"}\n1cac:[\"$1cad\"]\n1caa:{\"nodeType\":\"paragraph\",\"data\":\"$1cab\",\"content\":\"$1cac\"}\n1cb1:{}\n1cb4:[]\n1cb5:{}\n1cb3:{\"nodeType\":\"text\",\"value\":\"Concerned, her mom, IlaSheika, took her daughter to a hospital in Tyler, their hometown. \",\"marks\":\"$1cb4\",\"data\":\"$1cb5\"}\n1cb2:[\"$1cb3\"]\n1cb0:{\"nodeType\":\"paragraph\",\"data\":\"$1cb1\",\"content\":\"$1cb2\"}\n1cb7:{}\n1cba:[]\n1cbb:{}\n1cb9:{\"nodeType\":\"text\",\"value\":\"There, physicians told her it was possible she had leukemia, the most common childhood cancer. \",\"marks\":\"$1cba\",\"data\":\"$1cbb\"}\n1cb8:[\"$1cb9\"]\n1cb6:{\"nodeType\":\"paragraph\",\"data\":\"$1cb7\",\"content\":\"$1cb8\"}\n1cbd:{}\n1cc0:[]\n1cc1:{}\n1cbf:{\"nodeType\":\"text\",\"value\":\"But KK didnât feel scared or worried, really. The then-15-year-old remained almost stoic. \",\"marks\":\"$1cc0\",\"data\":\"$1cc1\"}\n1cbe:[\"$1cbf\"]\n1cbc:{\"nodeType\":\"paragraph\",\"data\":\"$1cbd\",\"content\":\"$1cbe\"}\n1cc3:{}\n1cc6:[]\n1cc7:{}\n1cc5:{\"nodeType\":\"text\",\"value\":\"âIt was just more "])</script>
1<script>self.__next_f.push([1,"like, âWow, I might actually have leukemia,â she said. âI might actually have cancer.â \",\"marks\":\"$1cc6\",\"data\":\"$1cc7\"}\n1cc4:[\"$1cc5\"]\n1cc2:{\"nodeType\":\"paragraph\",\"data\":\"$1cc3\",\"content\":\"$1cc4\"}\n1cc9:{}\n1ccc:[]\n1ccd:{}\n1ccb:{\"nodeType\":\"text\",\"value\":\"A âwave of acceptanceâ \",\"marks\":\"$1ccc\",\"data\":\"$1ccd\"}\n1cca:[\"$1ccb\"]\n1cc8:{\"nodeType\":\"heading-2\",\"data\":\"$1cc9\",\"content\":\"$1cca\"}\n1ccf:{}\n1cd2:[]\n1cd3:{}\n1cd1:{\"nodeType\":\"text\",\"value\":\"Soon after KK and her mother received the potential diagnosis, they were sent to Childrenâs Healthâ , home to one of the countryâs largest pediatric leukemia programs. \",\"marks\":\"$1cd2\",\"data\":\"$1cd3\"}\n1cd0:[\"$1cd1\"]\n1cce:{\"nodeType\":\"paragraph\",\"data\":\"$1ccf\",\"content\":\"$1cd0\"}\n1cd5:{}\n1cd8:[]\n1cd9:{}\n1cd7:{\"nodeType\":\"text\",\"value\":\"After further tests, physicians diagnosed KK with acute myeloid leukemia (AML), which starts in myeloid cells in the bone marrow and quickly moves into the bloodstream. Myeloid cells are immature blood cells that later develop into oxygen-carrying red blood cells, infection-fighting white blood cells and blood-clotting platelets. \",\"marks\":\"$1cd8\",\"data\":\"$1cd9\"}\n1cd6:[\"$1cd7\"]\n1cd4:{\"nodeType\":\"paragraph\",\"data\":\"$1cd5\",\"content\":\"$1cd6\"}\n1cdb:{}\n1cde:[]\n1cdf:{}\n1cdd:{\"nodeType\":\"text\",\"value\":\"âI like to think of AML as being a little bit like the mafia,â said Richard Voit, M.D., Pediatric Hematologist/Oncologist at Children's Health and assistant professor at UT Southwestern Medical Center. âIt's a gang that comes and invades a neighborhood, in this case the bone marrow, and wreaks havoc all over the body.â \",\"marks\":\"$1cde\",\"data\":\"$1cdf\"}\n1cdc:[\"$1cdd\"]\n1cda:{\"nodeType\":\"paragraph\",\"data\":\"$1cdb\",\"content\":\"$1cdc\"}\n1ce1:{}\n1ce4:[]\n1ce5:{}\n1ce3:{\"nodeType\":\"text\",\"value\":\"The confirmation didnât shock KK. Instead, she felt a âwave of acceptance.â \",\"marks\":\"$1ce4\",\"data\":\"$1ce5\"}\n1ce2:[\"$1ce3\"]\n1ce0:{\"nodeType\":\"paragraph\",\"data\":\"$1ce1\",\"content\":\"$1ce2\"}\n1ce7:{}\n1cea:[]\n1ceb:{}\n1ce9:{\"nodeType\":\"text\",\"valu"])</script>
1<script>self.__next_f.push([1,"e\":\"âIf I end up passing away from cancer, it may be heartbreaking, but Iâll be reunited with Jesus,â she thought. \",\"marks\":\"$1cea\",\"data\":\"$1ceb\"}\n1ce8:[\"$1ce9\"]\n1ce6:{\"nodeType\":\"paragraph\",\"data\":\"$1ce7\",\"content\":\"$1ce8\"}\n1ced:{}\n1cf0:[]\n1cf1:{}\n1cef:{\"nodeType\":\"text\",\"value\":\"Still, KK didnât abandon hope. \",\"marks\":\"$1cf0\",\"data\":\"$1cf1\"}\n1cee:[\"$1cef\"]\n1cec:{\"nodeType\":\"paragraph\",\"data\":\"$1ced\",\"content\":\"$1cee\"}\n1cf3:{}\n1cf4:[]\n1cf2:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1cf3\",\"content\":\"$1cf4\"}\n1cf6:{}\n1cf9:[]\n1cfa:{}\n1cf8:{\"nodeType\":\"text\",\"value\":\"Finding hope through research \",\"marks\":\"$1cf9\",\"data\":\"$1cfa\"}\n1cf7:[\"$1cf8\"]\n1cf5:{\"nodeType\":\"heading-2\",\"data\":\"$1cf6\",\"content\":\"$1cf7\"}\n1cfc:{}\n1cff:[]\n1d00:{}\n1cfe:{\"nodeType\":\"text\",\"value\":\"KKâs care team encouraged her as she went through two intensive months of chemotherapy and experienced significant complications, including a brain bleed as a side effect of her treatment that required her to undergo neurosurgery. \",\"marks\":\"$1cff\",\"data\":\"$1d00\"}\n1cfd:[\"$1cfe\"]\n1cfb:{\"nodeType\":\"paragraph\",\"data\":\"$1cfc\",\"content\":\"$1cfd\"}\n1d02:{}\n1d05:[]\n1d06:{}\n1d04:{\"nodeType\":\"text\",\"value\":\"Her care team often joked around with KK to help take her mind off what she was going through and keep her in high spirits. She fondly recalls one physical therapist who would coax her out of bed during her toughest days by offering to play board or video games together. \",\"marks\":\"$1d05\",\"data\":\"$1d06\"}\n1d03:[\"$1d04\"]\n1d01:{\"nodeType\":\"paragraph\",\"data\":\"$1d02\",\"content\":\"$1d03\"}\n1d08:{}\n1d0b:[]\n1d0c:{}\n1d0a:{\"nodeType\":\"text\",\"value\":\"âThey were fun, even though I pretended they werenât,â KK said with a mischievous smile. \",\"marks\":\"$1d0b\",\"data\":\"$1d0c\"}\n1d09:[\"$1d0a\"]\n1d07:{\"nodeType\":\"paragraph\",\"data\":\"$1d08\",\"content\":\"$1d09\"}\n1d0e:{}\n1d11:[]\n1d12:{}\n1d10:{\"nodeType\":\"text\",\"value\":\"But her leukemia barely responded to the treatment, even after receiving more chemotherapy. \",\"marks\":\"$1d11\",\"data\":\"$1d12\"}\n1d0f:[\"$1d10\"]\n1d0d:{\"nodeType\":\"p"])</script>
1<script>self.__next_f.push([1,"aragraph\",\"data\":\"$1d0e\",\"content\":\"$1d0f\"}\n1d14:{}\n1d17:[]\n1d18:{}\n1d16:{\"nodeType\":\"text\",\"value\":\"Thatâs when her physicians recommended KK for a clinical trial that allowed her to access a new investigational medication developed by Dr. Voitâs colleagues specifically to get rid of AML cancer cells. \",\"marks\":\"$1d17\",\"data\":\"$1d18\"}\n1d15:[\"$1d16\"]\n1d13:{\"nodeType\":\"paragraph\",\"data\":\"$1d14\",\"content\":\"$1d15\"}\n1d1a:{}\n1d1d:[]\n1d1e:{}\n1d1c:{\"nodeType\":\"text\",\"value\":\"After two months of the new medication, along with more rounds of chemotherapy, KK was finally able to receive a successful bone marrow transplant, which helped stop the body from producing cancerous cells. \",\"marks\":\"$1d1d\",\"data\":\"$1d1e\"}\n1d1b:[\"$1d1c\"]\n1d19:{\"nodeType\":\"paragraph\",\"data\":\"$1d1a\",\"content\":\"$1d1b\"}\n1d20:{}\n1d21:[]\n1d1f:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1d20\",\"content\":\"$1d21\"}\n1d23:{}\n1d26:[]\n1d27:{}\n1d25:{\"nodeType\":\"text\",\"value\":\"Looking forward to the future \",\"marks\":\"$1d26\",\"data\":\"$1d27\"}\n1d24:[\"$1d25\"]\n1d22:{\"nodeType\":\"heading-2\",\"data\":\"$1d23\",\"content\":\"$1d24\"}\n1d29:{}\n1d2c:[]\n1d2d:{}\n1d2b:{\"nodeType\":\"text\",\"value\":\"Itâs now been months since KKâs bone marrow transplant â and there have been no signs of relapse. \",\"marks\":\"$1d2c\",\"data\":\"$1d2d\"}\n1d2a:[\"$1d2b\"]\n1d28:{\"nodeType\":\"paragraph\",\"data\":\"$1d29\",\"content\":\"$1d2a\"}\n1d2f:{}\n1d32:[]\n1d33:{}\n1d31:{\"nodeType\":\"text\",\"value\":\"âIâm feeling better. Iâm feeling a lot stronger,â KK said. âIâm completely cancer free. I defeated cancer. My body is free from it.â \",\"marks\":\"$1d32\",\"data\":\"$1d33\"}\n1d30:[\"$1d31\"]\n1d2e:{\"nodeType\":\"paragraph\",\"data\":\"$1d2f\",\"content\":\"$1d30\"}\n1d35:{}\n1d38:[]\n1d39:{}\n1d37:{\"nodeType\":\"text\",\"value\":\"Incredible stories at Childrenâs Health, like KKâs own, are fueled by philanthropic funds, which are hard at work behind the scenes. Whether powering our people and programs, both inside the hospital and within our communities, or furthering our ability to make breakthroughs happen, these extraordinary stories w"])</script>
1<script>self.__next_f.push([1,"ould not be possible without generous support from our donors. \",\"marks\":\"$1d38\",\"data\":\"$1d39\"}\n1d36:[\"$1d37\"]\n1d34:{\"nodeType\":\"paragraph\",\"data\":\"$1d35\",\"content\":\"$1d36\"}\n1d3b:{}\n1d3e:[]\n1d3f:{}\n1d3d:{\"nodeType\":\"text\",\"value\":\"Committed to caring for the youngest members of our community, Childrenâs Health is investing in the way it makes life better for the kids â and teenagers â of North Texas for generations to come. \",\"marks\":\"$1d3e\",\"data\":\"$1d3f\"}\n1d3c:[\"$1d3d\"]\n1d3a:{\"nodeType\":\"paragraph\",\"data\":\"$1d3b\",\"content\":\"$1d3c\"}\n1d41:{}\n1d44:[]\n1d45:{}\n1d43:{\"nodeType\":\"text\",\"value\":\"In partnership with UT Southwestern Medical Center, Childrenâs Health is building a new Dallas pediatric campus that will further our ability to pioneer innovative, academic research and lifesaving technology and treatments to care for the regionâs, and the nationâs, most complex pediatric patients. \",\"marks\":\"$1d44\",\"data\":\"$1d45\"}\n1d42:[\"$1d43\"]\n1d40:{\"nodeType\":\"paragraph\",\"data\":\"$1d41\",\"content\":\"$1d42\"}\n1d47:{}\n1d4a:[]\n1d4b:{}\n1d49:{\"nodeType\":\"text\",\"value\":\"KK is sure seeing the community come together for children and teenagers like her, helping give âmore kids a reason to keep fighting,â she said. \",\"marks\":\"$1d4a\",\"data\":\"$1d4b\"}\n1d48:[\"$1d49\"]\n1d46:{\"nodeType\":\"paragraph\",\"data\":\"$1d47\",\"content\":\"$1d48\"}\n1d4d:{}\n1d50:[]\n1d51:{}\n1d4f:{\"nodeType\":\"text\",\"value\":\"Now 17 years old, KK is looking forward to graduating high school and potentially joining the U.S. Navy. \",\"marks\":\"$1d50\",\"data\":\"$1d51\"}\n1d4e:[\"$1d4f\"]\n1d4c:{\"nodeType\":\"paragraph\",\"data\":\"$1d4d\",\"content\":\"$1d4e\"}\n1d53:{}\n1d56:[]\n1d57:{}\n1d55:{\"nodeType\":\"text\",\"value\":\"âShe wants to travel the world,â her mom, IlaSheika, said. \",\"marks\":\"$1d56\",\"data\":\"$1d57\"}\n1d54:[\"$1d55\"]\n1d52:{\"nodeType\":\"paragraph\",\"data\":\"$1d53\",\"content\":\"$1d54\"}\n1d59:{}\n1d5c:[]\n1d5d:{}\n1d5b:{\"nodeType\":\"text\",\"value\":\"Although she still visits Childrenâs Health to check in with her care team every month, sheâs happy to be in remission. \",\"marks\":\"$1d5c\",\"d"])</script>
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1<script>self.__next_f.push([1,"}\n1e2f:{}\n1e32:{}\n1e35:[]\n1e36:{}\n1e34:{\"nodeType\":\"text\",\"value\":\"Many kids get ideas of what they want to be âwhen they grow upâ from their parents, school or online. Basketball star. Teacher. YouTuber. Others, like 10-year-old Jace, are inspired by their own journeys. \",\"marks\":\"$1e35\",\"data\":\"$1e36\"}\n1e33:[\"$1e34\"]\n1e31:{\"nodeType\":\"paragraph\",\"data\":\"$1e32\",\"content\":\"$1e33\"}\n1e38:{}\n1e3b:[]\n1e3c:{}\n1e3a:{\"nodeType\":\"text\",\"value\":\"âI want to be a child life specialist to help kids going through medical procedures like Iâve had to go through and give them ways to feel better about their experiences in the hospital,â Jace said. \",\"marks\":\"$1e3b\",\"data\":\"$1e3c\"}\n1e39:[\"$1e3a\"]\n1e37:{\"nodeType\":\"paragraph\",\"data\":\"$1e38\",\"content\":\"$1e39\"}\n1e3e:{}\n1e41:[]\n1e42:{}\n1e40:{\"nodeType\":\"text\",\"value\":\"At Childrenâs Healthâ , Child Life specialists help patient families experiencing the unthinkable. They provide patients with therapeutic play opportunities, help them and their families understand complicated procedures and, mostly, help get them back to being kids again. The program comes at no cost to families, relying instead on the generous support of donors. \",\"marks\":\"$1e41\",\"data\":\"$1e42\"}\n1e3f:[\"$1e40\"]\n1e3d:{\"nodeType\":\"paragraph\",\"data\":\"$1e3e\",\"content\":\"$1e3f\"}\n1e44:{}\n1e47:[]\n1e48:{}\n1e46:{\"nodeType\":\"text\",\"value\":\"When Jace talks about this dream, he recalls one of the \",\"marks\":\"$1e47\",\"data\":\"$1e48\"}\n1e4a:{\"uri\":\"https://www.childrens.com/patient-families/resources-for-your-child/child-life/child-life-specialists\"}\n1e4e:{\"type\":\"underline\"}\n1e4d:[\"$1e4e\"]\n1e4f:{}\n1e4c:{\"nodeType\":\"text\",\"value\":\"Child Life specialists\",\"marks\":\"$1e4d\",\"data\":\"$1e4f\"}\n1e4b:[\"$1e4c\"]\n1e49:{\"nodeType\":\"hyperlink\",\"data\":\"$1e4a\",\"content\":\"$1e4b\"}\n1e51:[]\n1e52:{}\n1e50:{\"nodeType\":\"text\",\"value\":\" at Childrenâs Health who made a dinosaur bear out of an NG tube so he âwouldnât feel so alone.â Jace needed his own NG tube (a flexible tube that goes through the nose, down the throat and into the stomach to"])</script>
1<script>self.__next_f.push([1," clean out his bowel) when he was hospitalized in 2023 for chronic constipation related to his condition. \",\"marks\":\"$1e51\",\"data\":\"$1e52\"}\n1e45:[\"$1e46\",\"$1e49\",\"$1e50\"]\n1e43:{\"nodeType\":\"paragraph\",\"data\":\"$1e44\",\"content\":\"$1e45\"}\n1e54:{}\n1e57:[]\n1e58:{}\n1e56:{\"nodeType\":\"text\",\"value\":\"His mom, Angelina, is thrilled by his career choice. She and Jace have experienced hospitals that \",\"marks\":\"$1e57\",\"data\":\"$1e58\"}\n1e5b:{\"type\":\"italic\"}\n1e5a:[\"$1e5b\"]\n1e5c:{}\n1e59:{\"nodeType\":\"text\",\"value\":\"donât\",\"marks\":\"$1e5a\",\"data\":\"$1e5c\"}\n1e5e:[]\n1e5f:{}\n1e5d:{\"nodeType\":\"text\",\"value\":\" have Child Life programs or other supportive services, like pet therapy. \",\"marks\":\"$1e5e\",\"data\":\"$1e5f\"}\n1e55:[\"$1e56\",\"$1e59\",\"$1e5d\"]\n1e53:{\"nodeType\":\"paragraph\",\"data\":\"$1e54\",\"content\":\"$1e55\"}\n1e61:{}\n1e62:[]\n1e60:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1e61\",\"content\":\"$1e62\"}\n1e64:{}\n1e67:[]\n1e68:{}\n1e66:{\"nodeType\":\"text\",\"value\":\"As Angelina processed out loud, she and Jace dreamed up a new idea. \",\"marks\":\"$1e67\",\"data\":\"$1e68\"}\n1e65:[\"$1e66\"]\n1e63:{\"nodeType\":\"paragraph\",\"data\":\"$1e64\",\"content\":\"$1e65\"}\n1e6a:{}\n1e6d:[]\n1e6e:{}\n1e6c:{\"nodeType\":\"text\",\"value\":\"âWe could bring the healing powers of Child Life into adult hospitals and call it 'Adult Life,â Jace said. \",\"marks\":\"$1e6d\",\"data\":\"$1e6e\"}\n1e6b:[\"$1e6c\"]\n1e69:{\"nodeType\":\"paragraph\",\"data\":\"$1e6a\",\"content\":\"$1e6b\"}\n1e70:{}\n1e73:[]\n1e74:{}\n1e72:{\"nodeType\":\"text\",\"value\":\"Focusing on brighter moments \",\"marks\":\"$1e73\",\"data\":\"$1e74\"}\n1e71:[\"$1e72\"]\n1e6f:{\"nodeType\":\"heading-2\",\"data\":\"$1e70\",\"content\":\"$1e71\"}\n1e76:{}\n1e79:[]\n1e7a:{}\n1e78:{\"nodeType\":\"text\",\"value\":\"Children who experience longer stays at Childrenâs Health often dream of becoming child life specialists. Their aspirations serve as a testament to how moments of delight and comfort can help the youngest patients cope with difficult experiences during hospitalization. Jace has had over a dozen multi-day hospital stays at Childrenâs Health since he was born with two rare congenital con"])</script>
1<script>self.__next_f.push([1,"ditions:\",\"marks\":\"$1e79\",\"data\":\"$1e7a\"}\n1e77:[\"$1e78\"]\n1e75:{\"nodeType\":\"paragraph\",\"data\":\"$1e76\",\"content\":\"$1e77\"}\n1e7c:{}\n1e7f:{}\n1e82:{}\n1e86:{\"type\":\"bold\"}\n1e85:[\"$1e86\"]\n1e87:{}\n1e84:{\"nodeType\":\"text\",\"value\":\"Right coronal synostosis\",\"marks\":\"$1e85\",\"data\":\"$1e87\"}\n1e89:[]\n1e8a:{}\n1e88:{\"nodeType\":\"text\",\"value\":\", a condition where one of the flexible joints between a babyâs skull bones closes too early. \",\"marks\":\"$1e89\",\"data\":\"$1e8a\"}\n1e83:[\"$1e84\",\"$1e88\"]\n1e81:{\"nodeType\":\"paragraph\",\"data\":\"$1e82\",\"content\":\"$1e83\"}\n1e80:[\"$1e81\"]\n1e7e:{\"nodeType\":\"list-item\",\"data\":\"$1e7f\",\"content\":\"$1e80\"}\n1e8c:{}\n1e8f:{}\n1e93:{\"type\":\"bold\"}\n1e92:[\"$1e93\"]\n1e94:{}\n1e91:{\"nodeType\":\"text\",\"value\":\"Sacral agenesis\",\"marks\":\"$1e92\",\"data\":\"$1e94\"}\n1e96:[]\n1e97:{}\n1e95:{\"nodeType\":\"text\",\"value\":\", a neurological condition similar to \",\"marks\":\"$1e96\",\"data\":\"$1e97\"}\n1e99:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/spina-bifida\"}\n1e9d:{\"type\":\"underline\"}\n1e9c:[\"$1e9d\"]\n1e9e:{}\n1e9b:{\"nodeType\":\"text\",\"value\":\"spina bifida\",\"marks\":\"$1e9c\",\"data\":\"$1e9e\"}\n1e9a:[\"$1e9b\"]\n1e98:{\"nodeType\":\"hyperlink\",\"data\":\"$1e99\",\"content\":\"$1e9a\"}\n1ea0:[]\n1ea1:{}\n1e9f:{\"nodeType\":\"text\",\"value\":\" where a child is born without some or all of the lower part of their spine (sacrum). \",\"marks\":\"$1ea0\",\"data\":\"$1ea1\"}\n1e90:[\"$1e91\",\"$1e95\",\"$1e98\",\"$1e9f\"]\n1e8e:{\"nodeType\":\"paragraph\",\"data\":\"$1e8f\",\"content\":\"$1e90\"}\n1e8d:[\"$1e8e\"]\n1e8b:{\"nodeType\":\"list-item\",\"data\":\"$1e8c\",\"content\":\"$1e8d\"}\n1e7d:[\"$1e7e\",\"$1e8b\"]\n1e7b:{\"nodeType\":\"ordered-list\",\"data\":\"$1e7c\",\"content\":\"$1e7d\"}\n1ea3:{}\n1ea6:[]\n1ea7:{}\n1ea5:{\"nodeType\":\"text\",\"value\":\"At 10 months old, Childrenâs Health pediatric surgeons performed an operation to open up Jaceâs skull so his brain could grow and develop normally. Prior to his surgery, Jace had to wear a special helmet for four months to help correct some of his skullâs deformity and make his surgery less intrusive. After the surgery, Jace was left with a zigzag scar on his head th"])</script>
1<script>self.__next_f.push([1,"at prompts some kids to ask, âWhere did you get that cool haircut?â\",\"marks\":\"$1ea6\",\"data\":\"$1ea7\"}\n1ea4:[\"$1ea5\"]\n1ea2:{\"nodeType\":\"paragraph\",\"data\":\"$1ea3\",\"content\":\"$1ea4\"}\n1ea9:{}\n1eac:[]\n1ead:{}\n1eab:{\"nodeType\":\"text\",\"value\":\"âWe still have Jaceâs cranial helmet in our living room. It has a Dallas Cowboys wrapper on it, which just goes to show how the staff made the experience of having a tiny baby who needs skull surgery a little easier and a little lighter,â Josh, Jaceâs dad, said.  \\n \\nJaceâs diagnosis of sacral agenesis came a little later, when Jace was 1 year old. \",\"marks\":\"$1eac\",\"data\":\"$1ead\"}\n1eaa:[\"$1eab\"]\n1ea8:{\"nodeType\":\"paragraph\",\"data\":\"$1ea9\",\"content\":\"$1eaa\"}\n1eaf:{}\n1eb2:[]\n1eb3:{}\n1eb1:{\"nodeType\":\"text\",\"value\":\"One day, Jace suddenly started shaking his head back and forth. As a precaution, a neurologist ordered a full body MRI to make sure it was strictly behavioral. Heâd also been struggling with chronic constipation and not wanting to eat. \",\"marks\":\"$1eb2\",\"data\":\"$1eb3\"}\n1eb0:[\"$1eb1\"]\n1eae:{\"nodeType\":\"paragraph\",\"data\":\"$1eaf\",\"content\":\"$1eb0\"}\n1eb5:{}\n1eb8:[]\n1eb9:{}\n1eb7:{\"nodeType\":\"text\",\"value\":\"On Christmas Eve, the neurologist called Jaceâs parents to confirm that the imaging showed no issues with Jaceâs skull. Instead, physicians had found that he was missing his sacrum, a part of the spine, and diagnosed him with sacral agenesis.\",\"marks\":\"$1eb8\",\"data\":\"$1eb9\"}\n1eb6:[\"$1eb7\"]\n1eb4:{\"nodeType\":\"paragraph\",\"data\":\"$1eb5\",\"content\":\"$1eb6\"}\n1ebb:{}\n1ebe:[]\n1ebf:{}\n1ebd:{\"nodeType\":\"text\",\"value\":\"Missing a sacrum means Jace has both a neurogenic bowel and neurogenic bladder â the medical terms for when the nerves in the bladder and bowel donât function properly. To urinate, Jace has to use a catheter every three hours. And to relieve his bowels, he must take several medications and use cone enemas daily. \",\"marks\":\"$1ebe\",\"data\":\"$1ebf\"}\n1ebc:[\"$1ebd\"]\n1eba:{\"nodeType\":\"paragraph\",\"data\":\"$1ebb\",\"content\":\"$1ebc\"}\n1ec1:{}\n1ec4:[]\n1ec5:{"])</script>
1<script>self.__next_f.push([1,"}\n1ec3:{\"nodeType\":\"text\",\"value\":\"The power in understanding â and feeling understood \",\"marks\":\"$1ec4\",\"data\":\"$1ec5\"}\n1ec2:[\"$1ec3\"]\n1ec0:{\"nodeType\":\"heading-2\",\"data\":\"$1ec1\",\"content\":\"$1ec2\"}\n1ec7:{}\n1eca:[]\n1ecb:{}\n1ec9:{\"nodeType\":\"text\",\"value\":\"When chatty Jace describes what he has to do to connect his catheter or how his cone enema works, he uses all the proper medical terminology, sounding like a physician-in-training. \",\"marks\":\"$1eca\",\"data\":\"$1ecb\"}\n1ec8:[\"$1ec9\"]\n1ec6:{\"nodeType\":\"paragraph\",\"data\":\"$1ec7\",\"content\":\"$1ec8\"}\n1ecd:{}\n1ed0:[]\n1ed1:{}\n1ecf:{\"nodeType\":\"text\",\"value\":\"Jace, who experiences anxiety, feels like understanding what is happening in his body is the best way for him ânot to freak out and go insane,â he said. And heâs grateful his team has always taken the time to make sure he understands the whatâs and whyâs of every procedure or treatment. \",\"marks\":\"$1ed0\",\"data\":\"$1ed1\"}\n1ece:[\"$1ecf\"]\n1ecc:{\"nodeType\":\"paragraph\",\"data\":\"$1ecd\",\"content\":\"$1ece\"}\n1ed3:{}\n1ed6:[]\n1ed7:{}\n1ed5:{\"nodeType\":\"text\",\"value\":\"âEvery time I go to the hospital, they treat me as nicely as they can. They always tell me what they're doing. And they always do this 3-2-1 countdown â so Iâm as prepared and comfortable as possible,â Jace said. \",\"marks\":\"$1ed6\",\"data\":\"$1ed7\"}\n1ed4:[\"$1ed5\"]\n1ed2:{\"nodeType\":\"paragraph\",\"data\":\"$1ed3\",\"content\":\"$1ed4\"}\n1ed9:{}\n1edc:[]\n1edd:{}\n1edb:{\"nodeType\":\"text\",\"value\":\"His mom explains that when heâs had to go to the hospital because heâs too backed up, heâs often the one telling the nurse what breakdown of glycerin and saline to use in his IV. \",\"marks\":\"$1edc\",\"data\":\"$1edd\"}\n1eda:[\"$1edb\"]\n1ed8:{\"nodeType\":\"paragraph\",\"data\":\"$1ed9\",\"content\":\"$1eda\"}\n1edf:{}\n1ee2:[]\n1ee3:{}\n1ee1:{\"nodeType\":\"text\",\"value\":\"âHe really has learned so much about his own body and care,â Angelina said. \",\"marks\":\"$1ee2\",\"data\":\"$1ee3\"}\n1ee0:[\"$1ee1\"]\n1ede:{\"nodeType\":\"paragraph\",\"data\":\"$1edf\",\"content\":\"$1ee0\"}\n1ee5:{}\n1ee8:[]\n1ee9:{}\n1ee7:{\"nodeTy"])</script>
1<script>self.__next_f.push([1,"pe\":\"text\",\"value\":\"During several hospital stays, Jace recalls several visits from pet therapy. The program, which was launched by and continues to rely on philanthropic support, aims to provide some of the furry comforts of home at Childrenâs Health. \",\"marks\":\"$1ee8\",\"data\":\"$1ee9\"}\n1ee6:[\"$1ee7\"]\n1ee4:{\"nodeType\":\"paragraph\",\"data\":\"$1ee5\",\"content\":\"$1ee6\"}\n1eeb:{}\n1eee:[]\n1eef:{}\n1eed:{\"nodeType\":\"text\",\"value\":\"âI still have their trading cards in my bedroom,â Jace said. âI especially loved the dogs that hopped into bed with me.â \",\"marks\":\"$1eee\",\"data\":\"$1eef\"}\n1eec:[\"$1eed\"]\n1eea:{\"nodeType\":\"paragraph\",\"data\":\"$1eeb\",\"content\":\"$1eec\"}\n1ef1:{}\n1ef4:[]\n1ef5:{}\n1ef3:{\"nodeType\":\"text\",\"value\":\"Jace is remarkably straightforward about his condition and what helps him day-to-day and is passionate about sharing his story with others. \",\"marks\":\"$1ef4\",\"data\":\"$1ef5\"}\n1ef2:[\"$1ef3\"]\n1ef0:{\"nodeType\":\"paragraph\",\"data\":\"$1ef1\",\"content\":\"$1ef2\"}\n1ef7:{}\n1ef8:[]\n1ef6:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$1ef7\",\"content\":\"$1ef8\"}\n1efa:{}\n1efd:[]\n1efe:{}\n1efc:{\"nodeType\":\"text\",\"value\":\"In the summer of 2025, encouraged by his care team at Childrenâs Health, Jace attended Camp John Marc with dozens of kids sharing similar physical challenges. He describes camp as the place that taught him how to do a cone enema by himself and, more importantly, as âa place where you just feel like you belong.â \",\"marks\":\"$1efd\",\"data\":\"$1efe\"}\n1efb:[\"$1efc\"]\n1ef9:{\"nodeType\":\"paragraph\",\"data\":\"$1efa\",\"content\":\"$1efb\"}\n1f00:{}\n1f03:[]\n1f04:{}\n1f02:{\"nodeType\":\"text\",\"value\":\"Compassionate care that goes above and beyond \",\"marks\":\"$1f03\",\"data\":\"$1f04\"}\n1f01:[\"$1f02\"]\n1eff:{\"nodeType\":\"heading-2\",\"data\":\"$1f00\",\"content\":\"$1f01\"}\n1f06:{}\n1f09:[]\n1f0a:{}\n1f08:{\"nodeType\":\"text\",\"value\":\"When Jaceâs parents, Angelina and Josh, think about the care theyâve received from Childrenâs Health, they agree on one thing: The hospital is a place where everyone goes above and beyond â not just for Jace, but fo"])</script>
1<script>self.__next_f.push([1,"r their whole family. A few things that have stood out to them include: \",\"marks\":\"$1f09\",\"data\":\"$1f0a\"}\n1f07:[\"$1f08\"]\n1f05:{\"nodeType\":\"paragraph\",\"data\":\"$1f06\",\"content\":\"$1f07\"}\n1f0c:{}\n1f0f:{}\n1f12:{}\n1f16:{\"type\":\"bold\"}\n1f15:[\"$1f16\"]\n1f17:{}\n1f14:{\"nodeType\":\"text\",\"value\":\"How the team has been so good with Jace â and their other son. \",\"marks\":\"$1f15\",\"data\":\"$1f17\"}\n1f19:[]\n1f1a:{}\n1f18:{\"nodeType\":\"text\",\"value\":\"When theyâve been at the hospital with Jace and their other son, Anson, who has autism and Touretteâs, the care team helped keep Anson occupied. âThatâs not something weâve experienced at other hospitals,â Angelina said. \",\"marks\":\"$1f19\",\"data\":\"$1f1a\"}\n1f13:[\"$1f14\",\"$1f18\"]\n1f11:{\"nodeType\":\"paragraph\",\"data\":\"$1f12\",\"content\":\"$1f13\"}\n1f10:[\"$1f11\"]\n1f0e:{\"nodeType\":\"list-item\",\"data\":\"$1f0f\",\"content\":\"$1f10\"}\n1f1c:{}\n1f1f:{}\n1f23:{\"type\":\"bold\"}\n1f22:[\"$1f23\"]\n1f24:{}\n1f21:{\"nodeType\":\"text\",\"value\":\"How donors helped meet their basic needs.\",\"marks\":\"$1f22\",\"data\":\"$1f24\"}\n1f26:[]\n1f27:{}\n1f25:{\"nodeType\":\"text\",\"value\":\" The family has been so grateful for the Womenâs Auxiliary cart that comes by hospital rooms with snacks and toiletries. âTheyâve brought us a pillow or blanket when weâve needed it â even detergent to wash clothes so we didnât have to travel all the way home to do that,â Angelina said. âThose things have been especially helpful since we only have one vehicle in our family.â \",\"marks\":\"$1f26\",\"data\":\"$1f27\"}\n1f20:[\"$1f21\",\"$1f25\"]\n1f1e:{\"nodeType\":\"paragraph\",\"data\":\"$1f1f\",\"content\":\"$1f20\"}\n1f1d:[\"$1f1e\"]\n1f1b:{\"nodeType\":\"list-item\",\"data\":\"$1f1c\",\"content\":\"$1f1d\"}\n1f29:{}\n1f2c:{}\n1f30:{\"type\":\"bold\"}\n1f2f:[\"$1f30\"]\n1f31:{}\n1f2e:{\"nodeType\":\"text\",\"value\":\"How the quality of care is consistent across specialties. \",\"marks\":\"$1f2f\",\"data\":\"$1f31\"}\n1f33:[]\n1f34:{}\n1f32:{\"nodeType\":\"text\",\"value\":\"âWhether weâve met with Dr. Alexander Llanos, the motility specialist, or the GI psychologist or nutritionist, or our urologist, Dr. Mi"])</script>
1<script>self.__next_f.push([1,"cah Jacobs, or our gastroenterologist, Dr. Christopher Jolley, weâve always received the same level of quality care,â Josh said. \",\"marks\":\"$1f33\",\"data\":\"$1f34\"}\n1f2d:[\"$1f2e\",\"$1f32\"]\n1f2b:{\"nodeType\":\"paragraph\",\"data\":\"$1f2c\",\"content\":\"$1f2d\"}\n1f2a:[\"$1f2b\"]\n1f28:{\"nodeType\":\"list-item\",\"data\":\"$1f29\",\"content\":\"$1f2a\"}\n1f36:{}\n1f39:{}\n1f3d:{\"type\":\"bold\"}\n1f3c:[\"$1f3d\"]\n1f3e:{}\n1f3b:{\"nodeType\":\"text\",\"value\":\"How the doctors are thoughtful. \",\"marks\":\"$1f3c\",\"data\":\"$1f3e\"}\n1f40:[]\n1f41:{}\n1f3f:{\"nodeType\":\"text\",\"value\":\"âI remember one time Jace was in the hospital. It was a Saturday morning, and Dr. Jolly came by to check on him. And he didnât just check on him, he also brought him a snake toy â because he knows Jace loves snakes,â Josh said. \",\"marks\":\"$1f40\",\"data\":\"$1f41\"}\n1f3a:[\"$1f3b\",\"$1f3f\"]\n1f38:{\"nodeType\":\"paragraph\",\"data\":\"$1f39\",\"content\":\"$1f3a\"}\n1f37:[\"$1f38\"]\n1f35:{\"nodeType\":\"list-item\",\"data\":\"$1f36\",\"content\":\"$1f37\"}\n1f0d:[\"$1f0e\",\"$1f1b\",\"$1f28\",\"$1f35\"]\n1f0b:{\"nodeType\":\"unordered-list\",\"data\":\"$1f0c\",\"content\":\"$1f0d\"}\n1f43:{}\n1f46:[]\n1f47:{}\n1f45:{\"nodeType\":\"text\",\"value\":\"And most importantly, how donors show up in big and small ways from million-dollar gifts to lemonade stands to make the impossible possible for kids like Jace. âYour donations mean a whole lot to kids like me and to all kids in the hospital. It helps them get all the care they need to heal,â Jace said. \",\"marks\":\"$1f46\",\"data\":\"$1f47\"}\n1f44:[\"$1f45\"]\n1f42:{\"nodeType\":\"paragraph\",\"data\":\"$1f43\",\"content\":\"$1f44\"}\n1e30:[\"$1e31\",\"$1e37\",\"$1e3d\",\"$1e43\",\"$1e53\",\"$1e60\",\"$1e63\",\"$1e69\",\"$1e6f\",\"$1e75\",\"$1e7b\",\"$1ea2\",\"$1ea8\",\"$1eae\",\"$1eb4\",\"$1eba\",\"$1ec0\",\"$1ec6\",\"$1ecc\",\"$1ed2\",\"$1ed8\",\"$1ede\",\"$1ee4\",\"$1eea\",\"$1ef0\",\"$1ef6\",\"$1ef9\",\"$1eff\",\"$1f05\",\"$1f0b\",\"$1f42\"]\n1e2e:{\"nodeType\":\"document\",\"data\":\"$1e2f\",\"content\":\"$1e30\"}\n1e2d:{\"adminTitle\":\"Main Content: 2026 PA - Jace | Meet Jace\",\"headingLevel\":\"h2\",\"body\":\"$1e2e\",\"contentAccordion\":\"Disabled\"}\n1e22:{\"metadata\":\"$1e23\",\"sys\":\"$1e26\",\"field"])</script>
1<script>self.__next_f.push([1,"s\":\"$1e2d\"}\n1f4a:[]\n1f4b:[]\n1f49:{\"tags\":\"$1f4a\",\"concepts\":\"$1f4b\"}\n1f4e:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n1f4d:{\"sys\":\"$1f4e\"}\n1f50:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n1f4f:{\"sys\":\"$1f50\"}\n1f52:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n1f51:{\"sys\":\"$1f52\"}\n1f4c:{\"space\":\"$1f4d\",\"id\":\"D8coRKb0pZRooCOvi5dE4\",\"type\":\"Entry\",\"createdAt\":\"2025-12-15T18:05:17.043Z\",\"updatedAt\":\"2025-12-15T18:05:17.043Z\",\"environment\":\"$1f4f\",\"publishedVersion\":5,\"revision\":1,\"contentType\":\"$1f51\",\"locale\":\"en-US\"}\n1f55:{}\n1f58:{}\n1f5b:[]\n1f5c:{}\n1f5a:{\"nodeType\":\"text\",\"value\":\"Meet more Children's Health patients \",\"marks\":\"$1f5b\",\"data\":\"$1f5c\"}\n1f59:[\"$1f5a\"]\n1f57:{\"nodeType\":\"heading-2\",\"data\":\"$1f58\",\"content\":\"$1f59\"}\n1f5e:{}\n1f61:[]\n1f62:{}\n1f60:{\"nodeType\":\"text\",\"value\":\"Read more \",\"marks\":\"$1f61\",\"data\":\"$1f62\"}\n1f64:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n1f68:{\"type\":\"bold\"}\n1f67:[\"$1f68\"]\n1f69:{}\n1f66:{\"nodeType\":\"text\",\"value\":\"patient stories\",\"marks\":\"$1f67\",\"data\":\"$1f69\"}\n1f65:[\"$1f66\"]\n1f63:{\"nodeType\":\"hyperlink\",\"data\":\"$1f64\",\"content\":\"$1f65\"}\n1f6b:[]\n1f6c:{}\n1f6a:{\"nodeType\":\"text\",\"value\":\" like Jace's and meet our \",\"marks\":\"$1f6b\",\"data\":\"$1f6c\"}\n1f6e:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n1f72:{\"type\":\"bold\"}\n1f71:[\"$1f72\"]\n1f73:{}\n1f70:{\"nodeType\":\"text\",\"value\":\"Patient Ambassadors\",\"marks\":\"$1f71\",\"data\":\"$1f73\"}\n1f6f:[\"$1f70\"]\n1f6d:{\"nodeType\":\"hyperlink\",\"data\":\"$1f6e\",\"content\":\"$1f6f\"}\n1f75:[]\n1f76:{}\n1f74:{\"nodeType\":\"text\",\"value\":\" to learn how Children's Health makes life better for children. \",\"marks\":\"$1f75\",\"data\":\"$1f76\"}\n1f5f:[\"$1f60\",\"$1f63\",\"$1f6a\",\"$1f6d\",\"$1f74\"]\n1f5d:{\"nodeType\":\"paragraph\",\"data\":\"$1f5e\",\"content\":\"$1f5f\"}\n1f78:{}\n1f7b:[]\n1f7c:{}\n1f7a:{\"nodeType\":\"text\",\"value\":\"How you can help \",\"marks\":\"$1f7b\",\"data\":\"$1f7c\"}\n1f79:[\"$1f7a\"]\n1f77:{\"nodeType\":\"heading-2\",\"data\":\"$1f78\",\"content\":\"$1f79\"}\n1f7e:{}\n1f81:[]\n1f82:{}\n1f80:{\"nodeType\":\"text\",\"value\":\"Help kids like Jace"])</script>
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1<script>self.__next_f.push([1,"{}\n2076:[]\n2077:{}\n2075:{\"nodeType\":\"text\",\"value\":\"She would read and play with him, making sure to do all she could so he felt supported. Eventually, she even gifted him a teddy bear with Heidiâs heartbeat. \",\"marks\":\"$2076\",\"data\":\"$2077\"}\n2074:[\"$2075\"]\n2072:{\"nodeType\":\"paragraph\",\"data\":\"$2073\",\"content\":\"$2074\"}\n2079:{}\n207c:[]\n207d:{}\n207b:{\"nodeType\":\"text\",\"value\":\"Some of their nurses would also speak to Heidi while she was in a coma, just as if she was awake. \",\"marks\":\"$207c\",\"data\":\"$207d\"}\n207a:[\"$207b\"]\n2078:{\"nodeType\":\"paragraph\",\"data\":\"$2079\",\"content\":\"$207a\"}\n207f:{}\n2082:[]\n2083:{}\n2081:{\"nodeType\":\"text\",\"value\":\"âShe would say, âOK, Heidi, Iâm gonna move your arm. Iâm gonna give you this medicine,ââ Joanie said with a smile. âIt was just so comforting. Those people became family.â \",\"marks\":\"$2082\",\"data\":\"$2083\"}\n2080:[\"$2081\"]\n207e:{\"nodeType\":\"paragraph\",\"data\":\"$207f\",\"content\":\"$2080\"}\n2085:{}\n2088:[]\n2089:{}\n2087:{\"nodeType\":\"text\",\"value\":\"Heidi and her familyâs experience at Childrenâs Health, shaped greatly by the care team members they met, made them confident that they were at the right place to help them go through the impossible. \",\"marks\":\"$2088\",\"data\":\"$2089\"}\n2086:[\"$2087\"]\n2084:{\"nodeType\":\"paragraph\",\"data\":\"$2085\",\"content\":\"$2086\"}\n208b:{}\n208e:[]\n208f:{}\n208d:{\"nodeType\":\"text\",\"value\":\"âIt definitely made our life so much easier, knowing that we had the support we got,â Joanie said. \",\"marks\":\"$208e\",\"data\":\"$208f\"}\n208c:[\"$208d\"]\n208a:{\"nodeType\":\"paragraph\",\"data\":\"$208b\",\"content\":\"$208c\"}\n2091:{}\n2094:[]\n2095:{}\n2093:{\"nodeType\":\"text\",\"value\":\"Waking up and starting rehabilitation \",\"marks\":\"$2094\",\"data\":\"$2095\"}\n2092:[\"$2093\"]\n2090:{\"nodeType\":\"heading-2\",\"data\":\"$2091\",\"content\":\"$2092\"}\n2097:{}\n209a:[]\n209b:{}\n2099:{\"nodeType\":\"text\",\"value\":\"Heidiâs medically induced coma lasted nearly two weeks. \",\"marks\":\"$209a\",\"data\":\"$209b\"}\n2098:[\"$2099\"]\n2096:{\"nodeType\":\"paragraph\",\"data\":\"$2097\",\"content\":\"$2098\"}\n209d:{}\n20a0:[]\n20a1:{"])</script>
1<script>self.__next_f.push([1,"}\n209f:{\"nodeType\":\"text\",\"value\":\"Throughout that time, poster boards and cards from her familyâs church community took over her hospital roomâs walls, filling it with encouraging words. \",\"marks\":\"$20a0\",\"data\":\"$20a1\"}\n209e:[\"$209f\"]\n209c:{\"nodeType\":\"paragraph\",\"data\":\"$209d\",\"content\":\"$209e\"}\n20a3:{}\n20a4:[]\n20a2:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$20a3\",\"content\":\"$20a4\"}\n20a6:{}\n20a9:[]\n20aa:{}\n20a8:{\"nodeType\":\"text\",\"value\":\"Then, a couple of weeks before her birthday, physicians woke Heidi up. She doesnât remember much of those initial moments, but her mom recalls seeing her shed a tear. \",\"marks\":\"$20a9\",\"data\":\"$20aa\"}\n20a7:[\"$20a8\"]\n20a5:{\"nodeType\":\"paragraph\",\"data\":\"$20a6\",\"content\":\"$20a7\"}\n20ac:{}\n20af:[]\n20b0:{}\n20ae:{\"nodeType\":\"text\",\"value\":\"âI just lost it,â Joanie said. âWe didnât know if weâd ever see a tear run down her face again.â \",\"marks\":\"$20af\",\"data\":\"$20b0\"}\n20ad:[\"$20ae\"]\n20ab:{\"nodeType\":\"paragraph\",\"data\":\"$20ac\",\"content\":\"$20ad\"}\n20b2:{}\n20b5:[]\n20b6:{}\n20b4:{\"nodeType\":\"text\",\"value\":\"Once she had an opportunity to recover, Heidi started physical therapy and rehabilitation. \",\"marks\":\"$20b5\",\"data\":\"$20b6\"}\n20b3:[\"$20b4\"]\n20b1:{\"nodeType\":\"paragraph\",\"data\":\"$20b2\",\"content\":\"$20b3\"}\n20b8:{}\n20bb:[]\n20bc:{}\n20ba:{\"nodeType\":\"text\",\"value\":\"At first, she struggled to speak, stand, swallow and move. Her occupational and physical therapists worked with her to strengthen the skills that would get her back to being more independent. \",\"marks\":\"$20bb\",\"data\":\"$20bc\"}\n20b9:[\"$20ba\"]\n20b7:{\"nodeType\":\"paragraph\",\"data\":\"$20b8\",\"content\":\"$20b9\"}\n20be:{}\n20c1:[]\n20c2:{}\n20c0:{\"nodeType\":\"text\",\"value\":\"One of her parentsâ favorite memories was when the therapist helped Heidi hold her arms up to hug them. \",\"marks\":\"$20c1\",\"data\":\"$20c2\"}\n20bf:[\"$20c0\"]\n20bd:{\"nodeType\":\"paragraph\",\"data\":\"$20be\",\"content\":\"$20bf\"}\n20c4:{}\n20c7:[]\n20c8:{}\n20c6:{\"nodeType\":\"text\",\"value\":\"âThat was just a whole other experience of greatness,â Joanie said. âThe thera"])</script>
1<script>self.__next_f.push([1,"pists were so sweet.â \",\"marks\":\"$20c7\",\"data\":\"$20c8\"}\n20c5:[\"$20c6\"]\n20c3:{\"nodeType\":\"paragraph\",\"data\":\"$20c4\",\"content\":\"$20c5\"}\n20ca:{}\n20cd:[]\n20ce:{}\n20cc:{\"nodeType\":\"text\",\"value\":\"Heidi was determined to get back to her normal, often insisting she could keep going when her therapists suggested taking a break. \",\"marks\":\"$20cd\",\"data\":\"$20ce\"}\n20cb:[\"$20cc\"]\n20c9:{\"nodeType\":\"paragraph\",\"data\":\"$20ca\",\"content\":\"$20cb\"}\n20d0:{}\n20d3:[]\n20d4:{}\n20d2:{\"nodeType\":\"text\",\"value\":\"Spending time with the Childrenâs Health Pet Therapy dogs helped motivate and distract her during the harder days â especially when she missed her own dog, Chewy. Music therapists would also make sure to drop by to sing with her. \",\"marks\":\"$20d3\",\"data\":\"$20d4\"}\n20d1:[\"$20d2\"]\n20cf:{\"nodeType\":\"paragraph\",\"data\":\"$20d0\",\"content\":\"$20d1\"}\n20d6:{}\n20d9:[]\n20da:{}\n20d8:{\"nodeType\":\"text\",\"value\":\"âThey would make every therapy session fun,â Heidi said. \",\"marks\":\"$20d9\",\"data\":\"$20da\"}\n20d7:[\"$20d8\"]\n20d5:{\"nodeType\":\"paragraph\",\"data\":\"$20d6\",\"content\":\"$20d7\"}\n20dc:{}\n20df:[]\n20e0:{}\n20de:{\"nodeType\":\"text\",\"value\":\"Programs like these are powered by donorsâ philanthropic funds, which work hard behind the scenes to create an incredible experience for patient families. \",\"marks\":\"$20df\",\"data\":\"$20e0\"}\n20dd:[\"$20de\"]\n20db:{\"nodeType\":\"paragraph\",\"data\":\"$20dc\",\"content\":\"$20dd\"}\n20e2:{}\n20e5:[]\n20e6:{}\n20e4:{\"nodeType\":\"text\",\"value\":\"âDonations are definitely life-changing,â her dad, Brett, said. âI donât know whether Childrenâs Health would be what itâs like without them.â \",\"marks\":\"$20e5\",\"data\":\"$20e6\"}\n20e3:[\"$20e4\"]\n20e1:{\"nodeType\":\"paragraph\",\"data\":\"$20e2\",\"content\":\"$20e3\"}\n20e8:{}\n20eb:[]\n20ec:{}\n20ea:{\"nodeType\":\"text\",\"value\":\"In an effort to continue to provide incredible care for the youngest patients of North Texas and beyond, Childrenâs Health is partnering with UT Southwestern Medical Center to build a new Dallas pediatric campus that will home one of the largest and most transformativ"])</script>
1<script>self.__next_f.push([1,"e pediatric hospitals in the nation. \",\"marks\":\"$20eb\",\"data\":\"$20ec\"}\n20e9:[\"$20ea\"]\n20e7:{\"nodeType\":\"paragraph\",\"data\":\"$20e8\",\"content\":\"$20e9\"}\n20ee:{}\n20f1:[]\n20f2:{}\n20f0:{\"nodeType\":\"text\",\"value\":\"The new campus will include a Level 1 pediatric trauma center with 90 emergency department exam pods and 24 observation rooms, strengthening our ability to care for the most complex pediatric patients, like Heidi. \",\"marks\":\"$20f1\",\"data\":\"$20f2\"}\n20ef:[\"$20f0\"]\n20ed:{\"nodeType\":\"paragraph\",\"data\":\"$20ee\",\"content\":\"$20ef\"}\n20f4:{}\n20f7:[]\n20f8:{}\n20f6:{\"nodeType\":\"text\",\"value\":\"âAn excellent endingâ \",\"marks\":\"$20f7\",\"data\":\"$20f8\"}\n20f5:[\"$20f6\"]\n20f3:{\"nodeType\":\"heading-2\",\"data\":\"$20f4\",\"content\":\"$20f5\"}\n20fa:{}\n20fd:[]\n20fe:{}\n20fc:{\"nodeType\":\"text\",\"value\":\"All in all, Heidi spent four weeks in rehab, where she learned how to walk, speak and swallow again. \",\"marks\":\"$20fd\",\"data\":\"$20fe\"}\n20fb:[\"$20fc\"]\n20f9:{\"nodeType\":\"paragraph\",\"data\":\"$20fa\",\"content\":\"$20fb\"}\n2100:{}\n2103:[]\n2104:{}\n2102:{\"nodeType\":\"text\",\"value\":\"Back at home, sheâs spending time with her family and beloved pup, Chewy, going to church, seeing her friends and playing outside. \",\"marks\":\"$2103\",\"data\":\"$2104\"}\n2101:[\"$2102\"]\n20ff:{\"nodeType\":\"paragraph\",\"data\":\"$2100\",\"content\":\"$2101\"}\n2106:{}\n2109:[]\n210a:{}\n2108:{\"nodeType\":\"text\",\"value\":\"âShe loves with her whole heart,â Joanie said. âEverybodyâs her friend. Sheâs outgoing, she loves life â and she wants to include everyone in it.â \",\"marks\":\"$2109\",\"data\":\"$210a\"}\n2107:[\"$2108\"]\n2105:{\"nodeType\":\"paragraph\",\"data\":\"$2106\",\"content\":\"$2107\"}\n210c:{}\n210f:[]\n2110:{}\n210e:{\"nodeType\":\"text\",\"value\":\"After overcoming some of the biggest challenges of her life, and with some more time on her hands, Heidi is also excited to daydream about her future and âlive a happy life,â she said. \",\"marks\":\"$210f\",\"data\":\"$2110\"}\n210d:[\"$210e\"]\n210b:{\"nodeType\":\"paragraph\",\"data\":\"$210c\",\"content\":\"$210d\"}\n2112:{}\n2115:[]\n2116:{}\n2114:{\"nodeType\":\"text\",\"value\":\"When"])</script>
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1<script>self.__next_f.push([1,"leaks into urine. This can lead to swelling, high blood pressure, poor growth and other serious health problems. Treatment involves making sure kids get proper nutrition and avoid dehydration and painful swelling. But the right combination of treatment can be hard to come by because the condition affects kids differently, and thereâs not a lot of information or research. \",\"marks\":\"$222d\",\"data\":\"$222e\"}\n222b:[\"$222c\"]\n2229:{\"nodeType\":\"paragraph\",\"data\":\"$222a\",\"content\":\"$222b\"}\n2230:{}\n2233:[]\n2234:{}\n2232:{\"nodeType\":\"text\",\"value\":\"Grayson's care team started him with medications designed to slow down his kidney function, but they werenât effective enough to prevent fluid overload. So, they switched to Albumin and Lasix infusions (types of diuretic), which gave Grayson more relief. And for most of his time at Childrenâs Health, Grayson has been under the care of Elizabeth J. Brown, M.D., Pediatric Nephrologist at Childrenâs Health and Assistant Professor at UT Southwestern Medical Center. \",\"marks\":\"$2233\",\"data\":\"$2234\"}\n2231:[\"$2232\"]\n222f:{\"nodeType\":\"paragraph\",\"data\":\"$2230\",\"content\":\"$2231\"}\n2236:{}\n2237:[]\n2235:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2236\",\"content\":\"$2237\"}\n2239:{}\n223c:[]\n223d:{}\n223b:{\"nodeType\":\"text\",\"value\":\"Nephrotic syndrome is complex enough that Grayson sees not just Dr. Brown, but also an endocrinologist, a hematologist and a urologist. In June of 2025, the urology team removed one of Graysonâs hyper-filtering kidneys, which helped âtremendously.â But ultimately, Grayson will need dial
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1<script>self.__next_f.push([1,"5-12-15T17:37:55.140Z\",\"updatedAt\":\"2025-12-15T17:37:55.140Z\",\"environment\":\"$235d\",\"publishedVersion\":14,\"revision\":1,\"contentType\":\"$235f\",\"locale\":\"en-US\"}\n2363:{}\n2366:{}\n2369:[]\n236a:{}\n2368:{\"nodeType\":\"text\",\"value\":\"Thai remembers waiting for her newborn, Franklin II â or little Frank, as she calls him â to gain the strength he needed to face heart surgery at Childrenâs Healthâ . She had been unable to pry herself away from his side, until a social worker stopped by their hospital room, sat beside her and asked when she'd last been outside. \",\"marks\":\"$2369\",\"data\":\"$236a\"}\n2367:[\"$2368\"]\n2365:{\"nodeType\":\"paragraph\",\"data\":\"$2366\",\"content\":\"$2367\"}\n236c:{}\n236f:[]\n2370:{}\n236e:{\"nodeType\":\"text\",\"value\":\"\\\"I hesitated. It had been more than two weeks,\\\" Thai said. \\\"But she encouraged me to step outside for fresh air and assured me Frank would be OK.\\\" \",\"marks\":\"$236f\",\"data\":\"$2370\"}\n236d:[\"$236e\"]\n236b:{\"nodeType\":\"paragraph\",\"data\":\"$236c\",\"content\":\"$236d\"}\n2372:{}\n2375:[]\n2376:{}\n2374:{\"nodeType\":\"text\",\"value\":\"At Childrenâs Health, the social work team is one of many groups who provide a critical resource and support system for patients to help make long hospital stays and the road to recovery more approachable and comfortable. \",\"marks\":\"$2375\",\"data\":\"$2376\"}\n2373:[\"$2374\"]\n2371:{\"nodeType\":\"paragraph\",\"data\":\"$2372\",\"content\":\"$2373\"}\n2378:{}\n237b:[]\n237c:{}\n237a:{\"nodeType\":\"text\",\"value\":\"\\\"Leaving Frank's bedside was so hard to do because he was so fragile,â Thai said. âBut it was so important. And my experience with him has taught me that you canât control everything. You have to put your trust in the experts.â \",\"marks\":\"$237b\",\"data\":\"$237c\"}\n2379:[\"$237a\"]\n2377:{\"nodeType\":\"paragraph\",\"data\":\"$2378\",\"content\":\"$2379\"}\n237e:{}\n2381:[]\n2382:{}\n2380:{\"nodeType\":\"text\",\"value\":\"Putting their trust in a team of experts \",\"marks\":\"$2381\",\"data\":\"$2382\"}\n237f:[\"$2380\"]\n237d:{\"nodeType\":\"heading-2\",\"data\":\"$237e\",\"content\":\"$237f\"}\n2384:{}\n2387:[]\n2388:{}\n2386:{\"nodeType\":\"tex"])</script>
1<script>self.__next_f.push([1,"t\",\"value\":\"Thai first met her care team at Childrenâs Health through the Fetal Heart Program when she was five months pregnant. Her OB-GYN had referred her after a concerning prenatal scan. \",\"marks\":\"$2387\",\"data\":\"$2388\"}\n2385:[\"$2386\"]\n2383:{\"nodeType\":\"paragraph\",\"data\":\"$2384\",\"content\":\"$2385\"}\n238a:{}\n238d:[]\n238e:{}\n238c:{\"nodeType\":\"text\",\"value\":\"Physicians diagnosed her baby with heterotaxy syndrome, which caused several heart defects: double-outlet right ventricle (DORV), complete atrioventricular septal defect and pulmonary stenosis. \",\"marks\":\"$238d\",\"data\":\"$238e\"}\n238b:[\"$238c\"]\n2389:{\"nodeType\":\"paragraph\",\"data\":\"$238a\",\"content\":\"$238b\"}\n2390:{}\n2393:[]\n2394:{}\n2392:{\"nodeType\":\"text\",\"value\":\"The team prepared Thai and her husband, big Franklin, for every possibility, including an immediate transfer or surgery after birth. \",\"marks\":\"$2393\",\"data\":\"$2394\"}\n2391:[\"$2392\"]\n238f:{\"nodeType\":\"paragraph\",\"data\":\"$2390\",\"content\":\"$2391\"}\n2396:{}\n2397:[]\n2395:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2396\",\"content\":\"$2397\"}\n2399:{}\n239c:[]\n239d:{}\n239b:{\"nodeType\":\"text\",\"value\":\"At birth, little Frank didnât need immediate medical support. Thai even got to hold him before he was taken to the NICU for monitoring. \",\"marks\":\"$239c\",\"data\":\"$239d\"}\n239a:[\"$239b\"]\n2398:{\"nodeType\":\"paragraph\",\"data\":\"$2399\",\"content\":\"$239a\"}\n239f:{}\n23a2:[]\n23a3:{}\n23a1:{\"nodeType\":\"text\",\"value\":\"Then, at 4 months old, during a visit to Childrenâs Medical Center Plano with Dr. Colin Kane, M.D., Pediatric Cardiologist and Professor at UT Southwestern Medical Center, Frankâs oxygen levels quickly began dropping. \",\"marks\":\"$23a2\",\"data\":\"$23a3\"}\n23a0:[\"$23a1\"]\n239e:{\"nodeType\":\"paragraph\",\"data\":\"$239f\",\"content\":\"$23a0\"}\n23a5:{}\n23a8:[]\n23a9:{}\n23a7:{\"nodeType\":\"text\",\"value\":\"Dr. Kane ordered a transfer to Dallas to stabilize him. When that wasnât possible, the care team performed an emergency surgery to help the heart pump blood to the lungs, where it gets oxygen. Soon after, he would need an additiona"])</script>
1<script>self.__next_f.push([1,"l heart surgery and an intestinal malrotation procedure. \",\"marks\":\"$23a8\",\"data\":\"$23a9\"}\n23a6:[\"$23a7\"]\n23a4:{\"nodeType\":\"paragraph\",\"data\":\"$23a5\",\"content\":\"$23a6\"}\n23ab:{}\n23ae:[]\n23af:{}\n23ad:{\"nodeType\":\"text\",\"value\":\"Thai is thankful for their care teamâs incredible expertise, but also for the team members at Childrenâs Health who kept Frank calm during blood draws and decorated his room for his birthday or helped him learn to eat, crawl and roll over. \",\"marks\":\"$23ae\",\"data\":\"$23af\"}\n23ac:[\"$23ad\"]\n23aa:{\"nodeType\":\"paragraph\",\"data\":\"$23ab\",\"content\":\"$23ac\"}\n23b1:{}\n23b4:[]\n23b5:{}\n23b3:{\"nodeType\":\"text\",\"value\":\"Rising to meet the regionâs growing need for complex pediatric care like fetal and neonatal heart surgery, Childrenâs Health is investing in how it cares for the next generation of kids like Frank. \",\"marks\":\"$23b4\",\"data\":\"$23b5\"}\n23b2:[\"$23b3\"]\n23b0:{\"nodeType\":\"paragraph\",\"data\":\"$23b1\",\"content\":\"$23b2\"}\n23b7:{}\n23ba:[]\n23bb:{}\n23b9:{\"nodeType\":\"text\",\"value\":\"Together with UT Southwestern Medical Center, and with the generous support of donors, Childrenâs Health is building a new Dallas pediatric campus that will be home to one of the largest and most transformative pediatric hospitals in the nation. \",\"marks\":\"$23ba\",\"data\":\"$23bb\"}\n23b8:[\"$23b9\"]\n23b6:{\"nodeType\":\"paragraph\",\"data\":\"$23b7\",\"content\":\"$23b8\"}\n23bd:{}\n23c0:[]\n23c1:{}\n23bf:{\"nodeType\":\"text\",\"value\":\"The new campus will accommodate emerging technology; foster deeper collaboration in research to find new treatments and cures; and create more room to care for children from before birth until they mature into adulthood for generations to come. \",\"marks\":\"$23c0\",\"data\":\"$23c1\"}\n23be:[\"$23bf\"]\n23bc:{\"nodeType\":\"paragraph\",\"data\":\"$23bd\",\"content\":\"$23be\"}\n23c3:{}\n23c6:[]\n23c7:{}\n23c5:{\"nodeType\":\"text\",\"value\":\"An unexpected 'godsendâ \",\"marks\":\"$23c6\",\"data\":\"$23c7\"}\n23c4:[\"$23c5\"]\n23c2:{\"nodeType\":\"heading-2\",\"data\":\"$23c3\",\"content\":\"$23c4\"}\n23c9:{}\n23cc:[]\n23cd:{}\n23cb:{\"nodeType\":\"text\",\"value\":\"In 2023, Tha"])</script>
1<script>self.__next_f.push([1,"i and her husband were introduced to a new treatment possibility for their son: biventricular repair surgery, a state-of-the-art surgery that could get Frank back to being a kid. \",\"marks\":\"$23cc\",\"data\":\"$23cd\"}\n23ca:[\"$23cb\"]\n23c8:{\"nodeType\":\"paragraph\",\"data\":\"$23c9\",\"content\":\"$23ca\"}\n23cf:{}\n23d2:[]\n23d3:{}\n23d1:{\"nodeType\":\"text\",\"value\":\"They began researching centers on the East Coast, unsure how theyâd manage travel, work and insurance for a months-long stay. \",\"marks\":\"$23d2\",\"data\":\"$23d3\"}\n23d0:[\"$23d1\"]\n23ce:{\"nodeType\":\"paragraph\",\"data\":\"$23cf\",\"content\":\"$23d0\"}\n23d5:{}\n23d8:[]\n23d9:{}\n23d7:{\"nodeType\":\"text\",\"value\":\"Then came what Thai calls âa godsend.â \",\"marks\":\"$23d8\",\"data\":\"$23d9\"}\n23d6:[\"$23d7\"]\n23d4:{\"nodeType\":\"paragraph\",\"data\":\"$23d5\",\"content\":\"$23d6\"}\n23db:{}\n23de:[]\n23df:{}\n23dd:{\"nodeType\":\"text\",\"value\":\"Dr. Nicholas Andersen, M.D., joined Childrenâs Health as Director of the Complex Biventricular Repair Program and Associate Professor of Pediatric Cardiothoracic Surgery at UT Southwestern. \",\"marks\":\"$23de\",\"data\":\"$23df\"}\n23dc:[\"$23dd\"]\n23da:{\"nodeType\":\"paragraph\",\"data\":\"$23db\",\"content\":\"$23dc\"}\n23e1:{}\n23e2:[]\n23e0:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$23e1\",\"content\":\"$23e2\"}\n23e4:{}\n23e7:[]\n23e8:{}\n23e6:{\"nodeType\":\"text\",\"value\":\"Dr. Andersen is one of only a few specialists nationwide trained to perform this rare two-part surgery, which remodels a childâs heart to function normally â and Frank was an ideal candidate. \",\"marks\":\"$23e7\",\"data\":\"$23e8\"}\n23e5:[\"$23e6\"]\n23e3:{\"nodeType\":\"paragraph\",\"data\":\"$23e4\",\"content\":\"$23e5\"}\n23ea:{}\n23ed:[]\n23ee:{}\n23ec:{\"nodeType\":\"text\",\"value\":\"New hope after surgery \",\"marks\":\"$23ed\",\"data\":\"$23ee\"}\n23eb:[\"$23ec\"]\n23e9:{\"nodeType\":\"heading-2\",\"data\":\"$23ea\",\"content\":\"$23eb\"}\n23f0:{}\n23f3:[]\n23f4:{}\n23f2:{\"nodeType\":\"text\",\"value\":\"Putting their baby through two more intensive heart surgeries wasnât easy, but Thai and her husband focused on what it would mean for Frankâs future. \",\"marks\":\"$23f3\",\"data\":\"$23"])</script>
1<script>self.__next_f.push([1,"f4\"}\n23f1:[\"$23f2\"]\n23ef:{\"nodeType\":\"paragraph\",\"data\":\"$23f0\",\"content\":\"$23f1\"}\n23f6:{}\n23f9:[]\n23fa:{}\n23f8:{\"nodeType\":\"text\",\"value\":\"âThey told us this surgery could let him run across a playground and play team sports, which we couldnât imagine before,â Thai said. \",\"marks\":\"$23f9\",\"data\":\"$23fa\"}\n23f7:[\"$23f8\"]\n23f5:{\"nodeType\":\"paragraph\",\"data\":\"$23f6\",\"content\":\"$23f7\"}\n23fc:{}\n23ff:[]\n2400:{}\n23fe:{\"nodeType\":\"text\",\"value\":\"After his second biventricular repair surgery, Frankâs oxygen levels and circulation were typical for the first time. \",\"marks\":\"$23ff\",\"data\":\"$2400\"}\n23fd:[\"$23fe\"]\n23fb:{\"nodeType\":\"paragraph\",\"data\":\"$23fc\",\"content\":\"$23fd\"}\n2402:{}\n2405:[]\n2406:{}\n2404:{\"nodeType\":\"text\",\"value\":\"âHeâs more energetic and rambunctious than ever,â Thai said. âHe goes down the slide over and over at preschool and loves to play in the sandbox. And at home, heâs so sweet with his baby sister, Tori.â \",\"marks\":\"$2405\",\"data\":\"$2406\"}\n2403:[\"$2404\"]\n2401:{\"nodeType\":\"paragraph\",\"data\":\"$2402\",\"content\":\"$2403\"}\n2408:{}\n240b:[]\n240c:{}\n240a:{\"nodeType\":\"text\",\"value\":\"After everything theyâve experienced, Thai still canât believe that Frank now only needs to see Dr. Kane every few months. \",\"marks\":\"$240b\",\"data\":\"$240c\"}\n2409:[\"$240a\"]\n2407:{\"nodeType\":\"paragraph\",\"data\":\"$2408\",\"content\":\"$2409\"}\n240e:{}\n240f:[]\n240d:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$240e\",\"content\":\"$240f\"}\n2411:{}\n2414:[]\n2415:{}\n2413:{\"nodeType\":\"text\",\"value\":\"These days, Thai volunteers on the Childrenâs Health Family Advisory Network, supporting parents whose babies face similar challenges. \",\"marks\":\"$2414\",\"data\":\"$2415\"}\n2412:[\"$2413\"]\n2410:{\"nodeType\":\"paragraph\",\"data\":\"$2411\",\"content\":\"$2412\"}\n2417:{}\n241a:[]\n241b:{}\n2419:{\"nodeType\":\"text\",\"value\":\"She loves letting new moms know theyâre doing the right thing by being there for their baby, but she also reminds them of two crucial lessons sheâs had to learn:\",\"marks\":\"$241a\",\"data\":\"$241b\"}\n2418:[\"$2419\"]\n2416:{\"nodeType\":\"para"])</script>
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1<script>self.__next_f.push([1,"odeType\":\"text\",\"value\":\"But a week before winter break, Evelynâs mom, Gladiola, got a call from the school nurse. Evelyn was acting groggy and needed to be picked up. \",\"marks\":\"$251d\",\"data\":\"$251e\"}\n251b:[\"$251c\"]\n2519:{\"nodeType\":\"paragraph\",\"data\":\"$251a\",\"content\":\"$251b\"}\n2520:{}\n2523:[]\n2524:{}\n2522:{\"nodeType\":\"text\",\"value\":\"\\\"I thought she had the flu, so I gave her some Tylenol and kept her home the next day,\\\" Gladiola said. \",\"marks\":\"$2523\",\"data\":\"$2524\"}\n2521:[\"$2522\"]\n251f:{\"nodeType\":\"paragraph\",\"data\":\"$2520\",\"content\":\"$2521\"}\n2526:{}\n2529:[]\n252a:{}\n2528:{\"nodeType\":\"text\",\"value\":\"But then, a couple of days later, Evelyn threw up and had no appetite or energy. Gladiola was worried. \",\"marks\":\"$2529\",\"data\":\"$252a\"}\n2527:[\"$2528\"]\n2525:{\"nodeType\":\"paragraph\",\"data\":\"$2526\",\"content\":\"$2527\"}\n252c:{}\n252f:[]\n2530:{}\n252e:{\"nodeType\":\"text\",\"value\":\"âEvelyn was not herself,â she said. \",\"marks\":\"$252f\",\"data\":\"$2530\"}\n252d:[\"$252e\"]\n252b:{\"nodeType\":\"paragraph\",\"data\":\"$252c\",\"content\":\"$252d\"}\n2532:{}\n2535:[]\n2536:{}\n2534:{\"nodeType\":\"text\",\"value\":\"Not just the flu \",\"marks\":\"$2535\",\"data\":\"$2536\"}\n2533:[\"$2534\"]\n2531:{\"nodeType\":\"heading-2\",\"data\":\"$2532\",\"content\":\"$2533\"}\n2538:{}\n253b:[]\n253c:{}\n253a:{\"nodeType\":\"text\",\"value\":\"Gladiola took Evelyn to a clinic, where she was diagnosed with strep throat. But the next morning, Evelyn didn't want to wake up, never mind getting out of bed. Gladiola realized her whole body was warm â and that Evelyn had a lump in her abdomen that hurt when she pressed on it. \",\"marks\":\"$253b\",\"data\":\"$253c\"}\n2539:[\"$253a\"]\n2537:{\"nodeType\":\"paragraph\",\"data\":\"$2538\",\"content\":\"$2539\"}\n253e:{}\n2541:[]\n2542:{}\n2540:{\"nodeType\":\"text\",\"value\":\"Gladiola followed her motherâs intuition and went straight to the Emergency Department at Childrenâs Health. \",\"marks\":\"$2541\",\"data\":\"$2542\"}\n253f:[\"$2540\"]\n253d:{\"nodeType\":\"paragraph\",\"data\":\"$253e\",\"content\":\"$253f\"}\n2544:{}\n2547:[]\n2548:{}\n2546:{\"nodeType\":\"text\",\"value\":\"âThere was no question about whe"])</script>
1<script>self.__next_f.push([1,"re we were going. We always go to Childrenâs Health,â Gladiola said. \",\"marks\":\"$2547\",\"data\":\"$2548\"}\n2545:[\"$2546\"]\n2543:{\"nodeType\":\"paragraph\",\"data\":\"$2544\",\"content\":\"$2545\"}\n254a:{}\n254d:[]\n254e:{}\n254c:{\"nodeType\":\"text\",\"value\":\"After a nurse felt Evelynâs lump, she called in a physician who confirmed it was concerning. Unsure of what it was, they ordered an ultrasound and then an X-ray and an MRI. \",\"marks\":\"$254d\",\"data\":\"$254e\"}\n254b:[\"$254c\"]\n2549:{\"nodeType\":\"paragraph\",\"data\":\"$254a\",\"content\":\"$254b\"}\n2550:{}\n2553:[]\n2554:{}\n2552:{\"nodeType\":\"text\",\"value\":\"Evelyn and Gladiola remained in the emergency room late into the night before physicians rushed to admit Evelyn to the hospital after noticing her blood pressure lower, she felt weak and she continued throwing up. \",\"marks\":\"$2553\",\"data\":\"$2554\"}\n2551:[\"$2552\"]\n254f:{\"nodeType\":\"paragraph\",\"data\":\"$2550\",\"content\":\"$2551\"}\n2556:{}\n2559:[]\n255a:{}\n2558:{\"nodeType\":\"text\",\"value\":\"The next day, Evelynâs flesh-colored lump started to look purple. And there was swelling in her abdomen â all the way to her groin. The symptoms signaled a true emergency. Physicians told Gladiola they needed to take Evelyn into surgery to see what was causing the swelling. \",\"marks\":\"$2559\",\"data\":\"$255a\"}\n2557:[\"$2558\"]\n2555:{\"nodeType\":\"paragraph\",\"data\":\"$2556\",\"content\":\"$2557\"}\n255c:{}\n255f:[]\n2560:{}\n255e:{\"nodeType\":\"text\",\"value\":\"âThey told me it was probably necrotizing fasciitis â something Iâd never heard of. And that they were hoping it was contained,â Gladiola said. \",\"marks\":\"$255f\",\"data\":\"$2560\"}\n255d:[\"$255e\"]\n255b:{\"nodeType\":\"paragraph\",\"data\":\"$255c\",\"content\":\"$255d\"}\n2562:{}\n2565:[]\n2566:{}\n2564:{\"nodeType\":\"text\",\"value\":\"A rare diagnosis \",\"marks\":\"$2565\",\"data\":\"$2566\"}\n2563:[\"$2564\"]\n2561:{\"nodeType\":\"heading-2\",\"data\":\"$2562\",\"content\":\"$2563\"}\n2568:{}\n256b:[]\n256c:{}\n256a:{\"nodeType\":\"text\",\"value\":\"Necrotizing fasciitis is a very rare type of flesh-eating bacterial disease that can enter the body through a cut, or it can"])</script>
1<script>self.__next_f.push([1," be a complication of strep throat. The condition is known to spread very quickly. \",\"marks\":\"$256b\",\"data\":\"$256c\"}\n2569:[\"$256a\"]\n2567:{\"nodeType\":\"paragraph\",\"data\":\"$2568\",\"content\":\"$2569\"}\n256e:{}\n2571:[]\n2572:{}\n2570:{\"nodeType\":\"text\",\"value\":\"And unfortunately for Evelyn, that is exactly what happened. \",\"marks\":\"$2571\",\"data\":\"$2572\"}\n256f:[\"$2570\"]\n256d:{\"nodeType\":\"paragraph\",\"data\":\"$256e\",\"content\":\"$256f\"}\n2574:{}\n2577:[]\n2578:{}\n2576:{\"nodeType\":\"text\",\"value\":\"For the next two weeks, she stayed in the intensive care unit at Childrenâs Health and was in and out of surgery to repeatedly remove pockets of infection and dead tissue. After her physicians were able to stop the spread, Evelyn remained in the hospital for monitoring, dressing changes, wound suctioning, intensive antibiotic treatment and skin graft surgery for two more months. \",\"marks\":\"$2577\",\"data\":\"$2578\"}\n2575:[\"$2576\"]\n2573:{\"nodeType\":\"paragraph\",\"data\":\"$2574\",\"content\":\"$2575\"}\n257a:{}\n257b:[]\n2579:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$257a\",\"content\":\"$257b\"}\n257d:{}\n2580:[]\n2581:{}\n257f:{\"nodeType\":\"text\",\"value\":\"Gladiola is not sure sheâll ever be able to talk about the experience without tears. But the compassionate care and expertise from Evelynâs care team eased the intense fear and trauma she experienced. \",\"marks\":\"$2580\",\"data\":\"$2581\"}\n257e:[\"$257f\"]\n257c:{\"nodeType\":\"paragraph\",\"data\":\"$257d\",\"content\":\"$257e\"}\n2583:{}\n2586:[]\n2587:{}\n2585:{\"nodeType\":\"text\",\"value\":\"Healing wounds with many layers of support \",\"marks\":\"$2586\",\"data\":\"$2587\"}\n2584:[\"$2585\"]\n2582:{\"nodeType\":\"heading-2\",\"data\":\"$2583\",\"content\":\"$2584\"}\n2589:{}\n258c:[]\n258d:{}\n258b:{\"nodeType\":\"text\",\"value\":\"Spending the holidays at the hospital wasnât what Evelyn and Gladiola envisioned for themselves. But team members at Childrenâs Health decked clinical areas with winter decorations and Gladiola even had the chance to âshopâ for a gift for Evelyn from a selection of toys donated by generous community members. \",\"marks\":\"$258c\","])</script>
1<script>self.__next_f.push([1,"\"data\":\"$258d\"}\n258a:[\"$258b\"]\n2588:{\"nodeType\":\"paragraph\",\"data\":\"$2589\",\"content\":\"$258a\"}\n258f:{}\n2592:[]\n2593:{}\n2591:{\"nodeType\":\"text\",\"value\":\"Gladiola also never imagined her daughter would need help walking again. \",\"marks\":\"$2592\",\"data\":\"$2593\"}\n2590:[\"$2591\"]\n258e:{\"nodeType\":\"paragraph\",\"data\":\"$258f\",\"content\":\"$2590\"}\n2595:{}\n2598:[]\n2599:{}\n2597:{\"nodeType\":\"text\",\"value\":\"Bedridden for many weeks, and having undergone several abdominal surgeries, meant she needed support from the Physical Therapy and Occupational Therapy teams to build up her strength. \",\"marks\":\"$2598\",\"data\":\"$2599\"}\n2596:[\"$2597\"]\n2594:{\"nodeType\":\"paragraph\",\"data\":\"$2595\",\"content\":\"$2596\"}\n259b:{}\n259e:[]\n259f:{}\n259d:{\"nodeType\":\"text\",\"value\":\"Many kind nurses and specially trained Child Life Specialists also helped motivate Evelyn on the toughest days. Child Life specialists, who support kids and their families as they experience the unimaginable, come at no-cost to patient families and rely on philanthropic support. \",\"marks\":\"$259e\",\"data\":\"$259f\"}\n259c:[\"$259d\"]\n259a:{\"nodeType\":\"paragraph\",\"data\":\"$259b\",\"content\":\"$259c\"}\n25a1:{}\n25a2:[]\n25a0:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$25a1\",\"content\":\"$25a2\"}\n25a4:{}\n25a7:[]\n25a8:{}\n25a6:{\"nodeType\":\"text\",\"value\":\"Evelyn recalls nurse Ashley, who played countless rounds of Uno with her. And she remembers how another nurse, called Mariana, gave her Hello Kitty stickers and figurines, knowing how much she is a fan of the character. \",\"marks\":\"$25a7\",\"data\":\"$25a8\"}\n25a5:[\"$25a6\"]\n25a3:{\"nodeType\":\"paragraph\",\"data\":\"$25a4\",\"content\":\"$25a5\"}\n25aa:{}\n25ad:[]\n25ae:{}\n25ac:{\"nodeType\":\"text\",\"value\":\"âSome nights, the pain in my belly kept me awake, so the nurses would quietly help me put on a movie so we wouldnât wake up my mom,â Evelyn said. \",\"marks\":\"$25ad\",\"data\":\"$25ae\"}\n25ab:[\"$25ac\"]\n25a9:{\"nodeType\":\"paragraph\",\"data\":\"$25aa\",\"content\":\"$25ab\"}\n25b0:{}\n25b3:[]\n25b4:{}\n25b2:{\"nodeType\":\"text\",\"value\":\"Gladiola also got invaluable support from her daught"])</script>
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1<script>self.__next_f.push([1,"s://assets.childrens.com/m/29ad3bf9910788e1/webimage-EmmaThumbnail1.jpg\"}\n269e:[\"$269f\"]\n269d:{\"adminTitle\":\"Media: 2026 PA - Emma | Thumbnail\",\"image\":\"$269e\"}\n2692:{\"metadata\":\"$2693\",\"sys\":\"$2696\",\"fields\":\"$269d\"}\n2691:[\"$2692\"]\n26a8:[]\n26a9:[]\n26a7:{\"tags\":\"$26a8\",\"concepts\":\"$26a9\"}\n26ac:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n26ab:{\"sys\":\"$26ac\"}\n26ae:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n26ad:{\"sys\":\"$26ae\"}\n26b0:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n26af:{\"sys\":\"$26b0\"}\n26aa:{\"space\":\"$26ab\",\"id\":\"7K21FP2veXa5nzbHyvqJ5f\",\"type\":\"Entry\",\"createdAt\":\"2025-12-12T20:37:34.964Z\",\"updatedAt\":\"2026-08-11T15:46:34.023Z\",\"environment\":\"$26ad\",\"publishedVersion\":10,\"revision\":3,\"contentType\":\"$26af\",\"locale\":\"en-US\"}\n26b3:{}\n26b6:{}\n26b9:[]\n26ba:{}\n26b8:{\"nodeType\":\"text\",\"value\":\"\",\"marks\":\"$26b9\",\"data\":\"$26ba\"}\n26b7:[\"$26b8\"]\n26b5:{\"nodeType\":\"paragraph\",\"data\":\"$26b6\",\"content\":\"$26b7\"}\n26bc:{}\n26bd:[]\n26bb:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$26bc\",\"content\":\"$26bd\"}\n26bf:{}\n26c2:[]\n26c3:{}\n26c1:{\"nodeType\":\"text\",\"value\":\"As a mom, Sara had a feeling that something wasnât quite right with her newborn daughter, Emma. But as a physician, it only took one glance at Emmaâs abdominal X-ray for Sara to know something was very wrong. \",\"marks\":\"$26c2\",\"data\":\"$26c3\"}\n26c0:[\"$26c1\"]\n26be:{\"nodeType\":\"paragraph\",\"data\":\"$26bf\",\"content\":\"$26c0\"}\n26c5:{}\n26c8:[]\n26c9:{}\n26c7:{\"nodeType\":\"text\",\"value\":\"âIt was terrifying,â said Emmaâs mom, Sara, who is also a surgeon at UT Southwestern. âBoth the mom brain and the doctor brain are impossible to turn off, so as soon as I saw her X-ray, I knew she had a significant problem that would need surgery.â \",\"marks\":\"$26c8\",\"data\":\"$26c9\"}\n26c6:[\"$26c7\"]\n26c4:{\"nodeType\":\"paragraph\",\"data\":\"$26c5\",\"content\":\"$26c6\"}\n26cb:{}\n26ce:[]\n26cf:{}\n26cd:{\"nodeType\":\"text\",\"value\":\"Thatâs when baby Emma was transferred to Childrenâs Health. \",\"marks\":\"$26ce\",\"data\":\"$26cf\"}\n26cc:[\"$26cd\"]\n26ca:{\"nodeType\":\"parag"])</script>
1<script>self.__next_f.push([1,"raph\",\"data\":\"$26cb\",\"content\":\"$26cc\"}\n26d1:{}\n26d4:[]\n26d5:{}\n26d3:{\"nodeType\":\"text\",\"value\":\"A million questions \",\"marks\":\"$26d4\",\"data\":\"$26d5\"}\n26d2:[\"$26d3\"]\n26d0:{\"nodeType\":\"heading-2\",\"data\":\"$26d1\",\"content\":\"$26d2\"}\n26d7:{}\n26da:[]\n26db:{}\n26d9:{\"nodeType\":\"text\",\"value\":\"At Childrenâs Health, their care team soon had an explanation for the abnormalities on Emmaâs X-ray:\",\"marks\":\"$26da\",\"data\":\"$26db\"}\n26dd:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/hirschsprungs-disease\"}\n26e1:{\"type\":\"underline\"}\n26e0:[\"$26e1\"]\n26e2:{}\n26df:{\"nodeType\":\"text\",\"value\":\"Hirschsprungâs disease\",\"marks\":\"$26e0\",\"data\":\"$26e2\"}\n26de:[\"$26df\"]\n26dc:{\"nodeType\":\"hyperlink\",\"data\":\"$26dd\",\"content\":\"$26de\"}\n26e4:[]\n26e5:{}\n26e3:{\"nodeType\":\"text\",\"value\":\", a condition where a child is born without important nerve cells in part of their colon that help the body pass stool. Without them, a child canât poop on their own. \",\"marks\":\"$26e4\",\"data\":\"$26e5\"}\n26d8:[\"$26d9\",\"$26dc\",\"$26e3\"]\n26d6:{\"nodeType\":\"paragraph\",\"data\":\"$26d7\",\"content\":\"$26d8\"}\n26e7:{}\n26ea:[]\n26eb:{}\n26e9:{\"nodeType\":\"text\",\"value\":\"âA million questions were running through my head,â Bryan, Emmaâs dad, said. âWhere did this come from? Why did this happen? And how will it impact Emmaâs life?â \",\"marks\":\"$26ea\",\"data\":\"$26eb\"}\n26e8:[\"$26e9\"]\n26e6:{\"nodeType\":\"paragraph\",\"data\":\"$26e7\",\"content\":\"$26e8\"}\n26ed:{}\n26f0:[]\n26f1:{}\n26ef:{\"nodeType\":\"text\",\"value\":\"Physicians then shared more about Emmaâs particular case: For most children, Hirschsprung's disease only affects a small section of their colon, but Emma has a rare form that affects her entire large intestine and part of her small intestine. \",\"marks\":\"$26f0\",\"data\":\"$26f1\"}\n26ee:[\"$26ef\"]\n26ec:{\"nodeType\":\"paragraph\",\"data\":\"$26ed\",\"content\":\"$26ee\"}\n26f3:{}\n26f6:[]\n26f7:{}\n26f5:{\"nodeType\":\"text\",\"value\":\"âUnderstanding that she would first need an ostomy bag so she could poop, and ultimately a bigger surgery to remove a significant portion of her inte"])</script>
1<script>self.__next_f.push([1,"stines, was a big blow,â Bryan said. âWe spent the first months of Emmaâs life feeding her, watching her grow â and learning how to manage an ostomy bag.â \",\"marks\":\"$26f6\",\"data\":\"$26f7\"}\n26f4:[\"$26f5\"]\n26f2:{\"nodeType\":\"paragraph\",\"data\":\"$26f3\",\"content\":\"$26f4\"}\n26f9:{}\n26fc:[]\n26fd:{}\n26fb:{\"nodeType\":\"text\",\"value\":\"A major surgery at 6 months old \",\"marks\":\"$26fc\",\"data\":\"$26fd\"}\n26fa:[\"$26fb\"]\n26f8:{\"nodeType\":\"heading-2\",\"data\":\"$26f9\",\"content\":\"$26fa\"}\n26ff:{}\n2702:[]\n2703:{}\n2701:{\"nodeType\":\"text\",\"value\":\"Sara consulted with colleagues across the country, looking for the best program for the care Emma needed. She soon realized they were already right where they needed to be. \",\"marks\":\"$2702\",\"data\":\"$2703\"}\n2700:[\"$2701\"]\n26fe:{\"nodeType\":\"paragraph\",\"data\":\"$26ff\",\"content\":\"$2700\"}\n2705:{}\n2708:[]\n2709:{}\n2707:{\"nodeType\":\"text\",\"value\":\"âWeâre fortunate enough to have a high-level academic childrenâs hospital in our backyard, with doctors with lots of experience in Hirschsprung's,â Sara said. âThat gave us the comfort and support to know that sheâs getting the best care.â \",\"marks\":\"$2708\",\"data\":\"$2709\"}\n2706:[\"$2707\"]\n2704:{\"nodeType\":\"paragraph\",\"data\":\"$2705\",\"content\":\"$2706\"}\n270b:{}\n270e:[]\n270f:{}\n270d:{\"nodeType\":\"text\",\"value\":\"Although it still wasnât easy to send their 6-month-old into major surgery, the procedure went smoothly. \",\"marks\":\"$270e\",\"data\":\"$270f\"}\n270c:[\"$270d\"]\n270a:{\"nodeType\":\"paragraph\",\"data\":\"$270b\",\"content\":\"$270c\"}\n2711:{}\n2714:[]\n2715:{}\n2713:{\"nodeType\":\"text\",\"value\":\"A week after surgery, Emma had recovered and was ready to go home, but she couldnât pee on her own. \",\"marks\":\"$2714\",\"data\":\"$2715\"}\n2712:[\"$2713\"]\n2710:{\"nodeType\":\"paragraph\",\"data\":\"$2711\",\"content\":\"$2712\"}\n2717:{}\n271a:[]\n271b:{}\n2719:{\"nodeType\":\"text\",\"value\":\"âWe have a saying now: Emma does things in Emmaâs way, on Emmaâs time. She doesnât follow the book,â Bryan said. âShe has an extremely rare form of Hirschsprung's and then experienced a rar"])</script>
1<script>self.__next_f.push([1,"e urinary complication post-surgery.â \",\"marks\":\"$271a\",\"data\":\"$271b\"}\n2718:[\"$2719\"]\n2716:{\"nodeType\":\"paragraph\",\"data\":\"$2717\",\"content\":\"$2718\"}\n271d:{}\n2720:[]\n2721:{}\n271f:{\"nodeType\":\"text\",\"value\":\"Her care team explained that Emma had urinary retention and could not empty her bladder completely. Either she would regain her bladder function over the next six months, or she would probably never regain function. \",\"marks\":\"$2720\",\"data\":\"$2721\"}\n271e:[\"$271f\"]\n271c:{\"nodeType\":\"paragraph\",\"data\":\"$271d\",\"content\":\"$271e\"}\n2723:{}\n2726:[]\n2727:{}\n2725:{\"nodeType\":\"text\",\"value\":\"Thatâs when her parents learned how to use a catheter to help Emma empty her bladder. And although Sara had catheterized adults in the hospital, the idea of doing it at home for her own child was daunting. \",\"marks\":\"$2726\",\"data\":\"$2727\"}\n2724:[\"$2725\"]\n2722:{\"nodeType\":\"paragraph\",\"data\":\"$2723\",\"content\":\"$2724\"}\n2729:{}\n272c:[]\n272d:{}\n272b:{\"nodeType\":\"text\",\"value\":\"âI thought there was zero way Iâd be able to catheterize my own child at home, let alone Bryan who doesnât have any medical training,â Sara said. âBut the nurses and care team were amazing. They taught us how to do so many things I never imagined that weâd be able to handle at home.â \",\"marks\":\"$272c\",\"data\":\"$272d\"}\n272a:[\"$272b\"]\n2728:{\"nodeType\":\"paragraph\",\"data\":\"$2729\",\"content\":\"$272a\"}\n272f:{}\n2732:[]\n2733:{}\n2731:{\"nodeType\":\"text\",\"value\":\"As they neared the six-month mark, they started to accept that Emma might not regain her bladder function. \",\"marks\":\"$2732\",\"data\":\"$2733\"}\n2730:[\"$2731\"]\n272e:{\"nodeType\":\"paragraph\",\"data\":\"$272f\",\"content\":\"$2730\"}\n2735:{}\n2738:[]\n2739:{}\n2737:{\"nodeType\":\"text\",\"value\":\"âMagically, almost six months to the day, her bladder woke up, and she was able to start peeing on her own,â Sara said. âThat was a big relief.â \",\"marks\":\"$2738\",\"data\":\"$2739\"}\n2736:[\"$2737\"]\n2734:{\"nodeType\":\"paragraph\",\"data\":\"$2735\",\"content\":\"$2736\"}\n273b:{}\n273e:[]\n273f:{}\n273d:{\"nodeType\":\"text\",\"value\":\"A second ho"])</script>
1<script>self.__next_f.push([1,"me \",\"marks\":\"$273e\",\"data\":\"$273f\"}\n273c:[\"$273d\"]\n273a:{\"nodeType\":\"heading-2\",\"data\":\"$273b\",\"content\":\"$273c\"}\n2741:{}\n2744:[]\n2745:{}\n2743:{\"nodeType\":\"text\",\"value\":\"Hirschsprung's disease affects different kids in different ways. Some have few complications after surgery, while others experience infections, constipation and other bowel symptoms as they grow up. \",\"marks\":\"$2744\",\"data\":\"$2745\"}\n2742:[\"$2743\"]\n2740:{\"nodeType\":\"paragraph\",\"data\":\"$2741\",\"content\":\"$2742\"}\n2747:{}\n274a:[]\n274b:{}\n2749:{\"nodeType\":\"text\",\"value\":\"Throughout her toddler years and early childhood, Emma was in and out of the hospital with a number of infections â including a case of norovirus that required her to be isolated in the hospital for three weeks. \",\"marks\":\"$274a\",\"data\":\"$274b\"}\n2748:[\"$2749\"]\n2746:{\"nodeType\":\"paragraph\",\"data\":\"$2747\",\"content\":\"$2748\"}\n274d:{}\n2750:[]\n2751:{}\n274f:{\"nodeType\":\"text\",\"value\":\"âThatâs when the Child Life team really kept us sane,â Bryan said. âThey brought her something different to do every day, they let her pick out games and books. Even though she was in isolation, she had something to look forward to.â \",\"marks\":\"$2750\",\"data\":\"$2751\"}\n274e:[\"$274f\"]\n274c:{\"nodeType\":\"paragraph\",\"data\":\"$274d\",\"content\":\"$274e\"}\n2753:{}\n2756:[]\n2757:{}\n2755:{\"nodeType\":\"text\",\"value\":\"Child Life team members manage the hospitalâs playrooms and provide individual play sessions at the patientsâ bedside. Services like these are one of many supportive offerings at Children's Health that are sustained and enhanced by generous donors. \",\"marks\":\"$2756\",\"data\":\"$2757\"}\n2754:[\"$2755\"]\n2752:{\"nodeType\":\"paragraph\",\"data\":\"$2753\",\"content\":\"$2754\"}\n2759:{}\n275c:[]\n275d:{}\n275b:{\"nodeType\":\"text\",\"value\":\"An outgoing kid, Emma has bonded with many of her care team members, including one of her favorites, Dr. Samir Pandya, M.D., Pediatric Surgeon at Childrenâs Health. He calls her âlashesâ for her distinctive long eyelashes, and they always greet each other with a special salute. \",\"ma"])</script>
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1<script>self.__next_f.push([1,"pe\",\"original\":null,\"thumbnails\":\"$284a\",\"type\":\"image\",\"watermarked\":0,\"width\":500,\"videoPreviewURLs\":\"$284b\",\"tags\":\"$284c\",\"textMetaproperties\":\"$284d\",\"src\":\"https://assets.childrens.com/m/5e7de0315627a26/webimage-DallasThumbnail\"}\n2847:[\"$2848\"]\n2846:{\"adminTitle\":\"Media: 2026 PA - Dallas | Thumbnail\",\"image\":\"$2847\"}\n283b:{\"metadata\":\"$283c\",\"sys\":\"$283f\",\"fields\":\"$2846\"}\n283a:[\"$283b\"]\n2851:[]\n2852:[]\n2850:{\"tags\":\"$2851\",\"concepts\":\"$2852\"}\n2855:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n2854:{\"sys\":\"$2855\"}\n2857:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n2856:{\"sys\":\"$2857\"}\n2859:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n2858:{\"sys\":\"$2859\"}\n2853:{\"space\":\"$2854\",\"id\":\"4pd3V9HXvYH77754kcN0NC\",\"type\":\"Entry\",\"createdAt\":\"2025-12-12T20:24:50.433Z\",\"updatedAt\":\"2025-12-12T20:24:50.433Z\",\"environment\":\"$2856\",\"publishedVersion\":10,\"revision\":1,\"contentType\":\"$2858\",\"locale\":\"en-US\"}\n285c:{}\n285f:{}\n2862:[]\n2863:{}\n2861:{\"nodeType\":\"text\",\"value\":\"8-year-old Dallas was in and out of the hospital for months as his care team worked to treat a rare condition, and an even rarer complication. But if you ask Dallas what he remembers about Childrenâs Health, it's this: \",\"marks\":\"$2862\",\"data\":\"$2863\"}\n2860:[\"$2861\"]\n285e:{\"nodeType\":\"paragraph\",\"data\":\"$285f\",\"content\":\"$2860\"}\n2865:{}\n2868:[]\n2869:{}\n2867:{\"nodeType\":\"text\",\"value\":\"âI liked the playroom and Seacrest studios,â he said. âA dog came to visit me. Dr. Chung was nice. I ate a lot of spaghetti.â \",\"marks\":\"$2868\",\"data\":\"$2869\"}\n2866:[\"$2867\"]\n2864:{\"nodeType\":\"paragraph\",\"data\":\"$2865\",\"content\":\"$2866\"}\n286b:{}\n286e:[]\n286f:{}\n286d:{\"nodeType\":\"text\",\"value\":\"The fact that this is what comes to mind for Dallas â instead of all the treatments and procedures â shows just how big of an impact supportive services and comprehensive care can have on a patientâs experience at Childrenâs Health. \",\"marks\":\"$286e\",\"data\":\"$286f\"}\n286c:[\"$286d\"]\n286a:{\"nodeType\":\"paragraph\",\"data\":\"$286b\",\"content\":\"$28"])</script>
1<script>self.__next_f.push([1,"6c\"}\n2871:{}\n2874:[]\n2875:{}\n2873:{\"nodeType\":\"text\",\"value\":\"Dallasâ journey started with tummy troubles when he was 6 years old that ultimately led to a collaborative effort between specialists from both Children's Health and across the country who worked together to provide incredible care. \",\"marks\":\"$2874\",\"data\":\"$2875\"}\n2872:[\"$2873\"]\n2870:{\"nodeType\":\"paragraph\",\"data\":\"$2871\",\"content\":\"$2872\"}\n2877:{}\n2878:[]\n2876:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2877\",\"content\":\"$2878\"}\n287a:{}\n287d:[]\n287e:{}\n287c:{\"nodeType\":\"text\",\"value\":\"A rare condition \",\"marks\":\"$287d\",\"data\":\"$287e\"}\n287b:[\"$287c\"]\n2879:{\"nodeType\":\"heading-2\",\"data\":\"$287a\",\"content\":\"$287b\"}\n2880:{}\n2883:[]\n2884:{}\n2882:{\"nodeType\":\"text\",\"value\":\"When Dallasâ stomach hurt and the pain wasnât getting better, his parents took him to the pediatrician. Theyâd noticed that Dallasâ belly stuck out a bit, but they figured he was just growing into his body. \",\"marks\":\"$2883\",\"data\":\"$2884\"}\n2881:[\"$2882\"]\n287f:{\"nodeType\":\"paragraph\",\"data\":\"$2880\",\"content\":\"$2881\"}\n2886:{}\n2889:[]\n288a:{}\n2888:{\"nodeType\":\"text\",\"value\":\"But their pediatrician was concerned that his protruding belly might be a sign of a bigger health problem and sent them to Childrenâs Health. Tests revealed a large, fluid-filled cyst in Dallasâ abdomen caused by a rare condition called lymphangioma. \",\"marks\":\"$2889\",\"data\":\"$288a\"}\n2887:[\"$2888\"]\n2885:{\"nodeType\":\"paragraph\",\"data\":\"$2886\",\"content\":\"$2887\"}\n288c:{}\n288f:[]\n2890:{}\n288e:{\"nodeType\":\"text\",\"value\":\"âLymphangiomas are typically non-cancerous and donât always need treatment,â Dr. Chung said. âBut in Dallasâ case, his cyst was very large and was causing pain and digestive symptoms because it was pressing on other organs.â \",\"marks\":\"$288f\",\"data\":\"$2890\"}\n288d:[\"$288e\"]\n288b:{\"nodeType\":\"paragraph\",\"data\":\"$288c\",\"content\":\"$288d\"}\n2892:{}\n2895:[]\n2896:{}\n2894:{\"nodeType\":\"text\",\"value\":\"Sometimes these cysts can be shrunk with an injection. But the size of Dallasâ cyst and ho"])</script>
1<script>self.__next_f.push([1,"w close it was to vital organs made the risk of side effects from the injection too high. Instead, Dr. Chung mapped out a complex surgery plan to remove the cyst and individually seal off hundreds of lymphatic vessels that were causing the cyst. \",\"marks\":\"$2895\",\"data\":\"$2896\"}\n2893:[\"$2894\"]\n2891:{\"nodeType\":\"paragraph\",\"data\":\"$2892\",\"content\":\"$2893\"}\n2898:{}\n289b:[]\n289c:{}\n289a:{\"nodeType\":\"text\",\"value\":\"âWe appreciated how Dr. Chung was honest with us about this being a big surgery,â Dallasâ mom, Tiffany, said. âFrom the start, he communicated so well, kept us in the know and made sure we understood everything that would happen.â \",\"marks\":\"$289b\",\"data\":\"$289c\"}\n2899:[\"$289a\"]\n2897:{\"nodeType\":\"paragraph\",\"data\":\"$2898\",\"content\":\"$2899\"}\n289e:{}\n28a1:[]\n28a2:{}\n28a0:{\"nodeType\":\"text\",\"value\":\"Over the course of a three-hour surgery, Dallas had an eight-pound cyst removed from his stomach. His care team kept a close eye on him as he recovered as some kids can develop a fluid leak after this type of surgery. But Dallas healed up well and showed no signs of complications. \",\"marks\":\"$28a1\",\"data\":\"$28a2\"}\n289f:[\"$28a0\"]\n289d:{\"nodeType\":\"paragraph\",\"data\":\"$289e\",\"content\":\"$289f\"}\n28a4:{}\n28a7:[]\n28a8:{}\n28a6:{\"nodeType\":\"text\",\"value\":\"âHe was on the up and up,â Victor, Dallasâ dad, said. âHe went back to school, back to playing football. But a few months later, he started having stomach issues again.â \",\"marks\":\"$28a7\",\"data\":\"$28a8\"}\n28a5:[\"$28a6\"]\n28a3:{\"nodeType\":\"paragraph\",\"data\":\"$28a4\",\"content\":\"$28a5\"}\n28aa:{}\n28ad:[]\n28ae:{}\n28ac:{\"nodeType\":\"text\",\"value\":\"As the demand for pediatric health care continues to rise in North Texas, Childrenâs Health is positioning itself to meet the unique and most complex needs of young patients like Dallas for decades to come. \",\"marks\":\"$28ad\",\"data\":\"$28ae\"}\n28ab:[\"$28ac\"]\n28a9:{\"nodeType\":\"paragraph\",\"data\":\"$28aa\",\"content\":\"$28ab\"}\n28b0:{}\n28b3:[]\n28b4:{}\n28b2:{\"nodeType\":\"text\",\"value\":\"After breaking ground in late 2024, Children"])</script>
1<script>self.__next_f.push([1,"âs Health, in collaboration with UT Southwestern Medical Center, kicked off the construction of a new Dallas pediatric campus that will feature more space and the latest in life-saving technologies to care for the next generation of kids. \",\"marks\":\"$28b3\",\"data\":\"$28b4\"}\n28b1:[\"$28b2\"]\n28af:{\"nodeType\":\"paragraph\",\"data\":\"$28b0\",\"content\":\"$28b1\"}\n28b6:{}\n28b9:[]\n28ba:{}\n28b8:{\"nodeType\":\"text\",\"value\":\"An unheard-of complication \",\"marks\":\"$28b9\",\"data\":\"$28ba\"}\n28b7:[\"$28b8\"]\n28b5:{\"nodeType\":\"heading-2\",\"data\":\"$28b6\",\"content\":\"$28b7\"}\n28bc:{}\n28bf:[]\n28c0:{}\n28be:{\"nodeType\":\"text\",\"value\":\"Dallasâ stomach issues brought him back to Children's Health. Tests revealed a chyle leak, which meant fluid from his lymphatic system was leaking into his abdomen. \",\"marks\":\"$28bf\",\"data\":\"$28c0\"}\n28bd:[\"$28be\"]\n28bb:{\"nodeType\":\"paragraph\",\"data\":\"$28bc\",\"content\":\"$28bd\"}\n28c2:{}\n28c5:[]\n28c6:{}\n28c4:{\"nodeType\":\"text\",\"value\":\"âThis type of leak is rare,â Dr. Chung said. âBut when leaks do happen, they happen right after surgery, so it didnât make any sense why he had this leak seven months later.â \",\"marks\":\"$28c5\",\"data\":\"$28c6\"}\n28c3:[\"$28c4\"]\n28c1:{\"nodeType\":\"paragraph\",\"data\":\"$28c2\",\"content\":\"$28c3\"}\n28c8:{}\n28cb:[]\n28cc:{}\n28ca:{\"nodeType\":\"text\",\"value\":\"In many cases, chyle leaks can heal by following a low-fat diet. Since bodies form chyle when digesting fat, eating less fat means a body will produce less chyle. And when thereâs less chyle, thereâs less pressure on the leak, allowing it to heal. \",\"marks\":\"$28cb\",\"data\":\"$28cc\"}\n28c9:[\"$28ca\"]\n28c7:{\"nodeType\":\"paragraph\",\"data\":\"$28c8\",\"content\":\"$28c9\"}\n28ce:{}\n28d1:[]\n28d2:{}\n28d0:{\"nodeType\":\"text\",\"value\":\"Although cutting out bacon and other favorite foods was no fun for Dallas, it helped him get better. But then heâd get worse again, before feeling better â again. With no consistent improvement, the care team moved to total parietal nutrition, where heâd get his nutrition from a formula through an IV. \",\"marks\":\"$28d1\",\"data"])</script>
1<script>self.__next_f.push([1,"\":\"$28d2\"}\n28cf:[\"$28d0\"]\n28cd:{\"nodeType\":\"paragraph\",\"data\":\"$28ce\",\"content\":\"$28cf\"}\n28d4:{}\n28d7:[]\n28d8:{}\n28d6:{\"nodeType\":\"text\",\"value\":\"After consulting experts across the country about other treatment options, Dr. Chung determined surgery to close the leak was Dallas' best option. \",\"marks\":\"$28d7\",\"data\":\"$28d8\"}\n28d5:[\"$28d6\"]\n28d3:{\"nodeType\":\"paragraph\",\"data\":\"$28d4\",\"content\":\"$28d5\"}\n28da:{}\n28dd:[]\n28de:{}\n28dc:{\"nodeType\":\"text\",\"value\":\"\\\"The surgery went well, and Dallas proved his resiliency yet again,\\\" Dr. Chung said. \",\"marks\":\"$28dd\",\"data\":\"$28de\"}\n28db:[\"$28dc\"]\n28d9:{\"nodeType\":\"paragraph\",\"data\":\"$28da\",\"content\":\"$28db\"}\n28e0:{}\n28e3:[]\n28e4:{}\n28e2:{\"nodeType\":\"text\",\"value\":\"Recently, after thorough analysis of a biopsy, Dallasâ care team discovered he was born with a rare genetic disorder that falls within the PIK3CA-related overgrowth spectrum, which causes the body to create too much tissue. His physicians prescribed him a new medication to help slow the abnormal tissue growth. \",\"marks\":\"$28e3\",\"data\":\"$28e4\"}\n28e1:[\"$28e2\"]\n28df:{\"nodeType\":\"paragraph\",\"data\":\"$28e0\",\"content\":\"$28e1\"}\n28e6:{}\n28e9:[]\n28ea:{}\n28e8:{\"nodeType\":\"text\",\"value\":\"For his family, the diagnosis has allowed them to better understand Dallas as they continue to support him on his care journey. \",\"marks\":\"$28e9\",\"data\":\"$28ea\"}\n28e7:[\"$28e8\"]\n28e5:{\"nodeType\":\"paragraph\",\"data\":\"$28e6\",\"content\":\"$28e7\"}\n28ec:{}\n28ef:[]\n28f0:{}\n28ee:{\"nodeType\":\"text\",\"value\":\"A doctor that makes all the difference \",\"marks\":\"$28ef\",\"data\":\"$28f0\"}\n28ed:[\"$28ee\"]\n28eb:{\"nodeType\":\"heading-2\",\"data\":\"$28ec\",\"content\":\"$28ed\"}\n28f2:{}\n28f5:[]\n28f6:{}\n28f4:{\"nodeType\":\"text\",\"value\":\"Because Dallas could still develop more cysts, heâll need ongoing checkups with his care team. But for now, he can focus on the things he loves, including football, playing outside, video games and his Pomeranian, Cocoa. \",\"marks\":\"$28f5\",\"data\":\"$28f6\"}\n28f3:[\"$28f4\"]\n28f1:{\"nodeType\":\"paragraph\",\"data\":\"$28f2\",\"content\":\"$28f3\"}\n28f8:{}"])</script>
1<script>self.__next_f.push([1,"\n28fb:[]\n28fc:{}\n28fa:{\"nodeType\":\"text\",\"value\":\"\\\"We deeply appreciate that Childrenâs Health has so many specialists in one place and is a place that really feels like itâs for kids,\\\" his dad, Victor, said. \\\"As a military family, we've moved around a lot â and we know firsthand that not all cities have a hospital that could've met Dallas' unique needs.\\\" \",\"marks\":\"$28fb\",\"data\":\"$28fc\"}\n28f9:[\"$28fa\"]\n28f7:{\"nodeType\":\"paragraph\",\"data\":\"$28f8\",\"content\":\"$28f9\"}\n28fe:{}\n2901:[]\n2902:{}\n2900:{\"nodeType\":\"text\",\"value\":\"And while Dallas remembers the fun times and the hospital cafeteriaâs spaghetti, when Tiffany and Victor think of Childrenâs Health, they think of Dr. Chung. \",\"marks\":\"$2901\",\"data\":\"$2902\"}\n28ff:[\"$2900\"]\n28fd:{\"nodeType\":\"paragraph\",\"data\":\"$28fe\",\"content\":\"$28ff\"}\n2904:{}\n2905:[]\n2903:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2904\",\"content\":\"$2905\"}\n2907:{}\n290a:[]\n290b:{}\n2909:{\"nodeType\":\"text\",\"value\":\"Dallas expressed his thanks to Dr. Chung with a letter and a drawing. The drawing shows a stick figure of Dr. Chung (wearing a superhero cape) removing a cyst (which Dallas drew as a bubble) from Dallasâ belly. \",\"marks\":\"$290a\",\"data\":\"$290b\"}\n2908:[\"$2909\"]\n2906:{\"nodeType\":\"paragraph\",\"data\":\"$2907\",\"content\":\"$2908\"}\n290d:{}
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1<script>self.__next_f.push([1,"flecting on how proud she was of Coco, her little girl, and how far sheâd come. \",\"marks\":\"$29ec\",\"data\":\"$29ed\"}\n29ea:[\"$29eb\"]\n29e8:{\"nodeType\":\"paragraph\",\"data\":\"$29e9\",\"content\":\"$29ea\"}\n29ef:{}\n29f2:[]\n29f3:{}\n29f1:{\"nodeType\":\"text\",\"value\":\"Before heading home, she sent a picture to the nurses who cared for her daughter during her long stays at Childrenâs Health â where their journey started after learning Cocoâs heart was on the wrong side of her body. \",\"marks\":\"$29f2\",\"data\":\"$29f3\"}\n29f0:[\"$29f1\"]\n29ee:{\"nodeType\":\"paragraph\",\"data\":\"$29ef\",\"content\":\"$29f0\"}\n29f5:{}\n29f8:[]\n29f9:{}\n29f7:{\"nodeType\":\"text\",\"value\":\"A series of heart problems \",\"marks\":\"$29f8\",\"data\":\"$29f9\"}\n29f6:[\"$29f7\"]\n29f4:{\"nodeType\":\"heading-2\",\"data\":\"$29f5\",\"content\":\"$29f6\"}\n29fb:{}\n29fe:[]\n29ff:{}\n29fd:{\"nodeType\":\"text\",\"value\":\"Rachel, her husband Aaron and surrogate mom Claire â now Cocoâs godmother â wondered what was happening when their pregnancy provider went quiet during the 14-week ultrasound. A day later, Rachel got a call that revealed why: something wasnât quite right with her babyâs heart. \",\"marks\":\"$29fe\",\"data\":\"$29ff\"}\n29fc:[\"$29fd\"]\n29fa:{\"nodeType\":\"paragraph\",\"data\":\"$29fb\",\"content\":\"$29fc\"}\n2a01:{}\n2a04:[]\n2a05:{}\n2a03:{\"nodeType\":\"text\",\"value\":\"âI tried to stay calm, reminding myself that heart problems are common and affect 1 out of 100 babies,â said Rachel, who is a cardiology nurse who cares for adults with heart problems. \",\"marks\":\"$2a04\",\"data\":\"$2a05\"}\n2a02:[\"$2a03\"]\n2a00:{\"nodeType\":\"paragraph\",\"data\":\"$2a01\",\"content\":\"$2a02\"}\n2a07:{}\n2a0a:[]\n2a0b:{}\n2a09:{\"nodeType\":\"text\",\"value\":\"But the fear sank in as they learned the complexity of Cocoâs heart anatomy: her heart was on the right side of her body, not the left (dextrocardia); the two main arteries going into the heart were reversed and in the wrong location (double outlet right ventricle and transposition of the great arteries); there was a hole between the heart chambers (atrioventricular canal defect); and she "])</script>
1<script>self.__next_f.push([1,"had an abnormal heart valve (pulmonary valve stenosis). \",\"marks\":\"$2a0a\",\"data\":\"$2a0b\"}\n2a08:[\"$2a09\"]\n2a06:{\"nodeType\":\"paragraph\",\"data\":\"$2a07\",\"content\":\"$2a08\"}\n2a0d:{}\n2a10:[]\n2a11:{}\n2a0f:{\"nodeType\":\"text\",\"value\":\"Their physicians referred the family to the Childrenâs Health Heart Center. Meeting Cocoâs team and discussing her care plan weeks before her birth helped ease Rachel and Aaronâs fears a bit. \",\"marks\":\"$2a10\",\"data\":\"$2a11\"}\n2a0e:[\"$2a0f\"]\n2a0c:{\"nodeType\":\"paragraph\",\"data\":\"$2a0d\",\"content\":\"$2a0e\"}\n2a13:{}\n2a16:[]\n2a17:{}\n2a15:{\"nodeType\":\"text\",\"value\":\"âWe met case managers, intensive care doctors and heart care coordinators from Dallas and Plano,â Rachel said. âThey had everything set up and ready for us and laid out plans for many different scenarios.â \",\"marks\":\"$2a16\",\"data\":\"$2a17\"}\n2a14:[\"$2a15\"]\n2a12:{\"nodeType\":\"paragraph\",\"data\":\"$2a13\",\"content\":\"$2a14\"}\n2a19:{}\n2a1c:[]\n2a1d:{}\n2a1b:{\"nodeType\":\"text\",\"value\":\"Cocoâs birth went smoothly, and Rachel and Aaron got a little bit of time with their new baby before she was transferred to the Heart Center at Childrenâs Health. \",\"marks\":\"$2a1c\",\"data\":\"$2a1d\"}\n2a1a:[\"$2a1b\"]\n2a18:{\"nodeType\":\"paragraph\",\"data\":\"$2a19\",\"content\":\"$2a1a\"}\n2a1f:{}\n2a22:[]\n2a23:{}\n2a21:{\"nodeType\":\"text\",\"value\":\"âIt was very surreal seeing her looking up at us because she looked just perfect and alert,â Rachel said. \",\"marks\":\"$2a22\",\"data\":\"$2a23\"}\n2a20:[\"$2a21\"]\n2a1e:{\"nodeType\":\"paragraph\",\"data\":\"$2a1f\",\"content\":\"$2a20\"}\n2a25:{}\n2a28:[]\n2a29:{}\n2a27:{\"nodeType\":\"text\",\"value\":\"The Heart Center care team kept a close eye on her oxygen levels and took echocardiograms to fully understand the anatomy of her heart. After a few days, Coco was breathing well enough to go home. The goal was for her to remain stable enough at home before undergoing surgery in a few months â a much safer option than having surgery as a newborn. She exceeded everyone's expectations when she made it almost a year without needing any intervention. \",\"ma"])</script>
1<script>self.__next_f.push([1,"rks\":\"$2a28\",\"data\":\"$2a29\"}\n2a26:[\"$2a27\"]\n2a24:{\"nodeType\":\"paragraph\",\"data\":\"$2a25\",\"content\":\"$2a26\"}\n2a2b:{}\n2a2e:[]\n2a2f:{}\n2a2d:{\"nodeType\":\"text\",\"value\":\"âWe were very blessed that first year,â Rachel said. âThe second year was when things got hard.â \",\"marks\":\"$2a2e\",\"data\":\"$2a2f\"}\n2a2c:[\"$2a2d\"]\n2a2a:{\"nodeType\":\"paragraph\",\"data\":\"$2a2b\",\"content\":\"$2a2c\"}\n2a31:{}\n2a34:[]\n2a35:{}\n2a33:{\"nodeType\":\"text\",\"value\":\"A detailed surgery plan \",\"marks\":\"$2a34\",\"data\":\"$2a35\"}\n2a32:[\"$2a33\"]\n2a30:{\"nodeType\":\"heading-2\",\"data\":\"$2a31\",\"content\":\"$2a32\"}\n2a37:{}\n2a3a:[]\n2a3b:{}\n2a39:{\"nodeType\":\"text\",\"value\":\"Historically, many children born with complex heart problems need either a heart transplant or a single ventricle repair, which repairs one side of the heart. But when only one side of the heart works properly, children often have poor circulation and other heart complications as they grow up. \",\"marks\":\"$2a3a\",\"data\":\"$2a3b\"}\n2a38:[\"$2a39\"]\n2a36:{\"nodeType\":\"paragraph\",\"data\":\"$2a37\",\"content\":\"$2a38\"}\n2a3d:{}\n2a40:[]\n2a41:{}\n2a3f:{\"nodeType\":\"text\",\"value\":\"Thatâs why Childrenâs Health launched a Pediatric Complex Biventricular Repair Program, led by Nicholas Andersen, M.D, Pediatric Cardiothoracic Surgeon at Childrenâs Health and Associate Professor at UT Southwestern Medical Center. The program offers biventricular repairs, fixing both sides of the heart, which typically leads to better long-term health. \",\"marks\":\"$2a40\",\"data\":\"$2a41\"}\n2a3e:[\"$2a3f\"]\n2a3c:{\"nodeType\":\"paragraph\",\"data\":\"$2a3d\",\"content\":\"$2a3e\"}\n2a43:{}\n2a46:[]\n2a47:{}\n2a45:{\"nodeType\":\"text\",\"value\":\"Their family initially considered going to Boston for Cocoâs care but decided to stay in Dallas when Childrenâs Health launched its Complex Biventricular Repair Program. \",\"marks\":\"$2a46\",\"data\":\"$2a47\"}\n2a44:[\"$2a45\"]\n2a42:{\"nodeType\":\"paragraph\",\"data\":\"$2a43\",\"content\":\"$2a44\"}\n2a49:{}\n2a4c:[]\n2a4d:{}\n2a4b:{\"nodeType\":\"text\",\"value\":\"Cocoâs heart anatomy was so complex that a traditional ultrasound didnât p"])</script>
1<script>self.__next_f.push([1,"rovide enough detail for her care team to plan her surgery, so they used a state-of-the-art 3D cardiac MRI to take very clear images. Then, physicians printed a 3D model of her heart and made digital scans that they could study in virtual reality. \",\"marks\":\"$2a4c\",\"data\":\"$2a4d\"}\n2a4a:[\"$2a4b\"]\n2a48:{\"nodeType\":\"paragraph\",\"data\":\"$2a49\",\"content\":\"$2a4a\"}\n2a4f:{}\n2a52:[]\n2a53:{}\n2a51:{\"nodeType\":\"text\",\"value\":\"These tools helped the care team determine that mending both sides of Cocoâs heart would be possible, and an important step before mapping out a two-stage surgery plan. \",\"marks\":\"$2a52\",\"data\":\"$2a53\"}\n2a50:[\"$2a51\"]\n2a4e:{\"nodeType\":\"paragraph\",\"data\":\"$2a4f\",\"content\":\"$2a50\"}\n2a55:{}\n2a58:[]\n2a59:{}\n2a57:{\"nodeType\":\"text\",\"value\":\"Whether powering our people and programs, both inside the hospital and within our communities, or furthering our ability to make breakthroughs happen, these extraordinary stories would not be possible without generous support from our donors. \",\"marks\":\"$2a58\",\"data\":\"$2a59\"}\n2a56:[\"$2a57\"]\n2a54:{\"nodeType\":\"paragraph\",\"data\":\"$2a55\",\"content\":\"$2a56\"}\n2a5b:{}\n2a5e:[]\n2a5f:{}\n2a5d:{\"nodeType\":\"text\",\"value\":\"As the health care needs of North Texas continue to grow, Childrenâs Health is spearheading an expansion that will strengthen our ability to care for the next generation of kids. Together with UT Southwestern Medical Center, Childrenâs Health is building a new Dallas pediatric campus that will further our ability to pioneer innovative, academic research and lifesaving technology and treatments to care for the regionâs, and the nationâs, most complex pediatric patients, like Coco. \",\"marks\":\"$2a5e\",\"data\":\"$2a5f\"}\n2a5c:[\"$2a5d\"]\n2a5a:{\"nodeType\":\"paragraph\",\"data\":\"$2a5b\",\"content\":\"$2a5c\"}\n2a61:{}\n2a64:[]\n2a65:{}\n2a63:{\"nodeType\":\"text\",\"value\":\"More than 100 days in the hospital \",\"marks\":\"$2a64\",\"data\":\"$2a65\"}\n2a62:[\"$2a63\"]\n2a60:{\"nodeType\":\"heading-2\",\"data\":\"$2a61\",\"content\":\"$2a62\"}\n2a67:{}\n2a6a:[]\n2a6b:{}\n2a69:{\"nodeType\":\"text\",\"value\":\"Cocoâs firs"])</script>
1<script>self.__next_f.push([1,"t surgery went smoothly, but recovery was difficult. \",\"marks\":\"$2a6a\",\"data\":\"$2a6b\"}\n2a68:[\"$2a69\"]\n2a66:{\"nodeType\":\"paragraph\",\"data\":\"$2a67\",\"content\":\"$2a68\"}\n2a6d:{}\n2a70:[]\n2a71:{}\n2a6f:{\"nodeType\":\"text\",\"value\":\"âThe first days after surgery were the worst,â Rachel said. âShe was struggling and the pressure in her heart was very high. There were so many doctors all around her.â \",\"marks\":\"$2a70\",\"data\":\"$2a71\"}\n2a6e:[\"$2a6f\"]\n2a6c:{\"nodeType\":\"paragraph\",\"data\":\"$2a6d\",\"content\":\"$2a6e\"}\n2a73:{}\n2a76:[]\n2a77:{}\n2a75:{\"nodeType\":\"text\",\"value\":\"Rachel and Aaron rarely left Cocoâs bedside as she recovered over the course of more than 100 days at Childrenâs Health. \",\"marks\":\"$2a76\",\"data\":\"$2a77\"}\n2a74:[\"$2a75\"]\n2a72:{\"nodeType\":\"paragraph\",\"data\":\"$2a73\",\"content\":\"$2a74\"}\n2a79:{}\n2a7c:[]\n2a7d:{}\n2a7b:{\"nodeType\":\"text\",\"value\":\"With the help of their care team, the family found small moments of joy â like decorating Cocoâs room and celebrating her first birthday with a special sign and balloons from the Child Life team, who work alongside medical staff to ensure a positive experience for our patients and their families. \",\"marks\":\"$2a7c\",\"data\":\"$2a7d\"}\n2a7a:[\"$2a7b\"]\n2a78:{\"nodeType\":\"paragraph\",\"data\":\"$2a79\",\"content\":\"$2a7a\"}\n2a7f:{}\n2a82:[]\n2a83:{}\n2a81:{\"nodeType\":\"text\",\"value\":\"When Coco was discharged and able to go home, her family stayed in daily contact with her care team. But a few months later, when Coco was lethargic and not acting like herself, her parents rushed her back to Childrenâs Health where they learned she had an infection and was experiencing severe kidney problems. \",\"marks\":\"$2a82\",\"data\":\"$2a83\"}\n2a80:[\"$2a81\"]\n2a7e:{\"nodeType\":\"paragraph\",\"data\":\"$2a7f\",\"content\":\"$2a80\"}\n2a85:{}\n2a86:[]\n2a84:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2a85\",\"content\":\"$2a86\"}\n2a88:{}\n2a8b:[]\n2a8c:{}\n2a8a:{\"nodeType\":\"text\",\"value\":\"At 17 months old, Coco went into her second heart surgery. Her care team used the 3D model and virtual reality to practice the surgery before "])</script>
1<script>self.__next_f.push([1,"performing it. \",\"marks\":\"$2a8b\",\"data\":\"$2a8c\"}\n2a89:[\"$2a8a\"]\n2a87:{\"nodeType\":\"paragraph\",\"data\":\"$2a88\",\"content\":\"$2a89\"}\n2a8e:{}\n2a91:[]\n2a92:{}\n2a90:{\"nodeType\":\"text\",\"value\":\"Rachel still has a screenshot of the text Dr. Andersen sent her from the operating room after the surgery. \",\"marks\":\"$2a91\",\"data\":\"$2a92\"}\n2a8f:[\"$2a90\"]\n2a8d:{\"nodeType\":\"paragraph\",\"data\":\"$2a8e\",\"content\":\"$2a8f\"}\n2a94:{}\n2a97:[]\n2a98:{}\n2a96:{\"nodeType\":\"text\",\"value\":\"âThe text read âHome run,â with a picture of her oxygen levels at 100%,â Rachel said. \",\"marks\":\"$2a97\",\"data\":\"$2a98\"}\n2a95:[\"$2a96\"]\n2a93:{\"nodeType\":\"paragraph\",\"data\":\"$2a94\",\"content\":\"$2a95\"}\n2a9a:{}\n2a9d:[]\n2a9e:{}\n2a9c:{\"nodeType\":\"text\",\"value\":\"Leading-edge care, close to home \",\"marks\":\"$2a9d\",\"data\":\"$2a9e\"}\n2a9b:[\"$2a9c\"]\n2a99:{\"nodeType\":\"heading-2\",\"data\":\"$2a9a\",\"content\":\"$2a9b\"}\n2aa0:{}\n2aa3:[]\n2aa4:{}\n2aa2:{\"nodeType\":\"text\",\"value\":\"Today, Coco is catching up on her milestones, loving her two dogs and getting into the routine of going to preschool. \",\"marks\":\"$2aa3\",\"data\":\"$2aa4\"}\n2aa1:[\"$2aa2\"]\n2a9f:{\"nodeType\":\"paragraph\",\"data\":\"$2aa0\",\"content\":\"$2aa1\"}\n2aa6:{}\n2aa9:[]\n2aaa:{}\n2aa8:{\"nodeType\":\"text\",\"value\":\"Looking back, Rachel appreciates so many things about Cocoâs care: The chaplain who was always there to listen, the support groups for families in the Heart Center, the nurses, therapists and child life specialists who made being in the hospital a little easier. \",\"marks\":\"$2aa9\",\"data\":\"$2aaa\"}\n2aa7:[\"$2aa8\"]\n2aa5:{\"nodeType\":\"paragraph\",\"data\":\"$2aa6\",\"content\":\"$2aa7\"}\n2aac:{}\n2aaf:[]\n2ab0:{}\n2aae:{\"nodeType\":\"text\",\"value\":\"âThe staff in the Heart Center became like family to us. They all knew Coco and genuinely cared for her. Coco didn't like being in the hospital and made it well known; nights were especially difficult,â Rachel said. âIn pediatrics, there is more room for humor and laughs. The staff went over and above to try to make her smile and get her, and us, through really hard times. As an adult nurse, w"])</script>
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1<script>self.__next_f.push([1,"025-12-12T16:51:26.925Z\",\"updatedAt\":\"2025-12-12T16:51:26.925Z\",\"environment\":\"$2b82\",\"publishedVersion\":12,\"revision\":1,\"contentType\":\"$2b84\",\"locale\":\"en-US\"}\n2b88:{}\n2b8b:{}\n2b8e:[]\n2b8f:{}\n2b8d:{\"nodeType\":\"text\",\"value\":\"When 3-year-old Clark smiles, his grin reveals more than just a sunny disposition. \",\"marks\":\"$2b8e\",\"data\":\"$2b8f\"}\n2b8c:[\"$2b8d\"]\n2b8a:{\"nodeType\":\"paragraph\",\"data\":\"$2b8b\",\"content\":\"$2b8c\"}\n2b91:{}\n2b94:[]\n2b95:{}\n2b93:{\"nodeType\":\"text\",\"value\":\"âClarkâs two front teeth are chipped, from two different falls. Heâs âall boy,ââ his mom, Danielle, said. âHeâs into animals and dinosaurs and just wants to be outside as much as possible â running, falling and bouncing off of things.â \",\"marks\":\"$2b94\",\"data\":\"$2b95\"}\n2b92:[\"$2b93\"]\n2b90:{\"nodeType\":\"paragraph\",\"data\":\"$2b91\",\"content\":\"$2b92\"}\n2b97:{}\n2b9a:[]\n2b9b:{}\n2b99:{\"nodeType\":\"text\",\"value\":\"But the Clark she describes today is different than the Clark that first entered the world. \",\"marks\":\"$2b9a\",\"data\":\"$2b9b\"}\n2b98:[\"$2b99\"]\n2b96:{\"nodeType\":\"paragraph\",\"data\":\"$2b97\",\"content\":\"$2b98\"}\n2b9d:{}\n2ba0:[]\n2ba1:{}\n2b9f:{\"nodeType\":\"text\",\"value\":\"A 50% chance of survival \",\"marks\":\"$2ba0\",\"data\":\"$2ba1\"}\n2b9e:[\"$2b9f\"]\n2b9c:{\"nodeType\":\"heading-2\",\"data\":\"$2b9d\",\"content\":\"$2b9e\"}\n2ba3:{}\n2ba6:[]\n2ba7:{}\n2ba5:{\"nodeType\":\"text\",\"value\":\"When Danielle and David, Clarkâs dad, were expecting their first child, they were thankful for a typical, healthy pregnancy. They went to birth classes together, read up on what to expect during pregnancy and couldnât wait to start their journey of parenthood. \",\"marks\":\"$2ba6\",\"data\":\"$2ba7\"}\n2ba4:[\"$2ba5\"]\n2ba2:{\"nodeType\":\"paragraph\",\"data\":\"$2ba3\",\"content\":\"$2ba4\"}\n2ba9:{}\n2bac:[]\n2bad:{}\n2bab:{\"nodeType\":\"text\",\"value\":\"And then, in the middle of what started as a regular birth, âthings hit the fan,â Danielle said. \",\"marks\":\"$2bac\",\"data\":\"$2bad\"}\n2baa:[\"$2bab\"]\n2ba8:{\"nodeType\":\"paragraph\",\"data\":\"$2ba9\",\"content\":\"$2baa\"}\n2baf:{}\n2bb2:[]\n2bb3:{}\n2bb1:{\"nodeType\":\"t"])</script>
1<script>self.__next_f.push([1,"ext\",\"value\":\"Their physician saw signs of meconium (a baby's first poop). Newborns usually poop within a day or two after birth. But if they do so during birth, there's a chance of the baby breathing in that poop and amniotic fluid, which can cause serious complications. \",\"marks\":\"$2bb2\",\"data\":\"$2bb3\"}\n2bb0:[\"$2bb1\"]\n2bae:{\"nodeType\":\"paragraph\",\"data\":\"$2baf\",\"content\":\"$2bb0\"}\n2bb5:{}\n2bb8:[]\n2bb9:{}\n2bb7:{\"nodeType\":\"text\",\"value\":\"âWhen he came out, he was awake but not making any noise,â Danielle said. \",\"marks\":\"$2bb8\",\"data\":\"$2bb9\"}\n2bb6:[\"$2bb7\"]\n2bb4:{\"nodeType\":\"paragraph\",\"data\":\"$2bb5\",\"content\":\"$2bb6\"}\n2bbb:{}\n2bbe:[]\n2bbf:{}\n2bbd:{\"nodeType\":\"text\",\"value\":\"Physicians whisked baby Clark away and diagnosed him with severe meconium aspiration syndrome. Having meconium in his lungs had led to hypoxic-ischemic encephalopathy, a condition where a babyâs brain does not get enough oxygen and blood during birth. \",\"marks\":\"$2bbe\",\"data\":\"$2bbf\"}\n2bbc:[\"$2bbd\"]\n2bba:{\"nodeType\":\"paragraph\",\"data\":\"$2bbb\",\"content\":\"$2bbc\"}\n2bc1:{}\n2bc4:[]\n2bc5:{}\n2bc3:{\"nodeType\":\"text\",\"value\":\"Physicians were concerned about his brain function â and the function of his heart and lungs. They sedated Clark and put him on a cooling blanket in the hopes of protecting his brain, and he required the help of a ventilator to breathe. \",\"marks\":\"$2bc4\",\"data\":\"$2bc5\"}\n2bc2:[\"$2bc3\"]\n2bc0:{\"nodeType\":\"paragraph\",\"data\":\"$2bc1\",\"content\":\"$2bc2\"}\n2bc7:{}\n2bca:[]\n2bcb:{}\n2bc9:{\"nodeType\":\"text\",\"value\":\"At 5:45 a.m. the next day, Danielle and David hurried to the Neonatal Intensive Care Unit (NICU) for a serious conversation. \",\"marks\":\"$2bca\",\"data\":\"$2bcb\"}\n2bc8:[\"$2bc9\"]\n2bc6:{\"nodeType\":\"paragraph\",\"data\":\"$2bc7\",\"content\":\"$2bc8\"}\n2bcd:{}\n2bd0:[]\n2bd1:{}\n2bcf:{\"nodeType\":\"text\",\"value\":\"âClark needs to be transported to Childrenâs Health for more specialized care â and thereâs a 50% chance he will not survive the ambulance ride,â their physician said. \",\"marks\":\"$2bd0\",\"data\":\"$2bd1\"}\n2bce:[\"$2bcf\"]\n2bcc:{\""])</script>
1<script>self.__next_f.push([1,"nodeType\":\"paragraph\",\"data\":\"$2bcd\",\"content\":\"$2bce\"}\n2bd3:{}\n2bd6:[]\n2bd7:{}\n2bd5:{\"nodeType\":\"text\",\"value\":\"An incredible improvement in the NICU \",\"marks\":\"$2bd6\",\"data\":\"$2bd7\"}\n2bd4:[\"$2bd5\"]\n2bd2:{\"nodeType\":\"heading-2\",\"data\":\"$2bd3\",\"content\":\"$2bd4\"}\n2bd9:{}\n2bdc:[]\n2bdd:{}\n2bdb:{\"nodeType\":\"text\",\"value\":\"David rode in the ambulance with Clark. \",\"marks\":\"$2bdc\",\"data\":\"$2bdd\"}\n2bda:[\"$2bdb\"]\n2bd8:{\"nodeType\":\"paragraph\",\"data\":\"$2bd9\",\"content\":\"$2bda\"}\n2bdf:{}\n2be0:[]\n2bde:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2bdf\",\"content\":\"$2be0\"}\n2be2:{}\n2be5:[]\n2be6:{}\n2be4:{\"nodeType\":\"text\",\"value\":\"In less than an hour, Clark was in the operating room, surrounded by the team who would connect him to a life support system called ECMO. This state-of-the-art machine can take over the function of a baby's heart and lungs, giving Clark's tiny lungs a chance to heal, and making sure he could get the oxygen he needed. \",\"marks\":\"$2be5\",\"data\":\"$2be6\"}\n2be3:[\"$2be4\"]\n2be1:{\"nodeType\":\"paragraph\",\"data\":\"$2be2\",\"content\":\"$2be3\"}\n2be8:{}\n2beb:[]\n2bec:{}\n2bea:{\"nodeType\":\"text\",\"value\":\"âFrom the moment Clark got to Childrenâs Health, his health and condition improved dramatically,â David said. \",\"marks\":\"$2beb\",\"data\":\"$2bec\"}\n2be9:[\"$2bea\"]\n2be7:{\"nodeType\":\"paragraph\",\"data\":\"$2be8\",\"content\":\"$2be9\"}\n2bee:{}\n2bf1:[]\n2bf2:{}\n2bf0:{\"nodeType\":\"text\",\"value\":\"Clark stayed on life-saving ECMO for about a week, with two staff members monitoring him 24/7. \",\"marks\":\"$2bf1\",\"data\":\"$2bf2\"}\n2bef:[\"$2bf0\"]\n2bed:{\"nodeType\":\"paragraph\",\"data\":\"$2bee\",\"content\":\"$2bef\"}\n2bf4:{}\n2bf7:[]\n2bf8:{}\n2bf6:{\"nodeType\":\"text\",\"value\":\"It took some time for Danielle and David to fully wrap their heads around how closely their care team monitored Clark and that he was one of the first babies to receive ECMO at Childrenâs Health. Prior to Clark, ECMO was only available for older kids in the Pediatric Intensive Care Unit (PICU). \",\"marks\":\"$2bf7\",\"data\":\"$2bf8\"}\n2bf5:[\"$2bf6\"]\n2bf3:{\"nodeType\":\"paragraph\",\"data\":\"$2bf4\""])</script>
1<script>self.__next_f.push([1,",\"content\":\"$2bf5\"}\n2bfa:{}\n2bfd:[]\n2bfe:{}\n2bfc:{\"nodeType\":\"text\",\"value\":\"While this lifesaving therapy has been available for kids for a while, its use in newborns is more recent. His family is deeply grateful that Clark had access to the latest in care, made possible in part by philanthropy. \",\"marks\":\"$2bfd\",\"data\":\"$2bfe\"}\n2bfb:[\"$2bfc\"]\n2bf9:{\"nodeType\":\"paragraph\",\"data\":\"$2bfa\",\"content\":\"$2bfb\"}\n2c00:{}\n2c03:[]\n2c04:{}\n2c02:{\"nodeType\":\"text\",\"value\":\"Ensuring more families like Clarkâs never have to leave North Texas to receive the health care their child needs, Childrenâs Health is investing in a new Dallas pediatric campus that will make room for emerging technology and foster deeper collaboration to make seemingly impossible discoveries that lead to possible new cures and treatments. \",\"marks\":\"$2c03\",\"data\":\"$2c04\"}\n2c01:[\"$2c02\"]\n2bff:{\"nodeType\":\"paragraph\",\"data\":\"$2c00\",\"content\":\"$2c01\"}\n2c06:{}\n2c09:[]\n2c0a:{}\n2c08:{\"nodeType\":\"text\",\"value\":\"A joint investment with UT Southwestern Medical Center, the new campus will be transformative for pediatric health care and will ensure we are ready to meet the unique and wide-ranging needs of the regionâs future pediatric population for decades to come. \",\"marks\":\"$2c09\",\"data\":\"$2c0a\"}\n2c07:[\"$2c08\"]\n2c05:{\"nodeType\":\"paragraph\",\"data\":\"$2c06\",\"content\":\"$2c07\"}\n2c0c:{}\n2c0f:[]\n2c10:{}\n2c0e:{\"nodeType\":\"text\",\"value\":\"An unforgettable team of experts \",\"marks\":\"$2c0f\",\"data\":\"$2c10\"}\n2c0d:[\"$2c0e\"]\n2c0b:{\"nodeType\":\"heading-2\",\"data\":\"$2c0c\",\"content\":\"$2c0d\"}\n2c12:{}\n2c15:[]\n2c16:{}\n2c14:{\"nodeType\":\"text\",\"value\":\"Having two full-time NICU nurses watching over Clark meant Danielle and David could be by his side at the hospital from his first feeding in the early morning to his last one in the early evening. And then, they could go home to sleep in their own bed, confident their son was in the best hands possible. \",\"marks\":\"$2c15\",\"data\":\"$2c16\"}\n2c13:[\"$2c14\"]\n2c11:{\"nodeType\":\"paragraph\",\"data\":\"$2c12\",\"content\":\"$2c13\"}\n2c18:{}\n2c1b:[]\n2c1"])</script>
1<script>self.__next_f.push([1,"c:{}\n2c1a:{\"nodeType\":\"text\",\"value\":\"âThe Childrenâs Health NICU nurses were incredibly helpful and reassuring,â David said. âThey were always ready to give us an update as soon as we woke up.â \",\"marks\":\"$2c1b\",\"data\":\"$2c1c\"}\n2c19:[\"$2c1a\"]\n2c17:{\"nodeType\":\"paragraph\",\"data\":\"$2c18\",\"content\":\"$2c19\"}\n2c1e:{}\n2c21:[]\n2c22:{}\n2c20:{\"nodeType\":\"text\",\"value\":\"Danielle recalls some of the little things the nurses did to make Clarkâs time in the hospital easier and to help her bond with a baby she couldnât hold until he was 20 days old, like giving Clark pieces of fabric sheâd keep under her clothes so heâd be familiar with her scent. \",\"marks\":\"$2c21\",\"data\":\"$2c22\"}\n2c1f:[\"$2c20\"]\n2c1d:{\"nodeType\":\"paragraph\",\"data\":\"$2c1e\",\"content\":\"$2c1f\"}\n2c24:{}\n2c27:[]\n2c28:{}\n2c26:{\"nodeType\":\"text\",\"value\":\"âWe did that every day, and it helped us feel more bonded,â Danielle said. \",\"marks\":\"$2c27\",\"data\":\"$2c28\"}\n2c25:[\"$2c26\"]\n2c23:{\"nodeType\":\"paragraph\",\"data\":\"$2c24\",\"content\":\"$2c25\"}\n2c2a:{}\n2c2d:[]\n2c2e:{}\n2c2c:{\"nodeType\":\"text\",\"value\":\"Danielle also canât say enough about the outstanding care they received from Dr. Sushmita Yallapragada, M.D., neonatologist and associate professor at UT Southwestern. \",\"marks\":\"$2c2d\",\"data\":\"$2c2e\"}\n2c2b:[\"$2c2c\"]\n2c29:{\"nodeType\":\"paragraph\",\"data\":\"$2c2a\",\"content\":\"$2c2b\"}\n2c30:{}\n2c33:[]\n2c34:{}\n2c32:{\"nodeType\":\"text\",\"value\":\"âIâm so obsessed with how wonderful Dr. Yallapragada is that if she asked me to do just about anything, Iâd do it,ââ Danielle said. \",\"marks\":\"$2c33\",\"data\":\"$2c34\"}\n2c31:[\"$2c32\"]\n2c2f:{\"nodeType\":\"paragraph\",\"data\":\"$2c30\",\"content\":\"$2c31\"}\n2c36:{}\n2c39:[]\n2c3a:{}\n2c38:{\"nodeType\":\"text\",\"value\":\"David also appreciated how welcoming the staff was of their large, extended family who wanted to be at the hospital as much as possible. Heâll never forget the day when Clark was finally strong enough for them to hold him â and how the staff helped Clarkâs grandparents and aunts and uncles hold him too, even thou"])</script>
1<script>self.__next_f.push([1,"gh he was still connected to several tubes. \",\"marks\":\"$2c39\",\"data\":\"$2c3a\"}\n2c37:[\"$2c38\"]\n2c35:{\"nodeType\":\"paragraph\",\"data\":\"$2c36\",\"content\":\"$2c37\"}\n2c3c:{}\n2c3f:[]\n2c40:{}\n2c3e:{\"nodeType\":\"text\",\"value\":\"Feeling forever grateful \",\"marks\":\"$2c3f\",\"data\":\"$2c40\"}\n2c3d:[\"$2c3e\"]\n2c3b:{\"nodeType\":\"heading-2\",\"data\":\"$2c3c\",\"content\":\"$2c3d\"}\n2c42:{}\n2c45:[]\n2c46:{}\n2c44:{\"nodeType\":\"text\",\"value\":\"After 40 days in the hospital, Clarkâs little body was finally strong and healthy enough to go home. \",\"marks\":\"$2c45\",\"data\":\"$2c46\"}\n2c43:[\"$2c44\"]\n2c41:{\"nodeType\":\"paragraph\",\"data\":\"$2c42\",\"content\":\"$2c43\"}\n2c48:{}\n2c4b:[]\n2c4c:{}\n2c4a:{\"nodeType\":\"text\",\"value\":\"For the next several months, they took him for various tests and follow-up appointments to make sure he was developing typically. They also participated in the Children's Health Thrive Program, for babies who have graduated from a stay at the NICU. \",\"marks\":\"$2c4b\",\"data\":\"$2c4c\"}\n2c49:[\"$2c4a\"]\n2c47:{\"nodeType\":\"paragraph\",\"data\":\"$2c48\",\"content\":\"$2c49\"}\n2c4e:{}\n2c4f:[]\n2c4d:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2c4e\",\"content\":\"$2c4f\"}\n2c51:{}\n2c54:[]\n2c55:{}\n2c53:{\"nodeType\":\"text\",\"value\":\"While Danielle and David are happy to leave their time in the hospital behind, theyâre also determined not to forget the incredible care they received. \",\"marks\":\"$2c54\",\"data\":\"$2c55\"}\n2c52:[\"$2c53\"]\n2c50:{\"nodeType\":\"paragraph\",\"data\":\"$2c51\",\"content\":\"$2c52\"}\n2c57:{}\n2c5a:[]\n2c5b:{}\n2c59:{\"nodeType\":\"text\",\"value\":\"The family has started an annual tradition of gathering donations for Childrenâs Health to show their appreciation for the exceptional care they received.\",\"marks\":\"$2c5a\",\"data\":\"$2c5b\"}\n2c5e:{\"type\":\"bold\"}\n2c5d:[\"$2c5e\"]\n2c5f:{}\n2c5c:{\"nodeType\":\"text\",\"value\":\" \",\"marks\":\"$2c5d\",\"data\":\"$2c5f\"}\n2c61:[]\n2c62:{}\n2c60:{\"nodeType\":\"text\",\"value\":\"Theyâre also big supporters of the expansion of the hospital because they know that the more beds that are available, the more kids who can get the care they need. \",\"marks\":\"$2c61\",\"d"])</script>
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1<script>self.__next_f.push([1,"er have imagined that they would soon experience the impossible. \",\"marks\":\"$2d37\",\"data\":\"$2d38\"}\n2d35:[\"$2d36\"]\n2d33:{\"nodeType\":\"paragraph\",\"data\":\"$2d34\",\"content\":\"$2d35\"}\n2d3a:{}\n2d3d:[]\n2d3e:{}\n2d3c:{\"nodeType\":\"text\",\"value\":\"Although he didnât think much of it at first, his parents became increasingly worried after noticing Bo struggled to keep any food down. They had already taken him to different hospitals and clinics, where physicians had seemingly failed to get to the root of the cause of his symptoms. \",\"marks\":\"$2d3d\",\"data\":\"$2d3e\"}\n2d3b:[\"$2d3c\"]\n2d39:{\"nodeType\":\"paragraph\",\"data\":\"$2d3a\",\"content\":\"$2d3b\"}\n2d40:{}\n2d43:[]\n2d44:{}\n2d42:{\"nodeType\":\"text\",\"value\":\"âI told him, âIf youâre not able to keep these French fries down, weâre going to go to Childrenâs Health,ââ his dad, Shannon, said. âWell, he was not able to.â \",\"marks\":\"$2d43\",\"data\":\"$2d44\"}\n2d41:[\"$2d42\"]\n2d3f:{\"nodeType\":\"paragraph\",\"data\":\"$2d40\",\"content\":\"$2d41\"}\n2d46:{}\n2d49:[]\n2d4a:{}\n2d48:{\"nodeType\":\"text\",\"value\":\"Upon their arrival at Childrenâs Health, his care team began running some tests. Bo was dehydrated, and they had discovered that his white blood count was elevated. \",\"marks\":\"$2d49\",\"data\":\"$2d4a\"}\n2d47:[\"$2d48\"]\n2d45:{\"nodeType\":\"paragraph\",\"data\":\"$2d46\",\"content\":\"$2d47\"}\n2d4c:{}\n2d4f:[]\n2d50:{}\n2d4e:{\"nodeType\":\"text\",\"value\":\"His physicians suspected he was dealing with an infection, so he stayed at the hospital overnight for more tests. \",\"marks\":\"$2d4f\",\"data\":\"$2d50\"}\n2d4d:[\"$2d4e\"]\n2d4b:{\"nodeType\":\"paragraph\",\"data\":\"$2d4c\",\"content\":\"$2d4d\"}\n2d52:{}\n2d53:[]\n2d51:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2d52\",\"content\":\"$2d53\"}\n2d55:{}\n2d58:[]\n2d59:{}\n2d57:{\"nodeType\":\"text\",\"value\":\"The next day, Bo complained about his head hurting badly, so his physicians ordered a CT scan â which revealed that the infection was in his brain. After a thorough evaluation, they diagnosed him with meningitis, a viral or bacterial infection in the membranes surrounding the brain and spinal cord"])</script>
1<script>self.__next_f.push([1,". \",\"marks\":\"$2d58\",\"data\":\"$2d59\"}\n2d56:[\"$2d57\"]\n2d54:{\"nodeType\":\"paragraph\",\"data\":\"$2d55\",\"content\":\"$2d56\"}\n2d5b:{}\n2d5e:[]\n2d5f:{}\n2d5d:{\"nodeType\":\"text\",\"value\":\"Then, physicians rushed Bo into his first emergency brain surgery. \",\"marks\":\"$2d5e\",\"data\":\"$2d5f\"}\n2d5c:[\"$2d5d\"]\n2d5a:{\"nodeType\":\"paragraph\",\"data\":\"$2d5b\",\"content\":\"$2d5c\"}\n2d61:{}\n2d64:[]\n2d65:{}\n2d63:{\"nodeType\":\"text\",\"value\":\"âSurrounded by a lot of helpâ \",\"marks\":\"$2d64\",\"data\":\"$2d65\"}\n2d62:[\"$2d63\"]\n2d60:{\"nodeType\":\"heading-2\",\"data\":\"$2d61\",\"content\":\"$2d62\"}\n2d67:{}\n2d6a:[]\n2d6b:{}\n2d69:{\"nodeType\":\"text\",\"value\":\"Over the next two months, physicians performed four successful brain surgeries on Bo. \",\"marks\":\"$2d6a\",\"data\":\"$2d6b\"}\n2d68:[\"$2d69\"]\n2d66:{\"nodeType\":\"paragraph\",\"data\":\"$2d67\",\"content\":\"$2d68\"}\n2d6d:{}\n2d70:[]\n2d71:{}\n2d6f:{\"nodeType\":\"text\",\"value\":\"âIt was scary, but child life specialists helped calm me down by giving me squishy toys and explaining what was going to happen,â he said. \",\"marks\":\"$2d70\",\"data\":\"$2d71\"}\n2d6e:[\"$2d6f\"]\n2d6c:{\"nodeType\":\"paragraph\",\"data\":\"$2d6d\",\"content\":\"$2d6e\"}\n2d73:{}\n2d76:[]\n2d77:{}\n2d75:{\"nodeType\":\"text\",\"value\":\"Minnie the Goldendoodle, one of the pet therapy dogs at Childrenâs Health, escorted Bo to one of his surgeries, distracting him and easing his nerves ahead of entering the operating room. Child Life and the Pet Therapy program are among the services available to families at Childrenâs Health that aim to ensure they have a positive experience while at the hospital. They come at no cost to patient families and instead rely on philanthropic support. \",\"marks\":\"$2d76\",\"data\":\"$2d77\"}\n2d74:[\"$2d75\"]\n2d72:{\"nodeType\":\"paragraph\",\"data\":\"$2d73\",\"content\":\"$2d74\"}\n2d79:{}\n2d7c:[]\n2d7d:{}\n2d7b:{\"nodeType\":\"text\",\"value\":\"âWhen Minnie walked in the room, I was like, âOh, thatâs my dream breed!â She helped me calm down and was right there by my side during the hard times,â Bo said. âThen my dad told me after everything that Iâve been through, heâll g"])</script>
1<script>self.__next_f.push([1,"ive me a dog.â \",\"marks\":\"$2d7c\",\"data\":\"$2d7d\"}\n2d7a:[\"$2d7b\"]\n2d78:{\"nodeType\":\"paragraph\",\"data\":\"$2d79\",\"content\":\"$2d7a\"}\n2d7f:{}\n2d82:[]\n2d83:{}\n2d81:{\"nodeType\":\"text\",\"value\":\"Shannon felt relieved about his decision to bring his son to a hospital that specializes in caring for children â a hospital where team members consider and listen to the kids when making decisions about their care. \",\"marks\":\"$2d82\",\"data\":\"$2d83\"}\n2d80:[\"$2d81\"]\n2d7e:{\"nodeType\":\"paragraph\",\"data\":\"$2d7f\",\"content\":\"$2d80\"}\n2d85:{}\n2d86:[]\n2d84:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2d85\",\"content\":\"$2d86\"}\n2d88:{}\n2d8b:[]\n2d8c:{}\n2d8a:{\"nodeType\":\"text\",\"value\":\"Bo and his family felt supported not only by their faith and family, but also by their care team, who were there for them every step of their journey at Childrenâs Health. \",\"marks\":\"$2d8b\",\"data\":\"$2d8c\"}\n2d89:[\"$2d8a\"]\n2d87:{\"nodeType\":\"paragraph\",\"data\":\"$2d88\",\"content\":\"$2d89\"}\n2d8e:{}\n2d91:[]\n2d92:{}\n2d90:{\"nodeType\":\"text\",\"value\":\"âWe were never really alone,â his dad, Shannon, said. âWe were surrounded by a lot of help. That really helped get us through.â \",\"marks\":\"$2d91\",\"data\":\"$2d92\"}\n2d8f:[\"$2d90\"]\n2d8d:{\"nodeType\":\"paragraph\",\"data\":\"$2d8e\",\"content\":\"$2d8f\"}\n2d94:{}\n2d97:[]\n2d98:{}\n2d96:{\"nodeType\":\"text\",\"value\":\"Aiming to provide the same kind of incredible care, attention and experience to more families across North Texas and beyond, Childrenâs Health is embarking on a transformative project â a new Dallas pediatric campus. \",\"marks\":\"$2d97\",\"data\":\"$2d98\"}\n2d95:[\"$2d96\"]\n2d93:{\"nodeType\":\"paragraph\",\"data\":\"$2d94\",\"content\":\"$2d95\"}\n2d9a:{}\n2d9d:[]\n2d9e:{}\n2d9c:{\"nodeType\":\"text\",\"value\":\"The new campus, a joint investment with UT Southwestern Medical Center, will ensure Childrenâs Health can grow along with its community and further its ability to pioneer innovative academic research and lifesaving technology and treatments with an exclusive focus on the unique needs of children like Bo. \",\"marks\":\"$2d9d\",\"data\":\"$2d9e\"}\n2d9b:"])</script>
1<script>self.__next_f.push([1,"[\"$2d9c\"]\n2d99:{\"nodeType\":\"paragraph\",\"data\":\"$2d9a\",\"content\":\"$2d9b\"}\n2da0:{}\n2da3:[]\n2da4:{}\n2da2:{\"nodeType\":\"text\",\"value\":\"Regaining his strength \",\"marks\":\"$2da3\",\"data\":\"$2da4\"}\n2da1:[\"$2da2\"]\n2d9f:{\"nodeType\":\"heading-2\",\"data\":\"$2da0\",\"content\":\"$2da1\"}\n2da6:{}\n2da9:[]\n2daa:{}\n2da8:{\"nodeType\":\"text\",\"value\":\"After his surgeries, Bo had limited mobility on the left side of his body. \",\"marks\":\"$2da9\",\"data\":\"$2daa\"}\n2da7:[\"$2da8\"]\n2da5:{\"nodeType\":\"paragraph\",\"data\":\"$2da6\",\"content\":\"$2da7\"}\n2dac:{}\n2daf:[]\n2db0:{}\n2dae:{\"nodeType\":\"text\",\"value\":\"He remained at Childrenâs Health for rehabilitation, where physical therapists helped him relearn how to move his left arm, hand and foot again. \",\"marks\":\"$2daf\",\"data\":\"$2db0\"}\n2dad:[\"$2dae\"]\n2dab:{\"nodeType\":\"paragraph\",\"data\":\"$2dac\",\"content\":\"$2dad\"}\n2db2:{}\n2db5:[]\n2db6:{}\n2db4:{\"nodeType\":\"text\",\"value\":\"âThey helped me gain my strength back,â he said. \",\"marks\":\"$2db5\",\"data\":\"$2db6\"}\n2db3:[\"$2db4\"]\n2db1:{\"nodeType\":\"paragraph\",\"data\":\"$2db2\",\"content\":\"$2db3\"}\n2db8:{}\n2dbb:[]\n2dbc:{}\n2dba:{\"nodeType\":\"text\",\"value\":\"The process went smoothly thanks to his care team, familyâs support and resilience. \",\"marks\":\"$2dbb\",\"data\":\"$2dbc\"}\n2db9:[\"$2dba\"]\n2db7:{\"nodeType\":\"paragraph\",\"data\":\"$2db8\",\"content\":\"$2db9\"}\n2dbe:{}\n2dc1:[]\n2dc2:{}\n2dc0:{\"nodeType\":\"text\",\"value\":\"At 10 years old, Bo had faced the toughest challenges of his young life, but he never let that get his spirits down. \",\"marks\":\"$2dc1\",\"data\":\"$2dc2\"}\n2dbf:[\"$2dc0\"]\n2dbd:{\"nodeType\":\"paragraph\",\"data\":\"$2dbe\",\"content\":\"$2dbf\"}\n2dc4:{}\n2dc7:[]\n2dc8:{}\n2dc6:{\"nodeType\":\"text\",\"value\":\"While hospitalized, he hosted a game of bingo and taught other patients how to make salsa at a cooking show broadcast from Seacrest Studios, the hospital's own interactive TV and radio production studio. \",\"marks\":\"$2dc7\",\"data\":\"$2dc8\"}\n2dc5:[\"$2dc6\"]\n2dc3:{\"nodeType\":\"paragraph\",\"data\":\"$2dc4\",\"content\":\"$2dc5\"}\n2dca:{}\n2dcd:[]\n2dce:{}\n2dcc:{\"nodeType\":\"text\",\"value\":\"âIt felt really good to be i"])</script>
1<script>self.__next_f.push([1,"ncluded in that,â Bo said. \",\"marks\":\"$2dcd\",\"data\":\"$2dce\"}\n2dcb:[\"$2dcc\"]\n2dc9:{\"nodeType\":\"paragraph\",\"data\":\"$2dca\",\"content\":\"$2dcb\"}\n2dd0:{}\n2dd3:[]\n2dd4:{}\n2dd2:{\"nodeType\":\"text\",\"value\":\"Once he felt better, Bo, who at the time was also his schoolâs student council president, made time to hop onto a video call to check in with the student body whoâd been wondering where heâd gone. \",\"marks\":\"$2dd3\",\"data\":\"$2dd4\"}\n2dd1:[\"$2dd2\"]\n2dcf:{\"nodeType\":\"paragraph\",\"data\":\"$2dd0\",\"content\":\"$2dd1\"}\n2dd6:{}\n2dd9:[]\n2dda:{}\n2dd8:{\"nodeType\":\"text\",\"value\":\"Boâs homecoming \",\"marks\":\"$2dd9\",\"data\":\"$2dda\"}\n2dd7:[\"$2dd8\"]\n2dd5:{\"nodeType\":\"heading-2\",\"data\":\"$2dd6\",\"content\":\"$2dd7\"}\n2ddc:{}\n2ddf:[]\n2de0:{}\n2dde:{\"nodeType\":\"text\",\"value\":\"Bo was discharged from the hospital on the last day of school â and he couldnât pass an opportunity to surprise his classmates. \",\"marks\":\"$2ddf\",\"data\":\"$2de0\"}\n2ddd:[\"$2dde\"]\n2ddb:{\"nodeType\":\"paragraph\",\"data\":\"$2ddc\",\"content\":\"$2ddd\"}\n2de2:{}\n2de5:[]\n2de6:{}\n2de4:{\"nodeType\":\"text\",\"value\":\"So, before heading back home, he and his family stopped by his school. Upon his arrival, his teachers held an impromptu parade through the campus, where he got to celebrate his return with other students. \",\"marks\":\"$2de5\",\"data\":\"$2de6\"}\n2de3:[\"$2de4\"]\n2de1:{\"nodeType\":\"paragraph\",\"data\":\"$2de2\",\"content\":\"$2de3\"}\n2de8:{}\n2deb:[]\n2dec:{}\n2dea:{\"nodeType\":\"text\",\"value\":\"âIt felt good to be missed,â he said. âA lot of people were missing me and were excited and happy to see me that day.â \",\"marks\":\"$2deb\",\"data\":\"$2dec\"}\n2de9:[\"$2dea\"]\n2de7:{\"nodeType\":\"paragraph\",\"data\":\"$2de8\",\"content\":\"$2de9\"}\n2dee:{}\n2df1:[]\n2df2:{}\n2df0:{\"nodeType\":\"text\",\"value\":\"Now 11 years old, Bo continues to be âthe life of the party,â his dad said. \",\"marks\":\"$2df1\",\"data\":\"$2df2\"}\n2def:[\"$2df0\"]\n2ded:{\"nodeType\":\"paragraph\",\"data\":\"$2dee\",\"content\":\"$2def\"}\n2df4:{}\n2df7:[]\n2df8:{}\n2df6:{\"nodeType\":\"text\",\"value\":\"When he grows up, Bo dreams of becoming a lawyer to help other people a"])</script>
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1<script>self.__next_f.push([1,"lus a group of nurses and child life specialists who went above and beyond to make sure the event was a total blast. \",\"marks\":\"$2ef4\",\"data\":\"$2ef5\"}\n2ef2:[\"$2ef3\"]\n2ef0:{\"nodeType\":\"paragraph\",\"data\":\"$2ef1\",\"content\":\"$2ef2\"}\n2ef7:{}\n2efa:[]\n2efb:{}\n2ef9:{\"nodeType\":\"text\",\"value\":\"The genuine love and care he experienced that day had a healing, long-lasting impact on 15-year-old Avery. \",\"marks\":\"$2efa\",\"data\":\"$2efb\"}\n2ef8:[\"$2ef9\"]\n2ef6:{\"nodeType\":\"paragraph\",\"data\":\"$2ef7\",\"content\":\"$2ef8\"}\n2efd:{}\n2f00:[]\n2f01:{}\n2eff:{\"nodeType\":\"text\",\"value\":\"âI felt so comfortable being at Childrenâs Health. Everyone was always so kind and made me feel like I belonged,â he said. âI wouldnât be here today without them.â \",\"marks\":\"$2f00\",\"data\":\"$2f01\"}\n2efe:[\"$2eff\"]\n2efc:{\"nodeType\":\"paragraph\",\"data\":\"$2efd\",\"content\":\"$2efe\"}\n2f03:{}\n2f06:[]\n2f07:{}\n2f05:{\"nodeType\":\"text\",\"value\":\"But before he made the memories that heâll remember fondly for the rest of his life, Avery and his family experienced the impossible when their lives were suddenly turned upside down. \",\"marks\":\"$2f06\",\"data\":\"$2f07\"}\n2f04:[\"$2f05\"]\n2f02:{\"nodeType\":\"paragraph\",\"data\":\"$2f03\",\"content\":\"$2f04\"}\n2f09:{}\n2f0c:[]\n2f0d:{}\n2f0b:{\"nodeType\":\"text\",\"value\":\"A shocking diagnosis \",\"marks\":\"$2f0c\",\"data\":\"$2f0d\"}\n2f0a:[\"$2f0b\"]\n2f08:{\"nodeType\":\"heading-2\",\"data\":\"$2f09\",\"content\":\"$2f0a\"}\n2f0f:{}\n2f12:[]\n2f13:{}\n2f11:{\"nodeType\":\"text\",\"value\":\"In the summer of 2023, Avery started to get really bad headaches every morning. They were so bad he didnât want to go to football practice. \",\"marks\":\"$2f12\",\"data\":\"$2f13\"}\n2f10:[\"$2f11\"]\n2f0e:{\"nodeType\":\"paragraph\",\"data\":\"$2f0f\",\"content\":\"$2f10\"}\n2f15:{}\n2f18:[]\n2f19:{}\n2f17:{\"nodeType\":\"text\",\"value\":\"âI canât even describe the pain; it was so terrible. I thought they were migraines,â he said. \",\"marks\":\"$2f18\",\"data\":\"$2f19\"}\n2f16:[\"$2f17\"]\n2f14:{\"nodeType\":\"paragraph\",\"data\":\"$2f15\",\"content\":\"$2f16\"}\n2f1b:{}\n2f1e:[]\n2f1f:{}\n2f1d:{\"nodeType\":\"text\",\"value\":\"Avery's vision t"])</script>
1<script>self.__next_f.push([1,"hen started to decline, so an optometrist gave him a new glasses prescription. When he started throwing up, physicians said it was only a stomach virus. \",\"marks\":\"$2f1e\",\"data\":\"$2f1f\"}\n2f1c:[\"$2f1d\"]\n2f1a:{\"nodeType\":\"paragraph\",\"data\":\"$2f1b\",\"content\":\"$2f1c\"}\n2f21:{}\n2f24:[]\n2f25:{}\n2f23:{\"nodeType\":\"text\",\"value\":\"But Averyâs mom, LaSonya, wasnât satisfied. Avery had lost 20 pounds, and her motherâs intuition told her to take him to the trusted pediatrician whoâd known her son his whole life. \",\"marks\":\"$2f24\",\"data\":\"$2f25\"}\n2f22:[\"$2f23\"]\n2f20:{\"nodeType\":\"paragraph\",\"data\":\"$2f21\",\"content\":\"$2f22\"}\n2f27:{}\n2f2a:[]\n2f2b:{}\n2f29:{\"nodeType\":\"text\",\"value\":\"Their pediatrician pieced together Avery's symptoms and ordered an emergency CT scan. \",\"marks\":\"$2f2a\",\"data\":\"$2f2b\"}\n2f28:[\"$2f29\"]\n2f26:{\"nodeType\":\"paragraph\",\"data\":\"$2f27\",\"content\":\"$2f28\"}\n2f2d:{}\n2f30:[]\n2f31:{}\n2f2f:{\"nodeType\":\"text\",\"value\":\"Avery will never forget the words that came out of his pediatricianâs mouth. They had discovered a mass inside of Averyâs brain, and they wanted to rush him to Childrenâs Health immediately. \",\"marks\":\"$2f30\",\"data\":\"$2f31\"}\n2f2e:[\"$2f2f\"]\n2f2c:{\"nodeType\":\"paragraph\",\"data\":\"$2f2d\",\"content\":\"$2f2e\"}\n2f33:{}\n2f36:[]\n2f37:{}\n2f35:{\"nodeType\":\"text\",\"value\":\"âIt was shocking â so shocking that I wasnât able to process it until much later,â Avery said. \",\"marks\":\"$2f36\",\"data\":\"$2f37\"}\n2f34:[\"$2f35\"]\n2f32:{\"nodeType\":\"paragraph\",\"data\":\"$2f33\",\"content\":\"$2f34\"}\n2f39:{}\n2f3c:[]\n2f3d:{}\n2f3b:{\"nodeType\":\"text\",\"value\":\"Another opportunity for Avery \",\"marks\":\"$2f3c\",\"data\":\"$2f3d\"}\n2f3a:[\"$2f3b\"]\n2f38:{\"nodeType\":\"heading-2\",\"data\":\"$2f39\",\"content\":\"$2f3a\"}\n2f3f:{}\n2f42:[]\n2f43:{}\n2f41:{\"nodeType\":\"text\",\"value\":\"Just 90 minutes later, physicians at Childrenâs Health prepped Avery for emergency brain surgery to remove the spinal fluid that had built up in his brain. \",\"marks\":\"$2f42\",\"data\":\"$2f43\"}\n2f40:[\"$2f41\"]\n2f3e:{\"nodeType\":\"paragraph\",\"data\":\"$2f3f\",\"content\":\"$2f40\"}\n2f45:"])</script>
1<script>self.__next_f.push([1,"{}\n2f48:[]\n2f49:{}\n2f47:{\"nodeType\":\"text\",\"value\":\"He then received three rounds of chemotherapy to get rid of the cancerous part of his mixed malignant germ cell tumor, a tumor thatâs part cancerous and part non-cancerous. \",\"marks\":\"$2f48\",\"data\":\"$2f49\"}\n2f46:[\"$2f47\"]\n2f44:{\"nodeType\":\"paragraph\",\"data\":\"$2f45\",\"content\":\"$2f46\"}\n2f4b:{}\n2f4e:[]\n2f4f:{}\n2f4d:{\"nodeType\":\"text\",\"value\":\"However, throughout his chemotherapy treatment, the non-cancerous part of his tumor doubled in size. Physicians determined Avery would need additional treatment, including brain surgery, radiation and proton therapy and two eye surgeries to help restore his vision. \",\"marks\":\"$2f4e\",\"data\":\"$2f4f\"}\n2f4c:[\"$2f4d\"]\n2f4a:{\"nodeType\":\"paragraph\",\"data\":\"$2f4b\",\"content\":\"$2f4c\"}\n2f51:{}\n2f54:[]\n2f55:{}\n2f53:{\"nodeType\":\"text\",\"value\":\"Avery felt overwhelmed, especially when considering the amount of time heâd have to spend in the hospital. But in re-telling this unimaginable sequence of events, Avery and his mom are remarkably calm and fueled by gratitude. \",\"marks\":\"$2f54\",\"data\":\"$2f55\"}\n2f52:[\"$2f53\"]\n2f50:{\"nodeType\":\"paragraph\",\"data\":\"$2f51\",\"content\":\"$2f52\"}\n2f57:{}\n2f58:[]\n2f56:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2f57\",\"content\":\"$2f58\"}\n2f5a:{}\n2f5d:[]\n2f5e:{}\n2f5c:{\"nodeType\":\"text\",\"value\":\"The memories that remain \",\"marks\":\"$2f5d\",\"data\":\"$2f5e\"}\n2f5b:[\"$2f5c\"]\n2f59:{\"nodeType\":\"heading-2\",\"data\":\"$2f5a\",\"content\":\"$2f5b\"}\n2f60:{}\n2f63:[]\n2f64:{}\n2f62:{\"nodeType\":\"text\",\"value\":\"One of the hardest parts of Avery's treatment was being unable to leave his hospital room. That's when he felt most lonely. \",\"marks\":\"$2f63\",\"data\":\"$2f64\"}\n2f61:[\"$2f62\"]\n2f5f:{\"nodeType\":\"paragraph\",\"data\":\"$2f60\",\"content\":\"$2f61\"}\n2f66:{}\n2f69:[]\n2f6a:{}\n2f68:{\"nodeType\":\"text\",\"value\":\"But visits from the hospitalâs pet therapy dogs and child life specialists or assistants helped pass the time, and he felt grateful each time they stopped by his room. Services like these are among the offerings at Childrenâs Health suppor"])</script>
1<script>self.__next_f.push([1,"ted by donors. \",\"marks\":\"$2f69\",\"data\":\"$2f6a\"}\n2f67:[\"$2f68\"]\n2f65:{\"nodeType\":\"paragraph\",\"data\":\"$2f66\",\"content\":\"$2f67\"}\n2f6c:{}\n2f6f:[]\n2f70:{}\n2f6e:{\"nodeType\":\"text\",\"value\":\"âThe pet therapy dogs brought peacefulness and compassion\",\"marks\":\"$2f6f\",\"data\":\"$2f70\"}\n2f73:{\"type\":\"underline\"}\n2f72:[\"$2f73\"]\n2f74:{}\n2f71:{\"nodeType\":\"text\",\"value\":\",\",\"marks\":\"$2f72\",\"data\":\"$2f74\"}\n2f76:[]\n2f77:{}\n2f75:{\"nodeType\":\"text\",\"value\":\"â Avery said. âAnd the fun activities the Child life specialists organized reminded me that there was a world outside my room.â \",\"marks\":\"$2f76\",\"data\":\"$2f77\"}\n2f6d:[\"$2f6e\",\"$2f71\",\"$2f75\"]\n2f6b:{\"nodeType\":\"paragraph\",\"data\":\"$2f6c\",\"content\":\"$2f6d\"}\n2f79:{}\n2f7c:[]\n2f7d:{}\n2f7b:{\"nodeType\":\"text\",\"value\":\"As he got healthier and stronger, he had something else to look forward to: Camp Esperanza, a summer camp for kids treated at Childrenâs Medical Center Dallas. \",\"marks\":\"$2f7c\",\"data\":\"$2f7d\"}\n2f7a:[\"$2f7b\"]\n2f78:{\"nodeType\":\"paragraph\",\"data\":\"$2f79\",\"content\":\"$2f7a\"}\n2f7f:{}\n2f82:[]\n2f83:{}\n2f81:{\"nodeType\":\"text\",\"value\":\"âCamp brought everything into perspective for me. It feels like one big family, which really helps everyone feel less lonely,â Avery said. \",\"marks\":\"$2f82\",\"data\":\"$2f83\"}\n2f80:[\"$2f81\"]\n2f7e:{\"nodeType\":\"paragraph\",\"data\":\"$2f7f\",\"content\":\"$2f80\"}\n2f85:{}\n2f88:[]\n2f89:{}\n2f87:{\"nodeType\":\"text\",\"value\":\"The refrain to a song he learned at camped will be forever etched into his brain: Â \",\"marks\":\"$2f88\",\"data\":\"$2f89\"}\n2f86:[\"$2f87\"]\n2f84:{\"nodeType\":\"paragraph\",\"data\":\"$2f85\",\"content\":\"$2f86\"}\n2f8b:{}\n2f8f:{\"type\":\"italic\"}\n2f8e:[\"$2f8f\"]\n2f90:{}\n2f8d:{\"nodeType\":\"text\",\"value\":\"And when you are home, just think of us here. \\nAnd when you try hard, weâll always be near.\",\"marks\":\"$2f8e\",\"data\":\"$2f90\"}\n2f92:[]\n2f93:{}\n2f91:{\"nodeType\":\"text\",\"value\":\" \\n\",\"marks\":\"$2f92\",\"data\":\"$2f93\"}\n2f96:{\"type\":\"italic\"}\n2f95:[\"$2f96\"]\n2f97:{}\n2f94:{\"nodeType\":\"text\",\"value\":\"And even when youâre not at camp, itâs still in your heart.\",\"m"])</script>
1<script>self.__next_f.push([1,"arks\":\"$2f95\",\"data\":\"$2f97\"}\n2f99:[]\n2f9a:{}\n2f98:{\"nodeType\":\"text\",\"value\":\" \\n\",\"marks\":\"$2f99\",\"data\":\"$2f9a\"}\n2f9d:{\"type\":\"italic\"}\n2f9c:[\"$2f9d\"]\n2f9e:{}\n2f9b:{\"nodeType\":\"text\",\"value\":\"And youâll always be one of our kids. \\nYouâll always be important somewhere.\",\"marks\":\"$2f9c\",\"data\":\"$2f9e\"}\n2fa0:[]\n2fa1:{}\n2f9f:{\"nodeType\":\"text\",\"value\":\" \",\"marks\":\"$2fa0\",\"data\":\"$2fa1\"}\n2f8c:[\"$2f8d\",\"$2f91\",\"$2f94\",\"$2f98\",\"$2f9b\",\"$2f9f\"]\n2f8a:{\"nodeType\":\"paragraph\",\"data\":\"$2f8b\",\"content\":\"$2f8c\"}\n2fa3:{}\n2fa6:[]\n2fa7:{}\n2fa5:{\"nodeType\":\"text\",\"value\":\"The power of donations \",\"marks\":\"$2fa6\",\"data\":\"$2fa7\"}\n2fa4:[\"$2fa5\"]\n2fa2:{\"nodeType\":\"heading-2\",\"data\":\"$2fa3\",\"content\":\"$2fa4\"}\n2fa9:{}\n2fac:[]\n2fad:{}\n2fab:{\"nodeType\":\"text\",\"value\":\"Avery and his mom feel the care they received at Childrenâs Health was remarkable, and they know so much of what they experienced is made possible by generous donors. \",\"marks\":\"$2fac\",\"data\":\"$2fad\"}\n2faa:[\"$2fab\"]\n2fa8:{\"nodeType\":\"paragraph\",\"data\":\"$2fa9\",\"content\":\"$2faa\"}\n2faf:{}\n2fb2:[]\n2fb3:{}\n2fb1:{\"nodeType\":\"text\",\"value\":\"Their time at the hospital allowed them to learn about the different things fueled by donations, such as research initiatives to discover new treatments, free offerings for patient families â and the new Dallas pediatric campus, a joint investment with UT Southwestern Medical Center. \",\"marks\":\"$2fb2\",\"data\":\"$2fb3\"}\n2fb0:[\"$2fb1\"]\n2fae:{\"nodeType\":\"paragraph\",\"data\":\"$2faf\",\"content\":\"$2fb0\"}\n2fb5:{}\n2fb8:[]\n2fb9:{}\n2fb7:{\"nodeType\":\"text\",\"value\":\"The new, transformative campus will be a destination for leading-edge patient care and emerging treatments for more kids like Avery and provide the infrastructure to transform health care for the region, and nationâs, most complex pediatric patients. \",\"marks\":\"$2fb8\",\"data\":\"$2fb9\"}\n2fb6:[\"$2fb7\"]\n2fb4:{\"nodeType\":\"paragraph\",\"data\":\"$2fb5\",\"content\":\"$2fb6\"}\n2fbb:{}\n2fbe:[]\n2fbf:{}\n2fbd:{\"nodeType\":\"text\",\"value\":\"âI'm so glad that Children's Health is expanding because I think ever"])</script>
1<script>self.__next_f.push([1,"yone should have the opportunity to experience this level of care,â LaSonya said. âIt was so comforting for me to know Avery was in such good hands because I was not able to financially walk away from my job.â Â \",\"marks\":\"$2fbe\",\"data\":\"$2fbf\"}\n2fbc:[\"$2fbd\"]\n2fba:{\"nodeType\":\"paragraph\",\"data\":\"$2fbb\",\"content\":\"$2fbc\"}\n2fc1:{}\n2fc4:[]\n2fc5:{}\n2fc3:{\"nodeType\":\"text\",\"value\":\"As North Texas faces unprecedented growth, and the health care needs of the region increase in complexity, Childrenâs Health is building its new campus for the future generations of kids â but the health system canât do it alone, it relies on the support of its community to fulfill its mission of making life better for children. \",\"marks\":\"$2fc4\",\"data\":\"$2fc5\"}\n2fc2:[\"$2fc3\"]\n2fc0:{\"nodeType\":\"paragraph\",\"data\":\"$2fc1\",\"content\":\"$2fc2\"}\n2fc7:{}\n2fca:[]\n2fcb:{}\n2fc9:{\"nodeType\":\"text\",\"value\":\"When it was time to go home, Avery felt relieved. But he also cried because he knew he would miss the physicians, nurses and dogs he'd come to love so much. His experience shaped his own message for donors: \",\"marks\":\"$2fca\",\"data\":\"$2fcb\"}\n2fc8:[\"$2fc9\"]\n2fc6:{\"nodeType\":\"paragraph\",\"data\":\"$2fc7\",\"content\":\"$2fc8\"}\n2fcd:{}\n2fd0:[]\n2fd1:{}\n2fcf:{\"nodeType\":\"text\",\"value\":\"âIâd like to thank anyone even considering a donation. They help make things a whole lot easier for anyone who has to go through something like I had to go through,â he said. âYour donations help bring joy during hard times, and that really, really helps.â \",\"marks\":\"$2fd0\",\"data\":\"$2fd1\"}\n2fce:[\"$2fcf\"]\n2fcc:{\"nodeType\":\"paragraph\",\"data\":\"$2fcd\",\"content\":\"$2fce\"}\n2fd3:{}\n2fd6:[]\n2fd7:{}\n2fd5:{\"nodeType\":\"text\",\"value\":\"Life after hospitalization \",\"marks\":\"$2fd6\",\"data\":\"$2fd7\"}\n2fd4:[\"$2fd5\"]\n2fd2:{\"nodeType\":\"heading-2\",\"data\":\"$2fd3\",\"content\":\"$2fd4\"}\n2fd9:{}\n2fdc:[]\n2fdd:{}\n2fdb:{\"nodeType\":\"text\",\"value\":\"Now on the other side of his cancer treatment, Avery is happy to be back at school, hanging out with friends and spending more time outside. He hop"])</script>
1<script>self.__next_f.push([1,"es his story can help others feel less alone â and to know that itâs OK to lean on your care team, both mentally and physically. \",\"marks\":\"$2fdc\",\"data\":\"$2fdd\"}\n2fda:[\"$2fdb\"]\n2fd8:{\"nodeType\":\"paragraph\",\"data\":\"$2fd9\",\"content\":\"$2fda\"}\n2fdf:{}\n2fe0:[]\n2fde:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$2fdf\",\"content\":\"$2fe0\"}\n2fe2:{}\n2fe5:[]\n2fe6:{}\n2fe4:{\"nodeType\":\"text\",\"value\":\"His mom also has gained a lot of perspective through Averyâs cancer treatment and letting his care team support her, Avery and the many family members who were part of their âentourageâ in the hospital. \",\"marks\":\"$2fe5\",\"data\":\"$2fe6\"}\n2fe3:[\"$2fe4\"]\n2fe1:{\"nodeType\":\"paragraph\",\"data\":\"$2fe2\",\"content\":\"$2fe3\"}\n2fe8:{}\n2feb:[]\n2fec:{}\n2fea:{\"nodeType\":\"text\",\"value\":\"âWe go through life rushing and taking things for granted,â she said. âAveryâs brain cancer stopped me dead in my tracks. It really took a lot out of me, but it also opened my eyes.â \",\"marks\":\"$2feb\",\"data\":\"$2fec\"}\n2fe9:[\"$2fea\"]\n2fe7:{\"nodeType\":\"paragraph\",\"data\":\"$2fe8\",\"content\":\"$2fe9\"}\n2eda:[\"$2edb\",\"$2ede\",\"$2ee4\",\"$2eea\",\"$2ef0\",\"$2ef6\",\"$2efc\",\"$2f02\",\"$2f08\",\"$2f0e\",\"$2f14\",\"$2f1a\",\"$2f20\",\"$2f26\",\"$2f2c\",\"$2f32\",\"$2f38\",\"$2f3e\",\"$2f44\",\"$2f4a\",\"$2f50\",\"$2f56\",\"$2f59\",\"$2f5f\",\"$2f65\",\"$2f6b\",\"$2f78\",\"$2f7e\",\"$2f84\",\"$2f8a\",\"$2fa2\",\"$2fa8\",\"$2fae\",\"$2fb4\",\"$2fba\",\"$2fc0\",\"$2fc6\",\"$2fcc\",\"$2fd2\",\"$2fd8\",\"$2fde\",\"$2fe1\",\"$2fe7\"]\n2ed8:{\"nodeType\":\"document\",\"data\":\"$2ed9\",\"content\":\"$2eda\"}\n2ed7:{\"adminTitle\":\"Main Content: 2026 PA - Avery | Patient Ambassador\",\"headingLevel\":\"h2\",\"body\":\"$2ed8\",\"contentAccordion\":\"Disabled\"}\n2ecc:{\"metadata\":\"$2ecd\",\"sys\":\"$2ed0\",\"fields\":\"$2ed7\"}\n2fef:[]\n2ff0:[]\n2fee:{\"tags\":\"$2fef\",\"concepts\":\"$2ff0\"}\n2ff3:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n2ff2:{\"sys\":\"$2ff3\"}\n2ff5:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n2ff4:{\"sys\":\"$2ff5\"}\n2ff7:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n2ff6:{\"sys\":\"$2ff7\"}\n2ff1:{\"space\":\"$2ff2\",\"id\":\"3rWrzUQJUUGKWnQbF9J0EK\",\"type\":\"En"])</script>
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1<script>self.__next_f.push([1,"e?â she thought. \",\"marks\":\"$30fd\",\"data\":\"$30fe\"}\n30fb:[\"$30fc\"]\n30f9:{\"nodeType\":\"paragraph\",\"data\":\"$30fa\",\"content\":\"$30fb\"}\n3100:{}\n3103:[]\n3104:{}\n3102:{\"nodeType\":\"text\",\"value\":\"Leslie spoke with AJâs dad, Alex, and grandmother, who offered to help care for his siblings back home. \",\"marks\":\"$3103\",\"data\":\"$3104\"}\n3101:[\"$3102\"]\n30ff:{\"nodeType\":\"paragraph\",\"data\":\"$3100\",\"content\":\"$3101\"}\n3106:{}\n3109:[]\n310a:{}\n3108:{\"nodeType\":\"text\",\"value\":\"They all agreed the program would help AJ tremendously. \",\"marks\":\"$3109\",\"data\":\"$310a\"}\n3107:[\"$3108\"]\n3105:{\"nodeType\":\"paragraph\",\"data\":\"$3106\",\"content\":\"$3107\"}\n310c:{}\n310f:[]\n3110:{}\n310e:{\"nodeType\":\"text\",\"value\":\"Developing healthy eating habits \",\"marks\":\"$310f\",\"data\":\"$3110\"}\n310d:[\"$310e\"]\n310b:{\"nodeType\":\"heading-2\",\"data\":\"$310c\",\"content\":\"$310d\"}\n3112:{}\n3115:[]\n3116:{}\n3114:{\"nodeType\":\"text\",\"value\":\"The 30-day, intensive program was hard at first, but Leslie noticed AJâs willingness to try, and she and his care team were determined to help him succeed. \",\"marks\":\"$3115\",\"data\":\"$3116\"}\n3113:[\"$3114\"]\n3111:{\"nodeType\":\"paragraph\",\"data\":\"$3112\",\"content\":\"$3113\"}\n3118:{}\n311b:[]\n311c:{}\n311a:{\"nodeType\":\"text\",\"value\":\"At Childrenâs Health, the program includes every type of feeding therapy, from speech therapy for swallowing to counseling for anxiety about food. Some children may need to try new textures of food to expand their palate. Others may need exercise to improve the strength of their tongue or jaw. \",\"marks\":\"$311b\",\"data\":\"$311c\"}\n3119:[\"$311a\"]\n3117:{\"nodeType\":\"paragraph\",\"data\":\"$3118\",\"content\":\"$3119\"}\n311e:{}\n3121:[]\n3122:{}\n3120:{\"nodeType\":\"text\",\"value\":\"AJâs care team helped him develop healthy eating habits and taught him how to tolerate different environments. His therapists, for example, would sometimes take him down to one of the hospitalâs cafeterias to practice eating around other people and different noises. \",\"marks\":\"$3121\",\"data\":\"$3122\"}\n311f:[\"$3120\"]\n311d:{\"nodeType\":\"paragraph\",\"data\":\"$311e\",\""])</script>
1<script>self.__next_f.push([1,"content\":\"$311f\"}\n3124:{}\n3127:[]\n3128:{}\n3126:{\"nodeType\":\"text\",\"value\":\"They also introduced him to different food textures, smells and combinations, such as peanut butter spread on a waffle, which allowed him to build up a tolerance for what he previously could not even be around. \",\"marks\":\"$3127\",\"data\":\"$3128\"}\n3125:[\"$3126\"]\n3123:{\"nodeType\":\"paragraph\",\"data\":\"$3124\",\"content\":\"$3125\"}\n312a:{}\n312b:[]\n3129:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$312a\",\"content\":\"$312b\"}\n312d:{}\n3130:[]\n3131:{}\n312f:{\"nodeType\":\"text\",\"value\":\"Therapists were also available for Leslie if she encountered hurdles at home, where she was able to create structure for AJ with the techniques she learned from them. \",\"marks\":\"$3130\",\"data\":\"$3131\"}\n312e:[\"$312f\"]\n312c:{\"nodeType\":\"paragraph\",\"data\":\"$312d\",\"content\":\"$312e\"}\n3133:{}\n3136:[]\n3137:{}\n3135:{\"nodeType\":\"text\",\"value\":\"A support system that went beyond AJâs care \",\"marks\":\"$3136\",\"data\":\"$3137\"}\n3134:[\"$3135\"]\n3132:{\"nodeType\":\"heading-2\",\"data\":\"$3133\",\"content\":\"$3134\"}\n3139:{}\n313c:[]\n313d:{}\n313b:{\"nodeType\":\"text\",\"value\":\"Leslie and AJ struggled being away from their family, but their care team and the Childrenâs Health child life specialists helped them through the toughest days. \",\"marks\":\"$313c\",\"data\":\"$313d\"}\n313a:[\"$313b\"]\n3138:{\"nodeType\":\"paragraph\",\"data\":\"$3139\",\"content\":\"$313a\"}\n313f:{}\n3142:[]\n3143:{}\n3141:{\"nodeType\":\"text\",\"value\":\"âThe way itâs set up, from the therapists to the counselors to Child Life, itâs beautiful â itâs how every pediatric hospital should be set up,â Leslie said. \",\"marks\":\"$3142\",\"data\":\"$3143\"}\n3140:[\"$3141\"]\n313e:{\"nodeType\":\"paragraph\",\"data\":\"$313f\",\"content\":\"$3140\"}\n3145:{}\n3148:[]\n3149:{}\n3147:{\"nodeType\":\"text\",\"value\":\"On top of helping AJ overcome his feeding disorder, his team became the support system his mom needed. \",\"marks\":\"$3148\",\"data\":\"$3149\"}\n3146:[\"$3147\"]\n3144:{\"nodeType\":\"paragraph\",\"data\":\"$3145\",\"content\":\"$3146\"}\n314b:{}\n314e:[]\n314f:{}\n314d:{\"nodeType\":\"text\",\"value\":\"Although"])</script>
1<script>self.__next_f.push([1," their family, who lived five hours away, or friends would sometimes visit, Leslie found the strength she needed to get through each day from the team members she met at the hospital. \",\"marks\":\"$314e\",\"data\":\"$314f\"}\n314c:[\"$314d\"]\n314a:{\"nodeType\":\"paragraph\",\"data\":\"$314b\",\"content\":\"$314c\"}\n3151:{}\n3154:[]\n3155:{}\n3153:{\"nodeType\":\"text\",\"value\":\"âThere were times when I was completely drained,â she said. âI was missing my other children, my husband. It became hard, but the counselors would check in and talk with me, and the child life specialists would entertain AJ for a little bit to give me a breather. That was great.â \",\"marks\":\"$3154\",\"data\":\"$3155\"}\n3152:[\"$3153\"]\n3150:{\"nodeType\":\"paragraph\",\"data\":\"$3151\",\"content\":\"$3152\"}\n3157:{}\n315a:[]\n315b:{}\n3159:{\"nodeType\":\"text\",\"value\":\"The Child Life Department at Childrenâs Health, which helps provide a positive experience for patients and their loved ones at the hospital, is part of the many incredible services available to families that are fueled by philanthropic funds, working hard behind the scenes. \",\"marks\":\"$315a\",\"data\":\"$315b\"}\n3158:[\"$3159\"]\n3156:{\"nodeType\":\"paragraph\",\"data\":\"$3157\",\"content\":\"$3158\"}\n315d:{}\n3160:[]\n3161:{}\n315f:{\"nodeType\":\"text\",\"value\":\"After a child life specialist learned about AJâs love of Nintendo, they bonded over the Super Mario and Donkey Kong video game characters. AJ soon looked forward to hanging out with child life specialists after his feeding therapy sessions. \",\"marks\":\"$3160\",\"data\":\"$3161\"}\n315e:[\"$315f\"]\n315c:{\"nodeType\":\"paragraph\",\"data\":\"$315d\",\"content\":\"$315e\"}\n3163:{}\n3166:[]\n3167:{}\n3165:{\"nodeType\":\"text\",\"value\":\"Throughout those 30 days in the feeding program, Leslie saw how everyone cared for her son â and her â with patience and love. \",\"marks\":\"$3166\",\"data\":\"$3167\"}\n3164:[\"$3165\"]\n3162:{\"nodeType\":\"paragraph\",\"data\":\"$3163\",\"content\":\"$3164\"}\n3169:{}\n316c:[]\n316d:{}\n316b:{\"nodeType\":\"text\",\"value\":\"âIf we hadn't had all of them, we wouldnât have been so successful,â she "])</script>
1<script>self.__next_f.push([1,"said. âEveryone made AJ feel comfortable.â \",\"marks\":\"$316c\",\"data\":\"$316d\"}\n316a:[\"$316b\"]\n3168:{\"nodeType\":\"paragraph\",\"data\":\"$3169\",\"content\":\"$316a\"}\n316f:{}\n3172:[]\n3173:{}\n3171:{\"nodeType\":\"text\",\"value\":\"âIt changed how we live todayâ \",\"marks\":\"$3172\",\"data\":\"$3173\"}\n3170:[\"$3171\"]\n316e:{\"nodeType\":\"heading-2\",\"data\":\"$316f\",\"content\":\"$3170\"}\n3175:{}\n3178:[]\n3179:{}\n3177:{\"nodeType\":\"text\",\"value\":\"AJ, now 8 years old, is back at home spending time with his three siblings, drawing, playing video games â and enjoying food. \",\"marks\":\"$3178\",\"data\":\"$3179\"}\n3176:[\"$3177\"]\n3174:{\"nodeType\":\"paragraph\",\"data\":\"$3175\",\"content\":\"$3176\"}\n317b:{}\n317e:[]\n317f:{}\n317d:{\"nodeType\":\"text\",\"value\":\"When AJ first started the program, he only ate food from three brands. If his family wanted to go to a restaurant, theyâd have to stop and pick up AJâs favorite fast food to bring along with them. \",\"marks\":\"$317e\",\"data\":\"$317f\"}\n317c:[\"$317d\"]\n317a:{\"nodeType\":\"paragraph\",\"data\":\"$317b\",\"content\":\"$317c\"}\n3181:{}\n3184:[]\n3185:{}\n3183:{\"nodeType\":\"text\",\"value\":\"Today, his preferences have expanded to include 24 brands â and heâll eat chicken from just about anywhere. \",\"marks\":\"$3184\",\"data\":\"$3185\"}\n3182:[\"$3183\"]\n3180:{\"nodeType\":\"paragraph\",\"data\":\"$3181\",\"content\":\"$3182\"}\n3187:{}\n3188:[]\n3186:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$3187\",\"content\":\"$3188\"}\n318a:{}\n318d:[]\n318e:{}\n318c:{\"nodeType\":\"text\",\"value\":\"Although heâs considering becoming a doctor or a zookeeper when he grows up, heâs also toying with the idea of working at Raising Caneâs. \",\"marks\":\"$318d\",\"data\":\"$318e\"}\n318b:[\"$318c\"]\n3189:{\"nodeType\":\"paragraph\",\"data\":\"$318a\",\"content\":\"$318b\"}\n3190:{}\n3193:[]\n3194:{}\n3192:{\"nodeType\":\"text\",\"value\":\"âThatâs just an example of how heâs grown,â Leslie said. âHe would have never even thought about working at a restaurant before.â \",\"marks\":\"$3193\",\"data\":\"$3194\"}\n3191:[\"$3192\"]\n318f:{\"nodeType\":\"paragraph\",\"data\":\"$3190\",\"content\":\"$3191\"}\n3196:{}\n3199:[]\n319a:{}"])</script>
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1<script>self.__next_f.push([1,"parents, Beth and Travis, first noticed their son was in pain the weekend after Easter. He woke up complaining about his stomach and continued acting strangely throughout the day. \",\"nodeType\":\"text\"}\n328b:[\"$328c\"]\n3289:{\"data\":\"$328a\",\"content\":\"$328b\",\"nodeType\":\"paragraph\"}\n3290:{}\n3293:{}\n3294:[]\n3292:{\"data\":\"$3293\",\"marks\":\"$3294\",\"value\":\"A trip to urgent care only yielded some medicine for what seemed to be a stomach bug, but his condition didnât improve. Separate visits to their pediatrician and to the ER, where âthey ran every test under the sun,â also failed to provide any answers, Beth said. \",\"nodeType\":\"text\"}\n3291:[\"$3292\"]\n328f:{\"data\":\"$3290\",\"content\":\"$3291\",\"nodeType\":\"paragraph\"}\n3296:{}\n3299:{}\n329a:[]\n3298:{\"data\":\"$3299\",\"marks\":\"$329a\",\"value\":\"âAt the second appointment with the pediatrician, they told us, âHey, kids get sick,â and we were sent homeâ she said. \",\"nodeType\":\"text\"}\n3297:[\"$3298\"]\n3295:{\"data\":\"$3296\",\"content\":\"$3297\",\"nodeType\":\"paragraph\"}\n329c:{}\n329f:{}\n32a0:[]\n329e:{\"data\":\"$329f\",\"marks\":\"$32a0\",\"value\":\"Throughout the next month, Beth and Travis kept track of their sonâs symptoms: stomach pain, long fevers and lots of crying.  \",\"nodeType\":\"text\"}\n329d:[\"$329e\"]\n329b:{\"data\":\"$329c\",\"content\":\"$329d\",\"nodeType\":\"paragraph\"}\n32a2:{}\n32a5:{}\n32a6:[]\n32a4:{\"data\":\"$32a5\",\"marks\":\"$32a6\",\"value\":\"âIt was beyond your average meltdown. He was really trying to express how uncomfortable he was,â Beth said. \",\"nodeType\":\"text\"}\n32a3:[\"$32a4\"]\n32a1:{\"data\":\"$32a2\",\"content\":\"$32a3\",\"nodeType\":\"paragraph\"}\n32a8:{}\n32ab:{}\n32ac:[]\n32aa:{\"data\":\"$32ab\",\"marks\":\"$32ac\",\"value\":\"She also decided to switch pediatricians. Their new physician had originally ruled out cancer but then found masses in Claytonâs body after running a sonogram. \",\"nodeType\":\"text\"}\n32a9:[\"$32aa\"]\n32a7:{\"data\":\"$32a8\",\"content\":\"$32a9\",\"nodeType\":\"paragraph\"}\n32ae:{}\n32b1:{}\n32b2:[]\n32b0:{\"data\":\"$32b1\",\"marks\":\"$32b2\",\"value\":\"His family decided to rush to Childrenâs Health,"])</script>
1<script>self.__next_f.push([1," eager to figure out what was going on. \",\"nodeType\":\"text\"}\n32af:[\"$32b0\"]\n32ad:{\"data\":\"$32ae\",\"content\":\"$32af\",\"nodeType\":\"paragraph\"}\n32b4:{}\n32b7:{}\n32b8:[]\n32b6:{\"data\":\"$32b7\",\"marks\":\"$32b8\",\"value\":\"After running some tests, an oncologist asked Beth and Travis to step out of the room to talk. It was close to midnight, well past Claytonâs bedtime. A couple of nurses stepped in to entertain him and help make him comfortable. \",\"nodeType\":\"text\"}\n32b5:[\"$32b6\"]\n32b3:{\"data\":\"$32b4\",\"content\":\"$32b5\",\"nodeType\":\"paragraph\"}\n32ba:{}\n32bb:[]\n32b9:{\"data\":\"$32ba\",\"content\":\"$32bb\",\"nodeType\":\"embedded-entry-block\"}\n32bd:{}\n32c0:{}\n32c1:[]\n32bf:{\"data\":\"$32c0\",\"marks\":\"$32c1\",\"value\":\"Outside his room, the oncologist shared that Clayton might be facing hepatoblastoma â a very rare type of liver cancer that only happens in about one in a million children. However, they needed to run some more tests to rule anything else out. \",\"nodeType\":\"text\"}\n32be:[\"$32bf\"]\n32bc:{\"data\":\"$32bd\",\"content\":\"$32be\",\"nodeType\":\"paragraph\"}\n32c3:{}\n32c6:{}\n32c7:[]\n32c5:{\"data\":\"$32c6\",\"marks\":\"$32c7\",\"value\":\"About a week later, physicians confirmed what they had suspected. The stage 4 hepatoblastoma diagnosis came a few months ahead of Claytonâs fourth birthday. \",\"nodeType\":\"text\"}\n32c4:[\"$32c5\"]\n32c2:{\"data\":\"$32c3\",\"content\":\"$32c4\",\"nodeType\":\"paragraph\"}\n32c9:{}\n32cc:{}\n32cd:[]\n32cb:{\"data\":\"$32cc\",\"marks\":\"$32cd\",\"value\":\"Helping a 4-year-old understand his diagnosis  \",\"nodeType\":\"text\"}\n32ca:[\"$32cb\"]\n32c8:{\"data\":\"$32c9\",\"content\":\"$32ca\",\"nodeType\":\"heading-2\"}\n32cf:{}\n32d2:{}\n32d3:[]\n32d1:{\"data\":\"$32d2\",\"marks\":\"$32d3\",\"value\":\"The cancer hadnât spread to other parts of his body, but the damage to his liver was severe.  \",\"nodeType\":\"text\"}\n32d0:[\"$32d1\"]\n32ce:{\"data\":\"$32cf\",\"content\":\"$32d0\",\"nodeType\":\"paragraph\"}\n32d5:{}\n32d8:{}\n32d9:[]\n32d7:{\"data\":\"$32d8\",\"marks\":\"$32d9\",\"value\":\"Time seemingly sped up for Claytonâs parents as his care team laid out his treatment plan, which included nearly a d"])</script>
1<script>self.__next_f.push([1,"ozen rounds of chemotherapy and, eventually, a liver transplant.  \",\"nodeType\":\"text\"}\n32d6:[\"$32d7\"]\n32d4:{\"data\":\"$32d5\",\"content\":\"$32d6\",\"nodeType\":\"paragraph\"}\n32db:{}\n32de:{}\n32df:[]\n32dd:{\"data\":\"$32de\",\"marks\":\"$32df\",\"value\":\"Physicians heard his familyâs concerns and answered every question with empathy, kindness and compassion. \",\"nodeType\":\"text\"}\n32dc:[\"$32dd\"]\n32da:{\"data\":\"$32db\",\"content\":\"$32dc\",\"nodeType\":\"paragraph\"}\n32e1:{}\n32e4:{}\n32e5:[]\n32e3:{\"data\":\"$32e4\",\"marks\":\"$32e5\",\"value\":\"But a big question lingered in Bethâs mind: How was she going to explain cancer or a liver transplant to a 4-year-old? \",\"nodeType\":\"text\"}\n32e2:[\"$32e3\"]\n32e0:{\"data\":\"$32e1\",\"content\":\"$32e2\",\"nodeType\":\"paragraph\"}\n32e7:{}\n32ea:{}\n32eb:[]\n32e9:{\"data\":\"$32ea\",\"marks\":\"$32eb\",\"value\":\"With the help of Child Life specialists at Childrenâs Health, Beth found the words to explain to her son what was going on with his body. She also spoke to him about his eventual liver transplant, the special tools his physicians would use and how it would happen. \",\"nodeType\":\"text\"}\n32e8:[\"$32e9\"]\n32e6:{\"data\":\"$32e7\",\"content\":\"$32e8\",\"nodeType\":\"paragraph\"}\n32ed:{}\n32f0:{}\n32f1:[]\n32ef:{\"data\":\"$32f0\",\"marks\":\"$32f1\",\"value\":\"As the leading pediatric health care system in North Texas, Childrenâs Health is committed to high-quality patient care and supporting the patient family experience, meaning team members care for the whole family. Many of the programs and services, such as Child Life, Pet Therapy and Social Work, are available to patient families come at no cost, instead relying on the support of generous donors who help make a difference in the lives of North Texas children and beyond. \",\"nodeType\":\"text\"}\n32ee:[\"$32ef\"]\n32ec:{\"data\":\"$32ed\",\"content\":\"$32ee\",\"nodeType\":\"paragraph\"}\n32f3:{}\n32f6:{}\n32f7:[]\n32f5:{\"data\":\"$32f6\",\"marks\":\"$32f7\",\"value\":\"Claytonâs name was on the transplant list for about three weeks. In late September, his family received a call to rush to the hospital â his new liver was"])</script>
1<script>self.__next_f.push([1," ready.  \",\"nodeType\":\"text\"}\n32f4:[\"$32f5\"]\n32f2:{\"data\":\"$32f3\",\"content\":\"$32f4\",\"nodeType\":\"paragraph\"}\n32f9:{}\n32fc:{}\n32fd:[]\n32fb:{\"data\":\"$32fc\",\"marks\":\"$32fd\",\"value\":\"âThey did such a great job of preparing him for this moment. He wasn't anxious or nervous,â Beth said. âThe positivity of the staff and the transparent way they helped us communicate with him really made a difference.â  \",\"nodeType\":\"text\"}\n32fa:[\"$32fb\"]\n32f8:{\"data\":\"$32f9\",\"content\":\"$32fa\",\"nodeType\":\"paragraph\"}\n32ff:{}\n3302:{}\n3303:[]\n3301:{\"data\":\"$3302\",\"marks\":\"$3303\",\"value\":\"The surgery took about 13 hours, and Claytonâs recovery took even longer. Rehab was rough for Clayton and his parents, who saw him struggle more than ever.  \",\"nodeType\":\"text\"}\n3300:[\"$3301\"]\n32fe:{\"data\":\"$32ff\",\"content\":\"$3300\",\"nodeType\":\"paragraph\"}\n3305:{}\n3308:{}\n3309:[]\n3307:{\"data\":\"$3308\",\"marks\":\"$3309\",\"value\":\"His care team at Childrenâs Health supported his familyâs attempts to get him out of bed by arranging scavenger hunts and playtime in the hospitalâs halls. To help Clayton gain weight, they also trained his parents on how to use a feeding tube with a doll.  \",\"nodeType\":\"text\"}\n3306:[\"$3307\"]\n3304:{\"data\":\"$3305\",\"content\":\"$3306\",\"nodeType\":\"paragraph\"}\n330b:{}\n330e:{}\n330f:[]\n330d:{\"data\":\"$330e\",\"marks\":\"$330f\",\"value\":\"After three weeks, Clayton went home, where he immediately became more animated. He wanted to play and was suddenly able to move and walk on his own. But his journey to recovery wasnât over. \",\"nodeType\":\"text\"}\n330c:[\"$330d\"]\n330a:{\"data\":\"$330b\",\"content\":\"$330c\",\"nodeType\":\"paragraph\"}\n3311:{}\n3314:{}\n3315:[]\n3313:{\"data\":\"$3314\",\"marks\":\"$3315\",\"value\":\"Supporting patients and their families in coping with hospitalization \",\"nodeType\":\"text\"}\n3312:[\"$3313\"]\n3310:{\"data\":\"$3311\",\"content\":\"$3312\",\"nodeType\":\"heading-2\"}\n3317:{}\n331a:{}\n331b:[]\n3319:{\"data\":\"$331a\",\"marks\":\"$331b\",\"value\":\"After a long hospital stay, rare illness and major surgery, Claytonâs parents and care team could see"])</script>
1<script>self.__next_f.push([1," he was struggling emotionally. A Child Life specialist recommended play therapy, which can help improve the mental health and well-being of kids who are coping with complex medical situations.  \",\"nodeType\":\"text\"}\n3318:[\"$3319\"]\n3316:{\"data\":\"$3317\",\"content\":\"$3318\",\"nodeType\":\"paragraph\"}\n331d:{}\n3320:{}\n3321:[]\n331f:{\"data\":\"$3320\",\"marks\":\"$3321\",\"value\":\"âSo much happened to him that he couldn't say no to, and he was angry,â Beth said. \",\"nodeType\":\"text\"}\n331e:[\"$331f\"]\n331c:{\"data\":\"$331d\",\"content\":\"$331e\",\"nodeType\":\"paragraph\"}\n3323:{}\n3326:{}\n3327:[]\n3325:{\"data\":\"$3326\",\"marks\":\"$3327\",\"value\":\"Claytonâs play therapy sessions at Childrenâs Health were instrumental as he processed everything he had been through.  \",\"nodeType\":\"text\"}\n3324:[\"$3325\"]\n3322:{\"data\":\"$3323\",\"content\":\"$3324\",\"nodeType\":\"paragraph\"}\n3329:{}\n332c:{}\n332d:[]\n332b:{\"data\":\"$332c\",\"marks\":\"$332d\",\"value\":\"His mom also became close to Kelsey, a play therapist she met during her sonâs care journey, who later provided support and guidance as her family navigated life after Claytonâs liver transplant. \",\"nodeType\":\"text\"}\n332a:[\"$332b\"]\n3328:{\"data\":\"$3329\",\"content\":\"$332a\",\"nodeType\":\"paragraph\"}\n332f:{}\n3332:{}\n3333:[]\n3331:{\"data\":\"$3332\",\"marks\":\"$3333\",\"value\":\"Claytonâs parents felt heard and supported by his care team, who regularly checked in on how they were doing. They became a source of comfort during what felt like an isolating experience for the family. \",\"nodeType\":\"text\"}\n3330:[\"$3331\"]\n332e:{\"data\":\"$332f\",\"content\":\"$3330\",\"nodeType\":\"paragraph\"}\n3335:{}\n3338:{}\n3339:[]\n3337:{\"data\":\"$3338\",\"marks\":\"$3339\",\"value\":\"âI donât know what I would have done without them,â she said. âVery few parents can relate or give advice for what we were going through. They were phenomenal in helping us through it all.â \",\"nodeType\":\"text\"}\n3336:[\"$3337\"]\n3334:{\"data\":\"$3335\",\"content\":\"$3336\",\"nodeType\":\"paragraph\"}\n333b:{}\n333e:{}\n333f:[]\n333d:{\"data\":\"$333e\",\"marks\":\"$333f\",\"value\":\"Clayton has si"])</script>
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1<script>self.__next_f.push([1,"now if moving was the right thing. But the kidney specialists Iâd found online in Texas wouldnât see Samantha if we didnât live in Texas. And I knew I wasnât getting the right answers about her ongoing kidney problems in California,â Joanie said.\",\"nodeType\":\"text\"}\n3540:[\"$3541\"]\n353e:{\"data\":\"$353f\",\"content\":\"$3540\",\"nodeType\":\"paragraph\"}\n3545:{}\n3548:{}\n3549:[]\n3547:{\"data\":\"$3548\",\"marks\":\"$3549\",\"value\":\"A need for better answers  \",\"nodeType\":\"text\"}\n3546:[\"$3547\"]\n3544:{\"data\":\"$3545\",\"content\":\"$3546\",\"nodeType\":\"heading-2\"}\n354b:{}\n354e:{}\n354f:[]\n354d:{\"data\":\"$354e\",\"marks\":\"$354f\",\"value\":\"When they arrived at a different hospital in the Dallas area, the doctors who evaluated Samantha confirmed that Joanieâs instinct to get another opinion had been a good one. They told her that the treatments Samantha had been on were damaging her kidneys.   \",\"nodeType\":\"text\"}\n354c:[\"$354d\"]\n354a:{\"data\":\"$354b\",\"content\":\"$354c\",\"nodeType\":\"paragraph\"}\n3551:{}\n3554:{}\n3555:[]\n3553:{\"data\":\"$3554\",\"marks\":\"$3555\",\"value\":\"Doctors had been trying to help Samanthaâs kidneys work better since she was a baby â trying everything from steroid treatments to 4-hour infusions.  \",\"nodeType\":\"text\"}\n3552:[\"$3553\"]\n3550:{\"data\":\"$3551\",\"content\":\"$3552\",\"nodeType\":\"paragraph\"}\n3557:{}\n355a:{}\n355b:[]\n3559:{\"data\":\"$355a\",\"marks\":\"$355b\",\"value\":\"But Samantha was misdiagnosed by clinicians at a different hospital, and they told Joanie that Samathaâs kidneys were so damaged that she needed to have them removed â as soon as possible.  \",\"nodeType\":\"text\"}\n3558:[\"$3559\"]\n3556:{\"data\":\"$3557\",\"content\":\"$3558\",\"nodeType\":\"paragraph\"}\n355d:{}\n3560:{}\n3561:[]\n355f:{\"data\":\"$3560\",\"marks\":\"$3561\",\"value\":\"Days later, Samantha had surgery to remove both kidneys. \",\"nodeType\":\"text\"}\n355e:[\"$355f\"]\n355c:{\"data\":\"$355d\",\"content\":\"$355e\",\"nodeType\":\"paragraph\"}\n3563:{}\n3566:{}\n3567:[]\n3565:{\"data\":\"$3566\",\"marks\":\"$3567\",\"value\":\" A month after that, she started having heart problems.   \",\"nodeType\":\"t"])</script>
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1<script>self.__next_f.push([1,"6\",\"value\":\"Samantha and Joanie spent the next year and a half in and out of the hospital, waiting for a donor match. Samantha needed almost daily dialysis. There were some terrible days â and some good ones too. \",\"nodeType\":\"text\"}\n3593:[\"$3594\"]\n3591:{\"data\":\"$3592\",\"content\":\"$3593\",\"nodeType\":\"paragraph\"}\n3598:{}\n359b:{}\n359c:[]\n359a:{\"data\":\"$359b\",\"marks\":\"$359c\",\"value\":\"âWe really needed to lean on the hospital staff for support because weâd moved away from everything and everybody weâd known â and had no family members nearby. And they really came through for us, supporting us in every way possible,â said Joanie. \",\"nodeType\":\"text\"}\n3599:[\"$359a\"]\n3597:{\"data\":\"$3598\",\"content\":\"$3599\",\"nodeType\":\"paragraph\"}\n359e:{}\n35a1:{}\n35a2:[]\n35a0:{\"data\":\"$35a1\",\"marks\":\"$35a2\",\"value\":\"On her good days, nobody could tell Samantha was a kid who needed a heart and kidney transplant. She kept up with her schoolwork through the Children's Health \",\"nodeType\":\"text\"}\n35a4:{\"uri\":\"https://www.childrens.com/patient-families/resources-for-your-child/school-and-education-services/school-services-programs\"}\n35a7:{}\n35a9:{\"type\":\"underline\"}\n35a8:[\"$35a9\"]\n35a6:{\"data\":\"$35a7\",\"marks\":\"$35a8\",\"value\":\"hospital-based school program\",\"nodeType\":\"text\"}\n35a5:[\"$35a6\"]\n35a3:{\"data\":\"$35a4\",\"content\":\"$35a5\",\"nodeType\":\"hyperlink\"}\n35ab:{}\n35ac:[]\n35aa:{\"data\":\"$35ab\",\"marks\":\"$35ac\",\"value\":\" and loved her teacher. She also loved going to the hospitalâs library and helping the librarian change the book displays. Both of these services are available at no-cost to patient families and rely on generous philanthropic support.   \",\"nodeType\":\"text\"}\n359f:[\"$35a0\",\"$35a3\",\"$35aa\"]\n359d:{\"data\":\"$359e\",\"content\":\"$359f\",\"nodeType\":\"paragraph\"}\n35ae:{}\n35b1:{}\n35b2:[]\n35b0:{\"data\":\"$35b1\",\"marks\":\"$35b2\",\"value\":\"But everyone knew Seacrest Studios was her favorite place. \",\"nodeType\":\"text\"}\n35af:[\"$35b0\"]\n35ad:{\"data\":\"$35ae\",\"content\":\"$35af\",\"nodeType\":\"paragraph\"}\n35b4:{}\n35b7:{}\n35b8:[]\n35b6:{\"data\":\"$35b7\","])</script>
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1<script>self.__next_f.push([1,"ke a special bear thanks to generous donors called a blue bear Teddy Bear for Joanie. \",\"nodeType\":\"text\"}\n361e:[\"$361f\",\"$3622\",\"$3629\"]\n361c:{\"data\":\"$361d\",\"content\":\"$361e\",\"nodeType\":\"paragraph\"}\n362d:{}\n3630:{}\n3631:[]\n362f:{\"data\":\"$3630\",\"marks\":\"$3631\",\"value\":\"Joanieâs blue bear teddy bear plays recordings of Samantha singing âIâm a Unicorn,â âI Am a Gummy Bear,â and âBox of Rocksâ â three of her favorite songs at the time. And then, at the end, it played a recording of Samanthaâs heartbeat. \",\"nodeType\":\"text\"}\n362e:[\"$362f\"]\n362c:{\"data\":\"$362d\",\"content\":\"$362e\",\"nodeType\":\"paragraph\"}\n3633:{}\n3636:{}\n3637:[]\n3635:{\"data\":\"$3636\",\"marks\":\"$3637\",\"value\":\"âMy blue bear Teddy bear kept me sane during the hours and hours of waiting while they were doing her transplant. It perfectly captured Samantha â and I held on to that bear so tightly,â Joanie said.  \",\"nodeType\":\"text\"}\n3634:[\"$3635\"]\n3632:{\"data\":\"$3633\",\"content\":\"$3634\",\"nodeType\":\"paragraph\"}\n3639:{}\n363c:{}\n363d:[]\n363b:{\"data\":\"$363c\",\"marks\":\"$363d\",\"value\":\"Joanie and Samantha were also overwhelmed with gratitude when Karoline appeared at 5 a.m. â several hours before her shift started.  \\n \\nâKaroline sat with Samantha as a calming, comforting presence as they readied the operating room. She gently braided her hair, taming her unruly curls,â Joanie said.  \",\"nodeType\":\"text\"}\n363a:[\"$363b\"]\n3638:{\"data\":\"$3639\",\"content\":\"$363a\",\"nodeType\":\"paragraph\"}\n363f:{}\n3642:{}\n3643:[]\n3641:{\"data\":\"$3642\",\"marks\":\"$3643\",\"value\":\"Pizza for Christmas \",\"nodeType\":\"text\"}\n3640:[\"$3641\"]\n363e:{\"data\":\"$363f\",\"content\":\"$3640\",\"nodeType\":\"heading-2\"}\n3645:{}\n3648:{}\n3649:[]\n3647:{\"data\":\"$3648\",\"marks\":\"$3649\",\"value\":\"After several hours in the operating room, Samantha had her new heart and new kidney.  \",\"nodeType\":\"text\"}\n3646:[\"$3647\"]\n3644:{\"data\":\"$3645\",\"content\":\"$3646\",\"nodeType\":\"paragraph\"}\n364b:{}\n364e:{}\n364f:[]\n364d:{\"data\":\"$364e\",\"marks\":\"$364f\",\"value\":\"Her initial recovery was rocky. But Joan"])</script>
1<script>self.__next_f.push([1,"ie couldn't help but ask about the possibility of Samantha being home for Christmas. The doctors were wary because of Samanthaâs fragile state. \",\"nodeType\":\"text\"}\n364c:[\"$364d\"]\n364a:{\"data\":\"$364b\",\"content\":\"$364c\",\"nodeType\":\"paragraph\"}\n3651:{}\n3654:{}\n3655:[]\n3653:{\"data\":\"$3654\",\"marks\":\"$3655\",\"value\":\"Samantha herself wasnât too fixated on being home for Christmas. She had a simpler holiday wish: pizza.  \",\"nodeType\":\"text\"}\n3652:[\"$3653\"]\n3650:{\"data\":\"$3651\",\"content\":\"$3652\",\"nodeType\":\"paragraph\"}\n3657:{}\n365a:{}\n365b:[]\n3659:{\"data\":\"$365a\",\"marks\":\"$365b\",\"value\":\"At first, Joanie frowned at the idea of pizza for Christmas. But her pediatric nephrologist told her, âIf this girl wants pizza for breakfast on Christmas morning, youâve got to give her pizza.â  \",\"nodeType\":\"text\"}\n3658:[\"$3659\"]\n3656:{\"data\":\"$3657\",\"content\":\"$3658\",\"nodeType\":\"paragraph\"}\n365d:{}\n3660:{}\n3661:[]\n365f:{\"data\":\"$3660\",\"marks\":\"$3661\",\"value\":\"Hearing that, Samantha flashed Joanie her biggest smile and said, âDoctors orders!â â which has become one of Samanthaâs favorite expressions.  \",\"nodeType\":\"text\"}\n365e:[\"$365f\"]\n365c:{\"data\":\"$365d\",\"content\":\"$365e\",\"nodeType\":\"paragraph\"}\n3663:{}\n3666:{}\n3667:[]\n3665:{\"data\":\"$3666\",\"marks\":\"$3667\",\"value\":\"On Christmas Eve, Samantha and a handful of family members who had since moved to Texas, gathered in the Childrenâs Health waiting room for Samanthaâs Christmas pizza party. That party was soon followed by Samanthaâs 11th birthday party â at home.  \",\"nodeType\":\"text\"}\n3664:[\"$3665\"]\n3662:{\"data\":\"$3663\",\"content\":\"$3664\",\"nodeType\":\"paragraph\"}\n3669:{}\n366c:{}\n366d:[]\n366b:{\"data\":\"$366c\",\"marks\":\"$366d\",\"value\":\"Home at last and living her best life \",\"nodeType\":\"text\"}\n366a:[\"$366b\"]\n3668:{\"data\":\"$3669\",\"content\":\"$366a\",\"nodeType\":\"heading-2\"}\n366f:{}\n3672:{}\n3673:[]\n3671:{\"data\":\"$3672\",\"marks\":\"$3673\",\"value\":\"In late January 2022, Samantha went home.\",\"nodeType\":\"text\"}\n3670:[\"$3671\"]\n366e:{\"data\":\"$366f\",\"content\":\"$3670\",\"nodeTy"])</script>
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1<script>self.__next_f.push([1,"early diagnosis made him a frequent visitor at Childrenâs Health, where physicians closely monitor such newborns during monthly checkups for the first six months of their life. They then continue with routine checkups every two months until they are 1 year old. \",\"nodeType\":\"text\"}\n37dc:[\"$37dd\"]\n37da:{\"data\":\"$37db\",\"content\":\"$37dc\",\"nodeType\":\"paragraph\"}\n37e1:{}\n37e4:{}\n37e5:[]\n37e3:{\"data\":\"$37e4\",\"marks\":\"$37e5\",\"value\":\"On top of ensuring an interpreter is present during their hospital visits, Jairoâs care team is patient with Silvia, ensuring all questions she may have about a new treatment or medication are answered. \",\"nodeType\":\"text\"}\n37e2:[\"$37e3\"]\n37e0:{\"data\":\"$37e1\",\"content\":\"$37e2\",\"nodeType\":\"paragraph\"}\n37e7:{}\n37ea:{}\n37eb:[]\n37e9:{\"data\":\"$37ea\",\"marks\":\"$37eb\",\"value\":\"They make her feel confident and comfortable asking them to repeat themselves if she doesnât understand something. \",\"nodeType\":\"text\"}\n37e8:[\"$37e9\"]\n37e6:{\"data\":\"$37e7\",\"content\":\"$37e8\",\"nodeType\":\"paragraph\"}\n37ed:{}\n37f0:{}\n37f1:[]\n37ef:{\"data\":\"$37f0\",\"marks\":\"$37f1\",\"value\":\"Language interpretation services â including over the phone or video â are offered to patient families in hundreds of languages 24 hours a day, seven days a week to help team members better communicate with patients and families. The offerings depend on the generous funding from donors, who help ensure the services are available to the nearly 50,000 patients and families who visit Childrenâs Health each year with a preferred language other than English. \",\"nodeType\":\"text\"}\n37ee:[\"$37ef\"]\n37ec:{\"data\":\"$37ed\",\"content\":\"$37ee\",\"nodeType\":\"paragraph\"}\n37f3:{}\n37f6:{}\n37f7:[]\n37f5:{\"data\":\"$37f6\",\"marks\":\"$37f7\",\"value\":\"âWithout donations, a lot of children might not be here today,â Jairo said.  \",\"nodeType\":\"text\"}\n37f4:[\"$37f5\"]\n37f2:{\"data\":\"$37f3\",\"content\":\"$37f4\",\"nodeType\":\"paragraph\"}\n37f9:{}\n37fc:{}\n37fd:[]\n37fb:{\"data\":\"$37fc\",\"marks\":\"$37fd\",\"value\":\"Coping with Jairoâs diagnosis \",\"nodeType\":\"text\"}\n37fa:[\"$37fb"])</script>
1<script>self.__next_f.push([1,"\"]\n37f8:{\"data\":\"$37f9\",\"content\":\"$37fa\",\"nodeType\":\"heading-3\"}\n37ff:{}\n3802:{}\n3803:[]\n3801:{\"data\":\"$3802\",\"marks\":\"$3803\",\"value\":\"In the beginning, after Silvia explained Jairoâs diagnosis to her husband, he asked her not to tell their extended family. He worried they would feel sorry for their son and treat him differently. \",\"nodeType\":\"text\"}\n3800:[\"$3801\"]\n37fe:{\"data\":\"$37ff\",\"content\":\"$3800\",\"nodeType\":\"paragraph\"}\n3805:{}\n3808:{}\n3809:[]\n3807:{\"data\":\"$3808\",\"marks\":\"$3809\",\"value\":\"Silvia initially struggled to speak about her babyâs condition, with her words often dissolving into sobs, so she agreed. \",\"nodeType\":\"text\"}\n3806:[\"$3807\"]\n3804:{\"data\":\"$3805\",\"content\":\"$3806\",\"nodeType\":\"paragraph\"}\n380b:{}\n380e:{}\n380f:[]\n380d:{\"data\":\"$380e\",\"marks\":\"$380f\",\"value\":\"While visiting Childrenâs Health for Jairoâs treatment â which included therapies that cleared his airways or helped with digestion â the hospitalâs Child Life specialists helped his mom cope with his diagnosis. Child Life specialists are available to patient families at no cost and instead rely on philanthropic support. \",\"nodeType\":\"text\"}\n380c:[\"$380d\"]\n380a:{\"data\":\"$380b\",\"content\":\"$380c\",\"nodeType\":\"paragraph\"}\n3811:{}\n3814:{}\n3815:[]\n3813:{\"data\":\"$3814\",\"marks\":\"$3815\",\"value\":\"Speaking with them empowered Silvia to tell her extended family about Jairoâs condition. If someone expressed pity for his diagnosis, she confidently assured them that he would live a full life and asked them to avoid treating him differently.   \",\"nodeType\":\"text\"}\n3812:[\"$3813\"]\n3810:{\"data\":\"$3811\",\"content\":\"$3812\",\"nodeType\":\"paragraph\"}\n3817:{}\n381a:{}\n381b:[]\n3819:{\"data\":\"$381a\",\"marks\":\"$381b\",\"value\":\"âThey helped me accept my childâs condition and learn how to talk about it with others,â Silvia said. âItâs not that it doesnât pain me, but I can talk about it now.â \",\"nodeType\":\"text\"}\n3818:[\"$3819\"]\n3816:{\"data\":\"$3817\",\"content\":\"$3818\",\"nodeType\":\"paragraph\"}\n381d:{}\n3820:{}\n3821:[]\n381f:{\"data\":\"$3820\","])</script>
1<script>self.__next_f.push([1,"\"marks\":\"$3821\",\"value\":\"Lifelong bonds \",\"nodeType\":\"text\"}\n381e:[\"$381f\"]\n381c:{\"data\":\"$381d\",\"content\":\"$381e\",\"nodeType\":\"heading-3\"}\n3823:{}\n3826:{}\n3827:[]\n3825:{\"data\":\"$3826\",\"marks\":\"$3827\",\"value\":\"Some at Childrenâs Health have gotten to know Jairo from the moment he arrived at the hospital, where heâs been a patient for roughly 10 years. \",\"nodeType\":\"text\"}\n3824:[\"$3825\"]\n3822:{\"data\":\"$3823\",\"content\":\"$3824\",\"nodeType\":\"paragraph\"}\n3829:{}\n382c:{}\n382d:[]\n382b:{\"data\":\"$382c\",\"marks\":\"$382d\",\"value\":\"He doesnât see his care team members as physicians or nurses, but as his friends. They not only provide him with medical care but also find time to play cards or video games with him during his visits. \",\"nodeType\":\"text\"}\n382a:[\"$382b\"]\n3828:{\"data\":\"$3829\",\"content\":\"$382a\",\"nodeType\":\"paragraph\"}\n382f:{}\n3832:{}\n3833:[]\n3831:{\"data\":\"$3832\",\"marks\":\"$3833\",\"value\":\"âHe jokes, talks and laughs with them. Seeing that gives me strength,â Silvia said. âTheyâve seen him grow.â \",\"nodeType\":\"text\"}\n3830:[\"$3831\"]\n382e:{\"data\":\"$382f\",\"content\":\"$3830\",\"nodeType\":\"paragraph\"}\n3835:{}\n3838:{}\n3839:[]\n3837:{\"data\":\"$3838\",\"marks\":\"$3839\",\"value\":\"A chaplain who got to know the family will sometimes put on a \",\"nodeType\":\"text\"}\n383b:{}\n383d:{\"type\":\"italic\"}\n383c:[\"$383d\"]\n383a:{\"data\":\"$383b\",\"marks\":\"$383c\",\"value\":\"luchador\",\"nodeType\":\"text\"}\n383f:{}\n3840:[]\n383e:{\"data\":\"$383f\",\"marks\":\"$3840\",\"value\":\", or wrestler, mask, play music on his phone and shout like a ring announcer as he enters Jairoâs room.  \",\"nodeType\":\"text\"}\n3836:[\"$3837\",\"$383a\",\"$383e\"]\n3834:{\"data\":\"$3835\",\"content\":\"$3836\",\"nodeType\":\"paragraph\"}\n3842:{}\n3845:{}\n3846:[]\n3844:{\"data\":\"$3845\",\"marks\":\"$3846\",\"value\":\"âJairo will start jumping on the bed and pretend heâs a \",\"nodeType\":\"text\"}\n3848:{}\n384a:{\"type\":\"italic\"}\n3849:[\"$384a\"]\n3847:{\"data\":\"$3848\",\"marks\":\"$3849\",\"value\":\"luchador\",\"nodeType\":\"text\"}\n384c:{}\n384d:[]\n384b:{\"data\":\"$384c\",\"marks\":\"$384d\",\"value\":\",â Silvia said. âThat makes m"])</script>
1<script>self.__next_f.push([1,"e feel so happy. Itâs as if nothing else matters, only that my son is happy.â \",\"nodeType\":\"text\"}\n3843:[\"$3844\",\"$3847\",\"$384b\"]\n3841:{\"data\":\"$3842\",\"content\":\"$3843\",\"nodeType\":\"paragraph\"}\n384f:{}\n3852:{}\n3853:[]\n3851:{\"data\":\"$3852\",\"marks\":\"$3853\",\"value\":\"Now 13 years old, Jairo continues to visit Childrenâs Health each month for checkups. Despite his ongoing care for his cystic fibrosis diagnosis, he has so much energy, Silvia said.  \",\"nodeType\":\"text\"}\n3850:[\"$3851\"]\n384e:{\"data\":\"$384f\",\"content\":\"$3850\",\"nodeType\":\"paragraph\"}\n3855:{}\n3856:[]\n3854:{\"data\":\"$3855\",\"content\":\"$3856\",\"nodeType\":\"embedded-entry-block\"}\n3858:{}\n385b:{}\n385c:[]\n385a:{\"data\":\"$385b\",\"marks\":\"$385c\",\"value\":\"Jairo, who describes himself as a âstrong patient,â isnât one to shy away from asking people blunt questions, often making his mom blush. He loves wrestling, playing video games and soccer and dreams of becoming a barber someday.  \",\"nodeType\":\"text\"}\n3859:[\"$385a\"]\n3857:{\"data\":\"$3858\",\"content\":\"$3859\",\"nodeType\":\"paragraph\"}\n385e:{}\n3861:{}\n3862:[]\n3860:{\"data\":\"$3861\",\"marks\":\"$3862\",\"value\":\"âBarbers make good money,â Jairo said. âI also hope to be healthy and to take care of my family.â \",\"nodeType\":\"text\"}\n385f:[\"$3860\"]\n385d:{\"data\":\"$385e\",\"content\":\"$385f\",\"nodeType\":\"paragraph\"}\n3864:{}\n3867:{}\n3868:[]\n3866:{\"data\":\"$3867\",\"marks\":\"$3868\",\"value\":\"His familyâs biggest hope for him at the moment is for him to find a donor match to receive a lung transplant.  \",\"nodeType\":\"text\"}\n3865:[\"$3866\"]\n3863:{\"data\":\"$3864\",\"content\":\"$3865\",\"nodeType\":\"paragraph\"}\n386a:{}\n386d:{}\n386e:[]\n386c:{\"data\":\"$386d\",\"marks\":\"$386e\",\"value\":\"âWhen you walk around Childrenâs Health, you meet so many strong children like Jairo who are fighting every day to live,â Silvia said. âWe can all learn something from these children.â\",\"nodeType\":\"text\"}\n386b:[\"$386c\"]\n3869:{\"data\":\"$386a\",\"content\":\"$386b\",\"nodeType\":\"paragraph\"}\n3788:[\"$3789\",\"$378f\",\"$3795\",\"$379b\",\"$37a1\",\"$37a7\",\"$37ad\",\"$37b3\",\"$"])</script>
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1<script>self.__next_f.push([1,"nodeType\":\"paragraph\"}\n398e:{}\n398f:[]\n398d:{\"data\":\"$398e\",\"content\":\"$398f\",\"nodeType\":\"embedded-entry-block\"}\n3991:{}\n3994:{}\n3995:[]\n3993:{\"data\":\"$3994\",\"marks\":\"$3995\",\"value\":\"In the meantime, the family tapped into nearly all resources available at the hospital that took their minds off what they were going through, even if only for a moment. They snuggled often with the Childrenâs Health Pet Therapy Programâs dogs, played with music therapists and made frequent use of the therapeutic arts program.  \",\"nodeType\":\"text\"}\n3992:[\"$3993\"]\n3990:{\"data\":\"$3991\",\"content\":\"$3992\",\"nodeType\":\"paragraph\"}\n3997:{}\n399a:{}\n399b:[]\n3999:{\"data\":\"$399a\",\"marks\":\"$399b\",\"value\":\"âThey were little moments of normalcy in an unusual situation that provided some much needed relief,â Lauren said. \",\"nodeType\":\"text\"}\n3998:[\"$3999\"]\n3996:{\"data\":\"$3997\",\"content\":\"$3998\",\"nodeType\":\"paragraph\"}\n399d:{}\n39a0:{}\n39a1:[]\n399f:{\"data\":\"$39a0\",\"marks\":\"$39a1\",\"value\":\"Such services are available at no-cost to patients and their families and rely on the philanthropic support from generous donors. \",\"nodeType\":\"text\"}\n399e:[\"$399f\"]\n399c:{\"data\":\"$399d\",\"content\":\"$399e\",\"nodeType\":\"paragraph\"}\n39a3:{}\n39a6:{}\n39a7:[]\n39a5:{\"data\":\"$39a6\",\"marks\":\"$39a7\",\"value\":\"âDonations helped humanize our time at the hospital,â Lauren said. âThey allow for creativity in how families and patients are cared for at Childrenâs Health.â  \",\"nodeType\":\"text\"}\n39a4:[\"$39a5\"]\n39a2:{\"data\":\"$39a3\",\"content\":\"$39a4\",\"nodeType\":\"paragraph\"}\n39a9:{}\n39ac:{}\n39ad:[]\n39ab:{\"data\":\"$39ac\",\"marks\":\"$39ad\",\"value\":\"Spending so much time at the hospital, Lauren and Eastonâs dad, Peter, also grew close to his care team. \",\"nodeType\":\"text\"}\n39aa:[\"$39ab\"]\n39a8:{\"data\":\"$39a9\",\"content\":\"$39aa\",\"nodeType\":\"paragraph\"}\n39af:{}\n39b2:{}\n39b3:[]\n39b1:{\"data\":\"$39b2\",\"marks\":\"$39b3\",\"value\":\"His parents were in awe at how quickly physicians and care team members could pivot at the drop of a moment. They communicated clearly and moved efficie"])</script>
1<script>self.__next_f.push([1,"ntly, while also caring for the family deeply and with compassion. \",\"nodeType\":\"text\"}\n39b0:[\"$39b1\"]\n39ae:{\"data\":\"$39af\",\"content\":\"$39b0\",\"nodeType\":\"paragraph\"}\n39b5:{}\n39b8:{}\n39b9:[]\n39b7:{\"data\":\"$39b8\",\"marks\":\"$39b9\",\"value\":\"âHis care team gave us such peace of mind that our baby is receiving the best possible care with the best possible people who love him as much as we do,â Lauren said. \",\"nodeType\":\"text\"}\n39b6:[\"$39b7\"]\n39b4:{\"data\":\"$39b5\",\"content\":\"$39b6\",\"nodeType\":\"paragraph\"}\n39bb:{}\n39be:{}\n39bf:[]\n39bd:{\"data\":\"$39be\",\"marks\":\"$39bf\",\"value\":\"Lauren recalls physicians who not only advocated for Easton, but also for her when she arrived at the hospital so soon after giving birth. She fondly remembers how one fought for her and Easton to have a private room at the pediatric intensive care unit to offer the family some privacy to heal from childbirth during their early days at Childrenâs Health. \",\"nodeType\":\"text\"}\n39bc:[\"$39bd\"]\n39ba:{\"data\":\"$39bb\",\"content\":\"$39bc\",\"nodeType\":\"paragraph\"}\n39c1:{}\n39c4:{}\n39c5:[]\n39c3:{\"data\":\"$39c4\",\"marks\":\"$39c5\",\"value\":\"The nurses they met provided welcomed distractions for Eastonâs parents, discussing their wedding plans or surprising them with art projects they had done with Easton during the night shift. One even drew a picture of what Eastonâs heart looked like for physicians to use as a visual guide when explaining procedures to the family. \",\"nodeType\":\"text\"}\n39c2:[\"$39c3\"]\n39c0:{\"data\":\"$39c1\",\"content\":\"$39c2\",\"nodeType\":\"paragraph\"}\n39c7:{}\n39ca:{}\n39cb:[]\n39c9:{\"data\":\"$39ca\",\"marks\":\"$39cb\",\"value\":\"âThe coordination of care is unmatched,â Lauren said. âTheyâre also some of the sweetest and most genuine people weâve encountered. They are part of our family. Everyone goes above and beyond.â \",\"nodeType\":\"text\"}\n39c8:[\"$39c9\"]\n39c6:{\"data\":\"$39c7\",\"content\":\"$39c8\",\"nodeType\":\"paragraph\"}\n39cd:{}\n39d0:{}\n39d1:[]\n39cf:{\"data\":\"$39d0\",\"marks\":\"$39d1\",\"value\":\"Learning how to raise a patient \",\"nodeType\":\"text\"}\n39ce:"])</script>
1<script>self.__next_f.push([1,"[\"$39cf\"]\n39cc:{\"data\":\"$39cd\",\"content\":\"$39ce\",\"nodeType\":\"heading-3\"}\n39d3:{}\n39d6:{}\n39d7:[]\n39d5:{\"data\":\"$39d6\",\"marks\":\"$39d7\",\"value\":\"With a 4-year-old son at home, Lauren and Peter werenât new to babies, but they had to learn how to be parents to a baby with congenital heart defects, which involved a different kind of care.  \",\"nodeType\":\"text\"}\n39d4:[\"$39d5\"]\n39d2:{\"data\":\"$39d3\",\"content\":\"$39d4\",\"nodeType\":\"paragraph\"}\n39d9:{}\n39dc:{}\n39dd:[]\n39db:{\"data\":\"$39dc\",\"marks\":\"$39dd\",\"value\":\"Childrenâs Health team members at the Heart Centerâs Safe at Home Program helped the family navigate their new world.  \",\"nodeType\":\"text\"}\n39da:[\"$39db\"]\n39d8:{\"data\":\"$39d9\",\"content\":\"$39da\",\"nodeType\":\"paragraph\"}\n39df:{}\n39e0:[]\n39de:{\"data\":\"$39df\",\"content\":\"$39e0\",\"nodeType\":\"embedded-entry-block\"}\n39e2:{}\n39e5:{}\n39e6:[]\n39e4:{\"data\":\"$39e5\",\"marks\":\"$39e6\",\"value\":\"They taught them how to best take care of Easton; what they needed to look out for; and what they didnât need to worry about. Mostly, they reminded them to be patient. \",\"nodeType\":\"text\"}\n39e3:[\"$39e4\"]\n39e1:{\"data\":\"$39e2\",\"content\":\"$39e3\",\"nodeType\":\"paragraph\"}\n39e8:{}\n39eb:{}\n39ec:[]\n39ea:{\"data\":\"$39eb\",\"marks\":\"$39ec\",\"value\":\"Although Eastonâs parents were concerned when he didnât start crawling at 6 months old, for example, their care team said, âGive it some time.â He had been in a hospital bed for half of his life, after all. \",\"nodeType\":\"text\"}\n39e9:[\"$39ea\"]\n39e7:{\"data\":\"$39e8\",\"content\":\"$39e9\",\"nodeType\":\"paragraph\"}\n39ee:{}\n39f1:{}\n39f2:[]\n39f0:{\"data\":\"$39f1\",\"marks\":\"$39f2\",\"value\":\"âHelping us manage our expectations was extremely helpful,â Peter said.  \",\"nodeType\":\"text\"}\n39ef:[\"$39f0\"]\n39ed:{\"data\":\"$39ee\",\"content\":\"$39ef\",\"nodeType\":\"paragraph\"}\n39f4:{}\n39f7:{}\n39f8:[]\n39f6:{\"data\":\"$39f7\",\"marks\":\"$39f8\",\"value\":\"Child Life specialists, who support the entire family unit in coping effectively with hospitalization, ensured Charlie, Eastonâs older brother, felt included when possible. They h"])</script>
1<script>self.__next_f.push([1,"elped coordinate family dinners at the hospital so the siblings could bond and provided guidance on age-appropriate ways to talk about what was happening with his baby brother. \",\"nodeType\":\"text\"}\n39f5:[\"$39f6\"]\n39f3:{\"data\":\"$39f4\",\"content\":\"$39f5\",\"nodeType\":\"paragraph\"}\n39fa:{}\n39fd:{}\n39fe:[]\n39fc:{\"data\":\"$39fd\",\"marks\":\"$39fe\",\"value\":\"âOur experience would not have been nearly as positive or successful without the people at Childrenâs Health,â Lauren said. \",\"nodeType\":\"text\"}\n39fb:[\"$39fc\"]\n39f9:{\"data\":\"$39fa\",\"content\":\"$39fb\",\"nodeType\":\"paragraph\"}\n3a00:{}\n3a03:{}\n3a04:[]\n3a02:{\"data\":\"$3a03\",\"marks\":\"$3a04\",\"value\":\"Starting to live life at the fullest \",\"nodeType\":\"text\"}\n3a01:[\"$3a02\"]\n39ff:{\"data\":\"$3a00\",\"content\":\"$3a01\",\"nodeType\":\"heading-3\"}\n3a06:{}\n3a09:{}\n3a0a:[]\n3a08:{\"data\":\"$3a09\",\"marks\":\"$3a0a\",\"value\":\"In March of last year, the impossible became possible as Easton received a full heart repair â and he hasnât looked back since.  \",\"nodeType\":\"text\"}\n3a07:[\"$3a08\"]\n3a05:{\"data\":\"$3a06\",\"content\":\"$3a07\",\"nodeType\":\"paragraph\"}\n3a0c:{}\n3a0f:{}\n3a10:[]\n3a0e:{\"data\":\"$3a0f\",\"marks\":\"$3a10\",\"value\":\"Easton, now 2 years old, is growing fast and meeting more and more milestones every day. His family held a WubbaNub drive to celebrate his birthday, gathering about 260 of the pacifiers attached to small, plush toys to give back to Childrenâs Health. The family was inspired after walking into Eastonâs room one morning during his early days at the hospital and finding him with a lion WubbaNub, which his nurse was able to give him thanks to donations. \",\"nodeType\":\"text\"}\n3a0d:[\"$3a0e\"]\n3a0b:{\"data\":\"$3a0c\",\"content\":\"$3a0d\",\"nodeType\":\"paragraph\"}\n3a12:{}\n3a15:{}\n3a16:[]\n3a14:{\"data\":\"$3a15\",\"marks\":\"$3a16\",\"value\":\"Easton has an uncanny ability to light up a room by cracking a highly contagious smile or laugh; will gladly turn on the Roomba if he deems the floor needs cleaning; and is very opinionated. \",\"nodeType\":\"text\"}\n3a13:[\"$3a14\"]\n3a11:{\"data\":\"$3a12\",\"content\":\"$3"])</script>
1<script>self.__next_f.push([1,"a13\",\"nodeType\":\"paragraph\"}\n3a18:{}\n3a1b:{}\n3a1c:[]\n3a1a:{\"data\":\"$3a1b\",\"marks\":\"$3a1c\",\"value\":\"âSome might say heâs a little stubborn,â Lauren said. âItâs safe to say itâs Eastonâs way or the highway.â \",\"nodeType\":\"text\"}\n3a19:[\"$3a1a\"]\n3a17:{\"data\":\"$3a18\",\"content\":\"$3a19\",\"nodeType\":\"paragraph\"}\n3a1e:{}\n3a21:{}\n3a22:[]\n3a20:{\"data\":\"$3a21\",\"marks\":\"$3a22\",\"value\":\"Easton is also mesmerized by his big brother, Charlie, who is his favorite person.  \",\"nodeType\":\"text\"}\n3a1f:[\"$3a20\"]\n3a1d:{\"data\":\"$3a1e\",\"content\":\"$3a1f\",\"nodeType\":\"paragraph\"}\n3a24:{}\n3a27:{}\n3a28:[]\n3a26:{\"data\":\"$3a27\",\"marks\":\"$3a28\",\"value\":\"His parents are looking forward to him living a full, happy and vibrant life.  \",\"nodeType\":\"text\"}\n3a25:[\"$3a26\"]\n3a23:{\"data\":\"$3a24\",\"content\":\"$3a25\",\"nodeType\":\"paragraph\"}\n3a2a:{}\n3a2d:{}\n3a2e:[]\n3a2c:{\"data\":\"$3a2d\",\"marks\":\"$3a2e\",\"value\":\"After their experience at the hospital, they also hope to instill the joy of giving in both of their children by teaching them that everyone in their family does what they can to make a difference in the world, Lauren said. \",\"nodeType\":\"text\"}\n3a2b:[\"$3a2c\"]\n3a29:{\"data\":\"$3a2a\",\"content\":\"$3a2b\",\"nodeType\":\"paragraph\"}\n3a30:{}\n3a33:{}\n3a34:[]\n3a32:{\"data\":\"$3a33\",\"marks\":\"$3a34\",\"value\":\"âChildrenâs Health impacted us so deeply,â she said. âWe hope to inspire others to see that and help continue on that impact.â \",\"nodeType\":\"text\"}\n3a31:[\"$3a32\"]\n3a2f:{\"data\":\"$3a30\",\"content\":\"$3a31\",\"nodeType\":\"paragraph\"}\n3943:[\"$3944\",\"$394a\",\"$3950\",\"$395d\",\"$3963\",\"$3969\",\"$396f\",\"$3975\",\"$397b\",\"$3981\",\"$3987\",\"$398d\",\"$3990\",\"$3996\",\"$399c\",\"$39a2\",\"$39a8\",\"$39ae\",\"$39b4\",\"$39ba\",\"$39c0\",\"$39c6\",\"$39cc\",\"$39d2\",\"$39d8\",\"$39de\",\"$39e1\",\"$39e7\",\"$39ed\",\"$39f3\",\"$39f9\",\"$39ff\",\"$3a05\",\"$3a0b\",\"$3a11\",\"$3a17\",\"$3a1d\",\"$3a23\",\"$3a29\",\"$3a2f\"]\n3941:{\"data\":\"$3942\",\"content\":\"$3943\",\"nodeType\":\"document\"}\n3940:{\"adminTitle\":\"Main Content: Easton | Patient Ambassador\",\"headingLevel\":\"h2\",\"body\":\"$3941\",\"contentAccordion\":\"Disabled\"}\n39"])</script>
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1<script>self.__next_f.push([1,"ots of things that she needed help with, and she needed lots of specialists. She didn't need just a cardiologist or just a pulmonologist or just a gastroenterologist. She needed all three of them to be in the room at the same time,â Hayden said. âWe didnât know Childrenâs Health, but we knew it could offer more.â\",\"nodeType\":\"text\"}\n3b30:[\"$3b31\"]\n3b2e:{\"data\":\"$3b2f\",\"content\":\"$3b30\",\"nodeType\":\"paragraph\"}\n3b35:{}\n3b38:{}\n3b39:[]\n3b37:{\"data\":\"$3b38\",\"marks\":\"$3b39\",\"value\":\"The couple decided to take the leap and move Elizabeth â at 19 days old â in the middle of the night to Childrenâs Medical Center Dallas.\",\"nodeType\":\"text\"}\n3b36:[\"$3b37\"]\n3b34:{\"data\":\"$3b35\",\"content\":\"$3b36\",\"nodeType\":\"paragraph\"}\n3b3b:{}\n3b3e:{}\n3b3f:[]\n3b3d:{\"data\":\"$3b3e\",\"marks\":\"$3b3f\",\"value\":\"âWhen the transport team walked in, my mom likes to joke that it looked like the Dallas Cowboys offensive line had entered the scene,â Hayden said. âThey spent hours moving her to the gurney, and then we quietly left.â\",\"nodeType\":\"text\"}\n3b3c:[\"$3b3d\"]\n3b3a:{\"data\":\"$3b3b\",\"content\":\"$3b3c\",\"nodeType\":\"paragraph\"}\n3b41:{}\n3b44:{}\n3b45:[]\n3b43:{\"data\":\"$3b44\",\"marks\":\"$3b45\",\"value\":\"An up and down journey and a moment of connection\",\"nodeType\":\"text\"}\n3b42:[\"$3b43\"]\n3b40:{\"data\":\"$3b41\",\"content\":\"$3b42\",\"nodeType\":\"heading-3\"}\n3b47:{}\n3b4a:{}\n3b4b:[]\n3b49:{\"data\":\"$3b4a\",\"marks\":\"$3b4b\",\"value\":\"Elizabeth was born with a group of birth defects that impacted her heart, spine and esophagus. Only 12 hours after she was born, she had her first surgery to repair a hole in her stomach. A few days later, once she was stronger, she had another surgery to close a hole in her esophagus.\",\"nodeType\":\"text\"}\n3b48:[\"$3b49\"]\n3b46:{\"data\":\"$3b47\",\"content\":\"$3b48\",\"nodeType\":\"paragraph\"}\n3b4d:{}\n3b50:{}\n3b51:[]\n3b4f:{\"data\":\"$3b50\",\"marks\":\"$3b51\",\"value\":\"When she arrived around midnight at the Dallas campus, the transport team rushed her through the double doors where a swarm of physicians, nurses and technicians were ready to"])</script>
1<script>self.__next_f.push([1," move her into the NICU.\",\"nodeType\":\"text\"}\n3b4e:[\"$3b4f\"]\n3b4c:{\"data\":\"$3b4d\",\"content\":\"$3b4e\",\"nodeType\":\"paragraph\"}\n3b53:{}\n3b56:{}\n3b57:[]\n3b55:{\"data\":\"$3b56\",\"marks\":\"$3b57\",\"value\":\"And Sushmita G. Yallapragada, M.D., a hopeful voice theyâd only heard on the phone, was there to greet them, too. She knew from Elizabethâs vital numbers that this baby still had fight left.\",\"nodeType\":\"text\"}\n3b54:[\"$3b55\"]\n3b52:{\"data\":\"$3b53\",\"content\":\"$3b54\",\"nodeType\":\"paragraph\"}\n3b59:{}\n3b5c:{}\n3b5d:[]\n3b5b:{\"data\":\"$3b5c\",\"marks\":\"$3b5d\",\"value\":\"âI feel a lot of empathy for these families no matter what the diagnosis is. It is really hard to be in a hospital. It's hard when everybody around you and all your family and friends have had a different experience, and you're experiencing this very acute period,â said Dr. Yallapragada, Medical Director of the NICU at Childrenâs Health and Associate Professor at UT Southwestern Medical Center. âIt feels isolating. It feels scary, and it feels insurmountable. And I felt it in their voices when they called.â\",\"nodeType\":\"text\"}\n3b5a:[\"$3b5b\"]\n3b58:{\"data\":\"$3b59\",\"content\":\"$3b5a\",\"nodeType\":\"paragraph\"}\n3b5f:{}\n3b60:[]\n3b5e:{\"data\":\"$3b5f\",\"content\":\"$3b60\",\"nodeType\":\"embedded-entry-block\"}\n3b62:{}\n3b65:{}\n3b66:[]\n3b64:{\"data\":\"$3b65\",\"marks\":\"$3b66\",\"value\":\"At first, Elizabeth seemed to be doing better in the NICU, but by day five, her condition took a sharp decline.\",\"nodeType\":\"text\"}\n3b63:[\"$3b64\"]\n3b61:{\"data\":\"$3b62\",\"content\":\"$3b63\",\"nodeType\":\"paragraph\"}\n3b68:{}\n3b6b:{}\n3b6c:[]\n3b6a:{\"data\":\"$3b6b\",\"marks\":\"$3b6c\",\"value\":\"As a last resort, physicians advised putting Elizabeth on a heart and lung bypass machine called extracorporeal membrane oxygenation (ECMO) -- a life support system for critically ill children who have life-threatening heart or lung problems.\",\"nodeType\":\"text\"}\n3b69:[\"$3b6a\"]\n3b67:{\"data\":\"$3b68\",\"content\":\"$3b69\",\"nodeType\":\"paragraph\"}\n3b6e:{}\n3b71:{}\n3b72:[]\n3b70:{\"data\":\"$3b71\",\"marks\":\"$3b72\",\"value\":\"âNeither one of us"])</script>
1<script>self.__next_f.push([1," knew what that was, and so it was scary,â Kaitlyn said. âBut we knew that was the only thing we could do to save her life.â\",\"nodeType\":\"text\"}\n3b6f:[\"$3b70\"]\n3b6d:{\"data\":\"$3b6e\",\"content\":\"$3b6f\",\"nodeType\":\"paragraph\"}\n3b74:{}\n3b77:{}\n3b78:[]\n3b76:{\"data\":\"$3b77\",\"marks\":\"$3b78\",\"value\":\"The machine gave her body time to rest, and at about six weeks old, Elizabeth was strong enough to move to the cardiovascular intensive care unit, where Hayden and Kaitlyn were able to hold her for the first time.\",\"nodeType\":\"text\"}\n3b75:[\"$3b76\"]\n3b73:{\"data\":\"$3b74\",\"content\":\"$3b75\",\"nodeType\":\"paragraph\"}\n3b7a:{}\n3b7d:{}\n3b7e:[]\n3b7c:{\"data\":\"$3b7d\",\"marks\":\"$3b7e\",\"value\":\"âThat part makes me super emotional, because up until this point, we had been unable to do anything that a parent typically does. The most we could do was change her diaper,â Kaitlyn said. âWe finally got to have that connection with her. And then after that, they let us do it every day.â\",\"nodeType\":\"text\"}\n3b7b:[\"$3b7c\"]\n3b79:{\"data\":\"$3b7a\",\"content\":\"$3b7b\",\"nodeType\":\"paragraph\"}\n3b80:{}\n3b83:{}\n3b84:[]\n3b82:{\"data\":\"$3b83\",\"marks\":\"$3b84\",\"value\":\"The mother-child bond and ability for a family to hold their baby is stressed as part of a patientâs recovery through The Heart Centerâs neurodevelopment program â the only cardiac program of its kind in North Texas, said Erin Gordon, D.O., Cardiac Intensivist at Childrenâs Health and Associate Professor at UT Southwestern Medical Center.\",\"nodeType\":\"text\"}\n3b81:[\"$3b82\"]\n3b7f:{\"data\":\"$3b80\",\"content\":\"$3b81\",\"nodeType\":\"paragraph\"}\n3b86:{}\n3b87:[]\n3b85:{\"data\":\"$3b86\",\"content\":\"$3b87\",\"nodeType\":\"embedded-entry-block\"}\n3b89:{}\n3b8c:{}\n3b8d:[]\n3b8b:{\"data\":\"$3b8c\",\"marks\":\"$3b8d\",\"value\":\"The ride home\",\"nodeType\":\"text\"}\n3b8a:[\"$3b8b\"]\n3b88:{\"data\":\"$3b89\",\"content\":\"$3b8a\",\"nodeType\":\"heading-3\"}\n3b8f:{}\n3b92:{}\n3b93:[]\n3b91:{\"data\":\"$3b92\",\"marks\":\"$3b93\",\"value\":\"Two months after she was born, Elizabeth was strong enough to undergo open heart surgery to repair the holes in "])</script>
1<script>self.__next_f.push([1,"heart and fix her pulmonary artery.\",\"nodeType\":\"text\"}\n3b90:[\"$3b91\"]\n3b8e:{\"data\":\"$3b8f\",\"content\":\"$3b90\",\"nodeType\":\"paragraph\"}\n3b95:{}\n3b98:{}\n3b99:[]\n3b97:{\"data\":\"$3b98\",\"marks\":\"$3b99\",\"value\":\"âWe thought that that was going to get her off the ventilator pretty quickly, but it just took a while,â Kaitlyn said. âHer lungs were really ill.â\",\"nodeType\":\"text\"}\n3b96:[\"$3b97\"]\n3b94:{\"data\":\"$3b95\",\"content\":\"$3b96\",\"nodeType\":\"paragraph\"}\n3b9b:{}\n3b9e:{}\n3b9f:[]\n3b9d:{\"data\":\"$3b9e\",\"marks\":\"$3b9f\",\"value\":\"Elizabethâs pulmonary artery had actually narrowed due to scarring, and a cluster of abnormal blood vessels had developed. But what seemed like a setback, her medical team saw as an opportunity to improve the way her body functions so that she would be successful the next time she tried.\",\"nodeType\":\"text\"}\n3b9c:[\"$3b9d\"]\n3b9a:{\"data\":\"$3b9b\",\"content\":\"$3b9c\",\"nodeType\":\"paragraph\"}\n3ba1:{}\n3ba4:{}\n3ba5:[]\n3ba3:{\"data\":\"$3ba4\",\"marks\":\"$3ba5\",\"value\":\"âWe meet them at their most vulnerable time when they're sick. They're in the hospital. They're not making the progress they were supposed to be making,â said Abhay Divekar, M.D., pediatric cardiologist at Childrenâs Health and professor at UT Southwestern Medical Center. âAnd then we're trying to explain to them what we're going to do in a language that is not too medical.â\",\"nodeType\":\"text\"}\n3ba2:[\"$3ba3\"]\n3ba0:{\"data\":\"$3ba1\",\"content\":\"$3ba2\",\"nodeType\":\"paragraph\"}\n3ba7:{}\n3baa:{}\n3bab:[]\n3ba9:{\"data\":\"$3baa\",\"marks\":\"$3bab\",\"value\":\"Toward the end of Elizabethâs stay, Dr. Divekar performed one final procedure to place a stent and widen her scarred pulmonary artery and remove the abnormal vessels. This allowed Elizabeth to come off the ventilator. \",\"nodeType\":\"text\"}\n3ba8:[\"$3ba9\"]\n3ba6:{\"data\":\"$3ba7\",\"content\":\"$3ba8\",\"nodeType\":\"paragraph\"}\n3bad:{}\n3bb0:{}\n3bb1:[]\n3baf:{\"data\":\"$3bb0\",\"marks\":\"$3bb1\",\"value\":\"And finally, at 110 days old, she was ready to go home.\",\"nodeType\":\"text\"}\n3bae:[\"$3baf\"]\n3bac:{\"data\":\"$3bad\",\"con"])</script>
1<script>self.__next_f.push([1,"tent\":\"$3bae\",\"nodeType\":\"paragraph\"}\n3bb3:{}\n3bb6:{}\n3bb7:[]\n3bb5:{\"data\":\"$3bb6\",\"marks\":\"$3bb7\",\"value\":\"âAll that I had wanted to do was wheel her out in her stroller like every other mom. That day, when I finally got the chance to do that, was surreal,â Kaitlyn said.\",\"nodeType\":\"text\"}\n3bb4:[\"$3bb5\"]\n3bb2:{\"data\":\"$3bb3\",\"content\":\"$3bb4\",\"nodeType\":\"paragraph\"}\n3bb9:{}\n3bbc:{}\n3bbd:[]\n3bbb:{\"data\":\"$3bbc\",\"marks\":\"$3bbd\",\"value\":\"Looking forward and giving back\",\"nodeType\":\"text\"}\n3bba:[\"$3bbb\"]\n3bb8:{\"data\":\"$3bb9\",\"content\":\"$3bba\",\"nodeType\":\"heading-3\"}\n3bbf:{}\n3bc2:{}\n3bc3:[]\n3bc1:{\"data\":\"$3bc2\",\"marks\":\"$3bc3\",\"value\":\"A chatty 2-year-old, Elizabeth has lots of stuffed animals (also known as her babies). Sheâs picking up on sarcasm, dancing to the âHokey Pokeyâ and making herself laugh. (For example, sheâll shorten the names of her stuffies such as a lobster named âLobbyâ to âLobâ and crack herself up.)\",\"nodeType\":\"text\"}\n3bc0:[\"$3bc1\"]\n3bbe:{\"data\":\"$3bbf\",\"content\":\"$3bc0\",\"nodeType\":\"paragraph\"}\n3bc5:{}\n3bc8:{}\n3bc9:[]\n3bc7:{\"data\":\"$3bc8\",\"marks\":\"$3bc9\",\"value\":\"âWe say that she has the joy of the Lord, and we truly believe that. She had a crazy rough start and somehow has just been happy the whole time,â Kaitlyn said.\",\"nodeType\":\"text\"}\n3bc6:[\"$3bc7\"]\n3bc4:{\"data\":\"$3bc5\",\"content\":\"$3bc6\",\"nodeType\":\"paragraph\"}\n3bcb:{}\n3bce:{}\n3bcf:[]\n3bcd:{\"data\":\"$3bce\",\"marks\":\"$3bcf\",\"value\":\"In January, Dr. Divekar performed another procedure to widen the stent in Elizabethâs heart. The hope is that she wonât need another operation for several more years.\",\"nodeType\":\"text\"}\n3bcc:[\"$3bcd\"]\n3bca:{\"data\":\"$3bcb\",\"content\":\"$3bcc\",\"nodeType\":\"paragraph\"}\n3bd1:{}\n3bd4:{}\n3bd5:[]\n3bd3:{\"data\":\"$3bd4\",\"marks\":\"$3bd5\",\"value\":\"âTo me that is the best part of the job. Obviously, none of us can predict the future, but we see how she is today â a kid who is running, playing and laughing,â Dr. Divekar said. \",\"nodeType\":\"text\"}\n3bd2:[\"$3bd3\"]\n3bd0:{\"data\":\"$3bd1\",\"content\":\"$3bd"])</script>
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1<script>self.__next_f.push([1," rare,â Victoria said. âIâm gonna go to Korean barbeque. And Iâll have sushi. And eggs, sunny side up. And maybe some clams or fried shrimp.â \",\"nodeType\":\"text\"}\n3ccb:[\"$3ccc\"]\n3cc9:{\"data\":\"$3cca\",\"content\":\"$3ccb\",\"nodeType\":\"paragraph\"}\n3cd0:{}\n3cd3:{}\n3cd4:[]\n3cd2:{\"data\":\"$3cd3\",\"marks\":\"$3cd4\",\"value\":\"Beyond being an 8-year-old with a sophisticated palate, Victoria is smart and kind. She always takes initiative and loves math and doing science experiments.\",\"nodeType\":\"text\"}\n3cd1:[\"$3cd2\"]\n3ccf:{\"data\":\"$3cd0\",\"content\":\"$3cd1\",\"nodeType\":\"paragraph\"}\n3cd6:{}\n3cd9:{}\n3cda:[]\n3cd8:{\"data\":\"$3cd9\",\"marks\":\"$3cda\",\"value\":\"But in 2023, Victoriaâs journey began with a fever that wouldnât go away. \",\"nodeType\":\"text\"}\n3cd7:[\"$3cd8\"]\n3cd5:{\"data\":\"$3cd6\",\"content\":\"$3cd7\",\"nodeType\":\"paragraph\"}\n3cdc:{}\n3cdf:{}\n3ce0:[]\n3cde:{\"data\":\"$3cdf\",\"marks\":\"$3ce0\",\"value\":\"âOne morning, she woke us at 5 a.m., crying out, 'I canât breathe,' and saying, 'Somethingâs wrong, Daddy.' In that moment, we knew we had to act fast, so we rushed her to the ER,â her dad, Carlos, said. \",\"nodeType\":\"text\"}\n3cdd:[\"$3cde\"]\n3cdb:{\"data\":\"$3cdc\",\"content\":\"$3cdd\",\"nodeType\":\"paragraph\"}\n3ce2:{}\n3ce5:{}\n3ce6:[]\n3ce4:{\"data\":\"$3ce5\",\"marks\":\"$3ce6\",\"value\":\"After several tests were run, physicians diagnosed Victoria with Acute Lymphoblastic Leukemia. \",\"nodeType\":\"text\"}\n3ce3:[\"$3ce4\"]\n3ce1:{\"data\":\"$3ce2\",\"content\":\"$3ce3\",\"nodeType\":\"paragraph\"}\n3ce8:{}\n3ceb:{}\n3cec:[]\n3cea:{\"data\":\"$3ceb\",\"marks\":\"$3cec\",\"value\":\"âI saw my parents hug and cry. I was in a lot of pain, but I knew I was in good hands,â Victoria said. \",\"nodeType\":\"text\"}\n3ce9:[\"$3cea\"]\n3ce7:{\"data\":\"$3ce8\",\"content\":\"$3ce9\",\"nodeType\":\"paragraph\"}\n3cee:{}\n3cef:[]\n3ced:{\"data\":\"$3cee\",\"content\":\"$3cef\",\"nodeType\":\"embedded-entry-block\"}\n3cf1:{}\n3cf4:{}\n3cf5:[]\n3cf3:{\"data\":\"$3cf4\",\"marks\":\"$3cf5\",\"value\":\"Even though her familyâs world seemed to crumble, Victoria knew that this was just the beginning of her fight â and that she wasnât alone"])</script>
1<script>self.__next_f.push([1,". She would fight the diagnosis with the support of her family and health care team at Childrenâs Healthâ .\",\"nodeType\":\"text\"}\n3cf2:[\"$3cf3\"]\n3cf0:{\"data\":\"$3cf1\",\"content\":\"$3cf2\",\"nodeType\":\"paragraph\"}\n3cf7:{}\n3cfa:{}\n3cfb:[]\n3cf9:{\"data\":\"$3cfa\",\"marks\":\"$3cfb\",\"value\":\"âThe care team spoke to my husband and me with certainty and confidence on how to attack this disease,â her mom, Luzy, said. âAt that moment, I felt confident that my daughter would have a second chance in life.â\",\"nodeType\":\"text\"}\n3cf8:[\"$3cf9\"]\n3cf6:{\"data\":\"$3cf7\",\"content\":\"$3cf8\",\"nodeType\":\"paragraph\"}\n3cfd:{}\n3d00:{}\n3d01:[]\n3cff:{\"data\":\"$3d00\",\"marks\":\"$3d01\",\"value\":\"Learning about leukemia \",\"nodeType\":\"text\"}\n3cfe:[\"$3cff\"]\n3cfc:{\"data\":\"$3cfd\",\"content\":\"$3cfe\",\"nodeType\":\"heading-3\"}\n3d03:{}\n3d06:{}\n3d07:[]\n3d05:{\"data\":\"$3d06\",\"marks\":\"$3d07\",\"value\":\"Victoria had never heard of leukemia. But soon she would learn all about it. \",\"nodeType\":\"text\"}\n3d04:[\"$3d05\"]\n3d02:{\"data\":\"$3d03\",\"content\":\"$3d04\",\"nodeType\":\"paragraph\"}\n3d09:{}\n3d0a:[]\n3d08:{\"data\":\"$3d09\",\"content\":\"$3d0a\",\"nodeType\":\"embedded-entry-block\"}\n3d0c:{}\n3d0f:{}\n3d10:[]\n3d0e:{\"data\":\"$3d0f\",\"marks\":\"$3d10\",\"value\":\"Child life specialist Caroline used cards with pictures to teach Victoria about white blood cells and how leukemia happens when your body makes too many of them. She told her that the treatments she needed to get better may cause body aches and make her feel tired, but she was strong, and she could get through it. \",\"nodeType\":\"text\"}\n3d0d:[\"$3d0e\"]\n3d0b:{\"data\":\"$3d0c\",\"content\":\"$3d0d\",\"nodeType\":\"paragraph\"}\n3d12:{}\n3d15:{}\n3d16:[]\n3d14:{\"data\":\"$3d15\",\"marks\":\"$3d16\",\"value\":\"Victoria would need a port, a tiny device placed in the chest area with minor surgery, so doctors could give her the medicine she needed. Caroline showed Victoria exactly what to expect â by demonstrating the procedure on a stuffed animal. \",\"nodeType\":\"text\"}\n3d13:[\"$3d14\"]\n3d11:{\"data\":\"$3d12\",\"content\":\"$3d13\",\"nodeType\":\"paragraph\"}\n3d18:{}\n3d1b:{}\n3d1c:[]\n3"])</script>
1<script>self.__next_f.push([1,"d1a:{\"data\":\"$3d1b\",\"marks\":\"$3d1c\",\"value\":\"âAt first I was scared, but once Caroline showed me, I felt fine,â Victoria said. âWhen I went to the surgery room to get the port, I told them, âI know whatâs going to happen.ââ \",\"nodeType\":\"text\"}\n3d19:[\"$3d1a\"]\n3d17:{\"data\":\"$3d18\",\"content\":\"$3d19\",\"nodeType\":\"paragraph\"}\n3d1e:{}\n3d21:{}\n3d22:[]\n3d20:{\"data\":\"$3d21\",\"marks\":\"$3d22\",\"value\":\"Victoria spent the first month after her diagnosis at Childrenâs Health. \",\"nodeType\":\"text\"}\n3d1f:[\"$3d20\"]\n3d1d:{\"data\":\"$3d1e\",\"content\":\"$3d1f\",\"nodeType\":\"paragraph\"}\n3d24:{}\n3d27:{}\n3d28:[]\n3d26:{\"data\":\"$3d27\",\"marks\":\"$3d28\",\"value\":\"âWe missed Halloween at home, but it was Halloween at the hospital, too,â Victoria said. âWe did crafts and picked out a costume.â \",\"nodeType\":\"text\"}\n3d25:[\"$3d26\"]\n3d23:{\"data\":\"$3d24\",\"content\":\"$3d25\",\"nodeType\":\"paragraph\"}\n3d2a:{}\n3d2d:{}\n3d2e:[]\n3d2c:{\"data\":\"$3d2d\",\"marks\":\"$3d2e\",\"value\":\"Her family was touched by the outpouring of love and support from their care team and community. During an unimaginably hard time, they found comfort in small blessings â like seeing their brave 7-year-old light up with joy, dressed as Wednesday Addams, even while spending Halloween in a hospital room. \",\"nodeType\":\"text\"}\n3d2b:[\"$3d2c\"]\n3d29:{\"data\":\"$3d2a\",\"content\":\"$3d2b\",\"nodeType\":\"paragraph\"}\n3d30:{}\n3d33:{}\n3d34:[]\n3d32:{\"data\":\"$3d33\",\"marks\":\"$3d34\",\"value\":\"A change of treatment plans \",\"nodeType\":\"text\"}\n3d31:[\"$3d32\"]\n3d2f:{\"data\":\"$3d30\",\"content\":\"$3d31\",\"nodeType\":\"heading-3\"}\n3d36:{}\n3d39:{}\n3d3a:[]\n3d38:{\"data\":\"$3d39\",\"marks\":\"$3d3a\",\"value\":\"Victoriaâs treatments stretched on through the weeks and months that followed, each day a new test of strength and hope. What Luzy and Carlos, an MRI Technologist at Childrenâs Medical Center Plano, didnât realize was that Victoria was fighting her battle at a remarkable moment when a groundbreaking new treatment was emerging for the very cancer she was facing: B-cell acute lymphoblastic leukemia. \",\"nodeTyp"])</script>
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1<script>self.__next_f.push([1,"\":\"$3e4d\",\"textMetaproperties\":\"$3e4e\"}\n3e48:[\"$3e49\"]\n3e47:{\"adminTitle\":\"Media: Patient Ambassador 2025 - Trevor | Thumbnail\",\"image\":\"$3e48\"}\n3e3c:{\"metadata\":\"$3e3d\",\"sys\":\"$3e40\",\"fields\":\"$3e47\"}\n3e3b:[\"$3e3c\"]\n3e52:[]\n3e53:[]\n3e51:{\"tags\":\"$3e52\",\"concepts\":\"$3e53\"}\n3e56:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n3e55:{\"sys\":\"$3e56\"}\n3e58:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n3e57:{\"sys\":\"$3e58\"}\n3e5a:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n3e59:{\"sys\":\"$3e5a\"}\n3e54:{\"space\":\"$3e55\",\"id\":\"5gslMEwBPsd0kunerRWSkc\",\"type\":\"Entry\",\"createdAt\":\"2025-05-08T17:58:37.797Z\",\"updatedAt\":\"2026-03-24T14:35:12.338Z\",\"environment\":\"$3e57\",\"publishedVersion\":33,\"revision\":8,\"contentType\":\"$3e59\",\"locale\":\"en-US\"}\n3e5d:{}\n3e60:{}\n3e63:[]\n3e64:{}\n3e62:{\"nodeType\":\"text\",\"value\":\"11-year-old Trevor dreams big. When he grows up, he wants to be an astronaut, helicopter pilot or, perhaps, a scientist. \",\"marks\":\"$3e63\",\"data\":\"$3e64\"}\n3e61:[\"$3e62\"]\n3e5f:{\"nodeType\":\"paragraph\",\"data\":\"$3e60\",\"content\":\"$3e61\"}\n3e66:{}\n3e69:[]\n3e6a:{}\n3e68:{\"nodeType\":\"text\",\"value\":\"âI love space,â he said. âIt sounds like a fun thing to explore.â \",\"marks\":\"$3e69\",\"data\":\"$3e6a\"}\n3e67:[\"$3e68\"]\n3e65:{\"nodeType\":\"paragraph\",\"data\":\"$3e66\",\"content\":\"$3e67\"}\n3e6c:{}\n3e6f:[]\n3e70:{}\n3e6e:{\"nodeType\":\"text\",\"value\":\"Trevor enjoys tinkering with crafts, understanding how things work and playing video games with friends. Heâs also the kind of kid who likes to brighten up peopleâs days, whether thatâs with a smile or a joke. \",\"marks\":\"$3e6f\",\"data\":\"$3e70\"}\n3e6d:[\"$3e6e\"]\n3e6b:{\"nodeType\":\"paragraph\",\"data\":\"$3e6c\",\"content\":\"$3e6d\"}\n3e72:{}\n3e75:[]\n3e76:{}\n3e74:{\"nodeType\":\"text\",\"value\":\"âHow do you make a tissue dance?â Trevor asks with a twinkle in his eye. âYou put a little boogie in it.â \",\"marks\":\"$3e75\",\"data\":\"$3e76\"}\n3e73:[\"$3e74\"]\n3e71:{\"nodeType\":\"paragraph\",\"data\":\"$3e72\",\"content\":\"$3e73\"}\n3e78:{}\n3e7b:[]\n3e7c:{}\n3e7a:{\"nodeType\":\"text\",\"value\":\"When Trevor and his "])</script>
1<script>self.__next_f.push([1,"family suddenly experienced the unimaginable, his unwavering positivity and cheerfulness illuminated some of their toughest days. \",\"marks\":\"$3e7b\",\"data\":\"$3e7c\"}\n3e79:[\"$3e7a\"]\n3e77:{\"nodeType\":\"paragraph\",\"data\":\"$3e78\",\"content\":\"$3e79\"}\n3e7e:{}\n3e81:[]\n3e82:{}\n3e80:{\"nodeType\":\"text\",\"value\":\"Shortly after his older brothers got over a stomach bug in 2022, Trevor began throwing up. His parents assumed the same virus had made its way to their entire family. \",\"marks\":\"$3e81\",\"data\":\"$3e82\"}\n3e7f:[\"$3e80\"]\n3e7d:{\"nodeType\":\"paragraph\",\"data\":\"$3e7e\",\"content\":\"$3e7f\"}\n3e84:{}\n3e87:[]\n3e88:{}\n3e86:{\"nodeType\":\"text\",\"value\":\"Concerned after their youngest hadnât recovered like his siblings, they took him to an area hospital a few days later. Physicians sent the family back home with nausea medication, but Trevorâs symptoms didn't go away. \",\"marks\":\"$3e87\",\"data\":\"$3e88\"}\n3e85:[\"$3e86\"]\n3e83:{\"nodeType\":\"paragraph\",\"data\":\"$3e84\",\"content\":\"$3e85\"}\n3e8a:{}\n3e8d:[]\n3e8e:{}\n3e8c:{\"nodeType\":\"text\",\"value\":\"At a different hospital, Trevorâs parents shared their sonâs growing list of symptoms with physicians. A CT scan revealed something his family hadnât even thought of â Trevor had a tumor in his brain. \",\"marks\":\"$3e8d\",\"data\":\"$3e8e\"}\n3e8b:[\"$3e8c\"]\n3e89:{\"nodeType\":\"paragraph\",\"data\":\"$3e8a\",\"content\":\"$3e8b\"}\n3e90:{}\n3e93:[]\n3e94:{}\n3e92:{\"nodeType\":\"text\",\"value\":\"âWe didnât know what we were up against or what was going on in Trevorâs head,â said his mom, Larie. \",\"marks\":\"$3e93\",\"data\":\"$3e94\"}\n3e91:[\"$3e92\"]\n3e8f:{\"nodeType\":\"paragraph\",\"data\":\"$3e90\",\"content\":\"$3e91\"}\n3e96:{}\n3e99:[]\n3e9a:{}\n3e98:{\"nodeType\":\"text\",\"value\":\"Physicians rushed Trevor and his family to Children's Health â about two hours from their home in Kilgore. \",\"marks\":\"$3e99\",\"data\":\"$3e9a\"}\n3e97:[\"$3e98\"]\n3e95:{\"nodeType\":\"paragraph\",\"data\":\"$3e96\",\"content\":\"$3e97\"}\n3e9c:{}\n3e9f:[]\n3ea0:{}\n3e9e:{\"nodeType\":\"text\",\"value\":\"There, physicians in the Pauline Allen Gill Center for Cancer and Blood Disorders also d"])</script>
1<script>self.__next_f.push([1,"iagnosed him with neurofibromatosis, or NF â a lifelong genetic condition in which tumors grow on the nerve tissue. The Neurofibromatosis Program at the Gill Center for Cancer and Blood Disorders is the largest pediatric NF program in North Texas and the only regional program affiliated with the Childrenâs Tumor Foundation. \",\"marks\":\"$3e9f\",\"data\":\"$3ea0\"}\n3e9d:[\"$3e9e\"]\n3e9b:{\"nodeType\":\"paragraph\",\"data\":\"$3e9c\",\"content\":\"$3e9d\"}\n3ea2:{}\n3ea3:[]\n3ea1:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$3ea2\",\"content\":\"$3ea3\"}\n3ea5:{}\n3ea8:[]\n3ea9:{}\n3ea7:{\"nodeType\":\"text\",\"value\":\"Spreading joy at Childrenâs Health \",\"marks\":\"$3ea8\",\"data\":\"$3ea9\"}\n3ea6:[\"$3ea7\"]\n3ea4:{\"nodeType\":\"heading-3\",\"data\":\"$3ea5\",\"content\":\"$3ea6\"}\n3eab:{}\n3eae:[]\n3eaf:{}\n3ead:{\"nodeType\":\"text\",\"value\":\"For roughly two years, Trevor went to Children's Health each week for rounds of chemotherapy. \",\"marks\":\"$3eae\",\"data\":\"$3eaf\"}\n3eac:[\"$3ead\"]\n3eaa:{\"nodeType\":\"paragraph\",\"data\":\"$3eab\",\"content\":\"$3eac\"}\n3eb1:{}\n3eb4:[]\n3eb5:{}\n3eb3:{\"nodeType\":\"text\",\"value\":\"Because the tumor was in his brain, removal wasnât an option, and they were uncertain whether chemotherapy would work. And with Trevorâs future in limbo, his family was anxious. \",\"marks\":\"$3eb4\",\"data\":\"$3eb5\"}\n3eb2:[\"$3eb3\"]\n3eb0:{\"nodeType\":\"paragraph\",\"data\":\"$3eb1\",\"content\":\"$3eb2\"}\n3eb7:{}\n3eb8:[]\n3eb6:{\"nodeType\":\"embedded-entry-block\",\"data\":\"$3eb7\",\"content\":\"$3eb8\"}\n3eba:{}\n3ebd:[]\n3ebe:{}\n3ebc:{\"nodeType\":\"text\",\"value\":\"But Trevor stayed a beacon of courage and positivity through his cancer journey. Although he was facing one of the toughest challenges of his life, he wanted to find a way to spread joy during his hospital visits, which his family called âTreatment Tuesdays.â\",\"marks\":\"$3ebd\",\"data\":\"$3ebe\"}\n3ebb:[\"$3ebc\"]\n3eb9:{\"nodeType\":\"paragraph\",\"data\":\"$3eba\",\"content\":\"$3ebb\"}\n3ec0:{}\n3ec3:[]\n3ec4:{}\n3ec2:{\"nodeType\":\"text\",\"value\":\"âWe talked about how we wanted to be a blessing to everyone that we came in contact with because this happened in T"])</script>
1<script>self.__next_f.push([1,"revorâs life for a reason,â Larie said.\",\"marks\":\"$3ec3\",\"data\":\"$3ec4\"}\n3ec1:[\"$3ec2\"]\n3ebf:{\"nodeType\":\"paragraph\",\"data\":\"$3ec0\",\"content\":\"$3ec1\"}\n3ec6:{}\n3ec9:[]\n3eca:{}\n3ec8:{\"nodeType\":\"text\",\"value\":\"Trevor came up with the idea of bringing small treats to share with Childrenâs Health team members â such as pre-packaged trail mix or popcorn â paired with a fun pun or joke. The goodies gave Trevor something else to think about throughout his treatment and brought a smile to those who ran into him.\",\"marks\":\"$3ec9\",\"data\":\"$3eca\"}\n3ec7:[\"$3ec8\"]\n3ec5:{\"nodeType\":\"paragraph\",\"data\":\"$3ec6\",\"content\":\"$3ec7\"}\n3ecc:{}\n3ecf:[]\n3ed0:{}\n3ece:{\"nodeType\":\"text\",\"value\":\"âIt made their days better and cheered them up,â Trevor said. âAnd it cheers me up because I like to bring joy to people.â\",\"marks\":\"$3ecf\",\"data\":\"$3ed0\"}\n3ecd:[\"$3ece\"]\n3ecb:{\"nodeType\":\"paragraph\",\"data\":\"$3ecc\",\"content\":\"$3ecd\"}\n3ed2:{}\n3ed5:[]\n3ed6:{}\n3ed4:{\"nodeType\":\"text\",\"value\":\"While at the hospital, Trevor also enjoyed meeting and hanging out with its therapy dogs, who would jump up on his bed and provide some welcome distractions. The Childrenâs Health Pet Therapy Program is part of a number of services that provide wraparound care for patients and their families free of charge. The program, which helps deliver the comforts of home throughout the hospital, relies on philanthropic support from community members. \",\"marks\":\"$3ed5\",\"data\":\"$3ed6\"}\n3ed3:[\"$3ed4\"]\n3ed1:{\"nodeType\":\"paragraph\",\"data\":\"$3ed2\",\"content\":\"$3ed3\"}\n3ed8:{}\n3edb:[]\n3edc:{}\n3eda:{\"nodeType\":\"text\",\"value\":\"A team behind every family \",\"marks\":\"$3edb\",\"data\":\"$3edc\"}\n3ed9:[\"$3eda\"]\n3ed7:{\"nodeType\":\"heading-3\",\"data\":\"$3ed8\",\"content\":\"$3ed9\"}\n3ede:{}\n3ee1:[]\n3ee2:{}\n3ee0:{\"nodeType\":\"text\",\"value\":\"From the moment they were unexpectedly rushed to Childrenâs Health, Trevorâs family has âfelt every bit of compassion and care from the hospitalâs team membersâ throughout their journey, Larie said.\",\"marks\":\"$3ee1\",\"data\":\"$3ee2\"}\n3edf:[\"$"])</script>
1<script>self.__next_f.push([1,"3ee0\"]\n3edd:{\"nodeType\":\"paragraph\",\"data\":\"$3ede\",\"content\":\"$3edf\"}\n3ee4:{}\n3ee7:[]\n3ee8:{}\n3ee6:{\"nodeType\":\"text\",\"value\":\"Many at the hospital, from physicians to security guards, knew Trevorâs name and would greet the family warmly. Team members who caught wind of his love of jokes came prepared with their own puns and riddles to trade with the young patient.\",\"marks\":\"$3ee7\",\"data\":\"$3ee8\"}\n3ee5:[\"$3ee6\"]\n3ee3:{\"nodeType\":\"paragraph\",\"data\":\"$3ee4\",\"content\":\"$3ee5\"}\n3eea:{}\n3eed:[]\n3eee:{}\n3eec:{\"nodeType\":\"text\",\"value\":\"âTheyâre sweet, nice, kind, thoughtful,â Trevor said. âTheyâre just overall super sweet.â\",\"marks\":\"$3eed\",\"data\":\"$3eee\"}\n3eeb:[\"$3eec\"]\n3ee9:{\"nodeType\":\"paragraph\",\"data\":\"$3eea\",\"content\":\"$3eeb\"}\n3ef0:{}\n3ef3:[]\n3ef4:{}\n3ef2:{\"nodeType\":\"text\",\"value\":\"The peopleâs warmth made some of the most difficult days a little more bearable, and Childrenâs Health soon became like a second home to the family.\",\"marks\":\"$3ef3\",\"data\":\"$3ef4\"}\n3ef1:[\"$3ef2\"]\n3eef:{\"nodeType\":\"paragraph\",\"data\":\"$3ef0\",\"content\":\"$3ef1\"}\n3ef6:{}\n3ef9:[]\n3efa:{}\n3ef8:{\"nodeType\":\"text\",\"value\":\"âWe had a team behind us,â Larie said. âYou can feel isolated when youâre going through these types of things with your kiddo, but I have always felt so supported. They truly feel like family. They had my back.â\",\"marks\":\"$3ef9\",\"data\":\"$3efa\"}\n3ef7:[\"$3ef8\"]\n3ef5:{\"nodeType\":\"paragraph\",\"data\":\"$3ef6\",\"content\":\"$3ef7\"}\n3efc:{}\n3eff:[]\n3f00:{}\n3efe:{\"nodeType\":\"text\",\"value\":\"Despite Trevor being everyoneâs priority, his care team members made sure to check in on how the rest of the family was doing throughout their journey.\",\"marks\":\"$3eff\",\"data\":\"$3f00\"}\n3efd:[\"$3efe\"]\n3efb:{\"nodeType\":\"paragraph\",\"data\":\"$3efc\",\"content\":\"$3efd\"}\n3f02:{}\n3f05:[]\n3f06:{}\n3f04:{\"nodeType\":\"text\",\"value\":\"âThat goes a long way,â Larie said.\",\"marks\":\"$3f05\",\"data\":\"$3f06\"}\n3f03:[\"$3f04\"]\n3f01:{\"nodeType\":\"paragraph\",\"data\":\"$3f02\",\"content\":\"$3f03\"}\n3f08:{}\n3f0b:[]\n3f0c:{}\n3f0a:{\"nodeType\":\"text\",\"value\":"])</script>
1<script>self.__next_f.push([1,"\"Childrenâs Health Child Life specialists, who offer their wide-ranging services to the whole patient family, connected Trevorâs parents with support groups, which allowed them to meet and talk to other families whose children were going through similar struggles. Child Life programs, which are available to families at no cost, depend on donorsâ philanthropic support. \",\"marks\":\"$3f0b\",\"data\":\"$3f0c\"}\n3f09:[\"$3f0a\"]\n3f07:{\"nodeType\":\"paragraph\",\"data\":\"$3f08\",\"content\":\"$3f09\"}\n3f0e:{}\n3f11:[]\n3f12:{}\n3f10:{\"nodeType\":\"text\",\"value\":\"Ringing the bell \",\"marks\":\"$3f11\",\"data\":\"$3f12\"}\n3f0f:[\"$3f10\"]\n3f0d:{\"nodeType\":\"heading-3\",\"data\":\"$3f0e\",\"content\":\"$3f0f\"}\n3f14:{}\n3f17:[]\n3f18:{}\n3f16:{\"nodeType\":\"text\",\"value\":\"After about two years, Trevor, now 11 years old, rang the bell in September 2024 at Children's Health to celebrate the end of his chemotherapy treatment. His big day started at school, where local firefighters and police, called in by his school district, gathered for a big send-off as his parents picked him up to go to the hospital.\",\"marks\":\"$3f17\",\"data\":\"$3f18\"}\n3f15:[\"$3f16\"]\n3f13:{\"nodeType\":\"paragraph\",\"data\":\"$3f14\",\"content\":\"$3f15\"}\n3f1a:{}\n3f1d:[]\n3f1e:{}\n3f1c:{\"nodeType\":\"text\",\"value\":\"âHeâs like a celebrity,â Larie said. âThey made it a really big deal.â\",\"marks\":\"$3f1d\",\"data\":\"$3f1e\"}\n3f1b:[\"$3f1c\"]\n3f19:{\"nodeType\":\"paragraph\",\"data\":\"$3f1a\",\"content\":\"$3f1b\"}\n3f20:{}\n3f23:[]\n3f24:{}\n3f22:{\"nodeType\":\"text\",\"value\":\"At Childrenâs Health, his care team members threw him a party, where he gave a speech to thank them.\",\"marks\":\"$3f23\",\"data\":\"$3f24\"}\n3f21:[\"$3f22\"]\n3f1f:{\"nodeType\":\"paragraph\",\"data\":\"$3f20\",\"content\":\"$3f21\"}\n3f26:{}\n3f29:[]\n3f2a:{}\n3f28:{\"nodeType\":\"text\",\"value\":\"âI felt really happy and glad,â Trevor said. âOf course, I felt sad that I would no longer see all my hospital friends every Tuesday.â\",\"marks\":\"$3f29\",\"data\":\"$3f2a\"}\n3f27:[\"$3f28\"]\n3f25:{\"nodeType\":\"paragraph\",\"data\":\"$3f26\",\"content\":\"$3f27\"}\n3f2c:{}\n3f2f:[]\n3f30:{}\n3f2e:{\"nodeTyp"])</script>
1<script>self.__next_f.push([1,"e\":\"text\",\"value\":\"Today, Trevor feels strong and like heâs getting a lot of his energy back. He now visits Childrenâs Health every two weeks for check-ups.\",\"marks\":\"$3f2f\",\"data\":\"$3f30\"}\n3f2d:[\"$3f2e\"]\n3f2b:{\"nodeType\":\"paragraph\",\"data\":\"$3f2c\",\"content\":\"$3f2d\"}\n3f32:{}\n3f35:[]\n3f36:{}\n3f34:{\"nodeType\":\"text\",\"value\":\"Although heâs celebrated a big milestone, Trevor will continue to get MRI scans at least annually for the rest of his life and keep up with an oncologist to monitor his neurofibromatosis diagnosis, which puts him at risk of developing other tumors.\",\"marks\":\"$3f35\",\"data\":\"$3f36\"}\n3f33:[\"$3f34\"]\n3f31:{\"nodeType\":\"paragraph\",\"data\":\"$3f32\",\"content\":\"$3f33\"}\n3f38:{}\n3f3b:[]\n3f3c:{}\n3f3a:{\"nodeType\":\"text\",\"value\":\"âHe knew he sometimes had to go to the hospital to do unpleasant things, but he still went in with a good attitude and did his best to be brave,â Larie said. âThatâs Trevor, heâs very courageous.â \",\"marks\":\"$3f3b\",\"data\":\"$3f3c\"}\n3f39:[\"$3f3a\"]\n3f37:{\"nodeType\":\"paragraph\",\"data\":\"$3f38\",\"content\":\"$3f39\"}\n3f3e:{}\n3f41:[]\n3f42:{}\n3f40:{\"nodeType\":\"text\",\"value\":\"Meet more Children's Health patients\",\"marks\":\"$3f41\",\"data\":\"$3f42\"}\n3f3f:[\"$3f40\"]\n3f3d:{\"nodeType\":\"heading-2\",\"data\":\"$3f3e\",\"content\":\"$3f3f\"}\n3f44:{}\n3f47:[]\n3f48:{}\n3f46:{\"nodeType\":\"text\",\"value\":\"Read more \",\"marks\":\"$3f47\",\"data\":\"$3f48\"}\n3f4a:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n3f4d:[]\n3f4e:{}\n3f4c:{\"nodeType\":\"text\",\"value\":\"patient stories\",\"marks\":\"$3f4d\",\"data\":\"$3f4e\"}\n3f4b:[\"$3f4c\"]\n3f49:{\"nodeType\":\"hyperlink\",\"data\":\"$3f4a\",\"content\":\"$3f4b\"}\n3f50:[]\n3f51:{}\n3f4f:{\"nodeType\":\"text\",\"value\":\" like Trevor's and meet our \",\"marks\":\"$3f50\",\"data\":\"$3f51\"}\n3f53:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n3f56:[]\n3f57:{}\n3f55:{\"nodeType\":\"text\",\"value\":\"Patient Ambassadors\",\"marks\":\"$3f56\",\"data\":\"$3f57\"}\n3f54:[\"$3f55\"]\n3f52:{\"nodeType\":\"hyperlink\",\"data\":\"$3f53\",\"content\":\"$3f54\"}\n3f59:[]\n3f5a:{}\n3f58:{\"nodeType\":\"text\",\"value\":\" to learn how Child"])</script>
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1<script>self.__next_f.push([1,"ype\":\"text\"}\n4014:[\"$4015\"]\n4012:{\"data\":\"$4013\",\"content\":\"$4014\",\"nodeType\":\"paragraph\"}\n4019:{}\n401c:{}\n401d:[]\n401b:{\"data\":\"$401c\",\"marks\":\"$401d\",\"value\":\"A dedicated team of specialists helps RH live his most fulfilling life \",\"nodeType\":\"text\"}\n401a:[\"$401b\"]\n4018:{\"data\":\"$4019\",\"content\":\"$401a\",\"nodeType\":\"heading-3\"}\n401f:{}\n4020:[]\n401e:{\"data\":\"$401f\",\"content\":\"$4020\",\"nodeType\":\"embedded-entry-block\"}\n4022:{}\n4025:{}\n4026:[]\n4024:{\"data\":\"$4025\",\"marks\":\"$4026\",\"value\":\"Over the years, RHâs care has spanned pulmonology, neurology, cardiology, hematology, audiology, rehabilitation medicine and more. Cerebral palsy is a neurological condition that happens in utero. Because childrenâs brains are so flexible, a lot of his care has been focused on therapy to build his cognitive and gross motor skills.\",\"nodeType\":\"text\"}\n4023:[\"$4024\"]\n4021:{\"data\":\"$4022\",\"content\":\"$4023\",\"nodeType\":\"paragraph\"}\n4028:{}\n402b:{}\n402c:[]\n402a:{\"data\":\"$402b\",\"marks\":\"$402c\",\"value\":\"Heâs also had some of his biggest life milestones at Childrenâs Health.\",\"nodeType\":\"text\"}\n4029:[\"$402a\"]\n4027:{\"data\":\"$4028\",\"content\":\"$4029\",\"nodeType\":\"paragraph\"}\n402e:{}\n4031:{}\n4032:[]\n4030:{\"data\":\"$4031\",\"marks\":\"$4032\",\"value\":\"âRH took his first steps at the hospital. It was a victory for our family and his team. There have been plenty of hard moments, but no matter what heâs faced, Childrenâs Health has been at our side,â she said.\",\"nodeType\":\"text\"}\n402f:[\"$4030\"]\n402d:{\"data\":\"$402e\",\"content\":\"$402f\",\"nodeType\":\"paragraph\"}\n4034:{}\n4037:{}\n4038:[]\n4036:{\"data\":\"$4037\",\"marks\":\"$4038\",\"value\":\"RH has multiple weekly visits to Childrenâs Health for outpatient physical and occupational therapy and has logged dozens of hours in the therapy pool. He also receives specialized speech and swallowing therapy to help strengthen the muscles in his esophagus and vocal cords so he can eat.\",\"nodeType\":\"text\"}\n4035:[\"$4036\"]\n4033:{\"data\":\"$4034\",\"content\":\"$4035\",\"nodeType\":\"paragraph\"}\n403a:{}\n403d:{}\n403e:[]\n403c:{\"d"])</script>
1<script>self.__next_f.push([1,"ata\":\"$403d\",\"marks\":\"$403e\",\"value\":\"With support from his therapists, RH has learned to communicate with the help of a tablet. And even though he is nonverbal, RHâs sisters almost always know exactly what he wants or needs â and when heâs ready to play or celebrate.\",\"nodeType\":\"text\"}\n403b:[\"$403c\"]\n4039:{\"data\":\"$403a\",\"content\":\"$403b\",\"nodeType\":\"paragraph\"}\n4040:{}\n4043:{}\n4044:[]\n4042:{\"data\":\"$4043\",\"marks\":\"$4044\",\"value\":\"âClardy Ruth and Dot expect RH to play with them at the playground and everywhere we go. They know he is different, but they donât see him as being different,â Jessica said. âWhen others acknowledge his differences or kids arenât friendly, they become very protective.â\",\"nodeType\":\"text\"}\n4041:[\"$4042\"]\n403f:{\"data\":\"$4040\",\"content\":\"$4041\",\"nodeType\":\"paragraph\"}\n4046:{}\n4049:{}\n404a:[]\n4048:{\"data\":\"$4049\",\"marks\":\"$404a\",\"value\":\"A keen neurologist brings RHâs health into full view \",\"nodeType\":\"text\"}\n4047:[\"$4048\"]\n4045:{\"data\":\"$4046\",\"content\":\"$4047\",\"nodeType\":\"heading-3\"}\n404c:{}\n404f:{}\n4050:[]\n404e:{\"data\":\"$404f\",\"marks\":\"$4050\",\"value\":\"Even as RH gradually met the milestones his therapists and doctors hoped he would, his care team was still perplexed by a few things. But that changed in 2022.\",\"nodeType\":\"text\"}\n404d:[\"$404e\"]\n404b:{\"data\":\"$404c\",\"content\":\"$404d\",\"nodeType\":\"paragraph\"}\n4052:{}\n4055:{}\n4056:[]\n4054:{\"data\":\"$4055\",\"marks\":\"$4056\",\"value\":\"RH was in the hospital for recurring complex seizures and Saima Kayani, M.D., pediatric neurologist and Assistant Professor at UT Southwestern, was the attending neurologist rounding on RHâs floor that day.\",\"nodeType\":\"text\"}\n4053:[\"$4054\"]\n4051:{\"data\":\"$4052\",\"content\":\"$4053\",\"nodeType\":\"paragraph\"}\n4058:{}\n405b:{}\n405c:[]\n405a:{\"data\":\"$405b\",\"marks\":\"$405c\",\"value\":\"RHâs family had never met Dr. Kayani, who specializes in medical genetics and studies rare neurological diseases. As she read RH's medical history, she started asking questions â a lot of questions. Eventually, she asked R"])</script>
1<script>self.__next_f.push([1,"H's family if she could test RH for a series of genetic conditions.\",\"nodeType\":\"text\"}\n4059:[\"$405a\"]\n4057:{\"data\":\"$4058\",\"content\":\"$4059\",\"nodeType\":\"paragraph\"}\n405e:{}\n4061:{}\n4062:[]\n4060:{\"data\":\"$4061\",\"marks\":\"$4062\",\"value\":\"Soon, Dr. Kayani diagnosed RH with a rare condition called partial trisomy of the 17th chromosome that can lead to developmental delays.\",\"nodeType\":\"text\"}\n405f:[\"$4060\"]\n405d:{\"data\":\"$405e\",\"content\":\"$405f\",\"nodeType\":\"paragraph\"}\n4064:{}\n4067:{}\n4068:[]\n4066:{\"data\":\"$4067\",\"marks\":\"$4068\",\"value\":\"âWe learned that every cell of his being, the way RH was knit together â from the moment of conception â happened with an extra special bunny ear of chromosome material,â Jessica says. âItâs given us a better direction for his medical care, his needs are more closely related to someone who has Down Syndrome. Now we can see and know RH for who he truly is, which makes me love him even more.â\",\"nodeType\":\"text\"}\n4065:[\"$4066\"]\n4063:{\"data\":\"$4064\",\"content\":\"$4065\",\"nodeType\":\"paragraph\"}\n406a:{}\n406d:{}\n406e:[]\n406c:{\"data\":\"$406d\",\"marks\":\"$406e\",\"value\":\"More recently, RH has been seeing an ear, nose and throat specialist to help with his severe sleep apnea and treatment could involve a life-changing surgery to implant a device to keep his airway open during sleep.\",\"nodeType\":\"text\"}\n406b:[\"$406c\"]\n4069:{\"data\":\"$406a\",\"content\":\"$406b\",\"nodeType\":\"paragraph\"}\n4070:{}\n4073:{}\n4074:[]\n4072:{\"data\":\"$4073\",\"marks\":\"$4074\",\"value\":\"For RHâs family, this is another example of the collaborative care found through Childrenâs Health and UT Southwestern to help a boy who has been a patient for more than a decade.\",\"nodeType\":\"text\"}\n4071:[\"$4072\"]\n406f:{\"data\":\"$4070\",\"content\":\"$4071\",\"nodeType\":\"paragraph\"}\n4076:{}\n4079:{}\n407a:[]\n4078:{\"data\":\"$4079\",\"marks\":\"$407a\",\"value\":\"âChildrenâs Health has been integral for RHâs health, and the journey is not finished. His care has relied on so many specialties across the system,â Jessica said. âHere we are â all c"])</script>
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1<script>self.__next_f.push([1,"a\":\"$4166\",\"marks\":\"$4167\",\"value\":\"Beads of Courage\",\"nodeType\":\"text\"}\n4164:[\"$4165\"]\n4162:{\"data\":\"$4163\",\"content\":\"$4164\",\"nodeType\":\"hyperlink\"}\n4169:{}\n416a:[]\n4168:{\"data\":\"$4169\",\"marks\":\"$416a\",\"value\":\", children with serious illnesses add beads to their string at important milestones and moments of bravery like needle pokes, hospital stays and treatments completed. \",\"nodeType\":\"text\"}\n415e:[\"$415f\",\"$4162\",\"$4168\"]\n415c:{\"data\":\"$415d\",\"content\":\"$415e\",\"nodeType\":\"paragraph\"}\n416c:{}\n416d:[]\n416b:{\"data\":\"$416c\",\"content\":\"$416d\",\"nodeType\":\"embedded-entry-block\"}\n416f:{}\n4172:{}\n4173:[]\n4171:{\"data\":\"$4172\",\"marks\":\"$4173\",\"value\":\"âEarly on, Beckettâs string was as tall as him. Then it could wrap around him four or five times,â James said. âNow it's this massive, 25-yard-long string of Beads of Courage.â \",\"nodeType\":\"text\"}\n4170:[\"$4171\"]\n416e:{\"data\":\"$416f\",\"content\":\"$4170\",\"nodeType\":\"paragraph\"}\n4175:{}\n4178:{}\n4179:[]\n4177:{\"data\":\"$4178\",\"marks\":\"$4179\",\"value\":\"A life-changing diagnosis \",\"nodeType\":\"text\"}\n4176:[\"$4177\"]\n4174:{\"data\":\"$4175\",\"content\":\"$4176\",\"nodeType\":\"heading-3\"}\n417b:{}\n417e:{}\n417f:[]\n417d:{\"data\":\"$417e\",\"marks\":\"$417f\",\"value\":\"James remembers October 5, 2022, clear as day. It started at the pediatricianâs office, where the doctor ordered blood tests because Beckett, then 19 months old, had an unexplained and persistent fever. It ended at the \",\"nodeType\":\"text\"}\n4181:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/cancer-and-blood-disorders\"}\n4184:{}\n4185:[]\n4183:{\"data\":\"$4184\",\"marks\":\"$4185\",\"value\":\"Pauline Allen Gill Center for Pediatric Cancers and Blood Disorders\",\"nodeType\":\"text\"}\n4182:[\"$4183\"]\n4180:{\"data\":\"$4181\",\"content\":\"$4182\",\"nodeType\":\"hyperlink\"}\n4187:{}\n4188:[]\n4186:{\"data\":\"$4187\",\"marks\":\"$4188\",\"value\":\". James can still picture the physician explaining to him and his wife Megan that Beckett had cancer. \",\"nodeType\":\"text\"}\n417c:[\"$417d\",\"$4180\",\"$4186\"]\n417a:{\"data\":\"$417b\",\"content\":\"$417"])</script>
1<script>self.__next_f.push([1,"c\",\"nodeType\":\"paragraph\"}\n418a:{}\n418d:{}\n418e:[]\n418c:{\"data\":\"$418d\",\"marks\":\"$418e\",\"value\":\"âCould the results be wrong?â Megan asked hopefully. \",\"nodeType\":\"text\"}\n418b:[\"$418c\"]\n4189:{\"data\":\"$418a\",\"content\":\"$418b\",\"nodeType\":\"paragraph\"}\n4190:{}\n4193:{}\n4194:[]\n4192:{\"data\":\"$4193\",\"marks\":\"$4194\",\"value\":\"But the physician hadnât just taken the results the lab provided â the doctor closely reviewed the bloodwork and knew it was correct. \",\"nodeType\":\"text\"}\n4191:[\"$4192\"]\n418f:{\"data\":\"$4190\",\"content\":\"$4191\",\"nodeType\":\"paragraph\"}\n4196:{}\n4199:{}\n419a:[]\n4198:{\"data\":\"$4199\",\"marks\":\"$419a\",\"value\":\"A rare and complex type of leukemia \",\"nodeType\":\"text\"}\n4197:[\"$4198\"]\n4195:{\"data\":\"$4196\",\"content\":\"$4197\",\"nodeType\":\"heading-3\"}\n419c:{}\n419f:{}\n41a0:[]\n419e:{\"data\":\"$419f\",\"marks\":\"$41a0\",\"value\":\"Further testing revealed that Beckett had a rare subtype of the most common childhood cancer, acute lymphoblastic leukemia. Called Philadelphia chromosome-positive acute lymphoblastic \",\"nodeType\":\"text\"}\n41a2:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/leukemia\"}\n41a5:{}\n41a6:[]\n41a4:{\"data\":\"$41a5\",\"marks\":\"$41a6\",\"value\":\"leukemia\",\"nodeType\":\"text\"}\n41a3:[\"$41a4\"]\n41a1:{\"data\":\"$41a2\",\"content\":\"$41a3\",\"nodeType\":\"hyperlink\"}\n41a8:{}\n41a9:[]\n41a7:{\"data\":\"$41a8\",\"marks\":\"$41a9\",\"value\":\" (Ph+ALL), it forms because of a genetic change where two genes fuse together. \",\"nodeType\":\"text\"}\n419d:[\"$419e\",\"$41a1\",\"$41a7\"]\n419b:{\"data\":\"$419c\",\"content\":\"$419d\",\"nodeType\":\"paragraph\"}\n41ab:{}\n41ae:{}\n41af:[]\n41ad:{\"data\":\"$41ae\",\"marks\":\"$41af\",\"value\":\"It was Oct. 9 when Megan and James learned that this type of cancer can pass through the blood-brain barrier and enter the brain and spinal cord â and Beckett had cancer cells surrounding his brain and the tissue near his eyes. \",\"nodeType\":\"text\"}\n41ac:[\"$41ad\"]\n41aa:{\"data\":\"$41ab\",\"content\":\"$41ac\",\"nodeType\":\"paragraph\"}\n41b1:{}\n41b4:{}\n41b5:[]\n41b3:{\"data\":\"$41b4\",\"marks\":\"$41b5\",\"value\":\"âWe lived at Childrenâs Medi"])</script>
1<script>self.__next_f.push([1,"cal Center Dallas for the first 50 days because he needed such aggressive treatment,â James said. \",\"nodeType\":\"text\"}\n41b2:[\"$41b3\"]\n41b0:{\"data\":\"$41b1\",\"content\":\"$41b2\",\"nodeType\":\"paragraph\"}\n41b7:{}\n41ba:{}\n41bb:[]\n41b9:{\"data\":\"$41ba\",\"marks\":\"$41bb\",\"value\":\"Beckett had several rounds of chemotherapy, some of which needed to be injected directly into his spine (spinal taps). \",\"nodeType\":\"text\"}\n41b8:[\"$41b9\"]\n41b6:{\"data\":\"$41b7\",\"content\":\"$41b8\",\"nodeType\":\"paragraph\"}\n41bd:{}\n41c0:{}\n41c1:[]\n41bf:{\"data\":\"$41c0\",\"marks\":\"$41c1\",\"value\":\"âThat first year was the worst. He was very, very sick,â James said. âWe were lucky to get to spend some time at home. But there were days where weâd be sitting on our couch one minute, and the next heâd have a 105-degree fever, and weâd rush back to the hospital.â \",\"nodeType\":\"text\"}\n41be:[\"$41bf\"]\n41bc:{\"data\":\"$41bd\",\"content\":\"$41be\",\"nodeType\":\"paragraph\"}\n41c3:{}\n41c6:{}\n41c7:[]\n41c5:{\"data\":\"$41c6\",\"marks\":\"$41c7\",\"value\":\"Beckett ultimately needed more than 50 spinal taps over the course of two years, 20 imaging studies and 300 needle pokes. At one point, Beckett required a surgery that relied on experts from oncology, pulmonology, gastroenterology and ear, nose and throat. All told, Beckett spent 131 nights in the hospital before his fourth birthday. \",\"nodeType\":\"text\"}\n41c4:[\"$41c5\"]\n41c2:{\"data\":\"$41c3\",\"content\":\"$41c4\",\"nodeType\":\"paragraph\"}\n41c9:{}\n41ca:[]\n41c8:{\"data\":\"$41c9\",\"content\":\"$41ca\",\"nodeType\":\"embedded-entry-block\"}\n41cc:{}\n41cf:{}\n41d0:[]\n41ce:{\"data\":\"$41cf\",\"marks\":\"$41d0\",\"value\":\"The family was thankful to have \",\"nodeType\":\"text\"}\n41d2:{\"uri\":\"https://www.childrens.com/doctor-profile/tamra-slone\"}\n41d5:{}\n41d6:[]\n41d4:{\"data\":\"$41d5\",\"marks\":\"$41d6\",\"value\":\"Tamra Slone, M.D., Pediatric Hematologist/Oncologist\",\"nodeType\":\"text\"}\n41d3:[\"$41d4\"]\n41d1:{\"data\":\"$41d2\",\"content\":\"$41d3\",\"nodeType\":\"hyperlink\"}\n41d8:{}\n41d9:[]\n41d7:{\"data\":\"$41d8\",\"marks\":\"$41d9\",\"value\":\" and \",\"nodeType\":\"text\"}\n41db:{\"uri\":\"https://www."])</script>
1<script>self.__next_f.push([1,"childrens.com/doctor-profile/kathleen-ludwig\"}\n41de:{}\n41df:[]\n41dd:{\"data\":\"$41de\",\"marks\":\"$41df\",\"value\":\"Kathleen Ludwig, M.D., Pediatric Hematologist/Oncologist\",\"nodeType\":\"text\"}\n41dc:[\"$41dd\"]\n41da:{\"data\":\"$41db\",\"content\":\"$41dc\",\"nodeType\":\"hyperlink\"}\n41e1:{}\n41e2:[]\n41e0:{\"data\":\"$41e1\",\"marks\":\"$41e2\",\"value\":\" at Childrenâs Health, by their side. \",\"nodeType\":\"text\"}\n41cd:[\"$41ce\",\"$41d1\",\"$41d7\",\"$41da\",\"$41e0\"]\n41cb:{\"data\":\"$41cc\",\"content\":\"$41cd\",\"nodeType\":\"paragraph\"}\n41e4:{}\n41e7:{}\n41e8:[]\n41e6:{\"data\":\"$41e7\",\"marks\":\"$41e8\",\"value\":\"âDr. Slone was with us during the scariest week of Beckettâs care as this guiding hand who was able to explain everything that was happening,â James said. âAnd Dr. Ludwig, our primary provider, goes about her job with grace and empathy. She can distill really complicated information and give you some level of optimism, which you really need when your kid is that sick.â \",\"nodeType\":\"text\"}\n41e5:[\"$41e6\"]\n41e3:{\"data\":\"$41e4\",\"content\":\"$41e5\",\"nodeType\":\"paragraph\"}\n41ea:{}\n41ed:{}\n41ee:[]\n41ec:{\"data\":\"$41ed\",\"marks\":\"$41ee\",\"value\":\"Immunotherapy provides new hope \",\"nodeType\":\"text\"}\n41eb:[\"$41ec\"]\n41e9:{\"data\":\"$41ea\",\"content\":\"$41eb\",\"nodeType\":\"heading-3\"}\n41f0:{}\n41f3:{}\n41f4:[]\n41f2:{\"data\":\"$41f3\",\"marks\":\"$41f4\",\"value\":\"About eight months after Beckett was diagnosed, everyone breathed a sigh of relief: A scan revealed that there were no more cancer cells in his head and face regions. He would still need many more months of chemotherapy treatment, but this was a good sign. \",\"nodeType\":\"text\"}\n41f1:[\"$41f2\"]\n41ef:{\"data\":\"$41f0\",\"content\":\"$41f1\",\"nodeType\":\"paragraph\"}\n41f6:{}\n41f9:{}\n41fa:[]\n41f8:{\"data\":\"$41f9\",\"marks\":\"$41fa\",\"value\":\"The family found even more hope when new research came out during his treatment showing that adding a new immunotherapy drug called Blinatumomab could raise the 5-year survival rates for the cancer Beckett had from around 85% to about 96%. \",\"nodeType\":\"text\"}\n41f7:[\"$41f8\"]\n41f5:{\"data\":\"$41f6\",\"conte"])</script>
1<script>self.__next_f.push([1,"nt\":\"$41f7\",\"nodeType\":\"paragraph\"}\n41fc:{}\n41ff:{}\n4200:[]\n41fe:{\"data\":\"$41ff\",\"marks\":\"$4200\",\"value\":\"Given the complexity of Beckettâs disease, Dr. Ludwig was quick to add Blinatumomab to Beckettâs care plan. \",\"nodeType\":\"text\"}\n41fd:[\"$41fe\"]\n41fb:{\"data\":\"$41fc\",\"content\":\"$41fd\",\"nodeType\":\"paragraph\"}\n4202:{}\n4205:{}\n4206:[]\n4204:{\"data\":\"$4205\",\"marks\":\"$4206\",\"value\":\"âWe were elated,â James said. âAnd so thankful that Childrenâs Health is active in research and an early adopter of next-generation treatments that work very well and have fewer side effects than chemotherapy.â \",\"nodeType\":\"text\"}\n4203:[\"$4204\"]\n4201:{\"data\":\"$4202\",\"content\":\"$4203\",\"nodeType\":\"paragraph\"}\n4208:{}\n420b:{}\n420c:[]\n420a:{\"data\":\"$420b\",\"marks\":\"$420c\",\"value\":\"Doing what 4-year-olds should do \",\"nodeType\":\"text\"}\n4209:[\"$420a\"]\n4207:{\"data\":\"$4208\",\"content\":\"$4209\",\"nodeType\":\"heading-3\"}\n420e:{}\n4211:{}\n4212:[]\n4210:{\"data\":\"$4211\",\"marks\":\"$4212\",\"value\":\"These days, Beckett is in the final phases of his maintenance care, which aims to remove any lingering traces of cancer cells and keep them from coming back. Every Tuesday, he goes to the hospital, gets a poke and some medicine, and then plays in the park with his sister, Brooklyn. \",\"nodeType\":\"text\"}\n420f:[\"$4210\"]\n420d:{\"data\":\"$420e\",\"content\":\"$420f\",\"nodeType\":\"paragraph\"}\n4214:{}\n4217:{}\n4218:[]\n4216:{\"data\":\"$4217\",\"marks\":\"$4218\",\"value\":\"âHe has this incredible resilience where he can go through his treatment, sometimes for seven hours a day, and then just run around and play on the swing set when itâs done,â James said. \",\"nodeType\":\"text\"}\n4215:[\"$4216\"]\n4213:{\"data\":\"$4214\",\"content\":\"$4215\",\"nodeType\":\"paragraph\"}\n421a:{}\n421b:[]\n4219:{\"data\":\"$421a\",\"content\":\"$421b\",\"nodeType\":\"embedded-entry-block\"}\n421d:{}\n4220:{}\n4221:[]\n4222:T479,Beckett is getting stronger every day and meeting his childhood milestones. Heâs loving a neighborhood sports program where he gets to try soccer, T-ball and flag football. âMy hope for Beckett is "])</script>
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1<script>self.__next_f.push([1," with three different heart conditions. \",\"nodeType\":\"text\"}\n42dc:[\"$42dd\"]\n42da:{\"data\":\"$42db\",\"content\":\"$42dc\",\"nodeType\":\"paragraph\"}\n42e1:{}\n42e4:{}\n42e5:[]\n42e3:{\"data\":\"$42e4\",\"marks\":\"$42e5\",\"value\":\"For a pregnant mom, these were big and scary names: Ebsteinâs anomaly, a very rare heart condition; Wolff-Parkinson-White syndrome, a heart rhythm disorder; and tachycardia, a condition where the heart beats abnormally fast. \",\"nodeType\":\"text\"}\n42e2:[\"$42e3\"]\n42e0:{\"data\":\"$42e1\",\"content\":\"$42e2\",\"nodeType\":\"paragraph\"}\n42e7:{}\n42ea:{}\n42eb:[]\n42e9:{\"data\":\"$42ea\",\"marks\":\"$42eb\",\"value\":\"The physician suggested she move her family to Dallas, where she could access a higher level of care at Children's Healthâ . He also warned her, however, there was a good chance the baby would be stillborn. \",\"nodeType\":\"text\"}\n42e8:[\"$42e9\"]\n42e6:{\"data\":\"$42e7\",\"content\":\"$42e8\",\"nodeType\":\"paragraph\"}\n42ed:{}\n42f0:{}\n42f1:[]\n42ef:{\"data\":\"$42f0\",\"marks\":\"$42f1\",\"value\":\"As Brenda walked out of the clinic that day, she crumbled onto the floor and wept. \",\"nodeType\":\"text\"}\n42ee:[\"$42ef\"]\n42ec:{\"data\":\"$42ed\",\"content\":\"$42ee\",\"nodeType\":\"paragraph\"}\n42f3:{}\n42f6:{}\n42f7:[]\n42f5:{\"data\":\"$42f6\",\"marks\":\"$42f7\",\"value\":\"âAll I could think is how I would never meet my child,â she said. \",\"nodeType\":\"text\"}\n42f4:[\"$42f5\"]\n42f2:{\"data\":\"$42f3\",\"content\":\"$42f4\",\"nodeType\":\"paragraph\"}\n42f9:{}\n42fc:{}\n42fd:[]\n42fb:{\"data\":\"$42fc\",\"marks\":\"$42fd\",\"value\":\"The next day, her mom noticed Brenda was walking differently. She wasnât in pain, but decided to visit the emergency room, just in case. \",\"nodeType\":\"text\"}\n42fa:[\"$42fb\"]\n42f8:{\"data\":\"$42f9\",\"content\":\"$42fa\",\"nodeType\":\"paragraph\"}\n42ff:{}\n4300:[]\n42fe:{\"data\":\"$42ff\",\"content\":\"$4300\",\"nodeType\":\"embedded-entry-block\"}\n4302:{}\n4305:{}\n4306:[]\n4304:{\"data\":\"$4305\",\"marks\":\"$4306\",\"value\":\"At the hospital, a nurse began checking her babyâs vitals when her face turned pale. Before Brenda could even ask, the nurse sprinted out of the room and, within seconds, she "])</script>
1<script>self.__next_f.push([1,"returned with a team of physicians and more nurses. \",\"nodeType\":\"text\"}\n4303:[\"$4304\"]\n4301:{\"data\":\"$4302\",\"content\":\"$4303\",\"nodeType\":\"paragraph\"}\n4308:{}\n430b:{}\n430c:[]\n430a:{\"data\":\"$430b\",\"marks\":\"$430c\",\"value\":\"The babyâs heartbeat was concerningly high, so physicians needed to perform an emergency C-section. \",\"nodeType\":\"text\"}\n4309:[\"$430a\"]\n4307:{\"data\":\"$4308\",\"content\":\"$4309\",\"nodeType\":\"paragraph\"}\n430e:{}\n4311:{}\n4312:[]\n4310:{\"data\":\"$4311\",\"marks\":\"$4312\",\"value\":\"The next few hours were a blur as Brenda faded in and out of consciousness. After giving birth, she recalls waking up to her sister asking someone about travel arrangements. The baby, along with his aunt, would be flown from El Paso to Dallas â his namesake city â to get him to Childrenâs Health. \",\"nodeType\":\"text\"}\n430f:[\"$4310\"]\n430d:{\"data\":\"$430e\",\"content\":\"$430f\",\"nodeType\":\"paragraph\"}\n4314:{}\n4317:{}\n4318:[]\n4316:{\"data\":\"$4317\",\"marks\":\"$4318\",\"value\":\"Brenda didnât know what was going on, but she remembers saying, âI havenât seen my son. Can I get my son?â \",\"nodeType\":\"text\"}\n4315:[\"$4316\"]\n4313:{\"data\":\"$4314\",\"content\":\"$4315\",\"nodeType\":\"paragraph\"}\n431a:{}\n431d:{}\n431e:[]\n431c:{\"data\":\"$431d\",\"marks\":\"$431e\",\"value\":\"But she couldnât hold him. Dallasâ heart rate was so high, physicians worried his organs would start shutting down at any moment. The 6-pound baby was covered in tubes, surrounded by a cluster of beeping and humming machines. \",\"nodeType\":\"text\"}\n431b:[\"$431c\"]\n4319:{\"data\":\"$431a\",\"content\":\"$431b\",\"nodeType\":\"paragraph\"}\n4320:{}\n4323:{}\n4324:[]\n4322:{\"data\":\"$4323\",\"marks\":\"$4324\",\"value\":\"Because she had given birth by C-section, Brenda couldnât fly and had to stay behind. But her sister, insisting Brenda needed to at least touch her son, made arrangements for them to meet before they left. \",\"nodeType\":\"text\"}\n4321:[\"$4322\"]\n431f:{\"data\":\"$4320\",\"content\":\"$4321\",\"nodeType\":\"paragraph\"}\n4326:{}\n4329:{}\n432a:[]\n4328:{\"data\":\"$4329\",\"marks\":\"$432a\",\"value\":\"âWe kind of met in a "])</script>
1<script>self.__next_f.push([1,"hospital hallway, and I saw the pilot who would take them,â she recalled. \",\"nodeType\":\"text\"}\n4327:[\"$4328\"]\n4325:{\"data\":\"$4326\",\"content\":\"$4327\",\"nodeType\":\"paragraph\"}\n432c:{}\n432f:{}\n4330:[]\n432e:{\"data\":\"$432f\",\"marks\":\"$4330\",\"value\":\"While she recovered, Brendaâs sister experienced the brunt of the babyâs health scares. She was there as baby Dallas endured multiple heart attacks and saw him swell up and turn purple. \",\"nodeType\":\"text\"}\n432d:[\"$432e\"]\n432b:{\"data\":\"$432c\",\"content\":\"$432d\",\"nodeType\":\"paragraph\"}\n4332:{}\n4335:{}\n4336:[]\n4334:{\"data\":\"$4335\",\"marks\":\"$4336\",\"value\":\"After what felt like the longest week, Brenda packed up her things and flew to Dallas. She was finally with her son. \",\"nodeType\":\"text\"}\n4333:[\"$4334\"]\n4331:{\"data\":\"$4332\",\"content\":\"$4333\",\"nodeType\":\"paragraph\"}\n4338:{}\n433b:{}\n433c:[]\n433a:{\"data\":\"$433b\",\"marks\":\"$433c\",\"value\":\"âHe was a big baby, but when I got there, he looked so tiny,â she said. âHe was where he needed to be.â \",\"nodeType\":\"text\"}\n4339:[\"$433a\"]\n4337:{\"data\":\"$4338\",\"content\":\"$4339\",\"nodeType\":\"paragraph\"}\n433e:{}\n4341:{}\n4342:[]\n4340:{\"data\":\"$4341\",\"marks\":\"$4342\",\"value\":\"Dallas and his mother spent about a month and a half in the city to be close to Childrenâs Health, where his care team helped him become stronger before going back home to El Paso. Before their departure, Dallasâ care team ensured Brenda felt prepared to take care of him at home. \",\"nodeType\":\"text\"}\n433f:[\"$4340\"]\n433d:{\"data\":\"$433e\",\"content\":\"$433f\",\"nodeType\":\"paragraph\"}\n4344:{}\n4347:{}\n4348:[]\n4346:{\"data\":\"$4347\",\"marks\":\"$4348\",\"value\":\"âThat gave me the confidence I needed,â she said. âHis care team was so great. It was like getting a crash course.â \",\"nodeType\":\"text\"}\n4345:[\"$4346\"]\n4343:{\"data\":\"$4344\",\"content\":\"$4345\",\"nodeType\":\"paragraph\"}\n434a:{}\n434d:{}\n434e:[]\n434c:{\"data\":\"$434d\",\"marks\":\"$434e\",\"value\":\"Dallasâ fighting spirit \",\"nodeType\":\"text\"}\n434b:[\"$434c\"]\n4349:{\"data\":\"$434a\",\"content\":\"$434b\",\"nodeType\":\"heading-3\"}\n4350:"])</script>
1<script>self.__next_f.push([1,"{}\n4353:{}\n4354:[]\n4352:{\"data\":\"$4353\",\"marks\":\"$4354\",\"value\":\"Born a fighter, Dallas never let his heart conditions hold him back from living fully. \",\"nodeType\":\"text\"}\n4351:[\"$4352\"]\n434f:{\"data\":\"$4350\",\"content\":\"$4351\",\"nodeType\":\"paragraph\"}\n4356:{}\n4359:{}\n435a:[]\n4358:{\"data\":\"$4359\",\"marks\":\"$435a\",\"value\":\"âWe made him do what normal kids do,â Brenda, his mom, said. âChildrenâs Health physicians told me to not keep him in a bubble, to not allow him to be afraid of living.â \",\"nodeType\":\"text\"}\n4357:[\"$4358\"]\n4355:{\"data\":\"$4356\",\"content\":\"$4357\",\"nodeType\":\"paragraph\"}\n435c:{}\n435f:{}\n4360:[]\n435e:{\"data\":\"$435f\",\"marks\":\"$4360\",\"value\":\"With the support of his care team members and family, Dallas learned how to listen to his body. After running around and playing with his cousins for a few minutes, for example, he knew when to stop for a break. \",\"nodeType\":\"text\"}\n435d:[\"$435e\"]\n435b:{\"data\":\"$435c\",\"content\":\"$435d\",\"nodeType\":\"paragraph\"}\n4362:{}\n4365:{}\n4366:[]\n4364:{\"data\":\"$4365\",\"marks\":\"$4366\",\"value\":\"At first, Dallas visited Childrenâs Health every month, traveling back and forth from El Paso. As he grew older, his family was able to spread out their visits to every couple of months. \",\"nodeType\":\"text\"}\n4363:[\"$4364\"]\n4361:{\"data\":\"$4362\",\"content\":\"$4363\",\"nodeType\":\"paragraph\"}\n4368:{}\n436b:{}\n436c:[]\n436a:{\"data\":\"$436b\",\"marks\":\"$436c\",\"value\":\"His care team also supported his mom throughout their journey at Childrenâs Health. \",\"nodeType\":\"text\"}\n4369:[\"$436a\"]\n4367:{\"data\":\"$4368\",\"content\":\"$4369\",\"nodeType\":\"paragraph\"}\n436e:{\"target\":\"$b8c\"}\n436f:[]\n436d:{\"data\":\"$436e\",\"content\":\"$436f\",\"nodeType\":\"embedded-entry-block\"}\n4371:{}\n4374:{}\n4375:[]\n4373:{\"data\":\"$4374\",\"marks\":\"$4375\",\"value\":\"Growing up with frequent visits to the hospital, Dallas experienced many blood draws, catheterization and IV insertions. At Childrenâs Health, Child Life specialists and therapy dogs stood by him for support each time, providing comfort and distractions. \",\"nodeType\":\"text\"}\n4"])</script>
1<script>self.__next_f.push([1,"372:[\"$4373\"]\n4370:{\"data\":\"$4371\",\"content\":\"$4372\",\"nodeType\":\"paragraph\"}\n4377:{}\n437a:{}\n437b:[]\n4379:{\"data\":\"$437a\",\"marks\":\"$437b\",\"value\":\"Child Life services â which make life easier for kids and families experiencing the unthinkable â are offered to families free of charge at Childrenâs Health and rely on philanthropic support from generous donors. \",\"nodeType\":\"text\"}\n4378:[\"$4379\"]\n4376:{\"data\":\"$4377\",\"content\":\"$4378\",\"nodeType\":\"paragraph\"}\n437d:{}\n4380:{}\n4381:[]\n437f:{\"data\":\"$4380\",\"marks\":\"$4381\",\"value\":\"âI tell them and our nurses and physicians all the time, âYou all have truly become a part of our extended family,ââ Brenda said. \",\"nodeType\":\"text\"}\n437e:[\"$437f\"]\n437c:{\"data\":\"$437d\",\"content\":\"$437e\",\"nodeType\":\"paragraph\"}\n4383:{}\n4386:{}\n4387:[]\n4385:{\"data\":\"$4386\",\"marks\":\"$4387\",\"value\":\"Time for a new heart \",\"nodeType\":\"text\"}\n4384:[\"$4385\"]\n4382:{\"data\":\"$4383\",\"content\":\"$4384\",\"nodeType\":\"heading-3\"}\n4389:{}\n438c:{}\n438d:[]\n438b:{\"data\":\"$438c\",\"marks\":\"$438d\",\"value\":\"As time went on, Brenda began noticing the decline of Dallasâ strength. While walking home from his grandmotherâs house one day, a quick 5-minute walk, he had to stop and take several breaks. \",\"nodeType\":\"text\"}\n438a:[\"$438b\"]\n4388:{\"data\":\"$4389\",\"content\":\"$438a\",\"nodeType\":\"paragraph\"}\n438f:{}\n4392:{}\n4393:[]\n4391:{\"data\":\"$4392\",\"marks\":\"$4393\",\"value\":\"When he made it home, he collapsed on the tile floor. \",\"nodeType\":\"text\"}\n4390:[\"$4391\"]\n438e:{\"data\":\"$438f\",\"content\":\"$4390\",\"nodeType\":\"paragraph\"}\n4395:{}\n4396:[]\n4394:{\"data\":\"$4395\",\"content\":\"$4396\",\"nodeType\":\"embedded-entry-block\"}\n4398:{}\n439b:{}\n439c:[]\n439a:{\"data\":\"$439b\",\"marks\":\"$439c\",\"value\":\"âMom, I just need to rest,â he said. âThe tile feels nice and cool.â \",\"nodeType\":\"text\"}\n4399:[\"$439a\"]\n4397:{\"data\":\"$4398\",\"content\":\"$4399\",\"nodeType\":\"paragraph\"}\n439e:{}\n43a1:{}\n43a2:[]\n43a0:{\"data\":\"$43a1\",\"marks\":\"$43a2\",\"value\":\"At a follow-up, Brenda shared her concerns with his physician, who said it was time to move"])</script>
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1<script>self.__next_f.push([1,"\n4488:{\"sys\":\"$4489\"}\n4483:{\"space\":\"$4484\",\"id\":\"Fv3NvndsTLehD4rG0EHC7\",\"type\":\"Entry\",\"createdAt\":\"2025-05-02T15:41:53.865Z\",\"updatedAt\":\"2026-01-29T21:49:02.327Z\",\"environment\":\"$4486\",\"publishedVersion\":13,\"revision\":2,\"contentType\":\"$4488\",\"locale\":\"en-US\"}\n448c:{}\n448f:{}\n4492:{}\n4493:[]\n4491:{\"data\":\"$4492\",\"marks\":\"$4493\",\"value\":\"Kennedy is a vibrant 5-year-old who loves ballet, tap dancing and Taylor Swift. Sometimes she moves so quickly her parents can barely keep up. \",\"nodeType\":\"text\"}\n4490:[\"$4491\"]\n448e:{\"data\":\"$448f\",\"content\":\"$4490\",\"nodeType\":\"paragraph\"}\n4495:{}\n4498:{}\n4499:[]\n4497:{\"data\":\"$4498\",\"marks\":\"$4499\",\"value\":\"Seeing her now, you wouldnât guess that when she first came to Childrenâs HealthSM she couldnât walk more than a few steps. \",\"nodeType\":\"text\"}\n4496:[\"$4497\"]\n4494:{\"data\":\"$4495\",\"content\":\"$4496\",\"nodeType\":\"paragraph\"}\n449b:{}\n449e:{}\n449f:[]\n449d:{\"data\":\"$449e\",\"marks\":\"$449f\",\"value\":\"âSheâs a fighter,â her mom, Chelsea, said. âI hope this experience teaches her just how strong she is. If she can overcome this, thereâs nothing she canât do.â \",\"nodeType\":\"text\"}\n449c:[\"$449d\"]\n449a:{\"data\":\"$449b\",\"content\":\"$449c\",\"nodeType\":\"paragraph\"}\n44a1:{}\n44a4:{}\n44a5:[]\n44a3:{\"data\":\"$44a4\",\"marks\":\"$44a5\",\"value\":\"It all started when Kennedy was 3 years old, and her strength and coordination rapidly declined. \",\"nodeType\":\"text\"}\n44a2:[\"$44a3\"]\n44a0:{\"data\":\"$44a1\",\"content\":\"$44a2\",\"nodeType\":\"paragraph\"}\n44a7:{}\n44aa:{}\n44ab:[]\n44a9:{\"data\":\"$44aa\",\"marks\":\"$44ab\",\"value\":\"A rare autoimmune disease \",\"nodeType\":\"text\"}\n44a8:[\"$44a9\"]\n44a6:{\"data\":\"$44a7\",\"content\":\"$44a8\",\"nodeType\":\"heading-3\"}\n44ad:{}\n44ae:[]\n44ac:{\"data\":\"$44ad\",\"content\":\"$44ae\",\"nodeType\":\"embedded-entry-block\"}\n44b0:{}\n44b3:{}\n44b4:[]\n44b2:{\"data\":\"$44b3\",\"marks\":\"$44b4\",\"value\":\"At first, Kennedyâs parents thought she wanted to be picked up all the time because her baby brother was getting all the attention. She said her legs were tired, but that didnât seem too unusual. Th"])</script>
1<script>self.__next_f.push([1,"en, she started limping and had trouble climbing onto the couch. \",\"nodeType\":\"text\"}\n44b1:[\"$44b2\"]\n44af:{\"data\":\"$44b0\",\"content\":\"$44b1\",\"nodeType\":\"paragraph\"}\n44b6:{}\n44b9:{}\n44ba:[]\n44b8:{\"data\":\"$44b9\",\"marks\":\"$44ba\",\"value\":\"âIn a matter of weeks, she went from a typical toddler to not being able to sit, stand or hold her head up,â her dad, Fred, said. \",\"nodeType\":\"text\"}\n44b7:[\"$44b8\"]\n44b5:{\"data\":\"$44b6\",\"content\":\"$44b7\",\"nodeType\":\"paragraph\"}\n44bc:{}\n44bf:{}\n44c0:[]\n44be:{\"data\":\"$44bf\",\"marks\":\"$44c0\",\"value\":\"They awaited a diagnosis with a neuromuscular specialist at a different hospital. Kennedyâs rapid loss of muscle control and coordination pointed to Duchenne Muscular dystrophy â a life-limiting condition where the average lifespan is about 20 years. \",\"nodeType\":\"text\"}\n44bd:[\"$44be\"]\n44bb:{\"data\":\"$44bc\",\"content\":\"$44bd\",\"nodeType\":\"paragraph\"}\n44c2:{}\n44c5:{}\n44c6:[]\n44c4:{\"data\":\"$44c5\",\"marks\":\"$44c6\",\"value\":\"Her parents breathed a sigh of relief when testing revealed a different diagnosis: \",\"nodeType\":\"text\"}\n44c8:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/dermatomyositis\"}\n44cb:{}\n44cc:[]\n44ca:{\"data\":\"$44cb\",\"marks\":\"$44cc\",\"value\":\"juvenile dermatomyositis\",\"nodeType\":\"text\"}\n44c9:[\"$44ca\"]\n44c7:{\"data\":\"$44c8\",\"content\":\"$44c9\",\"nodeType\":\"hyperlink\"}\n44ce:{}\n44cf:[]\n44cd:{\"data\":\"$44ce\",\"marks\":\"$44cf\",\"value\":\" -- a rare autoimmune disease that occurs when the immune system, which is supposed to fight off germs, gets confused and starts attacking the skin and muscles. \",\"nodeType\":\"text\"}\n44c3:[\"$44c4\",\"$44c7\",\"$44cd\"]\n44c1:{\"data\":\"$44c2\",\"content\":\"$44c3\",\"nodeType\":\"paragraph\"}\n44d1:{}\n44d4:{}\n44d5:[]\n44d3:{\"data\":\"$44d4\",\"marks\":\"$44d5\",\"value\":\"âWe felt like we could deal with whatever was going to happen from there because we knew she was going to live,â Chelsea said. \",\"nodeType\":\"text\"}\n44d2:[\"$44d3\"]\n44d0:{\"data\":\"$44d1\",\"content\":\"$44d2\",\"nodeType\":\"paragraph\"}\n44d7:{}\n44da:{}\n44db:[]\n44d9:{\"data\":\"$44da\",\"marks\":\"$44db\",\"value\":\"A"])</script>
1<script>self.__next_f.push([1," team of experts working together \",\"nodeType\":\"text\"}\n44d8:[\"$44d9\"]\n44d6:{\"data\":\"$44d7\",\"content\":\"$44d8\",\"nodeType\":\"heading-3\"}\n44dd:{}\n44e0:{}\n44e1:[]\n44df:{\"data\":\"$44e0\",\"marks\":\"$44e1\",\"value\":\"Juvenile dermatomyositis is a lifelong disease with no cure. But with the right treatment, it can go into remission, which means long periods of time with no symptoms. \",\"nodeType\":\"text\"}\n44de:[\"$44df\"]\n44dc:{\"data\":\"$44dd\",\"content\":\"$44de\",\"nodeType\":\"paragraph\"}\n44e3:{}\n44e6:{}\n44e7:[]\n44e5:{\"data\":\"$44e6\",\"marks\":\"$44e7\",\"value\":\"The frontline steroid treatment worked well for Kennedy at first. But about a year later, her blood pressure spiked and wouldnât come down. Thatâs when they checked into the Childrenâs HealthSM Emergency Department â and learned that the steroid treatment was causing dangerously high blood pressure. \",\"nodeType\":\"text\"}\n44e4:[\"$44e5\"]\n44e2:{\"data\":\"$44e3\",\"content\":\"$44e4\",\"nodeType\":\"paragraph\"}\n44e9:{}\n44ec:{}\n44ed:[]\n44eb:{\"data\":\"$44ec\",\"marks\":\"$44ed\",\"value\":\"âThat was the scariest part,â Chelsea said. âShe was getting worse; it felt like time was against us. And she could no longer have the main treatment for this disease.â \",\"nodeType\":\"text\"}\n44ea:[\"$44eb\"]\n44e8:{\"data\":\"$44e9\",\"content\":\"$44ea\",\"nodeType\":\"paragraph\"}\n44ef:{}\n44f2:{}\n44f3:[]\n44f1:{\"data\":\"$44f2\",\"marks\":\"$44f3\",\"value\":\"Kennedy was admitted to the hospital. Soon, she had a team of Childrenâs Health experts from cardiology, nephrology and rheumatology working to find a new treatment and get her blood pressure under control. \",\"nodeType\":\"text\"}\n44f0:[\"$44f1\"]\n44ee:{\"data\":\"$44ef\",\"content\":\"$44f0\",\"nodeType\":\"paragraph\"}\n44f5:{}\n44f8:{}\n44f9:[]\n44f7:{\"data\":\"$44f8\",\"marks\":\"$44f9\",\"value\":\"The way to a 4-year-oldâs heart: cats and pink bandages \",\"nodeType\":\"text\"}\n44f6:[\"$44f7\"]\n44f4:{\"data\":\"$44f5\",\"content\":\"$44f6\",\"nodeType\":\"heading-3\"}\n44fb:{}\n44fe:{}\n44ff:[]\n44fd:{\"data\":\"$44fe\",\"marks\":\"$44ff\",\"value\":\"The care team determined that a therapy called IVIG would be a good option to t"])</script>
1<script>self.__next_f.push([1,"reat her juvenile dermatomyositis. The only downside was that it is an IV-based treatment â and Kennedy, like many kids, did not like being poked with a needle. \",\"nodeType\":\"text\"}\n44fc:[\"$44fd\"]\n44fa:{\"data\":\"$44fb\",\"content\":\"$44fc\",\"nodeType\":\"paragraph\"}\n4501:{}\n4504:{}\n4505:[]\n4503:{\"data\":\"$4504\",\"marks\":\"$4505\",\"value\":\"The nurses and Child Life team at Childrenâs Health knew exactly what to do. \",\"nodeType\":\"text\"}\n4502:[\"$4503\"]\n4500:{\"data\":\"$4501\",\"content\":\"$4502\",\"nodeType\":\"paragraph\"}\n4507:{\"target\":\"$ba4\"}\n4508:[]\n4506:{\"data\":\"$4507\",\"content\":\"$4508\",\"nodeType\":\"embedded-entry-block\"}\n450a:{}\n450d:{}\n450e:[]\n450c:{\"data\":\"$450d\",\"marks\":\"$450e\",\"value\":\"What began as a trip to the ED turned into a nearly month-long stay in the hospital. Fred appreciated everything that made Children's Health feel like a place where his 4-year-old â who was now living with a complex disease â could still feel like a kid through the playroom and art therapy â services provided to patient families thanks to generous philanthropic support. \",\"nodeType\":\"text\"}\n450b:[\"$450c\"]\n4509:{\"data\":\"$450a\",\"content\":\"$450b\",\"nodeType\":\"paragraph\"}\n4510:{}\n4511:[]\n450f:{\"data\":\"$4510\",\"content\":\"$4511\",\"nodeType\":\"embedded-entry-block\"}\n4513:{}\n4516:{}\n4517:[]\n4515:{\"data\":\"$4516\",\"marks\":\"$4517\",\"value\":\"âWeâve been to other hospitals that feel scary and sterile,â Fred said. âBut as soon as you walk in, Childrenâs Health is very kid-focused. There was a playroom where she could play with her brother. She loved the art supplies and painting these little figurines that she still has in her room.â \",\"nodeType\":\"text\"}\n4514:[\"$4515\"]\n4512:{\"data\":\"$4513\",\"content\":\"$4514\",\"nodeType\":\"paragraph\"}\n4519:{}\n451c:{}\n451d:[]\n451b:{\"data\":\"$451c\",\"marks\":\"$451d\",\"value\":\"The family was bummed about spending Easter at the hospital, but they were grateful when the Easter Bunny came by with a basket for Kennedy. They were even more grateful when her doctors confirmed the IVIG therapy was working â her blood pressure"])</script>
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1<script>self.__next_f.push([1,"$4630\"]\n462d:{\"data\":\"$462e\",\"content\":\"$462f\",\"nodeType\":\"heading-3\"}\n4634:{}\n4637:{}\n4638:[]\n4636:{\"data\":\"$4637\",\"marks\":\"$4638\",\"value\":\"Bret stayed behind to fly with Rook while Rachel embarked on an 8-hour-long drive with the rest of her children. Rook and his dad, however, couldnât board their flight until physicians found a blood match to perform an in-flight transfusion, which took several hours. \",\"nodeType\":\"text\"}\n4635:[\"$4636\"]\n4633:{\"data\":\"$4634\",\"content\":\"$4635\",\"nodeType\":\"paragraph\"}\n463a:{}\n463b:[]\n4639:{\"data\":\"$463a\",\"content\":\"$463b\",\"nodeType\":\"embedded-entry-block\"}\n463d:{}\n4640:{}\n4641:[]\n463f:{\"data\":\"$4640\",\"marks\":\"$4641\",\"value\":\"Rookâs blood match took so long to find, he and his dad landed at the hospital as his mom and siblings pulled into its parking lot. \",\"nodeType\":\"text\"}\n463e:[\"$463f\"]\n463c:{\"data\":\"$463d\",\"content\":\"$463e\",\"nodeType\":\"paragraph\"}\n4643:{}\n4646:{}\n4647:[]\n4645:{\"data\":\"$4646\",\"marks\":\"$4647\",\"value\":\"âShe's walking into the hospital. We're coming in on a gurney,â Bret said. âThe timing of it couldn't have been better. It was quite the story.â \",\"nodeType\":\"text\"}\n4644:[\"$4645\"]\n4642:{\"data\":\"$4643\",\"content\":\"$4644\",\"nodeType\":\"paragraph\"}\n4649:{}\n464c:{}\n464d:[]\n464b:{\"data\":\"$464c\",\"marks\":\"$464d\",\"value\":\"After a number of tests and biopsies, physicians found mononucleosis in Rookâs bones, which explained the lethargy heâd experienced throughout his familyâs trip. The illness, however, didnât explain some of his other symptoms and physicians suspected he had leukemia, the most common childhood cancer. \",\"nodeType\":\"text\"}\n464a:[\"$464b\"]\n4648:{\"data\":\"$4649\",\"content\":\"$464a\",\"nodeType\":\"paragraph\"}\n464f:{}\n4652:{}\n4653:[]\n4651:{\"data\":\"$4652\",\"marks\":\"$4653\",\"value\":\"After a series of platelet and blood transfusions, Rook started doing a little better. He began playing, eating, talking and being himself again, so the Colorado physicians agreed to let Rookâs family go back home to Texas as long as they took him straight to Childrenâs"])</script>
1<script>self.__next_f.push([1," Health. \",\"nodeType\":\"text\"}\n4650:[\"$4651\"]\n464e:{\"data\":\"$464f\",\"content\":\"$4650\",\"nodeType\":\"paragraph\"}\n4655:{}\n4658:{}\n4659:[]\n4657:{\"data\":\"$4658\",\"marks\":\"$4659\",\"value\":\"Shortly after their arrival at Childrenâs Medical Center Plano, physicians provided the clarity the family had been waiting for â diagnosing Rook with Acute Lymphoblastic Leukemia. \",\"nodeType\":\"text\"}\n4656:[\"$4657\"]\n4654:{\"data\":\"$4655\",\"content\":\"$4656\",\"nodeType\":\"paragraph\"}\n465b:{}\n465e:{}\n465f:[]\n465d:{\"data\":\"$465e\",\"marks\":\"$465f\",\"value\":\"A silver lining and something else to think about \",\"nodeType\":\"text\"}\n465c:[\"$465d\"]\n465a:{\"data\":\"$465b\",\"content\":\"$465c\",\"nodeType\":\"heading-3\"}\n4661:{}\n4664:{}\n4665:[]\n4663:{\"data\":\"$4664\",\"marks\":\"$4665\",\"value\":\"The diagnosis overwhelmed Bret and Rachel after the whirlwind of events that had them rushing through state lines from Yellowstone to Plano, but physicians offered a silver lining: His experiences allowed them to discover the cancer much earlier than average. \",\"nodeType\":\"text\"}\n4662:[\"$4663\"]\n4660:{\"data\":\"$4661\",\"content\":\"$4662\",\"nodeType\":\"paragraph\"}\n4667:{}\n466a:{}\n466b:[]\n4669:{\"data\":\"$466a\",\"marks\":\"$466b\",\"value\":\"âWe were very grateful for that. There was time to prepare for his treatment,â his dad, Bret, said. âThe time helped lay so many questions and concerns to rest.â \",\"nodeType\":\"text\"}\n4668:[\"$4669\"]\n4666:{\"data\":\"$4667\",\"content\":\"$4668\",\"nodeType\":\"paragraph\"}\n466d:{}\n4670:{}\n4671:[]\n466f:{\"data\":\"$4670\",\"marks\":\"$4671\",\"value\":\"Processing the idea that Rook, then a 3-year-old, would soon start rounds of chemotherapy was hard for his parents, but their faith, familyâs support and the Childrenâs Health team members helped carry them through one of the hardest periods of their lives. \",\"nodeType\":\"text\"}\n466e:[\"$466f\"]\n466c:{\"data\":\"$466d\",\"content\":\"$466e\",\"nodeType\":\"paragraph\"}\n4673:{\"target\":\"$bb0\"}\n4674:[]\n4672:{\"data\":\"$4673\",\"content\":\"$4674\",\"nodeType\":\"embedded-entry-block\"}\n4676:{}\n4679:{}\n467a:[]\n4678:{\"data\":\"$4679\",\"marks\":\"$467a\",\"v"])</script>
1<script>self.__next_f.push([1,"alue\":\"Rookâs care team provided him with choices, when appropriate, at a time when so much felt out of his control. They made him feel special, gushing at the Spider Man shoes he often wore to checkups. Meeting miniature horses during their visits or the hospitalâs therapy dogs â part of the Childrenâs Health Pet Therapy Program, which relies on philanthropic support â became one of his daysâ highlights. \",\"nodeType\":\"text\"}\n4677:[\"$4678\"]\n4675:{\"data\":\"$4676\",\"content\":\"$4677\",\"nodeType\":\"paragraph\"}\n467c:{}\n467f:{}\n4680:[]\n467e:{\"data\":\"$467f\",\"marks\":\"$4680\",\"value\":\"âEveryoneâs been wonderful,â Rachel said. âThose experiences gave him something else to think about, something else to remember.â \",\"nodeType\":\"text\"}\n467d:[\"$467e\"]\n467b:{\"data\":\"$467c\",\"content\":\"$467d\",\"nodeType\":\"paragraph\"}\n4682:{}\n4685:{}\n4686:[]\n4684:{\"data\":\"$4685\",\"marks\":\"$4686\",\"value\":\"Recently, with the help of generous donor contributions, Childrenâs Health opened a new patient tower at its Plano campus, tripling the hospitalâs bed capacity. \",\"nodeType\":\"text\"}\n4683:[\"$4684\"]\n4681:{\"data\":\"$4682\",\"content\":\"$4683\",\"nodeType\":\"paragraph\"}\n4688:{}\n468b:{}\n468c:[]\n468a:{\"data\":\"$468b\",\"marks\":\"$468c\",\"value\":\"The new tower has allowed for the growth of several specialty care programs, including the inpatient and outpatient services of the Pauline Allen Gill Center for Cancer and Blood Disorders, expanding access to complex, critical and specialized care for kids like Rook and families across North Texas and beyond. \",\"nodeType\":\"text\"}\n4689:[\"$468a\"]\n4687:{\"data\":\"$4688\",\"content\":\"$4689\",\"nodeType\":\"paragraph\"}\n468e:{}\n4691:{}\n4692:[]\n4690:{\"data\":\"$4691\",\"marks\":\"$4692\",\"value\":\"After going through rounds of chemotherapy, Rook is now back to competing in gymnastics, playing soccer and dressing up like his favorite superheroes, Spider Man and Captain America. His hair is also starting to grow again, as his parents will proudly point out. \",\"nodeType\":\"text\"}\n468f:[\"$4690\"]\n468d:{\"data\":\"$468e\",\"content\":\"$46"])</script>
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1<script>self.__next_f.push([1,",\"nodeType\":\"text\"}\n4804:[\"$4805\"]\n4802:{\"data\":\"$4803\",\"content\":\"$4804\",\"nodeType\":\"heading-3\"}\n4809:{}\n480c:{}\n480d:[]\n480b:{\"data\":\"$480c\",\"marks\":\"$480d\",\"value\":\"Being in the hospital for so long was not easy on Levi and his family, but so many of their memories focused on the bright spots. \",\"nodeType\":\"text\"}\n480a:[\"$480b\"]\n4808:{\"data\":\"$4809\",\"content\":\"$480a\",\"nodeType\":\"paragraph\"}\n480f:{}\n4812:{}\n4813:[]\n4811:{\"data\":\"$4812\",\"marks\":\"$4813\",\"value\":\"For Levi, his best days in the hospital were the ones he got to snuggle with a fluffy golden retriever named Canter â one of the facility dogs who has a knack for staying calm with nervous kids and is part of the Childrenâs Health Pet Therapy Program, which relies on philanthropic support. \",\"nodeType\":\"text\"}\n4810:[\"$4811\"]\n480e:{\"data\":\"$480f\",\"content\":\"$4810\",\"nodeType\":\"paragraph\"}\n4815:{}\n4818:{}\n4819:[]\n4817:{\"data\":\"$4818\",\"marks\":\"$4819\",\"value\":\"âHanging out with the therapy dogs always made me feel better. They became my best friends,â said Levi, who will runover and hug any therapy dog he encounters while walking the halls at Childrenâs Health. He loved his time with the therapy dogs so much that he gave each of them cookies and toys for Christmas last year â and plans to do it again this year. \",\"nodeType\":\"text\"}\n4816:[\"$4817\"]\n4814:{\"data\":\"$4815\",\"content\":\"$4816\",\"nodeType\":\"paragraph\"}\n481b:{}\n481e:{}\n481f:[]\n481d:{\"data\":\"$481e\",\"marks\":\"$481f\",\"value\":\"And when procedures, treatments and medicine made him feel down, Levi found renewed energy and the chance âjust to be a kid againâ at \",\"nodeType\":\"text\"}\n4821:{\"uri\":\"https://www.childrens.com/patient-families/resources-for-your-child/activities-for-kids/seacrest-studios\"}\n4824:{}\n4825:[]\n4823:{\"data\":\"$4824\",\"marks\":\"$4825\",\"value\":\"Seacrest Studios\",\"nodeType\":\"text\"}\n4822:[\"$4823\"]\n4820:{\"data\":\"$4821\",\"content\":\"$4822\",\"nodeType\":\"hyperlink\"}\n4827:{}\n4828:[]\n4826:{\"data\":\"$4827\",\"marks\":\"$4828\",\"value\":\" â the live TV and radio station inside Childrenâs Medical C"])</script>
1<script>self.__next_f.push([1,"enter Dallas. \",\"nodeType\":\"text\"}\n481c:[\"$481d\",\"$4820\",\"$4826\"]\n481a:{\"data\":\"$481b\",\"content\":\"$481c\",\"nodeType\":\"paragraph\"}\n482a:{}\n482d:{}\n482e:[]\n482c:{\"data\":\"$482d\",\"marks\":\"$482e\",\"value\":\"Some days, he would call in to the studio from his room to joke around with the staff and other kids. Other days, he participated in in-person programming and activities, which gave him a much-needed change of scenery from the reality of cancer treatment. \",\"nodeType\":\"text\"}\n482b:[\"$482c\"]\n4829:{\"data\":\"$482a\",\"content\":\"$482b\",\"nodeType\":\"paragraph\"}\n4830:{}\n4833:{}\n4834:[]\n4832:{\"data\":\"$4833\",\"marks\":\"$4834\",\"value\":\"Lauren was so impressed by the unique opportunity provided by Seacrest Studios that she brought friends to tour the cool, interactive studio space. \",\"nodeType\":\"text\"}\n4831:[\"$4832\"]\n482f:{\"data\":\"$4830\",\"content\":\"$4831\",\"nodeType\":\"paragraph\"}\n4836:{\"target\":\"$bbc\"}\n4837:[]\n4835:{\"data\":\"$4836\",\"content\":\"$4837\",\"nodeType\":\"embedded-entry-block\"}\n4839:{}\n483c:{}\n483d:[]\n483b:{\"data\":\"$483c\",\"marks\":\"$483d\",\"value\":\"A focus on others and a relapse \",\"nodeType\":\"text\"}\n483a:[\"$483b\"]\n4838:{\"data\":\"$4839\",\"content\":\"$483a\",\"nodeType\":\"heading-3\"}\n483f:{}\n4842:{}\n4843:[]\n4841:{\"data\":\"$4842\",\"marks\":\"$4843\",\"value\":\"Leviâs mom describes him as humble and compassionate. âHeâs never been a âwhy-is-this-happening-to-me person,ââ she said. âAnd, like his care team, heâs always looking for opportunities to brighten the lives of others.â \",\"nodeType\":\"text\"}\n4840:[\"$4841\"]\n483e:{\"data\":\"$483f\",\"content\":\"$4840\",\"nodeType\":\"paragraph\"}\n4845:{}\n4848:{}\n4849:[]\n4847:{\"data\":\"$4848\",\"marks\":\"$4849\",\"value\":\"Putting his artistic skills to work, Levi made cards for other patients at the hospital to give them encouragement. \",\"nodeType\":\"text\"}\n4846:[\"$4847\"]\n4844:{\"data\":\"$4845\",\"content\":\"$4846\",\"nodeType\":\"paragraph\"}\n484b:{}\n484e:{}\n484f:[]\n484d:{\"data\":\"$484e\",\"marks\":\"$484f\",\"value\":\"He also designed the 2023 T-shirt for the CCBD, using the theme from his favorite sport â baseball. \",\"node"])</script>
1<script>self.__next_f.push([1,"Type\":\"text\"}\n484c:[\"$484d\"]\n484a:{\"data\":\"$484b\",\"content\":\"$484c\",\"nodeType\":\"paragraph\"}\n4851:{}\n4854:{}\n4855:[]\n4853:{\"data\":\"$4854\",\"marks\":\"$4855\",\"value\":\"And when Levi relapsed after 9 months of remission, his care team immediately launched into treatment because theyâd been following him so closely â and they got to know Levi even better. Levi also became even more attuned to his own care. \",\"nodeType\":\"text\"}\n4852:[\"$4853\"]\n4850:{\"data\":\"$4851\",\"content\":\"$4852\",\"nodeType\":\"paragraph\"}\n4857:{}\n485a:{}\n485b:[]\n4859:{\"data\":\"$485a\",\"marks\":\"$485b\",\"value\":\"âHe learned the ins and outs of his \",\"nodeType\":\"text\"}\n485d:{\"uri\":\"https://www.cancer.gov/publications/dictionaries/cancer-terms/def/port\"}\n4860:{}\n4861:[]\n485f:{\"data\":\"$4860\",\"marks\":\"$4861\",\"value\":\"port\",\"nodeType\":\"text\"}\n485e:[\"$485f\"]\n485c:{\"data\":\"$485d\",\"content\":\"$485e\",\"nodeType\":\"hyperlink\"}\n4863:{}\n4864:[]\n4862:{\"data\":\"$4863\",\"marks\":\"$4864\",\"value\":\" â and he knew what he liked best. Heâd tell his care team how best to give him his medications,â she said. âAnd theyâd respond by saying, âOK, tell us how you want it, buddy. Tell us how you feel.ââ \",\"nodeType\":\"text\"}\n4858:[\"$4859\",\"$485c\",\"$4862\"]\n4856:{\"data\":\"$4857\",\"content\":\"$4858\",\"nodeType\":\"paragraph\"}\n4866:{}\n4869:{}\n486a:[]\n4868:{\"data\":\"$4869\",\"marks\":\"$486a\",\"value\":\"More time at the hospital made Lauren even more grateful for the deep, caring relationships theyâve built with Leviâs care team. \",\"nodeType\":\"text\"}\n4867:[\"$4868\"]\n4865:{\"data\":\"$4866\",\"content\":\"$4867\",\"nodeType\":\"paragraph\"}\n486c:{}\n486f:{}\n4870:[]\n486e:{\"data\":\"$486f\",\"marks\":\"$4870\",\"value\":\"âThey always get Levi to laugh and greet him with the biggest smile. They ask lots of questions, pay attention and take time to get to know him â and that results in better care,â she said. \",\"nodeType\":\"text\"}\n486d:[\"$486e\"]\n486b:{\"data\":\"$486c\",\"content\":\"$486d\",\"nodeType\":\"paragraph\"}\n4872:{}\n4875:{}\n4876:[]\n4874:{\"data\":\"$4875\",\"marks\":\"$4876\",\"value\":\"Recently, Levi received a virtual"])</script>
1<script>self.__next_f.push([1," reality headset from the hospital, as a gift from a donor who wanted to celebrate kidsâ milestones. So far, his favorite games include Beat Saber, Gorilla Tag â and of course, baseball. \",\"nodeType\":\"text\"}\n4873:[\"$4874\"]\n4871:{\"data\":\"$4872\",\"content\":\"$4873\",\"nodeType\":\"paragraph\"}\n4878:{}\n487b:{}\n487c:[]\n487a:{\"data\":\"$487b\",\"marks\":\"$487c\",\"value\":\"Coming out on top \",\"nodeType\":\"text\"}\n4879:[\"$487a\"]\n4877:{\"data\":\"$4878\",\"content\":\"$4879\",\"nodeType\":\"heading-3\"}\n487e:{}\n4881:{}\n4882:[]\n4880:{\"data\":\"$4881\",\"marks\":\"$4882\",\"value\":\"In October 2024, Levi rang the bell in the cancer clinic for the second time, signifying the end of his second course of cancer treatment. \",\"nodeType\":\"text\"}\n487f:[\"$4880\"]\n487d:{\"data\":\"$487e\",\"content\":\"$487f\",\"nodeType\":\"paragraph\"}\n4884:{}\n4887:{}\n4888:[]\n4886:{\"data\":\"$4887\",\"marks\":\"$4888\",\"value\":\"When other families ask how theyâve survived nine years of specialized treatment, Lauren tells them: âItâs scary, but there is another side to it, and youâll come out on top.â \",\"nodeType\":\"text\"}\n4885:[\"$4886\"]\n4883:{\"data\":\"$4884\",\"content\":\"$4885\",\"nodeType\":\"paragraph\"}\n488a:{}\n488d:{}\n488e:[]\n488c:{\"data\":\"$488d\",\"marks\":\"$488e\",\"value\":\"She goes on to share, âIt may sound funny, but Childrenâs Health is a place that Levi enjoys. Itâs because they make it fun, and you can do things you canât typically do in other places, thanks to the generosity of donors whoâve helped create such a kid-friendly, family-focused environment. Itâs a serious place with world-class care â but it feels inviting.â \",\"nodeType\":\"text\"}\n488b:[\"$488c\"]\n4889:{\"data\":\"$488a\",\"content\":\"$488b\",\"nodeType\":\"paragraph\"}\n4890:{}\n4893:{}\n4894:[]\n4892:{\"data\":\"$4893\",\"marks\":\"$4894\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n4891:[\"$4892\"]\n488f:{\"data\":\"$4890\",\"content\":\"$4891\",\"nodeType\":\"heading-2\"}\n4896:{}\n4899:{}\n489a:[]\n4898:{\"data\":\"$4899\",\"marks\":\"$489a\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n489c:{\"uri\":\"https://give.childrens.com/about-us/patient"])</script>
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1<script>self.__next_f.push([1,"t 37 weeks, Grace was born â and had her first open heart surgery at another hospital at just 11-days-old. \",\"nodeType\":\"text\"}\n4985:[\"$4986\"]\n4983:{\"data\":\"$4984\",\"content\":\"$4985\",\"nodeType\":\"paragraph\"}\n498a:{}\n498d:{}\n498e:[]\n498c:{\"data\":\"$498d\",\"marks\":\"$498e\",\"value\":\"âHer first six months were tough,â Ashley said. âWe were monitoring her weight and oxygen levels every day. We kept her at home to keep her safe from germs. We taught her to eat and prayed for growth.â \",\"nodeType\":\"text\"}\n498b:[\"$498c\"]\n4989:{\"data\":\"$498a\",\"content\":\"$498b\",\"nodeType\":\"paragraph\"}\n4990:{}\n4993:{}\n4994:[]\n4992:{\"data\":\"$4993\",\"marks\":\"$4994\",\"value\":\"With a little more strength, baby Grace had her second surgery at just 6 months old. After 16 hours in the operating room, Ashley and Aaron were relieved to bring her home. But their relief again turned to fear when a serious complication brought her back to the hospital for the next three months. \",\"nodeType\":\"text\"}\n4991:[\"$4992\"]\n498f:{\"data\":\"$4990\",\"content\":\"$4991\",\"nodeType\":\"paragraph\"}\n4996:{}\n4999:{}\n499a:[]\n4998:{\"data\":\"$4999\",\"marks\":\"$499a\",\"value\":\"During that time, Grace's dad finished his training and planned to join an oral surgery practice in North Texas. Once Grace was well enough, the family made the move. \",\"nodeType\":\"text\"}\n4997:[\"$4998\"]\n4995:{\"data\":\"$4996\",\"content\":\"$4997\",\"nodeType\":\"paragraph\"}\n499c:{}\n499f:{}\n49a0:[]\n499e:{\"data\":\"$499f\",\"marks\":\"$49a0\",\"value\":\"âShe was transported to Childrenâs Health on a private medical jet,â Ashley said. âAnd the team poured their hearts into her care from the very beginning.â \",\"nodeType\":\"text\"}\n499d:[\"$499e\"]\n499b:{\"data\":\"$499c\",\"content\":\"$499d\",\"nodeType\":\"paragraph\"}\n49a2:{}\n49a5:{}\n49a6:[]\n49a4:{\"data\":\"$49a5\",\"marks\":\"$49a6\",\"value\":\"Under the exceptional care of team members in The Heart Center, Grace was eventually able to leave the hospital, and the family started making a new home in Texas. \",\"nodeType\":\"text\"}\n49a3:[\"$49a4\"]\n49a1:{\"data\":\"$49a2\",\"content\":\"$49a3\",\"nodeType\":\"p"])</script>
1<script>self.__next_f.push([1,"aragraph\"}\n49a8:{}\n49ab:{}\n49ac:[]\n49aa:{\"data\":\"$49ab\",\"marks\":\"$49ac\",\"value\":\"Grace grew bigger â and stronger â and had her third heart surgery at age 4. From there, she kept growing into a vibrant, energetic kid who loves T-ball, dogs and music. \",\"nodeType\":\"text\"}\n49a9:[\"$49aa\"]\n49a7:{\"data\":\"$49a8\",\"content\":\"$49a9\",\"nodeType\":\"paragraph\"}\n49ae:{}\n49b1:{}\n49b2:[]\n49b0:{\"data\":\"$49b1\",\"marks\":\"$49b2\",\"value\":\"âFor the next five years, she was super stable,â Ashley said. âThen, out of nowhere, she was at school and started coughing up blood. And that quickly turned into a life-threatening situation.â \",\"nodeType\":\"text\"}\n49af:[\"$49b0\"]\n49ad:{\"data\":\"$49ae\",\"content\":\"$49af\",\"nodeType\":\"paragraph\"}\n49b4:{}\n49b7:{}\n49b8:[]\n49b6:{\"data\":\"$49b7\",\"marks\":\"$49b8\",\"value\":\"A leading program in Graceâs backyard \",\"nodeType\":\"text\"}\n49b5:[\"$49b6\"]\n49b3:{\"data\":\"$49b4\",\"content\":\"$49b5\",\"nodeType\":\"heading-3\"}\n49ba:{}\n49bd:{}\n49be:[]\n49bc:{\"data\":\"$49bd\",\"marks\":\"$49be\",\"value\":\"Tests revealed that Grace was experiencing diastolic heart failure. This means her right ventricle (the primary pumping chamber for patients with hypoplastic left heart syndrome) was struggling to adequately relax and fill with blood during the resting phase, leading to impaired cardiac output, fatigue and shortness of breath. \",\"nodeType\":\"text\"}\n49bb:[\"$49bc\"]\n49b9:{\"data\":\"$49ba\",\"content\":\"$49bb\",\"nodeType\":\"paragraph\"}\n49c0:{}\n49c3:{}\n49c4:[]\n49c2:{\"data\":\"$49c3\",\"marks\":\"$49c4\",\"value\":\"Luckily, the \",\"nodeType\":\"text\"}\n49c6:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/pediatric-advanced-cardiac-care-program\"}\n49c9:{}\n49ca:[]\n49c8:{\"data\":\"$49c9\",\"marks\":\"$49ca\",\"value\":\"Childrenâs Health Pediatric Advanced Cardiac Care Program\",\"nodeType\":\"text\"}\n49c7:[\"$49c8\"]\n49c5:{\"data\":\"$49c6\",\"content\":\"$49c7\",\"nodeType\":\"hyperlink\"}\n49cc:{}\n49cd:[]\n49cb:{\"data\":\"$49cc\",\"marks\":\"$49cd\",\"value\":\" is right in Graceâs backyard. This program provides expert and comprehensive care for children"])</script>
1<script>self.__next_f.push([1," with or at risk for heart failure. Grace was admitted to the hospital, where her care team started her on medications that would help her heart pump blood and closely monitor her health. \",\"nodeType\":\"text\"}\n49c1:[\"$49c2\",\"$49c5\",\"$49cb\"]\n49bf:{\"data\":\"$49c0\",\"content\":\"$49c1\",\"nodeType\":\"paragraph\"}\n49cf:{}\n49d2:{}\n49d3:[]\n49d1:{\"data\":\"$49d2\",\"marks\":\"$49d3\",\"value\":\"A care team dedicated to Grace \",\"nodeType\":\"text\"}\n49d0:[\"$49d1\"]\n49ce:{\"data\":\"$49cf\",\"content\":\"$49d0\",\"nodeType\":\"heading-3\"}\n49d5:{}\n49d8:{}\n49d9:[]\n49d7:{\"data\":\"$49d8\",\"marks\":\"$49d9\",\"value\":\"Being in the hospital felt familiar for Graceâs parents. But Grace was too young to remember most of her early care, and the hospital felt scary at first. Her nurses, Child Life team and especially the music therapists help her feel at ease. \",\"nodeType\":\"text\"}\n49d6:[\"$49d7\"]\n49d4:{\"data\":\"$49d5\",\"content\":\"$49d6\",\"nodeType\":\"paragraph\"}\n49db:{}\n49de:{}\n49df:[]\n49dd:{\"data\":\"$49de\",\"marks\":\"$49df\",\"value\":\"On the best days, Grace and her favorite music therapist belted out songs from âMoanaâ and âFrozen.â When the nurses learned how much Grace loves dogs, they brought in therapy dogs as often as they could. \",\"nodeType\":\"text\"}\n49dc:[\"$49dd\"]\n49da:{\"data\":\"$49db\",\"content\":\"$49dc\",\"nodeType\":\"paragraph\"}\n49e1:{}\n49e4:{}\n49e5:[]\n49e3:{\"data\":\"$49e4\",\"marks\":\"$49e5\",\"value\":\"On one of the worst days, Grace was in the cardiac intensive care unit. Her family prayed her health would turn for the better, but they also knew that it could turn for the worse. The music therapist joined Graceâs parents and grandmother around her bed. \",\"nodeType\":\"text\"}\n49e2:[\"$49e3\"]\n49e0:{\"data\":\"$49e1\",\"content\":\"$49e2\",\"nodeType\":\"paragraph\"}\n49e7:{\"target\":\"$bc8\"}\n49e8:[]\n49e6:{\"data\":\"$49e7\",\"content\":\"$49e8\",\"nodeType\":\"embedded-entry-block\"}\n49ea:{}\n49ed:{}\n49ee:[]\n49ec:{\"data\":\"$49ed\",\"marks\":\"$49ee\",\"value\":\"Music therapy, child life and pet therapy â services that make life easier for kids and families experiencing the unthinkable â come at no-cost "])</script>
1<script>self.__next_f.push([1,"to patient families and rely on philanthropic support. \",\"nodeType\":\"text\"}\n49eb:[\"$49ec\"]\n49e9:{\"data\":\"$49ea\",\"content\":\"$49eb\",\"nodeType\":\"paragraph\"}\n49f0:{}\n49f3:{}\n49f4:[]\n49f2:{\"data\":\"$49f3\",\"marks\":\"$49f4\",\"value\":\"âFor us, it's what made hospitalization a positive experience instead of a negative, heart-wrenching one,â Ashley said. âThese team members helped Grace and our whole family find joy in some really dire circumstances.â \",\"nodeType\":\"text\"}\n49f1:[\"$49f2\"]\n49ef:{\"data\":\"$49f0\",\"content\":\"$49f1\",\"nodeType\":\"paragraph\"}\n49f6:{}\n49f9:{}\n49fa:[]\n49f8:{\"data\":\"$49f9\",\"marks\":\"$49fa\",\"value\":\"Growing stronger \",\"nodeType\":\"text\"}\n49f7:[\"$49f8\"]\n49f5:{\"data\":\"$49f6\",\"content\":\"$49f7\",\"nodeType\":\"heading-3\"}\n49fc:{}\n49fd:[]\n49fb:{\"data\":\"$49fc\",\"content\":\"$49fd\",\"nodeType\":\"embedded-entry-block\"}\n49ff:{}\n4a02:{}\n4a03:[]\n4a01:{\"data\":\"$4a02\",\"marks\":\"$4a03\",\"value\":\"The days kept coming and Graceâs health became more stable. Her cardiologists closely monitored her heart, while physical and occupational therapists helped her start to build back her strength. They tailored Graceâs therapy to her unique needs â especially toward the end of her stay, when Grace was feeling stronger, and her care team learned that she loved T-ball. \",\"nodeType\":\"text\"}\n4a00:[\"$4a01\"]\n49fe:{\"data\":\"$49ff\",\"content\":\"$4a00\",\"nodeType\":\"paragraph\"}\n4a05:{}\n4a08:{}\n4a09:[]\n4a07:{\"data\":\"$4a08\",\"marks\":\"$4a09\",\"value\":\"âThey brought in a ball, a bat and a tee as part of her therapy in the ICU, and Grace loved every minute. It was a moment that was so sweet to watch,â Ashley said. \",\"nodeType\":\"text\"}\n4a06:[\"$4a07\"]\n4a04:{\"data\":\"$4a05\",\"content\":\"$4a06\",\"nodeType\":\"paragraph\"}\n4a0b:{}\n4a0e:{}\n4a0f:[]\n4a0d:{\"data\":\"$4a0e\",\"marks\":\"$4a0f\",\"value\":\"After multiple hospitalizations and procedures last year, Graceâs heart was working well enough that she was finally able to go home. \",\"nodeType\":\"text\"}\n4a0c:[\"$4a0d\"]\n4a0a:{\"data\":\"$4a0b\",\"content\":\"$4a0c\",\"nodeType\":\"paragraph\"}\n4a11:{}\n4a14:{}\n4a15:[]\n4a13:{\"data\":"])</script>
1<script>self.__next_f.push([1,"\"$4a14\",\"marks\":\"$4a15\",\"value\":\"Living her best life \",\"nodeType\":\"text\"}\n4a12:[\"$4a13\"]\n4a10:{\"data\":\"$4a11\",\"content\":\"$4a12\",\"nodeType\":\"heading-3\"}\n4a17:{}\n4a1a:{}\n4a1b:[]\n4a19:{\"data\":\"$4a1a\",\"marks\":\"$4a1b\",\"value\":\"These days, Graceâs care team still keeps in close touch through regular appointments and an app that monitors her vitals. That remote monitoring and knowing Childrenâs Health is just a call away helps her parents worry a little less. \",\"nodeType\":\"text\"}\n4a18:[\"$4a19\"]\n4a16:{\"data\":\"$4a17\",\"content\":\"$4a18\",\"nodeType\":\"paragraph\"}\n4a1d:{}\n4a20:{}\n4a21:[]\n4a1f:{\"data\":\"$4a20\",\"marks\":\"$4a21\",\"value\":\"âItâs incredible we have a hospital like this so close to home. Honestly, if we didnât, we would have to move,â Ashley said. âItâs comforting to know that theyâre always there and will do whatever they can to help Grace.â \",\"nodeType\":\"text\"}\n4a1e:[\"$4a1f\"]\n4a1c:{\"data\":\"$4a1d\",\"content\":\"$4a1e\",\"nodeType\":\"paragraph\"}\n4a23:{}\n4a26:{}\n4a27:[]\n4a25:{\"data\":\"$4a26\",\"marks\":\"$4a27\",\"value\":\"Grace is now back in school and taking advantage of every opportunity she can: visiting her cousins, playing with her three siblings, singing and swimming. She loves her little dog, Minnie, and she walks through the world with resilience and a contagious smile. \",\"nodeType\":\"text\"}\n4a24:[\"$4a25\"]\n4a22:{\"data\":\"$4a23\",\"content\":\"$4a24\",\"nodeType\":\"paragraph\"}\n4a29:{}\n4a2c:{}\n4a2d:[]\n4a2b:{\"data\":\"$4a2c\",\"marks\":\"$4a2d\",\"value\":\"âBeing around her, you would never know how much she has endured,â Ashley said. âSheâs strong. Sheâs brave. And she makes you better by just being around her because she has the biggest heart.â\",\"nodeType\":\"text\"}\n4a2a:[\"$4a2b\"]\n4a28:{\"data\":\"$4a29\",\"content\":\"$4a2a\",\"nodeType\":\"paragraph\"}\n4a2f:{}\n4a32:{}\n4a33:[]\n4a31:{\"data\":\"$4a32\",\"marks\":\"$4a33\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n4a30:[\"$4a31\"]\n4a2e:{\"data\":\"$4a2f\",\"content\":\"$4a30\",\"nodeType\":\"heading-2\"}\n4a35:{}\n4a38:{}\n4a39:[]\n4a37:{\"data\":\"$4a38\",\"marks\":\"$4a39\",\"value\":\""])</script>
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1<script>self.__next_f.push([1,"9:[]\n4ada:[]\n4ad8:{\"tags\":\"$4ad9\",\"concepts\":\"$4ada\"}\n4add:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n4adc:{\"sys\":\"$4add\"}\n4adf:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n4ade:{\"sys\":\"$4adf\"}\n4ae1:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n4ae0:{\"sys\":\"$4ae1\"}\n4adb:{\"space\":\"$4adc\",\"id\":\"113fKCP8yPTQwJ39WlHILZ\",\"type\":\"Entry\",\"createdAt\":\"2025-05-02T14:31:17.287Z\",\"updatedAt\":\"2026-01-29T21:48:01.617Z\",\"environment\":\"$4ade\",\"publishedVersion\":11,\"revision\":2,\"contentType\":\"$4ae0\",\"locale\":\"en-US\"}\n4ae4:{}\n4ae7:{}\n4aea:{}\n4aeb:[]\n4ae9:{\"data\":\"$4aea\",\"marks\":\"$4aeb\",\"value\":\"Christa knew something was off when she gave then-2-year-old Cori her sippy cup one night in 2019. \",\"nodeType\":\"text\"}\n4ae8:[\"$4ae9\"]\n4ae6:{\"data\":\"$4ae7\",\"content\":\"$4ae8\",\"nodeType\":\"paragraph\"}\n4aed:{}\n4af0:{}\n4af1:[]\n4aef:{\"data\":\"$4af0\",\"marks\":\"$4af1\",\"value\":\"âShe was doing this weird movement with her left hand and not fully holding onto her cup. I thought maybe she was just being silly,â said Christa, Coriâs mom. âBut then the next morning, both hands were like that. Then when she was walking, she veered left and fell.â \",\"nodeType\":\"text\"}\n4aee:[\"$4aef\"]\n4aec:{\"data\":\"$4aed\",\"content\":\"$4aee\",\"nodeType\":\"paragraph\"}\n4af3:{}\n4af6:{}\n4af7:[]\n4af5:{\"data\":\"$4af6\",\"marks\":\"$4af7\",\"value\":\"They went straight to the pediatrician, who told them to come back if her symptoms persisted. \",\"nodeType\":\"text\"}\n4af4:[\"$4af5\"]\n4af2:{\"data\":\"$4af3\",\"content\":\"$4af4\",\"nodeType\":\"paragraph\"}\n4af9:{}\n4afc:{}\n4afd:[]\n4afb:{\"data\":\"$4afc\",\"marks\":\"$4afd\",\"value\":\"âI knew something was wrong. I told them, âWeâre not waiting. Send us to Childrenâs Healthâ .ââ\",\"nodeType\":\"text\"}\n4afa:[\"$4afb\"]\n4af8:{\"data\":\"$4af9\",\"content\":\"$4afa\",\"nodeType\":\"paragraph\"}\n4aff:{}\n4b02:{}\n4b03:[]\n4b01:{\"data\":\"$4b02\",\"marks\":\"$4b03\",\"value\":\"Christa had already endured an unthinkable tragedy and found hope at Childrenâs Health. She knew it was where Cori needed to be. \",\"nodeType\":\"text\"}\n4b00:[\"$4b01\"]\n4afe:{"])</script>
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1<script>self.__next_f.push([1,"ata\":\"$4b2f\",\"marks\":\"$4b30\",\"value\":\", and \",\"nodeType\":\"text\"}\n4b32:{\"uri\":\"https://www.childrens.com/doctor-profile/benjamin-morris-greenberg\"}\n4b35:{}\n4b36:[]\n4b34:{\"data\":\"$4b35\",\"marks\":\"$4b36\",\"value\":\"Pediatric Neurologist Benjamin Greenberg, M.D.\",\"nodeType\":\"text\"}\n4b33:[\"$4b34\"]\n4b31:{\"data\":\"$4b32\",\"content\":\"$4b33\",\"nodeType\":\"hyperlink\"}\n4b38:{}\n4b39:[]\n4b37:{\"data\":\"$4b38\",\"marks\":\"$4b39\",\"value\":\", Director of the \",\"nodeType\":\"text\"}\n4b3b:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/neurology/demyelinating-disease-program\"}\n4b3e:{}\n4b3f:[]\n4b3d:{\"data\":\"$4b3e\",\"marks\":\"$4b3f\",\"value\":\"Demyelinating Diseases Program at Childrenâs Health\",\"nodeType\":\"text\"}\n4b3c:[\"$4b3d\"]\n4b3a:{\"data\":\"$4b3b\",\"content\":\"$4b3c\",\"nodeType\":\"hyperlink\"}\n4b41:{}\n4b42:[]\n4b40:{\"data\":\"$4b41\",\"marks\":\"$4b42\",\"value\":\" quickly raised their hands to manage Cori's ongoing care. \",\"nodeType\":\"text\"}\n4b24:[\"$4b25\",\"$4b28\",\"$4b2e\",\"$4b31\",\"$4b37\",\"$4b3a\",\"$4b40\"]\n4b22:{\"data\":\"$4b23\",\"content\":\"$4b24\",\"nodeType\":\"paragraph\"}\n4b44:{}\n4b47:{}\n4b48:[]\n4b46:{\"data\":\"$4b47\",\"marks\":\"$4b48\",\"value\":\"They had a theory about Coriâs symptoms and testing confirmed it: Cori had \",\"nodeType\":\"text\"}\n4b4a:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/neuromyelitis-optica-spectrum-disorder\"}\n4b4d:{}\n4b4e:[]\n4b4c:{\"data\":\"$4b4d\",\"marks\":\"$4b4e\",\"value\":\"neuromyelitis optica spectrum disorder (NMOSD)\",\"nodeType\":\"text\"}\n4b4b:[\"$4b4c\"]\n4b49:{\"data\":\"$4b4a\",\"content\":\"$4b4b\",\"nodeType\":\"hyperlink\"}\n4b50:{}\n4b51:[]\n4b4f:{\"data\":\"$4b50\",\"marks\":\"$4b51\",\"value\":\". This rare autoimmune disease happens when the immune system, which is supposed to help you fight off germs, gets confused and starts attacking a protein called Aquaporin 4 in the central nervous system (the brain, spine and nerves in your eyes). \",\"nodeType\":\"text\"}\n4b45:[\"$4b46\",\"$4b49\",\"$4b4f\"]\n4b43:{\"data\":\"$4b44\",\"content\":\"$4b45\",\"nodeType\":\"paragraph\"}\n4b53:{}\n4b56:{}\n4b57:[]\n4b55:{\"data\":\"$4b56\",\"marks\":\"$4b57\",\"valu"])</script>
1<script>self.__next_f.push([1,"e\":\"Some people with NMOSD experience a sudden onset of symptoms called âattacksâ just once in their life. But most people have whatâs called the ârelapsingâ form, where they have flare-ups of symptoms and then periods of recovery. \",\"nodeType\":\"text\"}\n4b54:[\"$4b55\"]\n4b52:{\"data\":\"$4b53\",\"content\":\"$4b54\",\"nodeType\":\"paragraph\"}\n4b59:{}\n4b5c:{}\n4b5d:[]\n4b5b:{\"data\":\"$4b5c\",\"marks\":\"$4b5d\",\"value\":\"The care team soon learned that Cori had a severe form of NMOSD. Christa called in a panic a few weeks later, when Cori woke up paralyzed from the chest down and blind in both eyes. \",\"nodeType\":\"text\"}\n4b5a:[\"$4b5b\"]\n4b58:{\"data\":\"$4b59\",\"content\":\"$4b5a\",\"nodeType\":\"paragraph\"}\n4b5f:{}\n4b62:{}\n4b63:[]\n4b61:{\"data\":\"$4b62\",\"marks\":\"$4b63\",\"value\":\"When standard treatments donât work \",\"nodeType\":\"text\"}\n4b60:[\"$4b61\"]\n4b5e:{\"data\":\"$4b5f\",\"content\":\"$4b60\",\"nodeType\":\"heading-3\"}\n4b65:{}\n4b66:[]\n4b64:{\"data\":\"$4b65\",\"content\":\"$4b66\",\"nodeType\":\"embedded-entry-block\"}\n4b68:{}\n4b6b:{}\n4b6c:[]\n4b6a:{\"data\":\"$4b6b\",\"marks\":\"$4b6c\",\"value\":\"Once again, they rushed to Childrenâs Health. Cori started another steroid treatment and a treatment called \",\"nodeType\":\"text\"}\n4b6e:{\"uri\":\"https://www.childrens.com/specialties-services/treatments/plasmapheresis\"}\n4b71:{}\n4b72:[]\n4b70:{\"data\":\"$4b71\",\"marks\":\"$4b72\",\"value\":\"plasmapheresis\",\"nodeType\":\"text\"}\n4b6f:[\"$4b70\"]\n4b6d:{\"data\":\"$4b6e\",\"content\":\"$4b6f\",\"nodeType\":\"hyperlink\"}\n4b74:{}\n4b75:[]\n4b73:{\"data\":\"$4b74\",\"marks\":\"$4b75\",\"value\":\" to remove autoantibodies (the cells that attack the central nervous system) from her blood. \",\"nodeType\":\"text\"}\n4b69:[\"$4b6a\",\"$4b6d\",\"$4b73\"]\n4b67:{\"data\":\"$4b68\",\"content\":\"$4b69\",\"nodeType\":\"paragraph\"}\n4b77:{}\n4b7a:{}\n4b7b:[]\n4b79:{\"data\":\"$4b7a\",\"marks\":\"$4b7b\",\"value\":\"Thankfully, Christa caught Coriâs symptoms early enough that Cori was able to regain her vision and mobility. But every time they stopped the steroid treatment, Coriâs symptoms returned. \",\"nodeType\":\"text\"}\n4b78:[\"$4b79\"]\n4b76:{\"data\":\"$4b77\",\"conten"])</script>
1<script>self.__next_f.push([1,"t\":\"$4b78\",\"nodeType\":\"paragraph\"}\n4b7d:{}\n4b80:{}\n4b81:[]\n4b7f:{\"data\":\"$4b80\",\"marks\":\"$4b81\",\"value\":\"NMOSD can usually be managed with medicines to slow down the autoantibodies and reduce swelling. But for Cori, further testing revealed that her levels of autoantibodies were off the charts â even for people with NMOSD. \",\"nodeType\":\"text\"}\n4b7e:[\"$4b7f\"]\n4b7c:{\"data\":\"$4b7d\",\"content\":\"$4b7e\",\"nodeType\":\"paragraph\"}\n4b83:{}\n4b86:{}\n4b87:[]\n4b85:{\"data\":\"$4b86\",\"marks\":\"$4b87\",\"value\":\"âShe failed all treatment options and none of the preventative medicines worked for her,â Christa said. âThat first year, she had eight attacks.â \",\"nodeType\":\"text\"}\n4b84:[\"$4b85\"]\n4b82:{\"data\":\"$4b83\",\"content\":\"$4b84\",\"nodeType\":\"paragraph\"}\n4b89:{}\n4b8c:{}\n4b8d:[]\n4b8b:{\"data\":\"$4b8c\",\"marks\":\"$4b8d\",\"value\":\"Her care team knew they needed more options. But they were in uncharted territory. \",\"nodeType\":\"text\"}\n4b8a:[\"$4b8b\"]\n4b88:{\"data\":\"$4b89\",\"content\":\"$4b8a\",\"nodeType\":\"paragraph\"}\n4b8f:{}\n4b92:{}\n4b93:[]\n4b91:{\"data\":\"$4b92\",\"marks\":\"$4b93\",\"value\":\"They knew a \",\"nodeType\":\"text\"}\n4b95:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/multiple-sclerosis\"}\n4b98:{}\n4b99:[]\n4b97:{\"data\":\"$4b98\",\"marks\":\"$4b99\",\"value\":\"bone marrow transplant\",\"nodeType\":\"text\"}\n4b96:[\"$4b97\"]\n4b94:{\"data\":\"$4b95\",\"content\":\"$4b96\",\"nodeType\":\"hyperlink\"}\n4b9b:{}\n4b9c:[]\n4b9a:{\"data\":\"$4b9b\",\"marks\":\"$4b9c\",\"value\":\" could help âresetâ the immune system, knocking out disease-causing cells and replacing them with healthy ones. \",\"nodeType\":\"text\"}\n4b90:[\"$4b91\",\"$4b94\",\"$4b9a\"]\n4b8e:{\"data\":\"$4b8f\",\"content\":\"$4b90\",\"nodeType\":\"paragraph\"}\n4b9e:{}\n4ba1:{}\n4ba2:[]\n4ba0:{\"data\":\"$4ba1\",\"marks\":\"$4ba2\",\"value\":\"But it wouldnât be easy â and it had never been used to treat a child with NMOSD. \",\"nodeType\":\"text\"}\n4b9f:[\"$4ba0\"]\n4b9d:{\"data\":\"$4b9e\",\"content\":\"$4b9f\",\"nodeType\":\"paragraph\"}\n4ba4:{}\n4ba7:{}\n4ba8:[]\n4ba6:{\"data\":\"$4ba7\",\"marks\":\"$4ba8\",\"value\":\"A trailblazing treatment \",\"nodeType\":\"text\"}\n4ba5:"])</script>
1<script>self.__next_f.push([1,"[\"$4ba6\"]\n4ba3:{\"data\":\"$4ba4\",\"content\":\"$4ba5\",\"nodeType\":\"heading-3\"}\n4baa:{}\n4bad:{}\n4bae:[]\n4bac:{\"data\":\"$4bad\",\"marks\":\"$4bae\",\"value\":\"Bone marrow transplants have saved countless lives. They are the only known cure for sickle cell anemia and can offer hope for patients with hard-to-treat blood cancers. Dr. Wang knew that they had been used in severe cases of multiple sclerosis (MS), a related autoimmune disease that affects the central nervous system.\",\"nodeType\":\"text\"}\n4bab:[\"$4bac\"]\n4ba9:{\"data\":\"$4baa\",\"content\":\"$4bab\",\"nodeType\":\"paragraph\"}\n4bb0:{}\n4bb3:{}\n4bb4:[]\n4bb2:{\"data\":\"$4bb3\",\"marks\":\"$4bb4\",\"value\":\"âWith MS, bone marrow transplants have offered long-term remission with patients needing no further treatment,â Dr. Wang said. âSince Cori was so young, we hoped it could offer long-term relief and potentially be curative.â \",\"nodeType\":\"text\"}\n4bb1:[\"$4bb2\"]\n4baf:{\"data\":\"$4bb0\",\"content\":\"$4bb1\",\"nodeType\":\"paragraph\"}\n4bb6:{}\n4bb9:{}\n4bba:[]\n4bb8:{\"data\":\"$4bb9\",\"marks\":\"$4bba\",\"value\":\"But bone marrow transplants are grueling: First, patients need several rounds of chemotherapy to wipe out disease-causing cells. Then, you have to prepare the body to receive new, healthy ones. \",\"nodeType\":\"text\"}\n4bb7:[\"$4bb8\"]\n4bb5:{\"data\":\"$4bb6\",\"content\":\"$4bb7\",\"nodeType\":\"paragraph\"}\n4bbc:{}\n4bbf:{}\n4bc0:[]\n4bbe:{\"data\":\"$4bbf\",\"marks\":\"$4bc0\",\"value\":\"In 2020, Cori became the first child ever to receive a bone marrow transplant for NMOSD. \",\"nodeType\":\"text\"}\n4bbd:[\"$4bbe\"]\n4bbb:{\"data\":\"$4bbc\",\"content\":\"$4bbd\",\"nodeType\":\"paragraph\"}\n4bc2:{}\n4bc5:{}\n4bc6:[]\n4bc4:{\"data\":\"$4bc5\",\"marks\":\"$4bc6\",\"value\":\"Those first weeks of chemo to prepare for the transplant were some of the hardest weeks for Christa. Coriâs immune system was weakened at the height of the COVID-19 pandemic. \",\"nodeType\":\"text\"}\n4bc3:[\"$4bc4\"]\n4bc1:{\"data\":\"$4bc2\",\"content\":\"$4bc3\",\"nodeType\":\"paragraph\"}\n4bc8:{}\n4bcb:{}\n4bcc:[]\n4bca:{\"data\":\"$4bcb\",\"marks\":\"$4bcc\",\"value\":\"Coriâs family and care team held onto hope wh"])</script>
1<script>self.__next_f.push([1,"en weeks turned into months without symptoms. \",\"nodeType\":\"text\"}\n4bc9:[\"$4bca\"]\n4bc7:{\"data\":\"$4bc8\",\"content\":\"$4bc9\",\"nodeType\":\"paragraph\"}\n4bce:{}\n4bd1:{}\n4bd2:[]\n4bd0:{\"data\":\"$4bd1\",\"marks\":\"$4bd2\",\"value\":\"But five months after the transplant, Coriâs muscles were weak. Her vision blurred. Her symptoms were back â worse than ever. \",\"nodeType\":\"text\"}\n4bcf:[\"$4bd0\"]\n4bcd:{\"data\":\"$4bce\",\"content\":\"$4bcf\",\"nodeType\":\"paragraph\"}\n4bd4:{}\n4bd7:{}\n4bd8:[]\n4bd6:{\"data\":\"$4bd7\",\"marks\":\"$4bd8\",\"value\":\"Still, Christa believed in the Childrenâs Health team. Theyâd helped her find hope before. \",\"nodeType\":\"text\"}\n4bd5:[\"$4bd6\"]\n4bd3:{\"data\":\"$4bd4\",\"content\":\"$4bd5\",\"nodeType\":\"paragraph\"}\n4bda:{}\n4bdd:{}\n4bde:[]\n4bdc:{\"data\":\"$4bdd\",\"marks\":\"$4bde\",\"value\":\"Never giving up \",\"nodeType\":\"text\"}\n4bdb:[\"$4bdc\"]\n4bd9:{\"data\":\"$4bda\",\"content\":\"$4bdb\",\"nodeType\":\"heading-3\"}\n4be0:{}\n4be3:{}\n4be4:[]\n4be2:{\"data\":\"$4be3\",\"marks\":\"$4be4\",\"value\":\"When Coriâs symptoms came back, Dr. Wang and the rest of Coriâs care team set their sights on another medicine. This therapy works for adults with complex NMSDO â but it hadn't been used in children. That meant that insurance wouldnât cover the medicine, which can cost hundreds of thousands of dollars per year. \",\"nodeType\":\"text\"}\n4be1:[\"$4be2\"]\n4bdf:{\"data\":\"$4be0\",\"content\":\"$4be1\",\"nodeType\":\"paragraph\"}\n4be6:{}\n4be9:{}\n4bea:[]\n4be8:{\"data\":\"$4be9\",\"marks\":\"$4bea\",\"value\":\"âDr. Wang stuck her neck out for us. She wrote an I-don't-know-how-many page appeal to get the insurance to cover it. And it worked,â Christa said. âShe was just phenomenal. I could go on about her until Iâm in tears.â \",\"nodeType\":\"text\"}\n4be7:[\"$4be8\"]\n4be5:{\"data\":\"$4be6\",\"content\":\"$4be7\",\"nodeType\":\"paragraph\"}\n4bec:{}\n4bef:{}\n4bf0:[]\n4bee:{\"data\":\"$4bef\",\"marks\":\"$4bf0\",\"value\":\"In 2021, Cori started the targeted immunotherapy treatment. She hasnât had an attack since. \",\"nodeType\":\"text\"}\n4bed:[\"$4bee\"]\n4beb:{\"data\":\"$4bec\",\"content\":\"$4bed\",\"nodeType\":\"paragraph\"}\n4bf2"])</script>
1<script>self.__next_f.push([1,":{}\n4bf5:{}\n4bf6:[]\n4bf4:{\"data\":\"$4bf5\",\"marks\":\"$4bf6\",\"value\":\"Another groundbreaking treatment \",\"nodeType\":\"text\"}\n4bf3:[\"$4bf4\"]\n4bf1:{\"data\":\"$4bf2\",\"content\":\"$4bf3\",\"nodeType\":\"heading-3\"}\n4bf8:{}\n4bfb:{}\n4bfc:[]\n4bfa:{\"data\":\"$4bfb\",\"marks\":\"$4bfc\",\"value\":\"Cori still has obstacles ahead of her: The disease caused lesions in her brain that make speaking and learning more difficult. She and her mom spend 4 hours on the road every other week, traveling from Tyler to Dallas for Coriâs infusions â though Dr. Wang hopes to change that. \",\"nodeType\":\"text\"}\n4bf9:[\"$4bfa\"]\n4bf7:{\"data\":\"$4bf8\",\"content\":\"$4bf9\",\"nodeType\":\"paragraph\"}\n4bfe:{}\n4c01:{}\n4c02:[]\n4c00:{\"data\":\"$4c01\",\"marks\":\"$4c02\",\"value\":\"Sheâs working to enroll Cori in a clinical trial for a different medicine that works in the same way, but only needs to be infused every other month. If the trial is successful, it would be the first medicine of its kind to be FDA-approved for children with NMOSD. \",\"nodeType\":\"text\"}\n4bff:[\"$4c00\"]\n4bfd:{\"data\":\"$4bfe\",\"content\":\"$4bff\",\"nodeType\":\"paragraph\"}\n4c04:{}\n4c07:{}\n4c08:[]\n4c06:{\"data\":\"$4c07\",\"marks\":\"$4c08\",\"value\":\"âIâm optimistic that Cori will do well and it would dramatically reduce the number of trips to the hospital,â Dr. Wang said. âIt would allow her to be a kid who doesnât have to build their entire schedule around coming to the hospital for infusions.â \",\"nodeType\":\"text\"}\n4c05:[\"$4c06\"]\n4c03:{\"data\":\"$4c04\",\"content\":\"$4c05\",\"nodeType\":\"paragraph\"}\n4c0a:{}\n4c0d:{}\n4c0e:[]\n4c0c:{\"data\":\"$4c0d\",\"marks\":\"$4c0e\",\"value\":\"A second chance \",\"nodeType\":\"text\"}\n4c0b:[\"$4c0c\"]\n4c09:{\"data\":\"$4c0a\",\"content\":\"$4c0b\",\"nodeType\":\"heading-3\"}\n4c10:{}\n4c11:[]\n4c0f:{\"data\":\"$4c10\",\"content\":\"$4c11\",\"nodeType\":\"embedded-entry-block\"}\n4c13:{}\n4c16:{}\n4c17:[]\n4c15:{\"data\":\"$4c16\",\"marks\":\"$4c17\",\"value\":\"Despite everything, Cori is kind-hearted and spunky. Painting, dressing up and playing outside are her favorite activities. Now 7, she has more nail polishes that she can count â part"])</script>
1<script>self.__next_f.push([1,"ially because her care team knew she loves them and would bring them to her. \",\"nodeType\":\"text\"}\n4c14:[\"$4c15\"]\n4c12:{\"data\":\"$4c13\",\"content\":\"$4c14\",\"nodeType\":\"paragraph\"}\n4c19:{}\n4c1c:{}\n4c1d:[]\n4c1b:{\"data\":\"$4c1c\",\"marks\":\"$4c1d\",\"value\":\"Those small acts of love from her nurses and \",\"nodeType\":\"text\"}\n4c1f:{\"uri\":\"https://www.childrens.com/patient-families/resources-for-your-child/child-life\"}\n4c22:{}\n4c23:[]\n4c21:{\"data\":\"$4c22\",\"marks\":\"$4c23\",\"value\":\"Child Life\",\"nodeType\":\"text\"}\n4c20:[\"$4c21\"]\n4c1e:{\"data\":\"$4c1f\",\"content\":\"$4c20\",\"nodeType\":\"hyperlink\"}\n4c25:{}\n4c26:[]\n4c24:{\"data\":\"$4c25\",\"marks\":\"$4c26\",\"value\":\" team made all the difference. \",\"nodeType\":\"text\"}\n4c1a:[\"$4c1b\",\"$4c1e\",\"$4c24\"]\n4c18:{\"data\":\"$4c19\",\"content\":\"$4c1a\",\"nodeType\":\"paragraph\"}\n4c28:{}\n4c2b:{}\n4c2c:[]\n4c2a:{\"data\":\"$4c2b\",\"marks\":\"$4c2c\",\"value\":\"âIâll never forget one night when the steroid treatments were keeping Cori up and I went to check the laundry,â Christa said. âWhen I came back, Cori was in a full cheerleading uniform with pom poms and everyone was singing and dancing. It was 2 a.m. and it was hilarious.âââ \",\"nodeType\":\"text\"}\n4c29:[\"$4c2a\"]\n4c27:{\"data\":\"$4c28\",\"content\":\"$4c29\",\"nodeType\":\"paragraph\"}\n4c2e:{}\n4c31:{}\n4c32:[]\n4c30:{\"data\":\"$4c31\",\"marks\":\"$4c32\",\"value\":\"Moments like that made being in the hospital easier. And theyâre probably why Cori used to say âchild life specialistâ when asked what she wants to be when she grows up. (Now sheâs thinking makeup artist or fashion designer.) \",\"nodeType\":\"text\"}\n4c2f:[\"$4c30\"]\n4c2d:{\"data\":\"$4c2e\",\"content\":\"$4c2f\",\"nodeType\":\"paragraph\"}\n4c34:{}\n4c37:{}\n4c38:[]\n4c36:{\"data\":\"$4c37\",\"marks\":\"$4c38\",\"value\":\"Christa knows that services like Child Life â and the research needed to help kids with complex diseases â are made possible in part by philanthropy. \",\"nodeType\":\"text\"}\n4c35:[\"$4c36\"]\n4c33:{\"data\":\"$4c34\",\"content\":\"$4c35\",\"nodeType\":\"paragraph\"}\n4c3a:{}\n4c3d:{}\n4c3e:[]\n4c3c:{\"data\":\"$4c3d\",\"marks\":\"$4c3e\",\"value\":\"âThere"])</script>
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1<script>self.__next_f.push([1,"- Isai | Thumbnail\",\"image\":\"$4ceb\"}\n4cdf:{\"metadata\":\"$4ce0\",\"sys\":\"$4ce3\",\"fields\":\"$4cea\"}\n4cde:[\"$4cdf\"]\n4cf5:[]\n4cf6:[]\n4cf4:{\"tags\":\"$4cf5\",\"concepts\":\"$4cf6\"}\n4cf9:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n4cf8:{\"sys\":\"$4cf9\"}\n4cfb:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n4cfa:{\"sys\":\"$4cfb\"}\n4cfd:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n4cfc:{\"sys\":\"$4cfd\"}\n4cf7:{\"space\":\"$4cf8\",\"id\":\"dhoHCNUXH74kDngBK8RjP\",\"type\":\"Entry\",\"createdAt\":\"2025-02-12T16:25:25.626Z\",\"updatedAt\":\"2026-01-29T21:21:38.621Z\",\"environment\":\"$4cfa\",\"publishedVersion\":17,\"revision\":3,\"contentType\":\"$4cfc\",\"locale\":\"en-US\"}\n4d00:{}\n4d03:{}\n4d06:{}\n4d07:[]\n4d05:{\"data\":\"$4d06\",\"marks\":\"$4d07\",\"value\":\"In the summer of 2023, 6-year-old Isai went to a birthday party. A group of kids started playing tag outside. Suddenly, Isai was screaming. A metal pole that had been leaning up against a building had fallen on his head. \",\"nodeType\":\"text\"}\n4d04:[\"$4d05\"]\n4d02:{\"data\":\"$4d03\",\"content\":\"$4d04\",\"nodeType\":\"paragraph\"}\n4d09:{}\n4d0c:{}\n4d0d:[]\n4d0b:{\"data\":\"$4d0c\",\"marks\":\"$4d0d\",\"value\":\"When the ambulance couldnât find the rural house where the birthday party was hosted, his dad drove him to the nearest hospital. Later, Isai was helicoptered to Childrenâs Healthâ in Dallas for more comprehensive care. \",\"nodeType\":\"text\"}\n4d0a:[\"$4d0b\"]\n4d08:{\"data\":\"$4d09\",\"content\":\"$4d0a\",\"nodeType\":\"paragraph\"}\n4d0f:{}\n4d12:{}\n4d13:[]\n4d11:{\"data\":\"$4d12\",\"marks\":\"$4d13\",\"value\":\"Isaiâs accident was a life-altering moment thatâs led to four different surgeries â and many hours of supportive therapies. \",\"nodeType\":\"text\"}\n4d10:[\"$4d11\"]\n4d0e:{\"data\":\"$4d0f\",\"content\":\"$4d10\",\"nodeType\":\"paragraph\"}\n4d15:{}\n4d18:{}\n4d19:[]\n4d17:{\"data\":\"$4d18\",\"marks\":\"$4d19\",\"value\":\"But from the moment Isai and his family first walked through the doors at the Emergency Department at Childrenâs Health, theyâve always felt deeply cared for by each member of his care team, including neurosurgeons, nurses, physic"])</script>
1<script>self.__next_f.push([1,"al and occupational therapists and Child Life specialists. \",\"nodeType\":\"text\"}\n4d16:[\"$4d17\"]\n4d14:{\"data\":\"$4d15\",\"content\":\"$4d16\",\"nodeType\":\"paragraph\"}\n4d1b:{}\n4d1e:{}\n4d1f:[]\n4d1d:{\"data\":\"$4d1e\",\"marks\":\"$4d1f\",\"value\":\"âWhen we first arrived, we were terrified. But seeing how well Isai has been cared for has alleviated some of the fear and hardship from everything we've undergone. At Children's Health, I always know that Isai is going to be OK â and that each of his medical procedures are getting us one step closer to where we need to be,â said Isaiâs mom, Alejandra.\",\"nodeType\":\"text\"}\n4d1c:[\"$4d1d\"]\n4d1a:{\"data\":\"$4d1b\",\"content\":\"$4d1c\",\"nodeType\":\"paragraph\"}\n4d21:{}\n4d24:{}\n4d25:[]\n4d23:{\"data\":\"$4d24\",\"marks\":\"$4d25\",\"value\":\"A terrifying accident requires emergency and long-term care \",\"nodeType\":\"text\"}\n4d22:[\"$4d23\"]\n4d20:{\"data\":\"$4d21\",\"content\":\"$4d22\",\"nodeType\":\"heading-3\"}\n4d27:{}\n4d28:[]\n4d26:{\"data\":\"$4d27\",\"content\":\"$4d28\",\"nodeType\":\"embedded-entry-block\"}\n4d2a:{}\n4d2d:{}\n4d2e:[]\n4d2c:{\"data\":\"$4d2d\",\"marks\":\"$4d2e\",\"value\":\"Over the next few weeks that summer, Isai went into the operating room three times. The first was to give him a prosthetic eye because the injury had left him without sight in his left eye. The second was to stop a small brain hemorrhage in the back of his brain. And the third was to place several metal plates in his forehead, cheekbones and nose to repair complex bone fractures. \",\"nodeType\":\"text\"}\n4d2b:[\"$4d2c\"]\n4d29:{\"data\":\"$4d2a\",\"content\":\"$4d2b\",\"nodeType\":\"paragraph\"}\n4d30:{}\n4d33:{}\n4d34:[]\n4d32:{\"data\":\"$4d33\",\"marks\":\"$4d34\",\"value\":\"Then, about a year later, Isai returned to the operating room for a fourth surgery â to help control and monitor an infection he developed from one of the metal plates and maintain vision in his right eye. \",\"nodeType\":\"text\"}\n4d31:[\"$4d32\"]\n4d2f:{\"data\":\"$4d30\",\"content\":\"$4d31\",\"nodeType\":\"paragraph\"}\n4d36:{}\n4d39:{}\n4d3a:[]\n4d38:{\"data\":\"$4d39\",\"marks\":\"$4d3a\",\"value\":\"For each of Isai's procedures, his entire"])</script>
1<script>self.__next_f.push([1," care team made sure of two things: \",\"nodeType\":\"text\"}\n4d37:[\"$4d38\"]\n4d35:{\"data\":\"$4d36\",\"content\":\"$4d37\",\"nodeType\":\"paragraph\"}\n4d3c:{}\n4d3f:{}\n4d42:{}\n4d45:{}\n4d46:[]\n4d44:{\"data\":\"$4d45\",\"marks\":\"$4d46\",\"value\":\"Isai kept a positive mindset. \",\"nodeType\":\"text\"}\n4d43:[\"$4d44\"]\n4d41:{\"data\":\"$4d42\",\"content\":\"$4d43\",\"nodeType\":\"paragraph\"}\n4d40:[\"$4d41\"]\n4d3e:{\"data\":\"$4d3f\",\"content\":\"$4d40\",\"nodeType\":\"list-item\"}\n4d48:{}\n4d4b:{}\n4d4e:{}\n4d4f:[]\n4d4d:{\"data\":\"$4d4e\",\"marks\":\"$4d4f\",\"value\":\"Isai felt comfortable and understood what was happening at all times.\",\"nodeType\":\"text\"}\n4d4c:[\"$4d4d\"]\n4d4a:{\"data\":\"$4d4b\",\"content\":\"$4d4c\",\"nodeType\":\"paragraph\"}\n4d49:[\"$4d4a\"]\n4d47:{\"data\":\"$4d48\",\"content\":\"$4d49\",\"nodeType\":\"list-item\"}\n4d3d:[\"$4d3e\",\"$4d47\"]\n4d3b:{\"data\":\"$4d3c\",\"content\":\"$4d3d\",\"nodeType\":\"ordered-list\"}\n4d51:{}\n4d54:{}\n4d55:[]\n4d53:{\"data\":\"$4d54\",\"marks\":\"$4d55\",\"value\":\"Keeping a positive mindset with play as âtherapyâ \",\"nodeType\":\"text\"}\n4d52:[\"$4d53\"]\n4d50:{\"data\":\"$4d51\",\"content\":\"$4d52\",\"nodeType\":\"heading-3\"}\n4d57:{}\n4d5a:{}\n4d5b:[]\n4d59:{\"data\":\"$4d5a\",\"marks\":\"$4d5b\",\"value\":\"Overnight, Isai went from being a playful, sporty, independent 6-year-old to a child who relied on a wheelchair to move around. \",\"nodeType\":\"text\"}\n4d58:[\"$4d59\"]\n4d56:{\"data\":\"$4d57\",\"content\":\"$4d58\",\"nodeType\":\"paragraph\"}\n4d5d:{}\n4d60:{}\n4d61:[]\n4d5f:{\"data\":\"$4d60\",\"marks\":\"$4d61\",\"value\":\"âSeeing that dramatic change in him was very, very hard. But he needed to be in a wheelchair to keep him from moving around too much because of his vision and balance challenges,â Alejandra said. \",\"nodeType\":\"text\"}\n4d5e:[\"$4d5f\"]\n4d5c:{\"data\":\"$4d5d\",\"content\":\"$4d5e\",\"nodeType\":\"paragraph\"}\n4d63:{}\n4d66:{}\n4d67:[]\n4d65:{\"data\":\"$4d66\",\"marks\":\"$4d67\",\"value\":\"Members of his physical therapy and occupational therapy teams found ways for him to focus on the positive, even in a wheelchair. They helped him see that he could still play racquetball or kick a ball â and interact and have fun with other kids "])</script>
1<script>self.__next_f.push([1,"in the hospital. In the face of a long, difficult road ahead, they helped Isai feel OK, which helped his mom feel OK.\",\"nodeType\":\"text\"}\n4d64:[\"$4d65\"]\n4d62:{\"data\":\"$4d63\",\"content\":\"$4d64\",\"nodeType\":\"paragraph\"}\n4d69:{\"target\":\"$bd4\"}\n4d6a:[]\n4d68:{\"data\":\"$4d69\",\"content\":\"$4d6a\",\"nodeType\":\"embedded-entry-block\"}\n4d6c:{}\n4d6f:{}\n4d70:[]\n4d6e:{\"data\":\"$4d6f\",\"marks\":\"$4d70\",\"value\":\"Minimizing Isaiâs anxiety before surgery \",\"nodeType\":\"text\"}\n4d6d:[\"$4d6e\"]\n4d6b:{\"data\":\"$4d6c\",\"content\":\"$4d6d\",\"nodeType\":\"heading-3\"}\n4d72:{}\n4d75:{}\n4d76:[]\n4d74:{\"data\":\"$4d75\",\"marks\":\"$4d76\",\"value\":\"At the ER in their local hospital, Alejandra noted that being in a hospital setting was instantly overwhelming for Isai. But the providers at Children's Health seemed to know how to help Isai feel more comfortable, gain his trust and talk to him in the ways he needed. \",\"nodeType\":\"text\"}\n4d73:[\"$4d74\"]\n4d71:{\"data\":\"$4d72\",\"content\":\"$4d73\",\"nodeType\":\"paragraph\"}\n4d78:{}\n4d79:[]\n4d77:{\"data\":\"$4d78\",\"content\":\"$4d79\",\"nodeType\":\"embedded-entry-block\"}\n4d7b:{}\n4d7e:{}\n4d7f:[]\n4d7d:{\"data\":\"$4d7e\",\"marks\":\"$4d7f\",\"value\":\"âBefore every procedure, the Child Life team would come in and let Isai know what was going to happen. Theyâd bring in the medical equipment theyâd be using and show it to him,â Alejandra said. âTheyâd explain things at just the right level for him â in advance. That really helped lower his anxiety.â The team would even let him know that they could come back to do certain medical procedures â if he didnât feel quite ready. \",\"nodeType\":\"text\"}\n4d7c:[\"$4d7d\"]\n4d7a:{\"data\":\"$4d7b\",\"content\":\"$4d7c\",\"nodeType\":\"paragraph\"}\n4d81:{}\n4d84:{}\n4d85:[]\n4d83:{\"data\":\"$4d84\",\"marks\":\"$4d85\",\"value\":\"Child Life specialists also brought therapy dogs to calm and entertain Isai. And they distracted him with fidget toys or coloring books. \",\"nodeType\":\"text\"}\n4d82:[\"$4d83\"]\n4d80:{\"data\":\"$4d81\",\"content\":\"$4d82\",\"nodeType\":\"paragraph\"}\n4d87:{}\n4d8a:{}\n4d8b:[]\n4d89:{\"data\":\"$4d8a\",\"marks\":\"$4d8b\",\"val"])</script>
1<script>self.__next_f.push([1,"ue\":\"âBefore his last procedure, Isai told me that the nurse talked to him the same way that I do. That may have been a coincidence. But itâs likely because of the time theyâd taken to get to know him and because of his adaptive coping plan, which spells out what makes him stressed and how to best communicate with him,â Alejandra said. \",\"nodeType\":\"text\"}\n4d88:[\"$4d89\"]\n4d86:{\"data\":\"$4d87\",\"content\":\"$4d88\",\"nodeType\":\"paragraph\"}\n4d8d:{}\n4d90:{}\n4d91:[]\n4d8f:{\"data\":\"$4d90\",\"marks\":\"$4d91\",\"value\":\"Alejandra also recalls the day one of his nurses brought the Minecraft console to his room when he was too sick to go down to the hospitalâs Play Zone â and how excited Isai was to be able to play his favorite video game.\",\"nodeType\":\"text\"}\n4d8e:[\"$4d8f\"]\n4d8c:{\"data\":\"$4d8d\",\"content\":\"$4d8e\",\"nodeType\":\"paragraph\"}\n4d93:{}\n4d96:{}\n4d97:[]\n4d95:{\"data\":\"$4d96\",\"marks\":\"$4d97\",\"value\":\"âIâve felt so blessed to know that not only are Isaiâs complex medical needs taken care of, but also his social and emotional well-being,â Alejandra said. \",\"nodeType\":\"text\"}\n4d94:[\"$4d95\"]\n4d92:{\"data\":\"$4d93\",\"content\":\"$4d94\",\"nodeType\":\"paragraph\"}\n4d99:{}\n4d9c:{}\n4d9d:[]\n4d9b:{\"data\":\"$4d9c\",\"marks\":\"$4d9d\",\"value\":\"Whole-patient and whole-family support \",\"nodeType\":\"text\"}\n4d9a:[\"$4d9b\"]\n4d98:{\"data\":\"$4d99\",\"content\":\"$4d9a\",\"nodeType\":\"heading-3\"}\n4d9f:{}\n4da2:{}\n4da3:[]\n4da1:{\"data\":\"$4da2\",\"marks\":\"$4da3\",\"value\":\"Working with social workers at Childrenâs Health, Isaiâs family was able to qualify for financial assistance to help cover the costs of the procedures their private insurance would not cover. The social work team was also able to help with hefty gas bills commuting to and from the familyâs home almost two hours away from the Dallas hospital. \",\"nodeType\":\"text\"}\n4da0:[\"$4da1\"]\n4d9e:{\"data\":\"$4d9f\",\"content\":\"$4da0\",\"nodeType\":\"paragraph\"}\n4da5:{}\n4da8:{}\n4da9:[]\n4da7:{\"data\":\"$4da8\",\"marks\":\"$4da9\",\"value\":\"On the last day of Isaiâs final procedure, the social work team arranged for t"])</script>
1<script>self.__next_f.push([1,"he family to stay at the Ronald McDonald house, which provides lodging and meals nearby the hospital. Social Work and Child Life services such as these make life easier for kids and families experiencing the unthinkable and come at no-cost, thanks to philanthropic gifts. \",\"nodeType\":\"text\"}\n4da6:[\"$4da7\"]\n4da4:{\"data\":\"$4da5\",\"content\":\"$4da6\",\"nodeType\":\"paragraph\"}\n4dab:{}\n4dae:{}\n4daf:[]\n4dad:{\"data\":\"$4dae\",\"marks\":\"$4daf\",\"value\":\"Isaiâs mom, a second-grade teacher, has been grateful for these extra layers of care and for the many people whoâve helped Isai get what heâs needed. \",\"nodeType\":\"text\"}\n4dac:[\"$4dad\"]\n4daa:{\"data\":\"$4dab\",\"content\":\"$4dac\",\"nodeType\":\"paragraph\"}\n4db1:{}\n4db4:{}\n4db5:[]\n4db3:{\"data\":\"$4db4\",\"marks\":\"$4db5\",\"value\":\"âItâs been incredible to know that anytime we have a procedure, we're always going to have the help and support we need,â she said. \",\"nodeType\":\"text\"}\n4db2:[\"$4db3\"]\n4db0:{\"data\":\"$4db1\",\"content\":\"$4db2\",\"nodeType\":\"paragraph\"}\n4db7:{}\n4dba:{}\n4dbb:[]\n4db9:{\"data\":\"$4dba\",\"marks\":\"$4dbb\",\"value\":\"On the continued road to recovery \",\"nodeType\":\"text\"}\n4db8:[\"$4db9\"]\n4db6:{\"data\":\"$4db7\",\"content\":\"$4db8\",\"nodeType\":\"heading-3\"}\n4dbd:{}\n4dbe:[]\n4dbc:{\"data\":\"$4dbd\",\"content\":\"$4dbe\",\"nodeType\":\"embedded-entry-block\"}\n4dc0:{}\n4dc3:{}\n4dc4:[]\n4dc2:{\"data\":\"$4dc3\",\"marks\":\"$4dc4\",\"value\":\"Isai, now 7-years-old, is doing âamazing.â His visual scanning, peripheral vision, balance and memory have greatly improved, and heâs back to playing soccer at recess again. Academically, heâs also thriving. \",\"nodeType\":\"text\"}\n4dc1:[\"$4dc2\"]\n4dbf:{\"data\":\"$4dc0\",\"content\":\"$4dc1\",\"nodeType\":\"paragraph\"}\n4dc6:{}\n4dc9:{}\n4dca:[]\n4dc8:{\"data\":\"$4dc9\",\"marks\":\"$4dca\",\"value\":\"Because of his therapies, Isai went from not reading at all at the end of last year to almost reading at grade level. His mom believes thatâs because heâs been so well taken care of by the team at Childrenâs Health â physically and emotionally. \",\"nodeType\":\"text\"}\n4dc7:[\"$4dc8\"]\n4dc5:{\"d"])</script>
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1<script>self.__next_f.push([1,"e\"]\n4e9b:{\"data\":\"$4e9c\",\"content\":\"$4e9d\",\"nodeType\":\"paragraph\"}\n4ea2:{}\n4ea5:{}\n4ea6:[]\n4ea4:{\"data\":\"$4ea5\",\"marks\":\"$4ea6\",\"value\":\"But this moment â with her name in bright lights and multiple cameras capturing the angles of her face â felt like a dream.\",\"nodeType\":\"text\"}\n4ea3:[\"$4ea4\"]\n4ea1:{\"data\":\"$4ea2\",\"content\":\"$4ea3\",\"nodeType\":\"paragraph\"}\n4ea8:{}\n4eab:{}\n4eac:[]\n4eaa:{\"data\":\"$4eab\",\"marks\":\"$4eac\",\"value\":\"Because after a double organ transplant two years earlier at Childrenâs Health that saved her life, it was her dream. Almost a decade after launching âThe Sydney Showâ as a kid, her talk show got a one-time reboot, when she invited her family and members of her care team back to recount her journey.\",\"nodeType\":\"text\"}\n4ea9:[\"$4eaa\"]\n4ea7:{\"data\":\"$4ea8\",\"content\":\"$4ea9\",\"nodeType\":\"paragraph\"}\n4eae:{}\n4eb1:{}\n4eb2:[]\n4eb0:{\"data\":\"$4eb1\",\"marks\":\"$4eb2\",\"value\":\"She took a deep breath as the cameras began to roll. And with energy that she seemed to bottle until the producer yelled action, she leapt from the chair. This was the wish sheâd had all along â her moment to shine.\",\"nodeType\":\"text\"}\n4eaf:[\"$4eb0\"]\n4ead:{\"data\":\"$4eae\",\"content\":\"$4eaf\",\"nodeType\":\"paragraph\"}\n4eb4:{}\n4eb5:[]\n4eb3:{\"data\":\"$4eb4\",\"content\":\"$4eb5\",\"nodeType\":\"embedded-entry-block\"}\n4eb7:{}\n4eba:{}\n4ebb:[]\n4eb9:{\"data\":\"$4eba\",\"marks\":\"$4ebb\",\"value\":\"A new heart journey with the help of innovative technology\",\"nodeType\":\"text\"}\n4eb8:[\"$4eb9\"]\n4eb6:{\"data\":\"$4eb7\",\"content\":\"$4eb8\",\"nodeType\":\"heading-3\"}\n4ebd:{}\n4ec0:{}\n4ec1:[]\n4ebf:{\"data\":\"$4ec0\",\"marks\":\"$4ec1\",\"value\":\"Sydney was a freshman in college and exploring her mass communications major when she became too sick to stay at school. âIâve known for my entire life that eventually I might need a heart transplant and maybe a liver transplant. I was ready,â Sydney said.\",\"nodeType\":\"text\"}\n4ebe:[\"$4ebf\"]\n4ebc:{\"data\":\"$4ebd\",\"content\":\"$4ebe\",\"nodeType\":\"paragraph\"}\n4ec3:{}\n4ec6:{}\n4ec7:[]\n4ec5:{\"data\":\"$4ec6\",\"marks\":\"$4ec7\",\"value\":\"Her "])</script>
1<script>self.__next_f.push([1,"team of doctors was ready, too. Leading her care team was Ryan Butts, M.D., Medical Director of the Pediatric Advanced Cardiac Care Program at Childrenâs Health and Associate Professor at UT Southwestern.\",\"nodeType\":\"text\"}\n4ec4:[\"$4ec5\"]\n4ec2:{\"data\":\"$4ec3\",\"content\":\"$4ec4\",\"nodeType\":\"paragraph\"}\n4ec9:{}\n4ecc:{}\n4ecd:[]\n4ecb:{\"data\":\"$4ecc\",\"marks\":\"$4ecd\",\"value\":\"Sydney was one of the first pediatric patients in the country to receive a heart and liver transplant with the help of an innovative technology called normothermic machine perfusion. The technology helps keep donated organs as healthy as possible before and during transplant, leading to more effective procedures and better outcomes for patients like Sydney.\",\"nodeType\":\"text\"}\n4eca:[\"$4ecb\"]\n4ec8:{\"data\":\"$4ec9\",\"content\":\"$4eca\",\"nodeType\":\"paragraph\"}\n4ecf:{}\n4ed0:[]\n4ece:{\"data\":\"$4ecf\",\"content\":\"$4ed0\",\"nodeType\":\"embedded-entry-block\"}\n4ed2:{}\n4ed5:{}\n4ed6:[]\n4ed4:{\"data\":\"$4ed5\",\"marks\":\"$4ed6\",\"value\":\"âOur community needs resources like Childrenâs Health because there are a lot of kids that are sick and need specialized care,â Sydney said. âChildrenâs Health does a great job at catering to kids who need help â they did everything to put my health first.â\",\"nodeType\":\"text\"}\n4ed3:[\"$4ed4\"]\n4ed1:{\"data\":\"$4ed2\",\"content\":\"$4ed3\",\"nodeType\":\"paragraph\"}\n4ed8:{}\n4edb:{}\n4edc:[]\n4eda:{\"data\":\"$4edb\",\"marks\":\"$4edc\",\"value\":\"Sydney's cardiac care began with a sonogram \",\"nodeType\":\"text\"}\n4ed9:[\"$4eda\"]\n4ed7:{\"data\":\"$4ed8\",\"content\":\"$4ed9\",\"nodeType\":\"heading-3\"}\n4ede:{}\n4ee1:{}\n4ee2:[]\n4ee0:{\"data\":\"$4ee1\",\"marks\":\"$4ee2\",\"value\":\"When Sydney's mom Chelle was pregnant, she got some special treatment from her OB/GYN. That's because the clinic she went to was also where Sydney's dad, Marc, practiced. One day the sonogram nurse noticed an abnormality with baby Sydneyâs heart. Soon, Chelle and Marc learned their baby had hypoplastic left heart syndrome (HLHS), which happens when the left side of the heart doesn't fully develop."])</script>
1<script>self.__next_f.push([1," \",\"nodeType\":\"text\"}\n4edf:[\"$4ee0\"]\n4edd:{\"data\":\"$4ede\",\"content\":\"$4edf\",\"nodeType\":\"paragraph\"}\n4ee4:{\"target\":\"$bec\"}\n4ee5:[]\n4ee3:{\"data\":\"$4ee4\",\"content\":\"$4ee5\",\"nodeType\":\"embedded-entry-block\"}\n4ee7:{}\n4eea:{}\n4eeb:[]\n4ee9:{\"data\":\"$4eea\",\"marks\":\"$4eeb\",\"value\":\"Sydney had two more open heart surgeries before her fourth birthday. Because of her condition, she couldnât do sports, so she danced. \\n\\nAfter graduating with the class of 2022, Sydney was off to Southern University. College was everything she hoped for. But during her second semester, she realized that even a walk between classes left her feeling exhausted. Then, she started feeling severe pain in her stomach. \",\"nodeType\":\"text\"}\n4ee8:[\"$4ee9\"]\n4ee6:{\"data\":\"$4ee7\",\"content\":\"$4ee8\",\"nodeType\":\"paragraph\"}\n4eed:{}\n4ef0:{}\n4ef1:[]\n4eef:{\"data\":\"$4ef0\",\"marks\":\"$4ef1\",\"value\":\"\\\"One day, Sydney called and said, âMom, I need to come home.' This was a girl who would push through anything, and the worst thing she could imagine was leaving school,\\\" Chelle said. \\\"When I went to get her from the airport, she collapsed in my arms crying. I knew her next heart journey was beginning.\\\" \",\"nodeType\":\"text\"}\n4eee:[\"$4eef\"]\n4eec:{\"data\":\"$4eed\",\"content\":\"$4eee\",\"nodeType\":\"paragraph\"}\n4ef3:{}\n4ef6:{}\n4ef7:[]\n4ef5:{\"data\":\"$4ef6\",\"marks\":\"$4ef7\",\"value\":\"Planning and preparing for a complex procedure \",\"nodeType\":\"text\"}\n4ef4:[\"$4ef5\"]\n4ef2:{\"data\":\"$4ef3\",\"content\":\"$4ef4\",\"nodeType\":\"heading-3\"}\n4ef9:{}\n4efc:{}\n4efd:[]\n4efb:{\"data\":\"$4efc\",\"marks\":\"$4efd\",\"value\":\"Sydney and her parents met with a team of The Heart Center and Pediatric Liver Transplant Program doctors who began to unpack everything about Sydney's health and make a plan to restore it. This meant Sydney would need an expert care team who could carry out not one but two transplants. \",\"nodeType\":\"text\"}\n4efa:[\"$4efb\"]\n4ef8:{\"data\":\"$4ef9\",\"content\":\"$4efa\",\"nodeType\":\"paragraph\"}\n4eff:{}\n4f00:[]\n4efe:{\"data\":\"$4eff\",\"content\":\"$4f00\",\"nodeType\":\"embedded-entry-block\"}\n4f02:{}\n4f05:{"])</script>
1<script>self.__next_f.push([1,"}\n4f06:[]\n4f04:{\"data\":\"$4f05\",\"marks\":\"$4f06\",\"value\":\"At the ready were Dr. Hwang and Ryan Davies, M.D., Pediatric Cardiothoracic Surgeon at Children's Health and Professor at UT Southwestern. \",\"nodeType\":\"text\"}\n4f03:[\"$4f04\"]\n4f01:{\"data\":\"$4f02\",\"content\":\"$4f03\",\"nodeType\":\"paragraph\"}\n4f08:{}\n4f0b:{}\n4f0c:[]\n4f0a:{\"data\":\"$4f0b\",\"marks\":\"$4f0c\",\"value\":\"\\\"People born with HLHS often eventually need a heart transplant, and some need a new liver. That's because, even after the surgeries she had when she was little, Sydney's heart wasn't able to bring blood from the liver to the heart as efficiently as it's supposed to,\\\" Dr. Hwang said. \",\"nodeType\":\"text\"}\n4f09:[\"$4f0a\"]\n4f07:{\"data\":\"$4f08\",\"content\":\"$4f09\",\"nodeType\":\"paragraph\"}\n4f0e:{}\n4f11:{}\n4f12:[]\n4f10:{\"data\":\"$4f11\",\"marks\":\"$4f12\",\"value\":\"Together, the family and providers decided that Sydney would move forward with the transplant process, and Dr. Butts began walking them through every aspect of the plan, including the challenges of finding a match. \",\"nodeType\":\"text\"}\n4f0f:[\"$4f10\"]\n4f0d:{\"data\":\"$4f0e\",\"content\":\"$4f0f\",\"nodeType\":\"paragraph\"}\n4f14:{}\n4f17:{}\n4f18:[]\n4f16:{\"data\":\"$4f17\",\"marks\":\"$4f18\",\"value\":\"\\\"Dr. Butts reminds me a lot of my dad,\\\" Sydney said. \\\"He broke down the medical information so I could understand what was happening. He was the person I could go to for anything.\\\" \",\"nodeType\":\"text\"}\n4f15:[\"$4f16\"]\n4f13:{\"data\":\"$4f14\",\"content\":\"$4f15\",\"nodeType\":\"paragraph\"}\n4f1a:{}\n4f1d:{}\n4f1e:[]\n4f1c:{\"data\":\"$4f1d\",\"marks\":\"$4f1e\",\"value\":\"Dr. Butts was especially impressed with Sydney's commitment to her physical health. He explains that while he was looking at her labs and making adjustments to her medications, Sydney had to work, too. \",\"nodeType\":\"text\"}\n4f1b:[\"$4f1c\"]\n4f19:{\"data\":\"$4f1a\",\"content\":\"$4f1b\",\"nodeType\":\"paragraph\"}\n4f20:{}\n4f23:{}\n4f24:[]\n4f22:{\"data\":\"$4f23\",\"marks\":\"$4f24\",\"value\":\"\\\"This surgery takes a huge toll on your body, and the more nutritional reserves a patient has, the better they'll heal"])</script>
1<script>self.__next_f.push([1,". Our patients work closely with a dietitian, and they need to stay moving. Sydney did a great job as my partner in maintaining her health,\\\" Dr. Butts said. \",\"nodeType\":\"text\"}\n4f21:[\"$4f22\"]\n4f1f:{\"data\":\"$4f20\",\"content\":\"$4f21\",\"nodeType\":\"paragraph\"}\n4f26:{}\n4f29:{}\n4f2a:[]\n4f28:{\"data\":\"$4f29\",\"marks\":\"$4f2a\",\"value\":\"For Sydney's family, her transplant marked what they hope will be the end of a lifetime of uncertainty fought off by their deep faith and confidence in her care team. \",\"nodeType\":\"text\"}\n4f27:[\"$4f28\"]\n4f25:{\"data\":\"$4f26\",\"content\":\"$4f27\",\"nodeType\":\"paragraph\"}\n4f2c:{}\n4f2f:{}\n4f30:[]\n4f2e:{\"data\":\"$4f2f\",\"marks\":\"$4f30\",\"value\":\"\\\"As a mom, every part of this process is daunting. There were times where I was completely overwhelmed by the hope of the best-case scenario and the realities of the worst,\\\" Chelle said. \\\"But I've been watching this girl endure the health challenges that she's been dealt since before she was born.\\\" \",\"nodeType\":\"text\"}\n4f2d:[\"$4f2e\"]\n4f2b:{\"data\":\"$4f2c\",\"content\":\"$4f2d\",\"nodeType\":\"paragraph\"}\n4f32:{}\n4f35:{}\n4f36:[]\n4f34:{\"data\":\"$4f35\",\"marks\":\"$4f36\",\"value\":\"Moving into Children's Health â Sydney's wait begins \",\"nodeType\":\"text\"}\n4f33:[\"$4f34\"]\n4f31:{\"data\":\"$4f32\",\"content\":\"$4f33\",\"nodeType\":\"heading-3\"}\n4f38:{}\n4f3b:{}\n4f3c:[]\n4f3a:{\"data\":\"$4f3b\",\"marks\":\"$4f3c\",\"value\":\"On July 5, 2023, Sydney officially moved into Children's Health to be ready for donor organs as soon as they were available.\",\"nodeType\":\"text\"}\n4f39:[\"$4f3a\"]\n4f37:{\"data\":\"$4f38\",\"content\":\"$4f39\",\"nodeType\":\"paragraph\"}\n4f3e:{}\n4f41:{}\n4f42:[]\n4f40:{\"data\":\"$4f41\",\"marks\":\"$4f42\",\"value\":\"While waiting for two new organs, Sydney worked her way through a stack of books. She taught herself how to crochet. She played card games with her nurses. And when she needed a boost, she leaned on her faith.\",\"nodeType\":\"text\"}\n4f3f:[\"$4f40\"]\n4f3d:{\"data\":\"$4f3e\",\"content\":\"$4f3f\",\"nodeType\":\"paragraph\"}\n4f44:{}\n4f47:{}\n4f48:[]\n4f46:{\"data\":\"$4f47\",\"marks\":\"$4f48\",\"value\":\"Finally, at the e"])</script>
1<script>self.__next_f.push([1,"nd of July, the day had come â two organs were available, and they were for her. \\\"My whole family was with me before my surgery. We prayed together, we took pictures and then a few hours later I woke up, and I knew it didn't happen,\\\" Sydney said. \",\"nodeType\":\"text\"}\n4f45:[\"$4f46\"]\n4f43:{\"data\":\"$4f44\",\"content\":\"$4f45\",\"nodeType\":\"paragraph\"}\n4f4a:{}\n4f4b:[]\n4f49:{\"data\":\"$4f4a\",\"content\":\"$4f4b\",\"nodeType\":\"embedded-entry-block\"}\n4f4d:{}\n4f50:{}\n4f51:[]\n4f4f:{\"data\":\"$4f50\",\"marks\":\"$4f51\",\"value\":\"A couple of hours into the surgery, while Dr. Davies was preparing to take Sydney's heart out, the donor heart stopped working. The family was disappointed but not discouraged. Sydney was determined. She had made it through three major heart surgeries before preschool. She would not give up now. \",\"nodeType\":\"text\"}\n4f4e:[\"$4f4f\"]\n4f4c:{\"data\":\"$4f4d\",\"content\":\"$4f4e\",\"nodeType\":\"paragraph\"}\n4f53:{}\n4f56:{}\n4f57:[]\n4f55:{\"data\":\"$4f56\",\"marks\":\"$4f57\",\"value\":\"Almost a month later, another set of organs was ready for Sydney. \",\"nodeType\":\"text\"}\n4f54:[\"$4f55\"]\n4f52:{\"data\":\"$4f53\",\"content\":\"$4f54\",\"nodeType\":\"paragraph\"}\n4f59:{}\n4f5c:{}\n4f5d:[]\n4f5b:{\"data\":\"$4f5c\",\"marks\":\"$4f5d\",\"value\":\"A new technology offers a win-win for patients and providers â less waiting and healthier organs \",\"nodeType\":\"text\"}\n4f5a:[\"$4f5b\"]\n4f58:{\"data\":\"$4f59\",\"content\":\"$4f5a\",\"nodeType\":\"heading-3\"}\n4f5f:{}\n4f62:{}\n4f63:[]\n4f61:{\"data\":\"$4f62\",\"marks\":\"$4f63\",\"value\":\"With the second set of donor organs, Sydneyâs doctors had the opportunity to utilize an innovative piece of technology. They wanted to keep the donated organs as healthy as possible before and during the surgery, ensuring the most effective procedure and the best outcome for Sydney.\",\"nodeType\":\"text\"}\n4f60:[\"$4f61\"]\n4f5e:{\"data\":\"$4f5f\",\"content\":\"$4f60\",\"nodeType\":\"paragraph\"}\n4f65:{\"target\":\"$be0\"}\n4f66:[]\n4f64:{\"data\":\"$4f65\",\"content\":\"$4f66\",\"nodeType\":\"embedded-entry-block\"}\n4f68:{}\n4f6b:{}\n4f6c:[]\n4f6a:{\"data\":\"$4f6b\",\"marks\":\"$4f6c\",\"value\":\"\\\"Every mi"])</script>
1<script>self.__next_f.push([1,"nute an organ spends not working in a body, its cells start to break down. An organ sitting on ice is only viable after about 4 to 6 hours,\\\" Dr. Davies said. \\\"NMP keeps warm oxygen-rich blood pumping through it, mimicking the body's natural conditions.\\\" \",\"nodeType\":\"text\"}\n4f69:[\"$4f6a\"]\n4f67:{\"data\":\"$4f68\",\"content\":\"$4f69\",\"nodeType\":\"paragraph\"}\n4f6e:{}\n4f71:{}\n4f72:[]\n4f70:{\"data\":\"$4f71\",\"marks\":\"$4f72\",\"value\":\"The machine minimizes the shock an organ experiences being moved from one body to another and can double or triple the duration of the organ's viability. This was especially important for her new liver, in case there were any challenges with the heart transplant. \",\"nodeType\":\"text\"}\n4f6f:[\"$4f70\"]\n4f6d:{\"data\":\"$4f6e\",\"content\":\"$4f6f\",\"nodeType\":\"paragraph\"}\n4f74:{}\n4f77:{}\n4f78:[]\n4f76:{\"data\":\"$4f77\",\"marks\":\"$4f78\",\"value\":\"In the operating room, Dr. Davies was glad to see Sydneyâs new heart was doing well with the support of the pump. âThe technology provided a lot more information about the heartâs health as I was operating. It also meant that I had a better understanding of how the heart was going to do when I passed her to the liver team,â Dr. Davies said.\",\"nodeType\":\"text\"}\n4f75:[\"$4f76\"]\n4f73:{\"data\":\"$4f74\",\"content\":\"$4f75\",\"nodeType\":\"paragraph\"}\n4f7a:{}\n4f7d:{}\n4f7e:[]\n4f7c:{\"data\":\"$4f7d\",\"marks\":\"$4f7e\",\"value\":\"After 88 days in the hospital and surgery that started on a Sunday and ended on Monday, Sydney finally had a healthy heart and liver. \\n\\n\\\"It was probably a week before she was awake enough to realize it happened, so I sat with her and held her hand and waited for her to squeeze my hand,\\\" Chelle said. \",\"nodeType\":\"text\"}\n4f7b:[\"$4f7c\"]\n4f79:{\"data\":\"$4f7a\",\"content\":\"$4f7b\",\"nodeType\":\"paragraph\"}\n4f80:{}\n4f83:{}\n4f84:[]\n4f82:{\"data\":\"$4f83\",\"marks\":\"$4f84\",\"value\":\"For Sydney, the most difficult part of the experience was the recovery. She spent the first couple of weeks with bandages wrapped around her body, making it difficult for her to move. Her throat b"])</script>
1<script>self.__next_f.push([1,"urned for days after the ventilator was removed. Sometimes, the nerve pain felt unbearable. When she was finally able to stand, walking became another hurdle she wasn't expecting. \\\"My rehab team and the nurses kept telling me I had to give myself grace. At first, it was hard to celebrate my progress, because walking should be easy,\\\" Sydney said. \",\"nodeType\":\"text\"}\n4f81:[\"$4f82\"]\n4f7f:{\"data\":\"$4f80\",\"content\":\"$4f81\",\"nodeType\":\"paragraph\"}\n4f86:{}\n4f89:{}\n4f8a:[]\n4f88:{\"data\":\"$4f89\",\"marks\":\"$4f8a\",\"value\":\"Improving pediatric transplant medicine and a reboot of âThe Sydney Showâ\",\"nodeType\":\"text\"}\n4f87:[\"$4f88\"]\n4f85:{\"data\":\"$4f86\",\"content\":\"$4f87\",\"nodeType\":\"heading-3\"}\n4f8c:{}\n4f8f:{}\n4f90:[]\n4f8e:{\"data\":\"$4f8f\",\"marks\":\"$4f90\",\"value\":\"A couple years after her transplants, Sydney has noticed a huge difference in how she feels\",\"nodeType\":\"text\"}\n4f8d:[\"$4f8e\"]\n4f8b:{\"data\":\"$4f8c\",\"content\":\"$4f8d\",\"nodeType\":\"paragraph\"}\n4f92:{}\n4f95:{}\n4f96:[]\n4f94:{\"data\":\"$4f95\",\"marks\":\"$4f96\",\"value\":\"and how much energy she has. Last year, she returned to college in-person and continues to pursue her major in communications. \",\"nodeType\":\"text\"}\n4f93:[\"$4f94\"]\n4f91:{\"data\":\"$4f92\",\"content\":\"$4f93\",\"nodeType\":\"paragraph\"}\n4f98:{}\n4f9b:{}\n4f9c:[]\n4f9a:{\"data\":\"$4f9b\",\"marks\":\"$4f9c\",\"value\":\"And her journey is paving the way to improve pediatric transplant medicine, including the time patients wait for organs. Her clinical team recently published a research article documenting Sydneyâs procedure using the innovative pump and long-term health success so other hospitals can learn as they care for future pediatric transplant patients.\",\"nodeType\":\"text\"}\n4f99:[\"$4f9a\"]\n4f97:{\"data\":\"$4f98\",\"content\":\"$4f99\",\"nodeType\":\"paragraph\"}\n4f9e:{}\n4fa1:{}\n4fa2:[]\n4fa0:{\"data\":\"$4fa1\",\"marks\":\"$4fa2\",\"value\":\"âEveryone at Childrenâs Health wants to take on the greatest challenges in transplant medicine. Sydneyâs success will be studied by physicians around the world. With this new pump, we have the opportunity"])</script>
1<script>self.__next_f.push([1," to qualify more organs and take on more complex cases. That means a lot as a physician, but it means even more to the families whose kids are very sick,â Dr. Davies said.\",\"nodeType\":\"text\"}\n4f9f:[\"$4fa0\"]\n4f9d:{\"data\":\"$4f9e\",\"content\":\"$4f9f\",\"nodeType\":\"paragraph\"}\n4fa4:{}\n4fa7:{}\n4fa8:[]\n4fa6:{\"data\":\"$4fa7\",\"marks\":\"$4fa8\",\"value\":\"Philanthropic donations play a key role in pioneering research and breakthroughs in pediatric cancer, heart and liver disease for patients like Sydney. Generous gifts also allow Childrenâs Health to expand its facilities to treat more kids closer to home, especially as we build the new Dallas pediatric campus alongside our colleagues at UT Southwestern.\",\"nodeType\":\"text\"}\n4fa5:[\"$4fa6\"]\n4fa3:{\"data\":\"$4fa4\",\"content\":\"$4fa5\",\"nodeType\":\"paragraph\"}\n4faa:{}\n4fad:{}\n4fae:[]\n4fac:{\"data\":\"$4fad\",\"marks\":\"$4fae\",\"value\":\"âWe provide care that no other hospital in the region can,â Dr. Davies said. âItâs really important to have a bigger hospital to be able to take care of kids â more kids â and do more things for all of those kids.â And that includes making their biggest dreams happen every day.\",\"nodeType\":\"text\"}\n4fab:[\"$4fac\"]\n4fa9:{\"data\":\"$4faa\",\"content\":\"$4fab\",\"nodeType\":\"paragraph\"}\n4fb0:{}\n4fb3:{}\n4fb4:[]\n4fb2:{\"data\":\"$4fb3\",\"marks\":\"$4fb4\",\"value\":\"Philanthropic support helps make the impossible possible for kids and young adults. For Sydney, that means a reboot of her childhood talk show, âThe Sydney Show,â where she invited key members of her care team such as Drs. Butts and Davies as guests.\",\"nodeType\":\"text\"}\n4fb1:[\"$4fb2\"]\n4faf:{\"data\":\"$4fb0\",\"content\":\"$4fb1\",\"nodeType\":\"paragraph\"}\n4fb6:{}\n4fb9:{}\n4fba:[]\n4fb8:{\"data\":\"$4fb9\",\"marks\":\"$4fba\",\"value\":\"They sat on comfy couches and chairs under hot lights as Sydney asked them to recall some of the biggest moments in her journey. And when the interview wrapped, they gave each other high fives.\",\"nodeType\":\"text\"}\n4fb7:[\"$4fb8\"]\n4fb5:{\"data\":\"$4fb6\",\"content\":\"$4fb7\",\"nodeType\":\"paragraph\"}\n4fbc"])</script>
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1<script>self.__next_f.push([1,"tined at the hospital, she worried about missing out on prom, ending high school on a bad note and having a rocky start in college. \",\"nodeType\":\"text\"}\n51ab:[\"$51ac\"]\n51a9:{\"data\":\"$51aa\",\"content\":\"$51ab\",\"nodeType\":\"paragraph\"}\n51b0:{}\n51b3:{}\n51b4:[]\n51b2:{\"data\":\"$51b3\",\"marks\":\"$51b4\",\"value\":\"âI felt like I'd lost hope,â Amulya, 19, said. âIt was definitely tough not being able to smile through all of it.â \",\"nodeType\":\"text\"}\n51b1:[\"$51b2\"]\n51af:{\"data\":\"$51b0\",\"content\":\"$51b1\",\"nodeType\":\"paragraph\"}\n51b6:{}\n51b9:{}\n51ba:[]\n51b8:{\"data\":\"$51b9\",\"marks\":\"$51ba\",\"value\":\"A nerve condition that began with a tingle \",\"nodeType\":\"text\"}\n51b7:[\"$51b8\"]\n51b5:{\"data\":\"$51b6\",\"content\":\"$51b7\",\"nodeType\":\"heading-3\"}\n51bc:{}\n51bf:{}\n51c0:[]\n51be:{\"data\":\"$51bf\",\"marks\":\"$51c0\",\"value\":\"The journey started about two years ago, at the tips of her fingers and toes. First, there was a tingling, numb feeling â the kind that spreads through your leg when it goes numb. Then, a shooting pain up her back. \",\"nodeType\":\"text\"}\n51bd:[\"$51be\"]\n51bb:{\"data\":\"$51bc\",\"content\":\"$51bd\",\"nodeType\":\"paragraph\"}\n51c2:{}\n51c3:[]\n51c1:{\"data\":\"$51c2\",\"content\":\"$51c3\",\"nodeType\":\"embedded-entry-block\"}\n51c5:{}\n51c8:{}\n51c9:[]\n51c7:{\"data\":\"$51c8\",\"marks\":\"$51c9\",\"value\":\"Amulya shrugged it off, but it all persisted for about three days. The next morning, she woke up and her body felt incredibly weak. She was unable to keep any food down, and she could barely stand in the shower. \",\"nodeType\":\"text\"}\n51c6:[\"$51c7\"]\n51c4:{\"data\":\"$51c5\",\"content\":\"$51c6\",\"nodeType\":\"paragraph\"}\n51cb:{}\n51ce:{}\n51cf:[]\n51cd:{\"data\":\"$51ce\",\"marks\":\"$51cf\",\"value\":\"A day later, after a trip to the emergency room and an antibiotics prescription, Amulya woke up to half of her face paralyzed. Her pediatrician rushed her family to Childrenâs Healthâ in Plano, worried it could be a neurological issue. \",\"nodeType\":\"text\"}\n51cc:[\"$51cd\"]\n51ca:{\"data\":\"$51cb\",\"content\":\"$51cc\",\"nodeType\":\"paragraph\"}\n51d1:{}\n51d4:{}\n51d5:[]\n51d3:{\"data\":\"$51d4\",\""])</script>
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1<script>self.__next_f.push([1,"she demanded he call her âDr. Bo Peep,â so they could work together, Liz said. The physician gave her one of his own stethoscopes to complete her outfit. \",\"nodeType\":\"text\"}\n5395:[\"$5396\"]\n5393:{\"data\":\"$5394\",\"content\":\"$5395\",\"nodeType\":\"paragraph\"}\n539a:{}\n539d:{}\n539e:[]\n539c:{\"data\":\"$539d\",\"marks\":\"$539e\",\"value\":\"Her endearing disposition made her a memorable patient for many at Childrenâs Health. \",\"nodeType\":\"text\"}\n539b:[\"$539c\"]\n5399:{\"data\":\"$539a\",\"content\":\"$539b\",\"nodeType\":\"paragraph\"}\n53a0:{}\n53a3:{}\n53a4:[]\n53a2:{\"data\":\"$53a3\",\"marks\":\"$53a4\",\"value\":\"When Paige would come into the hospital, word got around. Physicians and care team members that had previously met her would drop by and check in on her. \",\"nodeType\":\"text\"}\n53a1:[\"$53a2\"]\n539f:{\"data\":\"$53a0\",\"content\":\"$53a1\",\"nodeType\":\"paragraph\"}\n53a6:{}\n53a9:{}\n53aa:[]\n53a8:{\"data\":\"$53a9\",\"marks\":\"$53aa\",\"value\":\"âThat's probably when we realized how much of a community we had built within Children's Health,â Liz said. âWe created a really tight-knit community.â \",\"nodeType\":\"text\"}\n53a7:[\"$53a8\"]\n53a5:{\"data\":\"$53a6\",\"content\":\"$53a7\",\"nodeType\":\"paragraph\"}\n53ac:{}\n53af:{}\n53b0:[]\n53ae:{\"data\":\"$53af\",\"marks\":\"$53b0\",\"value\":\"Whole family care \",\"nodeType\":\"text\"}\n53ad:[\"$53ae\"]\n53ab:{\"data\":\"$53ac\",\"content\":\"$53ad\",\"nodeType\":\"heading-3\"}\n53b2:{}\n53b5:{}\n53b6:[]\n53b4:{\"data\":\"$53b5\",\"marks\":\"$53b6\",\"value\":\"Paigeâs experiences have allowed her confidence to blossom. Sheâs also become more independent and learned to smile through the obstacles. \",\"nodeType\":\"text\"}\n53b3:[\"$53b4\"]\n53b1:{\"data\":\"$53b2\",\"content\":\"$53b3\",\"nodeType\":\"paragraph\"}\n53b8:{}\n53b9:[]\n53b7:{\"data\":\"$53b8\",\"content\":\"$53b9\",\"nodeType\":\"embedded-entry-block\"}\n53bb:{}\n53be:{}\n53bf:[]\n53bd:{\"data\":\"$53be\",\"marks\":\"$53bf\",\"value\":\"When she grows up, she wants to be a paramedic or a doctor âat the balloon hospital,â Paige said. \",\"nodeType\":\"text\"}\n53bc:[\"$53bd\"]\n53ba:{\"data\":\"$53bb\",\"content\":\"$53bc\",\"nodeType\":\"paragraph\"}\n53c1:{}\n53c4:{}\n53c5:["])</script>
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1<script>self.__next_f.push([1,"omebody that had so many dreams and aspirations, and now those dreams are different and she's different ⦠But also, we get to celebrate who she is now.â \",\"nodeType\":\"text\"}\n54ce:[\"$54cf\"]\n54cc:{\"data\":\"$54cd\",\"content\":\"$54ce\",\"nodeType\":\"paragraph\"}\n54d3:{}\n54d6:{}\n54d7:[]\n54d5:{\"data\":\"$54d6\",\"marks\":\"$54d7\",\"value\":\"A plea to prove them wrong \",\"nodeType\":\"text\"}\n54d4:[\"$54d5\"]\n54d2:{\"data\":\"$54d3\",\"content\":\"$54d4\",\"nodeType\":\"heading-3\"}\n54d9:{}\n54dc:{}\n54dd:[]\n54db:{\"data\":\"$54dc\",\"marks\":\"$54dd\",\"value\":\"Anabelle had been complaining about a headache for a while, but it was the first day of school and she was excited to go back. \",\"nodeType\":\"text\"}\n54da:[\"$54db\"]\n54d8:{\"data\":\"$54d9\",\"content\":\"$54da\",\"nodeType\":\"paragraph\"}\n54df:{}\n54e2:{}\n54e3:[]\n54e1:{\"data\":\"$54e2\",\"marks\":\"$54e3\",\"value\":\"Later that evening, while having dinner, Anabelle started kicking the table. Her dad asked her to stop twice, but his tone changed the second time. \",\"nodeType\":\"text\"}\n54e0:[\"$54e1\"]\n54de:{\"data\":\"$54df\",\"content\":\"$54e0\",\"nodeType\":\"paragraph\"}\n54e5:{}\n54e8:{}\n54e9:[]\n54e7:{\"data\":\"$54e8\",\"marks\":\"$54e9\",\"value\":\"Kylee looked over from playing with Anabelleâs little brother on the floor, hearing the panic in his voice. \",\"nodeType\":\"text\"}\n54e6:[\"$54e7\"]\n54e4:{\"data\":\"$54e5\",\"content\":\"$54e6\",\"nodeType\":\"paragraph\"}\n54eb:{}\n54ee:{}\n54ef:[]\n54ed:{\"data\":\"$54ee\",\"marks\":\"$54ef\",\"value\":\"Anabelle was experiencing a seizure. \",\"nodeType\":\"text\"}\n54ec:[\"$54ed\"]\n54ea:{\"data\":\"$54eb\",\"content\":\"$54ec\",\"nodeType\":\"paragraph\"}\n54f1:{}\n54f4:{}\n54f5:[]\n54f3:{\"data\":\"$54f4\",\"marks\":\"$54f5\",\"value\":\"Her mom immediately called 911 while her dad took her 1-year-old brother out of the room and ran to their neighborâs house for help. \",\"nodeType\":\"text\"}\n54f2:[\"$54f3\"]\n54f0:{\"data\":\"$54f1\",\"content\":\"$54f2\",\"nodeType\":\"paragraph\"}\n54f7:{}\n54fa:{}\n54fb:[]\n54f9:{\"data\":\"$54fa\",\"marks\":\"$54fb\",\"value\":\"âThatâs when her heart stopped,â Kylee said. \",\"nodeType\":\"text\"}\n54f8:[\"$54f9\"]\n54f6:{\"data\":\"$54f7\",\"content\":\"$54f8"])</script>
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1<script>self.__next_f.push([1,"rows up. \",\"nodeType\":\"text\"}\n5638:[\"$5639\"]\n5636:{\"data\":\"$5637\",\"content\":\"$5638\",\"nodeType\":\"paragraph\"}\n563d:{}\n5640:{}\n5641:[]\n563f:{\"data\":\"$5640\",\"marks\":\"$5641\",\"value\":\"One thing they share is an appreciation for the nurses and doctors at Children's Healthâ , and a deep compassion for other kids and teens dealing with illnesses. Aiden, who was born with kidney disease, receives care from the nephrology and urology teams. Abbey was diagnosed with \",\"nodeType\":\"text\"}\n5643:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/hyperthyroidism\"}\n5646:{}\n5647:[]\n5645:{\"data\":\"$5646\",\"marks\":\"$5647\",\"value\":\"hyperthyroidism\",\"nodeType\":\"text\"}\n5644:[\"$5645\"]\n5642:{\"data\":\"$5643\",\"content\":\"$5644\",\"nodeType\":\"hyperlink\"}\n5649:{}\n564a:[]\n5648:{\"data\":\"$5649\",\"marks\":\"$564a\",\"value\":\" and \",\"nodeType\":\"text\"}\n564c:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/migraines\"}\n564f:{}\n5650:[]\n564e:{\"data\":\"$564f\",\"marks\":\"$5650\",\"value\":\"migraines\",\"nodeType\":\"text\"}\n564d:[\"$564e\"]\n564b:{\"data\":\"$564c\",\"content\":\"$564d\",\"nodeType\":\"hyperlink\"}\n5652:{}\n5653:[]\n5651:{\"data\":\"$5652\",\"marks\":\"$5653\",\"value\":\" when she was 10 and has been receiving care from the \",\"nodeType\":\"text\"}\n5655:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/neurology\"}\n5658:{}\n5659:[]\n5657:{\"data\":\"$5658\",\"marks\":\"$5659\",\"value\":\"neurology\",\"nodeType\":\"text\"}\n5656:[\"$5657\"]\n5654:{\"data\":\"$5655\",\"content\":\"$5656\",\"nodeType\":\"hyperlink\"}\n565b:{}\n565c:[]\n565a:{\"data\":\"$565b\",\"marks\":\"$565c\",\"value\":\" team ever since. \",\"nodeType\":\"text\"}\n563e:[\"$563f\",\"$5642\",\"$5648\",\"$564b\",\"$5651\",\"$5654\",\"$565a\"]\n563c:{\"data\":\"$563d\",\"content\":\"$563e\",\"nodeType\":\"paragraph\"}\n565e:{}\n5661:{}\n5662:[]\n5660:{\"data\":\"$5661\",\"marks\":\"$5662\",\"value\":\"âWe want other kids to know that when you come to Childrenâs Health, itâs okay if you feel scared. I was really scared to visit the hospital, but now I love seeing my nurses and the Child Life team,â Abbey said. \",\"nodeType\":\"text\"}\n565f:[\"$5660\""])</script>
1<script>self.__next_f.push([1,"]\n565d:{\"data\":\"$565e\",\"content\":\"$565f\",\"nodeType\":\"paragraph\"}\n5664:{}\n5667:{}\n5668:[]\n5666:{\"data\":\"$5667\",\"marks\":\"$5668\",\"value\":\"Aidenâs gratitude is inspired by the comfort he found in knowing there are other kids with his diagnosis and other kids with their own unique health conditions. \",\"nodeType\":\"text\"}\n5665:[\"$5666\"]\n5663:{\"data\":\"$5664\",\"content\":\"$5665\",\"nodeType\":\"paragraph\"}\n566a:{\"target\":\"$c34\"}\n566b:[]\n5669:{\"data\":\"$566a\",\"content\":\"$566b\",\"nodeType\":\"embedded-entry-block\"}\n566d:{}\n5670:{}\n5671:[]\n566f:{\"data\":\"$5670\",\"marks\":\"$5671\",\"value\":\"Aidenâs care team stays by his side from day one \",\"nodeType\":\"text\"}\n566e:[\"$566f\"]\n566c:{\"data\":\"$566d\",\"content\":\"$566e\",\"nodeType\":\"heading-3\"}\n5673:{}\n5676:{}\n5677:[]\n5675:{\"data\":\"$5676\",\"marks\":\"$5677\",\"value\":\"Before he was born, doctors at a local hospital told his parents that baby Aidenâs kidneys werenât working right. As the doctors monitored his health in utero, they eventually decided his condition was worsening and they needed to induce labor. \",\"nodeType\":\"text\"}\n5674:[\"$5675\"]\n5672:{\"data\":\"$5673\",\"content\":\"$5674\",\"nodeType\":\"paragraph\"}\n5679:{}\n567c:{}\n567d:[]\n567b:{\"data\":\"$567c\",\"marks\":\"$567d\",\"value\":\"A couple of days later, their mom Darcie, Brett and baby Aiden met Jyothsna Gattineni, M.D., Childrenâs Health pediatric nephrologist. \",\"nodeType\":\"text\"}\n567a:[\"$567b\"]\n5678:{\"data\":\"$5679\",\"content\":\"$567a\",\"nodeType\":\"paragraph\"}\n567f:{}\n5680:[]\n567e:{\"data\":\"$567f\",\"content\":\"$5680\",\"nodeType\":\"embedded-entry-block\"}\n5682:{}\n5685:{}\n5686:[]\n5684:{\"data\":\"$5685\",\"marks\":\"$5686\",\"value\":\"Dr. Gattineni gently explained that Aiden had \",\"nodeType\":\"text\"}\n5688:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/hydronephrosis\"}\n568b:{}\n568c:[]\n568a:{\"data\":\"$568b\",\"marks\":\"$568c\",\"value\":\"hydronephrosis\",\"nodeType\":\"text\"}\n5689:[\"$568a\"]\n5687:{\"data\":\"$5688\",\"content\":\"$5689\",\"nodeType\":\"hyperlink\"}\n568e:{}\n568f:[]\n568d:{\"data\":\"$568e\",\"marks\":\"$568f\",\"value\":\", a swelling in the urinary tract that happens whe"])</script>
1<script>self.__next_f.push([1,"n one or both of the tubes carrying urine from Aiden's kidneys to his bladder became blocked. With close monitoring and medication, his clinical team expected the condition would fix itself over time. \",\"nodeType\":\"text\"}\n5683:[\"$5684\",\"$5687\",\"$568d\"]\n5681:{\"data\":\"$5682\",\"content\":\"$5683\",\"nodeType\":\"paragraph\"}\n5691:{}\n5694:{}\n5695:[]\n5693:{\"data\":\"$5694\",\"marks\":\"$5695\",\"value\":\"But Aidenâs case was severe. And at seven months old, he had his first surgery. \",\"nodeType\":\"text\"}\n5692:[\"$5693\"]\n5690:{\"data\":\"$5691\",\"content\":\"$5692\",\"nodeType\":\"paragraph\"}\n5697:{}\n569a:{}\n569b:[]\n5699:{\"data\":\"$569a\",\"marks\":\"$569b\",\"value\":\"The family hoped Aidenâs surgery would be the beginning of the end of his kidney care. While it did fix the reflux, unfortunately, his kidneys had been so strained while he was in utero and during those first few months, that Aiden now had advanced \",\"nodeType\":\"text\"}\n569d:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/chronic-kidney-disease\"}\n56a0:{}\n56a1:[]\n569f:{\"data\":\"$56a0\",\"marks\":\"$56a1\",\"value\":\"kidney disease\",\"nodeType\":\"text\"}\n569e:[\"$569f\"]\n569c:{\"data\":\"$569d\",\"content\":\"$569e\",\"nodeType\":\"hyperlink\"}\n56a3:{}\n56a4:[]\n56a2:{\"data\":\"$56a3\",\"marks\":\"$56a4\",\"value\":\". \",\"nodeType\":\"text\"}\n5698:[\"$5699\",\"$569c\",\"$56a2\"]\n5696:{\"data\":\"$5697\",\"content\":\"$5698\",\"nodeType\":\"paragraph\"}\n56a6:{}\n56a9:{}\n56aa:[]\n56a8:{\"data\":\"$56a9\",\"marks\":\"$56aa\",\"value\":\"That means that Aidenâs kidneys werenât able to properly remove waste from the blood, create the hormones needed to produce new red blood cells, or produce vitamin D like theyâre supposed to. \",\"nodeType\":\"text\"}\n56a7:[\"$56a8\"]\n56a5:{\"data\":\"$56a6\",\"content\":\"$56a7\",\"nodeType\":\"paragraph\"}\n56ac:{}\n56af:{}\n56b0:[]\n56ae:{\"data\":\"$56af\",\"marks\":\"$56b0\",\"value\":\"Altogether, these presented a number of health risks for Aiden â including weight loss, anemia and high blood pressure. So for the next few years Dr. Gattineni and his urologist prioritized minimizing Aidenâs kidney infections and helping him gain "])</script>
1<script>self.__next_f.push([1,"enough weight. \",\"nodeType\":\"text\"}\n56ad:[\"$56ae\"]\n56ab:{\"data\":\"$56ac\",\"content\":\"$56ad\",\"nodeType\":\"paragraph\"}\n56b2:{}\n56b5:{}\n56b6:[]\n56b4:{\"data\":\"$56b5\",\"marks\":\"$56b6\",\"value\":\"âWhen he turned five, his doctors were so concerned about his weight they decided he would need a feeding tube,â Darcie said. \",\"nodeType\":\"text\"}\n56b3:[\"$56b4\"]\n56b1:{\"data\":\"$56b2\",\"content\":\"$56b3\",\"nodeType\":\"paragraph\"}\n56b8:{}\n56bb:{}\n56bc:[]\n56ba:{\"data\":\"$56bb\",\"marks\":\"$56bc\",\"value\":\"The surgery proved to be a pivotal point for Aidenâs care â and his relationship with Childrenâs Health. \",\"nodeType\":\"text\"}\n56b9:[\"$56ba\"]\n56b7:{\"data\":\"$56b8\",\"content\":\"$56b9\",\"nodeType\":\"paragraph\"}\n56be:{}\n56c1:{}\n56c2:[]\n56c0:{\"data\":\"$56c1\",\"marks\":\"$56c2\",\"value\":\"âWhen I got my feeding tube I was scared, and it was hard for me to sleep. I was in the hospital for awhile, and I couldnât get out of bed. Then my child life specialist started bringing me stuff to do,â Aiden said. âIt made me feel really happy that they cared about me and wanted me to have fun there. â \",\"nodeType\":\"text\"}\n56bf:[\"$56c0\"]\n56bd:{\"data\":\"$56be\",\"content\":\"$56bf\",\"nodeType\":\"paragraph\"}\n56c4:{}\n56c7:{}\n56c8:[]\n56c6:{\"data\":\"$56c7\",\"marks\":\"$56c8\",\"value\":\"Child life specialists help patients understand their diagnoses and treatment. Child Life extends its offerings to patient families as well, providing emotional support and helping them cope with what they are experiencing. These services, which make life easier for kids and families experiencing the unthinkable, come at no-cost to patient families and rely on philanthropic support. \",\"nodeType\":\"text\"}\n56c5:[\"$56c6\"]\n56c3:{\"data\":\"$56c4\",\"content\":\"$56c5\",\"nodeType\":\"paragraph\"}\n56ca:{}\n56cd:{}\n56ce:[]\n56cc:{\"data\":\"$56cd\",\"marks\":\"$56ce\",\"value\":\"Once he was able to get out of bed, Aiden headed straight for the playroom. Seeing her sonâs spirit brighten and his health slowly be restored was the relief that Darcie had been waiting for.\",\"nodeType\":\"text\"}\n56cb:[\"$56cc\"]\n56c9:{\"data\":\"$5"])</script>
1<script>self.__next_f.push([1,"6ca\",\"content\":\"$56cb\",\"nodeType\":\"paragraph\"}\n56d0:{}\n56d3:{}\n56d4:[]\n56d2:{\"data\":\"$56d3\",\"marks\":\"$56d4\",\"value\":\"âWatching Aiden be in so much pain after surgery was really difficult. But then when you start to see them get better, gaining weight and growing, you know you made the right choice,â Darcie said. âWhen he became more focused on playing than on being sick, I was relieved.â \",\"nodeType\":\"text\"}\n56d1:[\"$56d2\"]\n56cf:{\"data\":\"$56d0\",\"content\":\"$56d1\",\"nodeType\":\"paragraph\"}\n56d6:{}\n56d9:{}\n56da:[]\n56d8:{\"data\":\"$56d9\",\"marks\":\"$56da\",\"value\":\"After five years of living with a feeding tube, Aidenâs doctors gave him the good news that he didnât need it anymore. But that didnât mean he was out of the woods yet. \",\"nodeType\":\"text\"}\n56d7:[\"$56d8\"]\n56d5:{\"data\":\"$56d6\",\"content\":\"$56d7\",\"nodeType\":\"paragraph\"}\n56dc:{}\n56df:{}\n56e0:[]\n56de:{\"data\":\"$56df\",\"marks\":\"$56e0\",\"value\":\"Dr. Gattineni is keeping a close eye on Aiden's kidney function because sometimes when kids with kidney problems hit growth spurts, their kidney function starts to decline. For now, Aiden is doing well. Heâs playing is ukulele and enjoying his friends. And his family knows that whatever kind of care Aiden needs, his nephrology and \",\"nodeType\":\"text\"}\n56e2:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/urology\"}\n56e5:{}\n56e6:[]\n56e4:{\"data\":\"$56e5\",\"marks\":\"$56e6\",\"value\":\"urology\",\"nodeType\":\"text\"}\n56e3:[\"$56e4\"]\n56e1:{\"data\":\"$56e2\",\"content\":\"$56e3\",\"nodeType\":\"hyperlink\"}\n56e8:{}\n56e9:[]\n56e7:{\"data\":\"$56e8\",\"marks\":\"$56e9\",\"value\":\" teams will be ready. \",\"nodeType\":\"text\"}\n56dd:[\"$56de\",\"$56e1\",\"$56e7\"]\n56db:{\"data\":\"$56dc\",\"content\":\"$56dd\",\"nodeType\":\"paragraph\"}\n56eb:{}\n56ee:{}\n56ef:[]\n56ed:{\"data\":\"$56ee\",\"marks\":\"$56ef\",\"value\":\"Abbey meets her own care team who turns her fears into confidence \",\"nodeType\":\"text\"}\n56ec:[\"$56ed\"]\n56ea:{\"data\":\"$56eb\",\"content\":\"$56ec\",\"nodeType\":\"heading-3\"}\n56f1:{}\n56f4:{}\n56f5:[]\n56f3:{\"data\":\"$56f4\",\"marks\":\"$56f5\",\"value\":\"While D"])</script>
1<script>self.__next_f.push([1,"arcie and Brett were focused on Aidenâs advancing kidney decline, older sister Abbey couldnât stop shaking. \",\"nodeType\":\"text\"}\n56f2:[\"$56f3\"]\n56f0:{\"data\":\"$56f1\",\"content\":\"$56f2\",\"nodeType\":\"paragraph\"}\n56f7:{}\n56fa:{}\n56fb:[]\n56f9:{\"data\":\"$56fa\",\"marks\":\"$56fb\",\"value\":\"âIt started in second grade. I started shaking, and it was hard to write. I'm a very organized person, and so I was always feeling stressed when I was shaking uncontrollably,â Abbey said. \",\"nodeType\":\"text\"}\n56f8:[\"$56f9\"]\n56f6:{\"data\":\"$56f7\",\"content\":\"$56f8\",\"nodeType\":\"paragraph\"}\n56fd:{}\n56fe:[]\n56fc:{\"data\":\"$56fd\",\"content\":\"$56fe\",\"nodeType\":\"embedded-entry-block\"}\n5700:{}\n5703:{}\n5704:[]\n5702:{\"data\":\"$5703\",\"marks\":\"$5704\",\"value\":\"Then came the headaches, which grew to be unbearable. \",\"nodeType\":\"text\"}\n5701:[\"$5702\"]\n56ff:{\"data\":\"$5700\",\"content\":\"$5701\",\"nodeType\":\"paragraph\"}\n5706:{}\n5709:{}\n570a:[]\n5708:{\"data\":\"$5709\",\"marks\":\"$570a\",\"value\":\"Soon the family was on their way to Childrenâs Health and hoping that doctors could help Abbey. And even though sheâd been to the hospital with her brother, Abbey admits, she was nervous. \",\"nodeType\":\"text\"}\n5707:[\"$5708\"]\n5705:{\"data\":\"$5706\",\"content\":\"$5707\",\"nodeType\":\"paragraph\"}\n570c:{}\n570f:{}\n5710:[]\n570e:{\"data\":\"$570f\",\"marks\":\"$5710\",\"value\":\"âI was very scared about going to the doctor. When I heard hyperthyroidism for the first time, it was shocking because it was hard to know that something was wrong. But everyone at Childrenâs Health is always positive and they make sure youâre heard,â Abbey said. \",\"nodeType\":\"text\"}\n570d:[\"$570e\"]\n570b:{\"data\":\"$570c\",\"content\":\"$570d\",\"nodeType\":\"paragraph\"}\n5712:{}\n5715:{}\n5716:[]\n5714:{\"data\":\"$5715\",\"marks\":\"$5716\",\"value\":\"Abbey learned that her shaking was due to an overactive thyroid gland, which produces hormones to control our metabolism. Sometimes her body made too many of the hormones. Sometimes it made too few. \",\"nodeType\":\"text\"}\n5713:[\"$5714\"]\n5711:{\"data\":\"$5712\",\"content\":\"$5713\",\"nodeType\":\"parag"])</script>
1<script>self.__next_f.push([1,"raph\"}\n5718:{}\n571b:{}\n571c:[]\n571a:{\"data\":\"$571b\",\"marks\":\"$571c\",\"value\":\"Soon, Abbey started medication to help regulate her thyroid and manage her migraines. Eric Remster, M.D., a pediatric neurologist at Childrenâs Health, has since become one of Abbeyâs greatest allies. \",\"nodeType\":\"text\"}\n5719:[\"$571a\"]\n5717:{\"data\":\"$5718\",\"content\":\"$5719\",\"nodeType\":\"paragraph\"}\n571e:{}\n5721:{}\n5722:[]\n5720:{\"data\":\"$5721\",\"marks\":\"$5722\",\"value\":\"âDr. Remster always focuses on how Iâm feeling. I really appreciate how he connects with me. Getting my medicine was a relief,â Abbey said. âNow I can go to Childrenâs Health and know that they want to do whatever they can to make us feel better.â \",\"nodeType\":\"text\"}\n571f:[\"$5720\"]\n571d:{\"data\":\"$571e\",\"content\":\"$571f\",\"nodeType\":\"paragraph\"}\n5724:{}\n5727:{}\n5728:[]\n5726:{\"data\":\"$5727\",\"marks\":\"$5728\",\"value\":\"Darcie also was relieved. \",\"nodeType\":\"text\"}\n5725:[\"$5726\"]\n5723:{\"data\":\"$5724\",\"content\":\"$5725\",\"nodeType\":\"paragraph\"}\n572a:{\"target\":\"$c28\"}\n572b:[]\n5729:{\"data\":\"$572a\",\"content\":\"$572b\",\"nodeType\":\"embedded-entry-block\"}\n572d:{}\n5730:{}\n5731:[]\n572f:{\"data\":\"$5730\",\"marks\":\"$5731\",\"value\":\"Finding their groove as a Childrenâs Health family \",\"nodeType\":\"text\"}\n572e:[\"$572f\"]\n572c:{\"data\":\"$572d\",\"content\":\"$572e\",\"nodeType\":\"heading-3\"}\n5733:{}\n5736:{}\n5737:[]\n5735:{\"data\":\"$5736\",\"marks\":\"$5737\",\"value\":\"From the beginning, one thing Darcie focused on was ensuring their trips to the hospital were as stress-free and easy as possible. She didnât want Abbey and Aiden to feel like they did anything wrong to cause their medical conditions. \",\"nodeType\":\"text\"}\n5734:[\"$5735\"]\n5732:{\"data\":\"$5733\",\"content\":\"$5734\",\"nodeType\":\"paragraph\"}\n5739:{}\n573c:{}\n573d:[]\n573b:{\"data\":\"$573c\",\"marks\":\"$573d\",\"value\":\"So, she prioritized doing something fun on the day of a visit. That could mean a visit to a park, a toy shop or a restaurant after their visit. \",\"nodeType\":\"text\"}\n573a:[\"$573b\"]\n5738:{\"data\":\"$5739\",\"content\":\"$573a\",\"nodeType\":\"paragraph"])</script>
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1<script>self.__next_f.push([1,"ved from Childrenâs Health.â \",\"nodeType\":\"text\"}\n584c:[\"$584d\"]\n584a:{\"data\":\"$584b\",\"content\":\"$584c\",\"nodeType\":\"paragraph\"}\n5851:{}\n5854:{}\n5855:[]\n5853:{\"data\":\"$5854\",\"marks\":\"$5855\",\"value\":\"Azai was not Tara and Danielâs first baby. (Her older sister, Maia, was born four years earlier.) The couple entered their second run at parenthood with an idea of what to expect. \",\"nodeType\":\"text\"}\n5852:[\"$5853\"]\n5850:{\"data\":\"$5851\",\"content\":\"$5852\",\"nodeType\":\"paragraph\"}\n5857:{}\n5858:[]\n5856:{\"data\":\"$5857\",\"content\":\"$5858\",\"nodeType\":\"embedded-entry-block\"}\n585a:{}\n585d:{}\n585e:[]\n585c:{\"data\":\"$585d\",\"marks\":\"$585e\",\"value\":\"They understood sleep and feeding. They knew about all the appointments and had most of the baby gear (and knew how it worked). \",\"nodeType\":\"text\"}\n585b:[\"$585c\"]\n5859:{\"data\":\"$585a\",\"content\":\"$585b\",\"nodeType\":\"paragraph\"}\n5860:{}\n5863:{}\n5864:[]\n5862:{\"data\":\"$5863\",\"marks\":\"$5864\",\"value\":\"A health concern for their baby was not on their radar. \",\"nodeType\":\"text\"}\n5861:[\"$5862\"]\n585f:{\"data\":\"$5860\",\"content\":\"$5861\",\"nodeType\":\"paragraph\"}\n5866:{}\n5869:{}\n586a:[]\n5868:{\"data\":\"$5869\",\"marks\":\"$586a\",\"value\":\"So, when a sonographer technician took extra time during the 20-week anatomy scan and her obstetrician referred them to Childrenâs Health and the specialists from UT Southwestern, Tara was alarmed. \",\"nodeType\":\"text\"}\n5867:[\"$5868\"]\n5865:{\"data\":\"$5866\",\"content\":\"$5867\",\"nodeType\":\"paragraph\"}\n586c:{}\n586f:{}\n5870:[]\n586e:{\"data\":\"$586f\",\"marks\":\"$5870\",\"value\":\"âThere were a lot of hard nights of what ifs, but the care team at Childrenâs Health calmed us down,â Tara said. âThe prenatal care that I received made me more confident that this team was the best to care for Azai once she was born.â \",\"nodeType\":\"text\"}\n586d:[\"$586e\"]\n586b:{\"data\":\"$586c\",\"content\":\"$586d\",\"nodeType\":\"paragraph\"}\n5872:{}\n5875:{}\n5876:[]\n5874:{\"data\":\"$5875\",\"marks\":\"$5876\",\"value\":\"Catherine Ikemba, M.D., a UT Southwestern, pediatric cardiologist in The Heart Center at Children"])</script>
1<script>self.__next_f.push([1,"âs Health, confirmed through a fetal echocardiogram that Azai had tetralogy of Fallot â a combination of four heart defects that causes oxygen-poor blood to flow out of the heart and into the rest of the body. The defect usually requires heart repair surgery during the first year of life. \",\"nodeType\":\"text\"}\n5873:[\"$5874\"]\n5871:{\"data\":\"$5872\",\"content\":\"$5873\",\"nodeType\":\"paragraph\"}\n5878:{}\n587b:{}\n587c:[]\n587a:{\"data\":\"$587b\",\"marks\":\"$587c\",\"value\":\"During pregnancy, Tara and Daniel had several appointments with Dr. Ikemba and Ryan Davies, M.D., a UT Southwestern pediatric cardiothoracic surgeon in The Heart Center at Childrenâs Health, to monitor Azaiâs heart as it grew and put a plan together for her treatment once she was born. \",\"nodeType\":\"text\"}\n587e:{}\n587f:[]\n587d:{\"data\":\"$587e\",\"marks\":\"$587f\",\"value\":\"The team also taught Tara and Daniel about Azaiâs specific heart condition and how to care for her. \",\"nodeType\":\"text\"}\n5879:[\"$587a\",\"$587d\"]\n5877:{\"data\":\"$5878\",\"content\":\"$5879\",\"nodeType\":\"paragraph\"}\n5881:{}\n5884:{}\n5885:[]\n5883:{\"data\":\"$5884\",\"marks\":\"$5885\",\"value\":\"Since Taraâs pregnancy, The Heart Center has also expanded its care for expecting mothers to include mental health counseling and screening for anxiety, depression and stress at both the Dallas and Plano campuses. \",\"nodeType\":\"text\"}\n5882:[\"$5883\"]\n5880:{\"data\":\"$5881\",\"content\":\"$5882\",\"nodeType\":\"paragraph\"}\n5887:{}\n588a:{}\n588b:[]\n5889:{\"data\":\"$588a\",\"marks\":\"$588b\",\"value\":\"âA diagnosis like this puts families through a lot,â said Dr. Ikemba, Director of the Fetal Heart Program at Childrenâs Health. âPregnancy is stressful, even if the child doesnât have a heart condition, and the most common complication of pregnancy is mood disorders. Iâm proud that these resources now exist and are accessible for families. Itâs part of our responsibility as we care for the patient and the whole family.â \",\"nodeType\":\"text\"}\n5888:[\"$5889\"]\n5886:{\"data\":\"$5887\",\"content\":\"$5888\",\"nodeType\":\"paragraph\"}\n5834:[\"$58"])</script>
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1<script>self.__next_f.push([1,"\"$58f7\",\"value\":\"At five weeks old, Azai had open heart surgery to close the hole in her heart between the pumping chambers and widen the pulmonary valve to allow for better blood flow from the heart to the lungs.\",\"nodeType\":\"text\"}\n58f4:[\"$58f5\"]\n58f2:{\"data\":\"$58f3\",\"content\":\"$58f4\",\"nodeType\":\"paragraph\"}\n58f9:{}\n58fa:[]\n58f8:{\"data\":\"$58f9\",\"content\":\"$58fa\",\"nodeType\":\"embedded-entry-block\"}\n58fc:{}\n58ff:{}\n5900:[]\n58fe:{\"data\":\"$58ff\",\"marks\":\"$5900\",\"value\":\"âOur ability to perform these kinds of surgeries now is amazing,â said Dr. Davies, also a professor at UT Southwestern Medical Center. âItâs an extraordinary team effort where weâre all surrounding one tiny baby to close a hole thatâs a centimeter large â at most â and it takes all these people to do it well.â \",\"nodeType\":\"text\"}\n58fd:[\"$58fe\"]\n58fb:{\"data\":\"$58fc\",\"content\":\"$58fd\",\"nodeType\":\"paragraph\"}\n5902:{}\n5905:{}\n5906:[]\n5904:{\"data\":\"$5905\",\"marks\":\"$5906\",\"value\":\"The six-hour surgery led by Dr. Davies was a success and Azai was discharged from the hospital five days later. \",\"nodeType\":\"text\"}\n5903:[\"$5904\"]\n5901:{\"data\":\"$5902\",\"content\":\"$5903\",\"nodeType\":\"paragraph\"}\n5908:{}\n590b:{}\n590c:[]\n590a:{\"data\":\"$590b\",\"marks\":\"$590c\",\"value\":\"Tara and Daniel did a victory dance as they left the hospital, where they lived for the first month of Azaiâs life. \",\"nodeType\":\"text\"}\n5909:[\"$590a\"]\n5907:{\"data\":\"$5908\",\"content\":\"$5909\",\"nodeType\":\"paragraph\"}\n590e:{}\n5911:{}\n5912:[]\n5910:{\"data\":\"$5911\",\"marks\":\"$5912\",\"value\":\"And while they were giddy to begin their life as a family of four, they also knew this was the start of an ongoing relationship with Childrenâs Health and the team who watched over Azai, changed her diapers and rocked her to sleep during the first month of her life. \",\"nodeType\":\"text\"}\n590f:[\"$5910\"]\n590d:{\"data\":\"$590e\",\"content\":\"$590f\",\"nodeType\":\"paragraph\"}\n5914:{}\n5917:{}\n5918:[]\n5916:{\"data\":\"$5917\",\"marks\":\"$5918\",\"value\":\"Now 3 years old, Azai receives annual check-ups from the team. She love"])</script>
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1<script>self.__next_f.push([1,"can always convince her favorite physical therapists, Ashley and Justin, to play princesses.\",\"nodeType\":\"text\"}\n5a29:[\"$5a2a\"]\n5a27:{\"data\":\"$5a28\",\"content\":\"$5a29\",\"nodeType\":\"paragraph\"}\n5a2e:{}\n5a2f:[]\n5a2d:{\"data\":\"$5a2e\",\"content\":\"$5a2f\",\"nodeType\":\"embedded-entry-block\"}\n5a31:{}\n5a34:{}\n5a35:[]\n5a33:{\"data\":\"$5a34\",\"marks\":\"$5a35\",\"value\":\"âI love having a girl. I picked her name before she was born, and it turned out to fit her perfectly. Sheâs always been naturally calm and peaceful, but every once in a while, she becomes a firecracker and thatâs fun to see,â Serentiy's mom, Deanna, said.\",\"nodeType\":\"text\"}\n5a32:[\"$5a33\"]\n5a30:{\"data\":\"$5a31\",\"content\":\"$5a32\",\"nodeType\":\"paragraph\"}\n5a37:{}\n5a3a:{}\n5a3b:[]\n5a39:{\"data\":\"$5a3a\",\"marks\":\"$5a3b\",\"value\":\"Growing up in a small Texas town, Serenityâs life was typical until one day when she complained to her mom, Deanna, that her head hurt. Deanna wasnât too worried â until a couple of hours later, when Serenity told her mom she couldnât move her neck or her left arm.\",\"nodeType\":\"text\"}\n5a38:[\"$5a39\"]\n5a36:{\"data\":\"$5a37\",\"content\":\"$5a38\",\"nodeType\":\"paragraph\"}\n5a3d:{}\n5a40:{}\n5a41:[]\n5a3f:{\"data\":\"$5a40\",\"marks\":\"$5a41\",\"value\":\"At her local hospital, doctors were puzzled by her symptoms, so Deanna and Serenity flew hundreds of miles to Childrenâs Health, where physicians began to unpack her symptoms and slow the paralysis on the left side of her body.\",\"nodeType\":\"text\"}\n5a3e:[\"$5a3f\"]\n5a3c:{\"data\":\"$5a3d\",\"content\":\"$5a3e\",\"nodeType\":\"paragraph\"}\n5a43:{}\n5a46:{}\n5a47:[]\n5a45:{\"data\":\"$5a46\",\"marks\":\"$5a47\",\"value\":\"âWe got to Childrenâs Health early in the morning, and right away she was in the intensive care unit with maybe 15 people all around her. They could see that she wasnât able to move, and her face had started to droop a bit like she had a stroke,â Deanna said. âIt was overwhelming, but I was also relieved that people were taking her condition seriously.â\",\"nodeType\":\"text\"}\n5a44:[\"$5a45\"]\n5a42:{\"data\":\"$5a43\",\""])</script>
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1<script>self.__next_f.push([1,":{\"data\":\"$5b66\",\"content\":\"$5b67\",\"nodeType\":\"embedded-entry-block\"}\n5b69:{}\n5b6c:{}\n5b6d:[]\n5b6b:{\"data\":\"$5b6c\",\"marks\":\"$5b6d\",\"value\":\"After he noticed a discomfort in his chest, his family decided to take him to the hospital. An X-ray and CT scan revealed Dylan had a large mass the size of a fist growing along his chest wall.\",\"nodeType\":\"text\"}\n5b6a:[\"$5b6b\"]\n5b68:{\"data\":\"$5b69\",\"content\":\"$5b6a\",\"nodeType\":\"paragraph\"}\n5b6f:{}\n5b72:{}\n5b73:[]\n5b71:{\"data\":\"$5b72\",\"marks\":\"$5b73\",\"value\":\"Following a series of tests, physicians confirmed he had Primary Mediastinal Large B-Cell Lymphoma, a rare, fast-growing type of non-Hodgkin lymphoma.\",\"nodeType\":\"text\"}\n5b70:[\"$5b71\"]\n5b6e:{\"data\":\"$5b6f\",\"content\":\"$5b70\",\"nodeType\":\"paragraph\"}\n5b75:{}\n5b78:{}\n5b79:[]\n5b77:{\"data\":\"$5b78\",\"marks\":\"$5b79\",\"value\":\"Dylan had to stop exercising and step away from the sport heâd grown to love. He also was unable to finish his senior year along with his classmates.\",\"nodeType\":\"text\"}\n5b76:[\"$5b77\"]\n5b74:{\"data\":\"$5b75\",\"content\":\"$5b76\",\"nodeType\":\"paragraph\"}\n5b7b:{}\n5b7e:{}\n5b7f:[]\n5b7d:{\"data\":\"$5b7e\",\"marks\":\"$5b7f\",\"value\":\"âI just tried to stay positive,â Dylan, 21, said. âBut I was sad at this point that I couldnât run during that time.â\",\"nodeType\":\"text\"}\n5b7c:[\"$5b7d\"]\n5b7a:{\"data\":\"$5b7b\",\"content\":\"$5b7c\",\"nodeType\":\"paragraph\"}\n5b81:{}\n5b84:{}\n5b85:[]\n5b83:{\"data\":\"$5b84\",\"marks\":\"$5b85\",\"value\":\"Shortly after the discovery of his cancer, Dylanâs family decided to transfer him to receive treatment at the Pauline Allen Gill Center for Cancer and Blood Disorders at Childrenâs Health. A leader in patient care, treatment, research and training in pediatric oncology and hematology, the Gill Center brings national and international expertise through its affiliation with UT Southwestern and the Harold C. Simmons Cancer Center, setting it apart from other sites for pediatric cancer care in the region. \",\"nodeType\":\"text\"}\n5b82:[\"$5b83\"]\n5b80:{\"data\":\"$5b81\",\"content\":\"$5b82\",\"nodeType\":\"paragraph\"}\n5"])</script>
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1<script>self.__next_f.push([1,":\"$5bae\",\"marks\":\"$5baf\",\"value\":\"Dylan celebrated two years in remission this August and has since played flag-football, basketball and bowling at the Special Olympicsâ local delegation.\",\"nodeType\":\"text\"}\n5bac:[\"$5bad\"]\n5baa:{\"data\":\"$5bab\",\"content\":\"$5bac\",\"nodeType\":\"paragraph\"}\n5bb1:{}\n5bb4:{}\n5bb5:[]\n5bb3:{\"data\":\"$5bb4\",\"marks\":\"$5bb5\",\"value\":\"Through his teammates, he soon heard about the FC Dallas Special Olympics Unified Team and decided to try out for the program. Dylan was excited about the possibility of returning to the first sport he ever played.\",\"nodeType\":\"text\"}\n5bb2:[\"$5bb3\"]\n5bb0:{\"data\":\"$5bb1\",\"content\":\"$5bb2\",\"nodeType\":\"paragraph\"}\n5bb7:{}\n5bba:{}\n5bbb:[]\n5bb9:{\"data\":\"$5bba\",\"marks\":\"$5bbb\",\"value\":\"Dylan now plays as a midfielder and forward on the team and proudly boasts the Childrenâs Health logo on his jersey.\",\"nodeType\":\"text\"}\n5bb8:[\"$5bb9\"]\n5bb6:{\"data\":\"$5bb7\",\"content\":\"$5bb8\",\"nodeType\":\"paragraph\"}\n5bbd:{}\n5bc0:{}\n5bc1:[]\n5bbf:{\"data\":\"$5bc0\",\"marks\":\"$5bc1\",\"value\":\"âIt means a lot to me because Childrenâs Health saved my life,â he said.\",\"nodeType\":\"text\"}\n5bbe:[\"$5bbf\"]\n5bbc:{\"data\":\"$5bbd\",\"content\":\"$5bbe\",\"nodeType\":\"paragraph\"}\n5bc3:{}\n5bc6:{}\n5bc7:[]\n5bc5:{\"data\":\"$5bc6\",\"marks\":\"$5bc7\",\"value\":\"With his history at Childrenâs Health and as a patient there, the full-circle moment felt âso meaningful,â Tara said.\",\"nodeType\":\"text\"}\n5bc4:[\"$5bc5\"]\n5bc2:{\"data\":\"$5bc3\",\"content\":\"$5bc4\",\"nodeType\":\"paragraph\"}\n5bc9:{}\n5bcc:{}\n5bcd:[]\n5bcb:{\"data\":\"$5bcc\",\"marks\":\"$5bcd\",\"value\":\"\\\"We didnât know that Dylan was ever going to compete again,â Tara said. âItâs amazing to see him out there playing and enjoying it.â\",\"nodeType\":\"text\"}\n5bca:[\"$5bcb\"]\n5bc8:{\"data\":\"$5bc9\",\"content\":\"$5bca\",\"nodeType\":\"paragraph\"}\n5bcf:{}\n5bd0:[]\n5bce:{\"data\":\"$5bcf\",\"content\":\"$5bd0\",\"nodeType\":\"embedded-entry-block\"}\n5bd2:{}\n5bd5:{}\n5bd6:[]\n5bd4:{\"data\":\"$5bd5\",\"marks\":\"$5bd6\",\"value\":\"In efforts to raise funds to combat childhood cancer during September, Childhoo"])</script>
1<script>self.__next_f.push([1,"d Cancer Awareness month, FC Dallas will host its Kick Childhood Cancer Night on Sept. 21 at Toyota Stadium.\",\"nodeType\":\"text\"}\n5bd3:[\"$5bd4\"]\n5bd1:{\"data\":\"$5bd2\",\"content\":\"$5bd3\",\"nodeType\":\"paragraph\"}\n5bd8:{}\n5bdb:{}\n5bdc:[]\n5bda:{\"data\":\"$5bdb\",\"marks\":\"$5bdc\",\"value\":\"Dylan will serve as the Honorary Captain of the Match, presented by Childrenâs Health.\",\"nodeType\":\"text\"}\n5bd9:[\"$5bda\"]\n5bd7:{\"data\":\"$5bd8\",\"content\":\"$5bd9\",\"nodeType\":\"paragraph\"}\n5bde:{}\n5be1:{}\n5be2:[]\n5be0:{\"data\":\"$5be1\",\"marks\":\"$5be2\",\"value\":\"Artwork designed by a Childrenâs Health patient will serve as the Matchday Poster for the evening and will be available for purchase at the stadium, with proceeds benefiting Childrenâs Health.\",\"nodeType\":\"text\"}\n5bdf:[\"$5be0\"]\n5bdd:{\"data\":\"$5bde\",\"content\":\"$5bdf\",\"nodeType\":\"paragraph\"}\n5be4:{}\n5be7:{}\n5be8:[]\n5be6:{\"data\":\"$5be7\",\"marks\":\"$5be8\",\"value\":\"Kick Childhood Cancer-themed tops will also be available for purchase at the stadiumâs retail locations, with a portion of the proceeds benefiting Childrenâs Health.\",\"nodeType\":\"text\"}\n5be5:[\"$5be6\"]\n5be3:{\"data\":\"$5be4\",\"content\":\"$5be5\",\"nodeType\":\"paragraph\"}\n5bea:{}\n5bed:{}\n5bee:[]\n5bec:{\"data\":\"$5bed\",\"marks\":\"$5bee\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n5bf0:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n5bf3:{}\n5bf4:[]\n5bf2:{\"data\":\"$5bf3\",\"marks\":\"$5bf4\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n5bf1:[\"$5bf2\"]\n5bef:{\"data\":\"$5bf0\",\"content\":\"$5bf1\",\"nodeType\":\"hyperlink\"}\n5bf6:{}\n5bf7:[]\n5bf5:{\"data\":\"$5bf6\",\"marks\":\"$5bf7\",\"value\":\" like Dylan's to learn how Children's Medical Center Foundation impacts the lives of North Texas children.\",\"nodeType\":\"text\"}\n5beb:[\"$5bec\",\"$5bef\",\"$5bf5\"]\n5be9:{\"data\":\"$5bea\",\"content\":\"$5beb\",\"nodeType\":\"paragraph\"}\n5b58:[\"$5b59\",\"$5b5f\",\"$5b65\",\"$5b68\",\"$5b6e\",\"$5b74\",\"$5b7a\",\"$5b80\",\"$5b86\",\"$5b8c\",\"$5b92\",\"$5b98\",\"$5b9b\",\"$5ba1\",\"$5ba4\",\"$5baa\",\"$5bb0\",\"$5bb6\",\"$5bbc\",\"$5bc2\",\"$5bc8\",\"$5bce\",\"$5bd1\",\"$5bd7\",\"$5bdd\",\"$5be3\",\"$5be9\"]\n5b56:{\"data\":\"$5b57\",\"content\":"])</script>
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1<script>self.__next_f.push([1,"Type\":\"paragraph\"}\n5c71:{}\n5c72:[]\n5c70:{\"data\":\"$5c71\",\"content\":\"$5c72\",\"nodeType\":\"embedded-entry-block\"}\n5c74:{}\n5c77:{}\n5c78:[]\n5c76:{\"data\":\"$5c77\",\"marks\":\"$5c78\",\"value\":\"Diagnosed with a congenital heart defect before he was born, Brantley, who has a gusto for life and can make a friend anywhere he goes, grew up knowing that his heart was special. \",\"nodeType\":\"text\"}\n5c75:[\"$5c76\"]\n5c73:{\"data\":\"$5c74\",\"content\":\"$5c75\",\"nodeType\":\"paragraph\"}\n5c7a:{}\n5c7d:{}\n5c7e:[]\n5c7c:{\"data\":\"$5c7d\",\"marks\":\"$5c7e\",\"value\":\"Brantley received care at a local hospital closer to his home for the first three years of life. And when he started experiencing plastic bronchitis â a condition where lymph fluid hardens in the airways and makes it hard to breathe â Brantley and his family were referred to Suren Reddy, M.D., a pediatric cardiologist at Children's Health who was on the cusp of a significant breakthrough for this condition. \",\"nodeType\":\"text\"}\n5c7b:[\"$5c7c\"]\n5c79:{\"data\":\"$5c7a\",\"content\":\"$5c7b\",\"nodeType\":\"paragraph\"}\n5c80:{}\n5c81:[]\n5c7f:{\"data\":\"$5c80\",\"content\":\"$5c81\",\"nodeType\":\"embedded-entry-block\"}\n5c83:{}\n5c86:{}\n5c87:[]\n5c85:{\"data\":\"$5c86\",\"marks\":\"$5c87\",\"value\":\"Brantley w
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1<script>self.__next_f.push([1,"date for a possible heart transplant in the future. \",\"nodeType\":\"text\"}\n5c90:[\"$5c91\"]\n5c8e:{\"data\":\"$5c8f\",\"content\":\"$5c90\",\"nodeType\":\"paragraph\"}\n5c95:{}\n5c98:{}\n5c99:[]\n5c97:{\"data\":\"$5c98\",\"marks\":\"$5c99\",\"value\":\"âHe was struggling a lot, and we were questioning whether heâd be a good candidate for transplant. We offered lymphatic intervention therapies as a bridge to transplant and are thankful to his parents for putting trust in us at Childrenâs Health,â said Dr. Reddy, also a professor at UT Southwestern Medical Center. \",\"nodeType\":\"text\"}\n5c96:[\"$5c97\"]\n5c94:{\"data\":\"$5c95\",\"content\":\"$5c96\",\"nodeType\":\"paragraph\"}\n5c9b:{}\n5c9e:{}\n5c9f:[]\n5c9d:{\"data\":\"$5c9e\",\"marks\":\"$5c9f\",\"value\":\"As discussed with the family, the treatment was only a temporary remedy for Brantley's special heart. And when Brantley had subsequent flare-ups of plastic bronchitis in 2022, it was clear to the team at Childrenâs Health that the only real solution was to find a new heart for a little boy who yearned to live the life of a 7-year-old, climbing trees and shooting hoops. \",\"nodeType\":\"text\"}\n5c9c:[\"$5c9d\"]\n5c9a:{\"data\":\"$5c9b\",\"content\":\"$5c9c\",\"nodeType\":\"paragraph\"}\n5ca1:{}\n5ca4:{}\n5ca5:[]\n5ca3:{\"data\":\"$5ca4\",\"marks\":\"$5ca5\",\"value\":\"Dr. Reddy told Brandi and her husband, Blake, that it was time to place Brantley on the transplant list. \",\"nodeType\":\"text\"}\n5ca2:[\"$5ca3\"]\n5ca0:{\"data\":\"$5ca1\",\"content\":\"$5ca2\",\"nodeType\":\"paragraph\"}\n5c69:[\"$5c6a\",\"$5c70\",\"$5c73\",\"$5c79\",\"$5c7f\",\"$5c82\",\"$5c88\",\"$5c8e\",\"$5c94\",\"$5c9a\",\"$5ca0\"]\n5c67:{\"data\":\"$5c68\",\"content\":\"$5c69\",\"nodeType\":\"document\"}\n5c66:{\"adminTitle\":\"Main Content: Brantley 2024 | Patient Ambassador\",\"heading\":\"'Heart of a lionâ: When Brantley w
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1<script>self.__next_f.push([1,"e\":\"paragraph\"}\n5cdd:{}\n5ce0:{}\n5ce1:[]\n5cdf:{\"data\":\"$5ce0\",\"marks\":\"$5ce1\",\"value\":\"âKnowing how much he loves stuffed animals, I knew that was going to be a special intervention for him to have a recording of his original heartbeat before he got his new heart,â Rachel said. âRoarey is something he can keep forever â kind of like an extension of himself. Roarey is a reminder of how special Brantley is. Roarey is there for him to hold and bring with him wherever he goes in life.â \",\"nodeType\":\"text\"}\n5cde:[\"$5cdf\"]\n5cdc:{\"data\":\"$5cdd\",\"content\":\"$5cde\",\"nodeType\":\"paragraph\"}\n5ce3:{}\n5ce6:{}\n5ce7:[]\n5ce5:{\"data\":\"$5ce6\",\"marks\":\"$5ce7\",\"value\":\"Within weeks of being placed on the transplant list, Brandi received the call: There was a new heart for Brantley. \",\"nodeType\":\"text\"}\n5ce4:[\"$5ce5\"]\n5ce2:{\"data\":\"$5ce3\",\"content\":\"$5ce4\",\"nodeType\":\"paragraph\"}\n5ce9:{}\n5cec:{}\n5ced:[]\n5ceb:{\"data\":\"$5cec\",\"marks\":\"$5ced\",\"value\":\"Brandi interrupted a volcano project that Brantley was working on with another transplant patient to give him the good news. \",\"nodeType\":\"text\"}\n5cea:[\"$5ceb\"]\n5ce8:{\"data\":\"$5ce9\",\"content\":\"$5cea\",\"nodeType\":\"paragraph\"}\n5cef:{}\n5cf2:{}\n5cf3:[]\n5cf1:{\"data\":\"$5cf2\",\"marks\":\"$5cf3\",\"value\":\"âMom and Dad came in and said, âBrantley, we need to go to your room right now.â And then they told me that I had a new heart, and I screamed,â Brantley recounted with a boyish cackle. \",\"nodeType\":\"text\"}\n5cf0:[\"$5cf1\"]\n5cee:{\"data\":\"$5cef\",\"content\":\"$5cf0\",\"nodeType\":\"paragraph\"}\n5cf5:{}\n5cf8:{}\n5cf9:[]\n5cf7:{\"data\":\"$5cf8\",\"marks\":\"$5cf9\",\"value\":\"In January 2023, Brantley underwent a successful heart transplant surgery with Roarey in the operating room, supervising the procedure. \",\"nodeType\":\"text\"}\n5cf6:[\"$5cf7\"]\n5cf4:{\"data\":\"$5cf5\",\"content\":\"$5cf6\",\"nodeType\":\"paragraph\"}\n5cfb:{}\n5cfe:{}\n5cff:[]\n5cfd:{\"data\":\"$5cfe\",\"marks\":\"$5cff\",\"value\":\"âNow, Roarey has my old heartbeat recording. Anytime I feel lonely and miss my old heart, I press Roareyâs chest, and see, thatâs th"])</script>
1<script>self.__next_f.push([1,"e noise,â said Brantley, as he gave Roarey a squeeze. âAnd now, weâre best friends.â \",\"nodeType\":\"text\"}\n5cfc:[\"$5cfd\"]\n5cfa:{\"data\":\"$5cfb\",\"content\":\"$5cfc\",\"nodeType\":\"paragraph\"}\n5d01:{}\n5d04:{}\n5d05:[]\n5d03:{\"data\":\"$5d04\",\"marks\":\"$5d05\",\"value\":\"Several weeks later, Brantley was cleared to go home with Roarey by his side. While he is still on routine medications, Brantley visits to Childrenâs Health are now regular check-ins.\",\"nodeType\":\"text\"}\n5d02:[\"$5d03\"]\n5d00:{\"data\":\"$5d01\",\"content\":\"$5d02\",\"nodeType\":\"paragraph\"}\n5d07:{}\n5d0a:{}\n5d0b:[]\n5d09:{\"data\":\"$5d0a\",\"marks\":\"$5d0b\",\"value\":\"\\n\",\"nodeType\":\"text\"}\n5d08:[\"$5d09\"]\n5d06:{\"data\":\"$5d07\",\"content\":\"$5d08\",\"nodeType\":\"paragraph\"}\n5cb4:[\"$5cb5\",\"$5cbb\",\"$5cc1\",\"$5cc7\",\"$5cca\",\"$5cd0\",\"$5cd6\",\"$5cdc\",\"$5ce2\",\"$5ce8\",\"$5cee\",\"$5cf4\",\"$5cfa\",\"$5d00\",\"$5d06\"]\n5cb2:{\"data\":\"$5cb3\",\"content\":\"$5cb4\",\"nodeType\":\"document\"}\n5cb1:{\"adminTitle\":\"Main Content: Brantley | Patient Ambassador\",\"headingLevel\":\"h2\",\"body\":\"$5cb2\",\"contentAccordion\":\"Disabled\"}\n5ca6:{\"metadata\":\"$5ca7\",\"sys\":\"$5caa\",\"fields\":\"$5cb1\"}\n5d0e:[]\n5d0f:[]\n5d0d:{\"tags\":\"$5d0e\",\"concepts\":\"$5d0f\"}\n5d12:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n5d11:{\"sys\":\"$5d12\"}\n5d14:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n5d13:{\"sys\":\"$5d14\"}\n5d16:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n5d15:{\"sys\":\"$5d16\"}\n5d10:{\"space\":\"$5d11\",\"id\":\"4kG6bws2gBSDvWGdWTaiVa\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T17:29:02.368Z\",\"updatedAt\":\"2026-01-29T22:32:31.486Z\",\"environment\":\"$5d13\",\"publishedVersion\":6,\"revision\":2,\"contentType\":\"$5d15\",\"locale\":\"en-US\"}\n5d19:{}\n5d1c:{}\n5d1f:{}\n5d20:[]\n5d1e:{\"data\":\"$5d1f\",\"marks\":\"$5d20\",\"value\":\"Child Life â Brantleyâs Lifeline During Challenges \",\"nodeType\":\"text\"}\n5d1d:[\"$5d1e\"]\n5d1b:{\"data\":\"$5d1c\",\"content\":\"$5d1d\",\"nodeType\":\"heading-2\"}\n5d22:{}\n5d25:{}\n5d26:[]\n5d24:{\"data\":\"$5d25\",\"marks\":\"$5d26\",\"value\":\"Brandi and Brantley rattle off the names of staff members like old friends. Indeed, thatâs what they have "])</script>
1<script>self.__next_f.push([1,"become. Brandi cites Child Life as the light that kept Brantley going when things seemed dark. And, that Bailey, his Child Life specialist, was instrumental in keeping Brantleyâs spirits up, providing sand art, music therapy and other activities. \",\"nodeType\":\"text\"}\n5d23:[\"$5d24\"]\n5d21:{\"data\":\"$5d22\",\"content\":\"$5d23\",\"nodeType\":\"paragraph\"}\n5d28:{}\n5d29:[]\n5d27:{\"data\":\"$5d28\",\"content\":\"$5d29\",\"nodeType\":\"embedded-entry-block\"}\n5d2b:{}\n5d2e:{}\n5d2f:[]\n5d2d:{\"data\":\"$5d2e\",\"marks\":\"$5d2f\",\"value\":\"She and the Child Life team even arranged for extra special visitors to visit Brantley while he was in isolation â six players from the Dallas Mavericks. \",\"nodeType\":\"text\"}\n5d2c:[\"$5d2d\"]\n5d2a:{\"data\":\"$5d2b\",\"content\":\"$5d2c\",\"nodeType\":\"paragraph\"}\n5d31:{}\n5d34:{}\n5d35:[]\n5d33:{\"data\":\"$5d34\",\"marks\":\"$5d35\",\"value\":\"âHe had a basketball hoop in his room since he couldnât leave when he was in isolation. Josh Green and two other Mavericks players gowned up to see him. He took a few shots and finally made a basket on the seventh try. The whole room erupted. Brantley was so excited,â Brandi said. \",\"nodeType\":\"text\"}\n5d32:[\"$5d33\"]\n5d30:{\"data\":\"$5d31\",\"content\":\"$5d32\",\"nodeType\":\"paragraph\"}\n5d37:{}\n5d3a:{}\n5d3b:[]\n5d39:{\"data\":\"$5d3a\",\"marks\":\"$5d3b\",\"value\":\"âThatâs something that Brantley will never forget, and it never would have happened if we werenât at Childrenâs Health. It meant a lot to Brantley and to us.â \",\"nodeType\":\"text\"}\n5d38:[\"$5d39\"]\n5d36:{\"data\":\"$5d37\",\"content\":\"$5d38\",\"nodeType\":\"paragraph\"}\n5d3d:{}\n5d40:{}\n5d41:[]\n5d3f:{\"data\":\"$5d40\",\"marks\":\"$5d41\",\"value\":\"Brandi said this dedication to uplifting patients and families is the hallmark of Childrenâs Health. Itâs also why Brandi and her family are dedicated to raising funds to support the hospital. \",\"nodeType\":\"text\"}\n5d3e:[\"$5d3f\"]\n5d3c:{\"data\":\"$5d3d\",\"content\":\"$5d3e\",\"nodeType\":\"paragraph\"}\n5d43:{}\n5d46:{}\n5d47:[]\n5d45:{\"data\":\"$5d46\",\"marks\":\"$5d47\",\"value\":\"Brantleyâs birthdays and holidays are their favorite"])</script>
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1<script>self.__next_f.push([1,"the nation designated as a Center of Excellence for this serious hereditary condition.\",\"nodeType\":\"text\"}\n5dcd:[\"$5dce\",\"$5dd1\",\"$5dd7\"]\n5dcb:{\"data\":\"$5dcc\",\"content\":\"$5dcd\",\"nodeType\":\"paragraph\"}\n5ddb:{}\n5dde:{}\n5ddf:[]\n5ddd:{\"data\":\"$5dde\",\"marks\":\"$5ddf\",\"value\":\"At Childrenâs Health, Shantel attended a three-hour crash course about CAH where she learned how the condition could impact her daughter and the ongoing care Emma would need.\",\"nodeType\":\"text\"}\n5ddc:[\"$5ddd\"]\n5dda:{\"data\":\"$5ddb\",\"content\":\"$5ddc\",\"nodeType\":\"paragraph\"}\n5de1:{}\n5de4:{}\n5de5:[]\n5de3:{\"data\":\"$5de4\",\"marks\":\"$5de5\",\"value\":\"CAH hinders the bodyâs ability to make three essential hormones â cortisol, aldosterone and androgens â that manage important bodily functions and impact how a child grows and develops. People with CAH, like Emma, require daily medication to replace the hormones that enable their bodies to work properly.\",\"nodeType\":\"text\"}\n5de2:[\"$5de3\"]\n5de0:{\"data\":\"$5de1\",\"content\":\"$5de2\",\"nodeType\":\"paragraph\"}\n5de7:{\"target\":\"$c70\"}\n5de8:[]\n5de6:{\"data\":\"$5de7\",\"content\":\"$5de8\",\"nodeType\":\"embedded-entry-block\"}\n5dea:{}\n5ded:{}\n5dee:[]\n5dec:{\"data\":\"$5ded\",\"marks\":\"$5dee\",\"value\":\"Ongoing care makes the difference\",\"nodeType\":\"text\"}\n5deb:[\"$5dec\"]\n5de9:{\"data\":\"$5dea\",\"content\":\"$5deb\",\"nodeType\":\"heading-3\"}\n5df0:{}\n5df3:{}\n5df4:[]\n5df2:{\"data\":\"$5df3\",\"marks\":\"$5df4\",\"value\":\"Thanks to her daily medications, Emma, now 15, lives a pretty typical life. Her eclectic interests range from making soap and bath bombs to reading and archery. She enjoys participating in the Model UN program at school and plans to be a lawyer who focuses on social justice issues when she grows up.\",\"nodeType\":\"text\"}\n5df1:[\"$5df2\"]\n5def:{\"data\":\"$5df0\",\"content\":\"$5df1\",\"nodeType\":\"paragraph\"}\n5df6:{}\n5df7:[]\n5df5:{\"data\":\"$5df6\",\"content\":\"$5df7\",\"nodeType\":\"embedded-entry-block\"}\n5df9:{}\n5dfc:{}\n5dfd:[]\n5dfb:{\"data\":\"$5dfc\",\"marks\":\"$5dfd\",\"value\":\"Yet even with ongoing care, Emma and her family must remain vigilant about her health "])</script>
1<script>self.__next_f.push([1,"and her surroundings. Because people with CAH are not able to retain the salt their bodies need to hold and balance fluids, even enjoying a hot summer day is tempered by concerns about dehydration. An injury, illness or even too much enthusiasm can cause a hormonal surge that requires emergency medical attention.\",\"nodeType\":\"text\"}\n5dfa:[\"$5dfb\"]\n5df8:{\"data\":\"$5df9\",\"content\":\"$5dfa\",\"nodeType\":\"paragraph\"}\n5dff:{}\n5e02:{}\n5e03:[]\n5e01:{\"data\":\"$5e02\",\"marks\":\"$5e03\",\"value\":\"âWhen I was younger, Iâd get sick on my birthday a lot because Iâd get super energetic and my body would release too much adrenaline,â Emma said.\",\"nodeType\":\"text\"}\n5e00:[\"$5e01\"]\n5dfe:{\"data\":\"$5dff\",\"content\":\"$5e00\",\"nodeType\":\"paragraph\"}\n5e05:{}\n5e08:{}\n5e09:[]\n5e07:{\"data\":\"$5e08\",\"marks\":\"$5e09\",\"value\":\"And, while the powerful medications she takes every day enable her to enjoy a full, well-rounded life, they have their drawbacks. For example, taking high levels of hydrocortisone can suppress growth and make it hard to control weight.\",\"nodeType\":\"text\"}\n5e06:[\"$5e07\"]\n5e04:{\"data\":\"$5e05\",\"content\":\"$5e06\",\"nodeType\":\"paragraph\"}\n5e0b:{}\n5e0e:{}\n5e0f:[]\n5e0d:{\"data\":\"$5e0e\",\"marks\":\"$5e0f\",\"value\":\"âShort stature is common for people with CAH. Weâve always hoped Emma would make it to 5 feet tall. But as she was starting puberty, her doctors predicted sheâd only be 4â10â or so,â her mom said. âThen they told us about a new research study.â\",\"nodeType\":\"text\"}\n5e0c:[\"$5e0d\"]\n5e0a:{\"data\":\"$5e0b\",\"content\":\"$5e0c\",\"nodeType\":\"paragraph\"}\n5e11:{}\n5e14:{}\n5e15:[]\n5e13:{\"data\":\"$5e14\",\"marks\":\"$5e15\",\"value\":\"Clinical research: the chance to see â and make â a difference\",\"nodeType\":\"text\"}\n5e12:[\"$5e13\"]\n5e10:{\"data\":\"$5e11\",\"content\":\"$5e12\",\"nodeType\":\"heading-3\"}\n5e17:{}\n5e1a:{}\n5e1b:[]\n5e19:{\"data\":\"$5e1a\",\"marks\":\"$5e1b\",\"value\":\"Doctors at Childrenâs Health were starting a clinical research study based out of the endocrinology department to see if the medicine Crinecerfont could allow patients with "])</script>
1<script>self.__next_f.push([1,"CAH to safely lower the amount of hydrocortisone they needed and still maintain overall balance of hormones.\",\"nodeType\":\"text\"}\n5e18:[\"$5e19\"]\n5e16:{\"data\":\"$5e17\",\"content\":\"$5e18\",\"nodeType\":\"paragraph\"}\n5e1d:{}\n5e20:{}\n5e21:[]\n5e1f:{\"data\":\"$5e20\",\"marks\":\"$5e21\",\"value\":\"The Brisendines jumped at the invitation to participate, seeing the study as an opportunity to help Emma in the short run and improve treatment for others in the long run.\",\"nodeType\":\"text\"}\n5e1e:[\"$5e1f\"]\n5e1c:{\"data\":\"$5e1d\",\"content\":\"$5e1e\",\"nodeType\":\"paragraph\"}\n5e23:{}\n5e26:{}\n5e27:[]\n5e25:{\"data\":\"$5e26\",\"marks\":\"$5e27\",\"value\":\"âEmma wouldnât have had the excellent care sheâs had without the patients who participated in research studies before her,â Shantel said. âThis was our opportunity to help the people who will come next.â\",\"nodeType\":\"text\"}\n5e24:[\"$5e25\"]\n5e22:{\"data\":\"$5e23\",\"content\":\"$5e24\",\"nodeType\":\"paragraph\"}\n5e29:{}\n5e2a:[]\n5e28:{\"data\":\"$5e29\",\"content\":\"$5e2a\",\"nodeType\":\"embedded-entry-block\"}\n5e2c:{}\n5e2f:{}\n5e30:[]\n5e2e:{\"data\":\"$5e2f\",\"marks\":\"$5e30\",\"value\":\"Emma was the first patient to be approved for the study, which was organized into two groups â one that would be trying the new medication and one that would continue with the current standard treatment. The family wasnât told which group Emma would be in, but it wasnât long before they noticed clues.\",\"nodeType\":\"text\"}\n5e2d:[\"$5e2e\"]\n5e2b:{\"data\":\"$5e2c\",\"content\":\"$5e2d\",\"nodeType\":\"paragraph\"}\n5e32:{}\n5e35:{}\n5e36:[]\n5e34:{\"data\":\"$5e35\",\"marks\":\"$5e36\",\"value\":\"âWe saw an almost immediate change in her growth and height, and pretty soon we were allowed to lower her dosage of hydrocortisone because her levels were balancing out better,â Shantel said.\",\"nodeType\":\"text\"}\n5e33:[\"$5e34\"]\n5e31:{\"data\":\"$5e32\",\"content\":\"$5e33\",\"nodeType\":\"paragraph\"}\n5e38:{}\n5e3b:{}\n5e3c:[]\n5e3a:{\"data\":\"$5e3b\",\"marks\":\"$5e3c\",\"value\":\"During the study, Emma took daily medication and attended an all-day clinic every other month for a checkup, an EKG "])</script>
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1<script>self.__next_f.push([1,"e\":\"Jocelynâs road from transplant back to health wasnât easy â she had to learn to swallow dozens of pills each day, cope with the long periods of isolation and grapple with a potentially life-threatening disease. Her mom is grateful that the top-notch team at Childrenâs Health approached her daughterâs care from every angle, including the physical, the social and the psychological.\",\"nodeType\":\"text\"}\n5f3e:[\"$5f3f\"]\n5f3c:{\"data\":\"$5f3d\",\"content\":\"$5f3e\",\"nodeType\":\"paragraph\"}\n5f43:{}\n5f46:{}\n5f47:[]\n5f45:{\"data\":\"$5f46\",\"marks\":\"$5f47\",\"value\":\"âFrom a medical standpoint, we felt we had the best of the best at Childrenâs Health. The doctors and nurses were just incredible,â Melanie said, who was also wowed by the variety of therapies and support services Childrenâs Health offers to help patients like Jocelyn cope with illness and hospitalization.\",\"nodeType\":\"text\"}\n5f44:[\"$5f45\"]\n5f42:{\"data\":\"$5f43\",\"content\":\"$5f44\",\"nodeType\":\"paragraph\"}\n5f49:{\"target\":\"$c88\"}\n5f4a:[]\n5f48:{\"data\":\"$5f49\",\"content\":\"$5f4a\",\"nodeType\":\"embedded-entry-block\"}\n5f4c:{}\n5f4f:{}\n5f50:[]\n5f4e:{\"data\":\"$5f4f\",\"marks\":\"$5f50\",\"value\":\"Music therapist Jill Pocios was one of the bright spots during the five weeks Jocelyn spent in the hospital during and after her transplant. They did art projects together because thatâs what Jocelyn enjoyed. Jill even interviewed Jocelyn for the Childrenâs Health internal TV Channel about the pictures with inspirational messages she drew for the younger children on the transplant unit. The segment still plays every so often at the satellite campuses â and Jocelyn still enjoys the bit of fame it brings her.\",\"nodeType\":\"text\"}\n5f4d:[\"$5f4e\"]\n5f4b:{\"data\":\"$5f4c\",\"content\":\"$5f4d\",\"nodeType\":\"paragraph\"}\n5f52:{}\n5f55:{}\n5f56:[]\n5f54:{\"data\":\"$5f55\",\"marks\":\"$5f56\",\"value\":\"Mental health: an essential part of overall health \",\"nodeType\":\"text\"}\n5f53:[\"$5f54\"]\n5f51:{\"data\":\"$5f52\",\"content\":\"$5f53\",\"nodeType\":\"heading-3\"}\n5f58:{}\n5f5b:{}\n5f5c:[]\n5f5a:{\"data\":\"$5f5b\",\"marks\":\"$5f"])</script>
1<script>self.__next_f.push([1,"5c\",\"value\":\"Serious illness is hard on adolescents. They are separated from their peers. Their routines and activities are disrupted. They deal with anxiety about complex medical procedures and uncomfortable side effects from medications. They also understand far more about what they are going through than many adults realize. For Jocelyn, being able to work with Dr. Jenna Oppenheimer, one of the dedicated pediatric health psychologists in the Pauline Allen Gill Center for Cancer and Blood Disorders at Childrenâs Health, helped her cope with the strain of her illness and the challenges of her treatment.\",\"nodeType\":\"text\"}\n5f59:[\"$5f5a\"]\n5f57:{\"data\":\"$5f58\",\"content\":\"$5f59\",\"nodeType\":\"paragraph\"}\n5f5e:{}\n5f5f:[]\n5f5d:{\"data\":\"$5f5e\",\"content\":\"$5f5f\",\"nodeType\":\"embedded-entry-block\"}\n5f61:{}\n5f64:{}\n5f65:[]\n5f63:{\"data\":\"$5f64\",\"marks\":\"$5f65\",\"value\":\"âI was just not feeling it before I started working with Dr. Oppenheimer,â Jocelyn said. âI was depressed and sad. I didnât have many friends, and whenever I saw anyone, I had to mask and social distance. I was either in the hospital or stuck at home with my parents the whole time I was sick. All I did was homework and watch movies.â\",\"nodeType\":\"text\"}\n5f62:[\"$5f63\"]\n5f60:{\"data\":\"$5f61\",\"content\":\"$5f62\",\"nodeType\":\"paragraph\"}\n5f67:{}\n5f6a:{}\n5f6b:[]\n5f69:{\"data\":\"$5f6a\",\"marks\":\"$5f6b\",\"value\":\"Dr. Oppenheimer saw Jocelyn every time she was hospitalized at Childrenâs Health and connected the family to other mental health resources throughout the health system. Jocelyn had a neuropsychiatric evaluation at Childrenâs Neuro Psychology and sees Dr. Preston, a psychiatrist at the Childrenâs Psychiatry department. Jocelyn also met with a psychiatrist who prescribed medicine. The combination of the medicine, talking about what she was experiencing, and learning some coping skills all helped. But the biggest change came when Jocelyn was well enough to return to school.\",\"nodeType\":\"text\"}\n5f68:[\"$5f69\"]\n5f66:{\"data\":\"$5f67\",\"content\":\"$5f68\",\"nod"])</script>
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1<script>self.__next_f.push([1,"school, 5-year-old Lincoln was a hero. That very same week, he would triumph over one final cancer treatment on a healing journey that had begun at Childrenâs Healthâ two and a half years before.\",\"nodeType\":\"text\"}\n600d:[\"$600e\"]\n600b:{\"data\":\"$600c\",\"content\":\"$600d\",\"nodeType\":\"paragraph\"}\n6012:{}\n6015:{}\n6016:[]\n6014:{\"data\":\"$6015\",\"marks\":\"$6016\",\"value\":\"Lincoln was welcomed into his warm, cheery kindergarten classroom by a teacher who already knew him by name (she had taught Lincolnâs sister years earlier). In their tight-knit community, Lincolnâs teacher already knew his story. In fact, sheâd been rooting for him all along the way.\",\"nodeType\":\"text\"}\n6013:[\"$6014\"]\n6011:{\"data\":\"$6012\",\"content\":\"$6013\",\"nodeType\":\"paragraph\"}\n6018:{}\n601b:{}\n601c:[]\n601a:{\"data\":\"$601b\",\"marks\":\"$601c\",\"value\":\"Finally, Lincoln joined his classmates and took his place at a tiny chair and desk. As his energetic, fun-loving personality filled the room, his family celebrated this new adventure. An adventure that marked the end of one the greatest challenges they had ever faced.\",\"nodeType\":\"text\"}\n6019:[\"$601a\"]\n6017:{\"data\":\"$6018\",\"content\":\"$6019\",\"nodeType\":\"paragraph\"}\n601e:{}\n6021:{}\n6022:[]\n6020:{\"data\":\"$6021\",\"marks\":\"$6022\",\"value\":\"The Calm Before the Unthinkable\",\"nodeType\":\"text\"}\n601f:[\"$6020\"]\n601d:{\"data\":\"$601e\",\"content\":\"$601f\",\"nodeType\":\"heading-3\"}\n6024:{}\n6025:[]\n6023:{\"data\":\"$6024\",\"content\":\"$6025\",\"nodeType\":\"embedded-entry-block\"}\n6027:{}\n6028:[]\n6026:{\"data\":\"$6027\",\"content\":\"$6028\",\"nodeType\":\"embedded-entry-block\"}\n602a:{}\n602d:{}\n602e:[]\n602c:{\"data\":\"$602d\",\"marks\":\"$602e\",\"value\":\"One month before his third birthday, Lincolnâs mom, Camey, saw swelling in his neck and noticed his energy level was low. Despite hopes that antibiotics would make it go away, he wasnât getting better. The next step was to take Lincoln to the Childrenâs Healthâ emergency department for tests.\",\"nodeType\":\"text\"}\n602b:[\"$602c\"]\n6029:{\"data\":\"$602a\",\"content\":\"$602b\",\"nodeType\":\"paragraph\"}\n6030"])</script>
1<script>self.__next_f.push([1,":{}\n6033:{}\n6034:[]\n6032:{\"data\":\"$6033\",\"marks\":\"$6034\",\"value\":\"Camey remembers exactly what was on her mind before they went in for lab work.\",\"nodeType\":\"text\"}\n6031:[\"$6032\"]\n602f:{\"data\":\"$6030\",\"content\":\"$6031\",\"nodeType\":\"paragraph\"}\n6036:{}\n6039:{}\n603a:[]\n6038:{\"data\":\"$6039\",\"marks\":\"$603a\",\"value\":\"âThe night before I took him to the ER, I said to my husband, âI don't know why, but I have this deep feeling that this is the calm before the storm,ââ she said.\",\"nodeType\":\"text\"}\n6037:[\"$6038\"]\n6035:{\"data\":\"$6036\",\"content\":\"$6037\",\"nodeType\":\"paragraph\"}\n603c:{}\n603f:{}\n6040:[]\n603e:{\"data\":\"$603f\",\"marks\":\"$6040\",\"value\":\"And she was right. The next day, Lincolnâs family was shocked to hear from doctors, âWe think it could be leukemia.\\\" Lincoln was immediately admitted to Childrenâs Health in Dallas. A few days later, his diagnosis of Acute Lymphoblastic Leukemia (ALL) was confirmed. And the family met Tamara Slone, M.D., who would be Lincolnâs oncologist.\",\"nodeType\":\"text\"}\n603d:[\"$603e\"]\n603b:{\"data\":\"$603c\",\"content\":\"$603d\",\"nodeType\":\"paragraph\"}\n6042:{}\n6045:{}\n6046:[]\n6044:{\"data\":\"$6045\",\"marks\":\"$6046\",\"value\":\"ALL is a fast-growing cancer that begins in the bone marrow and spreads out to the body through the blood. In the United States, leukemia is the most common form of cancer affecting children. What Lincoln was up against wasnât rare, but it was aggressive and required immediate action.\",\"nodeType\":\"text\"}\n6043:[\"$6044\"]\n6041:{\"data\":\"$6042\",\"content\":\"$6043\",\"nodeType\":\"paragraph\"}\n6048:{}\n604b:{}\n604c:[]\n604a:{\"data\":\"$604b\",\"marks\":\"$604c\",\"value\":\"Speeding into the Unknown \",\"nodeType\":\"text\"}\n6049:[\"$604a\"]\n6047:{\"data\":\"$6048\",\"content\":\"$6049\",\"nodeType\":\"heading-3\"}\n604e:{}\n604f:[]\n604d:{\"data\":\"$604e\",\"content\":\"$604f\",\"nodeType\":\"embedded-entry-block\"}\n6051:{}\n6054:{}\n6055:[]\n6053:{\"data\":\"$6054\",\"marks\":\"$6055\",\"value\":\"Both Camey and her husband, Logan, stayed in the hospital with Lincoln for a month. They were overwhelmed by the daunting treatment plan.\""])</script>
1<script>self.__next_f.push([1,",\"nodeType\":\"text\"}\n6052:[\"$6053\"]\n6050:{\"data\":\"$6051\",\"content\":\"$6052\",\"nodeType\":\"paragraph\"}\n6057:{}\n605a:{}\n605b:[]\n6059:{\"data\":\"$605a\",\"marks\":\"$605b\",\"value\":\"It was difficult for Camey to watch Lincoln begin his treatments.\",\"nodeType\":\"text\"}\n6058:[\"$6059\"]\n6056:{\"data\":\"$6057\",\"content\":\"$6058\",\"nodeType\":\"paragraph\"}\n605d:{}\n605e:[]\n605c:{\"data\":\"$605d\",\"content\":\"$605e\",\"nodeType\":\"embedded-entry-block\"}\n6060:{}\n6063:{}\n6064:[]\n6062:{\"data\":\"$6063\",\"marks\":\"$6064\",\"value\":\"âHe was in pain all the time. His appetite decreased hugely,â Camey said. âIt was just one thing after the next. One med after the next. One chemo and then another one. And then hair loss.â\",\"nodeType\":\"text\"}\n6061:[\"$6062\"]\n605f:{\"data\":\"$6060\",\"content\":\"$6061\",\"nodeType\":\"paragraph\"}\n6066:{}\n6069:{}\n606a:[]\n6068:{\"data\":\"$6069\",\"marks\":\"$606a\",\"value\":\"Plenty of people reminded Camey to âtake it one day at a time,â but often she felt like she was only surviving by taking it one second at a time.\",\"nodeType\":\"text\"}\n6067:[\"$6068\"]\n6065:{\"data\":\"$6066\",\"content\":\"$6067\",\"nodeType\":\"paragraph\"}\n606c:{}\n606f:{}\n6070:[]\n606e:{\"data\":\"$606f\",\"marks\":\"$6070\",\"value\":\"Despite not knowing what was around each corner, Camey and Logan prided themselves on ensuring that Lincoln knew what was happening.\",\"nodeType\":\"text\"}\n606d:[\"$606e\"]\n606b:{\"data\":\"$606c\",\"content\":\"$606d\",\"nodeType\":\"paragraph\"}\n6072:{}\n6075:{}\n6076:[]\n6074:{\"data\":\"$6075\",\"marks\":\"$6076\",\"value\":\"âWe are very big on telling him every step of the process,â Camey insisted. âTelling him exactly what a port is and what it does and how it's helpful to him, and how one day you will lose your hair as well.â\",\"nodeType\":\"text\"}\n6073:[\"$6074\"]\n6071:{\"data\":\"$6072\",\"content\":\"$6073\",\"nodeType\":\"paragraph\"}\n6078:{}\n607b:{}\n607c:[]\n607a:{\"data\":\"$607b\",\"marks\":\"$607c\",\"value\":\"After Lincoln lost his hair due to chemotherapy, Camey remembers reassuring him.\",\"nodeType\":\"text\"}\n6079:[\"$607a\"]\n6077:{\"data\":\"$6078\",\"content\":\"$6079\",\"nodeType\":\"paragraph\"}\n607e:{}\n"])</script>
1<script>self.__next_f.push([1,"6081:{}\n6082:[]\n6080:{\"data\":\"$6081\",\"marks\":\"$6082\",\"value\":\"âPeople may think you look different when you're not different. Youâre still YOU,â Camey said.\",\"nodeType\":\"text\"}\n607f:[\"$6080\"]\n607d:{\"data\":\"$607e\",\"content\":\"$607f\",\"nodeType\":\"paragraph\"}\n6084:{}\n6087:{}\n6088:[]\n6086:{\"data\":\"$6087\",\"marks\":\"$6088\",\"value\":\"Support for the Journey\",\"nodeType\":\"text\"}\n6085:[\"$6086\"]\n6083:{\"data\":\"$6084\",\"content\":\"$6085\",\"nodeType\":\"heading-3\"}\n608a:{}\n608b:[]\n6089:{\"data\":\"$608a\",\"content\":\"$608b\",\"nodeType\":\"embedded-entry-block\"}\n608d:{}\n6090:{}\n6091:[]\n608f:{\"data\":\"$6090\",\"marks\":\"$6091\",\"value\":\"Along Lincolnâs entire journey at Childrenâs Health, the family found enormous support from Child Life. Child Life is a unique team dedicated to helping patients understand and cope with their hospital stay and treatment. Child Life delivers support and resources to care for the whole child and family. \",\"nodeType\":\"text\"}\n608e:[\"$608f\"]\n608c:{\"data\":\"$608d\",\"content\":\"$608e\",\"nodeType\":\"paragraph\"}\n6093:{}\n6094:[]\n6092:{\"data\":\"$6093\",\"content\":\"$6094\",\"nodeType\":\"embedded-entry-block\"}\n6096:{}\n6099:{}\n609a:[]\n6098:{\"data\":\"$6099\",\"marks\":\"$609a\",\"value\":\"At every step, team members helped Lincoln and his family navigate the road ahead.\",\"nodeType\":\"text\"}\n6097:[\"$6098\"]\n6095:{\"data\":\"$6096\",\"content\":\"$6097\",\"nodeType\":\"paragraph\"}\n609c:{}\n609f:{}\n60a0:[]\n609e:{\"data\":\"$609f\",\"marks\":\"$60a0\",\"value\":\"âThe way that they greeted us all the time. The way that they were always checking in on us. I knew that I could contact any one of them if I had any sort of question,â Camey said.\",\"nodeType\":\"text\"}\n609d:[\"$609e\"]\n609b:{\"data\":\"$609c\",\"content\":\"$609d\",\"nodeType\":\"paragraph\"}\n60a2:{}\n60a5:{}\n60a6:[]\n60a4:{\"data\":\"$60a5\",\"marks\":\"$60a6\",\"value\":\"There was always someone bringing Lincoln a toy or something to distract him during a tricky procedure. Camey remembered one special toy.\",\"nodeType\":\"text\"}\n60a3:[\"$60a4\"]\n60a1:{\"data\":\"$60a2\",\"content\":\"$60a3\",\"nodeType\":\"paragraph\"}\n60a8:{}\n60ab:{}\n60ac:[]\n60aa"])</script>
1<script>self.__next_f.push([1,":{\"data\":\"$60ab\",\"marks\":\"$60ac\",\"value\":\"âOne of Lincolnâs favorites was a stuffed toy shaped like a germ,â she said. âThey know he has been very interested in learning about viruses. He loved it. He took a picture with it.â\",\"nodeType\":\"text\"}\n60a9:[\"$60aa\"]\n60a7:{\"data\":\"$60a8\",\"content\":\"$60a9\",\"nodeType\":\"paragraph\"}\n60ae:{}\n60b1:{}\n60b2:[]\n60b0:{\"data\":\"$60b1\",\"marks\":\"$60b2\",\"value\":\"When Lincoln was waiting for test results or a procedure, Child Life provided iPads and toys. Along with the Child Life team, Lincoln also had visits from therapy dogs and musical therapists. Each activity helped ease Lincolnâs journey through difficult moments.\",\"nodeType\":\"text\"}\n60af:[\"$60b0\"]\n60ad:{\"data\":\"$60ae\",\"content\":\"$60af\",\"nodeType\":\"paragraph\"}\n60b4:{}\n60b7:{}\n60b8:[]\n60b6:{\"data\":\"$60b7\",\"marks\":\"$60b8\",\"value\":\"But the support from Child Life also helped Lincoln remain who he was â a curious kid with a love of learning and a whole world to explore.\",\"nodeType\":\"text\"}\n60b5:[\"$60b6\"]\n60b3:{\"data\":\"$60b4\",\"content\":\"$60b5\",\"nodeType\":\"paragraph\"}\n60ba:{}\n60bd:{}\n60be:[]\n60bc:{\"data\":\"$60bd\",\"marks\":\"$60be\",\"value\":\"An Extra Boost\",\"nodeType\":\"text\"}\n60bb:[\"$60bc\"]\n60b9:{\"data\":\"$60ba\",\"content\":\"$60bb\",\"nodeType\":\"heading-3\"}\n60c0:{}\n60c1:[]\n60bf:{\"data\":\"$60c0\",\"content\":\"$60c1\",\"nodeType\":\"embedded-entry-block\"}\n60c3:{}\n60c6:{}\n60c7:[]\n60c5:{\"data\":\"$60c6\",\"marks\":\"$60c7\",\"value\":\"After the initial month-long stay, Lincoln only needed to be in the hospital from time to time when he needed chemotherapy. As part of Lincolnâs treatment plan, his family was invited to participate in a clinical trial of a drug called Blinatumomab. \",\"nodeType\":\"text\"}\n60c4:[\"$60c5\"]\n60c2:{\"data\":\"$60c3\",\"content\":\"$60c4\",\"nodeType\":\"paragraph\"}\n60c9:{}\n60ca:[]\n60c8:{\"data\":\"$60c9\",\"content\":\"$60ca\",\"nodeType\":\"embedded-entry-block\"}\n60cc:{}\n60cf:{}\n60d0:[]\n60ce:{\"data\":\"$60cf\",\"marks\":\"$60d0\",\"value\":\"Blinatumomab is not chemotherapy. Itâs an immunotherapy drug that stimulates a patientâs immune system. While che"])</script>
1<script>self.__next_f.push([1,"motherapy drugs target all rapidly dividing cells, this immunotherapy drug was designed to specifically target and destroy Lincolnâs leukemia cells.\",\"nodeType\":\"text\"}\n60cd:[\"$60ce\"]\n60cb:{\"data\":\"$60cc\",\"content\":\"$60cd\",\"nodeType\":\"paragraph\"}\n60d2:{}\n60d5:{}\n60d6:[]\n60d4:{\"data\":\"$60d5\",\"marks\":\"$60d6\",\"value\":\"Even though they opted into the clinical trial, receiving the drug wasnât guaranteed.\",\"nodeType\":\"text\"}\n60d3:[\"$60d4\"]\n60d1:{\"data\":\"$60d2\",\"content\":\"$60d3\",\"nodeType\":\"paragraph\"}\n60d8:{}\n60db:{}\n60dc:[]\n60da:{\"data\":\"$60db\",\"marks\":\"$60dc\",\"value\":\"âAs soon as we said yes to the trial, they do a randomization. It's a 50/50 chance if you actually receive the drug or not,â she said.\",\"nodeType\":\"text\"}\n60d9:[\"$60da\"]\n60d7:{\"data\":\"$60d8\",\"content\":\"$60d9\",\"nodeType\":\"paragraph\"}\n60de:{}\n60e1:{}\n60e2:[]\n60e0:{\"data\":\"$60e1\",\"marks\":\"$60e2\",\"value\":\"Lincoln was eventually selected to receive the drug.\",\"nodeType\":\"text\"}\n60df:[\"$60e0\"]\n60dd:{\"data\":\"$60de\",\"content\":\"$60df\",\"nodeType\":\"paragraph\"}\n60e4:{}\n60e7:{}\n60e8:[]\n60e6:{\"data\":\"$60e7\",\"marks\":\"$60e8\",\"value\":\"Blinatumomab was less harsh on Lincolnâs body than chemotherapy and reduced the length of Lincolnâs overall treatment. The family hoped that the clinical trial drug would reduce Lincolnâs chances of relapse down the road. Itâs too soon to know the outcome for Lincoln, but his family feels confident in their decision.\",\"nodeType\":\"text\"}\n60e5:[\"$60e6\"]\n60e3:{\"data\":\"$60e4\",\"content\":\"$60e5\",\"nodeType\":\"paragraph\"}\n60ea:{}\n60ed:{}\n60ee:[]\n60ec:{\"data\":\"$60ed\",\"marks\":\"$60ee\",\"value\":\"âWhy say yes to participating in research?â His mom reflected. âFor the future of kiddos who will have a diagnosis like Lincoln's. I hope that we can be part of a breakthrough drug that will help others.â\",\"nodeType\":\"text\"}\n60eb:[\"$60ec\"]\n60e9:{\"data\":\"$60ea\",\"content\":\"$60eb\",\"nodeType\":\"paragraph\"}\n60f0:{}\n60f3:{}\n60f4:[]\n60f2:{\"data\":\"$60f3\",\"marks\":\"$60f4\",\"value\":\"Cancer affects every child differently. Unfortunately, only about 4% "])</script>
1<script>self.__next_f.push([1,"of federal funding for cancer research is dedicated to pediatric cancers (Coalition Against Childhood Cancer). Because of these unique experiences and the limited funding, doctors and scientists at Childrenâs Health continue to rely on donor support to push forward advancements in care â like Lincolnâs clinical trial drug â that can deliver better outcomes for kids.\",\"nodeType\":\"text\"}\n60f1:[\"$60f2\"]\n60ef:{\"data\":\"$60f0\",\"content\":\"$60f1\",\"nodeType\":\"paragraph\"}\n60f6:{}\n60f9:{}\n60fa:[]\n60f8:{\"data\":\"$60f9\",\"marks\":\"$60fa\",\"value\":\"Lighting the Way Forward\",\"nodeType\":\"text\"}\n60f7:[\"$60f8\"]\n60f5:{\"data\":\"$60f6\",\"content\":\"$60f7\",\"nodeType\":\"heading-3\"}\n60fc:{}\n60fd:[]\n60fb:{\"data\":\"$60fc\",\"content\":\"$60fd\",\"nodeType\":\"embedded-entry-block\"}\n60ff:{}\n6102:{}\n6103:[]\n6101:{\"data\":\"$6102\",\"marks\":\"$6103\",\"value\":\"Three weeks after he started kindergarten, Lincoln returned to Childrenâs Health to ring the bell and celebrate having completed his treatment plan. And for a few months, the family was enjoying the everyday routine of having three kids in school. \",\"nodeType\":\"text\"}\n6100:[\"$6101\"]\n60fe:{\"data\":\"$60ff\",\"content\":\"$6100\",\"nodeType\":\"paragraph\"}\n6105:{}\n6108:{}\n6109:[]\n6107:{\"data\":\"$6108\",\"marks\":\"$6109\",\"value\":\"Then, sadly, on December 13, 2023, labs from one of Lincolnâs monthly check-ups revealed his leukemia had relapsed. Five days after news of his relapse, Lincoln began 28 days of chemotherapy, which meant he spent Christmas in the hospital.\",\"nodeType\":\"text\"}\n6106:[\"$6107\"]\n6104:{\"data\":\"$6105\",\"content\":\"$6106\",\"nodeType\":\"paragraph\"}\n610b:{}\n610e:{}\n610f:[]\n610d:{\"data\":\"$610e\",\"marks\":\"$610f\",\"value\":\"Like they did with the first diagnosis, Lincolnâs doctors had a plan and Lincoln held on to the power he felt ringing the bell.\",\"nodeType\":\"text\"}\n610c:[\"$610d\"]\n610a:{\"data\":\"$610b\",\"content\":\"$610c\",\"nodeType\":\"paragraph\"}\n6111:{}\n6114:{}\n6115:[]\n6113:{\"data\":\"$6114\",\"marks\":\"$6115\",\"value\":\"âWeâre taking this one day at a time. We celebrate every victory â and there have been "])</script>
1<script>self.__next_f.push([1,"many. Keeping Lincolnâs spirits have been riding high with friends and family shaving their heads in solidarity with him,â Camey said.\",\"nodeType\":\"text\"}\n6112:[\"$6113\"]\n6110:{\"data\":\"$6111\",\"content\":\"$6112\",\"nodeType\":\"paragraph\"}\n6117:{}\n611a:{}\n611b:[]\n6119:{\"data\":\"$611a\",\"marks\":\"$611b\",\"value\":\"And like they did before, the Childrenâs family has been by their side. Theyâve also become even more deeply grateful for the leading-edge care and research advancements that have been made possible thanks to donor support.\",\"nodeType\":\"text\"}\n6118:[\"$6119\"]\n6116:{\"data\":\"$6117\",\"content\":\"$6118\",\"nodeType\":\"paragraph\"}\n611d:{}\n6120:{}\n6121:[]\n611f:{\"data\":\"$6120\",\"marks\":\"$6121\",\"value\":\"âIf the chemotherapy works like itâs supposed to, Lincoln will have a bone marrow transplant. If thereâs any trace of cancer, weâll pursue CAR T-cell therapy,â Camey said. âWe participated in research the last time and research has brought us these options today. We wonât give up hope.â\",\"nodeType\":\"text\"}\n611e:[\"$611f\"]\n611c:{\"data\":\"$611d\",\"content\":\"$611e\",\"nodeType\":\"paragraph\"}\n6123:{}\n6126:{}\n6127:[]\n6125:{\"data\":\"$6126\",\"marks\":\"$6127\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n6124:[\"$6125\"]\n6122:{\"data\":\"$6123\",\"content\":\"$6124\",\"nodeType\":\"heading-3\"}\n6129:{}\n612c:{}\n612d:[]\n612b:{\"data\":\"$612c\",\"marks\":\"$612d\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n612f:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n6132:{}\n6133:[]\n6131:{\"data\":\"$6132\",\"marks\":\"$6133\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n6130:[\"$6131\"]\n612e:{\"data\":\"$612f\",\"content\":\"$6130\",\"nodeType\":\"hyperlink\"}\n6135:{}\n6136:[]\n6134:{\"data\":\"$6135\",\"marks\":\"$6136\",\"value\":\" like Lincoln's and meet our \",\"nodeType\":\"text\"}\n6138:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n613b:{}\n613c:[]\n613a:{\"data\":\"$613b\",\"marks\":\"$613c\",\"value\":\"Patient Ambassadors\",\"nodeType\":\"text\"}\n6139:[\"$613a\"]\n6137:{\"data\":\"$6138\",\"content\":\"$6139\",\"nodeType\":\"hyperlink\"}\n613e:{}\n613f:[]\n613d:{\"data\":\"$"])</script>
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1<script>self.__next_f.push([1,"\":\"Entry\",\"createdAt\":\"2025-02-06T21:22:18.861Z\",\"updatedAt\":\"2026-01-29T22:29:45.673Z\",\"environment\":\"$61a9\",\"publishedVersion\":24,\"revision\":5,\"contentType\":\"$61ab\",\"locale\":\"en-US\"}\n61af:{}\n61b2:{}\n61b5:{}\n61b6:[]\n61b4:{\"data\":\"$61b5\",\"marks\":\"$61b6\",\"value\":\"Olivia, 5, is proud of her most recent accomplishment: going all the way across the monkey bars hand-over-hand without any help. A curious, kind-hearted child with an adventurous streak, sheâs like many little girls her age who love princesses, the movie Frozen and LOL mini dolls. Yet thereâs one big thing that sets her apart from her peers and thatâs her hero, baby angel Killian. The reason, she says, âis because he gave me his heart.â \",\"nodeType\":\"text\"}\n61b3:[\"$61b4\"]\n61b1:{\"data\":\"$61b2\",\"content\":\"$61b3\",\"nodeType\":\"paragraph\"}\n61b8:{}\n61bb:{}\n61bc:[]\n61ba:{\"data\":\"$61bb\",\"marks\":\"$61bc\",\"value\":\"In 2023, Olivia celebrated the 5-year anniversary of her transplant conducted at The Heart Center at Childrenâs Health in Dallas â the place she calls the balloon hospital. Itâs also the place where cardiac neurodevelopmental specialists on Oliviaâs care team made sure that the damage done by a congenital abnormality in her heart didnât cause permanent damage to her brain. \",\"nodeType\":\"text\"}\n61b9:[\"$61ba\"]\n61b7:{\"data\":\"$61b8\",\"content\":\"$61b9\",\"nodeType\":\"paragraph\"}\n61be:{}\n61bf:[]\n61bd:{\"data\":\"$61be\",\"content\":\"$61bf\",\"nodeType\":\"embedded-entry-block\"}\n61c1:{}\n61c4:{}\n61c5:[]\n61c3:{\"data\":\"$61c4\",\"marks\":\"$61c5\",\"value\":\"A newbornâs dire circumstances \",\"nodeType\":\"text\"}\n61c2:[\"$61c3\"]\n61c0:{\"data\":\"$61c1\",\"content\":\"$61c2\",\"nodeType\":\"heading-3\"}\n61c7:{}\n61ca:{}\n61cb:[]\n61c9:{\"data\":\"$61ca\",\"marks\":\"$61cb\",\"value\":\"Two days after Oliviaâs birth, her parents were caught completely off guard when she was diagnosed with aortic valve stenosis at the hospital where she was born. \",\"nodeType\":\"text\"}\n61c8:[\"$61c9\"]\n61c6:{\"data\":\"$61c7\",\"content\":\"$61c8\",\"nodeType\":\"paragraph\"}\n61cd:{}\n61d0:{}\n61d1:[]\n61cf:{\"data\":\"$61d0\",\"marks\":\"$"])</script>
1<script>self.__next_f.push([1,"61d1\",\"value\":\"The condition is characterized by a narrowing of the valve in the aorta â the bodyâs main artery that branches off the heart. This narrowing keeps the aorta from opening fully, reducing blood flow to the body and making the heart work harder. \",\"nodeType\":\"text\"}\n61ce:[\"$61cf\"]\n61cc:{\"data\":\"$61cd\",\"content\":\"$61ce\",\"nodeType\":\"paragraph\"}\n61d3:{}\n61d6:{}\n61d7:[]\n61d5:{\"data\":\"$61d6\",\"marks\":\"$61d7\",\"value\":\"In addition, only one of the aortaâs three leaflets â flaps that prevent blood from seeping back into the heart â was working. \",\"nodeType\":\"text\"}\n61d4:[\"$61d5\"]\n61d2:{\"data\":\"$61d3\",\"content\":\"$61d4\",\"nodeType\":\"paragraph\"}\n61d9:{}\n61dc:{}\n61dd:[]\n61db:{\"data\":\"$61dc\",\"marks\":\"$61dd\",\"value\":\"By the time Olivia was transferred to Childrenâs Health on her one-week birthday, she had already survived cardiac arrest, a full hour of chest compressions to resuscitate her, tubes implanted in her neck so she could be hooked up to a life-support machine, and a brain bleed. \",\"nodeType\":\"text\"}\n61da:[\"$61db\"]\n61d8:{\"data\":\"$61d9\",\"content\":\"$61da\",\"nodeType\":\"paragraph\"}\n61df:{}\n61e2:{}\n61e3:[]\n61e1:{\"data\":\"$61e2\",\"marks\":\"$61e3\",\"value\":\"Her case was so complex and had become so dire, a group of 40 Childrenâs Health and UT Southwestern surgeons convened to talk about next steps and possibilities. They decided to try an extremely high-risk valve replacement â a last-chance effort to save Oliviaâs heart before she would need a donor heart. \\n\\nDuring her recovery from surgery, just as she was being taken off the life support machine and having her chest closed, she suffered three strokes that sent blood clots to her brain. \",\"nodeType\":\"text\"}\n61e0:[\"$61e1\"]\n61de:{\"data\":\"$61df\",\"content\":\"$61e0\",\"nodeType\":\"paragraph\"}\n61e5:{}\n61e8:{}\n61e9:[]\n61e7:{\"data\":\"$61e8\",\"marks\":\"$61e9\",\"value\":\"In the end, the valve replacement would not be viable long term, so Olivia was placed on the transplant wait list for a new heart. \",\"nodeType\":\"text\"}\n61e6:[\"$61e7\"]\n61e4:{\"data\":\"$61e5\",\"content\":\""])</script>
1<script>self.__next_f.push([1,"$61e6\",\"nodeType\":\"paragraph\"}\n61eb:{}\n61ee:{}\n61ef:[]\n61ed:{\"data\":\"$61ee\",\"marks\":\"$61ef\",\"value\":\"And if news of a heart transplant wasnât distressing enough, her parents, Jacqueline and Miguel, were told their daughter likely would grow up with weakness on one side of her body, vision problems and cognitive delays. \",\"nodeType\":\"text\"}\n61ec:[\"$61ed\"]\n61ea:{\"data\":\"$61eb\",\"content\":\"$61ec\",\"nodeType\":\"paragraph\"}\n61f1:{}\n61f4:{}\n61f5:[]\n61f3:{\"data\":\"$61f4\",\"marks\":\"$61f5\",\"value\":\"Mitigating developmental challenges\",\"nodeType\":\"text\"}\n61f2:[\"$61f3\"]\n61f0:{\"data\":\"$61f1\",\"content\":\"$61f2\",\"nodeType\":\"heading-3\"}\n61f7:{}\n61fa:{}\n61fb:[]\n61f9:{\"data\":\"$61fa\",\"marks\":\"$61fb\",\"value\":\"Dr. Corinne Anton, Oliviaâs pediatric neuropsychologist, said that infants like Olivia who have undergone heart surgery are at a higher risk of having developmental challenges like learning differences, language and motor delays, and attention difficulties. \",\"nodeType\":\"text\"}\n61f8:[\"$61f9\"]\n61f6:{\"data\":\"$61f7\",\"content\":\"$61f8\",\"nodeType\":\"paragraph\"}\n61fd:{}\n6200:{}\n6201:[]\n61ff:{\"data\":\"$6200\",\"marks\":\"$6201\",\"value\":\"âOlivia also suffered neurological insults to her brain, including strokes, seizures and blood clots,â she explained. âThese events can rob an infantâs brain of oxygen â and may affect their quality of life for the long term.â \",\"nodeType\":\"text\"}\n61fe:[\"$61ff\"]\n61fc:{\"data\":\"$61fd\",\"content\":\"$61fe\",\"nodeType\":\"paragraph\"}\n6203:{}\n6206:{}\n6207:[]\n6205:{\"data\":\"$6206\",\"marks\":\"$6207\",\"value\":\"Dr. Anton directs The Heart Centerâs Cardiac Neurodevelopmental Program, the only program of its kind in north Texas. The programâs goal is simple: to improve kidsâ success in life after heart surgery so theyâll be able to fulfill their dreams and goals. \",\"nodeType\":\"text\"}\n6204:[\"$6205\"]\n6202:{\"data\":\"$6203\",\"content\":\"$6204\",\"nodeType\":\"paragraph\"}\n6209:{}\n620c:{}\n620d:[]\n620b:{\"data\":\"$620c\",\"marks\":\"$620d\",\"value\":\"For Olivia, the inpatient neurodevelopmental team started feeding-therapy and infan"])</script>
1<script>self.__next_f.push([1,"t-parent bonding activities right when she was admitted to The Heart Center. \",\"nodeType\":\"text\"}\n620a:[\"$620b\"]\n6208:{\"data\":\"$6209\",\"content\":\"$620a\",\"nodeType\":\"paragraph\"}\n620f:{\"target\":\"$ca0\"}\n6210:[]\n620e:{\"data\":\"$620f\",\"content\":\"$6210\",\"nodeType\":\"embedded-entry-block\"}\n6212:{}\n6215:{}\n6216:[]\n6214:{\"data\":\"$6215\",\"marks\":\"$6216\",\"value\":\"A familyâs life-changing journey\",\"nodeType\":\"text\"}\n6213:[\"$6214\"]\n6211:{\"data\":\"$6212\",\"content\":\"$6213\",\"nodeType\":\"heading-3\"}\n6218:{}\n621b:{}\n621c:[]\n621a:{\"data\":\"$621b\",\"marks\":\"$621c\",\"value\":\"Before Olivia received her donor heart in May 2018 on her 3-month birthday, her lead cardiologist gave Miguel and Jacqueline this advice: Let your daughter live her life and donât hover every time she gets a runny nose. \",\"nodeType\":\"text\"}\n6219:[\"$621a\"]\n6217:{\"data\":\"$6218\",\"content\":\"$6219\",\"nodeType\":\"paragraph\"}\n621e:{}\n621f:[]\n621d:{\"data\":\"$621e\",\"content\":\"$621f\",\"nodeType\":\"embedded-entry-block\"}\n6221:{}\n6224:{}\n6225:[]\n6223:{\"data\":\"$6224\",\"marks\":\"$6225\",\"value\":\"Though they do their best not to make Olivia feel different than other kids, theyâre proud that their daughterâs journey has changed the trajectory of their own lives. \",\"nodeType\":\"text\"}\n6222:[\"$6223\"]\n6220:{\"data\":\"$6221\",\"content\":\"$6222\",\"nodeType\":\"paragraph\"}\n6227:{}\n622a:{}\n622b:[]\n6229:{\"data\":\"$622a\",\"marks\":\"$622b\",\"value\":\"Jacqueline, once a pediatrician, now works for the Southwest Transplant Alliance â Dallas areaâs local organ procurement organization â managing a team that offers hope and meaning through organ donation to families losing a loved one. Itâs the same organization that had once followed Olivia as a potential organ donor. \",\"nodeType\":\"text\"}\n6228:[\"$6229\"]\n6226:{\"data\":\"$6227\",\"content\":\"$6228\",\"nodeType\":\"paragraph\"}\n622d:{}\n6230:{}\n6231:[]\n622f:{\"data\":\"$6230\",\"marks\":\"$6231\",\"value\":\"In 2019, Miguel accepted an invitation to become a trustee on the Childrenâs Medical Center Foundation Board. \",\"nodeType\":\"text\"}\n622e:[\"$622f\"]\n622c:{\"data\":\"$622d\",\"cont"])</script>
1<script>self.__next_f.push([1,"ent\":\"$622e\",\"nodeType\":\"paragraph\"}\n6233:{\"target\":\"$cac\"}\n6234:[]\n6232:{\"data\":\"$6233\",\"content\":\"$6234\",\"nodeType\":\"embedded-entry-block\"}\n6236:{}\n6239:{}\n623a:[]\n6238:{\"data\":\"$6239\",\"marks\":\"$623a\",\"value\":\"Miguel went on to say that continued generosity from the community is key to helping more kids survive and thrive. âThe power of giving helps children in desperate need today have access to the same intensive care that made Oliviaâs life possible.â \",\"nodeType\":\"text\"}\n6237:[\"$6238\"]\n6235:{\"data\":\"$6236\",\"content\":\"$6237\",\"nodeType\":\"paragraph\"}\n623c:{}\n623f:{}\n6240:[]\n623e:{\"data\":\"$623f\",\"marks\":\"$6240\",\"value\":\"To give other families a kid-friendly resource to talk about transplants, Miguel and Jacqueline wrote a childrenâs book titled âOliviaâs New Heart.â All proceeds are donated to The Heart Center at Childrenâs Health. \",\"nodeType\":\"text\"}\n623d:[\"$623e\"]\n623b:{\"data\":\"$623c\",\"content\":\"$623d\",\"nodeType\":\"paragraph\"}\n6242:{}\n6243:[]\n6241:{\"data\":\"$6242\",\"content\":\"$6243\",\"nodeType\":\"embedded-entry-block\"}\n6245:{}\n6248:{}\n6249:[]\n6247:{\"data\":\"$6248\",\"marks\":\"$6249\",\"value\":\"Overcoming all odds \",\"nodeType\":\"text\"}\n6246:[\"$6247\"]\n6244:{\"data\":\"$6245\",\"content\":\"$6246\",\"nodeType\":\"heading-3\"}\n624b:{}\n624e:{}\n624f:[]\n624d:{\"data\":\"$624e\",\"marks\":\"$624f\",\"value\":\"For the first four months of her life, Olivia was in a hospital bed connected by wires and tubes to machines that sustained her life, but also contributed to gross motor delays, feeding challenges and deficits in early language development. As soon as she was discharged, The Heart Centerâs outpatient neurodevelopmental team jumped into action. \",\"nodeType\":\"text\"}\n624c:[\"$624d\"]\n624a:{\"data\":\"$624b\",\"content\":\"$624c\",\"nodeType\":\"paragraph\"}\n6251:{}\n6254:{}\n6255:[]\n6253:{\"data\":\"$6254\",\"marks\":\"$6255\",\"value\":\"âShe had a lot of catching up to do,â Jacqueline explained. âDr. Anton and her team were crucial in thinking through and monitoring the physical and occupational therapies that set Olivia up for success.â \",\"nodeT"])</script>
1<script>self.__next_f.push([1,"ype\":\"text\"}\n6252:[\"$6253\"]\n6250:{\"data\":\"$6251\",\"content\":\"$6252\",\"nodeType\":\"paragraph\"}\n6257:{}\n625a:{}\n625b:[]\n6259:{\"data\":\"$625a\",\"marks\":\"$625b\",\"value\":\"Today, Olivia is a kindergartener in a dual-language (English-Spanish) program who is right on track with her classmates. In addition to reading, she loves to paint, swim, dance and make new friends. And every 18 months, Dr. Anton assesses Oliviaâs developmental milestones and shares new ways to support her progress â a process that Jacqueline said empowers her to be a better mother. \",\"nodeType\":\"text\"}\n6258:[\"$6259\"]\n6256:{\"data\":\"$6257\",\"content\":\"$6258\",\"nodeType\":\"paragraph\"}\n625d:{}\n6260:{}\n6261:[]\n625f:{\"data\":\"$6260\",\"marks\":\"$6261\",\"value\":\"For Miguel, Olivia is a direct testament to the life-saving care being provided at The Heart Center at Children's Health. âThey took Olivia, a child that was literally a heartbeat away from death, and turned her weak heartbeat into a strong rhythm that will sustain her â and her dreams â for a very long time.\\\" \",\"nodeType\":\"text\"}\n625e:[\"$625f\"]\n625c:{\"data\":\"$625d\",\"content\":\"$625e\",\"nodeType\":\"paragraph\"}\n6263:{}\n6266:{}\n6267:[]\n6265:{\"data\":\"$6266\",\"marks\":\"$6267\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n6264:[\"$6265\"]\n6262:{\"data\":\"$6263\",\"content\":\"$6264\",\"nodeType\":\"heading-3\"}\n6269:{}\n626c:{}\n626d:[]\n626b:{\"data\":\"$626c\",\"marks\":\"$626d\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n626f:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n6272:{}\n6273:[]\n6271:{\"data\":\"$6272\",\"marks\":\"$6273\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n6270:[\"$6271\"]\n626e:{\"data\":\"$626f\",\"content\":\"$6270\",\"nodeType\":\"hyperlink\"}\n6275:{}\n6276:[]\n6274:{\"data\":\"$6275\",\"marks\":\"$6276\",\"value\":\" like Olivia's and meet our \",\"nodeType\":\"text\"}\n6278:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n627b:{}\n627c:[]\n627a:{\"data\":\"$627b\",\"marks\":\"$627c\",\"value\":\"Patient Ambassadors\",\"nodeType\":\"text\"}\n6279:[\"$627a\"]\n6277:{\"data\":\"$6278\",\"content\":\"$6279\",\"nodeType\":\"hyperlink\""])</script>
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1<script>self.__next_f.push([1,"\"$62e9\"}\n62eb:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n62ea:{\"sys\":\"$62eb\"}\n62ed:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n62ec:{\"sys\":\"$62ed\"}\n62e7:{\"space\":\"$62e8\",\"id\":\"7fAVei6mYY9EXfd2VjB9kG\",\"type\":\"Entry\",\"createdAt\":\"2025-02-06T22:32:30.446Z\",\"updatedAt\":\"2026-01-29T21:11:24.139Z\",\"environment\":\"$62ea\",\"publishedVersion\":19,\"revision\":3,\"contentType\":\"$62ec\",\"locale\":\"en-US\"}\n62f0:{}\n62f3:{}\n62f6:{}\n62f7:[]\n62f5:{\"data\":\"$62f6\",\"marks\":\"$62f7\",\"value\":\"Amelia wants to be a doctor when she grows up. She wants to help people with illnesses and diseases, just like her physicians and nurses at Childrenâs Healthâ have helped her since she was a baby.\",\"nodeType\":\"text\"}\n62f4:[\"$62f5\"]\n62f2:{\"data\":\"$62f3\",\"content\":\"$62f4\",\"nodeType\":\"paragraph\"}\n62f9:{}\n62fc:{}\n62fd:[]\n62fb:{\"data\":\"$62fc\",\"marks\":\"$62fd\",\"value\":\"But first? She wants to play more soccer and explore nature a bit. Those are exciting plans for a 9-year-old who was diagnosed with cerebral palsy and told she would struggle to be physically active.\",\"nodeType\":\"text\"}\n62fa:[\"$62fb\"]\n62f8:{\"data\":\"$62f9\",\"content\":\"$62fa\",\"nodeType\":\"paragraph\"}\n62ff:{}\n6302:{}\n6303:[]\n6301:{\"data\":\"$6302\",\"marks\":\"$6303\",\"value\":\"From Emergent to Energetic\",\"nodeType\":\"text\"}\n6300:[\"$6301\"]\n62fe:{\"data\":\"$62ff\",\"content\":\"$6300\",\"nodeType\":\"heading-3\"}\n6305:{}\n6308:{}\n6309:[]\n6307:{\"data\":\"$6308\",\"marks\":\"$6309\",\"value\":\"Amelia was 4 months old when her now adoptive mother, Robin, met her. Sheâd spent the first 11 weeks of her life in a local NICU because she was born prematurely.\",\"nodeType\":\"text\"}\n6306:[\"$6307\"]\n6304:{\"data\":\"$6305\",\"content\":\"$6306\",\"nodeType\":\"paragraph\"}\n630b:{}\n630c:[]\n630a:{\"data\":\"$630b\",\"content\":\"$630c\",\"nodeType\":\"embedded-entry-block\"}\n630e:{}\n6311:{}\n6312:[]\n6310:{\"data\":\"$6311\",\"marks\":\"$6312\",\"value\":\"The baby wasnât the first child for Robin and her husband, Henk, to adopt or foster. But a note from Ameliaâs birth mom worried Robin.\",\"nodeType\":\"text\"}\n630f:[\"$6310\"]\n630d:{\"data\":\"$630e\",\"con"])</script>
1<script>self.__next_f.push([1,"tent\":\"$630f\",\"nodeType\":\"paragraph\"}\n6314:{}\n6317:{}\n6318:[]\n6316:{\"data\":\"$6317\",\"marks\":\"$6318\",\"value\":\"âIt said that sometimes when Amelia ate, she stopped breathing,â Robin said.\",\"nodeType\":\"text\"}\n6315:[\"$6316\"]\n6313:{\"data\":\"$6314\",\"content\":\"$6315\",\"nodeType\":\"paragraph\"}\n631a:{}\n631d:{}\n631e:[]\n631c:{\"data\":\"$631d\",\"marks\":\"$631e\",\"value\":\"Within 24 hours, Robin was on the phone with Elsa Alexander, RN, Clinical Coordinator at the Rees-Jones Center for Foster Care Excellence at Children's Health.\",\"nodeType\":\"text\"}\n631b:[\"$631c\"]\n6319:{\"data\":\"$631a\",\"content\":\"$631b\",\"nodeType\":\"paragraph\"}\n6320:{}\n6323:{}\n6324:[]\n6322:{\"data\":\"$6323\",\"marks\":\"$6324\",\"value\":\"As Robin described Amelia's respiratory and feeding issues, Elsa recognized that something was drastically wrong. Robin soon received a call back from a physician at the foster care clinic who told her to bring Amelia to the emergency room (ER) as soon as she could.\",\"nodeType\":\"text\"}\n6321:[\"$6322\"]\n631f:{\"data\":\"$6320\",\"content\":\"$6321\",\"nodeType\":\"paragraph\"}\n6326:{}\n6329:{}\n632a:[]\n6328:{\"data\":\"$6329\",\"marks\":\"$632a\",\"value\":\"Robin said the family didnât know it at the time, but that intervention is what saved Ameliaâs life. \",\"nodeType\":\"text\"}\n6327:[\"$6328\"]\n6325:{\"data\":\"$6326\",\"content\":\"$6327\",\"nodeType\":\"paragraph\"}\n632c:{\"target\":\"$cb8\"}\n632d:[]\n632b:{\"data\":\"$632c\",\"content\":\"$632d\",\"nodeType\":\"embedded-entry-block\"}\n632f:{}\n6332:{}\n6333:[]\n6331:{\"data\":\"$6332\",\"marks\":\"$6333\",\"value\":\"Guided by the attentive care at the foster care clinic in conjunction with her local NICU, Robin and Henk discovered that Amelia had patent ductus arteriosus (PDA), an opening in her heart that needed to be repaired quickly.\",\"nodeType\":\"text\"}\n6330:[\"$6331\"]\n632e:{\"data\":\"$632f\",\"content\":\"$6330\",\"nodeType\":\"paragraph\"}\n6335:{}\n6338:{}\n6339:[]\n6337:{\"data\":\"$6338\",\"marks\":\"$6339\",\"value\":\"Days later, she underwent successful heart surgery.\",\"nodeType\":\"text\"}\n6336:[\"$6337\"]\n6334:{\"data\":\"$6335\",\"content\":\"$6336\",\"nodeType\":\"paragraph\"}\n633b:{"])</script>
1<script>self.__next_f.push([1,"}\n633c:[]\n633a:{\"data\":\"$633b\",\"content\":\"$633c\",\"nodeType\":\"embedded-entry-block\"}\n633e:{}\n6341:{}\n6342:[]\n6340:{\"data\":\"$6341\",\"marks\":\"$6342\",\"value\":\"Although her heart issues were resolved, she struggled, missing milestones. Even the support of early interventions, including speech, feeding and occupational therapies, was insufficient to get Amelia back on track. \",\"nodeType\":\"text\"}\n633f:[\"$6340\"]\n633d:{\"data\":\"$633e\",\"content\":\"$633f\",\"nodeType\":\"paragraph\"}\n6344:{}\n6347:{}\n6348:[]\n6346:{\"data\":\"$6347\",\"marks\":\"$6348\",\"value\":\"Thatâs when Sara Moore, DNP, a pediatric nurse practitioner who worked with Amelia in the Rees-Jones Foster clinic throughout her journey, began to suspect something neurological.\",\"nodeType\":\"text\"}\n6345:[\"$6346\"]\n6343:{\"data\":\"$6344\",\"content\":\"$6345\",\"nodeType\":\"paragraph\"}\n634a:{}\n634d:{}\n634e:[]\n634c:{\"data\":\"$634d\",\"marks\":\"$634e\",\"value\":\"Saraâs continuous care and intuition were correct. At 22 months, Amelia was diagnosed with cerebral palsy.\",\"nodeType\":\"text\"}\n634b:[\"$634c\"]\n6349:{\"data\":\"$634a\",\"content\":\"$634b\",\"nodeType\":\"paragraph\"}\n6350:{}\n6353:{}\n6354:[]\n6352:{\"data\":\"$6353\",\"marks\":\"$6354\",\"value\":\"The diagnosis meant Amelia might never play sports or dance in a recital. She could struggle with mobility for the rest of her life. \",\"nodeType\":\"text\"}\n6351:[\"$6352\"]\n634f:{\"data\":\"$6350\",\"content\":\"$6351\",\"nodeType\":\"paragraph\"}\n6356:{}\n6359:{}\n635a:[]\n6358:{\"data\":\"$6359\",\"marks\":\"$635a\",\"value\":\"Cerebral palsy is one of the most common motor disabilities in childhood, according to the Centers for Disease Control. This neurological disorder can manifest in many ways, including jerky movements, spasms or shaking.\",\"nodeType\":\"text\"}\n6357:[\"$6358\"]\n6355:{\"data\":\"$6356\",\"content\":\"$6357\",\"nodeType\":\"paragraph\"}\n635c:{}\n635f:{}\n6360:[]\n635e:{\"data\":\"$635f\",\"marks\":\"$6360\",\"value\":\"For Amelia, physical milestones were harder to reach â sitting up, crawling and walking were all difficult for her. Leg and arm braces helped her with normal mobility but held her back from"])</script>
1<script>self.__next_f.push([1," running, jumping, climbing stairs and enjoying activities like other children her age. \",\"nodeType\":\"text\"}\n635d:[\"$635e\"]\n635b:{\"data\":\"$635c\",\"content\":\"$635d\",\"nodeType\":\"paragraph\"}\n6362:{}\n6365:{}\n6366:[]\n6364:{\"data\":\"$6365\",\"marks\":\"$6366\",\"value\":\"Luckily, Amelia had the support of a team of doctors and therapists who didnât accept her diagnosis as final. Instead, they saw it as a challenge. They treated her symptoms at the root, using early intervention to retrain her brain and body to work as one.\",\"nodeType\":\"text\"}\n6363:[\"$6364\"]\n6361:{\"data\":\"$6362\",\"content\":\"$6363\",\"nodeType\":\"paragraph\"}\n6368:{\"target\":\"$cc4\"}\n6369:[]\n6367:{\"data\":\"$6368\",\"content\":\"$6369\",\"nodeType\":\"embedded-entry-block\"}\n636b:{}\n636e:{}\n636f:[]\n636d:{\"data\":\"$636e\",\"marks\":\"$636f\",\"value\":\"Donors Drive Healthy Outcomes \",\"nodeType\":\"text\"}\n636c:[\"$636d\"]\n636a:{\"data\":\"$636b\",\"content\":\"$636c\",\"nodeType\":\"heading-3\"}\n6371:{}\n6374:{}\n6375:[]\n6373:{\"data\":\"$6374\",\"marks\":\"$6375\",\"value\":\"Last year, Ameliaâs orthopedic doctor graduated her from care. While she will always have cerebral palsy, the continuity of care and persistence that she received from her care team rewrote Ameliaâs story. \",\"nodeType\":\"text\"}\n6372:[\"$6373\"]\n6370:{\"data\":\"$6371\",\"content\":\"$6372\",\"nodeType\":\"paragraph\"}\n6377:{}\n637a:{}\n637b:[]\n6379:{\"data\":\"$637a\",\"marks\":\"$637b\",\"value\":\"Now, Amelia walks without leg braces and is exploring her new favorite hobby â kicking a soccer ball. She doesnât look like her original MRI scan. \",\"nodeType\":\"text\"}\n6378:[\"$6379\"]\n6376:{\"data\":\"$6377\",\"content\":\"$6378\",\"nodeType\":\"paragraph\"}\n637d:{}\n637e:[]\n637c:{\"data\":\"$637d\",\"content\":\"$637e\",\"nodeType\":\"embedded-entry-block\"}\n6380:{}\n6383:{}\n6384:[]\n6382:{\"data\":\"$6383\",\"marks\":\"$6384\",\"value\":\"Robin said Ameliaâs success is completely due to the continuous care of the team of clinicians at Childrenâs Health and the foster care clinic. Not only do they offer advanced care for complex medical cases like Ameliaâs, but they create a continuity of care for th"])</script>
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1<script>self.__next_f.push([1,"ourse,â Madelyn said. âMost kids are fine after a few weeks, although about 20% develop kidney issues. Unfortunately, Shay was in that 20%.â \",\"nodeType\":\"text\"}\n6489:[\"$648a\"]\n6487:{\"data\":\"$6488\",\"content\":\"$6489\",\"nodeType\":\"paragraph\"}\n648e:{}\n6491:{}\n6492:[]\n6490:{\"data\":\"$6491\",\"marks\":\"$6492\",\"value\":\"Her pediatrician did weekly urine tests to watch for any kidney problems. Just after Thanksgiving, they found blood in her urine. Thatâs when they first came to Childrenâs Healthâ . \",\"nodeType\":\"text\"}\n648f:[\"$6490\"]\n648d:{\"data\":\"$648e\",\"content\":\"$648f\",\"nodeType\":\"paragraph\"}\n6494:{}\n6497:{}\n6498:[]\n6496:{\"data\":\"$6497\",\"marks\":\"$6498\",\"value\":\"âWe thought this was just something weâd deal with for a few weeks and then move on,â Madelyn said. âI never considered how bad it might get and how quickly.â \",\"nodeType\":\"text\"}\n6495:[\"$6496\"]\n6493:{\"data\":\"$6494\",\"content\":\"$6495\",\"nodeType\":\"paragraph\"}\n649a:{}\n649b:[]\n6499:{\"data\":\"$649a\",\"content\":\"$649b\",\"nodeType\":\"embedded-entry-block\"}\n649d:{}\n64a0:{}\n64a1:[]\n649f:{\"data\":\"$64a0\",\"marks\":\"$64a1\",\"value\":\"Treating patients, not diseases\",\"nodeType\":\"text\"}\n649e:[\"$649f\"]\n649c:{\"data\":\"$649d\",\"content\":\"$649e\",\"nodeType\":\"heading-3\"}\n64a3:{}\n64a6:{}\n64a7:[]\n64a5:{\"data\":\"$64a6\",\"marks\":\"$64a7\",\"value\":\"Shay's doctors on the Children's Health nephrology team hoped that the simplest treatment would slow down her kidney issues. \",\"nodeType\":\"text\"}\n64a4:[\"$64a5\"]\n64a2:{\"data\":\"$64a3\",\"content\":\"$64a4\",\"nodeType\":\"paragraph\"}\n64a9:{}\n64ac:{}\n64ad:[]\n64ab:{\"data\":\"$64ac\",\"marks\":\"$64ad\",\"value\":\"âIt became clear that the treatments that usually worked for other kids did not work for Shay,â Scott said. âHer doctors always told us âwe treat patients, not diseases,â and that we'd keep trying until we found what works for Shay, rather than what works for most kids.â \",\"nodeType\":\"text\"}\n64aa:[\"$64ab\"]\n64a8:{\"data\":\"$64a9\",\"content\":\"$64aa\",\"nodeType\":\"paragraph\"}\n64af:{}\n64b2:{}\n64b3:[]\n64b1:{\"data\":\"$64b2\",\"marks\":\"$64b3\",\"value\":\"H"])</script>
1<script>self.__next_f.push([1,"er kidney disease ultimately developed into IgA nephropathy, which causes swelling in the kidneys and can lead to other complications like high blood pressure and kidney failure. It was one of the most severe cases her doctors had ever seen. \",\"nodeType\":\"text\"}\n64b0:[\"$64b1\"]\n64ae:{\"data\":\"$64af\",\"content\":\"$64b0\",\"nodeType\":\"paragraph\"}\n64b5:{}\n64b8:{}\n64b9:[]\n64b7:{\"data\":\"$64b8\",\"marks\":\"$64b9\",\"value\":\"The treatment that finally turned the tables for Shay was dialysis, a treatment that helps remove fluid and waste from the body when the kidneys are unable to. \",\"nodeType\":\"text\"}\n64b6:[\"$64b7\"]\n64b4:{\"data\":\"$64b5\",\"content\":\"$64b6\",\"nodeType\":\"paragraph\"}\n64bb:{}\n64be:{}\n64bf:[]\n64bd:{\"data\":\"$64be\",\"marks\":\"$64bf\",\"value\":\"âBefore she got sick, all she ever wanted to do was kick a soccer ball,â Scott said. âNow, after starting dialysis almost a year later, she finally wants to do that again.â \",\"nodeType\":\"text\"}\n64bc:[\"$64bd\"]\n64ba:{\"data\":\"$64bb\",\"content\":\"$64bc\",\"nodeType\":\"paragraph\"}\n64c1:{}\n64c4:{}\n64c5:[]\n64c3:{\"data\":\"$64c4\",\"marks\":\"$64c5\",\"value\":\"Something fun during hard times \",\"nodeType\":\"text\"}\n64c2:[\"$64c3\"]\n64c0:{\"data\":\"$64c1\",\"content\":\"$64c2\",\"nodeType\":\"heading-3\"}\n64c7:{}\n64ca:{}\n64cb:[]\n64c9:{\"data\":\"$64ca\",\"marks\":\"$64cb\",\"value\":\"Shayâs medical journey is far from over. Sheâll continue to receive dialysis treatments several days per week and will likely need a kidney transplant in a few years. But Shayâs parents are there for her through everything and are grateful to have an expert care team on their side. \",\"nodeType\":\"text\"}\n64c8:[\"$64c9\"]\n64c6:{\"data\":\"$64c7\",\"content\":\"$64c8\",\"nodeType\":\"paragraph\"}\n64cd:{}\n64d0:{}\n64d1:[]\n64cf:{\"data\":\"$64d0\",\"marks\":\"$64d1\",\"value\":\"âAshley on the dialysis team knows that Shay does better when she knows what to expect, so she makes sure to explain everything thatâs coming,â Scott said. \",\"nodeType\":\"text\"}\n64ce:[\"$64cf\"]\n64cc:{\"data\":\"$64cd\",\"content\":\"$64ce\",\"nodeType\":\"paragraph\"}\n64d3:{}\n64d6:{}\n64d7:[]\n64d5:{\"data\":\""])</script>
1<script>self.__next_f.push([1,"$64d6\",\"marks\":\"$64d7\",\"value\":\"âShe also is really good at keeping Shay entertained. Theyâve recently started playing with slime and thatâs really Shayâs jam. She loves anything messy,â Madelyn said. \",\"nodeType\":\"text\"}\n64d4:[\"$64d5\"]\n64d2:{\"data\":\"$64d3\",\"content\":\"$64d4\",\"nodeType\":\"paragraph\"}\n64d9:{}\n64dc:{}\n64dd:[]\n64db:{\"data\":\"$64dc\",\"marks\":\"$64dd\",\"value\":\"They hope that one day Shay will be able to spend less time receiving care and more time playing soccer and just being a kid. Until then, theyâre grateful for their care team and the things that make the hospital a little more fun, like a \",\"nodeType\":\"text\"}\n64df:{\"uri\":\"https://give.childrens.com/about-us/news/articles/therapy-dogs\"}\n64e2:{}\n64e3:[]\n64e1:{\"data\":\"$64e2\",\"marks\":\"$64e3\",\"value\":\"therapy dog\",\"nodeType\":\"text\"}\n64e0:[\"$64e1\"]\n64de:{\"data\":\"$64df\",\"content\":\"$64e0\",\"nodeType\":\"hyperlink\"}\n64e5:{}\n64e6:[]\n64e4:{\"data\":\"$64e5\",\"marks\":\"$64e6\",\"value\":\" named Maze. Shayâs favorite thing is going to Seacrest Studios, a multimedia studio that helps kids explore media during their time in the hospital, and watching the TV shows they put on. \",\"nodeType\":\"text\"}\n64da:[\"$64db\",\"$64de\",\"$64e4\"]\n64d8:{\"data\":\"$64d9\",\"content\":\"$64da\",\"nodeType\":\"paragraph\"}\n64e8:{}\n64eb:{}\n64ec:[]\n64ea:{\"data\":\"$64eb\",\"marks\":\"$64ec\",\"value\":\"âI think sheâs learning to tell time by the Seacreast show. Sheâll insist that weâre ready to watch the morning show at 10:00,â Madelyn laughed. âWeâre grateful for the donors who support those programs to create a positive experience and fun things to look forward to while weâre dealing with hard times.â\",\"nodeType\":\"text\"}\n64e9:[\"$64ea\"]\n64e7:{\"data\":\"$64e8\",\"content\":\"$64e9\",\"nodeType\":\"paragraph\"}\n64ee:{}\n64f1:{}\n64f2:[]\n64f0:{\"data\":\"$64f1\",\"marks\":\"$64f2\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n64ef:[\"$64f0\"]\n64ed:{\"data\":\"$64ee\",\"content\":\"$64ef\",\"nodeType\":\"heading-3\"}\n64f4:{}\n64f7:{}\n64f8:[]\n64f6:{\"data\":\"$64f7\",\"marks\":\"$64f8\",\"value\":\"Read more \",\"nodeTyp"])</script>
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1<script>self.__next_f.push([1,"ing.\",\"nodeType\":\"text\"}\n658d:[\"$658e\"]\n658b:{\"data\":\"$658c\",\"content\":\"$658d\",\"nodeType\":\"paragraph\"}\n6592:{}\n6595:{}\n6596:[]\n6594:{\"data\":\"$6595\",\"marks\":\"$6596\",\"value\":\"The corpus callosum acts like a telephone line allowing the two sides of the brain to send messages back and forth. The breakdown in communication that results from ACC places children at risk for a wide range of health and developmental issues.\",\"nodeType\":\"text\"}\n6593:[\"$6594\"]\n6591:{\"data\":\"$6592\",\"content\":\"$6593\",\"nodeType\":\"paragraph\"}\n6598:{}\n659b:{}\n659c:[]\n659a:{\"data\":\"$659b\",\"marks\":\"$659c\",\"value\":\"Summer and Travis worked to find some equilibrium even though their doctors could not predict how Stella would be affected. Would she have mild neurological issues and a fairly typical life? Significant issues that would require lifelong care? Something in between?\",\"nodeType\":\"text\"}\n6599:[\"$659a\"]\n6597:{\"data\":\"$6598\",\"content\":\"$6599\",\"nodeType\":\"paragraph\"}\n659e:{}\n65a1:{}\n65a2:[]\n65a0:{\"data\":\"$65a1\",\"marks\":\"$65a2\",\"value\":\"âFrom the time we found out, we did our best to educate ourselves and prepare for Stellaâs arrival,â Summer said. âBut what would this look like for her? We really just had no idea.â\",\"nodeType\":\"text\"}\n659f:[\"$65a0\"]\n659d:{\"data\":\"$659e\",\"content\":\"$659f\",\"nodeType\":\"paragraph\"}\n65a4:{}\n65a7:{}\n65a8:[]\n65a6:{\"data\":\"$65a7\",\"marks\":\"$65a8\",\"value\":\"Finding the care Stella needed at Childrenâs Health \",\"nodeType\":\"text\"}\n65a5:[\"$65a6\"]\n65a3:{\"data\":\"$65a4\",\"content\":\"$65a5\",\"nodeType\":\"heading-3\"}\n65aa:{}\n65ad:{}\n65ae:[]\n65ac:{\"data\":\"$65ad\",\"marks\":\"$65ae\",\"value\":\"Stella was born on New Yearâs Day 2023 and her parents immersed themselves in getting to know their little girl, enjoying her personality, and learning to read her cues.\",\"nodeType\":\"text\"}\n65ab:[\"$65ac\"]\n65a9:{\"data\":\"$65aa\",\"content\":\"$65ab\",\"nodeType\":\"paragraph\"}\n65b0:{}\n65b3:{}\n65b4:[]\n65b2:{\"data\":\"$65b3\",\"marks\":\"$65b4\",\"value\":\"At around 7 weeks, they noticed some unusual movements. The first-time parents were unsure of what they"])</script>
1<script>self.__next_f.push([1," were seeing, but Summerâs mom, Donna, realized it could be a seizure. Their pediatrician advised them to take Stella straight to Childrenâs Healthâ in Plano, a top-ranked childrenâs hospital that offers comprehensive care for almost every pediatric health condition and has one of the best pediatric epilepsy centers in the country. \",\"nodeType\":\"text\"}\n65b1:[\"$65b2\"]\n65af:{\"data\":\"$65b0\",\"content\":\"$65b1\",\"nodeType\":\"paragraph\"}\n65b6:{}\n65b9:{}\n65ba:[]\n65b8:{\"data\":\"$65b9\",\"marks\":\"$65ba\",\"value\":\"Over the next few months, Stella was hospitalized four times as the Neurology and Genetics teams at Childrenâs Health worked to calm her seizures and identify their cause. Though the familyâs journey felt overwhelming at times, the care they received from everyone at Childrenâs Health gave Summer and Travis comfort and confidence that they are in the right place.\",\"nodeType\":\"text\"}\n65b7:[\"$65b8\"]\n65b5:{\"data\":\"$65b6\",\"content\":\"$65b7\",\"nodeType\":\"paragraph\"}\n65bc:{}\n65bf:{}\n65c0:[]\n65be:{\"data\":\"$65bf\",\"marks\":\"$65c0\",\"value\":\"âBeing in the hospital with a newborn is terrifying. Seeing her have to go through so many different tests and procedures was heartbreaking, but we knew we had made the first right step by getting her the best care. I canât say enough about the team at Childrenâs Health. Especially the nurses. They knew when to step back and let us take care of Stella and when to step in,â Summer said. âThey also knew what to say. One of the nurses told us âNothing I can tell you in this moment will make this go away, but I can tell you I will be here with you all night.â That really stuck with me, and I think about that when comforting others going through a hard time.â\",\"nodeType\":\"text\"}\n65bd:[\"$65be\"]\n65bb:{\"data\":\"$65bc\",\"content\":\"$65bd\",\"nodeType\":\"paragraph\"}\n65c2:{}\n65c5:{}\n65c6:[]\n65c4:{\"data\":\"$65c5\",\"marks\":\"$65c6\",\"value\":\"Almost immediately after her first hospitalization, Stella started in the Early Childhood Intervention Program (ECI) at Childrenâs Health where she "])</script>
1<script>self.__next_f.push([1,"receives food therapy and vision care. She also receives private physical therapy through Childrenâs Health. \",\"nodeType\":\"text\"}\n65c3:[\"$65c4\"]\n65c1:{\"data\":\"$65c2\",\"content\":\"$65c3\",\"nodeType\":\"paragraph\"}\n65c8:{}\n65cb:{}\n65ce:{}\n65cf:[]\n65cd:{\"data\":\"$65ce\",\"marks\":\"$65cf\",\"value\":\"âWeâre so glad we went to Childrenâs Health right from the start. They were amazing at pinpointing the neurologist who could best care for Stellaâs specific needs. Because everyone there only works with kids, they have specialized skills and experience,â Summer said. âEven placing an IV can be tricky for a small baby. But Childrenâs Health always had someone who knew how to do it just right.â\",\"nodeType\":\"text\"}\n65cc:[\"$65cd\"]\n65ca:{\"data\":\"$65cb\",\"content\":\"$65cc\",\"nodeType\":\"paragraph\"}\n65c9:[\"$65ca\"]\n65c7:{\"data\":\"$65c8\",\"content\":\"$65c9\",\"nodeType\":\"blockquote\"}\n65d1:{}\n65d4:{}\n65d5:[]\n65d3:{\"data\":\"$65d4\",\"marks\":\"$65d5\",\"value\":\"Grounded in the present and hopeful for tomorrow \",\"nodeType\":\"text\"}\n65d2:[\"$65d3\"]\n65d0:{\"data\":\"$65d1\",\"content\":\"$65d2\",\"nodeType\":\"heading-3\"}\n65d7:{}\n65d8:[]\n65d6:{\"data\":\"$65d7\",\"content\":\"$65d8\",\"nodeType\":\"embedded-entry-block\"}\n65da:{}\n65dd:{}\n65de:[]\n65dc:{\"data\":\"$65dd\",\"marks\":\"$65de\",\"value\":\"When Stella was about 5 months old, doctors identified an extremely rare mutation of the TUBA1A gene as the root cause of Stellaâs condition. Fewer than 200 people around the world have this mutation. For Stella, this mutation causes ACC, global development delays, seizures, and visual Impairment due to brain malformation. While the list of challenges Stella faces is long, the family was relieved when brain scans at 9 months didnât show signs of some of the most severe brain malformations the TUBA1A mutation sometimes causes.\",\"nodeType\":\"text\"}\n65db:[\"$65dc\"]\n65d9:{\"data\":\"$65da\",\"content\":\"$65db\",\"nodeType\":\"paragraph\"}\n65e0:{}\n65e3:{}\n65e4:[]\n65e2:{\"data\":\"$65e3\",\"marks\":\"$65e4\",\"value\":\"While Summer and Travis have a lot to manage, they are grounded in the present and hopefu"])</script>
1<script>self.__next_f.push([1,"l for the future. \",\"nodeType\":\"text\"}\n65e1:[\"$65e2\"]\n65df:{\"data\":\"$65e0\",\"content\":\"$65e1\",\"nodeType\":\"paragraph\"}\n65e6:{}\n65e9:{}\n65ea:[]\n65e8:{\"data\":\"$65e9\",\"marks\":\"$65ea\",\"value\":\"âWhen you first get a diagnosis like this, it can feel like the end of the world. But itâs not,â Travis said. âWe try to focus on where we are and not on what we canât change. While we aspire for better things for Stella, we love her for exactly who she is.â\",\"nodeType\":\"text\"}\n65e7:[\"$65e8\"]\n65e5:{\"data\":\"$65e6\",\"content\":\"$65e7\",\"nodeType\":\"paragraph\"}\n65ec:{}\n65ef:{}\n65f0:[]\n65ee:{\"data\":\"$65ef\",\"marks\":\"$65f0\",\"value\":\"Stella, who celebrated her first birthday on Jan. 1, has started to hit milestones that once seemed out of reach. She is able to roll over, sit on her own, and is learning to stand with the help PT. Stella, who is starting to babble, regularly sees her neurologist at Childrenâs Health in Plano and continues with occupational and physical therapy.\",\"nodeType\":\"text\"}\n65ed:[\"$65ee\"]\n65eb:{\"data\":\"$65ec\",\"content\":\"$65ed\",\"nodeType\":\"paragraph\"}\n65f2:{}\n65f5:{}\n65f6:[]\n65f4:{\"data\":\"$65f5\",\"marks\":\"$65f6\",\"value\":\"Feeling blessed \",\"nodeType\":\"text\"}\n65f3:[\"$65f4\"]\n65f1:{\"data\":\"$65f2\",\"content\":\"$65f3\",\"nodeType\":\"heading-3\"}\n65f8:{}\n65fb:{}\n65fc:[]\n65fa:{\"data\":\"$65fb\",\"marks\":\"$65fc\",\"value\":\"The family is grateful for the care of her clinical team and also for the donors who support pediatric research.\",\"nodeType\":\"text\"}\n65f9:[\"$65fa\"]\n65f7:{\"data\":\"$65f8\",\"content\":\"$65f9\",\"nodeType\":\"paragraph\"}\n65fe:{}\n6601:{}\n6602:[]\n6600:{\"data\":\"$6601\",\"marks\":\"$6602\",\"value\":\"âDonors are so important. They help accelerate knowledge about how things like gene mutations affect a childâs development. When money is donated to study conditions that affect children, it raises awareness about their needs. We need stronger voices for them,â Travis said.\",\"nodeType\":\"text\"}\n65ff:[\"$6600\"]\n65fd:{\"data\":\"$65fe\",\"content\":\"$65ff\",\"nodeType\":\"paragraph\"}\n6604:{}\n6607:{}\n6608:[]\n6606:{\"data\":\"$6607\",\"marks\":\"$660"])</script>
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1<script>self.__next_f.push([1,"rlink\"}\n66b3:{}\n66b4:[]\n66b2:{\"data\":\"$66b3\",\"marks\":\"$66b4\",\"value\":\", Pediatric Heart Transplant Cardiologist at Children's Health and Assistant Professor at UT Southwestern, the doctor who kept the familyâs hope and faith strong.\",\"nodeType\":\"text\"}\n66a8:[\"$66a9\",\"$66ac\",\"$66b2\"]\n66a6:{\"data\":\"$66a7\",\"content\":\"$66a8\",\"nodeType\":\"paragraph\"}\n66b6:{}\n66b9:{}\n66ba:[]\n66b8:{\"data\":\"$66b9\",\"marks\":\"$66ba\",\"value\":\"Besides a scar, thereâs not much about Carlos that would hint at his history. Heâs constantly running, jumping and swinging from anything that will hold him â which sometimes drives his 13-year-old sister a bit crazy.\",\"nodeType\":\"text\"}\n66b7:[\"$66b8\"]\n66b5:{\"data\":\"$66b6\",\"content\":\"$66b7\",\"nodeType\":\"paragraph\"}\n66bc:{}\n66bf:{}\n66c0:[]\n66be:{\"data\":\"$66bf\",\"marks\":\"$66c0\",\"value\":\"âUnless youâve been through this, itâs hard to explain how meaningful it is to see your child play and have his health. Itâs because everyone at Childrenâs Health â the nurses and care coordinators and all the doctors in the operating room â cared for him so much,â Karla says.\",\"nodeType\":\"text\"}\n66bd:[\"$66be\"]\n66bb:{\"data\":\"$66bc\",\"content\":\"$66bd\",\"nodeType\":\"paragraph\"}\n66c2:{}\n66c5:{}\n66c6:[]\n66c4:{\"data\":\"$66c5\",\"marks\":\"$66c6\",\"value\":\"Carlos is one of hundreds of kids living the life his parents dreamed for him after a heart transplant, thanks to the team at \",\"nodeType\":\"text\"}\n66c8:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/heart-center\"}\n66cb:{}\n66cc:[]\n66ca:{\"data\":\"$66cb\",\"marks\":\"$66cc\",\"value\":\"The Heart Center\",\"nodeType\":\"text\"}\n66c9:[\"$66ca\"]\n66c7:{\"data\":\"$66c8\",\"content\":\"$66c9\",\"nodeType\":\"hyperlink\"}\n66ce:{}\n66cf:[]\n66cd:{\"data\":\"$66ce\",\"marks\":\"$66cf\",\"value\":\".\",\"nodeType\":\"text\"}\n66c3:[\"$66c4\",\"$66c7\",\"$66cd\"]\n66c1:{\"data\":\"$66c2\",\"content\":\"$66c3\",\"nodeType\":\"paragraph\"}\n66d1:{}\n66d4:{}\n66d5:[]\n66d3:{\"data\":\"$66d4\",\"marks\":\"$66d5\",\"value\":\"A big diagnosis for a little boy\",\"nodeType\":\"text\"}\n66d2:[\"$66d3\"]\n66d0:{\"data\":\"$66d1\",\"content"])</script>
1<script>self.__next_f.push([1,"\":\"$66d2\",\"nodeType\":\"heading-3\"}\n66d7:{}\n66da:{}\n66db:[]\n66d9:{\"data\":\"$66da\",\"marks\":\"$66db\",\"value\":\"Before his \",\"nodeType\":\"text\"}\n66dd:{\"uri\":\"https://www.childrens.com/specialties-services/treatments/heart-transplant\"}\n66e0:{}\n66e1:[]\n66df:{\"data\":\"$66e0\",\"marks\":\"$66e1\",\"value\":\"heart transplant\",\"nodeType\":\"text\"}\n66de:[\"$66df\"]\n66dc:{\"data\":\"$66dd\",\"content\":\"$66de\",\"nodeType\":\"hyperlink\"}\n66e3:{}\n66e4:[]\n66e2:{\"data\":\"$66e3\",\"marks\":\"$66e4\",\"value\":\", Carlos was a little boy who quickly made friends wherever he went and charmed everyone who crossed his path.\",\"nodeType\":\"text\"}\n66d8:[\"$66d9\",\"$66dc\",\"$66e2\"]\n66d6:{\"data\":\"$66d7\",\"content\":\"$66d8\",\"nodeType\":\"paragraph\"}\n66e6:{}\n66e9:{}\n66ea:[]\n66e8:{\"data\":\"$66e9\",\"marks\":\"$66ea\",\"value\":\"But around the time he was testing his speed on the playground, a heart condition was starting to slow him down.\",\"nodeType\":\"text\"}\n66e7:[\"$66e8\"]\n66e5:{\"data\":\"$66e6\",\"content\":\"$66e7\",\"nodeType\":\"paragraph\"}\n66ec:{}\n66ef:{}\n66f0:[]\n66ee:{\"data\":\"$66ef\",\"marks\":\"$66f0\",\"value\":\"âSometimes, he would tell us he was having trouble breathing. We knew he had low iron, so our pediatrician had us change his diet, but it didnât help,â Karla says. âThen he started to get really skinny. So skinny, when we got to \",\"nodeType\":\"text\"}\n66f2:{\"uri\":\"https://www.childrens.com/locations/dallas-campus/childrens-medical-center-dallas\"}\n66f5:{}\n66f6:[]\n66f4:{\"data\":\"$66f5\",\"marks\":\"$66f6\",\"value\":\"Childrenâs Medical Center Dallas\",\"nodeType\":\"text\"}\n66f3:[\"$66f4\"]\n66f1:{\"data\":\"$66f2\",\"content\":\"$66f3\",\"nodeType\":\"hyperlink\"}\n66f8:{}\n66f9:[]\n66f7:{\"data\":\"$66f8\",\"marks\":\"$66f9\",\"value\":\", I lifted his shirt to show the nurse why I was so worried.â\",\"nodeType\":\"text\"}\n66ed:[\"$66ee\",\"$66f1\",\"$66f7\"]\n66eb:{\"data\":\"$66ec\",\"content\":\"$66ed\",\"nodeType\":\"paragraph\"}\n66fb:{}\n66fc:[]\n66fa:{\"data\":\"$66fb\",\"content\":\"$66fc\",\"nodeType\":\"embedded-entry-block\"}\n66fe:{}\n6701:{}\n6702:[]\n6700:{\"data\":\"$6701\",\"marks\":\"$6702\",\"value\":\"That same day, Karla met Dr. Baez Hernadez, who would bec"])</script>
1<script>self.__next_f.push([1,"ome the doctor the family leaned on more than anyone else throughout their journey.\",\"nodeType\":\"text\"}\n66ff:[\"$6700\"]\n66fd:{\"data\":\"$66fe\",\"content\":\"$66ff\",\"nodeType\":\"paragraph\"}\n6704:{}\n6707:{}\n6708:[]\n6706:{\"data\":\"$6707\",\"marks\":\"$6708\",\"value\":\"An echocardiogram gave Dr. Baez Hernandez a clear picture of Carlosâ condition. Unfortunately, he had a rare condition called \",\"nodeType\":\"text\"}\n670a:{\"uri\":\"https://www.childrens.com/specialties-services/conditions/cardiomyopathy\"}\n670d:{}\n670e:[]\n670c:{\"data\":\"$670d\",\"marks\":\"$670e\",\"value\":\"restrictive cardiomyopathy\",\"nodeType\":\"text\"}\n670b:[\"$670c\"]\n6709:{\"data\":\"$670a\",\"content\":\"$670b\",\"nodeType\":\"hyperlink\"}\n6710:{}\n6711:[]\n670f:{\"data\":\"$6710\",\"marks\":\"$6711\",\"value\":\" â which happens when ventricles in the heart stiffen, restricting its ability to expand and fill with blood between beats.\",\"nodeType\":\"text\"}\n6705:[\"$6706\",\"$6709\",\"$670f\"]\n6703:{\"data\":\"$6704\",\"content\":\"$6705\",\"nodeType\":\"paragraph\"}\n6713:{}\n6716:{}\n6717:[]\n6715:{\"data\":\"$6716\",\"marks\":\"$6717\",\"value\":\"âGiven the constellation of his symptoms, we knew we had to move quickly through the transplant evaluation process to get him on the list,â Dr. Baez Hernandez says.\",\"nodeType\":\"text\"}\n6714:[\"$6715\"]\n6712:{\"data\":\"$6713\",\"content\":\"$6714\",\"nodeType\":\"paragraph\"}\n6719:{}\n671c:{}\n671d:[]\n671b:{\"data\":\"$671c\",\"marks\":\"$671d\",\"value\":\"At the same time, Karla started realizing that a diagnosis was just the beginning of Carlosâ health journey.\",\"nodeType\":\"text\"}\n671a:[\"$671b\"]\n6718:{\"data\":\"$6719\",\"content\":\"$671a\",\"nodeType\":\"paragraph\"}\n671f:{}\n6722:{}\n6723:[]\n6721:{\"data\":\"$6722\",\"marks\":\"$6723\",\"value\":\"âWhen she Dr. Baez Hernandez saw how overwhelmed I was, she took my hand and started speaking in Spanish. She told me that she was fully confident that, with a new heart, Carlos would be okay,â Karla says.\",\"nodeType\":\"text\"}\n6720:[\"$6721\"]\n671e:{\"data\":\"$671f\",\"content\":\"$6720\",\"nodeType\":\"paragraph\"}\n6725:{}\n6728:{}\n6729:[]\n6727:{\"data\":\"$6728\",\"marks\":\"$6729\",\"value\":\"Within"])</script>
1<script>self.__next_f.push([1," two weeks, Karla and Johnny were moving their son into the hospital.\",\"nodeType\":\"text\"}\n6726:[\"$6727\"]\n6724:{\"data\":\"$6725\",\"content\":\"$6726\",\"nodeType\":\"paragraph\"}\n672b:{}\n672e:{}\n672f:[]\n672d:{\"data\":\"$672e\",\"marks\":\"$672f\",\"value\":\"âWe were at an appointment for a CT scan and the results showed his heart was so sick they told us he couldnât go home. He was getting sicker very quickly,â Karla remembers.\",\"nodeType\":\"text\"}\n672c:[\"$672d\"]\n672a:{\"data\":\"$672b\",\"content\":\"$672c\",\"nodeType\":\"paragraph\"}\n6731:{}\n6734:{}\n6735:[]\n6733:{\"data\":\"$6734\",\"marks\":\"$6735\",\"value\":\"Carlosâ family joins The Heart Center family\",\"nodeType\":\"text\"}\n6732:[\"$6733\"]\n6730:{\"data\":\"$6731\",\"content\":\"$6732\",\"nodeType\":\"heading-3\"}\n6737:{}\n673a:{}\n673b:[]\n6739:{\"data\":\"$673a\",\"marks\":\"$673b\",\"value\":\"On the eighth floor of the hospital, Carlos and his parents met the nurses and specialists who were trained to understand Carlosâ exact needs and keep him as healthy as possible. Karla and Johnny also met parents of other kids who understood the same constant competition of emotions they were feeling â overwhelming love, fear and vulnerability. \",\"nodeType\":\"text\"}\n6738:[\"$6739\"]\n6736:{\"data\":\"$6737\",\"content\":\"$6738\",\"nodeType\":\"paragraph\"}\n673d:{}\n673e:[]\n673c:{\"data\":\"$673d\",\"content\":\"$673e\",\"nodeType\":\"embedded-entry-block\"}\n6740:{}\n6743:{}\n6744:[]\n6742:{\"data\":\"$6743\",\"marks\":\"$6744\",\"value\":\"The Heart Center is among the largest pediatric heart transplant programs in the U.S., and has the ability to treat children with complex conditions. But before Dr. Baez Hernandez and \",\"nodeType\":\"text\"}\n6746:{\"uri\":\"https://www.childrens.com/doctor-profile/ryan-robert-davies\"}\n6749:{}\n674a:[]\n6748:{\"data\":\"$6749\",\"marks\":\"$674a\",\"value\":\"Ryan Davies, M.D.\",\"nodeType\":\"text\"}\n6747:[\"$6748\"]\n6745:{\"data\":\"$6746\",\"content\":\"$6747\",\"nodeType\":\"hyperlink\"}\n674c:{}\n674d:[]\n674b:{\"data\":\"$674c\",\"marks\":\"$674d\",\"value\":\", Pediatric Cardiothoracic Surgeon at Childrenâs Health and Associate Professor at UT Southwestern, could give Carl"])</script>
1<script>self.__next_f.push([1,"os the heart he needed, they would spend weeks preparing.\",\"nodeType\":\"text\"}\n6741:[\"$6742\",\"$6745\",\"$674b\"]\n673f:{\"data\":\"$6740\",\"content\":\"$6741\",\"nodeType\":\"paragraph\"}\n674f:{}\n6752:{}\n6753:[]\n6751:{\"data\":\"$6752\",\"marks\":\"$6753\",\"value\":\"Transplant families go through training to make sure they are ready to care for their child after they leave and are as prepared as possible for the many scenarios that may happen. A social worker solely dedicated to The Heart Center families helps them move through this process.\",\"nodeType\":\"text\"}\n6750:[\"$6751\"]\n674e:{\"data\":\"$674f\",\"content\":\"$6750\",\"nodeType\":\"paragraph\"}\n6755:{}\n6758:{}\n6759:[]\n6757:{\"data\":\"$6758\",\"marks\":\"$6759\",\"value\":\"As the weeks passed, Carlos handled all the change fairly well. And like so many transplant parents, Karla and Johnny dug deep within themselves to never show Carlos anything but optimism.\",\"nodeType\":\"text\"}\n6756:[\"$6757\"]\n6754:{\"data\":\"$6755\",\"content\":\"$6756\",\"nodeType\":\"paragraph\"}\n675b:{}\n675e:{}\n675f:[]\n675d:{\"data\":\"$675e\",\"marks\":\"$675f\",\"value\":\"âThere are a lot of meetings about your child and what the doctors are going to do and how to keep him healthy enough to get a transplant. Dr. Davies always said, âWhen we get a heart for Carlos, heâs going to be the kid you remember,â and I am so thankful for that confidence,â Karla says.\",\"nodeType\":\"text\"}\n675c:[\"$675d\"]\n675a:{\"data\":\"$675b\",\"content\":\"$675c\",\"nodeType\":\"paragraph\"}\n6761:{}\n6764:{}\n6765:[]\n6763:{\"data\":\"$6764\",\"marks\":\"$6765\",\"value\":\"Putting the transplant plan into action\",\"nodeType\":\"text\"}\n6762:[\"$6763\"]\n6760:{\"data\":\"$6761\",\"content\":\"$6762\",\"nodeType\":\"heading-3\"}\n6767:{}\n676a:{}\n676b:[]\n6769:{\"data\":\"$676a\",\"marks\":\"$676b\",\"value\":\"When the call came, Johnny and Karla let joy and hope beat out all other emotions. The family spent the hours with Carlos before the transplant like any other day â showing him love and keeping his spirits up.\",\"nodeType\":\"text\"}\n6768:[\"$6769\"]\n6766:{\"data\":\"$6767\",\"content\":\"$6768\",\"nodeType\":\"paragraph\"}\n676d:{}\n6770:"])</script>
1<script>self.__next_f.push([1,"{}\n6771:[]\n676f:{\"data\":\"$6770\",\"marks\":\"$6771\",\"value\":\"Karla held her son as he got the first dose of anesthesia that made him dizzy and act a little goofy.\",\"nodeType\":\"text\"}\n676e:[\"$676f\"]\n676c:{\"data\":\"$676d\",\"content\":\"$676e\",\"nodeType\":\"paragraph\"}\n6773:{\"target\":\"$cdc\"}\n6774:[]\n6772:{\"data\":\"$6773\",\"content\":\"$6774\",\"nodeType\":\"embedded-entry-block\"}\n6776:{}\n6779:{}\n677a:[]\n6778:{\"data\":\"$6779\",\"marks\":\"$677a\",\"value\":\"Karla and Johnny received constant updates from the care coordinator about exactly what was happening in the operating room. The updates they were getting followed the exact plan theyâd been hearing about for months.\",\"nodeType\":\"text\"}\n6777:[\"$6778\"]\n6775:{\"data\":\"$6776\",\"content\":\"$6777\",\"nodeType\":\"paragraph\"}\n677c:{}\n677f:{}\n6780:[]\n677e:{\"data\":\"$677f\",\"marks\":\"$6780\",\"value\":\"Finally, Dr. Baez Hernandez and Dr. Davies walked through the doors of the waiting room. Because Carlosâ transplant was in the summer of 2020, the couple couldnât have any family with them. And they couldnât see anything but the doctorsâ eyes. But they knew â Carlos had a new heart.\",\"nodeType\":\"text\"}\n677d:[\"$677e\"]\n677b:{\"data\":\"$677c\",\"content\":\"$677d\",\"nodeType\":\"paragraph\"}\n6782:{}\n6785:{}\n6786:[]\n6784:{\"data\":\"$6785\",\"marks\":\"$6786\",\"value\":\"âTheir eyes said everything. I could tell how happy they were, big smiles under their masks,â Karla says. âWhen they told us his new heart was beating inside him without any help, I couldnât find any words but thank you. Over and over, I just said thank you.â\",\"nodeType\":\"text\"}\n6783:[\"$6784\"]\n6781:{\"data\":\"$6782\",\"content\":\"$6783\",\"nodeType\":\"paragraph\"}\n6788:{}\n678b:{}\n678c:[]\n678a:{\"data\":\"$678b\",\"marks\":\"$678c\",\"value\":\"Gratitude for the universal symbol of love and life\",\"nodeType\":\"text\"}\n6789:[\"$678a\"]\n6787:{\"data\":\"$6788\",\"content\":\"$6789\",\"nodeType\":\"heading-3\"}\n678e:{}\n6791:{}\n6792:[]\n6790:{\"data\":\"$6791\",\"marks\":\"$6792\",\"value\":\"When the family reunited, they settled in to watch their boy slowly wake up. Every time a machine would beep,"])</script>
1<script>self.__next_f.push([1," Karla says sheâd look to a nurse who would come over and assure her that he was doing great.\",\"nodeType\":\"text\"}\n678f:[\"$6790\"]\n678d:{\"data\":\"$678e\",\"content\":\"$678f\",\"nodeType\":\"paragraph\"}\n6794:{}\n6797:{}\n6798:[]\n6796:{\"data\":\"$6797\",\"marks\":\"$6798\",\"value\":\"After a week in the \",\"nodeType\":\"text\"}\n679a:{\"uri\":\"https://www.childrens.com/specialties-services/specialty-centers-and-programs/heart-center/services/cicu\"}\n679d:{}\n679e:[]\n679c:{\"data\":\"$679d\",\"marks\":\"$679e\",\"value\":\"cardiac intensive care unit\",\"nodeType\":\"text\"}\n679b:[\"$679c\"]\n6799:{\"data\":\"$679a\",\"content\":\"$679b\",\"nodeType\":\"hyperlink\"}\n67a0:{}\n67a1:[]\n679f:{\"data\":\"$67a0\",\"marks\":\"$67a1\",\"value\":\", Carlos was moved to the regular inpatient unit to finish his recovery and start his rehabilitation.\",\"nodeType\":\"text\"}\n6795:[\"$6796\",\"$6799\",\"$679f\"]\n6793:{\"data\":\"$6794\",\"content\":\"$6795\",\"nodeType\":\"paragraph\"}\n67a3:{}\n67a6:{}\n67a7:[]\n67a5:{\"data\":\"$67a6\",\"marks\":\"$67a7\",\"value\":\"âAs soon as he could sit up, the rehab team had to start working to slow him down. I told them, âThis is who Carlos is â we canât take our eyes off him for a minute!â He was back and that was the best problem to have,â Karla says.\",\"nodeType\":\"text\"}\n67a4:[\"$67a5\"]\n67a2:{\"data\":\"$67a3\",\"content\":\"$67a4\",\"nodeType\":\"paragraph\"}\n67a9:{}\n67ac:{}\n67ad:[]\n67ab:{\"data\":\"$67ac\",\"marks\":\"$67ad\",\"value\":\"But the eighth-floor team wasnât ready to say goodbye to Carlos. Everyone the family met during their time with The Heart Center care team came to visit him.\",\"nodeType\":\"text\"}\n67aa:[\"$67ab\"]\n67a8:{\"data\":\"$67a9\",\"content\":\"$67aa\",\"nodeType\":\"paragraph\"}\n67af:{\"target\":\"$cd0\"}\n67b0:[]\n67ae:{\"data\":\"$67af\",\"content\":\"$67b0\",\"nodeType\":\"embedded-entry-block\"}\n67b2:{}\n67b3:[]\n67b1:{\"data\":\"$67b2\",\"content\":\"$67b3\",\"nodeType\":\"embedded-entry-block\"}\n67b5:{}\n67b8:{}\n67b9:[]\n67b7:{\"data\":\"$67b8\",\"marks\":\"$67b9\",\"value\":\"While Carlos recovered, Karla and Johnny continued to lean on Dr. Baez Hernandez and learn everything they could about caring for him when he was ready t"])</script>
1<script>self.__next_f.push([1,"o come home. He would take more than 30 pills a day. He would have multiple hospital visits a week during those first couple of months. But it would eventually slow to weekly visits.\",\"nodeType\":\"text\"}\n67b6:[\"$67b7\"]\n67b4:{\"data\":\"$67b5\",\"content\":\"$67b6\",\"nodeType\":\"paragraph\"}\n67bb:{}\n67be:{}\n67bf:[]\n67bd:{\"data\":\"$67be\",\"marks\":\"$67bf\",\"value\":\"They also started slowing down to process everything theyâd been through.\",\"nodeType\":\"text\"}\n67bc:[\"$67bd\"]\n67ba:{\"data\":\"$67bb\",\"content\":\"$67bc\",\"nodeType\":\"paragraph\"}\n67c1:{}\n67c4:{}\n67c5:[]\n67c3:{\"data\":\"$67c4\",\"marks\":\"$67c5\",\"value\":\"âI struggled a lot with feeling okay about being happy,â Karla says. âFor my son to live, it meant another child lost their life and this was my greatest fear. My son got to live because another family decided to be generous during their time of loss. Even before the surgery, that thought kept coming to me.â\",\"nodeType\":\"text\"}\n67c2:[\"$67c3\"]\n67c0:{\"data\":\"$67c1\",\"content\":\"$67c2\",\"nodeType\":\"paragraph\"}\n67c7:{}\n67ca:{}\n67cb:[]\n67c9:{\"data\":\"$67ca\",\"marks\":\"$67cb\",\"value\":\"Well before the call came for Carlosâ new heart, Karla and Johnny had decided that their family would protect and love this gift every day. This new heart would become part of their family.\",\"nodeType\":\"text\"}\n67c8:[\"$67c9\"]\n67c6:{\"data\":\"$67c7\",\"content\":\"$67c8\",\"nodeType\":\"paragraph\"}\n67cd:{}\n67ce:[]\n67cc:{\"data\":\"$67cd\",\"content\":\"$67ce\",\"nodeType\":\"embedded-entry-block\"}\n67d0:{}\n67d3:{}\n67d4:[]\n67d2:{\"data\":\"$67d3\",\"marks\":\"$67d4\",\"value\":\"To honor their new family member, they planted a peach tree in their backyard. It gives them fruit in the summer, which is when they celebrate Carlosâ heart birthday.\",\"nodeType\":\"text\"}\n67d1:[\"$67d2\"]\n67cf:{\"data\":\"$67d0\",\"content\":\"$67d1\",\"nodeType\":\"paragraph\"}\n67d6:{}\n67d9:{}\n67da:[]\n67d8:{\"data\":\"$67d9\",\"marks\":\"$67da\",\"value\":\"Carlos is now charming his first-grade teacher and proudly shows his scar to anyone who has a question about his transplant. He also has a whole community of friends whose families"])</script>
1<script>self.__next_f.push([1," have also received compassionate care from The Heart Center team.\",\"nodeType\":\"text\"}\n67d7:[\"$67d8\"]\n67d5:{\"data\":\"$67d6\",\"content\":\"$67d7\",\"nodeType\":\"paragraph\"}\n67dc:{}\n67df:{}\n67e0:[]\n67de:{\"data\":\"$67df\",\"marks\":\"$67e0\",\"value\":\"âThe families of the other transplant kids are so special to us. We are connected by transplant experience and by this place. The Heart Center feels like a second home to all of us. Weâre all grateful to everyone for giving our children their life back.â\",\"nodeType\":\"text\"}\n67dd:[\"$67de\"]\n67db:{\"data\":\"$67dc\",\"content\":\"$67dd\",\"nodeType\":\"paragraph\"}\n67e2:{}\n67e5:{}\n67e7:{\"type\":\"italic\"}\n67e6:[\"$67e7\"]\n67e4:{\"data\":\"$67e5\",\"marks\":\"$67e6\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n67e9:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n67ec:{}\n67ee:{\"type\":\"italic\"}\n67ed:[\"$67ee\"]\n67eb:{\"data\":\"$67ec\",\"marks\":\"$67ed\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n67ea:[\"$67eb\"]\n67e8:{\"data\":\"$67e9\",\"content\":\"$67ea\",\"nodeType\":\"hyperlink\"}\n67f0:{}\n67f2:{\"type\":\"italic\"}\n67f1:[\"$67f2\"]\n67ef:{\"data\":\"$67f0\",\"marks\":\"$67f1\",\"value\":\" like Carlos' to learn how Children's Medical Center Foundation impacts the lives of North Texas children.\",\"nodeType\":\"text\"}\n67e3:[\"$67e4\",\"$67e8\",\"$67ef\"]\n67e1:{\"data\":\"$67e2\",\"content\":\"$67e3\",\"nodeType\":\"paragraph\"}\n6696:[\"$6697\",\"$669d\",\"$66a0\",\"$66a6\",\"$66b5\",\"$66bb\",\"$66c1\",\"$66d0\",\"$66d6\",\"$66e5\",\"$66eb\",\"$66fa\",\"$66fd\",\"$6703\",\"$6712\",\"$6718\",\"$671e\",\"$6724\",\"$672a\",\"$6730\",\"$6736\",\"$673c\",\"$673f\",\"$674e\",\"$6754\",\"$675a\",\"$6760\",\"$6766\",\"$676c\",\"$6772\",\"$6775\",\"$677b\",\"$6781\",\"$6787\",\"$678d\",\"$6793\",\"$67a2\",\"$67a8\",\"$67ae\",\"$67b1\",\"$67b4\",\"$67ba\",\"$67c0\",\"$67c6\",\"$67cc\",\"$67cf\",\"$67d5\",\"$67db\",\"$67e1\"]\n6694:{\"data\":\"$6695\",\"content\":\"$6696\",\"nodeType\":\"document\"}\n6693:{\"adminTitle\":\"Main Content: Carlos Update | Patient Story\",\"heading\":\"Transplant patient Carlos and his family find expert care and support at The Heart Center at Childrenâs Health.\",\"headingLevel\":\"h2\",\"body\":\"$6694\",\"contentAccordion\":\"Disabled\"}\n6688:{\"metadata\":\"$"])</script>
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1<script>self.__next_f.push([1,"marks\":\"$6870\",\"value\":\"Riley, 7, had been on a school field trip on that fateful day. The bus had stopped at a park where she and her classmates could play for a bit and eat lunch before they arrived at their destination. Thatâs when she started throwing up â and couldnât stop. Her mom drove to the park and got her. She ended up in the hospital. The doctors thought she might have pneumonia, but within a week, her family was grappling with a far more terrifying reality: A nagging cold virus had attacked her heart muscle and permanently reduced the organâs ability to pump blood. The damaging inflammation caused by the virus, called myocarditis, meant Riley needed a new heart. \",\"nodeType\":\"text\"}\n686d:[\"$686e\"]\n686b:{\"data\":\"$686c\",\"content\":\"$686d\",\"nodeType\":\"paragraph\"}\n6872:{}\n6875:{}\n6876:[]\n6874:{\"data\":\"$6875\",\"marks\":\"$6876\",\"value\":\"A bridge to transplant\",\"nodeType\":\"text\"}\n6873:[\"$6874\"]\n6871:{\"data\":\"$6872\",\"content\":\"$6873\",\"nodeType\":\"heading-3\"}\n6878:{}\n6879:[]\n6877:{\"data\":\"$6878\",\"content\":\"$6879\",\"nodeType\":\"embedded-entry-block\"}\n687b:{}\n687e:{}\n687f:[]\n687d:{\"data\":\"$687e\",\"marks\":\"$687f\",\"value\":\"ââWithin days of being transferred to the Solid Organ Transplant Center at Childrenâs Health in Dallas, the left side of the little girlâs heart gave out and she underwent open-heart surgery to implant a left ventricular assist device (LVAD) in her lower left heart chamber. \",\"nodeType\":\"text\"}\n687c:[\"$687d\"]\n687a:{\"data\":\"$687b\",\"content\":\"$687c\",\"nodeType\":\"paragraph\"}\n6881:{}\n6884:{}\n6885:[]\n6883:{\"data\":\"$6884\",\"marks\":\"$6885\",\"value\":\"The LVAD is a pump. Tubes attached to Rileyâs heart were connected to mechanical parts outside her body. Just like a heart, the device circulated blood â and bought her the precious time she needed to wait for a donor heart. \",\"nodeType\":\"text\"}\n6882:[\"$6883\"]\n6880:{\"data\":\"$6881\",\"content\":\"$6882\",\"nodeType\":\"paragraph\"}\n6887:{}\n688a:{}\n688b:[]\n6889:{\"data\":\"$688a\",\"marks\":\"$688b\",\"value\":\"Though the LVAD worked just fine, Riley continued to hea"])</script>
1<script>self.__next_f.push([1,"d downhill fast. \",\"nodeType\":\"text\"}\n6888:[\"$6889\"]\n6886:{\"data\":\"$6887\",\"content\":\"$6888\",\"nodeType\":\"paragraph\"}\n688d:{}\n6890:{}\n6891:[]\n688f:{\"data\":\"$6890\",\"marks\":\"$6891\",\"value\":\"The right side of her heart flatlined because of a leaking heart valve, she had to go on kidney dialysis to remove the resulting buildup of fluid, and a ventilator was helping her breathe. And after all that, Riley had to have a second surgery to implant a right ventricular assist device (RVAD). \",\"nodeType\":\"text\"}\n688e:[\"$688f\"]\n688c:{\"data\":\"$688d\",\"content\":\"$688e\",\"nodeType\":\"paragraph\"}\n6893:{}\n6896:{}\n6897:[]\n6895:{\"data\":\"$6896\",\"marks\":\"$6897\",\"value\":\"ââââââEvery day during rounds, Riley witnessed a culture where each member of her team was empowered to speak up,â Lisa said. âThatâs when she became a really big advocate for herself.â \",\"nodeType\":\"text\"}\n6894:[\"$6895\"]\n6892:{\"data\":\"$6893\",\"content\":\"$6894\",\"nodeType\":\"paragraph\"}\n6899:{}\n689c:{}\n689d:[]\n689b:{\"data\":\"$689c\",\"marks\":\"$689d\",\"value\":\"Life beyond the hospital bed \",\"nodeType\":\"text\"}\n689a:[\"$689b\"]\n6898:{\"data\":\"$6899\",\"content\":\"$689a\",\"nodeType\":\"heading-3\"}\n689f:{}\n68a2:{}\n68a3:[]\n68a1:{\"data\":\"$68a2\",\"marks\":\"$68a3\",\"value\":\"For two solid months Riley had been in bed â and each day she seemed more unhappy. It was common knowledge that children with bi-VADs (both a left and a right VAD) didnât leave their hospital beds, much less their rooms. The safety concerns around disconnecting the electrical cord that powers two heart pumps, switching over to battery power and taking the risk of something bad happening when the child was up had always seemed too problematic for clinical staff and parents alike. \",\"nodeType\":\"text\"}\n68a0:[\"$68a1\"]\n689e:{\"data\":\"$689f\",\"content\":\"$68a0\",\"nodeType\":\"paragraph\"}\n68a5:{}\n68a8:{}\n68a9:[]\n68a7:{\"data\":\"$68a8\",\"marks\":\"$68a9\",\"value\":\"âââBut that didnât stop Lisa who knew in her heart that Riley needed to be active. \",\"nodeType\":\"text\"}\n68a6:[\"$68a7\"]\n68a4:{\"data\":\"$68a5\",\"content\":\"$68a6\","])</script>
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1<script>self.__next_f.push([1,",\"nodeType\":\"text\"}\n68c7:[\"$68c8\"]\n68c5:{\"data\":\"$68c6\",\"content\":\"$68c7\",\"nodeType\":\"heading-3\"}\n68cc:{}\n68cf:{}\n68d0:[]\n68ce:{\"data\":\"$68cf\",\"marks\":\"$68d0\",\"value\":\"Lisa lived at Childrenâs Health for six months before she decided to spend the day with Rileyâs three sisters at home, instead of hosting their usual visit at the hospital. \",\"nodeType\":\"text\"}\n68cd:[\"$68ce\"]\n68cb:{\"data\":\"$68cc\",\"content\":\"$68cd\",\"nodeType\":\"paragraph\"}\n68d2:{}\n68d5:{}\n68d6:[]\n68d4:{\"data\":\"$68d5\",\"marks\":\"$68d6\",\"value\":\"âI arranged for friends to sit with Riley, but I was worried about what Iâd do if the call came in that a heart was available,â she explained. âI told our team, âdonât call me and ask if we want the heart. If itâs one that you'd put in your own kid, call me and say the word pineapple and I'll know you're for real.â\\\" \",\"nodeType\":\"text\"}\n68d3:[\"$68d4\"]\n68d1:{\"data\":\"$68d2\",\"content\":\"$68d3\",\"nodeType\":\"paragraph\"}\n68d8:{}\n68d9:[]\n68d7:{\"data\":\"$68d8\",\"content\":\"$68d9\",\"nodeType\":\"embedded-entry-block\"}\n68db:{}\n68de:{}\n68df:[]\n68dd:{\"data\":\"$68de\",\"marks\":\"$68df\",\"value\":\"Once home, Lisa answered a FaceTime video call from the team. Rileyâs doctors and nurses stood together in silence and one held up a clear cup containing pineapple slices. \",\"nodeType\":\"text\"}\n68dc:[\"$68dd\"]\n68da:{\"data\":\"$68db\",\"content\":\"$68dc\",\"nodeType\":\"paragraph\"}\n68e1:{}\n68e4:{}\n68e5:[]\n68e3:{\"data\":\"$68e4\",\"marks\":\"$68e5\",\"value\":\"âThey asked me if they could go tell Riley that the perfect heart for her was on its way,â Lisa said, her eyes welling up. âTheyâd pre-ordered Spiderman masks just for the day they all hoped would come. I wish I could have seen my daughterâs face when 15 people walked into her room with a pineapple cup and face masks.â \",\"nodeType\":\"text\"}\n68e2:[\"$68e3\"]\n68e0:{\"data\":\"$68e1\",\"content\":\"$68e2\",\"nodeType\":\"paragraph\"}\n68e7:{}\n68ea:{}\n68eb:[]\n68e9:{\"data\":\"$68ea\",\"marks\":\"$68eb\",\"value\":\"A bright future \",\"nodeType\":\"text\"}\n68e8:[\"$68e9\"]\n68e6:{\"data\":\"$68e7\",\"content\":\"$68e8\",\"nod"])</script>
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1<script>self.__next_f.push([1,"8b\"}\n698e:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n698d:{\"sys\":\"$698e\"}\n6990:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n698f:{\"sys\":\"$6990\"}\n6992:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n6991:{\"sys\":\"$6992\"}\n698c:{\"space\":\"$698d\",\"id\":\"3BaK9msfv4M7Wh9W5w6kvr\",\"type\":\"Entry\",\"createdAt\":\"2025-02-13T16:10:37.027Z\",\"updatedAt\":\"2026-01-30T21:47:37.748Z\",\"environment\":\"$698f\",\"publishedVersion\":30,\"revision\":7,\"contentType\":\"$6991\",\"locale\":\"en-US\"}\n6995:{}\n6998:{}\n699b:{}\n699d:{\"type\":\"bold\"}\n699c:[\"$699d\"]\n699a:{\"data\":\"$699b\",\"marks\":\"$699c\",\"value\":\"Eleanorâs wish: To thrive and get into all the things\",\"nodeType\":\"text\"}\n6999:[\"$699a\"]\n6997:{\"data\":\"$6998\",\"content\":\"$6999\",\"nodeType\":\"paragraph\"}\n699f:{}\n69a0:[]\n699e:{\"data\":\"$699f\",\"content\":\"$69a0\",\"nodeType\":\"embedded-entry-block\"}\n69a2:{}\n69a5:{}\n69a6:[]\n69a4:{\"data\":\"$69a5\",\"marks\":\"$69a6\",\"value\":\"The first thing that Laura and Raul remember about their infant daughter Eleanor â after the open-heart surgery that saved her life â were her pink toes. \",\"nodeType\":\"text\"}\n69a3:[\"$69a4\"]\n69a1:{\"data\":\"$69a2\",\"content\":\"$69a3\",\"nodeType\":\"paragraph\"}\n69a8:{}\n69ab:{}\n69ac:[]\n69aa:{\"data\":\"$69ab\",\"marks\":\"$69ac\",\"value\":\"âThroughout our daughterâs medical journey, weâve cried a lot, I canât even tell you how many times,â says Raul, Eleanorâs dad. âBut when we saw her pink toes and noticed that her little fingernails were no longer purple, we cried happy\",\"nodeType\":\"text\"}\n69a9:[\"$69aa\"]\n69a7:{\"data\":\"$69a8\",\"content\":\"$69a9\",\"nodeType\":\"paragraph\"}\n69ae:{}\n69b1:{}\n69b2:[]\n69b0:{\"data\":\"$69b1\",\"marks\":\"$69b2\",\"value\":\" tears.â \",\"nodeType\":\"text\"}\n69af:[\"$69b0\"]\n69ad:{\"data\":\"$69ae\",\"content\":\"$69af\",\"nodeType\":\"paragraph\"}\n69b4:{}\n69b7:{}\n69b8:[]\n69b6:{\"data\":\"$69b7\",\"marks\":\"$69b8\",\"value\":\"Big surprises in a small package \",\"nodeType\":\"text\"}\n69b5:[\"$69b6\"]\n69b3:{\"data\":\"$69b4\",\"content\":\"$69b5\",\"nodeType\":\"heading-3\"}\n69ba:{}\n69bd:{}\n69be:[]\n69bc:{\"data\":\"$69bd\",\"marks\":\"$69be\",\"value\":\"Long be"])</script>
1<script>self.__next_f.push([1,"fore Eleanorâs heart repair at five months, she was a big surprise to her parents. âOur daughter Shelby was 11 when I found out I was pregnant,â explains Laura.\",\"nodeType\":\"text\"}\n69bb:[\"$69bc\"]\n69b9:{\"data\":\"$69ba\",\"content\":\"$69bb\",\"nodeType\":\"paragraph\"}\n69c0:{}\n69c1:[]\n69bf:{\"data\":\"$69c0\",\"content\":\"$69c1\",\"nodeType\":\"embedded-entry-block\"}\n69c3:{}\n69c6:{}\n69c7:[]\n69c5:{\"data\":\"$69c6\",\"marks\":\"$69c7\",\"value\":\"Eleanor also surprised Lauraâs obstetrics team in the familyâs hometown. âI had an ultrasound every two weeks because Iâd had pre-term labor and my pregnancy was considered high risk,â she says. âIn all those ultrasounds, no one caught our babyâs heart condition.â \",\"nodeType\":\"text\"}\n69c4:[\"$69c5\"]\n69c2:{\"data\":\"$69c3\",\"content\":\"$69c4\",\"nodeType\":\"paragraph\"}\n69c9:{}\n69cc:{}\n69cd:[]\n69cb:{\"data\":\"$69cc\",\"marks\":\"$69cd\",\"value\":\"It wasnât until Eleanor and Raul were settled into their maternity room with their new baby that they noticed Eleanorâs color would gradually turn from pink to purple and back to pink again. Within a few hours of her birth, their doctor did a newborn assessment and observed the same thing. \",\"nodeType\":\"text\"}\n69ca:[\"$69cb\"]\n69c8:{\"data\":\"$69c9\",\"content\":\"$69ca\",\"nodeType\":\"paragraph\"}\n69cf:{}\n69d2:{}\n69d3:[]\n69d1:{\"data\":\"$69d2\",\"marks\":\"$69d3\",\"value\":\"After supplemental oxygen yielded no results, a neonatologist at the hospitalâs small neonatal intensive care unit inserted a breathing tube hooked to a ventilator â a lifesaving measure that pumped air into Eleanorâs tiny lungs. Meanwhile, the Childrenâs Health cardiac ultrasound team traveled to the hospital to do an echocardiogram or âecho.â \",\"nodeType\":\"text\"}\n69d0:[\"$69d1\"]\n69ce:{\"data\":\"$69cf\",\"content\":\"$69d0\",\"nodeType\":\"paragraph\"}\n69d5:{}\n69d8:{}\n69d9:[]\n69d7:{\"data\":\"$69d8\",\"marks\":\"$69d9\",\"value\":\"The scan revealed that Eleanorâs heart was positioned on the right side of her chest instead of the left â a condition called dextrocardia that, on its own, doesnât usually ca"])</script>
1<script>self.__next_f.push([1,"use problems, but tends to occur with other life-threatening conditions. In Eleanorâs case, her heartâs pulmonary valve, which controls the movement of blood to the lungs to receive oxygen, was too narrow for adequate blood flow. \",\"nodeType\":\"text\"}\n69d6:[\"$69d7\"]\n69d4:{\"data\":\"$69d5\",\"content\":\"$69d6\",\"nodeType\":\"paragraph\"}\n69db:{}\n69de:{}\n69df:[]\n69dd:{\"data\":\"$69de\",\"marks\":\"$69df\",\"value\":\"A baby with spunk \",\"nodeType\":\"text\"}\n69dc:[\"$69dd\"]\n69da:{\"data\":\"$69db\",\"content\":\"$69dc\",\"nodeType\":\"heading-3\"}\n69e1:{}\n69e4:{}\n69e5:[]\n69e3:{\"data\":\"$69e4\",\"marks\":\"$69e5\",\"value\":\"Ten hours after being born, Eleanor was airlifted to the Childrenâs Health Cardiovascular Intensive Care Unit (CVICU) in Dallas. \",\"nodeType\":\"text\"}\n69e2:[\"$69e3\"]\n69e0:{\"data\":\"$69e1\",\"content\":\"$69e2\",\"nodeType\":\"paragraph\"}\n69e7:{\"target\":\"$d00\"}\n69e8:[]\n69e6:{\"data\":\"$69e7\",\"content\":\"$69e8\",\"nodeType\":\"embedded-entry-block\"}\n69ea:{}\n69ed:{}\n69ee:[]\n69ec:{\"data\":\"$69ed\",\"marks\":\"$69ee\",\"value\":\"At four days old, Eleanor received a stent to open her pulmonary valve. \",\"nodeType\":\"text\"}\n69eb:[\"$69ec\"]\n69e9:{\"data\":\"$69ea\",\"content\":\"$69eb\",\"nodeType\":\"paragraph\"}\n69f0:{}\n69f3:{}\n69f4:[]\n69f2:{\"data\":\"$69f3\",\"marks\":\"$69f4\",\"value\":\"Over the next five months, the family lived at the hospital and the Ronald McDonald House, waiting for the day when\",\"nodeType\":\"text\"}\n69f1:[\"$69f2\"]\n69ef:{\"data\":\"$69f0\",\"content\":\"$69f1\",\"nodeType\":\"paragraph\"}\n69f6:{}\n69f9:{}\n69fa:[]\n69f8:{\"data\":\"$69f9\",\"marks\":\"$69fa\",\"value\":\" Eleanorâs heart, the size of a walnut, would be a bit bigger and stronger to handle the open-heart surgery that would provide a longer term repair. To everyoneâs great joy and relief, the much anticipated operation was a success â a milestone that gave Eleanor a new lease on life as a pink baby. \",\"nodeType\":\"text\"}\n69f7:[\"$69f8\"]\n69f5:{\"data\":\"$69f6\",\"content\":\"$69f7\",\"nodeType\":\"paragraph\"}\n69fc:{}\n69ff:{}\n6a00:[]\n69fe:{\"data\":\"$69ff\",\"marks\":\"$6a00\",\"value\":\"Today, at nine months, Eleanor is a smiley, talkative b"])</script>
1<script>self.__next_f.push([1,"aby with an independent streak who is quickly catching up on her developmental skills. \\n\\nâSheâs a strong baby,â laughs Laura. âSheâs learning to eat by mouth so we can wean her off the feeding tube. That fire in her, that strong will to do her own thing will serve her well in a few years when sheâll need a catheterization procedure to replace two heart valves.â \",\"nodeType\":\"text\"}\n69fd:[\"$69fe\"]\n69fb:{\"data\":\"$69fc\",\"content\":\"$69fd\",\"nodeType\":\"paragraph\"}\n6a02:{}\n6a05:{}\n6a06:[]\n6a04:{\"data\":\"$6a05\",\"marks\":\"$6a06\",\"value\":\"All for the love of children \",\"nodeType\":\"text\"}\n6a03:[\"$6a04\"]\n6a01:{\"data\":\"$6a02\",\"content\":\"$6a03\",\"nodeType\":\"heading-3\"}\n6a08:{}\n6a0b:{}\n6a0c:[]\n6a0a:{\"data\":\"$6a0b\",\"marks\":\"$6a0c\",\"value\":\"Laura looks back to the time when they first came to Childrenâs Health in January 2023. \",\"nodeType\":\"text\"}\n6a09:[\"$6a0a\"]\n6a07:{\"data\":\"$6a08\",\"content\":\"$6a09\",\"nodeType\":\"paragraph\"}\n6a0e:{}\n6a0f:[]\n6a0d:{\"data\":\"$6a0e\",\"content\":\"$6a0f\",\"nodeType\":\"embedded-entry-block\"}\n6a11:{}\n6a14:{}\n6a15:[]\n6a13:{\"data\":\"$6a14\",\"marks\":\"$6a15\",\"value\":\"âWe literally felt like we were lost when I learned that donors were giving time, money, toys, toiletries,â she says. âYou have no idea. Even the smallest donated gifts made us feel like we werenât alone. That someone was thinking of us. I want donors to know what a big difference they make to patients and families like ours.â \",\"nodeType\":\"text\"}\n6a12:[\"$6a13\"]\n6a10:{\"data\":\"$6a11\",\"content\":\"$6a12\",\"nodeType\":\"paragraph\"}\n6a17:{}\n6a1a:{}\n6a1b:[]\n6a19:{\"data\":\"$6a1a\",\"marks\":\"$6a1b\",\"value\":\"She \",\"nodeType\":\"text\"}\n6a18:[\"$6a19\"]\n6a16:{\"data\":\"$6a17\",\"content\":\"$6a18\",\"nodeType\":\"paragraph\"}\n6a1d:{}\n6a20:{}\n6a21:[]\n6a1f:{\"data\":\"$6a20\",\"marks\":\"$6a21\",\"value\":\"says sheâll never forget the CVICU team who took care of their daughter, referring to them as superheroes, angels and family. She talks about the nurses who were like aunties and the doctors who took the time to explain everything in a way that felt like a friend was t"])</script>
1<script>self.__next_f.push([1,"alking with them. Sheâs also deeply grateful for the chaplain who was always there to guide them. \",\"nodeType\":\"text\"}\n6a1e:[\"$6a1f\"]\n6a1c:{\"data\":\"$6a1d\",\"content\":\"$6a1e\",\"nodeType\":\"paragraph\"}\n6a23:{}\n6a26:{}\n6a27:[]\n6a25:{\"data\":\"$6a26\",\"marks\":\"$6a27\",\"value\":\"âWe wouldnât have made it without the entire team and so many others at Childrenâs who were huge supporters and cheerleaders,â she says. âThey get paid to do a job, but they donât get paid to love their patients â and they truly do love them. Their hearts are as big as Texas.â \",\"nodeType\":\"text\"}\n6a24:[\"$6a25\"]\n6a22:{\"data\":\"$6a23\",\"content\":\"$6a24\",\"nodeType\":\"paragraph\"}\n6a29:{}\n6a2c:{}\n6a2d:[]\n6a2b:{\"data\":\"$6a2c\",\"marks\":\"$6a2d\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n6a2a:[\"$6a2b\"]\n6a28:{\"data\":\"$6a29\",\"content\":\"$6a2a\",\"nodeType\":\"heading-3\"}\n6a2f:{}\n6a32:{}\n6a33:[]\n6a31:{\"data\":\"$6a32\",\"marks\":\"$6a33\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n6a35:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n6a38:{}\n6a39:[]\n6a37:{\"data\":\"$6a38\",\"marks\":\"$6a39\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n6a36:[\"$6a37\"]\n6a34:{\"data\":\"$6a35\",\"content\":\"$6a36\",\"nodeType\":\"hyperlink\"}\n6a3b:{}\n6a3c:[]\n6a3a:{\"data\":\"$6a3b\",\"marks\":\"$6a3c\",\"value\":\" like Eleanor's and meet our \",\"nodeType\":\"text\"}\n6a3e:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n6a41:{}\n6a42:[]\n6a40:{\"data\":\"$6a41\",\"marks\":\"$6a42\",\"value\":\"Patient Ambassadors\",\"nodeType\":\"text\"}\n6a3f:[\"$6a40\"]\n6a3d:{\"data\":\"$6a3e\",\"content\":\"$6a3f\",\"nodeType\":\"hyperlink\"}\n6a44:{}\n6a45:[]\n6a43:{\"data\":\"$6a44\",\"marks\":\"$6a45\",\"value\":\" to learn how Children's Health makes life better for children.\",\"nodeType\":\"text\"}\n6a30:[\"$6a31\",\"$6a34\",\"$6a3a\",\"$6a3d\",\"$6a43\"]\n6a2e:{\"data\":\"$6a2f\",\"content\":\"$6a30\",\"nodeType\":\"paragraph\"}\n6a47:{}\n6a4a:{}\n6a4b:[]\n6a49:{\"data\":\"$6a4a\",\"marks\":\"$6a4b\",\"value\":\"Support patients like Eleanor this holiday season\",\"nodeType\":\"text\"}\n6a48:[\"$6a49\"]\n6a46:{\"data\":\"$6a47\",\"content\":\"$6a48\",\"nodeType\":\"heading-3\"}\n"])</script>
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1<script>self.__next_f.push([1,"7.016Z\",\"environment\":\"$6adf\",\"publishedVersion\":22,\"revision\":5,\"contentType\":\"$6ae1\",\"locale\":\"en-US\"}\n6ae5:{}\n6ae8:{}\n6aeb:{}\n6aec:[]\n6aea:{\"data\":\"$6aeb\",\"marks\":\"$6aec\",\"value\":\"Ricky was always determined to run faster than the other kids at football practice and couldnât wait to try new terrain on his mountain bike. Thatâs why his mom, Priscilla, started to worry when her 9-year-old was suddenly the last one running at practice, and walking his bike because he was too tired to ride it. \",\"nodeType\":\"text\"}\n6ae9:[\"$6aea\"]\n6ae7:{\"data\":\"$6ae8\",\"content\":\"$6ae9\",\"nodeType\":\"paragraph\"}\n6aee:{}\n6af1:{}\n6af2:[]\n6af0:{\"data\":\"$6af1\",\"marks\":\"$6af2\",\"value\":\"âOne day I came home and he was crying because he was so tired. He just lay down and said how much his legs hurt. I knew something was wrong,â Priscilla said. \",\"nodeType\":\"text\"}\n6aef:[\"$6af0\"]\n6aed:{\"data\":\"$6aee\",\"content\":\"$6aef\",\"nodeType\":\"paragraph\"}\n6af4:{}\n6af7:{}\n6af8:[]\n6af6:{\"data\":\"$6af7\",\"marks\":\"$6af8\",\"value\":\"Rickyâs pediatrician sent him for blood work. \",\"nodeType\":\"text\"}\n6af5:[\"$6af6\"]\n6af3:{\"data\":\"$6af4\",\"content\":\"$6af5\",\"nodeType\":\"paragraph\"}\n6afa:{}\n6afd:{}\n6afe:[]\n6afc:{\"data\":\"$6afd\",\"marks\":\"$6afe\",\"value\":\"âOne minute Ricky was starting summer vacation and sleeping over at his best friendâs house, and the next we were rushing to the ER in Dallas,â Priscilla said. âThe doctor told us Ricky had a blood disease that was likely leukemia. It was like God hit a pause button on our lives.â \",\"nodeType\":\"text\"}\n6afb:[\"$6afc\"]\n6af9:{\"data\":\"$6afa\",\"content\":\"$6afb\",\"nodeType\":\"paragraph\"}\n6b00:{}\n6b03:{}\n6b04:[]\n6b02:{\"data\":\"$6b03\",\"marks\":\"$6b04\",\"value\":\"An expert care team and a best friend through everything \",\"nodeType\":\"text\"}\n6b01:[\"$6b02\"]\n6aff:{\"data\":\"$6b00\",\"content\":\"$6b01\",\"nodeType\":\"heading-3\"}\n6b06:{}\n6b09:{}\n6b0a:[]\n6b08:{\"data\":\"$6b09\",\"marks\":\"$6b0a\",\"value\":\"Ricky soon received an official diagnosis: acute lymphoblastic leukemia (ALL), a cancer of the blood. His care team at the Pauline Allen Gill"])</script>
1<script>self.__next_f.push([1," Center for Cancer and Blood Disorders at Childrenâs Healthâ helped Priscilla and her family wrap their heads around what Ricky was up against. \",\"nodeType\":\"text\"}\n6b07:[\"$6b08\"]\n6b05:{\"data\":\"$6b06\",\"content\":\"$6b07\",\"nodeType\":\"paragraph\"}\n6b0c:{}\n6b0d:[]\n6b0b:{\"data\":\"$6b0c\",\"content\":\"$6b0d\",\"nodeType\":\"embedded-entry-block\"}\n6b0f:{}\n6b12:{}\n6b13:[]\n6b11:{\"data\":\"$6b12\",\"marks\":\"$6b13\",\"value\":\"He started chemotherapy the next day. That marked the beginning of their longest inpatient stay at the hospital. They spent the first two weeks of treatment in Dallas, then another two weeks at Childrenâs Medical Center Plano â and Ricky and his family were glad that at least part of their stay could be closer to home. Priscilla spent every minute that she could at Rickyâs bedside and was grateful that her boyfriend, Thomas, could be with Ricky when she had to go to work. Ricky eventually transitioned to weekly visits to Children's Health and taking chemotherapy pills at home. \",\"nodeType\":\"text\"}\n6b10:[\"$6b11\"]\n6b0e:{\"data\":\"$6b0f\",\"content\":\"$6b10\",\"nodeType\":\"paragraph\"}\n6b15:{}\n6b18:{}\n6b19:[]\n6b17:{\"data\":\"$6b18\",\"marks\":\"$6b19\",\"value\":\"âIt was this scary time where we didnât know what to expect but we really felt like the doctors were giving Ricky the best possible care,â Priscilla said. \",\"nodeType\":\"text\"}\n6b16:[\"$6b17\"]\n6b14:{\"data\":\"$6b15\",\"content\":\"$6b16\",\"nodeType\":\"paragraph\"}\n6b1b:{}\n6b1e:{}\n6b1f:[]\n6b1d:{\"data\":\"$6b1e\",\"marks\":\"$6b1f\",\"value\":\"They were particularly grateful for the expertise and care from one of their child life specialists, Chloe. \",\"nodeType\":\"text\"}\n6b1c:[\"$6b1d\"]\n6b1a:{\"data\":\"$6b1b\",\"content\":\"$6b1c\",\"nodeType\":\"paragraph\"}\n6b21:{}\n6b24:{}\n6b25:[]\n6b23:{\"data\":\"$6b24\",\"marks\":\"$6b25\",\"value\":\"âChloe has been Rickyâs best friend through everything,â Priscilla said. âWhenever we need anything, we can call her and she knows the plan. She knows that he loves the I Spy book and Legos, and is always there for him saying âRicky, you can do it, I know you can."])</script>
1<script>self.__next_f.push([1,"ââ \",\"nodeType\":\"text\"}\n6b22:[\"$6b23\"]\n6b20:{\"data\":\"$6b21\",\"content\":\"$6b22\",\"nodeType\":\"paragraph\"}\n6b27:{}\n6b2a:{}\n6b2b:[]\n6b29:{\"data\":\"$6b2a\",\"marks\":\"$6b2b\",\"value\":\"Rickyâs family does everything they can for him \",\"nodeType\":\"text\"}\n6b28:[\"$6b29\"]\n6b26:{\"data\":\"$6b27\",\"content\":\"$6b28\",\"nodeType\":\"heading-3\"}\n6b2d:{}\n6b30:{}\n6b31:[]\n6b2f:{\"data\":\"$6b30\",\"marks\":\"$6b31\",\"value\":\"One of the biggest challenges for Priscilla was living with the uncertainty of having a child with a complex illness â all while caring for Rickyâs three older sisters and running a business. Rickyâs family did everything in their power to help him, like taking extra precautions to avoid getting sick because cancer treatments can make it harder for the immune system to fight off infections. \",\"nodeType\":\"text\"}\n6b2e:[\"$6b2f\"]\n6b2c:{\"data\":\"$6b2d\",\"content\":\"$6b2e\",\"nodeType\":\"paragraph\"}\n6b33:{}\n6b36:{}\n6b37:[]\n6b35:{\"data\":\"$6b36\",\"marks\":\"$6b37\",\"value\":\"âWe basically went back to COVID precautions, but this time it was just us,â Priscilla said. âThe kids wouldnât go to their friends' houses; we wouldnât go out to busy restaurants.â \",\"nodeType\":\"text\"}\n6b34:[\"$6b35\"]\n6b32:{\"data\":\"$6b33\",\"content\":\"$6b34\",\"nodeType\":\"paragraph\"}\n6b39:{}\n6b3c:{}\n6b3d:[]\n6b3b:{\"data\":\"$6b3c\",\"marks\":\"$6b3d\",\"value\":\"When Christmas rolled around, Priscilla was especially grateful for the Childrenâs Health donors who provided gifts while Ricky was undergoing treatment. \",\"nodeType\":\"text\"}\n6b3a:[\"$6b3b\"]\n6b38:{\"data\":\"$6b39\",\"content\":\"$6b3a\",\"nodeType\":\"paragraph\"}\n6b3f:{\"target\":\"$d18\"}\n6b40:[]\n6b3e:{\"data\":\"$6b3f\",\"content\":\"$6b40\",\"nodeType\":\"embedded-entry-block\"}\n6b42:{}\n6b45:{}\n6b46:[]\n6b44:{\"data\":\"$6b45\",\"marks\":\"$6b46\",\"value\":\"Looking forward to tacos and football \",\"nodeType\":\"text\"}\n6b43:[\"$6b44\"]\n6b41:{\"data\":\"$6b42\",\"content\":\"$6b43\",\"nodeType\":\"heading-3\"}\n6b48:{}\n6b49:[]\n6b47:{\"data\":\"$6b48\",\"content\":\"$6b49\",\"nodeType\":\"embedded-entry-block\"}\n6b4b:{}\n6b4e:{}\n6b4f:[]\n6b4d:{\"data\":\"$6b4e\",\"marks\":\"$6b4f\",\"val"])</script>
1<script>self.__next_f.push([1,"ue\":\"After 60 days of treatment, Rickyâs family received the news theyâd been hoping to hear: Ricky was in remission â his scan showed no signs of cancer. To make sure there arenât any cancer cells lurking in his system and to reduce the chances of cancer returning, Ricky will continue to take low doses of cancer treatments until 2025 â when Priscilla, Thomas and all of their loved ones hope Rickyâs cancer will be gone forever. \",\"nodeType\":\"text\"}\n6b4c:[\"$6b4d\"]\n6b4a:{\"data\":\"$6b4b\",\"content\":\"$6b4c\",\"nodeType\":\"paragraph\"}\n6b51:{}\n6b54:{}\n6b55:[]\n6b53:{\"data\":\"$6b54\",\"marks\":\"$6b55\",\"value\":\"For now, Ricky spends lots of his time drawing, building classic cars out of Legos and cheering on the Dallas Cowboys. He looks forward to the small things, like what he gets to eat after treatment. \",\"nodeType\":\"text\"}\n6b52:[\"$6b53\"]\n6b50:{\"data\":\"$6b51\",\"content\":\"$6b52\",\"nodeType\":\"paragraph\"}\n6b57:{}\n6b5a:{}\n6b5b:[]\n6b59:{\"data\":\"$6b5a\",\"marks\":\"$6b5b\",\"value\":\"âI always want tacos,â Ricky said. \",\"nodeType\":\"text\"}\n6b58:[\"$6b59\"]\n6b56:{\"data\":\"$6b57\",\"content\":\"$6b58\",\"nodeType\":\"paragraph\"}\n6b5d:{}\n6b60:{}\n6b61:[]\n6b5f:{\"data\":\"$6b60\",\"marks\":\"$6b61\",\"value\":\"He canât wait until the day he finishes treatment and can finally run without getting tired and get back to playing football. \",\"nodeType\":\"text\"}\n6b5e:[\"$6b5f\"]\n6b5c:{\"data\":\"$6b5d\",\"content\":\"$6b5e\",\"nodeType\":\"paragraph\"}\n6b63:{}\n6b66:{}\n6b67:[]\n6b65:{\"data\":\"$6b66\",\"marks\":\"$6b67\",\"value\":\"âWhen I grow up, I want to be a famous football star, or a golf player as a backup,â he said. \",\"nodeType\":\"text\"}\n6b64:[\"$6b65\"]\n6b62:{\"data\":\"$6b63\",\"content\":\"$6b64\",\"nodeType\":\"paragraph\"}\n6b69:{}\n6b6c:{}\n6b6d:[]\n6b6b:{\"data\":\"$6b6c\",\"marks\":\"$6b6d\",\"value\":\"In the meantime, Priscilla, Thomas and his care team are there for Ricky every day, doing everything in their power to help him grow up happy and healthy. \",\"nodeType\":\"text\"}\n6b6a:[\"$6b6b\"]\n6b68:{\"data\":\"$6b69\",\"content\":\"$6b6a\",\"nodeType\":\"paragraph\"}\n6b6f:{\"target\":\"$d0c\"}\n6b70:[]\n6b6e:{\"dat"])</script>
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1<script>self.__next_f.push([1,"our patients. This red balloon unites the might of academic medicine with the breadth of specialty expertise to offer clinical care without a ceiling. When combined with the power of families and our donors, we are incredible together. \",\"nodeType\":\"text\"}\n6b97:[\"$6b98\",\"$6b9c\",\"$6ba3\"]\n6b95:{\"data\":\"$6b96\",\"content\":\"$6b97\",\"nodeType\":\"paragraph\"}\n6ba8:{}\n6bab:{}\n6bad:{\"type\":\"italic\"}\n6bac:[\"$6bad\"]\n6baa:{\"data\":\"$6bab\",\"marks\":\"$6bac\",\"value\":\"The support of countless people over the years has proven that what we dream of today can become a reality tomorrow. You can help make the impossible possible for the next generation of kids at Childrenâs Health.\",\"nodeType\":\"text\"}\n6ba9:[\"$6baa\"]\n6ba7:{\"data\":\"$6ba8\",\"content\":\"$6ba9\",\"nodeType\":\"paragraph\"}\n6baf:{}\n6bb2:{}\n6bb4:{\"type\":\"italic\"}\n6bb3:[\"$6bb4\"]\n6bb1:{\"data\":\"$6bb2\",\"marks\":\"$6bb3\",\"value\":\"During this special season, help us make some of our patientsâ biggest wishes â to play football, to walk again â come true.\",\"nodeType\":\"text\"}\n6bb0:[\"$6bb1\"]\n6bae:{\"data\":\"$6baf\",\"content\":\"$6bb0\",\"nodeType\":\"paragraph\"}\n6bb6:{}\n6bb7:[]\n6bb5:{\"data\":\"$6bb6\",\"content\":\"$6bb7\",\"nodeType\":\"embedded-entry-block\"}\n6bb9:{}\n6bbc:{}\n6bbd:[]\n6bbb:{\"data\":\"$6bbc\",\"marks\":\"$6bbd\",\"value\":\"\",\"nodeType\":\"text\"}\n6bba:[\"$6bbb\"]\n6bb8:{\"data\":\"$6bb9\",\"content\":\"$6bba\",\"nodeType\":\"paragraph\"}\n6ae6:[\"$6ae7\",\"$6aed\",\"$6af3\",\"$6af9\",\"$6aff\",\"$6b05\",\"$6b0b\",\"$6b0e\",\"$6b14\",\"$6b1a\",\"$6b20\",\"$6b26\",\"$6b2c\",\"$6b32\",\"$6b38\",\"$6b3e\",\"$6b41\",\"$6b47\",\"$6b4a\",\"$6b50\",\"$6b56\",\"$6b5c\",\"$6b62\",\"$6b68\",\"$6b6e\",\"$6b71\",\"$6b77\",\"$6b8f\",\"$6b95\",\"$6ba7\",\"$6bae\",\"$6bb5\",\"$6bb8\"]\n6ae4:{\"data\":\"$6ae5\",\"content\":\"$6ae6\",\"nodeType\":\"document\"}\n6ae3:{\"adminTitle\":\"Main Content: Ricky | Patient Ambassador\",\"heading\":\"Young Football Player Tackles Leukemia \",\"headingLevel\":\"h2\",\"body\":\"$6ae4\",\"contentAccordion\":\"Disabled\"}\n6ad8:{\"metadata\":\"$6ad9\",\"sys\":\"$6adc\",\"fields\":\"$6ae3\"}\n6ad7:[\"$6ad8\"]\n6bbe:[\"$b41\",\"$b4e\"]\n6bbf:[\"$d0c\",\"$d18\"]\n6bc0:[\"$c64\",\"$b67\"]\n6a83:{\"adminTitle\":\"Patient Ambassador 2024 Alu"])</script>
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1<script>self.__next_f.push([1," off the couch,â said Rachael, Prestonâs mom. She wasnât sure how he was going to be able to play his favorite sport: basketball. \",\"nodeType\":\"text\"}\n6c3e:[\"$6c3f\"]\n6c3c:{\"data\":\"$6c3d\",\"content\":\"$6c3e\",\"nodeType\":\"paragraph\"}\n6c43:{}\n6c46:{}\n6c47:[]\n6c45:{\"data\":\"$6c46\",\"marks\":\"$6c47\",\"value\":\"âI also noticed he looked really skinny. I was worried about diabetes or anemia and I knew he needed some lab work,â Rachael said. \",\"nodeType\":\"text\"}\n6c44:[\"$6c45\"]\n6c42:{\"data\":\"$6c43\",\"content\":\"$6c44\",\"nodeType\":\"paragraph\"}\n6c49:{}\n6c4c:{}\n6c4d:[]\n6c4b:{\"data\":\"$6c4c\",\"marks\":\"$6c4d\",\"value\":\"As her worries mounted and her sleep eroded, her momma bear instincts kicked in and she whisked Preston in the middle of the night to the Emergency Department at Children's Healthâ in Dallas. \",\"nodeType\":\"text\"}\n6c4a:[\"$6c4b\"]\n6c48:{\"data\":\"$6c49\",\"content\":\"$6c4a\",\"nodeType\":\"paragraph\"}\n6c4f:{}\n6c52:{}\n6c53:[]\n6c51:{\"data\":\"$6c52\",\"marks\":\"$6c53\",\"value\":\"It turns out he was anemic, but the anemia had an underlying cause: leukemia.\",\"nodeType\":\"text\"}\n6c50:[\"$6c51\"]\n6c4e:{\"data\":\"$6c4f\",\"content\":\"$6c50\",\"nodeType\":\"paragraph\"}\n6c55:{}\n6c58:{}\n6c59:[]\n6c57:{\"data\":\"$6c58\",\"marks\":\"$6c59\",\"value\":\"In just two days, the doctors determined the type of blood and bone marrow cancer Preston had â acute myeloid leukemia (AML) â and immediately launched into treatment. \",\"nodeType\":\"text\"}\n6c56:[\"$6c57\"]\n6c54:{\"data\":\"$6c55\",\"content\":\"$6c56\",\"nodeType\":\"paragraph\"}\n6c5b:{\"target\":\"$d24\"}\n6c5c:[]\n6c5a:{\"data\":\"$6c5b\",\"content\":\"$6c5c\",\"nodeType\":\"embedded-entry-block\"}\n6c5e:{}\n6c61:{}\n6c62:[]\n6c60:{\"data\":\"$6c61\",\"marks\":\"$6c62\",\"value\":\"The priceless, small, good moments make chemotherapy manageable \",\"nodeType\":\"text\"}\n6c5f:[\"$6c60\"]\n6c5d:{\"data\":\"$6c5e\",\"content\":\"$6c5f\",\"nodeType\":\"heading-3\"}\n6c64:{}\n6c67:{}\n6c68:[]\n6c66:{\"data\":\"$6c67\",\"marks\":\"$6c68\",\"value\":\"As they launched into three rounds of chemotherapy, the sixth floor of the Pauline Allen Gill Center for Cancer and Blood Disorders became their home. "])</script>
1<script>self.__next_f.push([1,"\",\"nodeType\":\"text\"}\n6c65:[\"$6c66\"]\n6c63:{\"data\":\"$6c64\",\"content\":\"$6c65\",\"nodeType\":\"paragraph\"}\n6c6a:{}\n6c6d:{}\n6c6e:[]\n6c6c:{\"data\":\"$6c6d\",\"marks\":\"$6c6e\",\"value\":\"âWe got to know the care team really well â the nurses, therapists, and the people who clean and work in the cafeteria. At first, itâs overwhelming to have people in the halls know you by your first name. And then it becomes heartwarming that they know you and your child and itâs clear that they really want your child to get better,â Rachael said. \",\"nodeType\":\"text\"}\n6c6b:[\"$6c6c\"]\n6c69:{\"data\":\"$6c6a\",\"content\":\"$6c6b\",\"nodeType\":\"paragraph\"}\n6c70:{}\n6c73:{}\n6c74:[]\n6c72:{\"data\":\"$6c73\",\"marks\":\"$6c74\",\"value\":\"Preston had no idea how it would be living in a hospital, feeling tired and mopey from chemo, and not able to run and play outside like his friends. \",\"nodeType\":\"text\"}\n6c71:[\"$6c72\"]\n6c6f:{\"data\":\"$6c70\",\"content\":\"$6c71\",\"nodeType\":\"paragraph\"}\n6c76:{}\n6c79:{}\n6c7a:[]\n6c78:{\"data\":\"$6c79\",\"marks\":\"$6c7a\",\"value\":\"Thinking back, Prestonâs unwavering optimism shines through. âIt was better than I thought it would be.â He remembers getting several gifts from his care team and playing pool and video games in the Child Life Zone, a safe and creative play area for patients that includes an infant play space, a play area for school-aged children and hosts activities like cooking, expressive arts, crafts, music and more.\",\"nodeType\":\"text\"}\n6c77:[\"$6c78\"]\n6c75:{\"data\":\"$6c76\",\"content\":\"$6c77\",\"nodeType\":\"paragraph\"}\n6c7c:{\"target\":\"$d30\"}\n6c7d:[]\n6c7b:{\"data\":\"$6c7c\",\"content\":\"$6c7d\",\"nodeType\":\"embedded-entry-block\"}\n6c7f:{}\n6c82:{}\n6c83:[]\n6c81:{\"data\":\"$6c82\",\"marks\":\"$6c83\",\"value\":\"While at Childrenâs Health, Preston also met players from the Cowboys and the Mavericks. And, he also appreciated many visits from Child Life and Physical Therapy.\",\"nodeType\":\"text\"}\n6c80:[\"$6c81\"]\n6c7e:{\"data\":\"$6c7f\",\"content\":\"$6c80\",\"nodeType\":\"paragraph\"}\n6c85:{}\n6c88:{}\n6c89:[]\n6c87:{\"data\":\"$6c88\",\"marks\":\"$6c89\",\"value\":\"âChild Li"])</script>
1<script>self.__next_f.push([1,"fe would bring games and art projects and also explain to me what was going on, like how my central line was going to work and could help me not have to take a bunch of pills. Physical therapy came around a lot and helped me find energy to shoot hoops,â he said.\",\"nodeType\":\"text\"}\n6c86:[\"$6c87\"]\n6c84:{\"data\":\"$6c85\",\"content\":\"$6c86\",\"nodeType\":\"paragraph\"}\n6c8b:{}\n6c8e:{}\n6c8f:[]\n6c8d:{\"data\":\"$6c8e\",\"marks\":\"$6c8f\",\"value\":\"Rachael added, âHis care team really made it special. Because sometimes, one good, small moment can really get you through a bad day.â\",\"nodeType\":\"text\"}\n6c8c:[\"$6c8d\"]\n6c8a:{\"data\":\"$6c8b\",\"content\":\"$6c8c\",\"nodeType\":\"paragraph\"}\n6c91:{}\n6c94:{}\n6c95:[]\n6c93:{\"data\":\"$6c94\",\"marks\":\"$6c95\",\"value\":\"A Valentineâs to remember: Prestonâs little brother becomes his superhero \",\"nodeType\":\"text\"}\n6c92:[\"$6c93\"]\n6c90:{\"data\":\"$6c91\",\"content\":\"$6c92\",\"nodeType\":\"heading-3\"}\n6c97:{}\n6c9a:{}\n6c9b:[]\n6c99:{\"data\":\"$6c9a\",\"marks\":\"$6c9b\",\"value\":\"After months in the hospital, Prestonâs oncology doctors determined he wasnât responding to the initial rounds of chemo as well as they'd hoped. They started talking about bone marrow transplants. His doctors checked the donor registry, understanding that a personâs best chance of finding a donor match is with someone of the same ethnic or racial background. \",\"nodeType\":\"text\"}\n6c98:[\"$6c99\"]\n6c96:{\"data\":\"$6c97\",\"content\":\"$6c98\",\"nodeType\":\"paragraph\"}\n6c9d:{}\n6c9e:[]\n6c9c:{\"data\":\"$6c9d\",\"content\":\"$6c9e\",\"nodeType\":\"embedded-entry-block\"}\n6ca0:{}\n6ca3:{}\n6ca4:[]\n6ca2:{\"data\":\"$6ca3\",\"marks\":\"$6ca4\",\"value\":\"âWe were shocked to find out that there were no possible matches for Preston. Iâm white and my husband is black. Thatâs a pretty common family in America,â Rachael said. \",\"nodeType\":\"text\"}\n6ca1:[\"$6ca2\"]\n6c9f:{\"data\":\"$6ca0\",\"content\":\"$6ca1\",\"nodeType\":\"paragraph\"}\n6ca6:{}\n6ca9:{}\n6caa:[]\n6ca8:{\"data\":\"$6ca9\",\"marks\":\"$6caa\",\"value\":\"With no options from the donor registry, they turned to Cameron, Prestonâs 7-year-old "])</script>
1<script>self.__next_f.push([1,"brother. \",\"nodeType\":\"text\"}\n6ca7:[\"$6ca8\"]\n6ca5:{\"data\":\"$6ca6\",\"content\":\"$6ca7\",\"nodeType\":\"paragraph\"}\n6cac:{}\n6caf:{}\n6cb0:[]\n6cae:{\"data\":\"$6caf\",\"marks\":\"$6cb0\",\"value\":\"âWe were not that hopeful because there was only a 1 in 4 chance that Cameron would be a match,â Rachael said. âThank goodness he was. I donât know what we would have done otherwise.â \",\"nodeType\":\"text\"}\n6cad:[\"$6cae\"]\n6cab:{\"data\":\"$6cac\",\"content\":\"$6cad\",\"nodeType\":\"paragraph\"}\n6cb2:{}\n6cb5:{}\n6cb6:[]\n6cb4:{\"data\":\"$6cb5\",\"marks\":\"$6cb6\",\"value\":\"On February 14, 2023, Valentineâs Day and National Donor Day, Cameron gave Preston something worth far more than a box of chocolates: the life-saving gift of healthy bone marrow. \",\"nodeType\":\"text\"}\n6cb3:[\"$6cb4\"]\n6cb1:{\"data\":\"$6cb2\",\"content\":\"$6cb3\",\"nodeType\":\"paragraph\"}\n6cb8:{}\n6cbb:{}\n6cbc:[]\n6cba:{\"data\":\"$6cbb\",\"marks\":\"$6cbc\",\"value\":\"As the brothers prepared for the transplant procedure, their mom casually filmed an exchange filled with tender gratitude and brotherly joking. The video, which includes Preston calling his younger brother âmy real-life superhero,â went viral and was used in several local news stories. \",\"nodeType\":\"text\"}\n6cb9:[\"$6cba\"]\n6cb7:{\"data\":\"$6cb8\",\"content\":\"$6cb9\",\"nodeType\":\"paragraph\"}\n6cbe:{}\n6cc1:{}\n6cc2:[]\n6cc0:{\"data\":\"$6cc1\",\"marks\":\"$6cc2\",\"value\":\"Expanding awareness about bone marrow transplants and staying close to the cancer community \",\"nodeType\":\"text\"}\n6cbf:[\"$6cc0\"]\n6cbd:{\"data\":\"$6cbe\",\"content\":\"$6cbf\",\"nodeType\":\"heading-3\"}\n6cc4:{}\n6cc7:{}\n6cc8:[]\n6cc6:{\"data\":\"$6cc7\",\"marks\":\"$6cc8\",\"value\":\"After a total of 176 days in the hospital, Preston is home now. Heâs in remission and cancer-free, and slowly but surely getting back to biking, soccer, swimming, more basketball and eating foods that have been off limits for too long â like strawberries. \",\"nodeType\":\"text\"}\n6cc5:[\"$6cc6\"]\n6cc3:{\"data\":\"$6cc4\",\"content\":\"$6cc5\",\"nodeType\":\"paragraph\"}\n6cca:{}\n6ccb:[]\n6cc9:{\"data\":\"$6cca\",\"content\":\"$6ccb\",\"nodeType\":\"embedded-e"])</script>
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1<script>self.__next_f.push([1,"\"data\":\"$6d87\",\"content\":\"$6d88\",\"nodeType\":\"paragraph\"}\n6d8d:{}\n6d90:{}\n6d91:[]\n6d8f:{\"data\":\"$6d90\",\"marks\":\"$6d91\",\"value\":\"It did â the swelling spread up her entire leg, then to the point where she couldnât get a shoe on her foot. \",\"nodeType\":\"text\"}\n6d8e:[\"$6d8f\"]\n6d8c:{\"data\":\"$6d8d\",\"content\":\"$6d8e\",\"nodeType\":\"paragraph\"}\n6d93:{}\n6d96:{}\n6d97:[]\n6d95:{\"data\":\"$6d96\",\"marks\":\"$6d97\",\"value\":\"âWe were finally referred to a pediatric cardiologist in Shreveport, LA, and he was the first one who said âlymphedema,ââ Jaime said. âThat doctor made sure there was nothing wrong with her heart and then connected us with the closest team who had experience treating this in children â at Childrenâs Healthâ in Dallas, four hours from where we live.â \",\"nodeType\":\"text\"}\n6d94:[\"$6d95\"]\n6d92:{\"data\":\"$6d93\",\"content\":\"$6d94\",\"nodeType\":\"paragraph\"}\n6d99:{}\n6d9c:{}\n6d9d:[]\n6d9b:{\"data\":\"$6d9c\",\"marks\":\"$6d9d\",\"value\":\"Comprehensive treatment for a relentless disease \",\"nodeType\":\"text\"}\n6d9a:[\"$6d9b\"]\n6d98:{\"data\":\"$6d99\",\"content\":\"$6d9a\",\"nodeType\":\"heading-3\"}\n6d9f:{}\n6da2:{}\n6da3:[]\n6da1:{\"data\":\"$6da2\",\"marks\":\"$6da3\",\"value\":\"Jaime had heard of lymphedema but had no idea it could affect a 6-year-old. She had only heard of it affecting people like cancer survivors whose lymphatic system (which helps keep fluid from building up in the body) wasnât working properly because of cancer treatment. She soon learned that Maddie Jo was the one in around 100,000 people who developed primary lymphedema, a genetic disorder which causes the same buildup of fluid. \",\"nodeType\":\"text\"}\n6da0:[\"$6da1\"]\n6d9e:{\"data\":\"$6d9f\",\"content\":\"$6da0\",\"nodeType\":\"paragraph\"}\n6da5:{}\n6da6:[]\n6da4:{\"data\":\"$6da5\",\"content\":\"$6da6\",\"nodeType\":\"embedded-entry-block\"}\n6da8:{}\n6dab:{}\n6dac:[]\n6daa:{\"data\":\"$6dab\",\"marks\":\"$6dac\",\"value\":\"Maddie Jo took this diagnosis in stride. A bubbly, outgoing kid, she kept a positive attitude and simply told her mom âokay, whatâs next?â after each appointment. \",\"nodeType\":\"text\"}"])</script>
1<script>self.__next_f.push([1,"\n6da9:[\"$6daa\"]\n6da7:{\"data\":\"$6da8\",\"content\":\"$6da9\",\"nodeType\":\"paragraph\"}\n6dae:{}\n6db1:{}\n6db2:[]\n6db0:{\"data\":\"$6db1\",\"marks\":\"$6db2\",\"value\":\"But Jamie feared the worst as she learned about the many ways this might impact Maddie Joâs life: It could limit her mobility. She would have a high risk of serious infection from just a scrape or bug bite. They were grateful to meet Elizabeth Tong, one of the few certified lymphedema therapists (CLT) with expertise in treating children in the region. \",\"nodeType\":\"text\"}\n6daf:[\"$6db0\"]\n6dad:{\"data\":\"$6dae\",\"content\":\"$6daf\",\"nodeType\":\"paragraph\"}\n6db4:{}\n6db7:{}\n6db8:[]\n6db6:{\"data\":\"$6db7\",\"marks\":\"$6db8\",\"value\":\"âShe validated how I was feeling and told me that we control lymphedema â lymphedema doesnât control us,â Jamie said. âIf it wasn't for her putting that into my head at the beginning of this journey, I think Maddie Jo and I would have a very different outlook.â \",\"nodeType\":\"text\"}\n6db5:[\"$6db6\"]\n6db3:{\"data\":\"$6db4\",\"content\":\"$6db5\",\"nodeType\":\"paragraph\"}\n6dba:{}\n6dbd:{}\n6dbe:[]\n6dbc:{\"data\":\"$6dbd\",\"marks\":\"$6dbe\",\"value\":\"Still, managing lymphedema isnât easy. Itâs a lifelong disease with no cure. Maddie Jo needs an involved treatment called manual lymphatic drainage, where Elizabeth massages her leg in certain patterns to move the fluid through her leg. She also needs special bandaging and to keep pressure on her leg to reduce swelling 24/7. \",\"nodeType\":\"text\"}\n6dbb:[\"$6dbc\"]\n6db9:{\"data\":\"$6dba\",\"content\":\"$6dbb\",\"nodeType\":\"paragraph\"}\n6dc0:{}\n6dc3:{}\n6dc4:[]\n6dc2:{\"data\":\"$6dc3\",\"marks\":\"$6dc4\",\"value\":\"âSometimes my leg feels heavy, but mostly it's okay,â Maddie Jo said. âMiss Elizabeth helps me feel better by massaging and helps the fluid go up instead of down, because it would get worse if the fluid went down.â \",\"nodeType\":\"text\"}\n6dc1:[\"$6dc2\"]\n6dbf:{\"data\":\"$6dc0\",\"content\":\"$6dc1\",\"nodeType\":\"paragraph\"}\n6dc6:{}\n6dc9:{}\n6dca:[]\n6dc8:{\"data\":\"$6dc9\",\"marks\":\"$6dca\",\"value\":\"Since her diagnosis, Maddie Jo and Jaim"])</script>
1<script>self.__next_f.push([1,"e have traveled to Dallas one week out of every month so she can get this treatment from Elizabeth. They also do daily treatments at home. \",\"nodeType\":\"text\"}\n6dc7:[\"$6dc8\"]\n6dc5:{\"data\":\"$6dc6\",\"content\":\"$6dc7\",\"nodeType\":\"paragraph\"}\n6dcc:{\"target\":\"$d3c\"}\n6dcd:[]\n6dcb:{\"data\":\"$6dcc\",\"content\":\"$6dcd\",\"nodeType\":\"embedded-entry-block\"}\n6dcf:{}\n6dd2:{}\n6dd3:[]\n6dd1:{\"data\":\"$6dd2\",\"marks\":\"$6dd3\",\"value\":\"Maddie Jo Rising \",\"nodeType\":\"text\"}\n6dd0:[\"$6dd1\"]\n6dce:{\"data\":\"$6dcf\",\"content\":\"$6dd0\",\"nodeType\":\"heading-3\"}\n6dd5:{}\n6dd8:{}\n6dd9:[]\n6dd7:{\"data\":\"$6dd8\",\"marks\":\"$6dd9\",\"value\":\"Lymphedema is always part of Maddie Joâs life, but she doesnât let it hold her back. She loves science and Barbies and making homemade ice cream. She might be an actress when she grows up â or maybe a singer, or a mermaid. \",\"nodeType\":\"text\"}\n6dd6:[\"$6dd7\"]\n6dd4:{\"data\":\"$6dd5\",\"content\":\"$6dd6\",\"nodeType\":\"paragraph\"}\n6ddb:{}\n6dde:{}\n6ddf:[]\n6ddd:{\"data\":\"$6dde\",\"marks\":\"$6ddf\",\"value\":\"âOr maybe definitely a librarian or a teacher. Or maybe thatâll just be my hobby. Iâm not sure yet but Iâve still got some time to figure it out,â Maddie Jo said. \",\"nodeType\":\"text\"}\n6ddc:[\"$6ddd\"]\n6dda:{\"data\":\"$6ddb\",\"content\":\"$6ddc\",\"nodeType\":\"paragraph\"}\n6de1:{}\n6de2:[]\n6de0:{\"data\":\"$6de1\",\"content\":\"$6de2\",\"nodeType\":\"embedded-entry-block\"}\n6de4:{}\n6de7:{}\n6de8:[]\n6de6:{\"data\":\"$6de7\",\"marks\":\"$6de8\",\"value\":\"Jamie describes Maddie Jo as sunlight. She brings out the best in everyone around her. Jamie feared that this condition would impact Maddie Joâs mental health because itâs something everyone can see â one leg is noticeably larger than the other and she always has to wear compression bandages. \",\"nodeType\":\"text\"}\n6de5:[\"$6de6\"]\n6de3:{\"data\":\"$6de4\",\"content\":\"$6de5\",\"nodeType\":\"paragraph\"}\n6dea:{}\n6ded:{}\n6dee:[]\n6dec:{\"data\":\"$6ded\",\"marks\":\"$6dee\",\"value\":\"âIâm sure it does impact her mental health to a degree, but she has just been so positive and resilient from the beginning,â Jamie said. âIf s"])</script>
1<script>self.__next_f.push([1,"omeone stares at her for too long, she just immediately starts educating them and doesnât give them the chance to make her feel bad. Sheâll often say âsome people have to wear glasses for their eyes, and I have to wear this for my leg.ââ \",\"nodeType\":\"text\"}\n6deb:[\"$6dec\"]\n6de9:{\"data\":\"$6dea\",\"content\":\"$6deb\",\"nodeType\":\"paragraph\"}\n6df0:{}\n6df3:{}\n6df4:[]\n6df2:{\"data\":\"$6df3\",\"marks\":\"$6df4\",\"value\":\"Maddie Joâs favorite part about coming to Childrenâs Health is going to \",\"nodeType\":\"text\"}\n6df6:{\"uri\":\"https://www.childrens.com/patient-families/resources-for-your-child/activities-for-kids/seacrest-studios\"}\n6df9:{}\n6dfa:[]\n6df8:{\"data\":\"$6df9\",\"marks\":\"$6dfa\",\"value\":\"Seacrest Studios\",\"nodeType\":\"text\"}\n6df7:[\"$6df8\"]\n6df5:{\"data\":\"$6df6\",\"content\":\"$6df7\",\"nodeType\":\"hyperlink\"}\n6dfc:{}\n6dfd:[]\n6dfb:{\"data\":\"$6dfc\",\"marks\":\"$6dfd\",\"value\":\", a multimedia center within the hospital that gives patients a chance to explore radio, television and new media. She even received a video message from American Idol host Ryan Seacrest and judges Blake Shelton, Katie Perry and Lionel Ritchie inviting her to try out for the singing competition when sheâs 15. \",\"nodeType\":\"text\"}\n6df1:[\"$6df2\",\"$6df5\",\"$6dfb\"]\n6def:{\"data\":\"$6df0\",\"content\":\"$6df1\",\"nodeType\":\"paragraph\"}\n6dff:{}\n6e02:{}\n6e03:[]\n6e01:{\"data\":\"$6e02\",\"marks\":\"$6e03\",\"value\":\"âSheâs a headstrong kid, sheâll hold them to it,â Jamie laughs. \",\"nodeType\":\"text\"}\n6e00:[\"$6e01\"]\n6dfe:{\"data\":\"$6dff\",\"content\":\"$6e00\",\"nodeType\":\"paragraph\"}\n6e05:{}\n6e08:{}\n6e09:[]\n6e07:{\"data\":\"$6e08\",\"marks\":\"$6e09\",\"value\":\"Maddie Jo and Jamie have also started a nonprofit called Jo Rising to support children with lymphedema. One of their goals is to help them find shoes that fit. This comes from one of Maddie Joâs daily challenges with lymphedema. They currently have to buy two pairs of the same shoes in different sizes so she can have a matching pair. They also hope to raise awareness about the disease and support research to advance lymphedema car"])</script>
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1<script>self.__next_f.push([1,"arks\":\"$6eb5\",\"value\":\"Ryder and his mom, Courtney, recently got back from his first trip to Disneyland. And while that might seem like a typical highlight of a typical childhood, Ryderâs path to the happiest place on earth was not an easy one. \",\"nodeType\":\"text\"}\n6eb2:[\"$6eb3\"]\n6eb0:{\"data\":\"$6eb1\",\"content\":\"$6eb2\",\"nodeType\":\"paragraph\"}\n6eb7:{}\n6eba:{}\n6ebb:[]\n6eb9:{\"data\":\"$6eba\",\"marks\":\"$6ebb\",\"value\":\"Ryder, now 9, seemed like a healthy, robust baby. A bout of RSV (a common respiratory infection that can be life-threatening to babies) in infancy landed him in Childrenâs Healthâ Plano hospital for a few days. But other than being susceptible to respiratory viruses, Ryder seemed to bounce back just fine.\",\"nodeType\":\"text\"}\n6eb8:[\"$6eb9\"]\n6eb6:{\"data\":\"$6eb7\",\"content\":\"$6eb8\",\"nodeType\":\"paragraph\"}\n6ebd:{}\n6ec0:{}\n6ec1:[]\n6ebf:{\"data\":\"$6ec0\",\"marks\":\"$6ec1\",\"value\":\"Another bout with RSV at 16 months was a different story.\",\"nodeType\":\"text\"}\n6ebe:[\"$6ebf\"]\n6ebc:{\"data\":\"$6ebd\",\"content\":\"$6ebe\",\"nodeType\":\"paragraph\"}\n6ec3:{}\n6ec6:{}\n6ec7:[]\n6ec5:{\"data\":\"$6ec6\",\"marks\":\"$6ec7\",\"value\":\"âHis daycare called me at work and said âThereâs something really wrong. Heâs lethargic and just not himselfâ,â Courtney said.\",\"nodeType\":\"text\"}\n6ec4:[\"$6ec5\"]\n6ec2:{\"data\":\"$6ec3\",\"content\":\"$6ec4\",\"nodeType\":\"paragraph\"}\n6ec9:{}\n6ecc:{}\n6ecd:[]\n6ecb:{\"data\":\"$6ecc\",\"marks\":\"$6ecd\",\"value\":\"At first, she and Ryderâs dad, Jeff, werenât too concerned. After all, things had always turned out OK when they had taken their little boy to Childrenâs Health Plano in the past. This time, however, Ryderâs vital signs suddenly plummeted. His hospital room filled up with doctors and someone told Courtney she needed to wait outside.\",\"nodeType\":\"text\"}\n6eca:[\"$6ecb\"]\n6ec8:{\"data\":\"$6ec9\",\"content\":\"$6eca\",\"nodeType\":\"paragraph\"}\n6ecf:{}\n6ed2:{}\n6ed3:[]\n6ed1:{\"data\":\"$6ed2\",\"marks\":\"$6ed3\",\"value\":\"The medical team inserted a tube so Ryder could breathe and told the family to get ready to be transported to"])</script>
1<script>self.__next_f.push([1," the pediatric intensive care unit (ICU) at Childrenâs Health Dallas where Ryder could get the care he needed.\",\"nodeType\":\"text\"}\n6ed0:[\"$6ed1\"]\n6ece:{\"data\":\"$6ecf\",\"content\":\"$6ed0\",\"nodeType\":\"paragraph\"}\n6ed5:{}\n6ed8:{}\n6ed9:[]\n6ed7:{\"data\":\"$6ed8\",\"marks\":\"$6ed9\",\"value\":\"âIt was so urgent they considered a CareFlight to get us there, but the ambulance showed up first,â Courtney recalled.\",\"nodeType\":\"text\"}\n6ed6:[\"$6ed7\"]\n6ed4:{\"data\":\"$6ed5\",\"content\":\"$6ed6\",\"nodeType\":\"paragraph\"}\n6edb:{}\n6ede:{}\n6edf:[]\n6edd:{\"data\":\"$6ede\",\"marks\":\"$6edf\",\"value\":\"Things were touch and go that first week in the ICU â Ryder wasnât responding to the typical treatments that might clear his lungs and help him breathe on his own. After trying a variety of treatments in the first few days, Ryderâs care team suggested something unusual: Sevoflurane. A medication typically used by anesthesiologists to put kids into a sleep-like state before surgery, sevoflurane also causes the large airways in the lungs to open and can make it easier to breathe.\",\"nodeType\":\"text\"}\n6edc:[\"$6edd\"]\n6eda:{\"data\":\"$6edb\",\"content\":\"$6edc\",\"nodeType\":\"paragraph\"}\n6ee1:{}\n6ee4:{}\n6ee5:[]\n6ee3:{\"data\":\"$6ee4\",\"marks\":\"$6ee5\",\"value\":\"The treatment was his last chance, but at the time, it hadnât been used often in instances such as Ryderâs and not typically on a child as small as him.\",\"nodeType\":\"text\"}\n6ee2:[\"$6ee3\"]\n6ee0:{\"data\":\"$6ee1\",\"content\":\"$6ee2\",\"nodeType\":\"paragraph\"}\n6ee7:{}\n6eea:{}\n6eeb:[]\n6ee9:{\"data\":\"$6eea\",\"marks\":\"$6eeb\",\"value\":\"âDespite everything, I felt a lot of hope,â Courtney said. âThere was hope that he was going to be OK. Hope that it was going to work. And it was nice to hear from attendings, residents and nurses that they felt hopeful, too.â\",\"nodeType\":\"text\"}\n6ee8:[\"$6ee9\"]\n6ee6:{\"data\":\"$6ee7\",\"content\":\"$6ee8\",\"nodeType\":\"paragraph\"}\n6eed:{}\n6eee:[]\n6eec:{\"data\":\"$6eed\",\"content\":\"$6eee\",\"nodeType\":\"embedded-entry-block\"}\n6ef0:{}\n6ef3:{}\n6ef4:[]\n6ef2:{\"data\":\"$6ef3\",\"marks\":\"$6ef4\",\"value\":\"A"])</script>
1<script>self.__next_f.push([1," team of providers monitored Ryder â and the machine administering the sevoflurane â around the clock. Four long days later, he finally started to breathe on his own and the ICU team was able to remove the breathing tube.\",\"nodeType\":\"text\"}\n6ef1:[\"$6ef2\"]\n6eef:{\"data\":\"$6ef0\",\"content\":\"$6ef1\",\"nodeType\":\"paragraph\"}\n6ef6:{}\n6ef9:{}\n6efa:[]\n6ef8:{\"data\":\"$6ef9\",\"marks\":\"$6efa\",\"value\":\"But the extreme treatment had taken its toll. Initially, Ryder couldnât talk or move on his own, and he wasnât quite conscious. The neurologist who examined him told Courtney and Jeff sheâd be back the next day and gently warned them that their little boy might never be the same.\",\"nodeType\":\"text\"}\n6ef7:[\"$6ef8\"]\n6ef5:{\"data\":\"$6ef6\",\"content\":\"$6ef7\",\"nodeType\":\"paragraph\"}\n6efc:{}\n6eff:{}\n6f00:[]\n6efe:{\"data\":\"$6eff\",\"marks\":\"$6f00\",\"value\":\"âI told the doctors that I wasnât leaving without the same kid that I came in with,â Courtney said.\",\"nodeType\":\"text\"}\n6efd:[\"$6efe\"]\n6efb:{\"data\":\"$6efc\",\"content\":\"$6efd\",\"nodeType\":\"paragraph\"}\n6f02:{}\n6f05:{}\n6f06:[]\n6f04:{\"data\":\"$6f05\",\"marks\":\"$6f06\",\"value\":\"By the time the neurologist returned 24 hours later, things had started to change.\",\"nodeType\":\"text\"}\n6f03:[\"$6f04\"]\n6f01:{\"data\":\"$6f02\",\"content\":\"$6f03\",\"nodeType\":\"paragraph\"}\n6f08:{}\n6f0b:{}\n6f0c:[]\n6f0a:{\"data\":\"$6f0b\",\"marks\":\"$6f0c\",\"value\":\"âShe did the knee reflexology test and Ryderâs leg moved,â Jeff said. âI donât remember her name, but I do remember how excited she was. And that she had a little tear in the corner of her eye.â\",\"nodeType\":\"text\"}\n6f09:[\"$6f0a\"]\n6f07:{\"data\":\"$6f08\",\"content\":\"$6f09\",\"nodeType\":\"paragraph\"}\n6f0e:{}\n6f11:{}\n6f12:[]\n6f10:{\"data\":\"$6f11\",\"marks\":\"$6f12\",\"value\":\"Ryder continued to improve in the ICU at Childrenâs Health Dallas for a few days and then spent nearly a month at a nearby rehabilitation hospital for children where he recovered his strength and learned to walk and talk again.\",\"nodeType\":\"text\"}\n6f0f:[\"$6f10\"]\n6f0d:{\"data\":\"$6f0e\",\"content\":\"$6"])</script>
1<script>self.__next_f.push([1,"f0f\",\"nodeType\":\"paragraph\"}\n6f14:{}\n6f17:{}\n6f18:[]\n6f16:{\"data\":\"$6f17\",\"marks\":\"$6f18\",\"value\":\"âYou could see how determined Ryder was to get better. And all the nurses and therapists made the experience fun,â Courtney said. âIt was a heartwarming experience.â\",\"nodeType\":\"text\"}\n6f15:[\"$6f16\"]\n6f13:{\"data\":\"$6f14\",\"content\":\"$6f15\",\"nodeType\":\"paragraph\"}\n6f1a:{}\n6f1d:{}\n6f1e:[]\n6f1c:{\"data\":\"$6f1d\",\"marks\":\"$6f1e\",\"value\":\"âEverybody at school knows him and people just like to be around him,â Jeff said. âHe used to call himself the king of Kindergarten when he was there.â\",\"nodeType\":\"text\"}\n6f1b:[\"$6f1c\"]\n6f19:{\"data\":\"$6f1a\",\"content\":\"$6f1b\",\"nodeType\":\"paragraph\"}\n6f20:{}\n6f21:[]\n6f1f:{\"data\":\"$6f20\",\"content\":\"$6f21\",\"nodeType\":\"embedded-entry-block\"}\n6f23:{}\n6f26:{}\n6f27:[]\n6f25:{\"data\":\"$6f26\",\"marks\":\"$6f27\",\"value\":\"But his life-threatening lung infection â and the intensity of the treatments that saved him â are a constant presence in his life.\",\"nodeType\":\"text\"}\n6f24:[\"$6f25\"]\n6f22:{\"data\":\"$6f23\",\"content\":\"$6f24\",\"nodeType\":\"paragraph\"}\n6f29:{}\n6f2c:{}\n6f2d:[]\n6f2b:{\"data\":\"$6f2c\",\"marks\":\"$6f2d\",\"value\":\"Today, Ryder lives with a rare, irreversible lung disease known as post infectious bronchiolitis obliterans (PIBO), which means that the small airways (bronchioles) in his lungs are inflamed and narrowed. PIBO can develop in young children after a severe lower respiratory tract infection and causes persistent coughing, wheezing and build-up of mucus in the lungs â symptoms that are similar to what people with cystic fibrosis endure. A common cold can land him in the hospital.\",\"nodeType\":\"text\"}\n6f2a:[\"$6f2b\"]\n6f28:{\"data\":\"$6f29\",\"content\":\"$6f2a\",\"nodeType\":\"paragraph\"}\n6f2f:{}\n6f32:{}\n6f33:[]\n6f31:{\"data\":\"$6f32\",\"marks\":\"$6f33\",\"value\":\"Luckily, Ryder has a team of specialists in pulmonology, endocrinology, hematology and neurology at Childrenâs Health, who collaborate as a team to provide him holistic care.\",\"nodeType\":\"text\"}\n6f30:[\"$6f31\"]\n6f2e:{\"data\":\"$6f2f\",\""])</script>
1<script>self.__next_f.push([1,"content\":\"$6f30\",\"nodeType\":\"paragraph\"}\n6f35:{}\n6f38:{}\n6f39:[]\n6f37:{\"data\":\"$6f38\",\"marks\":\"$6f39\",\"value\":\"Childrenâs Health is committed to providing the best, most comprehensive pediatric healthcare for all children and families in North Texas and beyond.\",\"nodeType\":\"text\"}\n6f36:[\"$6f37\"]\n6f34:{\"data\":\"$6f35\",\"content\":\"$6f36\",\"nodeType\":\"paragraph\"}\n6f3b:{}\n6f3e:{}\n6f3f:[]\n6f3d:{\"data\":\"$6f3e\",\"marks\":\"$6f3f\",\"value\":\"As we continue to anticipate the growing needs of the pediatric population today and for decades to come, philanthropic support will ensure patients and families have the exceptional care, support and resources they need, now and into the future.\",\"nodeType\":\"text\"}\n6f3c:[\"$6f3d\"]\n6f3a:{\"data\":\"$6f3b\",\"content\":\"$6f3c\",\"nodeType\":\"paragraph\"}\n6f41:{}\n6f44:{}\n6f45:[]\n6f43:{\"data\":\"$6f44\",\"marks\":\"$6f45\",\"value\":\"Ryderâs parents are partners in his care and their diligence is helping him live his best possible life. This means keeping tabs on four inhalers, several different daily medications, two nebulizer treatments and twice daily chest physical therapy sessions with a CPT vest. This inflatable vest attaches to a machine that vibrates it at a high frequency and loosens the mucus in Ryderâs lungs.\",\"nodeType\":\"text\"}\n6f42:[\"$6f43\"]\n6f40:{\"data\":\"$6f41\",\"content\":\"$6f42\",\"nodeType\":\"paragraph\"}\n6f47:{}\n6f4a:{}\n6f4b:[]\n6f49:{\"data\":\"$6f4a\",\"marks\":\"$6f4b\",\"value\":\"It also means holding the line on wearing masks in public â even while at Disneyland. Ryder also wears his to school, and his best friend wears one, too, in solidarity.\",\"nodeType\":\"text\"}\n6f48:[\"$6f49\"]\n6f46:{\"data\":\"$6f47\",\"content\":\"$6f48\",\"nodeType\":\"paragraph\"}\n6f4d:{}\n6f50:{}\n6f51:[]\n6f4f:{\"data\":\"$6f50\",\"marks\":\"$6f51\",\"value\":\"âThey are probably the only two at school who still do,â Courtney said. âBut a cold could land Ryder in the hospital and â¦â\",\"nodeType\":\"text\"}\n6f4e:[\"$6f4f\"]\n6f4c:{\"data\":\"$6f4d\",\"content\":\"$6f4e\",\"nodeType\":\"paragraph\"}\n6f53:{}\n6f56:{}\n6f57:[]\n6f55:{\"data\":\"$6f56\",\"marks\":\"$6f57\",\"va"])</script>
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1<script>self.__next_f.push([1,"e: Rhabdomyosarcoma, a rare type of cancer that forms in soft tissue. \",\"nodeType\":\"text\"}\n7028:[\"$7029\"]\n7026:{\"data\":\"$7027\",\"content\":\"$7028\",\"nodeType\":\"paragraph\"}\n702d:{}\n7030:{}\n7031:[]\n702f:{\"data\":\"$7030\",\"marks\":\"$7031\",\"value\":\"Now, four years later, heâs whirling around on his scooter, mastering his bicycle and learning how to play pickleball. \",\"nodeType\":\"text\"}\n702e:[\"$702f\"]\n702c:{\"data\":\"$702d\",\"content\":\"$702e\",\"nodeType\":\"paragraph\"}\n7033:{}\n7036:{}\n7037:[]\n7035:{\"data\":\"$7036\",\"marks\":\"$7037\",\"value\":\"After surviving a journey that didnât play by any rules he had ever known, Drewâs not staying on the sidelines. \",\"nodeType\":\"text\"}\n7034:[\"$7035\"]\n7032:{\"data\":\"$7033\",\"content\":\"$7034\",\"nodeType\":\"paragraph\"}\n7039:{}\n703c:{}\n703d:[]\n703b:{\"data\":\"$703c\",\"marks\":\"$703d\",\"value\":\"A Change of Plans \",\"nodeType\":\"text\"}\n703a:[\"$703b\"]\n7038:{\"data\":\"$7039\",\"content\":\"$703a\",\"nodeType\":\"heading-3\"}\n703f:{}\n7042:{}\n7043:[]\n7041:{\"data\":\"$7042\",\"marks\":\"$7043\",\"value\":\"In 2019, Drewâs mom, Emily, worked a typical night shift as a nurse and anxiously headed home to check on her son. \",\"nodeType\":\"text\"}\n7040:[\"$7041\"]\n703e:{\"data\":\"$703f\",\"content\":\"$7040\",\"nodeType\":\"paragraph\"}\n7045:{}\n7046:[]\n7044:{\"data\":\"$7045\",\"content\":\"$7046\",\"nodeType\":\"embedded-entry-block\"}\n7048:{}\n704b:{}\n704c:[]\n704a:{\"data\":\"$704b\",\"marks\":\"$704c\",\"value\":\"âDrew had been really weak. He had some swelling on his right jaw. He had fevers. He was up at night crying. He was only in kindergarten at the time. Something was not right,â she said. \",\"nodeType\":\"text\"}\n7049:[\"$704a\"]\n7047:{\"data\":\"$7048\",\"content\":\"$7049\",\"nodeType\":\"paragraph\"}\n704e:{}\n7051:{}\n7052:[]\n7050:{\"data\":\"$7051\",\"marks\":\"$7052\",\"value\":\"Seeing that Drew was still in pain, Emily decided to take him to the ER. \",\"nodeType\":\"text\"}\n704f:[\"$7050\"]\n704d:{\"data\":\"$704e\",\"content\":\"$704f\",\"nodeType\":\"paragraph\"}\n7054:{}\n7057:{}\n7058:[]\n7056:{\"data\":\"$7057\",\"marks\":\"$7058\",\"value\":\"âEven though my insurance is telling me to go to another hospitalâ¦"])</script>
1<script>self.__next_f.push([1," I walked straight into Children's Health Plano,â she said. \",\"nodeType\":\"text\"}\n7055:[\"$7056\"]\n7053:{\"data\":\"$7054\",\"content\":\"$7055\",\"nodeType\":\"paragraph\"}\n705a:{}\n705d:{}\n705e:[]\n705c:{\"data\":\"$705d\",\"marks\":\"$705e\",\"value\":\"A CT scan revealed an aggressive mass in Drewâs right jaw that was growing toward his brain. \",\"nodeType\":\"text\"}\n705b:[\"$705c\"]\n7059:{\"data\":\"$705a\",\"content\":\"$705b\",\"nodeType\":\"paragraph\"}\n7060:{}\n7063:{}\n7064:[]\n7062:{\"data\":\"$7063\",\"marks\":\"$7064\",\"value\":\"Drew was immediately transferred to the Pauline Allen Gill Center for Cancer and Blood Disorders at Childrenâs Health in Dallas, where he was diagnosed with stage four embryonal rhabdomyosarcoma â a type of cancer where tumors form in the soft tissues that connect, support, or surround organs and body structures. \",\"nodeType\":\"text\"}\n7061:[\"$7062\"]\n705f:{\"data\":\"$7060\",\"content\":\"$7061\",\"nodeType\":\"paragraph\"}\n7066:{}\n7069:{}\n706a:[]\n7068:{\"data\":\"$7069\",\"marks\":\"$706a\",\"value\":\"Rhabdomyosarcoma comprises only 3% of all childhood cancers. This year, about 400 children in the United States will be diagnosed with this rare type of cancer. \",\"nodeType\":\"text\"}\n7067:[\"$7068\"]\n7065:{\"data\":\"$7066\",\"content\":\"$7067\",\"nodeType\":\"paragraph\"}\n706c:{}\n706f:{}\n7070:[]\n706e:{\"data\":\"$706f\",\"marks\":\"$7070\",\"value\":\"Just Like Me \",\"nodeType\":\"text\"}\n706d:[\"$706e\"]\n706b:{\"data\":\"$706c\",\"content\":\"$706d\",\"nodeType\":\"heading-3\"}\n7072:{}\n7075:{}\n7076:[]\n7074:{\"data\":\"$7075\",\"marks\":\"$7076\",\"value\":\"Doctors quickly discovered that Drewâs cancer was also present in his lungs, spine, pelvis, and some bones in his arms and legs. Drew would need extensive chemotherapy for 16 months. \",\"nodeType\":\"text\"}\n7073:[\"$7074\"]\n7071:{\"data\":\"$7072\",\"content\":\"$7073\",\"nodeType\":\"paragraph\"}\n7078:{}\n707b:{}\n707c:[]\n707a:{\"data\":\"$707b\",\"marks\":\"$707c\",\"value\":\"This meant Drew would be admitted to the hospital every three weeks for inpatient chemotherapy and undergo weekly outpatient chemotherapy. \",\"nodeType\":\"text\"}\n7079:[\"$707a\"]\n7077:{\"data\":\"$7078\",\"co"])</script>
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1<script>self.__next_f.push([1,"text\"}\n709d:[\"$709e\"]\n709b:{\"data\":\"$709c\",\"content\":\"$709d\",\"nodeType\":\"paragraph\"}\n70a2:{}\n70a5:{}\n70a6:[]\n70a4:{\"data\":\"$70a5\",\"marks\":\"$70a6\",\"value\":\"After that experience, Drewâs family decided that he should have all his inpatient treatment at Childrenâs Health in Dallas. It meant more travel and being further away from home, but it was worth it. \",\"nodeType\":\"text\"}\n70a3:[\"$70a4\"]\n70a1:{\"data\":\"$70a2\",\"content\":\"$70a3\",\"nodeType\":\"paragraph\"}\n70a8:{}\n70ab:{}\n70ac:[]\n70aa:{\"data\":\"$70ab\",\"marks\":\"$70ac\",\"value\":\"The experience is why Emily is excited for the opening of the Plano expansion, which will increase services for oncology patients like Drew through enhanced program support and new technology so kids and families can receive the same care closer to home. \",\"nodeType\":\"text\"}\n70a9:[\"$70aa\"]\n70a7:{\"data\":\"$70a8\",\"content\":\"$70a9\",\"nodeType\":\"paragraph\"}\n70ae:{\"target\":\"$d60\"}\n70af:[]\n70ad:{\"data\":\"$70ae\",\"content\":\"$70af\",\"nodeType\":\"embedded-entry-block\"}\n70b1:{}\n70b4:{}\n70b5:[]\n70b3:{\"data\":\"$70b4\",\"marks\":\"$70b5\",\"value\":\"Feeling Supported for the Journey \",\"nodeType\":\"text\"}\n70b2:[\"$70b3\"]\n70b0:{\"data\":\"$70b1\",\"content\":\"$70b2\",\"nodeType\":\"heading-3\"}\n70b7:{}\n70ba:{}\n70bb:[]\n70b9:{\"data\":\"$70ba\",\"marks\":\"$70bb\",\"value\":\"Drew and his family made their way through 16 months of treatment with the support of an amazing care team. Emily felt enormously supported by the Childrenâs Health staff during their treatment journey. \",\"nodeType\":\"text\"}\n70b8:[\"$70b9\"]\n70b6:{\"data\":\"$70b7\",\"content\":\"$70b8\",\"nodeType\":\"paragraph\"}\n70bd:{\"target\":\"$d54\"}\n70be:[]\n70bc:{\"data\":\"$70bd\",\"content\":\"$70be\",\"nodeType\":\"embedded-entry-block\"}\n70c0:{}\n70c3:{}\n70c4:[]\n70c2:{\"data\":\"$70c3\",\"marks\":\"$70c4\",\"value\":\"As time went by, team members got to know Drew and how to make him feel most comfortable. \",\"nodeType\":\"text\"}\n70c1:[\"$70c2\"]\n70bf:{\"data\":\"$70c0\",\"content\":\"$70c1\",\"nodeType\":\"paragraph\"}\n70c6:{}\n70c9:{}\n70ca:[]\n70c8:{\"data\":\"$70c9\",\"marks\":\"$70ca\",\"value\":\"âThey knew he didn't like his temperature taken"])</script>
1<script>self.__next_f.push([1," on the right side because that's where his tumor was; so, they always made sure to do the left side,â Emily said. âHe didn't like his blood pressure cuff on his arm; so, they'd do it on his leg. Every step of the way, they would cater it toward what he needed.â \",\"nodeType\":\"text\"}\n70c7:[\"$70c8\"]\n70c5:{\"data\":\"$70c6\",\"content\":\"$70c7\",\"nodeType\":\"paragraph\"}\n70cc:{}\n70cf:{}\n70d0:[]\n70ce:{\"data\":\"$70cf\",\"marks\":\"$70d0\",\"value\":\"Making Care More Accessible for Kids \",\"nodeType\":\"text\"}\n70cd:[\"$70ce\"]\n70cb:{\"data\":\"$70cc\",\"content\":\"$70cd\",\"nodeType\":\"heading-3\"}\n70d2:{}\n70d5:{}\n70d6:[]\n70d4:{\"data\":\"$70d5\",\"marks\":\"$70d6\",\"value\":\"Drewâs family traveled farther away from home to find a place where he belonged. They found comfort and belonging among supportive staff and other families living through the same experience. \",\"nodeType\":\"text\"}\n70d3:[\"$70d4\"]\n70d1:{\"data\":\"$70d2\",\"content\":\"$70d3\",\"nodeType\":\"paragraph\"}\n70d8:{}\n70db:{}\n70dc:[]\n70da:{\"data\":\"$70db\",\"marks\":\"$70dc\",\"value\":\"Today, Childrenâs Health is on a mission to meet the unique and wide-ranging needs of kids for generations to come. With approximately 3 million children projected to live in North Texas by 2050, philanthropic gifts are critical to ensure Childrenâs Health is ready to care for our communityâs children. \",\"nodeType\":\"text\"}\n70d9:[\"$70da\"]\n70d7:{\"data\":\"$70d8\",\"content\":\"$70d9\",\"nodeType\":\"paragraph\"}\n70de:{}\n70e1:{}\n70e2:[]\n70e0:{\"data\":\"$70e1\",\"marks\":\"$70e2\",\"value\":\"In 2021, Childrenâs Healthâ launched one of the most significant initiatives in our hospitalâs history â the Plano campus expansion. The new eight-story, 395,000-square-foot tower will house expanded specialty care programs, support services, an amenities center and much more so kids north of Dallas can receive the same care closer to home. \",\"nodeType\":\"text\"}\n70df:[\"$70e0\"]\n70dd:{\"data\":\"$70de\",\"content\":\"$70df\",\"nodeType\":\"paragraph\"}\n70e4:{}\n70e7:{}\n70e8:[]\n70e6:{\"data\":\"$70e7\",\"marks\":\"$70e8\",\"value\":\"As we continue to anticipate the growing n"])</script>
1<script>self.__next_f.push([1,"eeds of the pediatric population today and for decades to come, support of the Childrenâs Medical Center Plano expansion has and will continue to allow us to embark on a path of significant growth, ensuring our legacy of providing the best pediatric health care for all children and families. \",\"nodeType\":\"text\"}\n70e5:[\"$70e6\"]\n70e3:{\"data\":\"$70e4\",\"content\":\"$70e5\",\"nodeType\":\"paragraph\"}\n70ea:{}\n70ed:{}\n70ee:[]\n70ec:{\"data\":\"$70ed\",\"marks\":\"$70ee\",\"value\":\"Your gifts to Childrenâs Health help us expand our facilities and services to provide personalized care to more kids like Drew. You help ensure that all children and families can find the social and emotional support they need for every moment of their journey. \",\"nodeType\":\"text\"}\n70eb:[\"$70ec\"]\n70e9:{\"data\":\"$70ea\",\"content\":\"$70eb\",\"nodeType\":\"paragraph\"}\n70f0:{}\n70f3:{}\n70f4:[]\n70f2:{\"data\":\"$70f3\",\"marks\":\"$70f4\",\"value\":\"âWhen we were in it, we were glad for the people that went before us and thought of ways to make it better for us. And now we get to think of ways to make it better for other people that are just starting their journey as we're ending ours.â -Emily Herrell \",\"nodeType\":\"text\"}\n70f1:[\"$70f2\"]\n70ef:{\"data\":\"$70f0\",\"content\":\"$70f1\",\"nodeType\":\"paragraph\"}\n70f6:{}\n70f9:{}\n70fa:[]\n70f8:{\"data\":\"$70f9\",\"marks\":\"$70fa\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n70f7:[\"$70f8\"]\n70f5:{\"data\":\"$70f6\",\"content\":\"$70f7\",\"nodeType\":\"heading-3\"}\n70fc:{}\n70ff:{}\n7100:[]\n70fe:{\"data\":\"$70ff\",\"marks\":\"$7100\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n7102:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n7105:{}\n7106:[]\n7104:{\"data\":\"$7105\",\"marks\":\"$7106\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n7103:[\"$7104\"]\n7101:{\"data\":\"$7102\",\"content\":\"$7103\",\"nodeType\":\"hyperlink\"}\n7108:{}\n7109:[]\n7107:{\"data\":\"$7108\",\"marks\":\"$7109\",\"value\":\" like Drew's and meet our \",\"nodeType\":\"text\"}\n710b:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n710e:{}\n710f:[]\n710d:{\"data\":\"$710e\",\"marks\":\"$710f\",\"value\":\""])</script>
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1<script>self.__next_f.push([1,"ys\":\"$7166\",\"fields\":\"$716d\"}\n7161:[\"$7162\"]\n7178:[]\n7179:[]\n7177:{\"tags\":\"$7178\",\"concepts\":\"$7179\"}\n717c:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n717b:{\"sys\":\"$717c\"}\n717e:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n717d:{\"sys\":\"$717e\"}\n7180:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n717f:{\"sys\":\"$7180\"}\n717a:{\"space\":\"$717b\",\"id\":\"49li7ypPo2Vfo4kQEqFLGd\",\"type\":\"Entry\",\"createdAt\":\"2025-02-11T16:52:09.679Z\",\"updatedAt\":\"2026-01-30T20:24:41.531Z\",\"environment\":\"$717d\",\"publishedVersion\":22,\"revision\":5,\"contentType\":\"$717f\",\"locale\":\"en-US\"}\n7183:{}\n7186:{}\n7189:{}\n718a:[]\n7188:{\"data\":\"$7189\",\"marks\":\"$718a\",\"value\":\"Exactly four people have told 15-year-old David that he should run for president. \",\"nodeType\":\"text\"}\n7187:[\"$7188\"]\n7185:{\"data\":\"$7186\",\"content\":\"$7187\",\"nodeType\":\"paragraph\"}\n718c:{}\n718f:{}\n7190:[]\n718e:{\"data\":\"$718f\",\"marks\":\"$7190\",\"value\":\"\\\"My mom, my second grade teacher, someone who works at the blood bank, and of course, Dr. Charina Ramirez,\\\" he said, referring to the pediatric gastroenterologist at Children's Healthâ he's seen since he was a baby. \",\"nodeType\":\"text\"}\n718d:[\"$718e\"]\n718b:{\"data\":\"$718c\",\"content\":\"$718d\",\"nodeType\":\"paragraph\"}\n7192:{}\n7195:{}\n7196:[]\n7194:{\"data\":\"$7195\",\"marks\":\"$7196\",\"value\":\"David is an extremely bright high school sophomore. He doesn't have a favorite subject because he sees value in all of them â though he's best at math and loves history because it provides context to understand the world. Fluent in English and Spanish, he even won a national essay contest about the importance of being bilingual last year. \",\"nodeType\":\"text\"}\n7193:[\"$7194\"]\n7191:{\"data\":\"$7192\",\"content\":\"$7193\",\"nodeType\":\"paragraph\"}\n7198:{}\n719b:{}\n719c:[]\n719a:{\"data\":\"$719b\",\"marks\":\"$719c\",\"value\":\"\\\"David has no limitations, he's just like any other child,\\\" said his mom Angelica, who speaks Spanish and shared her story through a translator. \\\"But if it weren't for God and Children's Health, David wouldn't be here today.\\"])</script>
1<script>self.__next_f.push([1,"\" \",\"nodeType\":\"text\"}\n7199:[\"$719a\"]\n7197:{\"data\":\"$7198\",\"content\":\"$7199\",\"nodeType\":\"paragraph\"}\n719e:{}\n71a1:{}\n71a2:[]\n71a0:{\"data\":\"$71a1\",\"marks\":\"$71a2\",\"value\":\"Expert and compassionate care early in life \",\"nodeType\":\"text\"}\n719f:[\"$71a0\"]\n719d:{\"data\":\"$719e\",\"content\":\"$719f\",\"nodeType\":\"heading-3\"}\n71a4:{}\n71a7:{}\n71a8:[]\n71a6:{\"data\":\"$71a7\",\"marks\":\"$71a8\",\"value\":\"Angelica knew something was wrong with her newborn baby. He was sleeping too much and his skin and eyes looked yellow (a condition called jaundice). She took him to the pediatrician, who did blood tests right away. \",\"nodeType\":\"text\"}\n71a5:[\"$71a6\"]\n71a3:{\"data\":\"$71a4\",\"content\":\"$71a5\",\"nodeType\":\"paragraph\"}\n71aa:{\"target\":\"$d6c\"}\n71ab:[]\n71a9:{\"data\":\"$71aa\",\"content\":\"$71ab\",\"nodeType\":\"embedded-entry-block\"}\n71ad:{}\n71b0:{}\n71b1:[]\n71af:{\"data\":\"$71b0\",\"marks\":\"$71b1\",\"value\":\"The family rushed to the Emergency Department at Children's Health. His care team gently explained that David's bile ducts, which help filter toxins from the body, weren't working properly, and they needed to do surgery to find out what was wrong. \",\"nodeType\":\"text\"}\n71ae:[\"$71af\"]\n71ac:{\"data\":\"$71ad\",\"content\":\"$71ae\",\"nodeType\":\"paragraph\"}\n71b3:{}\n71b4:[]\n71b2:{\"data\":\"$71b3\",\"content\":\"$71b4\",\"nodeType\":\"embedded-entry-block\"}\n71b6:{}\n71b9:{}\n71ba:[]\n71b8:{\"data\":\"$71b9\",\"marks\":\"$71ba\",\"value\":\"\\\"From there, everything happened so fast,\\\" Angelica said. \\\"By the next day, we had already met the care team, the surgeon, the anesthesiologist and everyone who was going to be taking care of our son.\\\" \",\"nodeType\":\"text\"}\n71b7:[\"$71b8\"]\n71b5:{\"data\":\"$71b6\",\"content\":\"$71b7\",\"nodeType\":\"paragraph\"}\n71bc:{}\n71bf:{}\n71c0:[]\n71be:{\"data\":\"$71bf\",\"marks\":\"$71c0\",\"value\":\"The minutes passed slowly during the seven-hour surgery. Finally, the surgeon came to the waiting room. He said three words: All is good. Angelica and Jorge, Davidâs dad, breathed a sigh of relief. \",\"nodeType\":\"text\"}\n71bd:[\"$71be\"]\n71bb:{\"data\":\"$71bc\",\"content\":\"$71bd\",\"nodeType\":\"paragr"])</script>
1<script>self.__next_f.push([1,"aph\"}\n71c2:{}\n71c5:{}\n71c6:[]\n71c4:{\"data\":\"$71c5\",\"marks\":\"$71c6\",\"value\":\"But there was an issue with Davidâs bile ducts. \",\"nodeType\":\"text\"}\n71c3:[\"$71c4\"]\n71c1:{\"data\":\"$71c2\",\"content\":\"$71c3\",\"nodeType\":\"paragraph\"}\n71c8:{}\n71cb:{}\n71cc:[]\n71ca:{\"data\":\"$71cb\",\"marks\":\"$71cc\",\"value\":\"The surgeon explained that David had a condition called biliary atresia, which happens when the bile ducts only form partially or don't form at all while a baby is in the womb. His surgeons then performed the Kasai procedure, which connects a section of the small intestine to the liver and helps filter bile. \",\"nodeType\":\"text\"}\n71c9:[\"$71ca\"]\n71c7:{\"data\":\"$71c8\",\"content\":\"$71c9\",\"nodeType\":\"paragraph\"}\n71ce:{}\n71d1:{}\n71d2:[]\n71d0:{\"data\":\"$71d1\",\"marks\":\"$71d2\",\"value\":\"Throughout those first weeks in the hospital, Angelica and Jorge were grateful for all of the resources they had access to such as social work, which helped provide them with meal cards to eat in the hospital cafeteria and gas cards to get back-and-forth, and language access translators, who made it possible for Angelica and Jorge to understand their sonâs diagnosis and treatment in their native language. \",\"nodeType\":\"text\"}\n71cf:[\"$71d0\"]\n71cd:{\"data\":\"$71ce\",\"content\":\"$71cf\",\"nodeType\":\"paragraph\"}\n71d4:{}\n71d7:{}\n71d8:[]\n71d6:{\"data\":\"$71d7\",\"marks\":\"$71d8\",\"value\":\"Programs like social work and language access are offered throughout the hospital at no cost to our patient families. And they are resources that makes the holistic care we provide patients and families at Childrenâs Health unique. Philanthropic gifts will continue to be essential in affording team members the ability to meet the individual and wide-ranging needs of families we serve. \",\"nodeType\":\"text\"}\n71d5:[\"$71d6\"]\n71d3:{\"data\":\"$71d4\",\"content\":\"$71d5\",\"nodeType\":\"paragraph\"}\n71da:{}\n71dd:{}\n71de:[]\n71dc:{\"data\":\"$71dd\",\"marks\":\"$71de\",\"value\":\"âOne of my biggest worries going in was understanding all of the medical information, but we always had translators, which really eas"])</script>
1<script>self.__next_f.push([1,"ed my worries,â Angelica said. âWe also used social work a lot and were so grateful to have so much help with even small medical necessities that helped improve Davidâs quality of care.â \",\"nodeType\":\"text\"}\n71db:[\"$71dc\"]\n71d9:{\"data\":\"$71da\",\"content\":\"$71db\",\"nodeType\":\"paragraph\"}\n71e0:{}\n71e1:[]\n71df:{\"data\":\"$71e0\",\"content\":\"$71e1\",\"nodeType\":\"embedded-entry-block\"}\n71e3:{}\n71e6:{}\n71e7:[]\n71e5:{\"data\":\"$71e6\",\"marks\":\"$71e7\",\"value\":\"A looming deadline of a liver transplant\",\"nodeType\":\"text\"}\n71e4:[\"$71e5\"]\n71e2:{\"data\":\"$71e3\",\"content\":\"$71e4\",\"nodeType\":\"heading-3\"}\n71e9:{}\n71ec:{}\n71ed:[]\n71eb:{\"data\":\"$71ec\",\"marks\":\"$71ed\",\"value\":\"Like many parents faced with a scary diagnosis, Angelica feared that she'd done something wrong, and that's why David had a liver problem. \",\"nodeType\":\"text\"}\n71ea:[\"$71eb\"]\n71e8:{\"data\":\"$71e9\",\"content\":\"$71ea\",\"nodeType\":\"paragraph\"}\n71ef:{}\n71f2:{}\n71f3:[]\n71f1:{\"data\":\"$71f2\",\"marks\":\"$71f3\",\"value\":\"\\\"We felt much better after the doctor reassured us that only God knows why this happened to David, and there was nothing we could have done to prevent or cause it,\\\" Angelica said. \",\"nodeType\":\"text\"}\n71f0:[\"$71f1\"]\n71ee:{\"data\":\"$71ef\",\"content\":\"$71f0\",\"nodeType\":\"paragraph\"}\n71f5:{}\n71f8:{}\n71f9:[]\n71f7:{\"data\":\"$71f8\",\"marks\":\"$71f9\",\"value\":\"The care team also explained that for many patients, the Kasai procedure is only a temporary fix. Most children will eventually need a liver transplant to effectively filter toxins from their body. Angelica remembers seeing a 10-year-old girl at the hospital while David was recovering from his surgery. \",\"nodeType\":\"text\"}\n71f6:[\"$71f7\"]\n71f4:{\"data\":\"$71f5\",\"content\":\"$71f6\",\"nodeType\":\"paragraph\"}\n71fb:{}\n71fe:{}\n71ff:[]\n71fd:{\"data\":\"$71fe\",\"marks\":\"$71ff\",\"value\":\"\\\"I remember thinking we had at least 10 years with David, which felt like forever looking at that little girl. But it also felt like a looming deadline,\\\" she said. \\\"But so far we've been lucky. David has made it to 15 and hasn't needed a transplant.\\"])</script>
1<script>self.__next_f.push([1,"\" \",\"nodeType\":\"text\"}\n71fc:[\"$71fd\"]\n71fa:{\"data\":\"$71fb\",\"content\":\"$71fc\",\"nodeType\":\"paragraph\"}\n7201:{}\n7204:{}\n7205:[]\n7203:{\"data\":\"$7204\",\"marks\":\"$7205\",\"value\":\"A bright future for David \",\"nodeType\":\"text\"}\n7202:[\"$7203\"]\n7200:{\"data\":\"$7201\",\"content\":\"$7202\",\"nodeType\":\"heading-3\"}\n7207:{}\n7208:[]\n7206:{\"data\":\"$7207\",\"content\":\"$7208\",\"nodeType\":\"embedded-entry-block\"}\n720a:{}\n720d:{}\n720e:[]\n720c:{\"data\":\"$720d\",\"marks\":\"$720e\",\"value\":\"Angelica credits David's health to the expert ongoing care of Dr. Ramirez and his care team at Children's Health. She knows that donors play a key role in making that care possible. \",\"nodeType\":\"text\"}\n720b:[\"$720c\"]\n7209:{\"data\":\"$720a\",\"content\":\"$720b\",\"nodeType\":\"paragraph\"}\n7210:{}\n7213:{}\n7214:[]\n7212:{\"data\":\"$7213\",\"marks\":\"$7214\",\"value\":\"\\\"We are so thankful for donors who support Childrenâs Health. God bless them,â Angelica said. âYour gifts multiply their impact and help improve the quality of care for children.\\\" \",\"nodeType\":\"text\"}\n7211:[\"$7212\"]\n720f:{\"data\":\"$7210\",\"content\":\"$7211\",\"nodeType\":\"paragraph\"}\n7216:{}\n7219:{}\n721a:[]\n7218:{\"data\":\"$7219\",\"marks\":\"$721a\",\"value\":\"David describes Dr. Ramirez as a lifeline who helps keep his health on track so biliary atresia doesn't get in his way. Instead, he spends his time hanging out with his friends, learning about maps, coding and writing comic books. An avid horseman, David spends many afternoons with his brothers learning how to train horses from their father â who David describes as an impactful role model. He likens his future to the Dr. Seuss poem \\\"Oh the Places You'll Go,\\\" which teaches kids about seizing opportunities. \",\"nodeType\":\"text\"}\n7217:[\"$7218\"]\n7215:{\"data\":\"$7216\",\"content\":\"$7217\",\"nodeType\":\"paragraph\"}\n721c:{}\n721f:{}\n7220:[]\n721e:{\"data\":\"$721f\",\"marks\":\"$7220\",\"value\":\"\\\"I may be the U.S. president. I might be a lawyer. I might be a scientist or a doctor. Dr. Ramirez encourages me to pursue gastroenterology,\\\" David said. \\\"No one knows what I'm going to be or what "])</script>
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1<script>self.__next_f.push([1,"le pokes when taking blood samples for labs during Claytonâs cancer treatment. \",\"nodeType\":\"text\"}\n72cc:[\"$72cd\"]\n72ca:{\"data\":\"$72cb\",\"content\":\"$72cc\",\"nodeType\":\"paragraph\"}\n72d1:{}\n72d4:{}\n72d5:[]\n72d3:{\"data\":\"$72d4\",\"marks\":\"$72d5\",\"value\":\"âAfter he got his poke, then it was all jokes on, game on,â Cody said. \",\"nodeType\":\"text\"}\n72d2:[\"$72d3\"]\n72d0:{\"data\":\"$72d1\",\"content\":\"$72d2\",\"nodeType\":\"paragraph\"}\n72d7:{}\n72da:{}\n72db:[]\n72d9:{\"data\":\"$72da\",\"marks\":\"$72db\",\"value\":\"Cody and Lauren even gifted the phlebotomists a mug with the phrase to display in the clinic.\",\"nodeType\":\"text\"}\n72d8:[\"$72d9\"]\n72d6:{\"data\":\"$72d7\",\"content\":\"$72d8\",\"nodeType\":\"paragraph\"}\n72dd:{}\n72de:[]\n72dc:{\"data\":\"$72dd\",\"content\":\"$72de\",\"nodeType\":\"embedded-entry-block\"}\n72e0:{}\n72e3:{}\n72e4:[]\n72e2:{\"data\":\"$72e3\",\"marks\":\"$72e4\",\"value\":\"A pediatricianâs intuition gets Clayton the care he needs \",\"nodeType\":\"text\"}\n72e1:[\"$72e2\"]\n72df:{\"data\":\"$72e0\",\"content\":\"$72e1\",\"nodeType\":\"heading-3\"}\n72e6:{}\n72e7:[]\n72e5:{\"data\":\"$72e6\",\"content\":\"$72e7\",\"nodeType\":\"embedded-entry-block\"}\n72e9:{}\n72ec:{}\n72ed:[]\n72eb:{\"data\":\"$72ec\",\"marks\":\"$72ed\",\"value\":\"Claytonâs diagnosis began during a trip to the pediatrician, prompted because they noticed his belly was distended and beginning to protrude more to one side. That day, their usual pediatrician was away, so they saw another doctor from the practice. When examining Claytonâs belly, he immediately felt a mass and relayed his concerns.\",\"nodeType\":\"text\"}\n72ea:[\"$72eb\"]\n72e8:{\"data\":\"$72e9\",\"content\":\"$72ea\",\"nodeType\":\"paragraph\"}\n72ef:{}\n72f2:{}\n72f3:[]\n72f1:{\"data\":\"$72f2\",\"marks\":\"$72f3\",\"value\":\"âWe were told to leave immediately and go straight to Childrenâs Health. The doctor didnât even want us to check out,â Lauren said.\",\"nodeType\":\"text\"}\n72f0:[\"$72f1\"]\n72ee:{\"data\":\"$72ef\",\"content\":\"$72f0\",\"nodeType\":\"paragraph\"}\n72f5:{}\n72f8:{}\n72f9:[]\n72f7:{\"data\":\"$72f8\",\"marks\":\"$72f9\",\"value\":\"On the way, they called their regular pediatrician, who had already "])</script>
1<script>self.__next_f.push([1,"talked to the other doctor. Their pediatrician relayed that based on the location of the mass it was possible Clayton had a Wilms tumor, a common type of pediatric kidney cancer. \",\"nodeType\":\"text\"}\n72f6:[\"$72f7\"]\n72f4:{\"data\":\"$72f5\",\"content\":\"$72f6\",\"nodeType\":\"paragraph\"}\n72fb:{}\n72fe:{}\n72ff:[]\n72fd:{\"data\":\"$72fe\",\"marks\":\"$72ff\",\"value\":\"Claytonâs CT scan confirmed what the pediatrician suspected.\",\"nodeType\":\"text\"}\n72fc:[\"$72fd\"]\n72fa:{\"data\":\"$72fb\",\"content\":\"$72fc\",\"nodeType\":\"paragraph\"}\n7301:{}\n7304:{}\n7305:[]\n7303:{\"data\":\"$7304\",\"marks\":\"$7305\",\"value\":\"Two days later, Samir Pandya, M.D., Pediatric Surgeon at Childrenâs Health and Associate Professor at UT Southwestern Medical Center, removed the tumor and Claytonâs left kidney.\",\"nodeType\":\"text\"}\n7302:[\"$7303\"]\n7300:{\"data\":\"$7301\",\"content\":\"$7302\",\"nodeType\":\"paragraph\"}\n7307:{}\n730a:{}\n730b:[]\n7309:{\"data\":\"$730a\",\"marks\":\"$730b\",\"value\":\"âHe was phenomenal and wonderful and provided such great care. They warned us that Clayton's tumor was very large, and may rupture when removing it. If that happened, radiation would be a big part of his treatment plan because all of those cells would spill into his abdomen,â Lauren said. âBut Dr. Pandya was able to remove it without rupturing it, so that was a big answered prayer.â\",\"nodeType\":\"text\"}\n7308:[\"$7309\"]\n7306:{\"data\":\"$7307\",\"content\":\"$7308\",\"nodeType\":\"paragraph\"}\n730d:{}\n7310:{}\n7311:[]\n730f:{\"data\":\"$7310\",\"marks\":\"$7311\",\"value\":\"After seven days of recovery, Clayton was cleared to begin the next stage of treatment.\",\"nodeType\":\"text\"}\n730e:[\"$730f\"]\n730c:{\"data\":\"$730d\",\"content\":\"$730e\",\"nodeType\":\"paragraph\"}\n7313:{}\n7316:{}\n7317:[]\n7315:{\"data\":\"$7316\",\"marks\":\"$7317\",\"value\":\"But there was a curveball: Once clinicians inspected the tumor under the microscope, they discovered aggressive cancer cells.\",\"nodeType\":\"text\"}\n7314:[\"$7315\"]\n7312:{\"data\":\"$7313\",\"content\":\"$7314\",\"nodeType\":\"paragraph\"}\n7319:{}\n731c:{}\n731d:[]\n731b:{\"data\":\"$731c\",\"marks\":\"$731d\",\"value\":\"Follow"])</script>
1<script>self.__next_f.push([1,"ing Claytonâs positive lead \",\"nodeType\":\"text\"}\n731a:[\"$731b\"]\n7318:{\"data\":\"$7319\",\"content\":\"$731a\",\"nodeType\":\"heading-3\"}\n731f:{}\n7320:[]\n731e:{\"data\":\"$731f\",\"content\":\"$7320\",\"nodeType\":\"embedded-entry-block\"}\n7322:{}\n7325:{}\n7326:[]\n7324:{\"data\":\"$7325\",\"marks\":\"$7326\",\"value\":\"Because of the aggressive cells and his tumor being pressed against so many other organs, Clayton would need eight months of chemotherapy and six days of radiation to ensure there werenât cancer cells hiding anywhere else in his body.\",\"nodeType\":\"text\"}\n7323:[\"$7324\"]\n7321:{\"data\":\"$7322\",\"content\":\"$7323\",\"nodeType\":\"paragraph\"}\n7328:{}\n732b:{}\n732c:[]\n732a:{\"data\":\"$732b\",\"marks\":\"$732c\",\"value\":\"It was hard to hear that Clayton needed more chemotherapy, along with watching their little boy lose his hair and endure the discomfort of radiation.\",\"nodeType\":\"text\"}\n7329:[\"$732a\"]\n7327:{\"data\":\"$7328\",\"content\":\"$7329\",\"nodeType\":\"paragraph\"}\n732e:{}\n7331:{}\n7332:[]\n7330:{\"data\":\"$7331\",\"marks\":\"$7332\",\"value\":\"But Cody and Lauren worked hard to maintain the positivity that Clayton woke up with every day.\",\"nodeType\":\"text\"}\n732f:[\"$7330\"]\n732d:{\"data\":\"$732e\",\"content\":\"$732f\",\"nodeType\":\"paragraph\"}\n7334:{}\n7337:{}\n7338:[]\n7336:{\"data\":\"$7337\",\"marks\":\"$7338\",\"value\":\"âOverall, he was in amazing spirits, just a happy-go-lucky kid, who ran into the hospital with a smile on his face,â she said. âWeâre fortunate that he doesnât carry any negative emotions from his experience.â\",\"nodeType\":\"text\"}\n7335:[\"$7336\"]\n7333:{\"data\":\"$7334\",\"content\":\"$7335\",\"nodeType\":\"paragraph\"}\n733a:{}\n733d:{}\n733e:[]\n733c:{\"data\":\"$733d\",\"marks\":\"$733e\",\"value\":\"They watched as their team of nurses, doctors, child life specialists and phlebotomists (also known as âthe naughty blood girlsâ) united around Claytonâs care and his patient experience.\",\"nodeType\":\"text\"}\n733b:[\"$733c\"]\n7339:{\"data\":\"$733a\",\"content\":\"$733b\",\"nodeType\":\"paragraph\"}\n7340:{}\n7343:{}\n7344:[]\n7342:{\"data\":\"$7343\",\"marks\":\"$7344\",\"value\":\"From then on, Clayton"])</script>
1<script>self.__next_f.push([1," became his parentsâ superhero.\",\"nodeType\":\"text\"}\n7341:[\"$7342\"]\n733f:{\"data\":\"$7340\",\"content\":\"$7341\",\"nodeType\":\"paragraph\"}\n7346:{}\n7347:[]\n7345:{\"data\":\"$7346\",\"content\":\"$7347\",\"nodeType\":\"embedded-entry-block\"}\n7349:{}\n734c:{}\n734d:[]\n734b:{\"data\":\"$734c\",\"marks\":\"$734d\",\"value\":\"âThat whole theme of him being a superhero carried over to the team that surrounded us for his treatment,â Cody said. âI don't think people realize how fortunate we are to have one of the best pediatric hospitals in the country, in our city.â\",\"nodeType\":\"text\"}\n734a:[\"$734b\"]\n7348:{\"data\":\"$7349\",\"content\":\"$734a\",\"nodeType\":\"paragraph\"}\n734f:{}\n7352:{}\n7353:[]\n7351:{\"data\":\"$7352\",\"marks\":\"$7353\",\"value\":\"Clayton's parents become advocates for philanthropy and research \",\"nodeType\":\"text\"}\n7350:[\"$7351\"]\n734e:{\"data\":\"$734f\",\"content\":\"$7350\",\"nodeType\":\"heading-3\"}\n7355:{}\n7356:[]\n7354:{\"data\":\"$7355\",\"content\":\"$7356\",\"nodeType\":\"embedded-entry-block\"}\n7358:{}\n735b:{}\n735c:[]\n735a:{\"data\":\"$735b\",\"marks\":\"$735c\",\"value\":\"Lauren and Cody were shocked when they learned that only about 4 percent of federal funding for cancer research goes to children, according to the National Pediatric Cancer Foundation. This turned them into fierce champions for philanthropy.\",\"nodeType\":\"text\"}\n7359:[\"$735a\"]\n7357:{\"data\":\"$7358\",\"content\":\"$7359\",\"nodeType\":\"paragraph\"}\n735e:{}\n7361:{}\n7362:[]\n7360:{\"data\":\"$7361\",\"marks\":\"$7362\",\"value\":\"\\\"It showed us how important it is for fundraising to help fill that gap,\\\" Cody said. \\\"When you're making a gift to research a pediatric disease, you're investing in something that will help kids who potentially have another 50, 60, 70 years of life in front of them. How many investments can we make in this lifetime where you can see that kind of long-term return on your investment?â\",\"nodeType\":\"text\"}\n735f:[\"$7360\"]\n735d:{\"data\":\"$735e\",\"content\":\"$735f\",\"nodeType\":\"paragraph\"}\n7364:{}\n7367:{}\n7368:[]\n7366:{\"data\":\"$7367\",\"marks\":\"$7368\",\"value\":\"By chance, the family got to understand the "])</script>
1<script>self.__next_f.push([1,"outcomes of Wilms tumor research when they met a Wilms tumor survivor through friends at church. She had her tumor removed more than 30 years ago when treatment outcomes were much less certain. Because her doctor was connected to research, her parents were able to enroll her in a trial study for new treatments.\",\"nodeType\":\"text\"}\n7365:[\"$7366\"]\n7363:{\"data\":\"$7364\",\"content\":\"$7365\",\"nodeType\":\"paragraph\"}\n736a:{}\n736d:{}\n736e:[]\n736c:{\"data\":\"$736d\",\"marks\":\"$736e\",\"value\":\"âBack then, doctors removed tumors and waited to see if patients lived or died. Thankfully, the trial was successful and she lives to tell the story,â Lauren said. âNow, 30 years later that research has directly impacted our family, and our doctors were able to provide a very clear plan for our son and that came with a 90% success rate.â\",\"nodeType\":\"text\"}\n736b:[\"$736c\"]\n7369:{\"data\":\"$736a\",\"content\":\"$736b\",\"nodeType\":\"paragraph\"}\n7370:{}\n7373:{}\n7374:[]\n7372:{\"data\":\"$7373\",\"marks\":\"$7374\",\"value\":\"Now, the couple is committed to sharing their familyâs story to help advance treatment options for kids who will be diagnosed when Clayton is an adult. Already, Cody serves on the board of a local nonprofit that works alongside Childrenâs Health to raise funds for pediatric cancer research to help kids like Clayton, who will start kindergarten next year, now and in the future.\",\"nodeType\":\"text\"}\n7371:[\"$7372\"]\n736f:{\"data\":\"$7370\",\"content\":\"$7371\",\"nodeType\":\"paragraph\"}\n7376:{}\n7379:{}\n737a:[]\n7378:{\"data\":\"$7379\",\"marks\":\"$737a\",\"value\":\"âI don't know that you could pay back all the support that weâve been given, but you can certainly pay it forward,â Cody said. âWe are always open to those opportunities to do what we can, whether it's in time, in talents or financially.â\",\"nodeType\":\"text\"}\n7377:[\"$7378\"]\n7375:{\"data\":\"$7376\",\"content\":\"$7377\",\"nodeType\":\"paragraph\"}\n737c:{}\n737f:{}\n7380:[]\n737e:{\"data\":\"$737f\",\"marks\":\"$7380\",\"value\":\"Cody and Lauren also understand that the extensive population growth in North Texa"])</script>
1<script>self.__next_f.push([1,"s means Childrenâs Health must be prepared to meet the unique and wide-ranging needs of a growing number of children in our community, requiring advanced and specialized care. And they understand how lucky they are to have one of the countryâs largest and most prestigious pediatric health care providers in their backyard.\",\"nodeType\":\"text\"}\n737d:[\"$737e\"]\n737b:{\"data\":\"$737c\",\"content\":\"$737d\",\"nodeType\":\"paragraph\"}\n7382:{}\n7383:[]\n7381:{\"data\":\"$7382\",\"content\":\"$7383\",\"nodeType\":\"embedded-entry-block\"}\n7385:{}\n7388:{}\n7389:[]\n7387:{\"data\":\"$7388\",\"marks\":\"$7389\",\"value\":\"Better facilities and technology, mean more capacity to give every child the right care when they need it. However, the couple is also looking to Childrenâs Health to continue to be champions of pediatric cancer research. And because of the limited funding available, theyâll be reaching out to the community to raise awareness and build the support needed to propel the survival rates of all types of pediatric cancers.\",\"nodeType\":\"text\"}\n7386:[\"$7387\"]\n7384:{\"data\":\"$7385\",\"content\":\"$7386\",\"nodeType\":\"paragraph\"}\n738b:{}\n738e:{}\n738f:[]\n738d:{\"data\":\"$738e\",\"marks\":\"$738f\",\"value\":\"They want to ensure that more kids like Clayton can continue doing all the things they love to do like playing sports, dancing or enjoying time with their pets and their brothers and sisters. And most importantly, showing off their superhero scars that mark their cancer journey.\",\"nodeType\":\"text\"}\n738c:[\"$738d\"]\n738a:{\"data\":\"$738b\",\"content\":\"$738c\",\"nodeType\":\"paragraph\"}\n7391:{}\n7394:{}\n7395:[]\n7393:{\"data\":\"$7394\",\"marks\":\"$7395\",\"value\":\"âThe research advances for Wilms tumors are because of families who wanted better treatments and because donors who wanted to make a difference. Then, the amazingly smart doctors and researchers who put those funds to use. But not every type of cancer has the clear path that Wilms does,â Lauren said. âThe donor community is the key to doctors being able to provide the same level of comfort that we received, to a"])</script>
1<script>self.__next_f.push([1,"ll families.â \",\"nodeType\":\"text\"}\n7392:[\"$7393\"]\n7390:{\"data\":\"$7391\",\"content\":\"$7392\",\"nodeType\":\"paragraph\"}\n7397:{}\n739a:{}\n739b:[]\n7399:{\"data\":\"$739a\",\"marks\":\"$739b\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n7398:[\"$7399\"]\n7396:{\"data\":\"$7397\",\"content\":\"$7398\",\"nodeType\":\"heading-3\"}\n739d:{}\n73a0:{}\n73a1:[]\n739f:{\"data\":\"$73a0\",\"marks\":\"$73a1\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n73a3:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n73a6:{}\n73a7:[]\n73a5:{\"data\":\"$73a6\",\"marks\":\"$73a7\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n73a4:[\"$73a5\"]\n73a2:{\"data\":\"$73a3\",\"content\":\"$73a4\",\"nodeType\":\"hyperlink\"}\n73a9:{}\n73aa:[]\n73a8:{\"data\":\"$73a9\",\"marks\":\"$73aa\",\"value\":\" like Clayton's and meet our \",\"nodeType\":\"text\"}\n73ac:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n73af:{}\n73b0:[]\n73ae:{\"data\":\"$73af\",\"marks\":\"$73b0\",\"value\":\"Patient Ambassadors\",\"nodeType\":\"text\"}\n73ad:[\"$73ae\"]\n73ab:{\"data\":\"$73ac\",\"content\":\"$73ad\",\"nodeType\":\"hyperlink\"}\n73b2:{}\n73b3:[]\n73b1:{\"data\":\"$73b2\",\"marks\":\"$73b3\",\"value\":\" to learn how Children's Health makes life better for children.\",\"nodeType\":\"text\"}\n739e:[\"$739f\",\"$73a2\",\"$73a8\",\"$73ab\",\"$73b1\"]\n739c:{\"data\":\"$739d\",\"content\":\"$739e\",\"nodeType\":\"paragraph\"}\n73b5:{}\n73b8:{}\n73b9:[]\n73b7:{\"data\":\"$73b8\",\"marks\":\"$73b9\",\"value\":\"Support patients like Clayton this holiday season\",\"nodeType\":\"text\"}\n73b6:[\"$73b7\"]\n73b4:{\"data\":\"$73b5\",\"content\":\"$73b6\",\"nodeType\":\"heading-3\"}\n73bb:{}\n73be:{}\n73c0:{\"type\":\"italic\"}\n73bf:[\"$73c0\"]\n73bd:{\"data\":\"$73be\",\"marks\":\"$73bf\",\"value\":\"At Childrenâs Health, the little red balloon floating next to our name is small but powerful â just like our patients. This red balloon unites the might of academic medicine with the breadth of specialty expertise to offer clinical care without a ceiling. When combined with the power of families and our donors, we are incredible together. \",\"nodeType\":\"text\"}\n73bc:[\"$73bd\"]\n73ba:{\"data\":\"$73bb\",\"content\":\"$73bc\",\"nodeType\":\"paragraph\"}\n73c"])</script>
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1<script>self.__next_f.push([1,"vely, how can we possibly go anywhere else?ââ \",\"nodeType\":\"text\"}\n747e:[\"$747f\"]\n747c:{\"data\":\"$747d\",\"content\":\"$747e\",\"nodeType\":\"paragraph\"}\n7483:{}\n7486:{}\n7487:[]\n7485:{\"data\":\"$7486\",\"marks\":\"$7487\",\"value\":\"Led by Dr. Desai, Annabellaâs complicated transplant surgery went as well as possible. Just days after surgery, her skin was no longer jaundiced, and she had the normal energetic disposition of an 8-month-old. \",\"nodeType\":\"text\"}\n7484:[\"$7485\"]\n7482:{\"data\":\"$7483\",\"content\":\"$7484\",\"nodeType\":\"paragraph\"}\n7489:{}\n748c:{}\n748d:[]\n748b:{\"data\":\"$748c\",\"marks\":\"$748d\",\"value\":\"âIt was absolutely amazing,â Alexa said. \",\"nodeType\":\"text\"}\n748a:[\"$748b\"]\n7488:{\"data\":\"$7489\",\"content\":\"$748a\",\"nodeType\":\"paragraph\"}\n748f:{}\n7492:{}\n7493:[]\n7491:{\"data\":\"$7492\",\"marks\":\"$7493\",\"value\":\"Volleyball, art, and a dog named Cinnamon \",\"nodeType\":\"text\"}\n7490:[\"$7491\"]\n748e:{\"data\":\"$748f\",\"content\":\"$7490\",\"nodeType\":\"heading-3\"}\n7495:{}\n7498:{}\n7499:[]\n7497:{\"data\":\"$7498\",\"marks\":\"$7499\",\"value\":\"Fast forward to 2023 where Annabella is a thriving 13-year-old who loves volleyball, swimming in the familyâs pool, and making art. \",\"nodeType\":\"text\"}\n7496:[\"$7497\"]\n7494:{\"data\":\"$7495\",\"content\":\"$7496\",\"nodeType\":\"paragraph\"}\n749b:{}\n749e:{}\n749f:[]\n749d:{\"data\":\"$749e\",\"marks\":\"$749f\",\"value\":\"She and her younger sister, Emmeline, have spent the past few summers creating hope-filled artwork thatâs been selected for patient-created note cards sold through The Womenâs Auxiliary to Childrenâs Medical Center, whose members have volunteered and raised more than $26 million for critical hospital needs since 1962. \",\"nodeType\":\"text\"}\n749c:[\"$749d\"]\n749a:{\"data\":\"$749b\",\"content\":\"$749c\",\"nodeType\":\"paragraph\"}\n74a1:{}\n74a4:{}\n74a5:[]\n74a3:{\"data\":\"$74a4\",\"marks\":\"$74a5\",\"value\":\"Annabella is especially proud of her snowman artwork, which inspired a Christopher Radko ornament to raise funds for patients and team members at Childrenâs Health, and is a symbol of the familyâs love of brightening the "])</script>
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1<script>self.__next_f.push([1,"ubs from Annabella. \",\"nodeType\":\"text\"}\n74c0:[\"$74c1\"]\n74be:{\"data\":\"$74bf\",\"content\":\"$74c0\",\"nodeType\":\"paragraph\"}\n74c5:{}\n74c8:{}\n74c9:[]\n74c7:{\"data\":\"$74c8\",\"marks\":\"$74c9\",\"value\":\"âCinnamon was the best Christmas gift I ever got,â Anabella said. \",\"nodeType\":\"text\"}\n74c6:[\"$74c7\"]\n74c4:{\"data\":\"$74c5\",\"content\":\"$74c6\",\"nodeType\":\"paragraph\"}\n74cb:{}\n74ce:{}\n74cf:[]\n74cd:{\"data\":\"$74ce\",\"marks\":\"$74cf\",\"value\":\"Taking stock of the little things \",\"nodeType\":\"text\"}\n74cc:[\"$74cd\"]\n74ca:{\"data\":\"$74cb\",\"content\":\"$74cc\",\"nodeType\":\"heading-3\"}\n74d1:{}\n74d4:{}\n74d5:[]\n74d3:{\"data\":\"$74d4\",\"marks\":\"$74d5\",\"value\":\"Reflecting on the months they spent in the hospital, Alexa is grateful for the medical miracle of her daughterâs liver transplant, but sheâs also grateful for all the little ways theyâve been cared for and supported. \",\"nodeType\":\"text\"}\n74d2:[\"$74d3\"]\n74d0:{\"data\":\"$74d1\",\"content\":\"$74d2\",\"nodeType\":\"paragraph\"}\n74d7:{}\n74da:{}\n74db:[]\n74d9:{\"data\":\"$74da\",\"marks\":\"$74db\",\"value\":\"In the early days, when Annabella was so sick, they were laser-focused on Annabellaâs health. So they were a bit taken aback â in a touching way â when a Childrenâs Health Child Life Specialist dropped by and asked, Would you like a mobile to hang on Annabellaâs bed? Or a certain type of stuffed animal or toy? \",\"nodeType\":\"text\"}\n74d8:[\"$74d9\"]\n74d6:{\"data\":\"$74d7\",\"content\":\"$74d8\",\"nodeType\":\"paragraph\"}\n74dd:{\"target\":\"$d78\"}\n74de:[]\n74dc:{\"data\":\"$74dd\",\"content\":\"$74de\",\"nodeType\":\"embedded-entry-block\"}\n74e0:{}\n74e3:{}\n74e4:[]\n74e2:{\"data\":\"$74e3\",\"marks\":\"$74e4\",\"value\":\"Brightening days for other families \",\"nodeType\":\"text\"}\n74e1:[\"$74e2\"]\n74df:{\"data\":\"$74e0\",\"content\":\"$74e1\",\"nodeType\":\"heading-3\"}\n74e6:{}\n74e9:{}\n74ea:[]\n74e8:{\"data\":\"$74e9\",\"marks\":\"$74ea\",\"value\":\"Unlike the early diagnosis phase when they werenât ready to share everything, Annabellaâs family is committed to sharing their story as much as possible. \",\"nodeType\":\"text\"}\n74e7:[\"$74e8\"]\n74e5:{\"data\":\"$74e6\",\"content\""])</script>
1<script>self.__next_f.push([1,":\"$74e7\",\"nodeType\":\"paragraph\"}\n74ec:{}\n74ef:{}\n74f0:[]\n74ee:{\"data\":\"$74ef\",\"marks\":\"$74f0\",\"value\":\"âWe want to do what we can do to help spread the good word and to tell stories that are backed by a mission of making life better for children,â Alexa said. âOur name will be on the donor Christmas tree list in perpetuity.â\",\"nodeType\":\"text\"}\n74ed:[\"$74ee\"]\n74eb:{\"data\":\"$74ec\",\"content\":\"$74ed\",\"nodeType\":\"paragraph\"}\n74f2:{}\n74f5:{}\n74f6:[]\n74f4:{\"data\":\"$74f5\",\"marks\":\"$74f6\",\"value\":\"Annabella echoes her momâs support of their family tradition. \",\"nodeType\":\"text\"}\n74f3:[\"$74f4\"]\n74f1:{\"data\":\"$74f2\",\"content\":\"$74f3\",\"nodeType\":\"paragraph\"}\n74f8:{}\n74fb:{}\n74fc:[]\n74fa:{\"data\":\"$74fb\",\"marks\":\"$74fc\",\"value\":\"âIf a family is in the hospital with a sick kid, and theyâre walking down the hall and they see all the beautiful holiday decorations, it's very nice. It makes me happy and I hope it makes them happy too,â Annabella said. \",\"nodeType\":\"text\"}\n74f9:[\"$74fa\"]\n74f7:{\"data\":\"$74f8\",\"content\":\"$74f9\",\"nodeType\":\"paragraph\"}\n74fe:{}\n7501:{}\n7502:[]\n7500:{\"data\":\"$7501\",\"marks\":\"$7502\",\"value\":\"Meet more Children's Health patients\",\"nodeType\":\"text\"}\n74ff:[\"$7500\"]\n74fd:{\"data\":\"$74fe\",\"content\":\"$74ff\",\"nodeType\":\"heading-3\"}\n7504:{}\n7507:{}\n7508:[]\n7506:{\"data\":\"$7507\",\"marks\":\"$7508\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n750a:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n750d:{}\n750e:[]\n750c:{\"data\":\"$750d\",\"marks\":\"$750e\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n750b:[\"$750c\"]\n7509:{\"data\":\"$750a\",\"content\":\"$750b\",\"nodeType\":\"hyperlink\"}\n7510:{}\n7511:[]\n750f:{\"data\":\"$7510\",\"marks\":\"$7511\",\"value\":\" like Annabella's and meet our \",\"nodeType\":\"text\"}\n7513:{\"uri\":\"https://give.childrens.com/why-give/patient-ambassadors\"}\n7516:{}\n7517:[]\n7515:{\"data\":\"$7516\",\"marks\":\"$7517\",\"value\":\"Patient Ambassadors\",\"nodeType\":\"text\"}\n7514:[\"$7515\"]\n7512:{\"data\":\"$7513\",\"content\":\"$7514\",\"nodeType\":\"hyperlink\"}\n7519:{}\n751a:[]\n7518:{\"data\":\"$7519\",\"marks\":\"$751a\",\"value\":\" to learn"])</script>
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1<script>self.__next_f.push([1," the little girlâs tummy felt hard and looked a bit swollen. Her blood pressure was also abnormally high. \",\"nodeType\":\"text\"}\n7598:[\"$7599\"]\n7596:{\"data\":\"$7597\",\"content\":\"$7598\",\"nodeType\":\"paragraph\"}\n759d:{}\n75a0:{}\n75a1:[]\n759f:{\"data\":\"$75a0\",\"marks\":\"$75a1\",\"value\":\"âWhen the doctor came, he told me Amairy had a tumor on her kidney and my mind started racing,â Yamira said about the cancerous clear cell sarcoma of the kidney, an extremely rare kidney tumor. \",\"nodeType\":\"text\"}\n759e:[\"$759f\"]\n759c:{\"data\":\"$759d\",\"content\":\"$759e\",\"nodeType\":\"paragraph\"}\n75a3:{}\n75a6:{}\n75a7:[]\n75a5:{\"data\":\"$75a6\",\"marks\":\"$75a7\",\"value\":\"Two months prior, Yamiraâs dad had died from cancer and now Amairy, her curious, creative girl and the light of her life, was being diagnosed with a life-threatening tumor. \",\"nodeType\":\"text\"}\n75a4:[\"$75a5\"]\n75a2:{\"data\":\"$75a3\",\"content\":\"$75a4\",\"nodeType\":\"paragraph\"}\n75a9:{}\n75ac:{}\n75ad:[]\n75ab:{\"data\":\"$75ac\",\"marks\":\"$75ad\",\"value\":\"âI was in shock,â Yamira said. \",\"nodeType\":\"text\"}\n75aa:[\"$75ab\"]\n75a8:{\"data\":\"$75a9\",\"content\":\"$75aa\",\"nodeType\":\"paragraph\"}\n75af:{}\n75b2:{}\n75b3:[]\n75b1:{\"data\":\"$75b2\",\"marks\":\"$75b3\",\"value\":\"An unexpected turn of events \",\"nodeType\":\"text\"}\n75b0:[\"$75b1\"]\n75ae:{\"data\":\"$75af\",\"content\":\"$75b0\",\"nodeType\":\"heading-3\"}\n75b5:{}\n75b8:{}\n75b9:[]\n75b7:{\"data\":\"$75b8\",\"marks\":\"$75b9\",\"value\":\"Amairyâs condition required a stay on Childrenâs Pediatric Intensive Care Unit (PICU) in Plano. Once there, her surgeon recommended chemotherapy to shrink the large, stage 3 tumor on her right kidney before the team could safely take the organ out. \",\"nodeType\":\"text\"}\n75b6:[\"$75b7\"]\n75b4:{\"data\":\"$75b5\",\"content\":\"$75b6\",\"nodeType\":\"paragraph\"}\n75bb:{}\n75be:{}\n75bf:[]\n75bd:{\"data\":\"$75be\",\"marks\":\"$75bf\",\"value\":\"Days on the PICU turned into a month-long stay. Then shorter hospital stays and clinic visits became the duoâs new normal until mid-March, when the cancerous kidney was finally ready to be removed. \",\"nodeType\":\"text\"}\n75bc:[\"$75bd\"]\n"])</script>
1<script>self.__next_f.push([1,"75ba:{\"data\":\"$75bb\",\"content\":\"$75bc\",\"nodeType\":\"paragraph\"}\n75c1:{}\n75c4:{}\n75c5:[]\n75c3:{\"data\":\"$75c4\",\"marks\":\"$75c5\",\"value\":\"âWe had the surgery at Childrenâs Health in Dallas,â Yamira said. âThey took her back to the operating room at 7:30 in the morning thinking it would be four hours, but it turned into a really big surgery that lasted more than 12 hours.â \",\"nodeType\":\"text\"}\n75c2:[\"$75c3\"]\n75c0:{\"data\":\"$75c1\",\"content\":\"$75c2\",\"nodeType\":\"paragraph\"}\n75c7:{}\n75ca:{}\n75cb:[]\n75c9:{\"data\":\"$75ca\",\"marks\":\"$75cb\",\"value\":\"Amairyâs tumor had spread to her vena cava â veins that collect deoxygenated blood from the whole body and bring it back to the heart for new oxygen â and liver. And because of the tumorâs growth, more than half of her liver had to be removed. \",\"nodeType\":\"text\"}\n75c8:[\"$75c9\"]\n75c6:{\"data\":\"$75c7\",\"content\":\"$75c8\",\"nodeType\":\"paragraph\"}\n75cd:{}\n75d0:{}\n75d1:[]\n75cf:{\"data\":\"$75d0\",\"marks\":\"$75d1\",\"value\":\"After the surgery, a week of radiation and a three-month hospital stay with more chemotherapy followed. All total, Amairy needed eight additional procedures to get rid of excess fluid in her liver and belly caused by the cancer-fighting therapies. \",\"nodeType\":\"text\"}\n75ce:[\"$75cf\"]\n75cc:{\"data\":\"$75cd\",\"content\":\"$75ce\",\"nodeType\":\"paragraph\"}\n75d3:{}\n75d6:{}\n75d7:[]\n75d5:{\"data\":\"$75d6\",\"marks\":\"$75d7\",\"value\":\"Making friends everywhere \",\"nodeType\":\"text\"}\n75d4:[\"$75d5\"]\n75d2:{\"data\":\"$75d3\",\"content\":\"$75d4\",\"nodeType\":\"heading-3\"}\n75d9:{}\n75dc:{}\n75dd:[]\n75db:{\"data\":\"$75dc\",\"marks\":\"$75dd\",\"value\":\"When you first meet Amairy, now 6, she can be shy, but her reserved nature certainly doesnât define her. \",\"nodeType\":\"text\"}\n75da:[\"$75db\"]\n75d8:{\"data\":\"$75d9\",\"content\":\"$75da\",\"nodeType\":\"paragraph\"}\n75df:{}\n75e0:[]\n75de:{\"data\":\"$75df\",\"content\":\"$75e0\",\"nodeType\":\"embedded-entry-block\"}\n75e2:{}\n75e5:{}\n75e6:[]\n75e4:{\"data\":\"$75e5\",\"marks\":\"$75e6\",\"value\":\"âOnce sheâs comfortable in a place, she wants to know everyone and everything thatâs going on,"])</script>
1<script>self.__next_f.push([1,"â Yamira said, laughing. âI know she feels safe here because sheâs spent more than six months combined as an inpatient, and in all that time, sheâs only asked twice if we could go home.â \",\"nodeType\":\"text\"}\n75e3:[\"$75e4\"]\n75e1:{\"data\":\"$75e2\",\"content\":\"$75e3\",\"nodeType\":\"paragraph\"}\n75e8:{}\n75eb:{}\n75ec:[]\n75ea:{\"data\":\"$75eb\",\"marks\":\"$75ec\",\"value\":\"Though Amairy is frail, she likes getting out of bed and making friends, especially in her favorite spot: the playroom, where team members celebrated her with a birthday party. \",\"nodeType\":\"text\"}\n75e9:[\"$75ea\"]\n75e7:{\"data\":\"$75e8\",\"content\":\"$75e9\",\"nodeType\":\"paragraph\"}\n75ee:{}\n75f1:{}\n75f2:[]\n75f0:{\"data\":\"$75f1\",\"marks\":\"$75f2\",\"value\":\"A sports junkie, Amairy also loves rolling around the hospital with her mom on EzyRollers, and sheâs been known to have two-hour dance parties with her child life specialist. This summer, her nurses decorated her room with a large ball, a slide, a special blanket and butterflies. \",\"nodeType\":\"text\"}\n75ef:[\"$75f0\"]\n75ed:{\"data\":\"$75ee\",\"content\":\"$75ef\",\"nodeType\":\"paragraph\"}\n75f4:{\"target\":\"$d9c\"}\n75f5:[]\n75f3:{\"data\":\"$75f4\",\"content\":\"$75f5\",\"nodeType\":\"embedded-entry-block\"}\n75f7:{}\n75fa:{}\n75fb:[]\n75f9:{\"data\":\"$75fa\",\"marks\":\"$75fb\",\"value\":\"By herself but never alone \",\"nodeType\":\"text\"}\n75f8:[\"$75f9\"]\n75f6:{\"data\":\"$75f7\",\"content\":\"$75f8\",\"nodeType\":\"heading-3\"}\n75fd:{}\n7600:{}\n7601:[]\n75ff:{\"data\":\"$7600\",\"marks\":\"$7601\",\"value\":\"Shortly after her only child was diagnosed with cancer, Yamira quit her job in the public school system as an English-as-a second-language aide. \",\"nodeType\":\"text\"}\n75fe:[\"$75ff\"]\n75fc:{\"data\":\"$75fd\",\"content\":\"$75fe\",\"nodeType\":\"paragraph\"}\n7603:{}\n7604:[]\n7602:{\"data\":\"$7603\",\"content\":\"$7604\",\"nodeType\":\"embedded-entry-block\"}\n7606:{}\n7609:{}\n760a:[]\n7608:{\"data\":\"$7609\",\"marks\":\"$760a\",\"value\":\"âThere was no question that I would be by Amairyâs side 24/7, but I was sick with worry about how we would survive,â she said. \",\"nodeType\":\"text\"}\n7607:[\"$7608\"]\n7605:{\"dat"])</script>
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1<script>self.__next_f.push([1,"alynn | Thumbnail\",\"image\":\"$76a5\"}\n7699:{\"metadata\":\"$769a\",\"sys\":\"$769d\",\"fields\":\"$76a4\"}\n7698:[\"$7699\"]\n76af:[]\n76b0:[]\n76ae:{\"tags\":\"$76af\",\"concepts\":\"$76b0\"}\n76b3:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n76b2:{\"sys\":\"$76b3\"}\n76b5:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n76b4:{\"sys\":\"$76b5\"}\n76b7:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n76b6:{\"sys\":\"$76b7\"}\n76b1:{\"space\":\"$76b2\",\"id\":\"7mDrtLDKpiyF7frmUGYinJ\",\"type\":\"Entry\",\"createdAt\":\"2025-02-12T13:51:57.712Z\",\"updatedAt\":\"2026-01-29T21:24:50.631Z\",\"environment\":\"$76b4\",\"publishedVersion\":17,\"revision\":3,\"contentType\":\"$76b6\",\"locale\":\"en-US\"}\n76ba:{}\n76bd:{}\n76c0:{}\n76c1:[]\n76bf:{\"data\":\"$76c0\",\"marks\":\"$76c1\",\"value\":\"Baking runs in Adalynnâs family. Her great-grandmother made cakes for a living and Adalynn keeps the tradition alive by baking her signature carrot pecan cake. \",\"nodeType\":\"text\"}\n76be:[\"$76bf\"]\n76bc:{\"data\":\"$76bd\",\"content\":\"$76be\",\"nodeType\":\"paragraph\"}\n76c3:{}\n76c6:{}\n76c7:[]\n76c5:{\"data\":\"$76c6\",\"marks\":\"$76c7\",\"value\":\"âIâve won Best-in-Show at the Fannin County Fair baking competition for five out of the last seven years,â said Adalynn. \",\"nodeType\":\"text\"}\n76c4:[\"$76c5\"]\n76c2:{\"data\":\"$76c3\",\"content\":\"$76c4\",\"nodeType\":\"paragraph\"}\n76c9:{}\n76cc:{}\n76cd:[]\n76cb:{\"data\":\"$76cc\",\"marks\":\"$76cd\",\"value\":\"Baking is not the only thing Adalynn excels at. Sheâs also incredibly active and plays volleyball, softball and tennis. And sheâs a killer disc and shot put thrower in track. \",\"nodeType\":\"text\"}\n76ca:[\"$76cb\"]\n76c8:{\"data\":\"$76c9\",\"content\":\"$76ca\",\"nodeType\":\"paragraph\"}\n76cf:{}\n76d0:[]\n76ce:{\"data\":\"$76cf\",\"content\":\"$76d0\",\"nodeType\":\"embedded-entry-block\"}\n76d2:{}\n76d5:{}\n76d6:[]\n76d4:{\"data\":\"$76d5\",\"marks\":\"$76d6\",\"value\":\"If you met her, you wouldnât know that anything is physically wrong with Adalynn. But she often experiences terrible abdominal pain and cramping. And, as a freshman in high school, she sometimes has to leave parties or practices early to go home ever"])</script>
1<script>self.__next_f.push([1,"y evening, hook up a tube to a âbuttonâ in her abdomen, and flush out her colon every night for at least an hour. \",\"nodeType\":\"text\"}\n76d3:[\"$76d4\"]\n76d1:{\"data\":\"$76d2\",\"content\":\"$76d3\",\"nodeType\":\"paragraph\"}\n76d8:{}\n76db:{}\n76dc:[]\n76da:{\"data\":\"$76db\",\"marks\":\"$76dc\",\"value\":\"Britnee, Adalynnâs mom, said, âSo many people take going to the bathroom for granted, but Adalynn cannot go on her own.â \",\"nodeType\":\"text\"}\n76d9:[\"$76da\"]\n76d7:{\"data\":\"$76d8\",\"content\":\"$76d9\",\"nodeType\":\"paragraph\"}\n76de:{}\n76e1:{}\n76e2:[]\n76e0:{\"data\":\"$76e1\",\"marks\":\"$76e2\",\"value\":\"A lifelong struggle \",\"nodeType\":\"text\"}\n76df:[\"$76e0\"]\n76dd:{\"data\":\"$76de\",\"content\":\"$76df\",\"nodeType\":\"heading-3\"}\n76e4:{}\n76e7:{}\n76e8:[]\n76e6:{\"data\":\"$76e7\",\"marks\":\"$76e8\",\"value\":\"Adalynn has struggled with constipation since she was born. \",\"nodeType\":\"text\"}\n76e5:[\"$76e6\"]\n76e3:{\"data\":\"$76e4\",\"content\":\"$76e5\",\"nodeType\":\"paragraph\"}\n76ea:{}\n76ed:{}\n76ee:[]\n76ec:{\"data\":\"$76ed\",\"marks\":\"$76ee\",\"value\":\"As a baby, doctors and her parents tried every baby formula to see which one might help most. None of them did anything to regulate her digestive system.\",\"nodeType\":\"text\"}\n76eb:[\"$76ec\"]\n76e9:{\"data\":\"$76ea\",\"content\":\"$76eb\",\"nodeType\":\"paragraph\"}\n76f0:{}\n76f3:{}\n76f4:[]\n76f2:{\"data\":\"$76f3\",\"marks\":\"$76f4\",\"value\":\"Right before her 3rd birthday, she became extremely ill. âShe was vomiting and had diarrhea for 21 days straight,â said Britnee. \",\"nodeType\":\"text\"}\n76f1:[\"$76f2\"]\n76ef:{\"data\":\"$76f0\",\"content\":\"$76f1\",\"nodeType\":\"paragraph\"}\n76f6:{}\n76f9:{}\n76fa:[]\n76f8:{\"data\":\"$76f9\",\"marks\":\"$76fa\",\"value\":\"There were no good explanations â just more tests and prescriptions for every possible laxative â in every possible combination. Her doctors at the family's local hospital determined Adalynn needed more specialized pediatric diagnostic and treatment expertise. They referred Britnee and her toddler to Children's Health. \",\"nodeType\":\"text\"}\n76f7:[\"$76f8\"]\n76f5:{\"data\":\"$76f6\",\"content\":\"$76f7\",\"nodeType\":\"paragraph\"}"])</script>
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1<script>self.__next_f.push([1,"aragraph\"}\n7711:{}\n7714:{}\n7715:[]\n7713:{\"data\":\"$7714\",\"marks\":\"$7715\",\"value\":\"The test was very difficult for Adalynn, but Britnee was so relieved to have a more accurate diagnosis. Her new diagnosis is what started discussions about a cecostomy â the procedure that created an opening for Adalynnâs âbuttonâ that allows her to do her daily flush. \",\"nodeType\":\"text\"}\n7712:[\"$7713\"]\n7710:{\"data\":\"$7711\",\"content\":\"$7712\",\"nodeType\":\"paragraph\"}\n7717:{}\n771a:{}\n771b:[]\n7719:{\"data\":\"$771a\",\"marks\":\"$771b\",\"value\":\"âEvery hospital needs Child Lifeâ \",\"nodeType\":\"text\"}\n7718:[\"$7719\"]\n7716:{\"data\":\"$7717\",\"content\":\"$7718\",\"nodeType\":\"heading-3\"}\n771d:{}\n7720:{}\n7721:[]\n771f:{\"data\":\"$7720\",\"marks\":\"$7721\",\"value\":\"Being repeatedly poked, prodded and tested for so many years â without yielding clear cut answers or solutions â has been anxiety-provoking for Adalynn. \",\"nodeType\":\"text\"}\n771e:[\"$771f\"]\n771c:{\"data\":\"$771d\",\"content\":\"$771e\",\"nodeType\":\"paragraph\"}\n7723:{}\n7726:{}\n7727:[]\n7725:{\"data\":\"$7726\",\"marks\":\"$7727\",\"value\":\"Britnee remembers how severe the anxiety was when Adalynn was younger. âSometimes, theyâd need to get an IV in. But she was constipated, dehydrated and vomiting. Theyâd have to wrap her up in a sheet, like a burrito, to get enough control to put in the IV,â she says. \",\"nodeType\":\"text\"}\n7724:[\"$7725\"]\n7722:{\"data\":\"$7723\",\"content\":\"$7724\",\"nodeType\":\"paragraph\"}\n7729:{}\n772c:{}\n772d:[]\n772b:{\"data\":\"$772c\",\"marks\":\"$772d\",\"value\":\"Programs like child life â which provide coping strategies and help make life easier for those experiencing the unthinkable â are offered throughout the hospital at no cost to patient families, thanks to the generous support of philanthropic gifts. Theyâre one of the resources that makes the holistic care we provide patients and families at Childrenâs Health unique. \",\"nodeType\":\"text\"}\n772a:[\"$772b\"]\n7728:{\"data\":\"$7729\",\"content\":\"$772a\",\"nodeType\":\"paragraph\"}\n772f:{\"target\":\"$da8\"}\n7730:[]\n772e:{\"data\":\"$772f\",\"content\":\"$77"])</script>
1<script>self.__next_f.push([1,"30\",\"nodeType\":\"embedded-entry-block\"}\n7732:{}\n7735:{}\n7736:[]\n7734:{\"data\":\"$7735\",\"marks\":\"$7736\",\"value\":\"Quality of life in the face of uncertainty \",\"nodeType\":\"text\"}\n7733:[\"$7734\"]\n7731:{\"data\":\"$7732\",\"content\":\"$7733\",\"nodeType\":\"heading-3\"}\n7738:{}\n773b:{}\n773c:[]\n773a:{\"data\":\"$773b\",\"marks\":\"$773c\",\"value\":\"Adalynnâs inner strength does not let having her âbuttonâ stop her from living a full, busy life. Her friends help keep her spirits up and always check on her when sheâs sick. \",\"nodeType\":\"text\"}\n7739:[\"$773a\"]\n7737:{\"data\":\"$7738\",\"content\":\"$7739\",\"nodeType\":\"paragraph\"}\n773e:{}\n7741:{}\n7742:[]\n7740:{\"data\":\"$7741\",\"marks\":\"$7742\",\"value\":\"Her volleyball coach has taught her an alternate way to dive for the ball, and she wears extra protection for her âbuttonâ when she plays catcher on her softball team. And, during her nightly flushes, sheâs discovered a love of drawing. Last year, her artwork won first place at her annual school art competition. \",\"nodeType\":\"text\"}\n773f:[\"$7740\"]\n773d:{\"data\":\"$773e\",\"content\":\"$773f\",\"nodeType\":\"paragraph\"}\n7744:{}\n7745:[]\n7743:{\"data\":\"$7744\",\"content\":\"$7745\",\"nodeType\":\"embedded-entry-block\"}\n7747:{}\n774a:{}\n774b:[]\n7749:{\"data\":\"$774a\",\"marks\":\"$774b\",\"value\":\"Britnee is proud of the way her 14-year-old daughter has taken charge of her difficult diagnosis and care, and shown so much courage. She knows that being under the care of motility specialists at Childrenâs Health â the only hospital in the state to offer such care for children â has helped her live as normal a life as possible. And having her âbuttonâ has been life-changing. \",\"nodeType\":\"text\"}\n7748:[\"$7749\"]\n7746:{\"data\":\"$7747\",\"content\":\"$7748\",\"nodeType\":\"paragraph\"}\n774d:{}\n7750:{}\n7751:[]\n774f:{\"data\":\"$7750\",\"marks\":\"$7751\",\"value\":\"âBefore her cecostomy surgery, Adalynn would swallow 16 capfuls of Miralax in three hours and still not be able to go to the bathroom. We had to be admitted to the hospital for everything and Adalynn always needed feeding tubes put do"])</script>
1<script>self.__next_f.push([1,"wn her throat,â Britnee said. Now, we don't have to go to the hospital for clean-outs. We can do everything through her button at home.â \",\"nodeType\":\"text\"}\n774e:[\"$774f\"]\n774c:{\"data\":\"$774d\",\"content\":\"$774e\",\"nodeType\":\"paragraph\"}\n7753:{}\n7756:{}\n7757:[]\n7755:{\"data\":\"$7756\",\"marks\":\"$7757\",\"value\":\"The family is now working closely with motility specialist \",\"nodeType\":\"text\"}\n7759:{\"uri\":\"https://www.childrens.com/doctor-profile/alejandro-llanos-chea\"}\n775c:{}\n775d:[]\n775b:{\"data\":\"$775c\",\"marks\":\"$775d\",\"value\":\"Alejandro Llanos Chea, M.D.\",\"nodeType\":\"text\"}\n775a:[\"$775b\"]\n7758:{\"data\":\"$7759\",\"content\":\"$775a\",\"nodeType\":\"hyperlink\"}\n775f:{}\n7760:[]\n775e:{\"data\":\"$775f\",\"marks\":\"$7760\",\"value\":\", Pediatric Gastroenterologist and Assistant Professor at UT Southwestern Medical Center, to use more advanced manometry tests to better understand which parts of Adalynnâs colon work and which medications and foods elicit the best response. \",\"nodeType\":\"text\"}\n7754:[\"$7755\",\"$7758\",\"$775e\"]\n7752:{\"data\":\"$7753\",\"content\":\"$7754\",\"nodeType\":\"paragraph\"}\n7762:{}\n7765:{}\n7766:[]\n7764:{\"data\":\"$7765\",\"marks\":\"$7766\",\"value\":\"This will help them determine if having part of her colon removed or having an ileostomy (an external bag that collects waste) might be a better long-term solution for Adalynn. \",\"nodeType\":\"text\"}\n7763:[\"$7764\"]\n7761:{\"data\":\"$7762\",\"content\":\"$7763\",\"nodeType\":\"paragraph\"}\n7768:{}\n776b:{}\n776c:[]\n776a:{\"data\":\"$776b\",\"marks\":\"$776c\",\"value\":\"âDr. Llanos has helped us breathe again because heâs so aware, understanding and knowledgeable. He can help us better figure out what might actually give her the most relief,â said Britnee. \",\"nodeType\":\"text\"}\n7769:[\"$776a\"]\n7767:{\"data\":\"$7768\",\"content\":\"$7769\",\"nodeType\":\"paragraph\"}\n776e:{}\n7771:{}\n7772:[]\n7770:{\"data\":\"$7771\",\"marks\":\"$7772\",\"value\":\"Britnee credits Children's for giving her daughter the quality of life she now has and she knows that behind their doctors is a community of donors who believe in the importance of every chi"])</script>
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1<script>self.__next_f.push([1,"sion\":4,\"contentType\":\"$7809\",\"locale\":\"en-US\"}\n780d:{}\n7810:{}\n7811:[]\n780f:{\"data\":\"$7810\",\"content\":\"$7811\",\"nodeType\":\"embedded-entry-block\"}\n7813:{}\n7816:{}\n7817:[]\n7815:{\"data\":\"$7816\",\"marks\":\"$7817\",\"value\":\"Every Halloween, Kaleb dresses up as a different U.S. president â except for the one year he was Alexander Hamilton. He also loves animals, especially his Goldendoodle.\",\"nodeType\":\"text\"}\n7814:[\"$7815\"]\n7812:{\"data\":\"$7813\",\"content\":\"$7814\",\"nodeType\":\"paragraph\"}\n7819:{}\n781c:{}\n781d:[]\n781b:{\"data\":\"$781c\",\"marks\":\"$781d\",\"value\":\"âHer name is Jefferson, after President Thomas Jefferson. And yep, sheâs a girl,â Kaleb said.\",\"nodeType\":\"text\"}\n781a:[\"$781b\"]\n7818:{\"data\":\"$7819\",\"content\":\"$781a\",\"nodeType\":\"paragraph\"}\n781f:{}\n7822:{}\n7823:[]\n7821:{\"data\":\"$7822\",\"marks\":\"$7823\",\"value\":\"Kalebâs room doubles as a stuffed animal zoo, complete with an aviary and amphibian tank. He even built an animal hospital where he and his grandmother recently performed a brain transplant on one of his stuffies.\",\"nodeType\":\"text\"}\n7820:[\"$7821\"]\n781e:{\"data\":\"$781f\",\"content\":\"$7820\",\"nodeType\":\"paragraph\"}\n7825:{}\n7828:{}\n7829:[]\n7827:{\"data\":\"$7828\",\"marks\":\"$7829\",\"value\":\"âIt was very dramatic, but the stuffed animal pulled through,â said Kalebâs mom, Jenifer, laughing.\",\"nodeType\":\"text\"}\n7826:[\"$7827\"]\n7824:{\"data\":\"$7825\",\"content\":\"$7826\",\"nodeType\":\"paragraph\"}\n782b:{}\n782e:{}\n782f:[]\n782d:{\"data\":\"$782e\",\"marks\":\"$782f\",\"value\":\"Kaleb is a smart and creative teenager. Everybody knows him for his big curly hair and bright smile. \",\"nodeType\":\"text\"}\n782c:[\"$782d\"]\n782a:{\"data\":\"$782b\",\"content\":\"$782c\",\"nodeType\":\"paragraph\"}\n7831:{}\n7834:{}\n7835:[]\n7833:{\"data\":\"$7834\",\"marks\":\"$7835\",\"value\":\"He also lives with heterotaxy syndrome, a rare genetic disorder that can affect the development of important systems like the heart and gastrointestinal tract. He wouldnât be here today if not for a Hail Mary procedure from an innovative team at Childrenâs Health\",\"nodeType\":\"text\"}\n7837:{}\n7"])</script>
1<script>self.__next_f.push([1,"839:{\"type\":\"superscript\"}\n7838:[\"$7839\"]\n7836:{\"data\":\"$7837\",\"marks\":\"$7838\",\"value\":\"SM\",\"nodeType\":\"text\"}\n783b:{}\n783c:[]\n783a:{\"data\":\"$783b\",\"marks\":\"$783c\",\"value\":\" when he was just nine days old. \",\"nodeType\":\"text\"}\n7832:[\"$7833\",\"$7836\",\"$783a\"]\n7830:{\"data\":\"$7831\",\"content\":\"$7832\",\"nodeType\":\"paragraph\"}\n783e:{}\n7841:{}\n7842:[]\n7840:{\"data\":\"$7841\",\"marks\":\"$7842\",\"value\":\"A rare genetic condition \",\"nodeType\":\"text\"}\n783f:[\"$7840\"]\n783d:{\"data\":\"$783e\",\"content\":\"$783f\",\"nodeType\":\"heading-3\"}\n7844:{}\n7847:{}\n7848:[]\n7846:{\"data\":\"$7847\",\"marks\":\"$7848\",\"value\":\"When Jenifer was 20 weeks pregnant, she and her husband Karl got the diagnosis. Kalebâs heart was on the right, instead of the left side of his body. This meant he had no way of getting blood to his lungs when he was born and would need surgery shortly after birth to help his blood flow properly. \",\"nodeType\":\"text\"}\n7845:[\"$7846\"]\n7843:{\"data\":\"$7844\",\"content\":\"$7845\",\"nodeType\":\"paragraph\"}\n784a:{}\n784d:{}\n784e:[]\n784c:{\"data\":\"$784d\",\"marks\":\"$784e\",\"value\":\"Jenifer and Karl met with a few pediatric heart surgeons in the area. They chose Childrenâs Health because not only would they have an expert surgeon, but an entire care team dedicated to their babyâs health. \",\"nodeType\":\"text\"}\n784b:[\"$784c\"]\n7849:{\"data\":\"$784a\",\"content\":\"$784b\",\"nodeType\":\"paragraph\"}\n7850:{}\n7853:{}\n7854:[]\n7852:{\"data\":\"$7853\",\"marks\":\"$7854\",\"value\":\"This included the then-brand-new Safe at Home Program â which enables some babies to return home, rather than staying at the hospital, between two heart surgeries in the first months of life. They worked with the surgeon to make a plan for their babyâs birth and surgery shortly after. \",\"nodeType\":\"text\"}\n7851:[\"$7852\"]\n784f:{\"data\":\"$7850\",\"content\":\"$7851\",\"nodeType\":\"paragraph\"}\n7856:{}\n7859:{}\n785a:[]\n7858:{\"data\":\"$7859\",\"marks\":\"$785a\",\"value\":\"But no one expected Kaleb to be born six weeks early. \",\"nodeType\":\"text\"}\n7857:[\"$7858\"]\n7855:{\"data\":\"$7856\",\"content\":\"$7857\",\"nodeType\":\"paragraph\"}\n"])</script>
1<script>self.__next_f.push([1,"785c:{}\n785f:{}\n7860:[]\n785e:{\"data\":\"$785f\",\"marks\":\"$7860\",\"value\":\"A Hail Mary procedure at 9 days old \",\"nodeType\":\"text\"}\n785d:[\"$785e\"]\n785b:{\"data\":\"$785c\",\"content\":\"$785d\",\"nodeType\":\"heading-3\"}\n7862:{}\n7863:[]\n7861:{\"data\":\"$7862\",\"content\":\"$7863\",\"nodeType\":\"embedded-entry-block\"}\n7865:{}\n7868:{}\n7869:[]\n7867:{\"data\":\"$7868\",\"marks\":\"$7869\",\"value\":\"At 34 weeks pregnant, Jenifer started experiencing preeclampsia. This complication can cause high blood pressure and problems with various organs in pregnant women and lead to premature birth.\",\"nodeType\":\"text\"}\n7866:[\"$7867\"]\n7864:{\"data\":\"$7865\",\"content\":\"$7866\",\"nodeType\":\"paragraph\"}\n786b:{}\n786e:{}\n786f:[]\n786d:{\"data\":\"$786e\",\"marks\":\"$786f\",\"value\":\"âKaleb coming early made everything much more serious and scary,â Jenifer said. \",\"nodeType\":\"text\"}\n786c:[\"$786d\"]\n786a:{\"data\":\"$786b\",\"content\":\"$786c\",\"nodeType\":\"paragraph\"}\n7871:{}\n7874:{}\n7875:[]\n7873:{\"data\":\"$7874\",\"marks\":\"$7875\",\"value\":\"Kaleb was born with a heart defect the impacted the way blood flowed through his lungs, meaning his pulmonary veins, which carry blood from the lungs to the heart, weren't working well. \",\"nodeType\":\"text\"}\n7872:[\"$7873\"]\n7870:{\"data\":\"$7871\",\"content\":\"$7872\",\"nodeType\":\"paragraph\"}\n7877:{}\n787a:{}\n787b:[]\n7879:{\"data\":\"$787a\",\"marks\":\"$787b\",\"value\":\"And at only 4.6 pounds, he would be too small to have the originally planned surgery. That surgery was the only proven treatment to get Kaleb breathing properly â meaning plan A was off the table and there was no obvious plan B. \",\"nodeType\":\"text\"}\n7878:[\"$7879\"]\n7876:{\"data\":\"$7877\",\"content\":\"$7878\",\"nodeType\":\"paragraph\"}\n787d:{}\n7880:{}\n7881:[]\n787f:{\"data\":\"$7880\",\"marks\":\"$7881\",\"value\":\"Time was running out. \",\"nodeType\":\"text\"}\n787e:[\"$787f\"]\n787c:{\"data\":\"$787d\",\"content\":\"$787e\",\"nodeType\":\"paragraph\"}\n7883:{}\n7886:{}\n7887:[]\n7885:{\"data\":\"$7886\",\"marks\":\"$7887\",\"value\":\"âWe had a meeting with the care team, and they came up with this Hail Mary idea,â Karl said. âThey were frank, tellin"])</script>
1<script>self.__next_f.push([1,"g us that they had only tried it once before, and it was not successful. It was our only shot, and it was one of the scariest days weâve ever had.â \",\"nodeType\":\"text\"}\n7884:[\"$7885\"]\n7882:{\"data\":\"$7883\",\"content\":\"$7884\",\"nodeType\":\"paragraph\"}\n7889:{}\n788c:{}\n788d:[]\n788b:{\"data\":\"$788c\",\"marks\":\"$788d\",\"value\":\"But it worked. In fact, the risky intervention that Kaleb underwent at 9 days old â which involved placing two stints to keep oxygenated blood flowing throughout his body â worked so well that the procedure has become standard of care for all babies born with this heart defect. \",\"nodeType\":\"text\"}\n788a:[\"$788b\"]\n7888:{\"data\":\"$7889\",\"content\":\"$788a\",\"nodeType\":\"paragraph\"}\n788f:{}\n7892:{}\n7893:[]\n7891:{\"data\":\"$7892\",\"marks\":\"$7893\",\"value\":\"âWeâve met other families whose babies have similar conditions, and they talk about this procedure as though it's been happening forever,â Jenifer said. âAnd to know that Kaleb was the beginning of that, he was a little pioneer when he was just this tiny guy is amazing.â \",\"nodeType\":\"text\"}\n7890:[\"$7891\"]\n788e:{\"data\":\"$788f\",\"content\":\"$7890\",\"nodeType\":\"paragraph\"}\n7895:{}\n7898:{}\n7899:[]\n7897:{\"data\":\"$7898\",\"marks\":\"$7899\",\"value\":\"An Amazing Kid \",\"nodeType\":\"text\"}\n7896:[\"$7897\"]\n7894:{\"data\":\"$7895\",\"content\":\"$7896\",\"nodeType\":\"heading-3\"}\n789b:{}\n789c:[]\n789a:{\"data\":\"$789b\",\"content\":\"$789c\",\"nodeType\":\"embedded-entry-block\"}\n789e:{}\n78a1:{}\n78a2:[]\n78a0:{\"data\":\"$78a1\",\"marks\":\"$78a2\",\"value\":\"Kaleb got bigger and stronger over the following weeks and months. Over the years, he's needed three additional open-heart surgeries to keep his heart working properly. But heart problems are just the beginning of what Kaleb has overcome. \",\"nodeType\":\"text\"}\n789f:[\"$78a0\"]\n789d:{\"data\":\"$789e\",\"content\":\"$789f\",\"nodeType\":\"paragraph\"}\n78a4:{}\n78a7:{}\n78a8:[]\n78a6:{\"data\":\"$78a7\",\"marks\":\"$78a8\",\"value\":\"âIronically, now cardiology isnât what we monitor most closely,â Jenifer said. âHe was born without a spleen and has some endocrine is"])</script>
1<script>self.__next_f.push([1,"sues. He does breathing treatments and 30 doses of medication every day. But when you see him, you wouldnât know. Weâve had medical professionals meet him and think they have the wrong kid.â \",\"nodeType\":\"text\"}\n78a5:[\"$78a6\"]\n78a3:{\"data\":\"$78a4\",\"content\":\"$78a5\",\"nodeType\":\"paragraph\"}\n78aa:{}\n78ad:{}\n78ae:[]\n78ac:{\"data\":\"$78ad\",\"marks\":\"$78ae\",\"value\":\"Living with heterotaxy is difficult, unpredictable and requires long-term monitoring and care. But Kalebâs care team and family do everything they can to keep him as healthy as possible, so he can focus on regular kid things â like swimming, Legos, Minecraft and learning everything he can about U.S. presidents. \",\"nodeType\":\"text\"}\n78ab:[\"$78ac\"]\n78a9:{\"data\":\"$78aa\",\"content\":\"$78ab\",\"nodeType\":\"paragraph\"}\n78b0:{}\n78b3:{}\n78b4:[]\n78b2:{\"data\":\"$78b3\",\"marks\":\"$78b4\",\"value\":\"âChildrenâs Health has been there for us through everything, always with a personal touch and so much care,â Jenifer said. âWeâve had a lot of miracles and been the recipients of some incredible medical advances that werenât happening in many other places. And because of it, Kaleb has grown up to be this amazing kid.â \",\"nodeType\":\"text\"}\n78b1:[\"$78b2\"]\n78af:{\"data\":\"$78b0\",\"content\":\"$78b1\",\"nodeType\":\"paragraph\"}\n78b6:{}\n78b9:{}\n78ba:[]\n78b8:{\"data\":\"$78b9\",\"marks\":\"$78ba\",\"value\":\"Lately, one of the biggest âmiraclesâ for Jenifer has been watching Kaleb skate on ice.  \",\"nodeType\":\"text\"}\n78b7:[\"$78b8\"]\n78b5:{\"data\":\"$78b6\",\"content\":\"$78b7\",\"nodeType\":\"paragraph\"}\n78bc:{}\n78bf:{}\n78c0:[]\n78be:{\"data\":\"$78bf\",\"marks\":\"$78c0\",\"value\":\"Last year, he joined the adaptive hockey league at the Childrenâs Health StarCenter in Farmerâs Branch, where he reps the #29 on his jersey just like his favorite Stars player, Jake Oettinger.  \",\"nodeType\":\"text\"}\n78bd:[\"$78be\"]\n78bb:{\"data\":\"$78bc\",\"content\":\"$78bd\",\"nodeType\":\"paragraph\"}\n78c2:{}\n78c5:{}\n78c6:[]\n78c4:{\"data\":\"$78c5\",\"marks\":\"$78c6\",\"value\":\"And just like his passion for U.S. presidents, when he disc"])</script>
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1<script>self.__next_f.push([1,"s\":\"$7928\"}\n792b:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n792a:{\"sys\":\"$792b\"}\n792d:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n792c:{\"sys\":\"$792d\"}\n792f:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n792e:{\"sys\":\"$792f\"}\n7929:{\"space\":\"$792a\",\"id\":\"6GNYbQP29F9Aw7hlZALt3L\",\"type\":\"Entry\",\"createdAt\":\"2025-02-12T16:18:23.721Z\",\"updatedAt\":\"2026-01-29T22:31:09.789Z\",\"environment\":\"$792c\",\"publishedVersion\":35,\"revision\":4,\"contentType\":\"$792e\",\"locale\":\"en-US\"}\n7932:{}\n7935:{}\n7938:{}\n7939:[]\n7937:{\"data\":\"$7938\",\"marks\":\"$7939\",\"value\":\"We tracked down 12 people, whose faces represent the web of support surrounding a pediatric kidney transplant patient at Childrenâs Health. \",\"nodeType\":\"text\"}\n7936:[\"$7937\"]\n7934:{\"data\":\"$7935\",\"content\":\"$7936\",\"nodeType\":\"paragraph\"}\n793b:{}\n793e:{}\n793f:[]\n793d:{\"data\":\"$793e\",\"marks\":\"$793f\",\"value\":\"Charley was just a toddler when Sabrina Burnam, a registered nurse, met her for the first time. \",\"nodeType\":\"text\"}\n793c:[\"$793d\"]\n793a:{\"data\":\"$793b\",\"content\":\"$793c\",\"nodeType\":\"paragraph\"}\n7941:{}\n7942:[]\n7940:{\"data\":\"$7941\",\"content\":\"$7942\",\"nodeType\":\"embedded-entry-block\"}\n7944:{}\n7947:{}\n7948:[]\n7946:{\"data\":\"$7947\",\"marks\":\"$7948\",\"value\":\"The tiny little girl had just left the intensive care unit at Childrenâs Health, and Sabrina spent her entire 12-hour shift in Charleyâs hospital room, getting to know the family and helping them process next steps for a little girl that had no working kidneys and was on dialysis. \",\"nodeType\":\"text\"}\n7945:[\"$7946\"]\n7943:{\"data\":\"$7944\",\"content\":\"$7945\",\"nodeType\":\"paragraph\"}\n794a:{}\n794d:{}\n794e:[]\n794c:{\"data\":\"$794d\",\"marks\":\"$794e\",\"value\":\"That was more than a decade ago for the nurse, who has spent almost her entire career caring for kids with kidney diseases at Childrenâs Health. Since then, Sabrina -- along with dozens of other team members -- has watched Charley grow up, as the now-teenager has endured years of dialysis and two kidney transplants. \",\"nodeType\":\"text\"}\n794b:[\"$"])</script>
1<script>self.__next_f.push([1,"794c\"]\n7949:{\"data\":\"$794a\",\"content\":\"$794b\",\"nodeType\":\"paragraph\"}\n7950:{}\n7953:{}\n7954:[]\n7952:{\"data\":\"$7953\",\"marks\":\"$7954\",\"value\":\"âChildrenâs Health isnât a hospital like anywhere else. We treat our patients like theyâre family, and it takes everyone who works here to make that happen,â said Sabrina, a nurse on the nephrology unit. âPeople want to come here because they know theyâre going to get excellent treatment by a staff that cares for them as people.â \",\"nodeType\":\"text\"}\n7951:[\"$7952\"]\n794f:{\"data\":\"$7950\",\"content\":\"$7951\",\"nodeType\":\"paragraph\"}\n7956:{}\n7959:{}\n795a:[]\n7958:{\"data\":\"$7959\",\"marks\":\"$795a\",\"value\":\"Children's Health offers one of the longest-running comprehensive pediatric transplant programs in the nation. Each year, the program serves approximately 500 patients -- performing somewhere around 50 heart, kidney and liver transplants -- and helps recipients continue to thrive well after transplantation. \",\"nodeType\":\"text\"}\n7957:[\"$7958\"]\n7955:{\"data\":\"$7956\",\"content\":\"$7957\",\"nodeType\":\"paragraph\"}\n795c:{}\n795f:{}\n7960:[]\n795e:{\"data\":\"$795f\",\"marks\":\"$7960\",\"value\":\"In 2021, the team celebrated a monumental milestone â the performance of its 1,500th transplant since the programâs inception in 1980 â and continues to provide hope and healing for children and families every day. \",\"nodeType\":\"text\"}\n795d:[\"$795e\"]\n795b:{\"data\":\"$795c\",\"content\":\"$795d\",\"nodeType\":\"paragraph\"}\n7962:{}\n7965:{}\n7966:[]\n7964:{\"data\":\"$7965\",\"marks\":\"$7966\",\"value\":\"The nephrology and pediatric transplant program include a renowned team of experts and ancillary services that offer a multidisciplinary approach to care that supports a child's unique physical, emotional, psychological and developmental needs. \",\"nodeType\":\"text\"}\n7963:[\"$7964\"]\n7961:{\"data\":\"$7962\",\"content\":\"$7963\",\"nodeType\":\"paragraph\"}\n7968:{}\n796b:{}\n796c:[]\n796a:{\"data\":\"$796b\",\"marks\":\"$796c\",\"value\":\"âWe know itâs not easy to be in the hospital, and we try to bring a little bit of joy to everything we do"])</script>
1<script>self.__next_f.push([1,",â Sabrina said. âI donât know if itâs magic, but I try to make any time patients and families have to be here as pleasant as possible.â \",\"nodeType\":\"text\"}\n7969:[\"$796a\"]\n7967:{\"data\":\"$7968\",\"content\":\"$7969\",\"nodeType\":\"paragraph\"}\n796e:{}\n7971:{}\n7972:[]\n7970:{\"data\":\"$7971\",\"marks\":\"$7972\",\"value\":\"These team members like Sabrina donât just care about Charleyâs physical needs. They care about her emotional wellbeing, too. They circled around Charley and sang as she got dialysis on her 13th birthday. Raymond Quigley, M.D., her dialysis doctor, paid Charley a special visit during the holidays to play carols on his violin. \",\"nodeType\":\"text\"}\n796f:[\"$7970\"]\n796d:{\"data\":\"$796e\",\"content\":\"$796f\",\"nodeType\":\"paragraph\"}\n7974:{}\n7977:{}\n7978:[]\n7976:{\"data\":\"$7977\",\"marks\":\"$7978\",\"value\":\"And two days before Christmas last year, Charley, now 13, received her second new kidney from a living adult donor â the ultimate holiday gift. \",\"nodeType\":\"text\"}\n7975:[\"$7976\"]\n7973:{\"data\":\"$7974\",\"content\":\"$7975\",\"nodeType\":\"paragraph\"}\n797a:{}\n797d:{}\n797e:[]\n797c:{\"data\":\"$797d\",\"marks\":\"$797e\",\"value\":\"\\\"Children's Health doesn't just treat the physical issue,\\\" said Charleyâs grandmother, Rachelle. \\\"They treat the mind, body, soul, emotional health, mental health. ⦠They have a specialty for everything. And it really, really makes a difference.\\\" \",\"nodeType\":\"text\"}\n797b:[\"$797c\"]\n7979:{\"data\":\"$797a\",\"content\":\"$797b\",\"nodeType\":\"paragraph\"}\n7980:{}\n7983:{}\n7984:[]\n7982:{\"data\":\"$7983\",\"marks\":\"$7984\",\"value\":\"From nurses and child life specialists to clinical therapists and donors, our team members and generous supporters rally each winter season to bring hope for families in the hospital. \",\"nodeType\":\"text\"}\n7981:[\"$7982\"]\n797f:{\"data\":\"$7980\",\"content\":\"$7981\",\"nodeType\":\"paragraph\"}\n7986:{}\n7989:{}\n798a:[]\n7988:{\"data\":\"$7989\",\"marks\":\"$798a\",\"value\":\"Because together, we can bring magic to kids. \",\"nodeType\":\"text\"}\n7987:[\"$7988\"]\n7985:{\"data\":\"$7986\",\"content\":\"$7987\",\"nodeType\":\"paragr"])</script>
1<script>self.__next_f.push([1,"aph\"}\n798c:{}\n798f:{}\n7990:[]\n798e:{\"data\":\"$798f\",\"marks\":\"$7990\",\"value\":\"BROOKE DUNGAN, Transplant Coordinator \",\"nodeType\":\"text\"}\n798d:[\"$798e\"]\n798b:{\"data\":\"$798c\",\"content\":\"$798d\",\"nodeType\":\"heading-3\"}\n7992:{}\n7993:[]\n7991:{\"data\":\"$7992\",\"content\":\"$7993\",\"nodeType\":\"embedded-entry-block\"}\n7995:{}\n7998:{}\n7999:[]\n7997:{\"data\":\"$7998\",\"marks\":\"$7999\",\"value\":\"From the time one of our patients on the waitlist gets an offer for a donated kidney, coordinators like me help facilitate the process of getting that kidney to the patient. From the time of transplant to the time the patient âgraduatesâ to an adult hospital, we help oversee most aspects of their care â managing their medications, reviewing their lab work, and so much more. \",\"nodeType\":\"text\"}\n7996:[\"$7997\"]\n7994:{\"data\":\"$7995\",\"content\":\"$7996\",\"nodeType\":\"paragraph\"}\n799b:{}\n799e:{}\n799f:[]\n799d:{\"data\":\"$799e\",\"marks\":\"$799f\",\"value\":\"I was the transplant coordinator on call the week Charley received her second kidney transplant, two days before Christmas last year. Iâve followed her closely from the beginning to help minimize her number of trips to the hospital, discuss her medication and lab monitoring plans and oversee just about everything that happens to her. She had a more complicated transplant course, so I learned her case as best as possible to be sure I wouldnât miss anything. \",\"nodeType\":\"text\"}\n799c:[\"$799d\"]\n799a:{\"data\":\"$799b\",\"content\":\"$799c\",\"nodeType\":\"paragraph\"}\n79a1:{}\n79a4:{}\n79a5:[]\n79a3:{\"data\":\"$79a4\",\"marks\":\"$79a5\",\"value\":\"When Charley would come to clinic visits, weâd talk about everything from athletic wear and new hairstyles to diet and exercise. Physical activity is really important after transplant, so I showed her how to adjust her Apple watch to make sure she was hitting her walking goals. \",\"nodeType\":\"text\"}\n79a2:[\"$79a3\"]\n79a0:{\"data\":\"$79a1\",\"content\":\"$79a2\",\"nodeType\":\"paragraph\"}\n79a7:{}\n79aa:{}\n79ab:[]\n79a9:{\"data\":\"$79aa\",\"marks\":\"$79ab\",\"value\":\"As much as I love to see Charley in per"])</script>
1<script>self.__next_f.push([1,"son, I help bring the magic by making sure Iâm doing my best to decrease the frequency in which she has to come to the hospital so she can spend as much time as possible at home enjoying her life after transplant. \",\"nodeType\":\"text\"}\n79a8:[\"$79a9\"]\n79a6:{\"data\":\"$79a7\",\"content\":\"$79a8\",\"nodeType\":\"paragraph\"}\n79ad:{}\n79b0:{}\n79b1:[]\n79af:{\"data\":\"$79b0\",\"marks\":\"$79b1\",\"value\":\"CHRISHANNA HARTFORD, Phlebotomist \",\"nodeType\":\"text\"}\n79ae:[\"$79af\"]\n79ac:{\"data\":\"$79ad\",\"content\":\"$79ae\",\"nodeType\":\"heading-3\"}\n79b3:{}\n79b4:[]\n79b2:{\"data\":\"$79b3\",\"content\":\"$79b4\",\"nodeType\":\"embedded-entry-block\"}\n79b6:{}\n79b9:{}\n79ba:[]\n79b8:{\"data\":\"$79b9\",\"marks\":\"$79ba\",\"value\":\"I gave birth to a premature baby at 23 weeks, and because of that experience and learning how to advocate for my child, it made me want to pursue a career in the health care field. \",\"nodeType\":\"text\"}\n79b7:[\"$79b8\"]\n79b5:{\"data\":\"$79b6\",\"content\":\"$79b7\",\"nodeType\":\"paragraph\"}\n79bc:{}\n79bf:{}\n79c0:[]\n79be:{\"data\":\"$79bf\",\"marks\":\"$79c0\",\"value\":\"I see my job as a phlebotomist as the key to the answer for what might be going on beneath the surface for a patient. If you donât have bloodwork, then doctors are left guessing. But if I do my job right, then they can get some answers for patients and families. \",\"nodeType\":\"text\"}\n79bd:[\"$79be\"]\n79bb:{\"data\":\"$79bc\",\"content\":\"$79bd\",\"nodeType\":\"paragraph\"}\n79c2:{}\n79c5:{}\n79c6:[]\n79c4:{\"data\":\"$79c5\",\"marks\":\"$79c6\",\"value\":\"I met Charley about a decade ago after she had her first kidney transplant. She would come into the outpatient clinic once a week to get her blood drawn. I got to know her very well, along with what she does and doesnât like when caring for her. For example, Charley doesnât like Band-aids! \",\"nodeType\":\"text\"}\n79c3:[\"$79c4\"]\n79c1:{\"data\":\"$79c2\",\"content\":\"$79c3\",\"nodeType\":\"paragraph\"}\n79c8:{}\n79cb:{}\n79cc:[]\n79ca:{\"data\":\"$79cb\",\"marks\":\"$79cc\",\"value\":\"Because of my experience with my premature son (who is now 20 years old), families say that Iâm a calming presence in th"])</script>
1<script>self.__next_f.push([1,"e room. They also tell me that Iâve got a gift for making those pokes painless for kids, and thatâs magical. \",\"nodeType\":\"text\"}\n79c9:[\"$79ca\"]\n79c7:{\"data\":\"$79c8\",\"content\":\"$79c9\",\"nodeType\":\"paragraph\"}\n79ce:{}\n79d1:{}\n79d2:[]\n79d0:{\"data\":\"$79d1\",\"marks\":\"$79d2\",\"value\":\"CHRISTIAN GERKEN, Nephrology Patient Care Technician \",\"nodeType\":\"text\"}\n79cf:[\"$79d0\"]\n79cd:{\"data\":\"$79ce\",\"content\":\"$79cf\",\"nodeType\":\"heading-3\"}\n79d4:{}\n79d5:[]\n79d3:{\"data\":\"$79d4\",\"content\":\"$79d5\",\"nodeType\":\"embedded-entry-block\"}\n79d7:{}\n79da:{}\n79db:[]\n79d9:{\"data\":\"$79da\",\"marks\":\"$79db\",\"value\":\"I spend most of my days running from patient room to patient room, making sure our nurses have everything they need to care for kids. I update the whiteboards in each patientâs room, so they know who is taking care of them. \",\"nodeType\":\"text\"}\n79d8:[\"$79d9\"]\n79d6:{\"data\":\"$79d7\",\"content\":\"$79d8\",\"nodeType\":\"paragraph\"}\n79dd:{}\n79e0:{}\n79e1:[]\n79df:{\"data\":\"$79e0\",\"marks\":\"$79e1\",\"value\":\"As techs, weâre there for everything from making sure patients have had something to eat and drink to wrapping their IVâs so they can take showers to transporting patients to exams. I keep kids company when their parents have to step out of the room for a moment. I feed babies, change diapers and rock them to sleep. Itâs not an easy job, but itâs the patients who make your day better. \",\"nodeType\":\"text\"}\n79de:[\"$79df\"]\n79dc:{\"data\":\"$79dd\",\"content\":\"$79de\",\"nodeType\":\"paragraph\"}\n79e3:{}\n79e6:{}\n79e7:[]\n79e5:{\"data\":\"$79e6\",\"marks\":\"$79e7\",\"value\":\"I always make sure that when I'm walking through those hospital doors, Iâm in a good mood. For the 12 hours that Iâm here working my shift, I try to make their hospital experience better. \",\"nodeType\":\"text\"}\n79e4:[\"$79e5\"]\n79e2:{\"data\":\"$79e3\",\"content\":\"$79e4\",\"nodeType\":\"paragraph\"}\n79e9:{}\n79ec:{}\n79ed:[]\n79eb:{\"data\":\"$79ec\",\"marks\":\"$79ed\",\"value\":\"DEV DESAI, M.D., Ph.D., Chief of Pediatric Transplantation at Childrenâs Health; The Regents Distinguished Scholar in Medical Resea"])</script>
1<script>self.__next_f.push([1,"rch and Professor at UT Southwestern Medical Center \",\"nodeType\":\"text\"}\n79ea:[\"$79eb\"]\n79e8:{\"data\":\"$79e9\",\"content\":\"$79ea\",\"nodeType\":\"heading-3\"}\n79ef:{}\n79f0:[]\n79ee:{\"data\":\"$79ef\",\"content\":\"$79f0\",\"nodeType\":\"embedded-entry-block\"}\n79f2:{}\n79f5:{}\n79f6:[]\n79f4:{\"data\":\"$79f5\",\"marks\":\"$79f6\",\"value\":\"Pediatric transplant has the ability to create a lifelong change for children who have serious illnesses that keep them from being kids. Philosophically, weâre helping give someone a second chance at life. \",\"nodeType\":\"text\"}\n79f3:[\"$79f4\"]\n79f1:{\"data\":\"$79f2\",\"content\":\"$79f3\",\"nodeType\":\"paragraph\"}\n79f8:{}\n79fb:{}\n79fc:[]\n79fa:{\"data\":\"$79fb\",\"marks\":\"$79fc\",\"value\":\"Kidney and liver failure are life-threatening illnesses, and without a transplant, these patients wonât survive into adulthood. And itâs not because of anything they did. They were born with conditions that cause liver and kidney failure. \",\"nodeType\":\"text\"}\n79f9:[\"$79fa\"]\n79f7:{\"data\":\"$79f8\",\"content\":\"$79f9\",\"nodeType\":\"paragraph\"}\n79fe:{}\n7a01:{}\n7a02:[]\n7a00:{\"data\":\"$7a01\",\"marks\":\"$7a02\",\"value\":\"Like Charley, my patients have a zest for life. They donât let things like having an organ transplant or taking medications hold them back. Iâm not sure that I bring the magic, but giving kids an opportunity to live a normal childhood is hopefully what I bring to patients. \",\"nodeType\":\"text\"}\n79ff:[\"$7a00\"]\n79fd:{\"data\":\"$79fe\",\"content\":\"$79ff\",\"nodeType\":\"paragraph\"}\n7a04:{}\n7a07:{}\n7a08:[]\n7a06:{\"data\":\"$7a07\",\"marks\":\"$7a08\",\"value\":\"Transplant is a very resource intensive effort. Patients take medications for life. They have lots of visits here, which disrupts their school. We care for kids from across Texas and from surrounding states, so we try to do things remotely and use technology when we can. But those resources are expensive and philanthropic investments help us care for patients better in that way. We also use support from generous donors to host a camp each year for our patients, which allows them to meet and spend"])</script>
1<script>self.__next_f.push([1," time with kids who have undergone transplants just like them. \",\"nodeType\":\"text\"}\n7a05:[\"$7a06\"]\n7a03:{\"data\":\"$7a04\",\"content\":\"$7a05\",\"nodeType\":\"paragraph\"}\n7a0a:{}\n7a0d:{}\n7a0e:[]\n7a0c:{\"data\":\"$7a0d\",\"marks\":\"$7a0e\",\"value\":\"ELIZABETH TEKYI, RN, Vascular Access \",\"nodeType\":\"text\"}\n7a0b:[\"$7a0c\"]\n7a09:{\"data\":\"$7a0a\",\"content\":\"$7a0b\",\"nodeType\":\"heading-3\"}\n7a10:{}\n7a11:[]\n7a0f:{\"data\":\"$7a10\",\"content\":\"$7a11\",\"nodeType\":\"embedded-entry-block\"}\n7a13:{}\n7a16:{}\n7a17:[]\n7a15:{\"data\":\"$7a16\",\"marks\":\"$7a17\",\"value\":\"I keep this necklace that says âBest IV Nurseâ that Charley made me in my car. Iâve changed cars twice, and itâs come with me each time. Iâve known Charley for several years, and whenever she needs an IV, sheâll ask for me. \",\"nodeType\":\"text\"}\n7a14:[\"$7a15\"]\n7a12:{\"data\":\"$7a13\",\"content\":\"$7a14\",\"nodeType\":\"paragraph\"}\n7a19:{}\n7a1c:{}\n7a1d:[]\n7a1b:{\"data\":\"$7a1c\",\"marks\":\"$7a1d\",\"value\":\"Sometimes, we think we are the ones who touch families, but if you let them, the kids will touch you. And Charley really touched me the day she gave me that necklace. I told her that Iâd keep it forever. \",\"nodeType\":\"text\"}\n7a1a:[\"$7a1b\"]\n7a18:{\"data\":\"$7a19\",\"content\":\"$7a1a\",\"nodeType\":\"paragraph\"}\n7a1f:{}\n7a22:{}\n7a23:[]\n7a21:{\"data\":\"$7a22\",\"marks\":\"$7a23\",\"value\":\"At the end of the day, my goal is to make sure each child is taken care of, and that Iâve made their poke as painless as possible. \",\"nodeType\":\"text\"}\n7a20:[\"$7a21\"]\n7a1e:{\"data\":\"$7a1f\",\"content\":\"$7a20\",\"nodeType\":\"paragraph\"}\n7a25:{}\n7a28:{}\n7a29:[]\n7a27:{\"data\":\"$7a28\",\"marks\":\"$7a29\",\"value\":\"I always explain what Iâm going to do to patients first, and they always have a choice. Thatâs really important to me. These kids are a blessing to me and have humbled me. Iâm amazed at how they always have smiles on their faces, and after I insert an IV, they will thank me. They know that weâre here to help them. \",\"nodeType\":\"text\"}\n7a26:[\"$7a27\"]\n7a24:{\"data\":\"$7a25\",\"content\":\"$7a26\",\"nodeType\":\"paragraph\"}\n7a2b:{}\n7a2e:{}"])</script>
1<script>self.__next_f.push([1,"\n7a2f:[]\n7a2d:{\"data\":\"$7a2e\",\"marks\":\"$7a2f\",\"value\":\"Donations help us extend our research so that we can better care for kids. In the years Iâve been doing this, there have been advances in how we give IVâs to kids so that itâs a better experience for them, and a lot of that is because of research. Everyone has a part to play in caring for kids, and donors help support us so that we can continue to do what we do best at the bedside. \",\"nodeType\":\"text\"}\n7a2c:[\"$7a2d\"]\n7a2a:{\"data\":\"$7a2b\",\"content\":\"$7a2c\",\"nodeType\":\"paragraph\"}\n7a31:{}\n7a34:{}\n7a35:[]\n7a33:{\"data\":\"$7a34\",\"marks\":\"$7a35\",\"value\":\"KAROLINE RADKA, Child Life Specialist \",\"nodeType\":\"text\"}\n7a32:[\"$7a33\"]\n7a30:{\"data\":\"$7a31\",\"content\":\"$7a32\",\"nodeType\":\"heading-3\"}\n7a37:{}\n7a38:[]\n7a36:{\"data\":\"$7a37\",\"content\":\"$7a38\",\"nodeType\":\"embedded-entry-block\"}\n7a3a:{}\n7a3d:{}\n7a3e:[]\n7a3c:{\"data\":\"$7a3d\",\"marks\":\"$7a3e\",\"value\":\"As a child life specialist, I help make a difference in kidsâ lives by helping them overcome fears. Itâs my job to see kids before transplant and prepare them for surgery, which can sound like a scary experience. But we help minimize some of those fears. \",\"nodeType\":\"text\"}\n7a3b:[\"$7a3c\"]\n7a39:{\"data\":\"$7a3a\",\"content\":\"$7a3b\",\"nodeType\":\"paragraph\"}\n7a40:{}\n7a43:{}\n7a44:[]\n7a42:{\"data\":\"$7a43\",\"marks\":\"$7a44\",\"value\":\"I always say that Iâm a teacher for the hospital and part of my job is helping kids when we have to do hard things here. Surprises are for birthday parties, not the hospital. Children shouldnât have to experience surprises when theyâre at the hospital because itâs their body. I want to prepare them for whatâs going to happen to their body. \",\"nodeType\":\"text\"}\n7a41:[\"$7a42\"]\n7a3f:{\"data\":\"$7a40\",\"content\":\"$7a41\",\"nodeType\":\"paragraph\"}\n7a46:{}\n7a49:{}\n7a4a:[]\n7a48:{\"data\":\"$7a49\",\"marks\":\"$7a4a\",\"value\":\"During the holidays, child life specialists make sure that every kid receives a present through our store, which allows parents and guardians to pick out their own gifts at no cost becaus"])</script>
1<script>self.__next_f.push([1,"e they are provided by generous donors. \",\"nodeType\":\"text\"}\n7a47:[\"$7a48\"]\n7a45:{\"data\":\"$7a46\",\"content\":\"$7a47\",\"nodeType\":\"paragraph\"}\n7a4c:{}\n7a4f:{}\n7a50:[]\n7a4e:{\"data\":\"$7a4f\",\"marks\":\"$7a50\",\"value\":\"The work we do would not be possible without philanthropic support. Donors help provide resources for medical play, iPads to support kids through challenging procedures and toys to give to anxious kids. Donations impact the work we do every day. \",\"nodeType\":\"text\"}\n7a4d:[\"$7a4e\"]\n7a4b:{\"data\":\"$7a4c\",\"content\":\"$7a4d\",\"nodeType\":\"paragraph\"}\n7a52:{}\n7a55:{}\n7a56:[]\n7a54:{\"data\":\"$7a55\",\"marks\":\"$7a56\",\"value\":\"KELSEY ROGERS, Clinical Therapist, Solid Organ Transplant \",\"nodeType\":\"text\"}\n7a53:[\"$7a54\"]\n7a51:{\"data\":\"$7a52\",\"content\":\"$7a53\",\"nodeType\":\"heading-3\"}\n7a58:{}\n7a59:[]\n7a57:{\"data\":\"$7a58\",\"content\":\"$7a59\",\"nodeType\":\"embedded-entry-block\"}\n7a5b:{}\n7a5e:{}\n7a5f:[]\n7a5d:{\"data\":\"$7a5e\",\"marks\":\"$7a5f\",\"value\":\"I am a Clinical Therapist embedded within the Solid Organ Transplant team. My goal is to make patients feel safe in an unknown environment. I see patients as young as 2 years old who might be having a difficult time before and after their transplant. \",\"nodeType\":\"text\"}\n7a5c:[\"$7a5d\"]\n7a5a:{\"data\":\"$7a5b\",\"content\":\"$7a5c\",\"nodeType\":\"paragraph\"}\n7a61:{}\n7a64:{}\n7a65:[]\n7a63:{\"data\":\"$7a64\",\"marks\":\"$7a65\",\"value\":\"With transplant, there are many added stressors such as new medications and the adjustment of taking care of a new organ. We know that this life altering experience can elicit strong emotions and new behaviors for both children and teens. I am their safe person, who isnât a friend, family member or medical provider, for kids to process their emotions with and to help them problem-solve as they go through their transplant journey. \",\"nodeType\":\"text\"}\n7a62:[\"$7a63\"]\n7a60:{\"data\":\"$7a61\",\"content\":\"$7a62\",\"nodeType\":\"paragraph\"}\n7a67:{}\n7a6a:{}\n7a6b:[]\n7a69:{\"data\":\"$7a6a\",\"marks\":\"$7a6b\",\"value\":\"In the last several years, the country has faced a mental health crisis. Being abl"])</script>
1<script>self.__next_f.push([1,"e to hire more clinical therapists has made a huge impact on the patients we serve. On the transplant team, they hired me as a second therapist because they saw the need. Now, patients can be seen in-house with their team, rather than being referred out to someone in the community. Since Iâm part of the transplant team, I better understand patientsâ medical care and can speak to their experience. Getting to work with this population and support kids during this pivotal time in their life is amazing. \",\"nodeType\":\"text\"}\n7a68:[\"$7a69\"]\n7a66:{\"data\":\"$7a67\",\"content\":\"$7a68\",\"nodeType\":\"paragraph\"}\n7a6d:{}\n7a70:{}\n7a71:[]\n7a6f:{\"data\":\"$7a70\",\"marks\":\"$7a71\",\"value\":\"LUCY ANTONY, RN, Hemodialysis \",\"nodeType\":\"text\"}\n7a6e:[\"$7a6f\"]\n7a6c:{\"data\":\"$7a6d\",\"content\":\"$7a6e\",\"nodeType\":\"heading-3\"}\n7a73:{}\n7a74:[]\n7a72:{\"data\":\"$7a73\",\"content\":\"$7a74\",\"nodeType\":\"embedded-entry-block\"}\n7a76:{}\n7a79:{}\n7a7a:[]\n7a78:{\"data\":\"$7a79\",\"marks\":\"$7a7a\",\"value\":\"Iâve been a nurse here for almost two decades and love to see how patients improve after a dialysis treatment. As a nurse, I play a lot of different roles. Iâm an advocate. Iâm a teacher. Iâm like a mother. \",\"nodeType\":\"text\"}\n7a77:[\"$7a78\"]\n7a75:{\"data\":\"$7a76\",\"content\":\"$7a77\",\"nodeType\":\"paragraph\"}\n7a7c:{}\n7a7f:{}\n7a80:[]\n7a7e:{\"data\":\"$7a7f\",\"marks\":\"$7a80\",\"value\":\"When theyâre here for treatment, theyâre often sitting in the chair for three to four hours. Donors have helped provide funding for iPads to distract them for that period. They also provide resources to help us celebrate special occasions for kids â birthdays, Halloween and the holidays â which brings a little joy during treatment. \",\"nodeType\":\"text\"}\n7a7d:[\"$7a7e\"]\n7a7b:{\"data\":\"$7a7c\",\"content\":\"$7a7d\",\"nodeType\":\"paragraph\"}\n7a82:{}\n7a85:{}\n7a86:[]\n7a84:{\"data\":\"$7a85\",\"marks\":\"$7a86\",\"value\":\"And while theyâre here for several hours, I also have a lot of time to talk to them. Sometimes, theyâre worried. Sometimes, theyâre in pain. My job is to try to make them comfortab"])</script>
1<script>self.__next_f.push([1,"le and happy. \",\"nodeType\":\"text\"}\n7a83:[\"$7a84\"]\n7a81:{\"data\":\"$7a82\",\"content\":\"$7a83\",\"nodeType\":\"paragraph\"}\n7a88:{}\n7a8b:{}\n7a8c:[]\n7a8a:{\"data\":\"$7a8b\",\"marks\":\"$7a8c\",\"value\":\"At the end of the day, if the patient feels better, I feel better. I evaluate myself based on how comfortable I made my patients that day. Did my presence impact that childâs care? Most days, Iâm very happy when I go home. \",\"nodeType\":\"text\"}\n7a89:[\"$7a8a\"]\n7a87:{\"data\":\"$7a88\",\"content\":\"$7a89\",\"nodeType\":\"paragraph\"}\n7a8e:{}\n7a91:{}\n7a92:[]\n7a90:{\"data\":\"$7a91\",\"marks\":\"$7a92\",\"value\":\"RAYMOND QUIGLEY, MD, Pediatric Nephrologist at Childrenâs Health and Professor at UT Southwestern Medical Center \",\"nodeType\":\"text\"}\n7a8f:[\"$7a90\"]\n7a8d:{\"data\":\"$7a8e\",\"content\":\"$7a8f\",\"nodeType\":\"heading-3\"}\n7a94:{}\n7a95:[]\n7a93:{\"data\":\"$7a94\",\"content\":\"$7a95\",\"nodeType\":\"embedded-entry-block\"}\n7a97:{}\n7a9a:{}\n7a9b:[]\n7a99:{\"data\":\"$7a9a\",\"marks\":\"$7a9b\",\"value\":\"The kidney is the master organ in your body. It regulates everything. And my job is to work with kids who have kidney diseases and kidney failure that requires dialysis to cleanse their blood until they can receive a kidney transplant. \",\"nodeType\":\"text\"}\n7a98:[\"$7a99\"]\n7a96:{\"data\":\"$7a97\",\"content\":\"$7a98\",\"nodeType\":\"paragraph\"}\n7a9d:{}\n7aa0:{}\n7aa1:[]\n7a9f:{\"data\":\"$7aa0\",\"marks\":\"$7aa1\",\"value\":\"Iâve worked at Childrenâs Health for several decades, but when I was a resident here, I happened to be on-call during the holidays. Iâve been playing the fiddle for a long time and brought my violin in to play some carols for patients and team members. \",\"nodeType\":\"text\"}\n7a9e:[\"$7a9f\"]\n7a9c:{\"data\":\"$7a9d\",\"content\":\"$7a9e\",\"nodeType\":\"paragraph\"}\n7aa3:{}\n7aa6:{}\n7aa7:[]\n7aa5:{\"data\":\"$7aa6\",\"marks\":\"$7aa7\",\"value\":\"Since then, itâs a tradition that Iâve continued during the season. And even other times throughout the year, Iâll play for patients while theyâre receiving dialysis treatment or in the ICU after a transplant. \",\"nodeType\":\"text\"}\n7aa4:[\"$7aa5\"]\n7aa2:{\"d"])</script>
1<script>self.__next_f.push([1,"ata\":\"$7aa3\",\"content\":\"$7aa4\",\"nodeType\":\"paragraph\"}\n7aa9:{}\n7aac:{}\n7aad:[]\n7aab:{\"data\":\"$7aac\",\"marks\":\"$7aad\",\"value\":\"I do this for the patients but also team members who have to work during the holidays. I hope my music cheers them up a little bit and lets them know that theyâre going to be OK. \",\"nodeType\":\"text\"}\n7aaa:[\"$7aab\"]\n7aa8:{\"data\":\"$7aa9\",\"content\":\"$7aaa\",\"nodeType\":\"paragraph\"}\n7aaf:{}\n7ab2:{}\n7ab3:[]\n7ab1:{\"data\":\"$7ab2\",\"marks\":\"$7ab3\",\"value\":\"REBECCA HOO, Kidney Donor \",\"nodeType\":\"text\"}\n7ab0:[\"$7ab1\"]\n7aae:{\"data\":\"$7aaf\",\"content\":\"$7ab0\",\"nodeType\":\"heading-3\"}\n7ab5:{}\n7ab6:[]\n7ab4:{\"data\":\"$7ab5\",\"content\":\"$7ab6\",\"nodeType\":\"embedded-entry-block\"}\n7ab8:{}\n7abb:{}\n7abc:[]\n7aba:{\"data\":\"$7abb\",\"marks\":\"$7abc\",\"value\":\"I live in Nebraska now, but when I lived in Texas, I went to the same church as Charley and her family. Iâd met Charley a couple of times but didnât know her well. \",\"nodeType\":\"text\"}\n7ab9:[\"$7aba\"]\n7ab7:{\"data\":\"$7ab8\",\"content\":\"$7ab9\",\"nodeType\":\"paragraph\"}\n7abe:{}\n7ac1:{}\n7ac2:[]\n7ac0:{\"data\":\"$7ac1\",\"marks\":\"$7ac2\",\"value\":\"One day, I was scrolling on Facebook when I came across a post from a mutual friend saying that Charley was looking for another kidney. A couple weeks later, there was another post, and this time, I learned that Charley and I were the same blood type. \",\"nodeType\":\"text\"}\n7abf:[\"$7ac0\"]\n7abd:{\"data\":\"$7abe\",\"content\":\"$7abf\",\"nodeType\":\"paragraph\"}\n7ac4:{}\n7ac7:{}\n7ac8:[]\n7ac6:{\"data\":\"$7ac7\",\"marks\":\"$7ac8\",\"value\":\"For whatever reason, I could not let this go. I thought about it all the time. I decided there must be a reason that I canât read about this and forget it. There was a combination of my faith, and that it kept popping up in my head and my heart. \",\"nodeType\":\"text\"}\n7ac5:[\"$7ac6\"]\n7ac3:{\"data\":\"$7ac4\",\"content\":\"$7ac5\",\"nodeType\":\"paragraph\"}\n7aca:{}\n7acd:{}\n7ace:[]\n7acc:{\"data\":\"$7acd\",\"marks\":\"$7ace\",\"value\":\"Before the surgery, I spent a week quarantining with Charley and her grandmother, and during that time, I really "])</script>
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1<script>self.__next_f.push([1,"idney isn't one of them. \",\"nodeType\":\"text\"}\n7b7b:[\"$7b7c\"]\n7b79:{\"data\":\"$7b7a\",\"content\":\"$7b7b\",\"nodeType\":\"paragraph\"}\n7b80:{}\n7b83:{}\n7b84:[]\n7b82:{\"data\":\"$7b83\",\"marks\":\"$7b84\",\"value\":\"Charley and her family have known that ever since she was 2, when a donated kidney saved her life. \",\"nodeType\":\"text\"}\n7b81:[\"$7b82\"]\n7b7f:{\"data\":\"$7b80\",\"content\":\"$7b81\",\"nodeType\":\"paragraph\"}\n7b86:{}\n7b89:{}\n7b8a:[]\n7b88:{\"data\":\"$7b89\",\"marks\":\"$7b8a\",\"value\":\"\\\"The new kidney basically starts decreasing in function the minute they put it in,\\\" Charley's grandmother, Rachelle, said. \",\"nodeType\":\"text\"}\n7b87:[\"$7b88\"]\n7b85:{\"data\":\"$7b86\",\"content\":\"$7b87\",\"nodeType\":\"paragraph\"}\n7b8c:{}\n7b8d:[]\n7b8b:{\"data\":\"$7b8c\",\"content\":\"$7b8d\",\"nodeType\":\"embedded-entry-block\"}\n7b8f:{}\n7b92:{}\n7b93:[]\n7b91:{\"data\":\"$7b92\",\"marks\":\"$7b93\",\"value\":\"Another challenge Charley's family accepted as a lifelong reality: It will become harder to find a donor match with future transplants. That's because with every transplant, Charley's immune system produces antibodies that try to fight off the transplanted kidney, which her body mistakes as an invader. \",\"nodeType\":\"text\"}\n7b90:[\"$7b91\"]\n7b8e:{\"data\":\"$7b8f\",\"content\":\"$7b90\",\"nodeType\":\"paragraph\"}\n7b95:{}\n7b98:{}\n7b99:[]\n7b97:{\"data\":\"$7b98\",\"marks\":\"$7b99\",\"value\":\"\\\"That's why she lives on immunosuppression drugs, so her body doesn't wake up and say, 'Hey, that doesn't belong to you,ââ Rachelle said. \",\"nodeType\":\"text\"}\n7b96:[\"$7b97\"]\n7b94:{\"data\":\"$7b95\",\"content\":\"$7b96\",\"nodeType\":\"paragraph\"}\n7b9b:{}\n7b9e:{}\n7b9f:[]\n7b9d:{\"data\":\"$7b9e\",\"marks\":\"$7b9f\",\"value\":\"Charley was born with one healthy kidney, and it took a few months for tests to reveal that her other kidney was not developing. \",\"nodeType\":\"text\"}\n7b9c:[\"$7b9d\"]\n7b9a:{\"data\":\"$7b9b\",\"content\":\"$7b9c\",\"nodeType\":\"paragraph\"}\n7ba1:{}\n7ba4:{}\n7ba5:[]\n7ba3:{\"data\":\"$7ba4\",\"marks\":\"$7ba5\",\"value\":\"After a year of close monitoring and no improvement, doctors determined that one of her kidneys was not functioning at "])</script>
1<script>self.__next_f.push([1,"all. She would have to get it removed and go on dialysis while waiting for a kidney transplant. But during the surgery at a Louisiana hospital, Charley wound up losing both kidneys. \",\"nodeType\":\"text\"}\n7ba2:[\"$7ba3\"]\n7ba0:{\"data\":\"$7ba1\",\"content\":\"$7ba2\",\"nodeType\":\"paragraph\"}\n7ba7:{}\n7baa:{}\n7bab:[]\n7ba9:{\"data\":\"$7baa\",\"marks\":\"$7bab\",\"value\":\"That night, she was rushed to the Pediatric Nephrology Department at Children's Healthâ in Dallas, where she began dialysis treatment six days a week with a multidisciplinary team of nephrologists, cardiologists, surgeons, nurses, child life specialists, play therapists and others collaborating on the 15-month-old's care around the clock. \",\"nodeType\":\"text\"}\n7ba8:[\"$7ba9\"]\n7ba6:{\"data\":\"$7ba7\",\"content\":\"$7ba8\",\"nodeType\":\"paragraph\"}\n7bad:{}\n7bb0:{}\n7bb1:[]\n7baf:{\"data\":\"$7bb0\",\"marks\":\"$7bb1\",\"value\":\"\\\"Charley's care team treated her like she was one of their own,\\\" Rachelle said. \\\"They've watched her grow up. They pull for kids so hard.\\\" \",\"nodeType\":\"text\"}\n7bae:[\"$7baf\"]\n7bac:{\"data\":\"$7bad\",\"content\":\"$7bae\",\"nodeType\":\"paragraph\"}\n7bb3:{}\n7bb6:{}\n7bb7:[]\n7bb5:{\"data\":\"$7bb6\",\"marks\":\"$7bb7\",\"value\":\"Now 13 years old, Charley is thriving again with her second new kidney given to her by a living adult donor two days before Christmas last year â the ultimate holiday gift. \",\"nodeType\":\"text\"}\n7bb4:[\"$7bb5\"]\n7bb2:{\"data\":\"$7bb3\",\"content\":\"$7bb4\",\"nodeType\":\"paragraph\"}\n7bb9:{}\n7bbc:{}\n7bbd:[]\n7bbb:{\"data\":\"$7bbc\",\"marks\":\"$7bbd\",\"value\":\"âI didnât bring the magic of the holiday season to Charley â I shared it with her. And now, we have this unbreakable bond,â said Rebecca, her second kidney donor, after a six-month check-up. \",\"nodeType\":\"text\"}\n7bba:[\"$7bbb\"]\n7bb8:{\"data\":\"$7bb9\",\"content\":\"$7bba\",\"nodeType\":\"paragraph\"}\n7bbf:{}\n7bc2:{}\n7bc3:[]\n7bc1:{\"data\":\"$7bc2\",\"marks\":\"$7bc3\",\"value\":\"*** \",\"nodeType\":\"text\"}\n7bc0:[\"$7bc1\"]\n7bbe:{\"data\":\"$7bbf\",\"content\":\"$7bc0\",\"nodeType\":\"paragraph\"}\n7bc5:{}\n7bc8:{}\n7bc9:[]\n7bc7:{\"data\":\"$7bc8\",\"marks\":\"$7bc"])</script>
1<script>self.__next_f.push([1,"9\",\"value\":\"Charleyâs second transplant operation was performed by the same surgeon who oversaw her first transplant â Dev Desai, M.D., Ph.D., Chief of Pediatric Transplantation at Childrenâs Health. \",\"nodeType\":\"text\"}\n7bc6:[\"$7bc7\"]\n7bc4:{\"data\":\"$7bc5\",\"content\":\"$7bc6\",\"nodeType\":\"paragraph\"}\n7bcb:{}\n7bcc:[]\n7bca:{\"data\":\"$7bcb\",\"content\":\"$7bcc\",\"nodeType\":\"embedded-entry-block\"}\n7bce:{}\n7bd1:{}\n7bd2:[]\n7bd0:{\"data\":\"$7bd1\",\"marks\":\"$7bd2\",\"value\":\"Children's Health offers one of the longest-running comprehensive pediatric transplant programs in the nation. Each year, the program serves approximately 500 patients -- performing somewhere around 50 heart, kidney, and liver transplants -- and helps recipients continue to thrive well after transplantation. \",\"nodeType\":\"text\"}\n7bcf:[\"$7bd0\"]\n7bcd:{\"data\":\"$7bce\",\"content\":\"$7bcf\",\"nodeType\":\"paragraph\"}\n7bd4:{}\n7bd7:{}\n7bd8:[]\n7bd6:{\"data\":\"$7bd7\",\"marks\":\"$7bd8\",\"value\":\"In 2021 the team celebrated a monumental milestone â the performance of its 1,500th transplant since the programâs inception in 1980 â and continues to provide hope and healing for children and families every day. \",\"nodeType\":\"text\"}\n7bd5:[\"$7bd6\"]\n7bd3:{\"data\":\"$7bd4\",\"content\":\"$7bd5\",\"nodeType\":\"paragraph\"}\n7bda:{}\n7bdd:{}\n7bde:[]\n7bdc:{\"data\":\"$7bdd\",\"marks\":\"$7bde\",\"value\":\"Dr. Desai, also a Professor of Surgery, Pediatrics and Immunology at UT Southwestern Medical Center, was involved in both transplant procedures â removing the donated kidney from Rebeccaâs body at UT Southwestern, placing it in a cooler and driving it a few blocks over to place in Charley at Childrenâs Health. \",\"nodeType\":\"text\"}\n7bdb:[\"$7bdc\"]\n7bd9:{\"data\":\"$7bda\",\"content\":\"$7bdb\",\"nodeType\":\"paragraph\"}\n7be0:{}\n7be3:{}\n7be4:[]\n7be2:{\"data\":\"$7be3\",\"marks\":\"$7be4\",\"value\":\"The transplant is an example of the collaboration thatâs been in place for more than 60 years between Childrenâs Health â a nonprofit and one of the largest U.S. pediatric health providers â and UT Southwestern, as the t"])</script>
1<script>self.__next_f.push([1,"wo institutions seek to provide incredible health care for children. \",\"nodeType\":\"text\"}\n7be1:[\"$7be2\"]\n7bdf:{\"data\":\"$7be0\",\"content\":\"$7be1\",\"nodeType\":\"paragraph\"}\n7be6:{}\n7be9:{}\n7bea:[]\n7be8:{\"data\":\"$7be9\",\"marks\":\"$7bea\",\"value\":\"âWe work together with our partners at UT Southwestern to coordinate the surgeries to start at roughly the same time,â Dr. Desai said. âIâm proud that together, weâre able to give kids an opportunity to live a normal childhood. Itâs certainly motivational for me to continue this work and to see patients like Charley grow up. This is why we do this.â \",\"nodeType\":\"text\"}\n7be7:[\"$7be8\"]\n7be5:{\"data\":\"$7be6\",\"content\":\"$7be7\",\"nodeType\":\"paragraph\"}\n7bec:{}\n7bef:{}\n7bf0:[]\n7bee:{\"data\":\"$7bef\",\"marks\":\"$7bf0\",\"value\":\"*** \",\"nodeType\":\"text\"}\n7bed:[\"$7bee\"]\n7beb:{\"data\":\"$7bec\",\"content\":\"$7bed\",\"nodeType\":\"paragraph\"}\n7bf2:{}\n7bf5:{}\n7bf6:[]\n7bf4:{\"data\":\"$7bf5\",\"marks\":\"$7bf6\",\"value\":\"Charley's first transplanted kidney lasted her more than 10 years. By the time she had to get it removed, her kidney function had declined so much, she lingered in a state of nearly constant pain. \",\"nodeType\":\"text\"}\n7bf3:[\"$7bf4\"]\n7bf1:{\"data\":\"$7bf2\",\"content\":\"$7bf3\",\"nodeType\":\"paragraph\"}\n7bf8:{}\n7bfb:{}\n7bfc:[]\n7bfa:{\"data\":\"$7bfb\",\"marks\":\"$7bfc\",\"value\":\"\\\"I couldn't even walk,\\\" Charley said. \\\"It hurt to stand up.\\\" \",\"nodeType\":\"text\"}\n7bf9:[\"$7bfa\"]\n7bf7:{\"data\":\"$7bf8\",\"content\":\"$7bf9\",\"nodeType\":\"paragraph\"}\n7bfe:{}\n7c01:{}\n7c02:[]\n7c00:{\"data\":\"$7c01\",\"marks\":\"$7c02\",\"value\":\"For nearly a year and a half, Charley underwent daily peritoneal dialysis at home â a treatment that uses the lining of the abdomen to filter blood through the body. \",\"nodeType\":\"text\"}\n7bff:[\"$7c00\"]\n7bfd:{\"data\":\"$7bfe\",\"content\":\"$7bff\",\"nodeType\":\"paragraph\"}\n7c04:{}\n7c07:{}\n7c08:[]\n7c06:{\"data\":\"$7c07\",\"marks\":\"$7c08\",\"value\":\"In September 2022, she had surgery to remove the kidney and spent the next several months going to Children's Health almost every day for four hours of hemodialysis "])</script>
1<script>self.__next_f.push([1,"â a treatment that filters the blood through a machine that acts like an artificial kidney. \",\"nodeType\":\"text\"}\n7c05:[\"$7c06\"]\n7c03:{\"data\":\"$7c04\",\"content\":\"$7c05\",\"nodeType\":\"paragraph\"}\n7c0a:{}\n7c0d:{}\n7c0e:[]\n7c0c:{\"data\":\"$7c0d\",\"marks\":\"$7c0e\",\"value\":\"Living for months in a hotel was difficult for Charley and her grandmother, who reside several hours away from Childrenâs Health, but day after day, Charley's medical team worked to provide her the highest quality of care. \",\"nodeType\":\"text\"}\n7c0b:[\"$7c0c\"]\n7c09:{\"data\":\"$7c0a\",\"content\":\"$7c0b\",\"nodeType\":\"paragraph\"}\n7c10:{}\n7c13:{}\n7c14:[]\n7c12:{\"data\":\"$7c13\",\"marks\":\"$7c14\",\"value\":\"The pediatric transplant program includes a renowned team of experts and ancillary services that offer a multidisciplinary approach to care that supports a child's unique physical, emotional, psychological and developmental needs. Together, team members work to provide care to transplant patients that continues to rank the program as one of the top in the country by U.S. News \u0026 World Report. \",\"nodeType\":\"text\"}\n7c11:[\"$7c12\"]\n7c0f:{\"data\":\"$7c10\",\"content\":\"$7c11\",\"nodeType\":\"paragraph\"}\n7c16:{}\n7c19:{}\n7c1a:[]\n7c18:{\"data\":\"$7c19\",\"marks\":\"$7c1a\",\"value\":\"But these team members donât just care about Charleyâs physical needs. They care about her emotional wellbeing, too. They circled around Charley and sang as she got dialysis on her 13th birthday. Raymond Quigley, M.D., her dialysis doctor, paid Charley a special visit during the holidays to play carols on his violin. \",\"nodeType\":\"text\"}\n7c17:[\"$7c18\"]\n7c15:{\"data\":\"$7c16\",\"content\":\"$7c17\",\"nodeType\":\"paragraph\"}\n7c1c:{\"target\":\"$dc0\"}\n7c1d:[]\n7c1b:{\"data\":\"$7c1c\",\"content\":\"$7c1d\",\"nodeType\":\"embedded-entry-block\"}\n7c1f:{}\n7c22:{}\n7c23:[]\n7c21:{\"data\":\"$7c22\",\"marks\":\"$7c23\",\"value\":\"Both transplanted kidneys came from living donors with connections to the family's church: the first, Jessica, a high school friend and cheer teammate of Charley's mom; the second, Rebecca, a woman who had moved from Texas to Nebr"])</script>
1<script>self.__next_f.push([1,"aska. \",\"nodeType\":\"text\"}\n7c20:[\"$7c21\"]\n7c1e:{\"data\":\"$7c1f\",\"content\":\"$7c20\",\"nodeType\":\"paragraph\"}\n7c25:{}\n7c28:{}\n7c29:[]\n7c27:{\"data\":\"$7c28\",\"marks\":\"$7c29\",\"value\":\"Rebecca had only met Charley a couple times before moving to Nebraska, when she saw a social media post from a mutual friend sharing that Charley was looking for a new kidney donor and the chances were slim. Quietly on her own, Rebecca began going through the organ donor screening process while living hundreds of miles from Texas, after learning that she and Charley had the same blood type. \",\"nodeType\":\"text\"}\n7c26:[\"$7c27\"]\n7c24:{\"data\":\"$7c25\",\"content\":\"$7c26\",\"nodeType\":\"paragraph\"}\n7c2b:{}\n7c2e:{}\n7c2f:[]\n7c2d:{\"data\":\"$7c2e\",\"marks\":\"$7c2f\",\"value\":\"âFor whatever reason, I could not let this go. I thought about it all the time. I decided there must be a reason that I canât read about this and forget it,â said Rebecca, a mother of four. âThere was a combination of my faith, and that it kept popping up in my head and my heart.â \",\"nodeType\":\"text\"}\n7c2c:[\"$7c2d\"]\n7c2a:{\"data\":\"$7c2b\",\"content\":\"$7c2c\",\"nodeType\":\"paragraph\"}\n7c31:{}\n7c34:{}\n7c35:[]\n7c33:{\"data\":\"$7c34\",\"marks\":\"$7c35\",\"value\":\"After a series of surveys and blood tests, Rebecca flew to Dallas for a more in-depth health screening, including interviews with a social worker and psychologist, and other tests to rule out any possible issue that might get in the way of a successful transplant. \",\"nodeType\":\"text\"}\n7c32:[\"$7c33\"]\n7c30:{\"data\":\"$7c31\",\"content\":\"$7c32\",\"nodeType\":\"paragraph\"}\n7c37:{}\n7c3a:{}\n7c3b:[]\n7c39:{\"data\":\"$7c3a\",\"marks\":\"$7c3b\",\"value\":\"Rebecca spent a week with Charley and her family as they got one last step closer to an official greenlight. She cherishes that time, as well as the memory of the life-changing moment when they found out the transplant was official. \",\"nodeType\":\"text\"}\n7c38:[\"$7c39\"]\n7c36:{\"data\":\"$7c37\",\"content\":\"$7c38\",\"nodeType\":\"paragraph\"}\n7c3d:{}\n7c40:{}\n7c41:[]\n7c3f:{\"data\":\"$7c40\",\"marks\":\"$7c41\",\"value\":\"\\\"If you didn"])</script>
1<script>self.__next_f.push([1,"'t know Charley, you wouldn't have known the weight she was carrying,\\\" Rebecca said. \\\"I will never forget the look of relief on her face. ⦠Her smile was the most beautiful thing to me.\\\" \",\"nodeType\":\"text\"}\n7c3e:[\"$7c3f\"]\n7c3c:{\"data\":\"$7c3d\",\"content\":\"$7c3e\",\"nodeType\":\"paragraph\"}\n7c43:{}\n7c46:{}\n7c47:[]\n7c45:{\"data\":\"$7c46\",\"marks\":\"$7c47\",\"value\":\"Charley's second transplant and Rebecca's surgery both went beautifully. The same goes for their recovery. Charley is happy to have more energy, more time to ride her horse Dooley, to swim, and to sleep over at friends' houses â something she hadn't been able to do for a long time because of her treatment. \",\"nodeType\":\"text\"}\n7c44:[\"$7c45\"]\n7c42:{\"data\":\"$7c43\",\"content\":\"$7c44\",\"nodeType\":\"paragraph\"}\n7c49:{}\n7c4c:{}\n7c4d:[]\n7c4b:{\"data\":\"$7c4c\",\"marks\":\"$7c4d\",\"value\":\"âKidney and liver failure are life-threatening illnesses. Without transplant, these patients wonât survive into adulthood, and itâs not because of anything they did,â Dr. Desai said. âGiving these kids an opportunity to live a relatively normal life, which they werenât given because of something they were born with, is very important to me. Weâre giving them a second chance at life.â \",\"nodeType\":\"text\"}\n7c4a:[\"$7c4b\"]\n7c48:{\"data\":\"$7c49\",\"content\":\"$7c4a\",\"nodeType\":\"paragraph\"}\n7c4f:{}\n7c52:{}\n7c53:[]\n7c51:{\"data\":\"$7c52\",\"marks\":\"$7c53\",\"value\":\"*** \",\"nodeType\":\"text\"}\n7c50:[\"$7c51\"]\n7c4e:{\"data\":\"$7c4f\",\"content\":\"$7c50\",\"nodeType\":\"paragraph\"}\n7c55:{}\n7c58:{}\n7c59:[]\n7c57:{\"data\":\"$7c58\",\"marks\":\"$7c59\",\"value\":\"The extensive screening process living organ donors go through ensures they're healthy enough to give away an organ, and that the organ they're giving away is healthy enough for the recipient. That's one of the reasons organs from living donors last longer than those from deceased donors. \",\"nodeType\":\"text\"}\n7c56:[\"$7c57\"]\n7c54:{\"data\":\"$7c55\",\"content\":\"$7c56\",\"nodeType\":\"paragraph\"}\n7c5b:{\"target\":\"$dcc\"}\n7c5c:[]\n7c5a:{\"data\":\"$7c5b\",\"content\":\"$7c5c\",\"nod"])</script>
1<script>self.__next_f.push([1,"eType\":\"embedded-entry-block\"}\n7c5e:{}\n7c61:{}\n7c62:[]\n7c60:{\"data\":\"$7c61\",\"marks\":\"$7c62\",\"value\":\"Charley and her family are staying in close touch with Rebecca, just as they've done with Jessica for many years -- their extended family now. They share a deep sense of gratitude for one another and hope their story inspires others to give back to Childrenâs Health, donating to support treatment-advancing research or important services such as child life and social work that holistically care for children like Charley. \",\"nodeType\":\"text\"}\n7c5f:[\"$7c60\"]\n7c5d:{\"data\":\"$7c5e\",\"content\":\"$7c5f\",\"nodeType\":\"paragraph\"}\n7c64:{}\n7c67:{}\n7c68:[]\n7c66:{\"data\":\"$7c67\",\"marks\":\"$7c68\",\"value\":\"Charley will need another transplant someday, which is and isn't a big deal to a girl who has spent her whole life showing up for each new challenge with courage, resilience, and gratitude â qualities that inspire everyone on her medical team. \",\"nodeType\":\"text\"}\n7c65:[\"$7c66\"]\n7c63:{\"data\":\"$7c64\",\"content\":\"$7c65\",\"nodeType\":\"paragraph\"}\n7c6a:{}\n7c6d:{}\n7c6e:[]\n7c6c:{\"data\":\"$7c6d\",\"marks\":\"$7c6e\",\"value\":\"âCharley has a new lease on life,â Rachelle said. âSure, itâs a life of medications, labs and restricted diets. But itâs a second life, and itâs amazing.â \",\"nodeType\":\"text\"}\n7c6b:[\"$7c6c\"]\n7c69:{\"data\":\"$7c6a\",\"content\":\"$7c6b\",\"nodeType\":\"paragraph\"}\n7b78:[\"$7b79\",\"$7b7f\",\"$7b85\",\"$7b8b\",\"$7b8e\",\"$7b94\",\"$7b9a\",\"$7ba0\",\"$7ba6\",\"$7bac\",\"$7bb2\",\"$7bb8\",\"$7bbe\",\"$7bc4\",\"$7bca\",\"$7bcd\",\"$7bd3\",\"$7bd9\",\"$7bdf\",\"$7be5\",\"$7beb\",\"$7bf1\",\"$7bf7\",\"$7bfd\",\"$7c03\",\"$7c09\",\"$7c0f\",\"$7c15\",\"$7c1b\",\"$7c1e\",\"$7c24\",\"$7c2a\",\"$7c30\",\"$7c36\",\"$7c3c\",\"$7c42\",\"$7c48\",\"$7c4e\",\"$7c54\",\"$7c5a\",\"$7c5d\",\"$7c63\",\"$7c69\"]\n7b76:{\"data\":\"$7b77\",\"content\":\"$7b78\",\"nodeType\":\"document\"}\n7b75:{\"adminTitle\":\"Main Content: Charley | Patient Ambassador\",\"headingLevel\":\"h2\",\"body\":\"$7b76\",\"contentAccordion\":\"Disabled\"}\n7b6a:{\"metadata\":\"$7b6b\",\"sys\":\"$7b6e\",\"fields\":\"$7b75\"}\n7b69:[\"$7b6a\"]\n7c6f:[\"$b41\",\"$b4e\"]\n7c70:[\"$dc0\",\"$dcc\"]\n7c71:[\"$c64\""])</script>
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1<script>self.__next_f.push([1,"Now, her parents are on a mission: Raise $75,000 in their daughter's honor to support research and care so every premature baby gets to go home healthy.\",\"nodeType\":\"text\"}\n7ce8:[\"$7ce9\"]\n7ce6:{\"data\":\"$7ce7\",\"content\":\"$7ce8\",\"nodeType\":\"paragraph\"}\n7ced:{}\n7cf0:{}\n7cf1:[]\n7cef:{\"data\":\"$7cf0\",\"marks\":\"$7cf1\",\"value\":\"âLife is a gift, and we donât take that lightly anymore,â Mitesh said. âEvery day, Riya gives us purpose. We are on this mission so she will be something bigger than life and help other babies in her memory.â \",\"nodeType\":\"text\"}\n7cee:[\"$7cef\"]\n7cec:{\"data\":\"$7ced\",\"content\":\"$7cee\",\"nodeType\":\"paragraph\"}\n7cd6:[\"$7cd7\",\"$7cdd\",\"$7ce0\",\"$7ce6\",\"$7cec\"]\n7cd4:{\"data\":\"$7cd5\",\"content\":\"$7cd6\",\"nodeType\":\"document\"}\n7cd3:{\"adminTitle\":\"Main Content: Riya | Patient Story\",\"headingLevel\":\"h2\",\"body\":\"$7cd4\",\"contentAccordion\":\"Disabled\"}\n7cc8:{\"metadata\":\"$7cc9\",\"sys\":\"$7ccc\",\"fields\":\"$7cd3\"}\n7cf4:[]\n7cf5:[]\n7cf3:{\"tags\":\"$7cf4\",\"concepts\":\"$7cf5\"}\n7cf8:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n7cf7:{\"sys\":\"$7cf8\"}\n7cfa:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n7cf9:{\"sys\":\"$7cfa\"}\n7cfc:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n7cfb:{\"sys\":\"$7cfc\"}\n7cf6:{\"space\":\"$7cf7\",\"id\":\"4NFZYi6c2LhOo4Vu9s7IaN\",\"type\":\"Entry\",\"createdAt\":\"2025-05-08T19:04:02.605Z\",\"updatedAt\":\"2026-01-29T22:26:58.639Z\",\"environment\":\"$7cf9\",\"publishedVersion\":7,\"revision\":2,\"contentType\":\"$7cfb\",\"locale\":\"en-US\"}\n7cff:{}\n7d02:{}\n7d05:{}\n7d06:[]\n7d04:{\"data\":\"$7d05\",\"marks\":\"$7d06\",\"value\":\"100 grams away from a world record \",\"nodeType\":\"text\"}\n7d03:[\"$7d04\"]\n7d01:{\"data\":\"$7d02\",\"content\":\"$7d03\",\"nodeType\":\"heading-2\"}\n7d08:{}\n7d09:[]\n7d07:{\"data\":\"$7d08\",\"content\":\"$7d09\",\"nodeType\":\"embedded-entry-block\"}\n7d0b:{}\n7d0e:{}\n7d0f:[]\n7d0d:{\"data\":\"$7d0e\",\"marks\":\"$7d0f\",\"value\":\"Five months into Alpiâs pregnancy, her blood pressure spiked. She was experiencing a complication called preeclampsia. \",\"nodeType\":\"text\"}\n7d0c:[\"$7d0d\"]\n7d0a:{\"data\":\"$7d0b\",\"content\":\"$7d0c\",\"nodeType"])</script>
1<script>self.__next_f.push([1,"\":\"paragraph\"}\n7d11:{}\n7d14:{}\n7d15:[]\n7d13:{\"data\":\"$7d14\",\"marks\":\"$7d15\",\"value\":\"âAt that point we knew the baby was coming early, we just didnât know how early,â Alpi says. âMy doctor tried one medication, then another, but nothing helped.â \",\"nodeType\":\"text\"}\n7d12:[\"$7d13\"]\n7d10:{\"data\":\"$7d11\",\"content\":\"$7d12\",\"nodeType\":\"paragraph\"}\n7d17:{}\n7d1a:{}\n7d1b:[]\n7d19:{\"data\":\"$7d1a\",\"marks\":\"$7d1b\",\"value\":\"Her blood pressure was dangerously high, and the baby was coming. Riya was born at just 25 weeks and three days. She weighed less than a pound. \",\"nodeType\":\"text\"}\n7d18:[\"$7d19\"]\n7d16:{\"data\":\"$7d17\",\"content\":\"$7d18\",\"nodeType\":\"paragraph\"}\n7d1d:{}\n7d20:{}\n7d21:[]\n7d1f:{\"data\":\"$7d20\",\"marks\":\"$7d21\",\"value\":\"âThe world record for the smallest baby that ever survived was around 250 grams, and Riya was just 100 grams above that,â Mitesh said. \",\"nodeType\":\"text\"}\n7d1e:[\"$7d1f\"]\n7d1c:{\"data\":\"$7d1d\",\"content\":\"$7d1e\",\"nodeType\":\"paragraph\"}\n7d23:{}\n7d26:{}\n7d27:[]\n7d25:{\"data\":\"$7d26\",\"marks\":\"$7d27\",\"value\":\"She was transferred to the Level IV Neonatal Intensive Care Unit (NICU) at Childrenâs Health when she needed more complex care than her local NICU could provide. \",\"nodeType\":\"text\"}\n7d24:[\"$7d25\"]\n7d22:{\"data\":\"$7d23\",\"content\":\"$7d24\",\"nodeType\":\"paragraph\"}\n7d29:{}\n7d2c:{}\n7d2d:[]\n7d2b:{\"data\":\"$7d2c\",\"marks\":\"$7d2d\",\"value\":\"âAs a parent, it breaks your heart because you want to do anything and everything for your kid, but we felt helpless,\\\" Mitesh said.\",\"nodeType\":\"text\"}\n7d2a:[\"$7d2b\"]\n7d28:{\"data\":\"$7d29\",\"content\":\"$7d2a\",\"nodeType\":\"paragraph\"}\n7d00:[\"$7d01\",\"$7d07\",\"$7d0a\",\"$7d10\",\"$7d16\",\"$7d1c\",\"$7d22\",\"$7d28\"]\n7cfe:{\"data\":\"$7cff\",\"content\":\"$7d00\",\"nodeType\":\"document\"}\n7cfd:{\"adminTitle\":\"Main Content: Riya | 100 grams away from a world record\",\"heading\":\"100 grams away from a world record\",\"headingLevel\":\"h2\",\"body\":\"$7cfe\",\"contentAccordion\":\"Disabled\"}\n7cf2:{\"metadata\":\"$7cf3\",\"sys\":\"$7cf6\",\"fields\":\"$7cfd\"}\n7d30:[]\n7d31:[]\n7d2f:{\"tags\":\"$7d30\",\"concepts\":\"$7d31\"}"])</script>
1<script>self.__next_f.push([1,"\n7d34:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n7d33:{\"sys\":\"$7d34\"}\n7d36:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n7d35:{\"sys\":\"$7d36\"}\n7d38:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n7d37:{\"sys\":\"$7d38\"}\n7d32:{\"space\":\"$7d33\",\"id\":\"1TnnaO0bXRq3fFo1T6m4Nv\",\"type\":\"Entry\",\"createdAt\":\"2025-05-08T19:05:16.447Z\",\"updatedAt\":\"2026-01-29T22:27:05.409Z\",\"environment\":\"$7d35\",\"publishedVersion\":7,\"revision\":2,\"contentType\":\"$7d37\",\"locale\":\"en-US\"}\n7d3b:{}\n7d3e:{}\n7d41:{}\n7d42:[]\n7d40:{\"data\":\"$7d41\",\"marks\":\"$7d42\",\"value\":\"Getting bigger every day \",\"nodeType\":\"text\"}\n7d3f:[\"$7d40\"]\n7d3d:{\"data\":\"$7d3e\",\"content\":\"$7d3f\",\"nodeType\":\"heading-2\"}\n7d44:{}\n7d47:{}\n7d48:[]\n7d46:{\"data\":\"$7d47\",\"marks\":\"$7d48\",\"value\":\"The days passed slowly, and Riya became more stable. Her doctors, nurses, respiratory therapists, and the entire care team taught Alpi and Mitesh everything they needed to know â how to feed a baby this small, how to closely monitor her tiny lungs, and how despite everything, Riyaâs brain was working well. Right away, three nurses, Jenni Stocks, Meagan Compton, and Reagan Miller, stepped up to lead her care. \",\"nodeType\":\"text\"}\n7d45:[\"$7d46\"]\n7d43:{\"data\":\"$7d44\",\"content\":\"$7d45\",\"nodeType\":\"paragraph\"}\n7d4a:{}\n7d4b:[]\n7d49:{\"data\":\"$7d4a\",\"content\":\"$7d4b\",\"nodeType\":\"embedded-entry-block\"}\n7d4d:{}\n7d50:{}\n7d51:[]\n7d4f:{\"data\":\"$7d50\",\"marks\":\"$7d51\",\"value\":\"âThey hadnât even met us or Riya, they just knew she was the smallest baby in the NICU and wanted to take care of her,â Alpi said. âShe eventually had child life, physical therapy, occupational therapy and music therapy. The care team supported us emotionally too, sometimes talking to us for 30 minutes or an hour just to make sure we understood everything that was going on.â \",\"nodeType\":\"text\"}\n7d4e:[\"$7d4f\"]\n7d4c:{\"data\":\"$7d4d\",\"content\":\"$7d4e\",\"nodeType\":\"paragraph\"}\n7d53:{}\n7d56:{}\n7d57:[]\n7d55:{\"data\":\"$7d56\",\"marks\":\"$7d57\",\"value\":\"Every day, Riya got a little bigger. As the weeks passed"])</script>
1<script>self.__next_f.push([1,", she started smiling, wiggling her arms and legs, and looking around the room. \",\"nodeType\":\"text\"}\n7d54:[\"$7d55\"]\n7d52:{\"data\":\"$7d53\",\"content\":\"$7d54\",\"nodeType\":\"paragraph\"}\n7d59:{}\n7d5c:{}\n7d5d:[]\n7d5b:{\"data\":\"$7d5c\",\"marks\":\"$7d5d\",\"value\":\"âWe were overjoyed when we finally got to hold her,â Alpi says. âAt about three-and-a-half-months-old, Sushmita Yallapragada, M.D., gave us the much-awaited news that Riya was doing well enough to be transferred into a less intensive care unit.â \",\"nodeType\":\"text\"}\n7d5a:[\"$7d5b\"]\n7d58:{\"data\":\"$7d59\",\"content\":\"$7d5a\",\"nodeType\":\"paragraph\"}\n7d5f:{}\n7d62:{}\n7d63:[]\n7d61:{\"data\":\"$7d62\",\"marks\":\"$7d63\",\"value\":\"Alpi and Mitesh shared Riyaâs progress with their family and started working on the nursery to prepare to bring her home. But progress halted when the blood pressure in her lungs spiked, and she was diagnosed with a condition called pulmonary hypertension. \",\"nodeType\":\"text\"}\n7d60:[\"$7d61\"]\n7d5e:{\"data\":\"$7d5f\",\"content\":\"$7d60\",\"nodeType\":\"paragraph\"}\n7d65:{}\n7d68:{}\n7d69:[]\n7d67:{\"data\":\"$7d68\",\"marks\":\"$7d69\",\"value\":\"âChildrenâs Health did everything possible. We did everything possible, and we hope Riya knows that,â Mitesh said. \",\"nodeType\":\"text\"}\n7d66:[\"$7d67\"]\n7d64:{\"data\":\"$7d65\",\"content\":\"$7d66\",\"nodeType\":\"paragraph\"}\n7d3c:[\"$7d3d\",\"$7d43\",\"$7d49\",\"$7d4c\",\"$7d52\",\"$7d58\",\"$7d5e\",\"$7d64\"]\n7d3a:{\"data\":\"$7d3b\",\"content\":\"$7d3c\",\"nodeType\":\"document\"}\n7d39:{\"adminTitle\":\"Main Content: Riya | Getting bigger every day\",\"heading\":\"Getting bigger every day\",\"headingLevel\":\"h2\",\"body\":\"$7d3a\",\"contentAccordion\":\"Disabled\"}\n7d2e:{\"metadata\":\"$7d2f\",\"sys\":\"$7d32\",\"fields\":\"$7d39\"}\n7d6c:[]\n7d6d:[]\n7d6b:{\"tags\":\"$7d6c\",\"concepts\":\"$7d6d\"}\n7d70:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n7d6f:{\"sys\":\"$7d70\"}\n7d72:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n7d71:{\"sys\":\"$7d72\"}\n7d74:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n7d73:{\"sys\":\"$7d74\"}\n7d6e:{\"space\":\"$7d6f\",\"id\":\"R5aGXEjgnaTtzBJZrAWAu\",\"type\":\"Entry\""])</script>
1<script>self.__next_f.push([1,",\"createdAt\":\"2025-05-08T19:06:45.324Z\",\"updatedAt\":\"2026-01-29T22:27:10.817Z\",\"environment\":\"$7d71\",\"publishedVersion\":6,\"revision\":2,\"contentType\":\"$7d73\",\"locale\":\"en-US\"}\n7d77:{}\n7d7a:{}\n7d7d:{}\n7d7e:[]\n7d7c:{\"data\":\"$7d7d\",\"marks\":\"$7d7e\",\"value\":\"Riyaâs Room \",\"nodeType\":\"text\"}\n7d7b:[\"$7d7c\"]\n7d79:{\"data\":\"$7d7a\",\"content\":\"$7d7b\",\"nodeType\":\"heading-2\"}\n7d80:{}\n7d83:{}\n7d84:[]\n7d82:{\"data\":\"$7d83\",\"marks\":\"$7d84\",\"value\":\"Riya passed away in the spring of 2021. Soon after, Alpi and Mitesh got a message from one of her doctors, Shamaila Gill, M.D. She said she was passing by Riyaâs room and thinking of them. \",\"nodeType\":\"text\"}\n7d81:[\"$7d82\"]\n7d7f:{\"data\":\"$7d80\",\"content\":\"$7d81\",\"nodeType\":\"paragraph\"}\n7d86:{}\n7d89:{}\n7d8a:[]\n7d88:{\"data\":\"$7d89\",\"marks\":\"$7d8a\",\"value\":\"That got the couple thinking: What if they could honor Riyaâs legacy by supporting doctors and scientists working to improve survivorship for babies like Riya? \",\"nodeType\":\"text\"}\n7d87:[\"$7d88\"]\n7d85:{\"data\":\"$7d86\",\"content\":\"$7d87\",\"nodeType\":\"paragraph\"}\n7d8c:{}\n7d8f:{}\n7d90:[]\n7d8e:{\"data\":\"$7d8f\",\"marks\":\"$7d90\",\"value\":\"That sparked their new mission. \",\"nodeType\":\"text\"}\n7d8d:[\"$7d8e\"]\n7d8b:{\"data\":\"$7d8c\",\"content\":\"$7d8d\",\"nodeType\":\"paragraph\"}\n7d92:{\"target\":\"$dd8\"}\n7d93:[]\n7d91:{\"data\":\"$7d92\",\"content\":\"$7d93\",\"nodeType\":\"embedded-entry-block\"}\n7d95:{}\n7d98:{}\n7d99:[]\n7d97:{\"data\":\"$7d98\",\"marks\":\"$7d99\",\"value\":\"Alpi and Mitesh continue to rally their community around this cause â all while balancing work and caring for their two-month-old and ââââ11-month-old daughters who they had through surrogacy. \",\"nodeType\":\"text\"}\n7d96:[\"$7d97\"]\n7d94:{\"data\":\"$7d95\",\"content\":\"$7d96\",\"nodeType\":\"paragraph\"}\n7d9b:{}\n7d9e:{}\n7d9f:[]\n7d9d:{\"data\":\"$7d9e\",\"marks\":\"$7d9f\",\"value\":\"âBoth of our girls will grow up knowing their older sisterâs heroic journey and her fighting spirit,âââ said Mitesh. \",\"nodeType\":\"text\"}\n7d9c:[\"$7d9d\"]\n7d9a:{\"data\":\"$7d9b\",\"content\":\"$7d9c\",\"nodeType\":\"paragraph\"}\n7da1:{}\n7da4:{}\n7"])</script>
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1<script>self.__next_f.push([1,"{}\n7f77:{}\n7f78:[]\n7f76:{\"data\":\"$7f77\",\"marks\":\"$7f78\",\"value\":\"No. 23: Get a tattoo.\",\"nodeType\":\"text\"}\n7f75:[\"$7f76\"]\n7f73:{\"data\":\"$7f74\",\"content\":\"$7f75\",\"nodeType\":\"paragraph\"}\n7f7a:{}\n7f7d:{}\n7f7e:[]\n7f7c:{\"data\":\"$7f7d\",\"marks\":\"$7f7e\",\"value\":\"No. 24: Go to Heaven.\",\"nodeType\":\"text\"}\n7f7b:[\"$7f7c\"]\n7f79:{\"data\":\"$7f7a\",\"content\":\"$7f7b\",\"nodeType\":\"paragraph\"}\n7f80:{}\n7f83:{}\n7f84:[]\n7f82:{\"data\":\"$7f83\",\"marks\":\"$7f84\",\"value\":\"No. 25: Be happy.\",\"nodeType\":\"text\"}\n7f81:[\"$7f82\"]\n7f7f:{\"data\":\"$7f80\",\"content\":\"$7f81\",\"nodeType\":\"paragraph\"}\n7f86:{}\n7f89:{}\n7f8a:[]\n7f88:{\"data\":\"$7f89\",\"marks\":\"$7f8a\",\"value\":\"âShe was smart. She was funny. She was just enough sweetness and sass. This is what cancer took from the world,â Sharon said of her daughter, Micaela, who passed away in 2011 from leukemia when she was 18 years old.\",\"nodeType\":\"text\"}\n7f87:[\"$7f88\"]\n7f85:{\"data\":\"$7f86\",\"content\":\"$7f87\",\"nodeType\":\"paragraph\"}\n7f8c:{}\n7f8f:{}\n7f90:[]\n7f8e:{\"data\":\"$7f8f\",\"marks\":\"$7f90\",\"value\":\"For nine months, team members in the Pauline Allen Gill Center for Cancer and Blood Disorders at Childrenâs Health cared for Micaela -- a dancer with national awards who wanted to be a journalist when she grew up.\",\"nodeType\":\"text\"}\n7f8d:[\"$7f8e\"]\n7f8b:{\"data\":\"$7f8c\",\"content\":\"$7f8d\",\"nodeType\":\"paragraph\"}\n7f92:{}\n7f95:{}\n7f96:[]\n7f94:{\"data\":\"$7f95\",\"marks\":\"$7f96\",\"value\":\"And for most of that time, the teenager and her mother lived at the hospital, as Micaela underwent numerous rounds of chemotherapy treatments and a bone marrow transplant.\",\"nodeType\":\"text\"}\n7f93:[\"$7f94\"]\n7f91:{\"data\":\"$7f92\",\"content\":\"$7f93\",\"nodeType\":\"paragraph\"}\n7f98:{}\n7f9b:{}\n7f9c:[]\n7f9a:{\"data\":\"$7f9b\",\"marks\":\"$7f9c\",\"value\":\"They ate meals from their hospital room. Child Life specialists hung a sign in the afternoons outside Micaelaâs patient room that read âPrivacy: Stay outâ so the teenager could have some alone time.\",\"nodeType\":\"text\"}\n7f99:[\"$7f9a\"]\n7f97:{\"data\":\"$7f98\",\"content\":\"$7f99\",\"nodeType\":\"paragraph\"}\n7f"])</script>
1<script>self.__next_f.push([1,"9e:{}\n7fa1:{}\n7fa2:[]\n7fa0:{\"data\":\"$7fa1\",\"marks\":\"$7fa2\",\"value\":\"Friends visited daily. Nurses giggled when a boy Micaela had a crush on stopped by and her heart rate monitor skyrocketed.\",\"nodeType\":\"text\"}\n7f9f:[\"$7fa0\"]\n7f9d:{\"data\":\"$7f9e\",\"content\":\"$7f9f\",\"nodeType\":\"paragraph\"}\n7fa4:{}\n7fa7:{}\n7fa8:[]\n7fa6:{\"data\":\"$7fa7\",\"marks\":\"$7fa8\",\"value\":\"And Sharon and Micaela had long conversations, as Sharon folded their laundry washed at the hospital.\",\"nodeType\":\"text\"}\n7fa5:[\"$7fa6\"]\n7fa3:{\"data\":\"$7fa4\",\"content\":\"$7fa5\",\"nodeType\":\"paragraph\"}\n7faa:{}\n7fad:{}\n7fae:[]\n7fac:{\"data\":\"$7fad\",\"marks\":\"$7fae\",\"value\":\"âWe laughed. We cried. I learned things about her that most parents wouldn't know about their children,â Sharon said. âHow many parents get to spend eight months in the same room with their child?â\",\"nodeType\":\"text\"}\n7fab:[\"$7fac\"]\n7fa9:{\"data\":\"$7faa\",\"content\":\"$7fab\",\"nodeType\":\"paragraph\"}\n7fb0:{}\n7fb3:{}\n7fb4:[]\n7fb2:{\"data\":\"$7fb3\",\"marks\":\"$7fb4\",\"value\":\"And they also talked about what theyâd do one day when they left the hospital.\",\"nodeType\":\"text\"}\n7fb1:[\"$7fb2\"]\n7faf:{\"data\":\"$7fb0\",\"content\":\"$7fb1\",\"nodeType\":\"paragraph\"}\n7fb6:{}\n7fb7:[]\n7fb5:{\"data\":\"$7fb6\",\"content\":\"$7fb7\",\"nodeType\":\"embedded-entry-block\"}\n7fb9:{}\n7fbc:{}\n7fbd:[]\n7fbb:{\"data\":\"$7fbc\",\"marks\":\"$7fbd\",\"value\":\"âWe discussed chemo and treatment and how in the world we can make a difference. We didn't know what to do, but we knew it was important to us to make a change for the better for the kids and the families like us that were diagnosed with cancer,â Sharon said.\",\"nodeType\":\"text\"}\n7fba:[\"$7fbb\"]\n7fb8:{\"data\":\"$7fb9\",\"content\":\"$7fba\",\"nodeType\":\"paragraph\"}\n7fbf:{}\n7fc2:{}\n7fc3:[]\n7fc1:{\"data\":\"$7fc2\",\"marks\":\"$7fc3\",\"value\":\"But she also felt depleted as she drove home alone from the hospital in August 2011, after Micaela had a seizure and passed away in the Intensive Care Unit while Sharon held her close.\",\"nodeType\":\"text\"}\n7fc0:[\"$7fc1\"]\n7fbe:{\"data\":\"$7fbf\",\"content\":\"$7fc0\",\"nodeType\":\"par"])</script>
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1<script>self.__next_f.push([1,"hardly notice the tiny device below her shorts that continually monitors her glucose levels, which her mom tracks on her phone. \",\"nodeType\":\"text\"}\n8072:[\"$8073\"]\n8070:{\"data\":\"$8071\",\"content\":\"$8072\",\"nodeType\":\"paragraph\"}\n8077:{}\n8078:[]\n8076:{\"data\":\"$8077\",\"content\":\"$8078\",\"nodeType\":\"embedded-entry-block\"}\n807a:{}\n807d:{}\n807e:[]\n807c:{\"data\":\"$807d\",\"marks\":\"$807e\",\"value\":\"And youâd never know that tucked underneath her sports bra is a pump delivering insulin into her body to control her blood sugar levels. \",\"nodeType\":\"text\"}\n807b:[\"$807c\"]\n8079:{\"data\":\"$807a\",\"content\":\"$807b\",\"nodeType\":\"paragraph\"}\n8080:{}\n8083:{}\n8084:[]\n8082:{\"data\":\"$8083\",\"marks\":\"$8084\",\"value\":\"Diagnosed three years ago with type 1 diabetes, Camille is an elite volleyball player. The lanky 12-year-old enjoys debate, reading and theater. She wants to be a chemist or pharmacist when she grows up. Sheâs a tough kid who doesnât mind swimming in the cold ocean until her lips turn blue. \",\"nodeType\":\"text\"}\n8081:[\"$8082\"]\n807f:{\"data\":\"$8080\",\"content\":\"$8081\",\"nodeType\":\"paragraph\"}\n8086:{}\n8089:{}\n808a:[]\n8088:{\"data\":\"$8089\",\"marks\":\"$808a\",\"value\":\"So when she rapidly lost weight and complained of severe fatigue and extreme thirst, her mom, Olivia, an ICU nurse, was worried. She rushed Camille to an urgent care, while Chad, unable to come inside because of COVID-19 safety precautions, waited in the car. \",\"nodeType\":\"text\"}\n8087:[\"$8088\"]\n8085:{\"data\":\"$8086\",\"content\":\"$8087\",\"nodeType\":\"paragraph\"}\n808c:{}\n808f:{}\n8090:[]\n808e:{\"data\":\"$808f\",\"marks\":\"$8090\",\"value\":\"And when Olivia saw that the glucometer registered Camilleâs blood sugar level in the high 400s (average is 70 to 120), she walked outside unable to stop the tears. \",\"nodeType\":\"text\"}\n808d:[\"$808e\"]\n808b:{\"data\":\"$808c\",\"content\":\"$808d\",\"nodeType\":\"paragraph\"}\n8092:{}\n8095:{}\n8096:[]\n8094:{\"data\":\"$8095\",\"marks\":\"$8096\",\"value\":\"âI knew immediately that it was type 1 diabetes, but the thought had never entered my mind,â Olivia said, adding that n"])</script>
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1<script>self.__next_f.push([1,"\":\"$80d4\",\"marks\":\"$80d5\",\"value\":\"He lucked into finding one for a trial studying a revolutionary medication called teplizumab for children newly diagnosed with type 1 diabetes. The drug is a monoclonal antibody that holds off destruction of the pancreas with the goal to extend a patientâs âhoneymoonâ period, meaning they have somewhat normal blood sugar levels for a few more years. \",\"nodeType\":\"text\"}\n80d2:[\"$80d3\"]\n80d0:{\"data\":\"$80d1\",\"content\":\"$80d2\",\"nodeType\":\"paragraph\"}\n80d7:{}\n80d8:[]\n80d6:{\"data\":\"$80d7\",\"content\":\"$80d8\",\"nodeType\":\"embedded-entry-block\"}\n80da:{}\n80dd:{}\n80de:[]\n80dc:{\"data\":\"$80dd\",\"marks\":\"$80de\",\"value\":\"âA lot of research these last few years has been in the management of type 1. We have new pumps and devices, but actual disease treatment and how to mitigate it or prevent another person from getting the disease, we donât have answers to those questions,â Olivia said. âImagine being able to stop the disease before it destroys someoneâs pancreas. This is the closest thing we have to a cure for type 1.â \",\"nodeType\":\"text\"}\n80db:[\"$80dc\"]\n80d9:{\"data\":\"$80da\",\"content\":\"$80db\",\"nodeType\":\"paragraph\"}\n80e0:{}\n80e3:{}\n80e4:[]\n80e2:{\"data\":\"$80e3\",\"marks\":\"$80e4\",\"value\":\"Childrenâs Health â was one of the few locations in the country offering the 18-month-long study, and it would require the family, who lives in San Antonio, to regularly drive five hours to Dallas. \",\"nodeType\":\"text\"}\n80e1:[\"$80e2\"]\n80df:{\"data\":\"$80e0\",\"content\":\"$80e1\",\"nodeType\":\"paragraph\"}\n80e6:{}\n80e9:{}\n80ea:[]\n80e8:{\"data\":\"$80e9\",\"marks\":\"$80ea\",\"value\":\"Chad and Olivia discussed the study with Camille, explaining the time commitment; blood draws and infusions; and the chance that she could receive the placebo â not the drug. \",\"nodeType\":\"text\"}\n80e7:[\"$80e8\"]\n80e5:{\"data\":\"$80e6\",\"content\":\"$80e7\",\"nodeType\":\"paragraph\"}\n80ec:{}\n80ef:{}\n80f0:[]\n80ee:{\"data\":\"$80ef\",\"marks\":\"$80f0\",\"value\":\"âI decided that it could help me and kids like me who arenât diagnosed yet,â Camille sa"])</script>
1<script>self.__next_f.push([1,"id. âResearch helps peopleâs lives now, and it helps peopleâs lives in the future. It saves lives, and without research, we donât have answers to anything.â \",\"nodeType\":\"text\"}\n80ed:[\"$80ee\"]\n80eb:{\"data\":\"$80ec\",\"content\":\"$80ed\",\"nodeType\":\"paragraph\"}\n80b1:[\"$80b2\",\"$80b8\",\"$80be\",\"$80c4\",\"$80ca\",\"$80d0\",\"$80d6\",\"$80d9\",\"$80df\",\"$80e5\",\"$80eb\"]\n80af:{\"data\":\"$80b0\",\"content\":\"$80b1\",\"nodeType\":\"document\"}\n80ae:{\"adminTitle\":\"Main Content: Camille | An unexpected change\",\"headingLevel\":\"h2\",\"body\":\"$80af\",\"contentAccordion\":\"Disabled\"}\n80a3:{\"metadata\":\"$80a4\",\"sys\":\"$80a7\",\"fields\":\"$80ae\"}\n80f3:[]\n80f4:[]\n80f2:{\"tags\":\"$80f3\",\"concepts\":\"$80f4\"}\n80f7:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n80f6:{\"sys\":\"$80f7\"}\n80f9:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n80f8:{\"sys\":\"$80f9\"}\n80fb:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n80fa:{\"sys\":\"$80fb\"}\n80f5:{\"space\":\"$80f6\",\"id\":\"10CzZQmF2IkWCiJpjIxhxs\",\"type\":\"Entry\",\"createdAt\":\"2025-05-09T20:21:03.140Z\",\"updatedAt\":\"2026-01-29T22:34:59.119Z\",\"environment\":\"$80f8\",\"publishedVersion\":6,\"revision\":2,\"contentType\":\"$80fa\",\"locale\":\"en-US\"}\n80fe:{}\n8101:{}\n8104:{}\n8105:[]\n8103:{\"data\":\"$8104\",\"marks\":\"$8105\",\"value\":\"Clinical research paves the way\",\"nodeType\":\"text\"}\n8102:[\"$8103\"]\n8100:{\"data\":\"$8101\",\"content\":\"$8102\",\"nodeType\":\"heading-2\"}\n8107:{}\n810a:{}\n810b:[]\n8109:{\"data\":\"$810a\",\"marks\":\"$810b\",\"value\":\"Research helps scientists better understand diseases, chronic conditions and injuries, and can lead to the development of new medicines, treatments or approaches to caring for patients. Each year, there are more than 1,200 active research studies at Childrenâs Health, with nearly 13,000 patients enrolled. For many of these children, research is their last hope for treatment for their illnesses. \",\"nodeType\":\"text\"}\n8108:[\"$8109\"]\n8106:{\"data\":\"$8107\",\"content\":\"$8108\",\"nodeType\":\"paragraph\"}\n810d:{}\n8110:{}\n8111:[]\n810f:{\"data\":\"$8110\",\"marks\":\"$8111\",\"value\":\"âIâve been a doctor since 1976, and Iâv"])</script>
1<script>self.__next_f.push([1,"e seen the evolution of how we practice medicine to create better outcomes for our patients,â said Perrin White, M.D., director of the Division of Pediatric Endocrinology at Children's Health and professor at UT Southwestern Medical Center. \",\"nodeType\":\"text\"}\n810e:[\"$810f\"]\n810c:{\"data\":\"$810d\",\"content\":\"$810e\",\"nodeType\":\"paragraph\"}\n8113:{}\n8116:{}\n8117:[]\n8115:{\"data\":\"$8116\",\"marks\":\"$8117\",\"value\":\"âEvery single one of those improvements required someone trying something new,â said Dr. White, who also is the principal investigator on Camilleâs study. âThe single most exciting thing is realizing that you know something, or that youâve contributed to knowing something that was not previously known. Making my patientsâ lives better through research is tremendously rewarding.â \",\"nodeType\":\"text\"}\n8114:[\"$8115\"]\n8112:{\"data\":\"$8113\",\"content\":\"$8114\",\"nodeType\":\"paragraph\"}\n8119:{}\n811a:[]\n8118:{\"data\":\"$8119\",\"content\":\"$811a\",\"nodeType\":\"embedded-entry-block\"}\n811c:{}\n811f:{}\n8120:[]\n811e:{\"data\":\"$811f\",\"marks\":\"$8120\",\"value\":\"Support from generous donors fuels new areas of research not presently funded by external entities; supports important, life-saving studies that are nationally and locally underfunded; and provides pilot funding that helps researchers successfully apply for larger, future grants such as from the National Institutes of Health. \",\"nodeType\":\"text\"}\n811d:[\"$811e\"]\n811b:{\"data\":\"$811c\",\"content\":\"$811d\",\"nodeType\":\"paragraph\"}\n8122:{}\n8125:{}\n8126:[]\n8124:{\"data\":\"$8125\",\"marks\":\"$8126\",\"value\":\"âClinical research is extraordinarily expensive because the safety of the participants is our priority. It requires a lot of monitoring, a lot of personnel and very careful procedures. We would not be able to do this kind of research without ongoing philanthropic support,â Dr. White said. \",\"nodeType\":\"text\"}\n8123:[\"$8124\"]\n8121:{\"data\":\"$8122\",\"content\":\"$8123\",\"nodeType\":\"paragraph\"}\n8128:{}\n812b:{}\n812c:[]\n812a:{\"data\":\"$812b\",\"marks\":\"$812c\",\"value\":\"Dr. White said clinic"])</script>
1<script>self.__next_f.push([1,"al research that Childrenâs Health patients participated in recently led to FDA approval of a new insulin pump for kids. And he said the team will finish analysis soon on Camilleâs study to see if teplizumab was successful in prolonging the honeymoon phase for patients, allowing newly diagnosed kids to have extra time living without diabetes. \",\"nodeType\":\"text\"}\n8129:[\"$812a\"]\n8127:{\"data\":\"$8128\",\"content\":\"$8129\",\"nodeType\":\"paragraph\"}\n812e:{}\n8131:{}\n8132:[]\n8130:{\"data\":\"$8131\",\"marks\":\"$8132\",\"value\":\"âCamille is a very bright, driven girl who is going to make a difference in this world,â said her dad, Chad. âWithout the scientific research to help kids who have diseases like type 1 diabetes, some of these kids will not get those opportunities to make a difference and have a future.â \",\"nodeType\":\"text\"}\n812f:[\"$8130\"]\n812d:{\"data\":\"$812e\",\"content\":\"$812f\",\"nodeType\":\"paragraph\"}\n8134:{}\n8137:{}\n8139:{\"type\":\"italic\"}\n8138:[\"$8139\"]\n8136:{\"data\":\"$8137\",\"marks\":\"$8138\",\"value\":\"We tracked down five team members, whose faces represent the web of support surrounding Camille's journey at Childrenâs Health. \",\"nodeType\":\"text\"}\n8135:[\"$8136\"]\n8133:{\"data\":\"$8134\",\"content\":\"$8135\",\"nodeType\":\"paragraph\"}\n813b:{}\n813e:{}\n813f:[]\n813d:{\"data\":\"$813e\",\"marks\":\"$813f\",\"value\":\"These are their stories. \",\"nodeType\":\"text\"}\n813c:[\"$813d\"]\n813a:{\"data\":\"$813b\",\"content\":\"$813c\",\"nodeType\":\"paragraph\"}\n8141:{}\n8142:[]\n8140:{\"data\":\"$8141\",\"content\":\"$8142\",\"nodeType\":\"embedded-entry-block\"}\n8144:{}\n8147:{}\n8148:[]\n8146:{\"data\":\"$8147\",\"marks\":\"$8148\",\"value\":\"ABHA CHOUDHARY, MD, Pediatric Endocrinologist at Childrenâs Health and Assistant Professor at UT Southwestern Medical Center, Co-Principal Investigator for Teplizumab Study\",\"nodeType\":\"text\"}\n8145:[\"$8146\"]\n8143:{\"data\":\"$8144\",\"content\":\"$8145\",\"nodeType\":\"heading-3\"}\n814a:{}\n814d:{}\n814e:[]\n814c:{\"data\":\"$814d\",\"marks\":\"$814e\",\"value\":\"As an endocrinologist, I treat patients with hormone abnormalities. Type 1 diabetes is an autoimmune conditio"])</script>
1<script>self.__next_f.push([1,"n often triggered by a virus. It tricks the body into thinking that the pancreas is a foreign gland leading to autoimmune destruction of the pancreas. This leads to insulin hormone deficiency causing high blood sugar. \",\"nodeType\":\"text\"}\n814b:[\"$814c\"]\n8149:{\"data\":\"$814a\",\"content\":\"$814b\",\"nodeType\":\"paragraph\"}\n8150:{}\n8153:{}\n8154:[]\n8152:{\"data\":\"$8153\",\"marks\":\"$8154\",\"value\":\"Currently, there is no cure for diabetes, and it is managed with insulin. Itâs a life changing diagnosis. There have been several medical advancements such as continuous glucose monitors and insulin pumps, which have improved the quality of life and outcomes in our patients with diabetes. \",\"nodeType\":\"text\"}\n8151:[\"$8152\"]\n814f:{\"data\":\"$8150\",\"content\":\"$8151\",\"nodeType\":\"paragraph\"}\n8156:{}\n8159:{}\n815a:[]\n8158:{\"data\":\"$8159\",\"marks\":\"$815a\",\"value\":\"Thatâs where the clinical research piece comes in. Itâs amazing how we can perform these research studies, and then apply that to the patient population to improve their treatment and outcomes. Already, Teplizumab is approved for patients who have not yet shown diabetes symptoms for Stage 2 diabetes, delaying the diagnosis. That is a game changer. \",\"nodeType\":\"text\"}\n8157:[\"$8158\"]\n8155:{\"data\":\"$8156\",\"content\":\"$8157\",\"nodeType\":\"paragraph\"}\n815c:{}\n815f:{}\n8160:[]\n815e:{\"data\":\"$815f\",\"marks\":\"$8160\",\"value\":\"Research improves the lives of children, and without donor support, we would not be able to do this kind of work. Research is how we advance science, and weâre extremely grateful to the patients who participate in these trials that allow us to identify new treatments and technology. \",\"nodeType\":\"text\"}\n815d:[\"$815e\"]\n815b:{\"data\":\"$815c\",\"content\":\"$815d\",\"nodeType\":\"paragraph\"}\n8162:{}\n8163:[]\n8161:{\"data\":\"$8162\",\"content\":\"$8163\",\"nodeType\":\"embedded-entry-block\"}\n8165:{}\n8168:{}\n8169:[]\n8167:{\"data\":\"$8168\",\"marks\":\"$8169\",\"value\":\"YAZMIN MOLINA, Clinical Research Team Lead\",\"nodeType\":\"text\"}\n8166:[\"$8167\"]\n8164:{\"data\":\"$8165\",\"content\":\"$8166\",\"nodeType\":\"hea"])</script>
1<script>self.__next_f.push([1,"ding-3\"}\n816b:{}\n816e:{}\n816f:[]\n816d:{\"data\":\"$816e\",\"marks\":\"$816f\",\"value\":\"I help identify patients like Camille to participate in our clinical research studies. Then, I follow them throughout their clinic visits, monitoring their vitals and outcomes. \",\"nodeType\":\"text\"}\n816c:[\"$816d\"]\n816a:{\"data\":\"$816b\",\"content\":\"$816c\",\"nodeType\":\"paragraph\"}\n8171:{}\n8174:{}\n8175:[]\n8173:{\"data\":\"$8174\",\"marks\":\"$8175\",\"value\":\"Iâve seen drugs that weâve studied then become approved by the FDA, and itâs incredible to make that kind of a difference in kidsâ lives. \",\"nodeType\":\"text\"}\n8172:[\"$8173\"]\n8170:{\"data\":\"$8171\",\"content\":\"$8172\",\"nodeType\":\"paragraph\"}\n8177:{}\n817a:{}\n817b:[]\n8179:{\"data\":\"$817a\",\"marks\":\"$817b\",\"value\":\"Not only are you offering patients new treatments, but youâre advancing medical care. As a hospital, thatâs what weâre all about â giving patients access to the best care and the best possible treatments. \",\"nodeType\":\"text\"}\n8178:[\"$8179\"]\n8176:{\"data\":\"$8177\",\"content\":\"$8178\",\"nodeType\":\"paragraph\"}\n817d:{}\n817e:[]\n817c:{\"data\":\"$817d\",\"content\":\"$817e\",\"nodeType\":\"embedded-entry-block\"}\n8180:{}\n8183:{}\n8184:[]\n8182:{\"data\":\"$8183\",\"marks\":\"$8184\",\"value\":\"MICHELLE MURPHY, Sr. Research RN â Team Lead\",\"nodeType\":\"text\"}\n8181:[\"$8182\"]\n817f:{\"data\":\"$8180\",\"content\":\"$8181\",\"nodeType\":\"heading-3\"}\n8186:{}\n8189:{}\n818a:[]\n8188:{\"data\":\"$8189\",\"marks\":\"$818a\",\"value\":\"I previously worked in primary care and urgent care, where it was all about seeing patients as quickly as possible, before I transitioned to clinical research. When Camille came for her visits, we spent four to six hours together each time, so I got to know her really well. Thatâs the best part of my job â getting to know the kids and making a difference for their diseases and conditions. \\n\\nThe hope with this study is that by administering this medication early on into their diagnosis, it would prolong a type 1 diabetes patientâs honeymoon period, which is a little bit of time that all Type 1 kids have whe"])</script>
1<script>self.__next_f.push([1,"n their pancreas is still producing some insulin. For Camille, she already developed the disease, and we were trying to help her preserve the normal function of her pancreas â or close to normal â for a few years. \\n\\nThe most exciting part of research is investigating new drugs that make taking care of these chronic, lifelong issues a little bit easier for patients and their families. \",\"nodeType\":\"text\"}\n8187:[\"$8188\"]\n8185:{\"data\":\"$8186\",\"content\":\"$8187\",\"nodeType\":\"paragraph\"}\n818c:{}\n818d:[]\n818b:{\"data\":\"$818c\",\"content\":\"$818d\",\"nodeType\":\"embedded-entry-block\"}\n818f:{}\n8192:{}\n8193:[]\n8191:{\"data\":\"$8192\",\"marks\":\"$8193\",\"value\":\"ISRA ROBINSON, IV Therapy\",\"nodeType\":\"text\"}\n8190:[\"$8191\"]\n818e:{\"data\":\"$818f\",\"content\":\"$8190\",\"nodeType\":\"heading-3\"}\n8195:{}\n8198:{}\n8199:[]\n8197:{\"data\":\"$8198\",\"marks\":\"$8199\",\"value\":\"When I was a bedside nurse, I was always able to insert IVs really well, and it was one of my favorite jobs. Now, itâs my entire job. I get to meet so many people, and even though the skill is repetitive, itâs always unique to the individual. Thereâs an element of challenge to it that I really love. \",\"nodeType\":\"text\"}\n8196:[\"$8197\"]\n8194:{\"data\":\"$8195\",\"content\":\"$8196\",\"nodeType\":\"paragraph\"}\n819b:{}\n819e:{}\n819f:[]\n819d:{\"data\":\"$819e\",\"marks\":\"$819f\",\"value\":\"With research patients, I see them several times when theyâre doing infusions for a specific medication and quickly learn their âmagic vein.â And we have some different tricks to make the poke painless. Pain management is very important to us because then getting an IV is not scary. \",\"nodeType\":\"text\"}\n819c:[\"$819d\"]\n819a:{\"data\":\"$819b\",\"content\":\"$819c\",\"nodeType\":\"paragraph\"}\n81a1:{}\n81a4:{}\n81a5:[]\n81a3:{\"data\":\"$81a4\",\"marks\":\"$81a5\",\"value\":\"I love helping these kids and being part of the team that is providing them with the treatment they need. Donations are priceless in providing care, especially in this setting. Every little bit helps, and it helps every care team member provide the best care for each"])</script>
1<script>self.__next_f.push([1," patient. \",\"nodeType\":\"text\"}\n81a2:[\"$81a3\"]\n81a0:{\"data\":\"$81a1\",\"content\":\"$81a2\",\"nodeType\":\"paragraph\"}\n81a7:{}\n81a8:[]\n81a6:{\"data\":\"$81a7\",\"content\":\"$81a8\",\"nodeType\":\"embedded-entry-block\"}\n81aa:{}\n81ad:{}\n81ae:[]\n81ac:{\"data\":\"$81ad\",\"marks\":\"$81ae\",\"value\":\"STEPHANIE TIMSAH, Clinical Research RN\",\"nodeType\":\"text\"}\n81ab:[\"$81ac\"]\n81a9:{\"data\":\"$81aa\",\"content\":\"$81ab\",\"nodeType\":\"heading-3\"}\n81b0:{}\n81b3:{}\n81b4:[]\n81b2:{\"data\":\"$81b3\",\"marks\":\"$81b4\",\"value\":\"Camille just has this very bubbly personality. She was just so much fun. And, the pterodactyl sound? That's kind of what won her over. In the infusion room, there is a picture of a pterodactyl, and we were talking about it at one point, and I was like, âI can make a pterodactyl sound,â and she was like, âNo, you can't.â I made the noise, and she ate it up. \",\"nodeType\":\"text\"}\n81b1:[\"$81b2\"]\n81af:{\"data\":\"$81b0\",\"content\":\"$81b1\",\"nodeType\":\"paragraph\"}\n81b6:{}\n81b9:{}\n81ba:[]\n81b8:{\"data\":\"$81b9\",\"marks\":\"$81ba\",\"value\":\"Most of the time, these kids interact with a lot of different people, and they're in a very vulnerable position. Breaking the ice with them and letting them know that we are on their team and that we can also be vulnerable says, âI'm here with you. I can be silly with you, and I want you to have fun and feel safe.â \",\"nodeType\":\"text\"}\n81b7:[\"$81b8\"]\n81b5:{\"data\":\"$81b6\",\"content\":\"$81b7\",\"nodeType\":\"paragraph\"}\n81bc:{}\n81bf:{}\n81c0:[]\n81be:{\"data\":\"$81bf\",\"marks\":\"$81c0\",\"value\":\"The drug that Camille is on has been in the works for years. And now they're potentially going to roll it out and have it available to kids outside of research. Without Camille and kids like her taking a chance with us, then we couldn't bring it to kids in the future.\",\"nodeType\":\"text\"}\n81bd:[\"$81be\"]\n81bb:{\"data\":\"$81bc\",\"content\":\"$81bd\",\"nodeType\":\"paragraph\"}\n81c2:{}\n81c5:{}\n81c6:[]\n81c4:{\"data\":\"$81c5\",\"marks\":\"$81c6\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n81c8:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n81cb:{}\n81c"])</script>
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1<script>self.__next_f.push([1,":{\"data\":\"$826e\",\"marks\":\"$826f\",\"value\":\"On the morning of transplant day, two Coke-liter bottles worth of bone marrow stem cells were collected with a syringe from her brother Aidenâs hip while he was sedated. \",\"nodeType\":\"text\"}\n826c:[\"$826d\"]\n826a:{\"data\":\"$826b\",\"content\":\"$826c\",\"nodeType\":\"paragraph\"}\n8271:{}\n8274:{}\n8275:[]\n8273:{\"data\":\"$8274\",\"marks\":\"$8275\",\"value\":\"Alexisâ family anxiously waited for hours while an offsite lab prepared the stem cells. Her mom, Shannon, dressed up in a funny inflatable unicorn outfit and waddled down hospital hallways of the Dallas campus to pass the time and make her children laugh. \",\"nodeType\":\"text\"}\n8272:[\"$8273\"]\n8270:{\"data\":\"$8271\",\"content\":\"$8272\",\"nodeType\":\"paragraph\"}\n8277:{}\n827a:{}\n827b:[]\n8279:{\"data\":\"$827a\",\"marks\":\"$827b\",\"value\":\"And just before dinner, her brotherâs life-saving gift arrived and was admitted through an I.V., while Shannon held Alexisâ hand and quietly said a prayer. \",\"nodeType\":\"text\"}\n8278:[\"$8279\"]\n8276:{\"data\":\"$8277\",\"content\":\"$8278\",\"nodeType\":\"paragraph\"}\n827d:{\"target\":\"$dfc\"}\n827e:[]\n827c:{\"data\":\"$827d\",\"content\":\"$827e\",\"nodeType\":\"embedded-entry-block\"}\n8280:{}\n8283:{}\n8284:[]\n8282:{\"data\":\"$8283\",\"marks\":\"$8284\",\"value\":\"An unexpected call\",\"nodeType\":\"text\"}\n8281:[\"$8282\"]\n827f:{\"data\":\"$8280\",\"content\":\"$8281\",\"nodeType\":\"heading-3\"}\n8286:{}\n8289:{}\n828a:[]\n8288:{\"data\":\"$8289\",\"marks\":\"$828a\",\"value\":\"Two years earlier, Shannon received a call at 10 p.m. while she was getting ready for bed telling her that clinicians expected her then-15-year-old Alexis had leukemia. \",\"nodeType\":\"text\"}\n8287:[\"$8288\"]\n8285:{\"data\":\"$8286\",\"content\":\"$8287\",\"nodeType\":\"paragraph\"}\n828c:{}\n828d:[]\n828b:{\"data\":\"$828c\",\"content\":\"$828d\",\"nodeType\":\"embedded-entry-block\"}\n828f:{}\n8292:{}\n8293:[]\n8291:{\"data\":\"$8292\",\"marks\":\"$8293\",\"value\":\"The call was jarring. \",\"nodeType\":\"text\"}\n8290:[\"$8291\"]\n828e:{\"data\":\"$828f\",\"content\":\"$8290\",\"nodeType\":\"paragraph\"}\n8295:{}\n8298:{}\n8299:[]\n8297:{\"data\":\"$8298\",\"marks\":\"$8299\",\"value\""])</script>
1<script>self.__next_f.push([1,":\"Alexis had no symptoms of a serious illness. Sheâd gone in for routine bloodwork, when her endocrinologist discovered some abnormalities and sent them to Childrenâs Medical Center Dallas for further testing, which confirmed a diagnosis of acute myeloid leukemia. \",\"nodeType\":\"text\"}\n8296:[\"$8297\"]\n8294:{\"data\":\"$8295\",\"content\":\"$8296\",\"nodeType\":\"paragraph\"}\n829b:{}\n829e:{}\n829f:[]\n829d:{\"data\":\"$829e\",\"marks\":\"$829f\",\"value\":\"âAnd thatâs where our journey began. You could say that Childrenâs Health found me,â said Shannon, a mother of four who works in human resources and manages a college recruiting program. âWe arrived that night and ended up staying for five months. Alexis understood that she was going to lose her hair, and as a teenage girl, that scared her.â \",\"nodeType\":\"text\"}\n829c:[\"$829d\"]\n829a:{\"data\":\"$829b\",\"content\":\"$829c\",\"nodeType\":\"paragraph\"}\n82a1:{}\n82a4:{}\n82a5:[]\n82a3:{\"data\":\"$82a4\",\"marks\":\"$82a5\",\"value\":\"While Alexis was initially diagnosed at the Dallas campus, the family lives in Frisco, and she was later transferred to Childrenâs Medical Center Plano for most of her treatment. The move allowed Alexis to still receive the same quality care but closer to home, meaning friends and family could easily visit and Shannon could toggle between home and the hospital. \",\"nodeType\":\"text\"}\n82a2:[\"$82a3\"]\n82a0:{\"data\":\"$82a1\",\"content\":\"$82a2\",\"nodeType\":\"paragraph\"}\n82a7:{}\n82aa:{}\n82ab:[]\n82a9:{\"data\":\"$82aa\",\"marks\":\"$82ab\",\"value\":\"In 2021, the same year Alexis was admitted, an eight-story tower expansion of the Plano campus was launched â largely thanks to widespread philanthropic support. Alexis and Shannon have watched it rise up from their hospital room window. Once completed (possibly next year), the tower will allow team members to care for more kids like Alexis who live north of Dallas through enhanced program support and new technology. \",\"nodeType\":\"text\"}\n82a8:[\"$82a9\"]\n82a6:{\"data\":\"$82a7\",\"content\":\"$82a8\",\"nodeType\":\"paragraph\"}\n82ad:{}\n82b0:{}\n82b1:[]\n82af"])</script>
1<script>self.__next_f.push([1,":{\"data\":\"$82b0\",\"marks\":\"$82b1\",\"value\":\"âWeâve watched the evolution of the building for the last couple years. Itâs exciting that theyâre bringing more medical resources further north, especially as more and more people move to this area,â Shannon said. \",\"nodeType\":\"text\"}\n82ae:[\"$82af\"]\n82ac:{\"data\":\"$82ad\",\"content\":\"$82ae\",\"nodeType\":\"paragraph\"}\n82b3:{}\n82b6:{}\n82b7:[]\n82b5:{\"data\":\"$82b6\",\"marks\":\"$82b7\",\"value\":\"The expansion of care is important because it will allow team members at Childrenâs Health to meet evolving patient needs for kids like Alexis as more families settle down in Collin County. These are team members who have stood by Alexisâ side for months and were her literal cheering squad as she rang the bell signaling the end of her treatment before her 16th birthday. \",\"nodeType\":\"text\"}\n82b4:[\"$82b5\"]\n82b2:{\"data\":\"$82b3\",\"content\":\"$82b4\",\"nodeType\":\"paragraph\"}\n82b9:{\"target\":\"$e08\"}\n82ba:[]\n82b8:{\"data\":\"$82b9\",\"content\":\"$82ba\",\"nodeType\":\"embedded-entry-block\"}\n82bc:{}\n82bf:{}\n82c0:[]\n82be:{\"data\":\"$82bf\",\"marks\":\"$82c0\",\"value\":\"Alexis â who is manager of her high school girls' basketball team and whose cell number is saved in the coachâs phone as âbossâ â made plans to attend college and study finance. She spent time with friends and family. She travelled and ate a lot of really great food. \",\"nodeType\":\"text\"}\n82bd:[\"$82be\"]\n82bb:{\"data\":\"$82bc\",\"content\":\"$82bd\",\"nodeType\":\"paragraph\"}\n82c2:{}\n82c5:{}\n82c6:[]\n82c4:{\"data\":\"$82c5\",\"marks\":\"$82c6\",\"value\":\"âWeâre very much a planning family, and it reminded us that you canât plan for anything because anything can change,â Shannon said. âEverything was really good for a period of time.â \",\"nodeType\":\"text\"}\n82c3:[\"$82c4\"]\n82c1:{\"data\":\"$82c2\",\"content\":\"$82c3\",\"nodeType\":\"paragraph\"}\n82c8:{}\n82cb:{}\n82cc:[]\n82ca:{\"data\":\"$82cb\",\"marks\":\"$82cc\",\"value\":\"Aiden to the rescue\",\"nodeType\":\"text\"}\n82c9:[\"$82ca\"]\n82c7:{\"data\":\"$82c8\",\"content\":\"$82c9\",\"nodeType\":\"heading-3\"}\n82ce:{}\n82d1:{}\n82d2:[]\n82d0:{\"d"])</script>
1<script>self.__next_f.push([1,"ata\":\"$82d1\",\"marks\":\"$82d2\",\"value\":\"In the winter of 2022, Alexis began to notice more bruises on her body. Worried, she shared this observation with Shannon. And a week before Christmas, the family learned that her leukemia had relapsed. \",\"nodeType\":\"text\"}\n82cf:[\"$82d0\"]\n82cd:{\"data\":\"$82ce\",\"content\":\"$82cf\",\"nodeType\":\"paragraph\"}\n82d4:{}\n82d5:[]\n82d3:{\"data\":\"$82d4\",\"content\":\"$82d5\",\"nodeType\":\"embedded-entry-block\"}\n82d7:{}\n82da:{}\n82db:[]\n82d9:{\"data\":\"$82da\",\"marks\":\"$82db\",\"value\":\"âGetting diagnosed a second time was really hard for me. Itâs my senior year, and I was looking forward to prom and my high school graduation,â Alexis said. âThe experience has made me grateful for the things in life that I do have.â \",\"nodeType\":\"text\"}\n82d8:[\"$82d9\"]\n82d6:{\"data\":\"$82d7\",\"content\":\"$82d8\",\"nodeType\":\"paragraph\"}\n82dd:{}\n82e0:{}\n82e1:[]\n82df:{\"data\":\"$82e0\",\"marks\":\"$82e1\",\"value\":\"Alexis was readmitted to the Plano campus at the beginning of the year to begin chemotherapy treatment for a second time. But this time, once the treatment was finished, she also would need a bone marrow transplant in the hope of curing her leukemia. \",\"nodeType\":\"text\"}\n82de:[\"$82df\"]\n82dc:{\"data\":\"$82dd\",\"content\":\"$82de\",\"nodeType\":\"paragraph\"}\n82e3:{}\n82e6:{}\n82e7:[]\n82e5:{\"data\":\"$82e6\",\"marks\":\"$82e7\",\"value\":\"âAcute myeloid leukemia can be a little bit hard to treat. Itâs one of the cancers that we say is a little pesky because it isnât always a straight arrow,â said Tamra Slone, MD, who has cared for Alexis for several years and is a Pediatric Hematologist/Oncologist and Plano Service Chief in the Pauline Allen Gill Center for Cancer and Blood Disorders at Childrenâs Health. \",\"nodeType\":\"text\"}\n82e4:[\"$82e5\"]\n82e2:{\"data\":\"$82e3\",\"content\":\"$82e4\",\"nodeType\":\"paragraph\"}\n82e9:{}\n82ec:{}\n82ed:[]\n82eb:{\"data\":\"$82ec\",\"marks\":\"$82ed\",\"value\":\"A leader in patient care, treatment, research and training in pediatric oncology and hematology, the Gill Center brings national and international expertise throu"])</script>
1<script>self.__next_f.push([1,"gh its affiliation with UT Southwestern and the Harold C. Simmons Cancer Center, setting it apart from other sites for pediatric cancer care in the region. \",\"nodeType\":\"text\"}\n82ea:[\"$82eb\"]\n82e8:{\"data\":\"$82e9\",\"content\":\"$82ea\",\"nodeType\":\"paragraph\"}\n82ef:{}\n82f2:{}\n82f3:[]\n82f1:{\"data\":\"$82f2\",\"marks\":\"$82f3\",\"value\":\"From common blood disorders to the rarest forms of cancer, the Gill Center continues to offer comprehensive evaluations, innovative treatments, long-term care and access to the latest clinical trials. \",\"nodeType\":\"text\"}\n82f0:[\"$82f1\"]\n82ee:{\"data\":\"$82ef\",\"content\":\"$82f0\",\"nodeType\":\"paragraph\"}\n82f5:{}\n82f8:{}\n82f9:[]\n82f7:{\"data\":\"$82f8\",\"marks\":\"$82f9\",\"value\":\"âTelling a patient that their cancer has returned is a hard conversation,â said Dr. Slone, also an Associate Professor at UT Southwestern Medical Center. âAlexis had gotten her ânormalâ life back and was looking forward to her last year of high school. And she knew that this time, we would have to be even more intensive with the treatment.â \",\"nodeType\":\"text\"}\n82f6:[\"$82f7\"]\n82f4:{\"data\":\"$82f5\",\"content\":\"$82f6\",\"nodeType\":\"paragraph\"}\n82fb:{}\n82fe:{}\n82ff:[]\n82fd:{\"data\":\"$82fe\",\"marks\":\"$82ff\",\"value\":\"Immediately, Alexisâ medical team began the search for a bone marrow donor. Luckily, Alexis had two perfect matches â an older sister and her younger brother, Aiden. \",\"nodeType\":\"text\"}\n82fc:[\"$82fd\"]\n82fa:{\"data\":\"$82fb\",\"content\":\"$82fc\",\"nodeType\":\"paragraph\"}\n8301:{}\n8304:{}\n8305:[]\n8303:{\"data\":\"$8304\",\"marks\":\"$8305\",\"value\":\"Physicians decided Aiden was the best match, and a transplant date was set for mid-April. \",\"nodeType\":\"text\"}\n8302:[\"$8303\"]\n8300:{\"data\":\"$8301\",\"content\":\"$8302\",\"nodeType\":\"paragraph\"}\n8307:{}\n830a:{}\n830b:[]\n8309:{\"data\":\"$830a\",\"marks\":\"$830b\",\"value\":\"âWhen Alexisâ leukemia returned, I was really sad because I didnât want anything to happen to her. I wanted her to be OK,â Aiden said. âI told my mom that, yes, I would like to save my sisterâs life, and she gave me a b"])</script>
1<script>self.__next_f.push([1,"ig hug.â \",\"nodeType\":\"text\"}\n8308:[\"$8309\"]\n8306:{\"data\":\"$8307\",\"content\":\"$8308\",\"nodeType\":\"paragraph\"}\n830d:{}\n830e:[]\n830c:{\"data\":\"$830d\",\"content\":\"$830e\",\"nodeType\":\"embedded-entry-block\"}\n8310:{}\n8313:{}\n8314:[]\n8312:{\"data\":\"$8313\",\"marks\":\"$8314\",\"value\":\"Isolated but not alone\",\"nodeType\":\"text\"}\n8311:[\"$8312\"]\n830f:{\"data\":\"$8310\",\"content\":\"$8311\",\"nodeType\":\"heading-3\"}\n8316:{}\n8319:{}\n831a:[]\n8318:{\"data\":\"$8319\",\"marks\":\"$831a\",\"value\":\"Alexis wore a flowy blue prom dress under her navy cap and gown, complete with comfy, fuzzy socks and an IV pole in the background. \",\"nodeType\":\"text\"}\n8317:[\"$8318\"]\n8315:{\"data\":\"$8316\",\"content\":\"$8317\",\"nodeType\":\"paragraph\"}\n831c:{}\n831f:{}\n8320:[]\n831e:{\"data\":\"$831f\",\"marks\":\"$8320\",\"value\":\"Her two older sisters had helped her with her hair and makeup, and a small group of administrators from Frisco ISD surprised her with a high school graduation ceremony in a family lounge area at Childrenâs Health. \",\"nodeType\":\"text\"}\n831d:[\"$831e\"]\n831b:{\"data\":\"$831c\",\"content\":\"$831d\",\"nodeType\":\"paragraph\"}\n8322:{}\n8325:{}\n8326:[]\n8324:{\"data\":\"$8325\",\"marks\":\"$8326\",\"value\":\"Several weeks had passed since her bone marrow transplant, and sheâd had to remain on an isolated unit at the Childrenâs Health Dallas campus â standard treatment for patients after transplant because they are immunocompromised. \",\"nodeType\":\"text\"}\n8323:[\"$8324\"]\n8321:{\"data\":\"$8322\",\"content\":\"$8323\",\"nodeType\":\"paragraph\"}\n8328:{}\n832b:{}\n832c:[]\n832a:{\"data\":\"$832b\",\"marks\":\"$832c\",\"value\":\"And since this meant she had to miss the milestone of walking across the stage to receive her high school diploma, her care team at Childrenâs Health worked to bring the experience to her. \",\"nodeType\":\"text\"}\n8329:[\"$832a\"]\n8327:{\"data\":\"$8328\",\"content\":\"$8329\",\"nodeType\":\"paragraph\"}\n832e:{}\n8331:{}\n8332:[]\n8330:{\"data\":\"$8331\",\"marks\":\"$8332\",\"value\":\"âPeople talk about giving money to hospitals they hear about on TV, and I want people to understand that supporting your local hospital"])</script>
1<script>self.__next_f.push([1," is important. To me, Childrenâs Health is the best hospital in the United States. The team here has been with us every step of this journey, in big and small ways,â Shannon said. âYou want to give to a place that supports the community, and Childrenâs Health does a great job of making sure that all children are taken care of.â \",\"nodeType\":\"text\"}\n832f:[\"$8330\"]\n832d:{\"data\":\"$832e\",\"content\":\"$832f\",\"nodeType\":\"paragraph\"}\n8334:{}\n8337:{}\n8338:[]\n8336:{\"data\":\"$8337\",\"marks\":\"$8338\",\"value\":\"Over Facetime, her principal presented Alexis with the Perseverance Award, which she was nominated for by her classmates, and recognized Alexis as an inspiration for positivity in the face of adversity. Alexis was then presented with her diploma and officially honored as a graduate of the Class of 2023. \",\"nodeType\":\"text\"}\n8335:[\"$8336\"]\n8333:{\"data\":\"$8334\",\"content\":\"$8335\",\"nodeType\":\"paragraph\"}\n833a:{}\n833d:{}\n833e:[]\n833c:{\"data\":\"$833d\",\"marks\":\"$833e\",\"value\":\"âWeâre so proud of you, Alexis. It makes my heart full as a principal to honor you in this way. You are the embodiment of everything we want our students to be,â Principal Keith Tolleson said. âThis is an extraordinary day for an extraordinary human being.â \",\"nodeType\":\"text\"}\n833b:[\"$833c\"]\n8339:{\"data\":\"$833a\",\"content\":\"$833b\",\"nodeType\":\"paragraph\"}\n8340:{}\n8343:{}\n8344:[]\n8342:{\"data\":\"$8343\",\"marks\":\"$8344\",\"value\":\"Family and school officials clad in paper gowns, gloves and masks cheered, as Alexis beamed. \",\"nodeType\":\"text\"}\n8341:[\"$8342\"]\n833f:{\"data\":\"$8340\",\"content\":\"$8341\",\"nodeType\":\"paragraph\"}\n8346:{}\n8349:{}\n834a:[]\n8348:{\"data\":\"$8349\",\"marks\":\"$834a\",\"value\":\"Her family knew that a bone marrow transplant would be hard â physically and mentally â but the last few weeks had been much harder than they imagined. For two months, Alexis and Shannon shared a room at Childrenâs Health. On good days, they attempted TikTok dances, and Shannon made laps around the hospital to give Alexis a break. \",\"nodeType\":\"text\"}\n8347:["])</script>
1<script>self.__next_f.push([1,"\"$8348\"]\n8345:{\"data\":\"$8346\",\"content\":\"$8347\",\"nodeType\":\"paragraph\"}\n834c:{}\n834d:[]\n834b:{\"data\":\"$834c\",\"content\":\"$834d\",\"nodeType\":\"embedded-entry-block\"}\n834f:{}\n8352:{}\n8353:[]\n8351:{\"data\":\"$8352\",\"marks\":\"$8353\",\"value\":\"On tougher days, Alexis spent weeks in bed with the lights out. To pass the time, she built figurines from LEGO toy bricks. She talked with nurses and Child Life specialists about the foods she was looking forward to eating again one day, shopping and the future. She played card games with team members. \",\"nodeType\":\"text\"}\n8350:[\"$8351\"]\n834e:{\"data\":\"$834f\",\"content\":\"$8350\",\"nodeType\":\"paragraph\"}\n8355:{}\n8358:{}\n8359:[]\n8357:{\"data\":\"$8358\",\"marks\":\"$8359\",\"value\":\"And she counted down the days until she could go home. \",\"nodeType\":\"text\"}\n8356:[\"$8357\"]\n8354:{\"data\":\"$8355\",\"content\":\"$8356\",\"nodeType\":\"paragraph\"}\n835b:{}\n835e:{}\n835f:[]\n835d:{\"data\":\"$835e\",\"marks\":\"$835f\",\"value\":\"June 2nd was the day. \",\"nodeType\":\"text\"}\n835c:[\"$835d\"]\n835a:{\"data\":\"$835b\",\"content\":\"$835c\",\"nodeType\":\"paragraph\"}\n8361:{}\n8364:{}\n8365:[]\n8363:{\"data\":\"$8364\",\"marks\":\"$8365\",\"value\":\"And for a second time, Alexis left Childrenâs Health to a cheering squad of nurses. \",\"nodeType\":\"text\"}\n8362:[\"$8363\"]\n8360:{\"data\":\"$8361\",\"content\":\"$8362\",\"nodeType\":\"paragraph\"}\n8367:{}\n836a:{}\n836b:[]\n8369:{\"data\":\"$836a\",\"marks\":\"$836b\",\"value\":\"âEveryone loves Alexis,â she said, grinning. \",\"nodeType\":\"text\"}\n8368:[\"$8369\"]\n8366:{\"data\":\"$8367\",\"content\":\"$8368\",\"nodeType\":\"paragraph\"}\n836d:{}\n8370:{}\n8372:{\"type\":\"italic\"}\n8371:[\"$8372\"]\n836f:{\"data\":\"$8370\",\"marks\":\"$8371\",\"value\":\"We tracked down 5 team members, whose faces represent the web of support surrounding Alexis at Childrenâs Health. \",\"nodeType\":\"text\"}\n836e:[\"$836f\"]\n836c:{\"data\":\"$836d\",\"content\":\"$836e\",\"nodeType\":\"paragraph\"}\n8374:{}\n8377:{}\n8378:[]\n8376:{\"data\":\"$8377\",\"marks\":\"$8378\",\"value\":\"Alexis calls the nurses, doctors and therapists who have cared for her the last couple of years her best friends. \",\"nodeType\":\"text\"}\n8375"])</script>
1<script>self.__next_f.push([1,":[\"$8376\"]\n8373:{\"data\":\"$8374\",\"content\":\"$8375\",\"nodeType\":\"paragraph\"}\n837a:{}\n837d:{}\n837e:[]\n837c:{\"data\":\"$837d\",\"marks\":\"$837e\",\"value\":\"They distracted the now-18-year-old with jokes and detailed conversations about how they preferred their burgers from In-N-Out, when she was undergoing chemotherapy at Childrenâs Medical Center Plano. \",\"nodeType\":\"text\"}\n837b:[\"$837c\"]\n8379:{\"data\":\"$837a\",\"content\":\"$837b\",\"nodeType\":\"paragraph\"}\n8380:{}\n8383:{}\n8384:[]\n8382:{\"data\":\"$8383\",\"marks\":\"$8384\",\"value\":\"After her cancer relapsed last December, they listened to music with her at her bedside and gossiped about reality television, while she underwent a more intensive round of treatment to wipe her system from the cancer before receiving a bone marrow transplant from her younger brother this spring. \",\"nodeType\":\"text\"}\n8381:[\"$8382\"]\n837f:{\"data\":\"$8380\",\"content\":\"$8381\",\"nodeType\":\"paragraph\"}\n8386:{}\n8389:{}\n838a:[]\n8388:{\"data\":\"$8389\",\"marks\":\"$838a\",\"value\":\"When she transferred in April to Childrenâs Medical Center Dallas for her transplant â spending months in isolation on the Bone Marrow Transplant unit with her mom, Shannon â they held her as she cried about missing her high school graduation and senior prom. \",\"nodeType\":\"text\"}\n8387:[\"$8388\"]\n8385:{\"data\":\"$8386\",\"content\":\"$8387\",\"nodeType\":\"paragraph\"}\n838c:{}\n838f:{}\n8390:[]\n838e:{\"data\":\"$838f\",\"marks\":\"$8390\",\"value\":\"And when her discharge day came in June, they decorated signs and even came to work on their day off to cheer for her as she headed home. \",\"nodeType\":\"text\"}\n838d:[\"$838e\"]\n838b:{\"data\":\"$838c\",\"content\":\"$838d\",\"nodeType\":\"paragraph\"}\n8392:{}\n8395:{}\n8396:[]\n8394:{\"data\":\"$8395\",\"marks\":\"$8396\",\"value\":\"These are their stories. \",\"nodeType\":\"text\"}\n8393:[\"$8394\"]\n8391:{\"data\":\"$8392\",\"content\":\"$8393\",\"nodeType\":\"paragraph\"}\n8398:{}\n8399:[]\n8397:{\"data\":\"$8398\",\"content\":\"$8399\",\"nodeType\":\"embedded-entry-block\"}\n839b:{}\n839e:{}\n839f:[]\n839d:{\"data\":\"$839e\",\"marks\":\"$839f\",\"value\":\"STEPHANIE CARADINE, RN, Gill Center for"])</script>
1<script>self.__next_f.push([1," Cancer and Blood Disorders at Childrenâs Health Medical Center Plano\",\"nodeType\":\"text\"}\n839c:[\"$839d\"]\n839a:{\"data\":\"$839b\",\"content\":\"$839c\",\"nodeType\":\"heading-3\"}\n83a1:{}\n83a4:{}\n83a5:[]\n83a3:{\"data\":\"$83a4\",\"marks\":\"$83a5\",\"value\":\"I truly believe laughter is the best medicine. That's always stuck in my head. So that's my goal â to get my kids to laugh or smile during my shift. \",\"nodeType\":\"text\"}\n83a2:[\"$83a3\"]\n83a0:{\"data\":\"$83a1\",\"content\":\"$83a2\",\"nodeType\":\"paragraph\"}\n83a7:{}\n83aa:{}\n83ab:[]\n83a9:{\"data\":\"$83aa\",\"marks\":\"$83ab\",\"value\":\"The first time I met Alexis, she was quiet and shy, but by my third shift, we were cutting up, laughing and pranking other nurses. Like, weâd hit the call light and order a cheeseburger and fries or something funny. \",\"nodeType\":\"text\"}\n83a8:[\"$83a9\"]\n83a6:{\"data\":\"$83a7\",\"content\":\"$83a8\",\"nodeType\":\"paragraph\"}\n83ad:{}\n83b0:{}\n83b1:[]\n83af:{\"data\":\"$83b0\",\"marks\":\"$83b1\",\"value\":\"When I found out that Alexis had relapsed it really hurt because it was such a prime time for her with prom and graduation, but I was glad that I would get to be there for her and help her get through it again. \",\"nodeType\":\"text\"}\n83ae:[\"$83af\"]\n83ac:{\"data\":\"$83ad\",\"content\":\"$83ae\",\"nodeType\":\"paragraph\"}\n83b3:{}\n83b6:{}\n83b7:[]\n83b5:{\"data\":\"$83b6\",\"marks\":\"$83b7\",\"value\":\"My favorite memory with Alexis is playing UNO with her on the night shift at the nursesâ station. We would tuck her mama in bed, and then she would come and hang out with us at the desk and play cards. \",\"nodeType\":\"text\"}\n83b4:[\"$83b5\"]\n83b2:{\"data\":\"$83b3\",\"content\":\"$83b4\",\"nodeType\":\"paragraph\"}\n83b9:{}\n83bc:{}\n83bd:[]\n83bb:{\"data\":\"$83bc\",\"marks\":\"$83bd\",\"value\":\"Donations make a difference because we're able to provide things for our patients that can help them forget they're in the hospital like toys, games, decorating their rooms and throwing them birthday parties. Those funds not only help us provide good care, but they help us let them be kids while they're in the hospital. \",\"nodeType\":\"text\"}\n83ba:"])</script>
1<script>self.__next_f.push([1,"[\"$83bb\"]\n83b8:{\"data\":\"$83b9\",\"content\":\"$83ba\",\"nodeType\":\"paragraph\"}\n83bf:{}\n83c0:[]\n83be:{\"data\":\"$83bf\",\"content\":\"$83c0\",\"nodeType\":\"embedded-entry-block\"}\n83c2:{}\n83c5:{}\n83c6:[]\n83c4:{\"data\":\"$83c5\",\"marks\":\"$83c6\",\"value\":\"ANNIE EADS, RN, Gill Center for Cancer and Blood Disorders at Childrenâs Health Medical Center Plano\",\"nodeType\":\"text\"}\n83c3:[\"$83c4\"]\n83c1:{\"data\":\"$83c2\",\"content\":\"$83c3\",\"nodeType\":\"heading-3\"}\n83c8:{}\n83cb:{}\n83cc:[]\n83ca:{\"data\":\"$83cb\",\"marks\":\"$83cc\",\"value\":\"Growing up, I enjoyed babysitting younger kids. I loved the movie Patch Adams, specifically the scene when he wore the red clown nose in the hospital. And when I was 14, my dad passed away from cancer. It was through all those events that led me to become a pediatric oncology nurse. I knew I wanted to be the person at the bedside, in the hospital, with the red clown nose, making kids laugh. \",\"nodeType\":\"text\"}\n83c9:[\"$83ca\"]\n83c7:{\"data\":\"$83c8\",\"content\":\"$83c9\",\"nodeType\":\"paragraph\"}\n83ce:{}\n83d1:{}\n83d2:[]\n83d0:{\"data\":\"$83d1\",\"marks\":\"$83d2\",\"value\":\"With Alexis's family, I enjoyed being there, talking to them and giving them something to do to distract them from being in the hospital. \",\"nodeType\":\"text\"}\n83cf:[\"$83d0\"]\n83cd:{\"data\":\"$83ce\",\"content\":\"$83cf\",\"nodeType\":\"paragraph\"}\n83d4:{}\n83d7:{}\n83d8:[]\n83d6:{\"data\":\"$83d7\",\"marks\":\"$83d8\",\"value\":\"Some of the things I remember about Alexis are her smile and positive attitude. \",\"nodeType\":\"text\"}\n83d5:[\"$83d6\"]\n83d3:{\"data\":\"$83d4\",\"content\":\"$83d5\",\"nodeType\":\"paragraph\"}\n83da:{}\n83dd:{}\n83de:[]\n83dc:{\"data\":\"$83dd\",\"marks\":\"$83de\",\"value\":\"I brought her mom and her a little charcuterie board tray one day, and they pulled out a bottle of sparkling grape juice, which cracked me up. They had all the little things to make it not feel like a hospital stay and make it fun.\",\"nodeType\":\"text\"}\n83db:[\"$83dc\"]\n83d9:{\"data\":\"$83da\",\"content\":\"$83db\",\"nodeType\":\"paragraph\"}\n83e0:{}\n83e1:[]\n83df:{\"data\":\"$83e0\",\"content\":\"$83e1\",\"nodeType\":\"embedded-entry-block\"}\n83e3:"])</script>
1<script>self.__next_f.push([1,"{}\n83e6:{}\n83e7:[]\n83e5:{\"data\":\"$83e6\",\"marks\":\"$83e7\",\"value\":\"KATHERINE SMALLING, Transplant Coordinator, Gill Center for Cancer and Blood Disorders at Childrenâs Medical Center Dallas\",\"nodeType\":\"text\"}\n83e4:[\"$83e5\"]\n83e2:{\"data\":\"$83e3\",\"content\":\"$83e4\",\"nodeType\":\"heading-3\"}\n83e9:{}\n83ec:{}\n83ed:[]\n83eb:{\"data\":\"$83ec\",\"marks\":\"$83ed\",\"value\":\"I help pediatric patients who have a diagnosis that requires them to get some kind of transplant. We do two types of transplants here. One is called an autologous transplant, where we take the patient's own stem cells, freeze them and then give them back after intense chemotherapy. The other one is where patients need a bone marrow transplant from a donor. Typically, those patients have a diagnosis where their bone marrow is either not making healthy cells, or it's not making enough cells. \\n\\nFor those patients, I help identify a donor for them. Before I met Alexis, I started looking into whether she had any matches with her siblings. When I found out she and her brother were a match, I called her mom, who was thrilled that she had matched with one of her siblings. \",\"nodeType\":\"text\"}\n83ea:[\"$83eb\"]\n83e8:{\"data\":\"$83e9\",\"content\":\"$83ea\",\"nodeType\":\"paragraph\"}\n83ef:{}\n83f2:{}\n83f3:[]\n83f1:{\"data\":\"$83f2\",\"marks\":\"$83f3\",\"value\":\"At the time, Alexis was in-patient at Childrenâs Medical Center Plano, so I drove from our Dallas campus, where the transplant would take place, to meet with Alexis in-person. We spent a couple of hours talking with her and her mom about the process â what a bone marrow transplant would be like for her and what it would be like for her brother. \",\"nodeType\":\"text\"}\n83f0:[\"$83f1\"]\n83ee:{\"data\":\"$83ef\",\"content\":\"$83f0\",\"nodeType\":\"paragraph\"}\n83f5:{}\n83f8:{}\n83f9:[]\n83f7:{\"data\":\"$83f8\",\"marks\":\"$83f9\",\"value\":\"All CCBD populations are in critical need of care, but bone marrow transplant patients have an extra level of complication in their care, and I feel very privileged to be a part of that journey. \",\"nodeType\":\"text\"}\n83f6:[\"$"])</script>
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1<script>self.__next_f.push([1,"paragraph\"}\n8416:{}\n8417:[]\n8415:{\"data\":\"$8416\",\"content\":\"$8417\",\"nodeType\":\"embedded-entry-block\"}\n8419:{}\n841c:{}\n841d:[]\n841b:{\"data\":\"$841c\",\"marks\":\"$841d\",\"value\":\"DIAMOND WRIGHT, RN, Gill Center for Cancer and Blood Disorders, Childrenâs Medical Center Dallas\",\"nodeType\":\"text\"}\n841a:[\"$841b\"]\n8418:{\"data\":\"$8419\",\"content\":\"$841a\",\"nodeType\":\"heading-3\"}\n841f:{}\n8422:{}\n8423:[]\n8421:{\"data\":\"$8422\",\"marks\":\"$8423\",\"value\":\"I always knew I wanted to work in hematology-oncology. I've had some family members that have struggled with cancer, and I felt like this was a good way to give back. \\n\\nWhen I met Alexis, she was at that point in her life when it was time for prom and graduation, and we had a lot in common â specifically food. We both like to watch cooking shows and eat. I wanted to support her because I knew she was missing out on spending time with her friends and big high school milestones. And it was important to me. \",\"nodeType\":\"text\"}\n8420:[\"$8421\"]\n841e:{\"data\":\"$841f\",\"content\":\"$8420\",\"nodeType\":\"paragraph\"}\n8425:{}\n8428:{}\n8429:[]\n8427:{\"data\":\"$8428\",\"marks\":\"$8429\",\"value\":\"I even picked up an extra day on the day that I knew she was going to be discharged from the hospital, so I could tell her goodbye and cheer her on with the rest of the team. I felt like we had a journey together. \",\"nodeType\":\"text\"}\n8426:[\"$8427\"]\n8424:{\"data\":\"$8425\",\"content\":\"$8426\",\"nodeType\":\"paragraph\"}\n842b:{}\n842e:{}\n842f:[]\n842d:{\"data\":\"$842e\",\"marks\":\"$842f\",\"value\":\"It felt so good to watch her walk through those doors because she worked so hard to go home, and there were so many barriers to her being able to leave. \",\"nodeType\":\"text\"}\n842c:[\"$842d\"]\n842a:{\"data\":\"$842b\",\"content\":\"$842c\",\"nodeType\":\"paragraph\"}\n8431:{}\n8434:{}\n8435:[]\n8433:{\"data\":\"$8434\",\"marks\":\"$8435\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n8437:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n843a:{}\n843b:[]\n8439:{\"data\":\"$843a\",\"marks\":\"$843b\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n8438:[\"$8439\"]\n8436:{\"dat"])</script>
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1<script>self.__next_f.push([1,", there was the ride to one hospital in her parentsâ car. Then, an ambulance ride to Childrenâs Health, where the image of her momâs tear-stained face is one of the few moments that remains clear in her memory.\",\"nodeType\":\"text\"}\n84c5:[\"$84c6\"]\n84c3:{\"data\":\"$84c4\",\"content\":\"$84c5\",\"nodeType\":\"paragraph\"}\n84ca:{}\n84cd:{}\n84ce:[]\n84cc:{\"data\":\"$84cd\",\"marks\":\"$84ce\",\"value\":\"Back then, Aarini didnât understand it was a severe asthma attack that landed her a stay in the Intensive Care Unit at Childrenâs Health for a week â and almost took her young life.\",\"nodeType\":\"text\"}\n84cb:[\"$84cc\"]\n84c9:{\"data\":\"$84ca\",\"content\":\"$84cb\",\"nodeType\":\"paragraph\"}\n84d0:{}\n84d3:{}\n84d4:[]\n84d2:{\"data\":\"$84d3\",\"marks\":\"$84d4\",\"value\":\"Today, sheâs surprisingly philosophical about her chronic condition, which used to force her to go to the nurseâs office during recess so she could pump medicine from her inhaler into her lungs and also prevented her from ever playing outside in the winter.\",\"nodeType\":\"text\"}\n84d1:[\"$84d2\"]\n84cf:{\"data\":\"$84d0\",\"content\":\"$84d1\",\"nodeType\":\"paragraph\"}\n84b0:[\"$84b1\",\"$84b7\",\"$84bd\",\"$84c3\",\"$84c9\",\"$84cf\"]\n84ae:{\"data\":\"$84af\",\"content\":\"$84b0\",\"nodeType\":\"document\"}\n84ad:{\"adminTitle\":\"Main Content: Aarini | Patient Ambassador\",\"headingLevel\":\"h2\",\"body\":\"$84ae\",\"contentAccordion\":\"Disabled\"}\n84a2:{\"metadata\":\"$84a3\",\"sys\":\"$84a6\",\"fields\":\"$84ad\"}\n84d7:[]\n84d8:[]\n84d6:{\"tags\":\"$84d7\",\"concepts\":\"$84d8\"}\n84db:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n84da:{\"sys\":\"$84db\"}\n84dd:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n84dc:{\"sys\":\"$84dd\"}\n84df:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n84de:{\"sys\":\"$84df\"}\n84d9:{\"space\":\"$84da\",\"id\":\"2OxFnENkaVPhBJ8UPotZt3\",\"type\":\"Entry\",\"createdAt\":\"2025-05-08T19:13:02.885Z\",\"updatedAt\":\"2026-01-29T22:28:01.243Z\",\"environment\":\"$84dc\",\"publishedVersion\":10,\"revision\":3,\"contentType\":\"$84de\",\"locale\":\"en-US\"}\n84e2:{}\n84e5:{}\n84e8:{}\n84e9:[]\n84e7:{\"data\":\"$84e8\",\"marks\":\"$84e9\",\"value\":\"Moving the focus from"])</script>
1<script>self.__next_f.push([1," me to others\",\"nodeType\":\"text\"}\n84e6:[\"$84e7\"]\n84e4:{\"data\":\"$84e5\",\"content\":\"$84e6\",\"nodeType\":\"heading-2\"}\n84eb:{}\n84ee:{}\n84ef:[]\n84ed:{\"data\":\"$84ee\",\"marks\":\"$84ef\",\"value\":\"Though Aarini says her asthma isnât as bad these days, she admits that there was a time last summer when she couldnât stop thinking about that scary asthma attack when she was in kindergarten. Her doctors at Childrenâs Health were the ones to finally diagnose her condition, after earlier trips to another hospital yielded no answers.\",\"nodeType\":\"text\"}\n84ec:[\"$84ed\"]\n84ea:{\"data\":\"$84eb\",\"content\":\"$84ec\",\"nodeType\":\"paragraph\"}\n84f1:{}\n84f2:[]\n84f0:{\"data\":\"$84f1\",\"content\":\"$84f2\",\"nodeType\":\"embedded-entry-block\"}\n84f4:{}\n84f7:{}\n84f8:[]\n84f6:{\"data\":\"$84f7\",\"marks\":\"$84f8\",\"value\":\"\",\"nodeType\":\"text\"}\n84f5:[\"$84f6\"]\n84f3:{\"data\":\"$84f4\",\"content\":\"$84f5\",\"nodeType\":\"paragraph\"}\n84e3:[\"$84e4\",\"$84ea\",\"$84f0\",\"$84f3\"]\n84e1:{\"data\":\"$84e2\",\"content\":\"$84e3\",\"nodeType\":\"document\"}\n84e0:{\"adminTitle\":\"Main Content: Aarini | Moving the focus from me to others\",\"heading\":\"Moving the focus from me to others\",\"headingLevel\":\"h2\",\"body\":\"$84e1\",\"contentAccordion\":\"Disabled\"}\n84d5:{\"metadata\":\"$84d6\",\"sys\":\"$84d9\",\"fields\":\"$84e0\"}\n84fb:[]\n84fc:[]\n84fa:{\"tags\":\"$84fb\",\"concepts\":\"$84fc\"}\n84ff:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n84fe:{\"sys\":\"$84ff\"}\n8501:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n8500:{\"sys\":\"$8501\"}\n8503:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n8502:{\"sys\":\"$8503\"}\n84fd:{\"space\":\"$84fe\",\"id\":\"5IoORedTx6IH0hulYSIKgj\",\"type\":\"Entry\",\"createdAt\":\"2025-05-08T19:15:13.396Z\",\"updatedAt\":\"2026-01-29T22:28:36.843Z\",\"environment\":\"$8500\",\"publishedVersion\":8,\"revision\":3,\"contentType\":\"$8502\",\"locale\":\"en-US\"}\n8506:{}\n8509:{}\n850c:{}\n850d:[]\n850b:{\"data\":\"$850c\",\"marks\":\"$850d\",\"value\":\"Understanding how small gestures make a big difference\",\"nodeType\":\"text\"}\n850a:[\"$850b\"]\n8508:{\"data\":\"$8509\",\"content\":\"$850a\",\"nodeType\":\"heading-2\"}\n850f:{}\n8512:{}\n8513:[]\n8511:{\"data\":\"$8512"])</script>
1<script>self.__next_f.push([1,"\",\"marks\":\"$8513\",\"value\":\"As Aarini thought about her ICU experience, she remembered the stuffed panda someone at Childrenâs Health gave her â still her favorite teddy bear. And, after the initial overwhelm of the emergency room and being hospitalized, just how nice the doctors and nurses were, including one who recommended she watch the movie, âTangledâ â a favorite to this day.\",\"nodeType\":\"text\"}\n8510:[\"$8511\"]\n850e:{\"data\":\"$850f\",\"content\":\"$8510\",\"nodeType\":\"paragraph\"}\n8515:{}\n8516:[]\n8514:{\"data\":\"$8515\",\"content\":\"$8516\",\"nodeType\":\"embedded-entry-block\"}\n8518:{}\n851b:{}\n851c:[]\n851a:{\"data\":\"$851b\",\"marks\":\"$851c\",\"value\":\"\\nâI came to trust and feel at home there,â she said. âLooking back, I see that itâs the small gestures that people do in life that make the difference.â\",\"nodeType\":\"text\"}\n8519:[\"$851a\"]\n8517:{\"data\":\"$8518\",\"content\":\"$8519\",\"nodeType\":\"paragraph\"}\n851e:{}\n8521:{}\n8522:[]\n8520:{\"data\":\"$8521\",\"marks\":\"$8522\",\"value\":\"So, in an effort to give back for the compassionate, lifesaving care she received at Childrenâs Health, longtime artist Aarini started painting. First, she painted a really big Golden Retriever in honor of the new pet \",\"nodeType\":\"text\"}\n8524:{\"uri\":\"https://give.childrens.com/about-us/news/articles/therapy-dogs\"}\n8527:{}\n8528:[]\n8526:{\"data\":\"$8527\",\"marks\":\"$8528\",\"value\":\"therapy dog\",\"nodeType\":\"text\"}\n8525:[\"$8526\"]\n8523:{\"data\":\"$8524\",\"content\":\"$8525\",\"nodeType\":\"hyperlink\"}\n852a:{}\n852b:[]\n8529:{\"data\":\"$852a\",\"marks\":\"$852b\",\"value\":\" at Childrenâs Medical Center Plano. Then, she drew the hospitalâs Story Tree in the hope of calming patients.\",\"nodeType\":\"text\"}\n851f:[\"$8520\",\"$8523\",\"$8529\"]\n851d:{\"data\":\"$851e\",\"content\":\"$851f\",\"nodeType\":\"paragraph\"}\n852d:{}\n8530:{}\n8531:[]\n852f:{\"data\":\"$8530\",\"marks\":\"$8531\",\"value\":\"Childrenâs Health staff members printed both paintings on cards that caregivers use to write encouraging notes to families upon their childâs discharge.\",\"nodeType\":\"text\"}\n852e:[\"$852f\"]\n852c:{\"data\":\"$852d\""])</script>
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1<script>self.__next_f.push([1," and gastronomy button. Ava showed her classmates how she gets her nutrition through a backpack that she carries it in. The full-time nurse who accompanies Ava to school also helps answer questions from others.\",\"nodeType\":\"text\"}\n8681:[\"$8682\"]\n867f:{\"data\":\"$8680\",\"content\":\"$8681\",\"nodeType\":\"paragraph\"}\n8686:{}\n8689:{}\n868a:[]\n8688:{\"data\":\"$8689\",\"marks\":\"$868a\",\"value\":\"âSometimes I just tell people âItâs a long story. Itâs a medical thing,ââ said Ava, who is thankful to have a friend who lives 10 minutes away, is the same age and has the same, very rare condition. âWhen I tell her I have to do something â like hook up my IV nutrition â she just says âOK, Iâll waitâ. Itâs nice to not always have to explain.â\",\"nodeType\":\"text\"}\n8687:[\"$8688\"]\n8685:{\"data\":\"$8686\",\"content\":\"$8687\",\"nodeType\":\"paragraph\"}\n8663:[\"$8664\",\"$866a\",\"$866d\",\"$8673\",\"$8679\",\"$867f\",\"$8685\"]\n8661:{\"data\":\"$8662\",\"content\":\"$8663\",\"nodeType\":\"document\"}\n8660:{\"adminTitle\":\"Main Content: Ava | Navigating a (mostly) normal life\",\"heading\":\"Navigating a (mostly) normal life under extraordinary circumstances\",\"headingLevel\":\"h2\",\"body\":\"$8661\",\"contentAccordion\":\"Disabled\"}\n8655:{\"metadata\":\"$8656\",\"sys\":\"$8659\",\"fields\":\"$8660\"}\n868d:[]\n868e:[]\n868c:{\"tags\":\"$868d\",\"concepts\":\"$868e\"}\n8691:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n8690:{\"sys\":\"$8691\"}\n8693:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n8692:{\"sys\":\"$8693\"}\n8695:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n8694:{\"sys\":\"$8695\"}\n868f:{\"space\":\"$8690\",\"id\":\"2SrhafWA2kKiFMw9m9KPOe\",\"type\":\"Entry\",\"createdAt\":\"2025-05-08T15:50:46.118Z\",\"updatedAt\":\"2026-01-29T22:20:06.258Z\",\"environment\":\"$8692\",\"publishedVersion\":8,\"revision\":3,\"contentType\":\"$8694\",\"locale\":\"en-US\"}\n8698:{}\n869b:{}\n869e:{}\n869f:[]\n869d:{\"data\":\"$869e\",\"marks\":\"$869f\",\"value\":\"Focused on today, with an eye on the future\",\"nodeType\":\"text\"}\n869c:[\"$869d\"]\n869a:{\"data\":\"$869b\",\"content\":\"$869c\",\"nodeType\":\"heading-2\"}\n86a1:{}\n86a4:{}\n86a5:[]\n86a3:{\""])</script>
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1<script>self.__next_f.push([1,"âAnd I remember asking, âWhy did you choose this? Why did you choose oncology?â And she said, âBecause of the relationship weâre going to have.â\",\"nodeType\":\"text\"}\n8781:[\"$8782\"]\n877f:{\"data\":\"$8780\",\"content\":\"$8781\",\"nodeType\":\"paragraph\"}\n8786:{}\n8789:{}\n878a:[]\n8788:{\"data\":\"$8789\",\"marks\":\"$878a\",\"value\":\"I didn't know it then because I wasn't expecting to become great friends with a doctor at that moment, but she was so right. She became just such an important part of our family.â\",\"nodeType\":\"text\"}\n8787:[\"$8788\"]\n8785:{\"data\":\"$8786\",\"content\":\"$8787\",\"nodeType\":\"paragraph\"}\n878c:{}\n878f:{}\n8790:[]\n878e:{\"data\":\"$878f\",\"marks\":\"$8790\",\"value\":\"***\",\"nodeType\":\"text\"}\n878d:[\"$878e\"]\n878b:{\"data\":\"$878c\",\"content\":\"$878d\",\"nodeType\":\"paragraph\"}\n8792:{}\n8795:{}\n8796:[]\n8794:{\"data\":\"$8795\",\"marks\":\"$8796\",\"value\":\"For more than two years, Dr. Chelsee Greer, Pediatric Hematologist/Oncologist in the Pauline Gill Center for Cancer and Blood Disorders at Childrenâs Health and Assistant Professor at UT Southwestern Medical Center, has guided Hank and his family through a cancer journey full of twists and turns.\",\"nodeType\":\"text\"}\n8793:[\"$8794\"]\n8791:{\"data\":\"$8792\",\"content\":\"$8793\",\"nodeType\":\"paragraph\"}\n8798:{}\n879b:{}\n879c:[]\n879a:{\"data\":\"$879b\",\"marks\":\"$879c\",\"value\":\"Diagnosed in July 2020 with rhabdomyosarcoma, a rare type of cancer that forms in soft tissue, Hank (who goes by Hanky) had developed a softball-sized tumor in his abdomen that was pushing on other organs.\",\"nodeType\":\"text\"}\n8799:[\"$879a\"]\n8797:{\"data\":\"$8798\",\"content\":\"$8799\",\"nodeType\":\"paragraph\"}\n879e:{}\n879f:[]\n879d:{\"data\":\"$879e\",\"content\":\"$879f\",\"nodeType\":\"embedded-entry-block\"}\n87a1:{}\n87a4:{}\n87a5:[]\n87a3:{\"data\":\"$87a4\",\"marks\":\"$87a5\",\"value\":\"Because of the location, surgery wasnât a viable option. And his chemotherapy treatment wasnât routine, involving other specialties including gastroenterology and urology to help with side effects from the therapy that began to hurt his liver and cause his stomach to"])</script>
1<script>self.__next_f.push([1," swell.\",\"nodeType\":\"text\"}\n87a2:[\"$87a3\"]\n87a0:{\"data\":\"$87a1\",\"content\":\"$87a2\",\"nodeType\":\"paragraph\"}\n87a7:{}\n87aa:{}\n87ab:[]\n87a9:{\"data\":\"$87aa\",\"marks\":\"$87ab\",\"value\":\"A fellow pediatric cancer survivor, Dr. Greer was determined to find a solution as Hankâs body developed uncommon reactions to the treatment.\",\"nodeType\":\"text\"}\n87a8:[\"$87a9\"]\n87a6:{\"data\":\"$87a7\",\"content\":\"$87a8\",\"nodeType\":\"paragraph\"}\n87ad:{}\n87b0:{}\n87b1:[]\n87af:{\"data\":\"$87b0\",\"marks\":\"$87b1\",\"value\":\"âShe was always honest with me when it was bad news, but she also always had a plan. And that made me feel confident in her and Childrenâs Health,â Molly said.\",\"nodeType\":\"text\"}\n87ae:[\"$87af\"]\n87ac:{\"data\":\"$87ad\",\"content\":\"$87ae\",\"nodeType\":\"paragraph\"}\n87b3:{}\n87b6:{}\n87b7:[]\n87b5:{\"data\":\"$87b6\",\"marks\":\"$87b7\",\"value\":\"A leader in patient care, treatment, research and training in pediatric oncology and hematology, the Gill Center brings national and international expertise through its affiliation with UT Southwestern and the Harold C. Simmons Cancer Center, setting it apart from other sites for pediatric cancer care in the region.\",\"nodeType\":\"text\"}\n87b4:[\"$87b5\"]\n87b2:{\"data\":\"$87b3\",\"content\":\"$87b4\",\"nodeType\":\"paragraph\"}\n87b9:{}\n87bc:{}\n87bd:[]\n87bb:{\"data\":\"$87bc\",\"marks\":\"$87bd\",\"value\":\"From common blood disorders, such as sickle cell anemia, to the rarest forms of cancer such as Hankâs, the Gill Center continues to offer comprehensive evaluations, innovative treatments, long-term care and access to the latest clinical trials. \",\"nodeType\":\"text\"}\n87ba:[\"$87bb\"]\n87b8:{\"data\":\"$87b9\",\"content\":\"$87ba\",\"nodeType\":\"paragraph\"}\n87bf:{}\n87c2:{}\n87c3:[]\n87c1:{\"data\":\"$87c2\",\"marks\":\"$87c3\",\"value\":\"âWith a cancer diagnosis, you automatically wonder, âAre we in the best place?â This particular cancer was not an easy one to fight, but we felt confident in the team,â Molly said. âThere are times you start questioning yourself, but I never doubted them.â \",\"nodeType\":\"text\"}\n87c0:[\"$87c1\"]\n87be:{\"data\":\"$87bf"])</script>
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1<script>self.__next_f.push([1,"e4\",\"value\":\"These programs -- which provide coping strategies and help make life easier for those experiencing the unthinkable -- come at no cost to our families. And thatâs because of philanthropic efforts that sustain and grow these special programs. \",\"nodeType\":\"text\"}\n87e1:[\"$87e2\"]\n87df:{\"data\":\"$87e0\",\"content\":\"$87e1\",\"nodeType\":\"paragraph\"}\n87e6:{}\n87e9:{}\n87ea:[]\n87e8:{\"data\":\"$87e9\",\"marks\":\"$87ea\",\"value\":\"Philanthropic gifts and resources have been and will continue to be crucial to the advancement of the Gill Center, supporting clinical and research excellence, along with top-notch support programs for our patients and families. \",\"nodeType\":\"text\"}\n87e7:[\"$87e8\"]\n87e5:{\"data\":\"$87e6\",\"content\":\"$87e7\",\"nodeType\":\"paragraph\"}\n87ec:{}\n87ef:{}\n87f0:[]\n87ee:{\"data\":\"$87ef\",\"marks\":\"$87f0\",\"value\":\"âWe couldnât have done this journey without our nurses and Child Life team members. The people in the Gill Center are special humans. They did so many things for us that were beyond their job descriptions,â Molly said. âThey were always there to help and answer your questions. Hank developed very special relationships with the people there.â\",\"nodeType\":\"text\"}\n87ed:[\"$87ee\"]\n87eb:{\"data\":\"$87ec\",\"content\":\"$87ed\",\"nodeType\":\"paragraph\"}\n87f2:{}\n87f5:{}\n87f6:[]\n87f4:{\"data\":\"$87f5\",\"marks\":\"$87f6\",\"value\":\"***\",\"nodeType\":\"text\"}\n87f3:[\"$87f4\"]\n87f1:{\"data\":\"$87f2\",\"content\":\"$87f3\",\"nodeType\":\"paragraph\"}\n87f8:{}\n87fb:{}\n87fc:[]\n87fa:{\"data\":\"$87fb\",\"marks\":\"$87fc\",\"value\":\"More than a year ago, Hank finished his last round of chemotherapy. Team members celebrated the milestone with a Spiderman-themed party full of superhero costumes and a banner that read âPeace Out Chemo.â\",\"nodeType\":\"text\"}\n87f9:[\"$87fa\"]\n87f7:{\"data\":\"$87f8\",\"content\":\"$87f9\",\"nodeType\":\"paragraph\"}\n87fe:{}\n8801:{}\n8802:[]\n8800:{\"data\":\"$8801\",\"marks\":\"$8802\",\"value\":\"Now, Hank has a head of brown hair and continues to regularly visit the Gill Center for check-ups with Dr. Greer.\",\"nodeType\":\"text\"}\n87ff:[\"$8800\"]\n87fd:"])</script>
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1<script>self.__next_f.push([1,"h\"}\n8caa:{}\n8cab:[]\n8ca9:{\"data\":\"$8caa\",\"content\":\"$8cab\",\"nodeType\":\"embedded-entry-block\"}\n8cad:{}\n8cb0:{}\n8cb1:[]\n8caf:{\"data\":\"$8cb0\",\"marks\":\"$8cb1\",\"value\":\"Dr. Campbell and his fellow physicians had never seen this type of cancer not respond â even if only temporarily â to treatment, and he was worried.\",\"nodeType\":\"text\"}\n8cae:[\"$8caf\"]\n8cac:{\"data\":\"$8cad\",\"content\":\"$8cae\",\"nodeType\":\"paragraph\"}\n8cb3:{}\n8cb6:{}\n8cb7:[]\n8cb5:{\"data\":\"$8cb6\",\"marks\":\"$8cb7\",\"value\":\"He knew at this point there were few chances for a cure and not many options to offer the family.\",\"nodeType\":\"text\"}\n8cb4:[\"$8cb5\"]\n8cb2:{\"data\":\"$8cb3\",\"content\":\"$8cb4\",\"nodeType\":\"paragraph\"}\n8cb9:{}\n8cbc:{}\n8cbd:[]\n8cbb:{\"data\":\"$8cbc\",\"marks\":\"$8cbd\",\"value\":\"âLincoln is here despite the odds, and itâs incredible,â Dr. Campbell said. âBut I have other patients whose cancers come back or donât respond, and they canât be removed. In those cases, we really have no options.â\",\"nodeType\":\"text\"}\n8cba:[\"$8cbb\"]\n8cb8:{\"data\":\"$8cb9\",\"content\":\"$8cba\",\"nodeType\":\"paragraph\"}\n8cbf:{}\n8cc2:{}\n8cc3:[]\n8cc1:{\"data\":\"$8cc2\",\"marks\":\"$8cc3\",\"value\":\"***\",\"nodeType\":\"text\"}\n8cc0:[\"$8cc1\"]\n8cbe:{\"data\":\"$8cbf\",\"content\":\"$8cc0\",\"nodeType\":\"paragraph\"}\n8cc5:{}\n8cc8:{}\n8cc9:[]\n8cc7:{\"data\":\"$8cc8\",\"marks\":\"$8cc9\",\"value\":\"The moment when Lincolnâs tumor grew â so big that he couldnât breathe through his mouth and struggled to breathe through his nose -- was one of the scariest for Lincolnâs parents, Shelly and Chris.\",\"nodeType\":\"text\"}\n8cc6:[\"$8cc7\"]\n8cc4:{\"data\":\"$8cc5\",\"content\":\"$8cc6\",\"nodeType\":\"paragraph\"}\n8ccb:{}\n8cce:{}\n8ccf:[]\n8ccd:{\"data\":\"$8cce\",\"marks\":\"$8ccf\",\"value\":\"âThat was a real punch in the gut,â Chris said. âHeâd look up at us, as if he was saying, âHelp me,â and we were doing everything we could to fight this.â\",\"nodeType\":\"text\"}\n8ccc:[\"$8ccd\"]\n8cca:{\"data\":\"$8ccb\",\"content\":\"$8ccc\",\"nodeType\":\"paragraph\"}\n8cd1:{}\n8cd2:[]\n8cd0:{\"data\":\"$8cd1\",\"content\":\"$8cd2\",\"nodeType\":\"embedded-entry-blo"])</script>
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1<script>self.__next_f.push([1,"riately to their first round of therapy or whose cancers have relapsed.\",\"nodeType\":\"text\"}\n8cf6:[\"$8cf7\"]\n8cf4:{\"data\":\"$8cf5\",\"content\":\"$8cf6\",\"nodeType\":\"paragraph\"}\n8cfb:{}\n8cfe:{}\n8cff:[]\n8cfd:{\"data\":\"$8cfe\",\"marks\":\"$8cff\",\"value\":\"âCompared to about 40 or 50 years ago, we've made a lot of advances in our ability to cure children with cancer,â Dr. Campbell said. âUnfortunately for some children, we have very few, and in some cases, no good treatment options for them. I feel strongly that this is not adequate, and we need to do better.â\",\"nodeType\":\"text\"}\n8cfc:[\"$8cfd\"]\n8cfa:{\"data\":\"$8cfb\",\"content\":\"$8cfc\",\"nodeType\":\"paragraph\"}\n8d01:{}\n8d04:{}\n8d05:[]\n8d03:{\"data\":\"$8d04\",\"marks\":\"$8d05\",\"value\":\"Dr. Campbellâs trial will utilize new drugs called immune checkpoint inhibitors, which leans on a discovery that a patientâs immune system can work to fight the cancer and the inhibitor blocks the tumorâs ability to fight back. Itâs a medication that has been successful in treating adult cancer patients, but when applied alone, it has not worked in children.\",\"nodeType\":\"text\"}\n8d02:[\"$8d03\"]\n8d00:{\"data\":\"$8d01\",\"content\":\"$8d02\",\"nodeType\":\"paragraph\"}\n8d07:{}\n8d0a:{}\n8d0b:[]\n8d09:{\"data\":\"$8d0a\",\"marks\":\"$8d0b\",\"value\":\"Knowing this, Dr. Campbell will combine these checkpoint inhibitors with chemotherapy to make the tumor more susceptible to the patientâs immune system working to fight off the cancer and handcuff its ability to resist.\",\"nodeType\":\"text\"}\n8d08:[\"$8d09\"]\n8d06:{\"data\":\"$8d07\",\"content\":\"$8d08\",\"nodeType\":\"paragraph\"}\n8d0d:{}\n8d0e:[]\n8d0c:{\"data\":\"$8d0d\",\"content\":\"$8d0e\",\"nodeType\":\"embedded-entry-block\"}\n8d10:{}\n8d13:{}\n8d14:[]\n8d12:{\"data\":\"$8d13\",\"marks\":\"$8d14\",\"value\":\"âItâs taking care of Lincoln and patients like this that really fuels me to do this research; to have these types of clinical trials; to be able to offer our families something that I really believe can help them,â Dr. Campbell said. âAnd to be able to offer them some hope.â\",\"nodeType\":\"text\"}"])</script>
1<script>self.__next_f.push([1,"\n8d11:[\"$8d12\"]\n8d0f:{\"data\":\"$8d10\",\"content\":\"$8d11\",\"nodeType\":\"paragraph\"}\n8d16:{}\n8d19:{}\n8d1a:[]\n8d18:{\"data\":\"$8d19\",\"marks\":\"$8d1a\",\"value\":\"The study is supported by donations to Childrenâs Health, including a grant from Childrenâs Cancer Fund, which helps fund innovative research studies in the Pauline Allen Gill Center for Cancer and Blood Disorders.\",\"nodeType\":\"text\"}\n8d17:[\"$8d18\"]\n8d15:{\"data\":\"$8d16\",\"content\":\"$8d17\",\"nodeType\":\"paragraph\"}\n8d1c:{}\n8d1f:{}\n8d20:[]\n8d1e:{\"data\":\"$8d1f\",\"marks\":\"$8d20\",\"value\":\"Donations like this are critical to the advancement of the Gill Center to support investments in research so that Childrenâs Health can continue to offer the best treatment options for patients like Lincoln with cancer and blood disorders.\",\"nodeType\":\"text\"}\n8d1d:[\"$8d1e\"]\n8d1b:{\"data\":\"$8d1c\",\"content\":\"$8d1d\",\"nodeType\":\"paragraph\"}\n8d22:{}\n8d25:{}\n8d26:[]\n8d24:{\"data\":\"$8d25\",\"marks\":\"$8d26\",\"value\":\"Earlier this year, Lincoln rang the bell at Childrenâs Medical Center Plano, signaling the end of his cancer treatment. And for the first time in a long time, his parents breathed a sigh of relief.\",\"nodeType\":\"text\"}\n8d23:[\"$8d24\"]\n8d21:{\"data\":\"$8d22\",\"content\":\"$8d23\",\"nodeType\":\"paragraph\"}\n8d28:{}\n8d2b:{}\n8d2c:[]\n8d2a:{\"data\":\"$8d2b\",\"marks\":\"$8d2c\",\"value\":\"âWhen that day came, it almost didnât feel real. There were moments when I didnât know if we would reach this point,â Shelly said. âI thought I was going to be really emotional that day, but instead, I felt at peace.â\",\"nodeType\":\"text\"}\n8d29:[\"$8d2a\"]\n8d27:{\"data\":\"$8d28\",\"content\":\"$8d29\",\"nodeType\":\"paragraph\"}\n8d2e:{}\n8d31:{}\n8d32:[]\n8d30:{\"data\":\"$8d31\",\"marks\":\"$8d32\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n8d34:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n8d37:{}\n8d38:[]\n8d36:{\"data\":\"$8d37\",\"marks\":\"$8d38\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\n8d35:[\"$8d36\"]\n8d33:{\"data\":\"$8d34\",\"content\":\"$8d35\",\"nodeType\":\"hyperlink\"}\n8d3a:{}\n8d3b:[]\n8d39:{\"data\":\"$8d3a\",\"marks\":\"$8d3b\",\"value\":\""])</script>
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1<script>self.__next_f.push([1,"s Cancer Center brings national and international expertise, which sets the Gill Center apart from other sites for pediatric cancer care in the region. From common blood disorders, such as sickle cell anemia, to the rarest forms of cancer, the Gill Center continues to offer comprehensive evaluations, innovative treatments, long-term care, and access to the latest clinical trials.\",\"nodeType\":\"text\"}\n8d53:[\"$8d54\"]\n8d51:{\"data\":\"$8d52\",\"content\":\"$8d53\",\"nodeType\":\"paragraph\"}\n8d58:{}\n8d5b:{}\n8d5c:[]\n8d5a:{\"data\":\"$8d5b\",\"marks\":\"$8d5c\",\"value\":\"Last year, the Gill Center served more than 6,000 patients, including nearly 750 new patients; grew the After Cancer Experience program to more than 3,000 pediatric cancer survivors; and saw an increase in sickle cell disease patients, stem cell transplants, and outpatient unit visits.\",\"nodeType\":\"text\"}\n8d59:[\"$8d5a\"]\n8d57:{\"data\":\"$8d58\",\"content\":\"$8d59\",\"nodeType\":\"paragraph\"}\n8d5e:{}\n8d61:{}\n8d62:[]\n8d60:{\"data\":\"$8d61\",\"marks\":\"$8d62\",\"value\":\"Patients, like Lincoln, and their families continued to receive incredible psychosocial support through dedicated programs like child life, social work, spiritual care, language interpretation and more, made possible thanks to philanthropic support. Additionally, the Plano campus expansion, which includes an increase in cancer and blood disorder services and specialties to better serve children and families north of Dallas closer to home, continues to see tremendous momentum and support from our community.\",\"nodeType\":\"text\"}\n8d5f:[\"$8d60\"]\n8d5d:{\"data\":\"$8d5e\",\"content\":\"$8d5f\",\"nodeType\":\"paragraph\"}\n8d64:{}\n8d67:{}\n8d68:[]\n8d66:{\"data\":\"$8d67\",\"marks\":\"$8d68\",\"value\":\"Because many of our UTSW physicians actively research and hold leadership positions within the national research community, we are able to study, access, and offer the very best treatment options for cancer and blood disorders. Philanthropy continued to sustain and help grow more than 200 active clinical research trials that help improve the understanding, pre"])</script>
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1<script>self.__next_f.push([1,"t\"}\n8e84:[\"$8e85\"]\n8e82:{\"data\":\"$8e83\",\"content\":\"$8e84\",\"nodeType\":\"paragraph\"}\n8e89:{}\n8e8c:{}\n8e8d:[]\n8e8b:{\"data\":\"$8e8c\",\"marks\":\"$8e8d\",\"value\":\"***\",\"nodeType\":\"text\"}\n8e8a:[\"$8e8b\"]\n8e88:{\"data\":\"$8e89\",\"content\":\"$8e8a\",\"nodeType\":\"paragraph\"}\n8e8f:{}\n8e92:{}\n8e93:[]\n8e91:{\"data\":\"$8e92\",\"marks\":\"$8e93\",\"value\":\"Davi stood centerstage against a greenscreen in a studio space at Childrenâs Health, swaying back and forth in a floor-length blue satin dress that revealed a red scar down the center of her chest.\",\"nodeType\":\"text\"}\n8e90:[\"$8e91\"]\n8e8e:{\"data\":\"$8e8f\",\"content\":\"$8e90\",\"nodeType\":\"paragraph\"}\n8e95:{}\n8e96:[]\n8e94:{\"data\":\"$8e95\",\"content\":\"$8e96\",\"nodeType\":\"embedded-entry-block\"}\n8e98:{}\n8e9b:{}\n8e9c:[]\n8e9a:{\"data\":\"$8e9b\",\"marks\":\"$8e9c\",\"value\":\"âI just want to thank the doctors and nurses for taking care of me and getting well,â Davi said to the camera in Seacrest Studios â an interactive space highlighting radio and television inside Childrenâs Medical Center Dallas.\",\"nodeType\":\"text\"}\n8e99:[\"$8e9a\"]\n8e97:{\"data\":\"$8e98\",\"content\":\"$8e99\",\"nodeType\":\"paragraph\"}\n8e9e:{}\n8ea1:{}\n8ea2:[]\n8ea0:{\"data\":\"$8ea1\",\"marks\":\"$8ea2\",\"value\":\"Now 6 years old, Davi has had four open heart surgeries, one bowel surgery and more than 20 other procedures at Childrenâs Health.\",\"nodeType\":\"text\"}\n8e9f:[\"$8ea0\"]\n8e9d:{\"data\":\"$8e9e\",\"content\":\"$8e9f\",\"nodeType\":\"paragraph\"}\n8ea4:{}\n8ea7:{}\n8ea8:[]\n8ea6:{\"data\":\"$8ea7\",\"marks\":\"$8ea8\",\"value\":\"She had her first surgery at three months old and spent more than 100 nights in the hospital during her first year of life.\",\"nodeType\":\"text\"}\n8ea5:[\"$8ea6\"]\n8ea3:{\"data\":\"$8ea4\",\"content\":\"$8ea5\",\"nodeType\":\"paragraph\"}\n8eaa:{}\n8ead:{}\n8eae:[]\n8eac:{\"data\":\"$8ead\",\"marks\":\"$8eae\",\"value\":\"And through it all, Davi hasnât stopped singing and dancing.\",\"nodeType\":\"text\"}\n8eab:[\"$8eac\"]\n8ea9:{\"data\":\"$8eaa\",\"content\":\"$8eab\",\"nodeType\":\"paragraph\"}\n8eb0:{}\n8eb3:{}\n8eb4:[]\n8eb2:{\"data\":\"$8eb3\",\"marks\":\"$8eb4\",\"value\":\"She loves to perform, sometimes beltin"])</script>
1<script>self.__next_f.push([1,"g chords to Broadway musicals like Hamilton and Wicked into a plastic microphone from her hospital bed, as a music therapist sat next to her playing along with the ukulele.\",\"nodeType\":\"text\"}\n8eb1:[\"$8eb2\"]\n8eaf:{\"data\":\"$8eb0\",\"content\":\"$8eb1\",\"nodeType\":\"paragraph\"}\n8eb6:{}\n8eb9:{}\n8eba:[]\n8eb8:{\"data\":\"$8eb9\",\"marks\":\"$8eba\",\"value\":\"For Davi, music was an escape outside the hospitalâs walls.\",\"nodeType\":\"text\"}\n8eb7:[\"$8eb8\"]\n8eb5:{\"data\":\"$8eb6\",\"content\":\"$8eb7\",\"nodeType\":\"paragraph\"}\n8ebc:{}\n8ebf:{}\n8ec0:[]\n8ebe:{\"data\":\"$8ebf\",\"marks\":\"$8ec0\",\"value\":\"As a baby, nurses coaxed big belly laughs and gummy smiles when they sang to her.\",\"nodeType\":\"text\"}\n8ebd:[\"$8ebe\"]\n8ebb:{\"data\":\"$8ebc\",\"content\":\"$8ebd\",\"nodeType\":\"paragraph\"}\n8ec2:{}\n8ec5:{}\n8ec6:[]\n8ec4:{\"data\":\"$8ec5\",\"marks\":\"$8ec6\",\"value\":\"Later, she performed musical numbers broadcast to fellow patientsâ rooms in Seacrest Studios. Cords from her IV pole dangled by her side, as she smiled into the camera wearing a tiara and green satin gloves.\",\"nodeType\":\"text\"}\n8ec3:[\"$8ec4\"]\n8ec1:{\"data\":\"$8ec2\",\"content\":\"$8ec3\",\"nodeType\":\"paragraph\"}\n8ec8:{}\n8ecb:{}\n8ecc:[]\n8eca:{\"data\":\"$8ecb\",\"marks\":\"$8ecc\",\"value\":\"And then there was the rap musical performance in the blue satin dress.\",\"nodeType\":\"text\"}\n8ec9:[\"$8eca\"]\n8ec7:{\"data\":\"$8ec8\",\"content\":\"$8ec9\",\"nodeType\":\"paragraph\"}\n8ece:{}\n8ed1:{}\n8ed2:[]\n8ed0:{\"data\":\"$8ed1\",\"marks\":\"$8ed2\",\"value\":\"âWhat song are you going to sing for us today?â the studio manager asked Davi.\",\"nodeType\":\"text\"}\n8ecf:[\"$8ed0\"]\n8ecd:{\"data\":\"$8ece\",\"content\":\"$8ecf\",\"nodeType\":\"paragraph\"}\n8ed4:{}\n8ed7:{}\n8ed8:[]\n8ed6:{\"data\":\"$8ed7\",\"marks\":\"$8ed8\",\"value\":\"âIâm going to sing Hamilton,â said Davi as she swooshed her dress back and forth and swung to âThe Schuyler Sistersâ song.\",\"nodeType\":\"text\"}\n8ed5:[\"$8ed6\"]\n8ed3:{\"data\":\"$8ed4\",\"content\":\"$8ed5\",\"nodeType\":\"paragraph\"}\n8eda:{}\n8edd:{}\n8ede:[]\n8edc:{\"data\":\"$8edd\",\"marks\":\"$8ede\",\"value\":\"âOpportunities like this give Davi something to look fo"])</script>
1<script>self.__next_f.push([1,"rward to during her time in the hospital,â Staci said. âThe doctors are wonderful, but I think the world of the Child Life specialists, the nurses and pet therapy dogs. They all play a vital role in Daviâs recovery and her mental health.â\",\"nodeType\":\"text\"}\n8edb:[\"$8edc\"]\n8ed9:{\"data\":\"$8eda\",\"content\":\"$8edb\",\"nodeType\":\"paragraph\"}\n8ee0:{}\n8ee3:{}\n8ee4:[]\n8ee2:{\"data\":\"$8ee3\",\"marks\":\"$8ee4\",\"value\":\"***\",\"nodeType\":\"text\"}\n8ee1:[\"$8ee2\"]\n8edf:{\"data\":\"$8ee0\",\"content\":\"$8ee1\",\"nodeType\":\"paragraph\"}\n8ee6:{}\n8ee9:{}\n8eea:[]\n8ee8:{\"data\":\"$8ee9\",\"marks\":\"$8eea\",\"value\":\"Not even a year old, Davi met her first \",\"nodeType\":\"text\"}\n8eec:{\"uri\":\"https://give.childrens.com/about-us/news/articles/therapy-dogs\"}\n8eef:{}\n8ef0:[]\n8eee:{\"data\":\"$8eef\",\"marks\":\"$8ef0\",\"value\":\"therapy dog\",\"nodeType\":\"text\"}\n8eed:[\"$8eee\"]\n8eeb:{\"data\":\"$8eec\",\"content\":\"$8eed\",\"nodeType\":\"hyperlink\"}\n8ef2:{}\n8ef3:[]\n8ef1:{\"data\":\"$8ef2\",\"marks\":\"$8ef3\",\"value\":\" â a fluffy, white-haired goldendoodle named Badger â after her second open heart surgery.\",\"nodeType\":\"text\"}\n8ee7:[\"$8ee8\",\"$8eeb\",\"$8ef1\"]\n8ee5:{\"data\":\"$8ee6\",\"content\":\"$8ee7\",\"nodeType\":\"paragraph\"}\n8ef5:{}\n8ef6:[]\n8ef4:{\"data\":\"$8ef5\",\"content\":\"$8ef6\",\"nodeType\":\"embedded-entry-block\"}\n8ef8:{}\n8efb:{}\n8efc:[]\n8efa:{\"data\":\"$8efb\",\"marks\":\"$8efc\",\"value\":\"Laying in her hospital bed, she stroked one of his floppy ears and smiled.\",\"nodeType\":\"text\"}\n8ef9:[\"$8efa\"]\n8ef7:{\"data\":\"$8ef8\",\"content\":\"$8ef9\",\"nodeType\":\"paragraph\"}\n8efe:{}\n8f01:{}\n8f02:[]\n8f00:{\"data\":\"$8f01\",\"marks\":\"$8f02\",\"value\":\"âOh my gosh, that made her day,â Staci said over an old video recording of the moment.\",\"nodeType\":\"text\"}\n8eff:[\"$8f00\"]\n8efd:{\"data\":\"$8efe\",\"content\":\"$8eff\",\"nodeType\":\"paragraph\"}\n8f04:{}\n8f07:{}\n8f08:[]\n8f06:{\"data\":\"$8f07\",\"marks\":\"$8f08\",\"value\":\"Child Life specialists taught Davi to breathe and focus on distractions such as toys or YouTube videos during pokes.\",\"nodeType\":\"text\"}\n8f05:[\"$8f06\"]\n8f03:{\"data\":\"$8f04\",\"content\":\"$8f05\",\"nodeType\":\"paragraph\"}\n8f"])</script>
1<script>self.__next_f.push([1,"0a:{}\n8f0d:{}\n8f0e:[]\n8f0c:{\"data\":\"$8f0d\",\"marks\":\"$8f0e\",\"value\":\"Nurses braided Daviâs hair at her bedside. They decorated her hospital room during long-term stays.\",\"nodeType\":\"text\"}\n8f0b:[\"$8f0c\"]\n8f09:{\"data\":\"$8f0a\",\"content\":\"$8f0b\",\"nodeType\":\"paragraph\"}\n8f10:{}\n8f13:{}\n8f14:[]\n8f12:{\"data\":\"$8f13\",\"marks\":\"$8f14\",\"value\":\"âYou donât learn that in nursing school. You learn that by being a good human being,â Staci said.\",\"nodeType\":\"text\"}\n8f11:[\"$8f12\"]\n8f0f:{\"data\":\"$8f10\",\"content\":\"$8f11\",\"nodeType\":\"paragraph\"}\n8f16:{}\n8f19:{}\n8f1a:[]\n8f18:{\"data\":\"$8f19\",\"marks\":\"$8f1a\",\"value\":\"And when Davi grows up, she wants to be a Child Life specialist just like them.\",\"nodeType\":\"text\"}\n8f17:[\"$8f18\"]\n8f15:{\"data\":\"$8f16\",\"content\":\"$8f17\",\"nodeType\":\"paragraph\"}\n8f1c:{}\n8f1f:{}\n8f20:[]\n8f1e:{\"data\":\"$8f1f\",\"marks\":\"$8f20\",\"value\":\"âI love Childrenâs Health because they take care of me,â Davi said.\",\"nodeType\":\"text\"}\n8f1d:[\"$8f1e\"]\n8f1b:{\"data\":\"$8f1c\",\"content\":\"$8f1d\",\"nodeType\":\"paragraph\"}\n8f22:{}\n8f25:{}\n8f26:[]\n8f24:{\"data\":\"$8f25\",\"marks\":\"$8f26\",\"value\":\"***\",\"nodeType\":\"text\"}\n8f23:[\"$8f24\"]\n8f21:{\"data\":\"$8f22\",\"content\":\"$8f23\",\"nodeType\":\"paragraph\"}\n8f28:{}\n8f29:[]\n8f27:{\"data\":\"$8f28\",\"content\":\"$8f29\",\"nodeType\":\"embedded-entry-block\"}\n8f2b:{}\n8f2e:{}\n8f2f:[]\n8f2d:{\"data\":\"$8f2e\",\"marks\":\"$8f2f\",\"value\":\"Davi doesnât reserve her costumes for Halloween. (Itâs not uncommon for her to sport a sparkly Ariel mermaid costume at the dinner table.) But the season is a highlight of the year for her and a time to be extra creative.\",\"nodeType\":\"text\"}\n8f2c:[\"$8f2d\"]\n8f2a:{\"data\":\"$8f2b\",\"content\":\"$8f2c\",\"nodeType\":\"paragraph\"}\n8f31:{}\n8f34:{}\n8f35:[]\n8f33:{\"data\":\"$8f34\",\"marks\":\"$8f35\",\"value\":\"âHalloween is the biggest holiday in this house,â Staci said. âItâs a season of pure joy and kids being kids. Plus, who doesnât like candy?â\",\"nodeType\":\"text\"}\n8f32:[\"$8f33\"]\n8f30:{\"data\":\"$8f31\",\"content\":\"$8f32\",\"nodeType\":\"paragraph\"}\n8f37:{}\n8f3a:{}\n8f3b:[]\n8f39:{\"data\":\"$8f"])</script>
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1<script>self.__next_f.push([1,"900d:{\"data\":\"$900e\",\"marks\":\"$900f\",\"value\":\"âItâs going to become your worst nightmare.â \",\"nodeType\":\"text\"}\n900c:[\"$900d\"]\n900a:{\"data\":\"$900b\",\"content\":\"$900c\",\"nodeType\":\"paragraph\"}\n9011:{}\n9014:{}\n9015:[]\n9013:{\"data\":\"$9014\",\"marks\":\"$9015\",\"value\":\"15-year-old Tanner was quick with a spar back. \",\"nodeType\":\"text\"}\n9012:[\"$9013\"]\n9010:{\"data\":\"$9011\",\"content\":\"$9012\",\"nodeType\":\"paragraph\"}\n9017:{}\n901a:{}\n901b:[]\n9019:{\"data\":\"$901a\",\"marks\":\"$901b\",\"value\":\"âWhat? Your pinky finger,â he said, chuckling, before flicking Caleb behind the ear. \",\"nodeType\":\"text\"}\n9018:[\"$9019\"]\n9016:{\"data\":\"$9017\",\"content\":\"$9018\",\"nodeType\":\"paragraph\"}\n901d:{}\n9020:{}\n9021:[]\n901f:{\"data\":\"$9020\",\"marks\":\"$9021\",\"value\":\"Brothers Tanner, 15, and Caleb, 12, are like a lot of siblings. They tease and fight â all in good natured brotherly love. \",\"nodeType\":\"text\"}\n901e:[\"$901f\"]\n901c:{\"data\":\"$901d\",\"content\":\"$901e\",\"nodeType\":\"paragraph\"}\n9023:{}\n9026:{}\n9027:[]\n9025:{\"data\":\"$9026\",\"marks\":\"$9027\",\"value\":\"And theyâre also each otherâs biggest defenders. \",\"nodeType\":\"text\"}\n9024:[\"$9025\"]\n9022:{\"data\":\"$9023\",\"content\":\"$9024\",\"nodeType\":\"paragraph\"}\n9029:{}\n902c:{}\n902d:[]\n902b:{\"data\":\"$902c\",\"marks\":\"$902d\",\"value\":\"Both born with the genetic disease, cystic fibrosis, Tanner and Caleb are close â even when their disease requires them sometimes to be six feet apart. \",\"nodeType\":\"text\"}\n902a:[\"$902b\"]\n9028:{\"data\":\"$9029\",\"content\":\"$902a\",\"nodeType\":\"paragraph\"}\n902f:{}\n9030:[]\n902e:{\"data\":\"$902f\",\"content\":\"$9030\",\"nodeType\":\"embedded-entry-block\"}\n9032:{}\n9035:{}\n9036:[]\n9034:{\"data\":\"$9035\",\"marks\":\"$9036\",\"value\":\"âItâs that brother relationship that I can hit him, but if anybody else does, Iâm hitting them twice as hard,â Tanner said. âIâm the older brother. I watch out for him.â \",\"nodeType\":\"text\"}\n9033:[\"$9034\"]\n9031:{\"data\":\"$9032\",\"content\":\"$9033\",\"nodeType\":\"paragraph\"}\n9038:{}\n903b:{}\n903c:[]\n903a:{\"data\":\"$903b\",\"marks\":\"$903c\",\"value\":\"Cystic fibrosis â often "])</script>
1<script>self.__next_f.push([1,"shortened to CF â is a disease that causes severe damage to the lungs, digestive system and other organs in the body. Patients often are required to stay six feet away from others with CF to prevent the spreading of germs, which can be difficult to treat and lead to a faster decline in lung function. \",\"nodeType\":\"text\"}\n9039:[\"$903a\"]\n9037:{\"data\":\"$9038\",\"content\":\"$9039\",\"nodeType\":\"paragraph\"}\n903e:{}\n9041:{}\n9042:[]\n9040:{\"data\":\"$9041\",\"marks\":\"$9042\",\"value\":\"But for Tanner and Caleb, theyâre only kept apart when they are sick. \",\"nodeType\":\"text\"}\n903f:[\"$9040\"]\n903d:{\"data\":\"$903e\",\"content\":\"$903f\",\"nodeType\":\"paragraph\"}\n9044:{}\n9047:{}\n9048:[]\n9046:{\"data\":\"$9047\",\"marks\":\"$9048\",\"value\":\"Otherwise, they spend time doing brotherly things like gaming, rollerblading and playing baseball. \",\"nodeType\":\"text\"}\n9045:[\"$9046\"]\n9043:{\"data\":\"$9044\",\"content\":\"$9045\",\"nodeType\":\"paragraph\"}\n904a:{}\n904d:{}\n904e:[]\n904c:{\"data\":\"$904d\",\"marks\":\"$904e\",\"value\":\"Thereâs currently no cure for CF, and that means the brothers spend hours each day working to live with their disease. \",\"nodeType\":\"text\"}\n904b:[\"$904c\"]\n9049:{\"data\":\"$904a\",\"content\":\"$904b\",\"nodeType\":\"paragraph\"}\n9050:{}\n9053:{}\n9054:[]\n9052:{\"data\":\"$9053\",\"marks\":\"$9054\",\"value\":\"There are daily breathing treatments, which they usually spend wrapped under fuzzy blankets on the couch together watching a movie on high volume, as machines whir in the background and a vibrating vest shakes mucus from their lungs and opens their airways. \",\"nodeType\":\"text\"}\n9051:[\"$9052\"]\n904f:{\"data\":\"$9050\",\"content\":\"$9051\",\"nodeType\":\"paragraph\"}\n9056:{}\n9059:{}\n905a:[]\n9058:{\"data\":\"$9059\",\"marks\":\"$905a\",\"value\":\"And there are dozens of pills â more than 30 for Caleb â that they take every day before meals to help them digest their food. \",\"nodeType\":\"text\"}\n9057:[\"$9058\"]\n9055:{\"data\":\"$9056\",\"content\":\"$9057\",\"nodeType\":\"paragraph\"}\n905c:{}\n905f:{}\n9060:[]\n905e:{\"data\":\"$905f\",\"marks\":\"$9060\",\"value\":\"âHe has to take the pills one at a time,â sai"])</script>
1<script>self.__next_f.push([1,"d Tanner, who can swallow a handful at once, jokingly. \",\"nodeType\":\"text\"}\n905d:[\"$905e\"]\n905b:{\"data\":\"$905c\",\"content\":\"$905d\",\"nodeType\":\"paragraph\"}\n9062:{}\n9065:{}\n9066:[]\n9064:{\"data\":\"$9065\",\"marks\":\"$9066\",\"value\":\"âNo, I take two at a time now,â Caleb replied in defense. (Heâd been practicing for the last year so he could spend less time in the school nurseâs office each day and more time with his friends.) \",\"nodeType\":\"text\"}\n9063:[\"$9064\"]\n9061:{\"data\":\"$9062\",\"content\":\"$9063\",\"nodeType\":\"paragraph\"}\n9068:{}\n906b:{}\n906c:[]\n906a:{\"data\":\"$906b\",\"marks\":\"$906c\",\"value\":\"âMost kids can play all day, but I have to go inside and do breathing treatments and take pills before I can eat,â said Caleb, who has been admitted to the hospital more than a dozen times and has a collapsed left lung. Tanner has had about 30 hospitalizations. \",\"nodeType\":\"text\"}\n9069:[\"$906a\"]\n9067:{\"data\":\"$9068\",\"content\":\"$9069\",\"nodeType\":\"paragraph\"}\n906e:{\"target\":\"$e5c\"}\n906f:[]\n906d:{\"data\":\"$906e\",\"content\":\"$906f\",\"nodeType\":\"embedded-entry-block\"}\n9071:{}\n9072:[]\n9070:{\"data\":\"$9071\",\"content\":\"$9072\",\"nodeType\":\"embedded-entry-block\"}\n9074:{}\n9077:{}\n9078:[]\n9076:{\"data\":\"$9077\",\"marks\":\"$9078\",\"value\":\"Initially, Tanner and Calebâs parents, Stephen and Kiri, were told that most children with CF die very young â even in elementary school. \",\"nodeType\":\"text\"}\n9075:[\"$9076\"]\n9073:{\"data\":\"$9074\",\"content\":\"$9075\",\"nodeType\":\"paragraph\"}\n907a:{}\n907d:{}\n907e:[]\n907c:{\"data\":\"$907d\",\"marks\":\"$907e\",\"value\":\"Knowing they may have limited time with their children, they made a pact to live life differently from their friends and family. \",\"nodeType\":\"text\"}\n907b:[\"$907c\"]\n9079:{\"data\":\"$907a\",\"content\":\"$907b\",\"nodeType\":\"paragraph\"}\n9080:{}\n9083:{}\n9084:[]\n9082:{\"data\":\"$9083\",\"marks\":\"$9084\",\"value\":\"They donât make plans for more than two weeks out. They travel across the country with their boys, taking them to New York to climb the Statue of Liberty; to both coasts to swim in the Pacific and Atlantic oce"])</script>
1<script>self.__next_f.push([1,"ans; and to the wilderness to backwoods camp in Yellowstone and Yosemite national parks. \",\"nodeType\":\"text\"}\n9081:[\"$9082\"]\n907f:{\"data\":\"$9080\",\"content\":\"$9081\",\"nodeType\":\"paragraph\"}\n9086:{}\n9089:{}\n908a:[]\n9088:{\"data\":\"$9089\",\"marks\":\"$908a\",\"value\":\"They want their children to see as much of the world as possible â even if their disease makes it challenging to climb to the top. \",\"nodeType\":\"text\"}\n9087:[\"$9088\"]\n9085:{\"data\":\"$9086\",\"content\":\"$9087\",\"nodeType\":\"paragraph\"}\n908c:{}\n908f:{}\n9090:[]\n908e:{\"data\":\"$908f\",\"marks\":\"$9090\",\"value\":\"âWe didnât ever want to say that we let CF hold them back,â Kiri said. âWe made sure that we did everything in spite of CF.â \",\"nodeType\":\"text\"}\n908d:[\"$908e\"]\n908b:{\"data\":\"$908c\",\"content\":\"$908d\",\"nodeType\":\"paragraph\"}\n9092:{}\n9095:{}\n9096:[]\n9094:{\"data\":\"$9095\",\"marks\":\"$9096\",\"value\":\"*** \",\"nodeType\":\"text\"}\n9093:[\"$9094\"]\n9091:{\"data\":\"$9092\",\"content\":\"$9093\",\"nodeType\":\"paragraph\"}\n9098:{}\n9099:[]\n9097:{\"data\":\"$9098\",\"content\":\"$9099\",\"nodeType\":\"embedded-entry-block\"}\n909b:{}\n909e:{}\n909f:[]\n909d:{\"data\":\"$909e\",\"marks\":\"$909f\",\"value\":\"About a decade ago, the family relocated to North Texas for the boys to be treated at Childrenâs Health, after doctors at a previous hospital told their parents that they had exhausted their options to help then-5-year-old Tanner. \",\"nodeType\":\"text\"}\n909c:[\"$909d\"]\n909a:{\"data\":\"$909b\",\"content\":\"$909c\",\"nodeType\":\"paragraph\"}\n90a1:{}\n90a4:{}\n90a5:[]\n90a3:{\"data\":\"$90a4\",\"marks\":\"$90a5\",\"value\":\"âInstead of prepping for the end of Tannerâs life, we visited other hospitals and landed on Childrenâs Health because it is ranked highly for treating cystic fibrosis,â Kiri said. âInstantly, Tanner started to get better.â \",\"nodeType\":\"text\"}\n90a2:[\"$90a3\"]\n90a0:{\"data\":\"$90a1\",\"content\":\"$90a2\",\"nodeType\":\"paragraph\"}\n90a7:{}\n90aa:{}\n90ab:[]\n90a9:{\"data\":\"$90aa\",\"marks\":\"$90ab\",\"value\":\"The Claude Prestidge Cystic Fibrosis Center at Childrenâs Health is a leader in the care of pediatric cystic fibr"])</script>
1<script>self.__next_f.push([1,"osis patients, caring for more than 300 children each year in North Texas. The center incorporates a multidisciplinary approach to treating CF patients, providing families access to the best care possible, including cutting-edge treatments and clinical trials. \",\"nodeType\":\"text\"}\n90a8:[\"$90a9\"]\n90a6:{\"data\":\"$90a7\",\"content\":\"$90a8\",\"nodeType\":\"paragraph\"}\n90ad:{}\n90b0:{}\n90b1:[]\n90af:{\"data\":\"$90b0\",\"marks\":\"$90b1\",\"value\":\"âWhen Tanner and his family came to us, they wanted to fight, and we wanted to fight alongside them,â said Preeti B. Sharma, M.D., the familyâs pediatric pulmonologist and co-director of the Cystic Fibrosis Care Center at UT Southwestern and Childrenâs Health. âHaving access to both a pediatric gastroenterologist and a pediatric pulmonologist, along with a whole team of specialists, was key to moving the bar forward for him to enhance his growth and his pulmonary function.â \",\"nodeType\":\"text\"}\n90ae:[\"$90af\"]\n90ac:{\"data\":\"$90ad\",\"content\":\"$90ae\",\"nodeType\":\"paragraph\"}\n90b3:{}\n90b4:[]\n90b2:{\"data\":\"$90b3\",\"content\":\"$90b4\",\"nodeType\":\"embedded-entry-block\"}\n90b6:{}\n90b9:{}\n90ba:[]\n90b8:{\"data\":\"$90b9\",\"marks\":\"$90ba\",\"value\":\"Childrenâs Health participates in the Cystic Fibrosis Therapeutics Development Network, the largest cystic fibrosis clinical trials network in the world. Our affiliation with this network ensures that our patients benefit from the latest drug trials, clinical studies and a wealth of research in cystic fibrosis treatment. \",\"nodeType\":\"text\"}\n90b7:[\"$90b8\"]\n90b5:{\"data\":\"$90b6\",\"content\":\"$90b7\",\"nodeType\":\"paragraph\"}\n90bc:{}\n90bf:{}\n90c0:[]\n90be:{\"data\":\"$90bf\",\"marks\":\"$90c0\",\"value\":\"This collaboration means an improvement in patient outcomes, advancing treatments and prognosis for children with cystic fibrosis -- even since Tanner and Caleb were born. \",\"nodeType\":\"text\"}\n90bd:[\"$90be\"]\n90bb:{\"data\":\"$90bc\",\"content\":\"$90bd\",\"nodeType\":\"paragraph\"}\n90c2:{}\n90c5:{}\n90c6:[]\n90c4:{\"data\":\"$90c5\",\"marks\":\"$90c6\",\"value\":\"âNew treatments have altered th"])</script>
1<script>self.__next_f.push([1,"e life expectancy for people with cystic fibrosis dramatically. People with CF are living longer, healthier lives,â Dr. Sharma said. âAnd we wouldnât have made any of these advances without the support of the community to help fund research and to advance how we care for CF patients.â \",\"nodeType\":\"text\"}\n90c3:[\"$90c4\"]\n90c1:{\"data\":\"$90c2\",\"content\":\"$90c3\",\"nodeType\":\"paragraph\"}\n90c8:{}\n90c9:[]\n90c7:{\"data\":\"$90c8\",\"content\":\"$90c9\",\"nodeType\":\"embedded-entry-block\"}\n90cb:{}\n90ce:{}\n90cf:[]\n90cd:{\"data\":\"$90ce\",\"marks\":\"$90cf\",\"value\":\"In the last decade, these therapies have changed the day-to-day life of many patients, improving their lung function, gastrointestinal symptoms and overall energy. Kids feel better and spend less time sick in the hospital. Many also live to be middle-aged adults. \",\"nodeType\":\"text\"}\n90cc:[\"$90cd\"]\n90ca:{\"data\":\"$90cb\",\"content\":\"$90cc\",\"nodeType\":\"paragraph\"}\n90d1:{}\n90d4:{}\n90d5:[]\n90d3:{\"data\":\"$90d4\",\"marks\":\"$90d5\",\"value\":\"Despite these advances, thereâs still a long road ahead for Tanner and Caleb, who have advanced lung disease and are considering lung transplantation. \",\"nodeType\":\"text\"}\n90d2:[\"$90d3\"]\n90d0:{\"data\":\"$90d1\",\"content\":\"$90d2\",\"nodeType\":\"paragraph\"}\n90d7:{}\n90da:{}\n90db:[]\n90d9:{\"data\":\"$90da\",\"marks\":\"$90db\",\"value\":\"But access to high quality health care means Stephen and Kiri are hopeful. Theyâve started dreaming of the future â making a high school graduation plan for Tanner, saving for retirement and even buying stocks and bonds. \",\"nodeType\":\"text\"}\n90d8:[\"$90d9\"]\n90d6:{\"data\":\"$90d7\",\"content\":\"$90d8\",\"nodeType\":\"paragraph\"}\n90dd:{}\n90e0:{}\n90e1:[]\n90df:{\"data\":\"$90e0\",\"marks\":\"$90e1\",\"value\":\"âWe started out thinking that our sons werenât going to graduate high school, and now they have the possibility to live to age 30 or 40,â Stephen said. âThey can live a full life. They can have their own kids. They can have a career. They can go to college. They can do anything they want.â \",\"nodeType\":\"text\"}\n90de:[\"$90df\"]\n90dc:{\"da"])</script>
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1<script>self.__next_f.push([1,"nd align her eye muscles. Kadence quickly began to sit and stand straighter. \",\"nodeType\":\"text\"}\n91d2:[\"$91d3\"]\n91d0:{\"data\":\"$91d1\",\"content\":\"$91d2\",\"nodeType\":\"paragraph\"}\n91d7:{}\n91da:{}\n91db:[]\n91d9:{\"data\":\"$91da\",\"marks\":\"$91db\",\"value\":\"âThe eye surgery is a great example of how dedicated the Childrenâs Health team is to fulfill their mission to make life better for kids,â Deondriea said. âThere have been countless times where extra steps have been made to find an answer or take a precaution. To me, that speaks volumes to who these doctors are and what they believe in.â \",\"nodeType\":\"text\"}\n91d8:[\"$91d9\"]\n91d6:{\"data\":\"$91d7\",\"content\":\"$91d8\",\"nodeType\":\"paragraph\"}\n91dd:{}\n91e0:{}\n91e1:[]\n91df:{\"data\":\"$91e0\",\"marks\":\"$91e1\",\"value\":\"Deondrieaâs message to Kadence: âYou are perfect.â \",\"nodeType\":\"text\"}\n91de:[\"$91df\"]\n91dc:{\"data\":\"$91dd\",\"content\":\"$91de\",\"nodeType\":\"heading-3\"}\n91e3:{}\n91e4:[]\n91e2:{\"data\":\"$91e3\",\"content\":\"$91e4\",\"nodeType\":\"embedded-entry-block\"}\n91e6:{}\n91e9:{}\n91ea:[]\n91e8:{\"data\":\"$91e9\",\"marks\":\"$91ea\",\"value\":\"Two of the most important things Deondriea wants Kadence to know are that she is worthy, and she is loved. She is grateful that the Childrenâs Health team models those same values. \",\"nodeType\":\"text\"}\n91e7:[\"$91e8\"]\n91e5:{\"data\":\"$91e6\",\"content\":\"$91e7\",\"nodeType\":\"paragraph\"}\n91ec:{}\n91ef:{}\n91f0:[]\n91ee:{\"data\":\"$91ef\",\"marks\":\"$91f0\",\"value\":\"âThe doctors and nurses act like itâs their job to make sure that doors are wide open for her to walk through and discover life,â Deondriea said. âSince day one, everyone has treated Kadence with dignity and love.â\",\"nodeType\":\"text\"}\n91ed:[\"$91ee\"]\n91eb:{\"data\":\"$91ec\",\"content\":\"$91ed\",\"nodeType\":\"paragraph\"}\n91f2:{}\n91f5:{}\n91f6:[]\n91f4:{\"data\":\"$91f5\",\"marks\":\"$91f6\",\"value\":\"Over the last few years, Deondriea has made a point to talk openly about Kadenceâs medical needs. \",\"nodeType\":\"text\"}\n91f3:[\"$91f4\"]\n91f1:{\"data\":\"$91f2\",\"content\":\"$91f3\",\"nodeType\":\"paragraph\"}\n91f8:{}\n91fb:{}\n91fc:[]"])</script>
1<script>self.__next_f.push([1,"\n91fa:{\"data\":\"$91fb\",\"marks\":\"$91fc\",\"value\":\"âThere is a lot of education and changes that need to be made in our world and in society to welcome people who are different,â Deondriea said. âKadenceâs medical needs donât define her. Sheâs creative, inquisitive, thoughtful and imaginative. All of those things make Kadence who she is.â \",\"nodeType\":\"text\"}\n91f9:[\"$91fa\"]\n91f7:{\"data\":\"$91f8\",\"content\":\"$91f9\",\"nodeType\":\"paragraph\"}\n91fe:{}\n9201:{}\n9202:[]\n9200:{\"data\":\"$9201\",\"marks\":\"$9202\",\"value\":\"She believes the positivity and acceptance Kadence has received at Childrenâs Health is a big part of why sheâs determined to discover everything this world has to offer. \",\"nodeType\":\"text\"}\n91ff:[\"$9200\"]\n91fd:{\"data\":\"$91fe\",\"content\":\"$91ff\",\"nodeType\":\"paragraph\"}\n9204:{}\n9207:{}\n9208:[]\n9206:{\"data\":\"$9207\",\"marks\":\"$9208\",\"value\":\"âAt Childrenâs Health, Kadence is encouraged to embrace exactly who she is. Itâs why Kadence gives a running hug to her pulmonologist. Itâs why she welcomes doctors to join her in hopscotch at the Plano campus,â Deondriea said. \",\"nodeType\":\"text\"}\n9205:[\"$9206\"]\n9203:{\"data\":\"$9204\",\"content\":\"$9205\",\"nodeType\":\"paragraph\"}\n920a:{}\n920d:{}\n920e:[]\n920c:{\"data\":\"$920d\",\"marks\":\"$920e\",\"value\":\"Deondriea also knows that there are thousands of families who share her gratitude. \",\"nodeType\":\"text\"}\n920b:[\"$920c\"]\n9209:{\"data\":\"$920a\",\"content\":\"$920b\",\"nodeType\":\"paragraph\"}\n9210:{}\n9213:{}\n9214:[]\n9212:{\"data\":\"$9213\",\"marks\":\"$9214\",\"value\":\"âOne of the values at Childrenâs Health is âcommunityâ,â she said. âI believe that having the communityâs generosity toward children with special needs says a lot about who we are and who we can be.â \",\"nodeType\":\"text\"}\n9211:[\"$9212\"]\n920f:{\"data\":\"$9210\",\"content\":\"$9211\",\"nodeType\":\"paragraph\"}\n9216:{}\n9219:{}\n921a:[]\n9218:{\"data\":\"$9219\",\"marks\":\"$921a\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n921c:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n921f:{}\n9220:[]\n921e:{\"data\":\"$921f\",\"mark"])</script>
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1<script>self.__next_f.push([1,"6\"}\n928a:{\"metadata\":\"$928b\",\"sys\":\"$928e\",\"fields\":\"$9295\"}\n9289:[\"$928a\"]\n92a0:[]\n92a1:[]\n929f:{\"tags\":\"$92a0\",\"concepts\":\"$92a1\"}\n92a4:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\n92a3:{\"sys\":\"$92a4\"}\n92a6:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\n92a5:{\"sys\":\"$92a6\"}\n92a8:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\n92a7:{\"sys\":\"$92a8\"}\n92a2:{\"space\":\"$92a3\",\"id\":\"34GT7fLTCB6WdnNv5Vv4OJ\",\"type\":\"Entry\",\"createdAt\":\"2025-02-05T15:13:55.027Z\",\"updatedAt\":\"2026-01-30T20:24:49.125Z\",\"environment\":\"$92a5\",\"publishedVersion\":27,\"revision\":7,\"contentType\":\"$92a7\",\"locale\":\"en-US\"}\n92ab:{}\n92ae:{}\n92af:[]\n92ad:{\"data\":\"$92ae\",\"content\":\"$92af\",\"nodeType\":\"embedded-entry-block\"}\n92b1:{}\n92b4:{}\n92b5:[]\n92b3:{\"data\":\"$92b4\",\"marks\":\"$92b5\",\"value\":\"If you meet 7-year-old, Edison, he will likely test your knowledge of computer coding (he attends a STEM-focused elementary school) and share his most recent plans for Lego structures.\",\"nodeType\":\"text\"}\n92b2:[\"$92b3\"]\n92b0:{\"data\":\"$92b1\",\"content\":\"$92b2\",\"nodeType\":\"paragraph\"}\n92b7:{}\n92ba:{}\n92bb:[]\n92b9:{\"data\":\"$92ba\",\"marks\":\"$92bb\",\"value\":\"He probably wonât mention that he has cerebral palsy, a neurodevelopmental condition that impacts his movement, posture and muscle control. \",\"nodeType\":\"text\"}\n92b8:[\"$92b9\"]\n92b6:{\"data\":\"$92b7\",\"content\":\"$92b8\",\"nodeType\":\"paragraph\"}\n92bd:{}\n92c0:{}\n92c1:[]\n92bf:{\"data\":\"$92c0\",\"marks\":\"$92c1\",\"value\":\"The diagnosis doesnât control his life. Heâs too busy playing soccer and football, scoring on the latest video game and dreaming of being a firefighter. \",\"nodeType\":\"text\"}\n92be:[\"$92bf\"]\n92bc:{\"data\":\"$92bd\",\"content\":\"$92be\",\"nodeType\":\"paragraph\"}\n92c3:{}\n92c6:{}\n92c7:[]\n92c5:{\"data\":\"$92c6\",\"marks\":\"$92c7\",\"value\":\"âEdison is all boy. He likes anything to do with sports, building and tools,â his mom, Christi, said. âHeâs also very clever and social. Heâs never been afraid to meet new people. I love his confidence.â \",\"nodeType\":\"text\"}\n92c4:[\"$92c5\"]\n92c2:{\"data\":\"$92"])</script>
1<script>self.__next_f.push([1,"c3\",\"content\":\"$92c4\",\"nodeType\":\"paragraph\"}\n92c9:{}\n92cc:{}\n92cd:[]\n92cb:{\"data\":\"$92cc\",\"marks\":\"$92cd\",\"value\":\"âThe best hands:â Edisonâs mom turns to Childrenâs Health \",\"nodeType\":\"text\"}\n92ca:[\"$92cb\"]\n92c8:{\"data\":\"$92c9\",\"content\":\"$92ca\",\"nodeType\":\"heading-3\"}\n92cf:{}\n92d2:{}\n92d3:[]\n92d1:{\"data\":\"$92d2\",\"marks\":\"$92d3\",\"value\":\"Edison was born at a local hospital at just 26 weeks. The doctors were unsure if his tiny lungs and heart were strong enough to make it on their own. \",\"nodeType\":\"text\"}\n92d0:[\"$92d1\"]\n92ce:{\"data\":\"$92cf\",\"content\":\"$92d0\",\"nodeType\":\"paragraph\"}\n92d5:{}\n92d8:{}\n92d9:[]\n92d7:{\"data\":\"$92d8\",\"marks\":\"$92d9\",\"value\":\"They debated putting him on extracorporeal membrane oxygenation (ECMO), a machine that takes over for the heart and lungs. He also had a virus that caused him to have pneumonia and a hole in his heart that eventually closed on its own. \",\"nodeType\":\"text\"}\n92d6:[\"$92d7\"]\n92d4:{\"data\":\"$92d5\",\"content\":\"$92d6\",\"nodeType\":\"paragraph\"}\n92db:{}\n92de:{}\n92df:[]\n92dd:{\"data\":\"$92de\",\"marks\":\"$92df\",\"value\":\"In the NICU, where he was seen by several Childrenâs Health specialists, Edison fought through the ups and downs like the strong-willed kid Christi would come to know. After a couple of weeks, he was stable enough to move to Childrenâs Health. \",\"nodeType\":\"text\"}\n92dc:[\"$92dd\"]\n92da:{\"data\":\"$92db\",\"content\":\"$92dc\",\"nodeType\":\"paragraph\"}\n92e1:{}\n92e4:{}\n92e5:[]\n92e3:{\"data\":\"$92e4\",\"marks\":\"$92e5\",\"value\":\"âChildrenâs Health is the best hospital in Dallas. I went there when I was a kid, too,â Christi said. âAnd I knew I didnât want to take Edison anywhere else. He was in the best hands.â \",\"nodeType\":\"text\"}\n92e2:[\"$92e3\"]\n92e0:{\"data\":\"$92e1\",\"content\":\"$92e2\",\"nodeType\":\"paragraph\"}\n92e7:{}\n92e8:[]\n92e6:{\"data\":\"$92e7\",\"content\":\"$92e8\",\"nodeType\":\"embedded-entry-block\"}\n92ea:{}\n92ed:{}\n92ee:[]\n92ec:{\"data\":\"$92ed\",\"marks\":\"$92ee\",\"value\":\"Edisonâs doctors find solutions to complex care needs \",\"nodeType\":\"text\"}\n92eb:[\"$92ec\"]\n92e9:{\"d"])</script>
1<script>self.__next_f.push([1,"ata\":\"$92ea\",\"content\":\"$92eb\",\"nodeType\":\"heading-3\"}\n92f0:{}\n92f3:{}\n92f4:[]\n92f2:{\"data\":\"$92f3\",\"marks\":\"$92f4\",\"value\":\"When Edison was 18 months old, Dr. Jan Brustrom-Hernandez diagnosed him with cerebral palsy. Right away, Dr. Brunstrom-Hernandez and the Childrenâs Health team began intense physical and occupational therapy that would help Edison lead a fulfilling life. \",\"nodeType\":\"text\"}\n92f1:[\"$92f2\"]\n92ef:{\"data\":\"$92f0\",\"content\":\"$92f1\",\"nodeType\":\"paragraph\"}\n92f6:{}\n92f9:{}\n92fa:[]\n92f8:{\"data\":\"$92f9\",\"marks\":\"$92fa\",\"value\":\"âWe went through a lot those first couple of years, but Edison is as tough as they come. If he was going to be tough, I knew I could be, too,â Christi said. \",\"nodeType\":\"text\"}\n92f7:[\"$92f8\"]\n92f5:{\"data\":\"$92f6\",\"content\":\"$92f7\",\"nodeType\":\"paragraph\"}\n92fc:{}\n92ff:{}\n9300:[]\n92fe:{\"data\":\"$92ff\",\"marks\":\"$9300\",\"value\":\"Edison also was diagnosed with strabismus, a condition in which a personâs eyes arenât aligned properly. Christi brought Edison to see pediatric ophthalmologist, Serena Wang, M.D., who eventually recommended Edison have eye muscle correction surgery. In January 2017, Christi brought Edison to the Plano campus, where Dr.Wang delicately detached and reattached the muscles in Edisonâs eye to be evenly matched. \",\"nodeType\":\"text\"}\n92fd:[\"$92fe\"]\n92fb:{\"data\":\"$92fc\",\"content\":\"$92fd\",\"nodeType\":\"paragraph\"}\n9302:{}\n9305:{}\n9306:[]\n9304:{\"data\":\"$9305\",\"marks\":\"$9306\",\"value\":\"âThe team at Childrenâs Health has worked with us as a family on every aspect of Edisonâs health from his eyes to his ability to move and even his emotional wellbeing,â Christi said. âEdison does all of the activities that most little boys get to do.â \",\"nodeType\":\"text\"}\n9303:[\"$9304\"]\n9301:{\"data\":\"$9302\",\"content\":\"$9303\",\"nodeType\":\"paragraph\"}\n9308:{}\n930b:{}\n930c:[]\n930a:{\"data\":\"$930b\",\"marks\":\"$930c\",\"value\":\"Supporting Edison to âbe the boy he wants to beâ \",\"nodeType\":\"text\"}\n9309:[\"$930a\"]\n9307:{\"data\":\"$9308\",\"content\":\"$9309\",\"nodeType\":\"heading-"])</script>
1<script>self.__next_f.push([1,"3\"}\n930e:{}\n9311:{}\n9312:[]\n9310:{\"data\":\"$9311\",\"marks\":\"$9312\",\"value\":\"Once his eyes recovered, Edisonâs care shifted to focus on regular rehabilitation therapy. Before his first day of kindergarten, Edison counted more than 500 visits with Childrenâs Health providers, who he views more as friends. \",\"nodeType\":\"text\"}\n930f:[\"$9310\"]\n930d:{\"data\":\"$930e\",\"content\":\"$930f\",\"nodeType\":\"paragraph\"}\n9314:{}\n9317:{}\n9318:[]\n9316:{\"data\":\"$9317\",\"marks\":\"$9318\",\"value\":\"Especially his rehabilitation team. \",\"nodeType\":\"text\"}\n9315:[\"$9316\"]\n9313:{\"data\":\"$9314\",\"content\":\"$9315\",\"nodeType\":\"paragraph\"}\n931a:{}\n931d:{}\n931e:[]\n931c:{\"data\":\"$931d\",\"marks\":\"$931e\",\"value\":\"âOne of his occupational therapists has been one of the most consistent people in his life. Even throughout the pandemic, she would send us activities and projects to do at home and make sure he maintained all of his appointments,â Christi said. âAs his mom, that effort really stands out.â \",\"nodeType\":\"text\"}\n931b:[\"$931c\"]\n9319:{\"data\":\"$931a\",\"content\":\"$931b\",\"nodeType\":\"paragraph\"}\n9320:{}\n9323:{}\n9324:[]\n9322:{\"data\":\"$9323\",\"marks\":\"$9324\",\"value\":\"As Edison grew physically, so did his sense of adventure. \",\"nodeType\":\"text\"}\n9321:[\"$9322\"]\n931f:{\"data\":\"$9320\",\"content\":\"$9321\",\"nodeType\":\"paragraph\"}\n9326:{}\n9327:[]\n9325:{\"data\":\"$9326\",\"content\":\"$9327\",\"nodeType\":\"embedded-entry-block\"}\n9329:{}\n932c:{}\n932d:[]\n932b:{\"data\":\"$932c\",\"marks\":\"$932d\",\"value\":\"The physical and occupational therapists did as much as they could to keep up by equipping Edison with walkers, stretching and strength-building exercises. But eventually, it was clear that Edison had no barriers for himself. He was a kid on the move. \",\"nodeType\":\"text\"}\n932a:[\"$932b\"]\n9328:{\"data\":\"$9329\",\"content\":\"$932a\",\"nodeType\":\"paragraph\"}\n932f:{}\n9332:{}\n9333:[]\n9331:{\"data\":\"$9332\",\"marks\":\"$9333\",\"value\":\"âFrom day one, Edisonâs amazing providers have supported him to be the boy he wants to be,â Christi said. âAnd who Edison wants to be is an athlete and a"])</script>
1<script>self.__next_f.push([1,"n adventurer.â \",\"nodeType\":\"text\"}\n9330:[\"$9331\"]\n932e:{\"data\":\"$932f\",\"content\":\"$9330\",\"nodeType\":\"paragraph\"}\n9335:{}\n9338:{}\n9339:[]\n9337:{\"data\":\"$9338\",\"marks\":\"$9339\",\"value\":\"Another one of Edisonâs all-stars is pediatric neurologist, Diden Inanoglu, M.D. An expert in muscle movement, she spent hours with Christi talking through options that would give him the most physical freedom possible. \",\"nodeType\":\"text\"}\n9336:[\"$9337\"]\n9334:{\"data\":\"$9335\",\"content\":\"$9336\",\"nodeType\":\"paragraph\"}\n933b:{}\n933e:{}\n933f:[]\n933d:{\"data\":\"$933e\",\"marks\":\"$933f\",\"value\":\"âDr. Inanoglu committed to finding a way for Edison to get around without a walker,â Christi said. âWhen she came to me and said thereâs a surgeon in Houston who performs a procedure that might help, I knew I could trust the path she suggested because she wanted to see Edison run and jump as much as I did.â \",\"nodeType\":\"text\"}\n933c:[\"$933d\"]\n933a:{\"data\":\"$933b\",\"content\":\"$933c\",\"nodeType\":\"paragraph\"}\n9341:{}\n9344:{}\n9345:[]\n9343:{\"data\":\"$9344\",\"marks\":\"$9345\",\"value\":\"In May, 2018 Edison underwent a selective dorsal rhizotomy (SDR). The procedure involves cutting the nerve rootlets in the spinal cord that send abnormal signals to leg muscles, making them stiff and tight. \",\"nodeType\":\"text\"}\n9342:[\"$9343\"]\n9340:{\"data\":\"$9341\",\"content\":\"$9342\",\"nodeType\":\"paragraph\"}\n9347:{}\n934a:{}\n934b:[]\n9349:{\"data\":\"$934a\",\"marks\":\"$934b\",\"value\":\"The procedure had risks, but the payoff would be that Edison could kick a soccer ball and pump his legs on the swings. Heâd also have a lot less pain. \",\"nodeType\":\"text\"}\n9348:[\"$9349\"]\n9346:{\"data\":\"$9347\",\"content\":\"$9348\",\"nodeType\":\"paragraph\"}\n934d:{}\n9350:{}\n9351:[]\n934f:{\"data\":\"$9350\",\"marks\":\"$9351\",\"value\":\"The surgery was a success. \",\"nodeType\":\"text\"}\n934e:[\"$934f\"]\n934c:{\"data\":\"$934d\",\"content\":\"$934e\",\"nodeType\":\"paragraph\"}\n9353:{}\n9356:{}\n9357:[]\n9355:{\"data\":\"$9356\",\"marks\":\"$9357\",\"value\":\"âI canât thank Dr. Inanoglu enough for her support. She was the driver that made his "])</script>
1<script>self.__next_f.push([1,"surgery possible,â Christi said. \",\"nodeType\":\"text\"}\n9354:[\"$9355\"]\n9352:{\"data\":\"$9353\",\"content\":\"$9354\",\"nodeType\":\"paragraph\"}\n9359:{}\n935c:{}\n935d:[]\n935b:{\"data\":\"$935c\",\"marks\":\"$935d\",\"value\":\"Edison finds his stride \",\"nodeType\":\"text\"}\n935a:[\"$935b\"]\n9358:{\"data\":\"$9359\",\"content\":\"$935a\",\"nodeType\":\"heading-3\"}\n935f:{}\n9362:{}\n9363:[]\n9361:{\"data\":\"$9362\",\"marks\":\"$9363\",\"value\":\"As soon as he was able, Edison was back at the Childrenâs Health therapy clinic, working harder than ever. \",\"nodeType\":\"text\"}\n9360:[\"$9361\"]\n935e:{\"data\":\"$935f\",\"content\":\"$9360\",\"nodeType\":\"paragraph\"}\n9365:{}\n9368:{}\n9369:[]\n9367:{\"data\":\"$9368\",\"marks\":\"$9369\",\"value\":\"âHeâs naturally resilient, and he was laser-focused on getting back to playing football,â Christi said. \",\"nodeType\":\"text\"}\n9366:[\"$9367\"]\n9364:{\"data\":\"$9365\",\"content\":\"$9366\",\"nodeType\":\"paragraph\"}\n936b:{}\n936e:{}\n936f:[]\n936d:{\"data\":\"$936e\",\"marks\":\"$936f\",\"value\":\"Looking back on the last seven years, Christi thinks about what it takes to give kids like Edison the compassion and expertise they need to live happily. \",\"nodeType\":\"text\"}\n936c:[\"$936d\"]\n936a:{\"data\":\"$936b\",\"content\":\"$936c\",\"nodeType\":\"paragraph\"}\n9371:{}\n9374:{}\n9375:[]\n9373:{\"data\":\"$9374\",\"marks\":\"$9375\",\"value\":\"âMy tiny baby now plays football, he plays soccer. We just went rock climbing. He can do it all because he can see and move,â she said. âWe have Childrenâs Health to thank for everything.â \",\"nodeType\":\"text\"}\n9372:[\"$9373\"]\n9370:{\"data\":\"$9371\",\"content\":\"$9372\",\"nodeType\":\"paragraph\"}\n9377:{}\n937a:{}\n937b:[]\n9379:{\"data\":\"$937a\",\"marks\":\"$937b\",\"value\":\"Christi also knows that there are thousands of donors who give to make specialized care possible for every child who walks through the doors at Childrenâs Health. \",\"nodeType\":\"text\"}\n9378:[\"$9379\"]\n9376:{\"data\":\"$9377\",\"content\":\"$9378\",\"nodeType\":\"paragraph\"}\n937d:{}\n9380:{}\n9381:[]\n937f:{\"data\":\"$9380\",\"marks\":\"$9381\",\"value\":\"âSuccess stories like ours donât happen because of one person or "])</script>
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1<script>self.__next_f.push([1,"ata\":\"$951e\",\"marks\":\"$951f\",\"value\":\"âLeo feels powerful and strong as he walks into the hospital in his superhero costume. Most of the people at the front desk know us as âthe dress up peopleâ and will offer to take our photo,â Natalia said. âThe costumes help turnaround Leoâs outlook on the situation. And they make other kids in the hospital smile, too. Weâll hear them say, âLook, mom, thatâs Superman!ââ \",\"nodeType\":\"text\"}\n951c:[\"$951d\"]\n951a:{\"data\":\"$951b\",\"content\":\"$951c\",\"nodeType\":\"paragraph\"}\n9521:{}\n9524:{}\n9525:[]\n9523:{\"data\":\"$9524\",\"marks\":\"$9525\",\"value\":\"*** \",\"nodeType\":\"text\"}\n9522:[\"$9523\"]\n9520:{\"data\":\"$9521\",\"content\":\"$9522\",\"nodeType\":\"paragraph\"}\n9527:{}\n9528:[]\n9526:{\"data\":\"$9527\",\"content\":\"$9528\",\"nodeType\":\"embedded-entry-block\"}\n952a:{}\n952d:{}\n952e:[]\n952c:{\"data\":\"$952d\",\"marks\":\"$952e\",\"value\":\"For Leo, it started with nosebleeds that came and went. His parents thought it was from a fall he had while playing. \",\"nodeType\":\"text\"}\n952b:[\"$952c\"]\n9529:{\"data\":\"$952a\",\"content\":\"$952b\",\"nodeType\":\"paragraph\"}\n9530:{}\n9533:{}\n9534:[]\n9532:{\"data\":\"$9533\",\"marks\":\"$9534\",\"value\":\"But they didnât go away. \",\"nodeType\":\"text\"}\n9531:[\"$9532\"]\n952f:{\"data\":\"$9530\",\"content\":\"$9531\",\"nodeType\":\"paragraph\"}\n9536:{}\n9539:{}\n953a:[]\n9538:{\"data\":\"$9539\",\"marks\":\"$953a\",\"value\":\"In July 2021, his pediatrician referred them to Childrenâs Health, where Leoâs leukemia diagnosis was confirmed, and his care at the Gill Center began. \",\"nodeType\":\"text\"}\n9537:[\"$9538\"]\n9535:{\"data\":\"$9536\",\"content\":\"$9537\",\"nodeType\":\"paragraph\"}\n953c:{}\n953f:{}\n9540:[]\n953e:{\"data\":\"$953f\",\"marks\":\"$9540\",\"value\":\"âWatching him wheeled away into surgery was the first time my husband and I felt like our heart was taken from the inside,â Natalia said. âLetting him go like that and watching the doors close, we knew at that moment that this was our story, and that our circumstances werenât going to change, despite how much we wanted them to.â \",\"nodeType\":\"text\"}\n953d:[\"$953e\"]"])</script>
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1<script>self.__next_f.push([1," and medication. \",\"nodeType\":\"text\"}\n963f:[\"$9640\"]\n963d:{\"data\":\"$963e\",\"content\":\"$963f\",\"nodeType\":\"paragraph\"}\n9644:{}\n9647:{}\n9648:[]\n9646:{\"data\":\"$9647\",\"marks\":\"$9648\",\"value\":\"âZaZa knows that sheâll get through this, and the team at Childrenâs Health has continued to provide the same family-oriented care through it all,â Schequila said. \",\"nodeType\":\"text\"}\n9645:[\"$9646\"]\n9643:{\"data\":\"$9644\",\"content\":\"$9645\",\"nodeType\":\"paragraph\"}\n964a:{}\n964d:{}\n964e:[]\n964c:{\"data\":\"$964d\",\"marks\":\"$964e\",\"value\":\"And in the meantime, ZaZa keeps her fighter mind sharp with puzzles -- specifically thousand-piece puzzles of unicorns and trolls that would rival an adultâs puzzling-skills. \",\"nodeType\":\"text\"}\n964b:[\"$964c\"]\n9649:{\"data\":\"$964a\",\"content\":\"$964b\",\"nodeType\":\"paragraph\"}\n9650:{}\n9653:{}\n9654:[]\n9652:{\"data\":\"$9653\",\"marks\":\"$9654\",\"value\":\"âShe likes the challenge,â Schequila said. \",\"nodeType\":\"text\"}\n9651:[\"$9652\"]\n964f:{\"data\":\"$9650\",\"content\":\"$9651\",\"nodeType\":\"paragraph\"}\n9656:{}\n9659:{}\n965b:{\"type\":\"bold\"}\n965a:[\"$965b\"]\n9658:{\"data\":\"$9659\",\"marks\":\"$965a\",\"value\":\"Original Story (3/12/21): \",\"nodeType\":\"text\"}\n965d:{}\n965e:[]\n965c:{\"data\":\"$965d\",\"marks\":\"$965e\",\"value\":\"They gathered in their blue scrubs waving handmade signs that read âWay to go ZaZa!â in blue and purple marker.\",\"nodeType\":\"text\"}\n9657:[\"$9658\",\"$965c\"]\n9655:{\"data\":\"$9656\",\"content\":\"$9657\",\"nodeType\":\"paragraph\"}\n9660:{}\n9661:[]\n965f:{\"data\":\"$9660\",\"content\":\"$9661\",\"nodeType\":\"embedded-entry-block\"}\n9663:{}\n9666:{}\n9667:[]\n9665:{\"data\":\"$9666\",\"marks\":\"$9667\",\"value\":\"The âRockyâ theme song blasted through speakers as the double doors swung open, revealing 7-year-old AâZyriah, better known as ZaZa, donning a pair of golden boxing gloves.\",\"nodeType\":\"text\"}\n9664:[\"$9665\"]\n9662:{\"data\":\"$9663\",\"content\":\"$9664\",\"nodeType\":\"paragraph\"}\n9669:{}\n966c:{}\n966d:[]\n966b:{\"data\":\"$966c\",\"marks\":\"$966d\",\"value\":\"She shuffled forward like a pro fighter in sparkly boots, punching the air, as a tunnel of Ch"])</script>
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1<script>self.__next_f.push([1,"\",\"id\":\"textBlock\"}\n99db:{\"sys\":\"$99dc\"}\n99d6:{\"space\":\"$99d7\",\"id\":\"6D6CQ0mafHAaBbIA8KXGfH\",\"type\":\"Entry\",\"createdAt\":\"2025-02-04T16:30:07.427Z\",\"updatedAt\":\"2026-01-29T21:17:05.265Z\",\"environment\":\"$99d9\",\"publishedVersion\":23,\"revision\":5,\"contentType\":\"$99db\",\"locale\":\"en-US\"}\n99df:{}\n99e2:{}\n99e5:{}\n99e7:{\"type\":\"bold\"}\n99e8:{\"type\":\"italic\"}\n99e6:[\"$99e7\",\"$99e8\"]\n99e4:{\"data\":\"$99e5\",\"marks\":\"$99e6\",\"value\":\"Story Update - October 2021\",\"nodeType\":\"text\"}\n99ea:{}\n99eb:[]\n99e9:{\"data\":\"$99ea\",\"marks\":\"$99eb\",\"value\":\" \",\"nodeType\":\"text\"}\n99e3:[\"$99e4\",\"$99e9\"]\n99e1:{\"data\":\"$99e2\",\"content\":\"$99e3\",\"nodeType\":\"paragraph\"}\n99ed:{}\n99ee:[]\n99ec:{\"data\":\"$99ed\",\"content\":\"$99ee\",\"nodeType\":\"embedded-entry-block\"}\n99f0:{}\n99f3:{}\n99f4:[]\n99f2:{\"data\":\"$99f3\",\"marks\":\"$99f4\",\"value\":\"Eli stood on his toes, reaching for the silver bell on the wall.\",\"nodeType\":\"text\"}\n99f1:[\"$99f2\"]\n99ef:{\"data\":\"$99f0\",\"content\":\"$99f1\",\"nodeType\":\"paragraph\"}\n99f6:{}\n99f9:{}\n99fa:[]\n99f8:{\"data\":\"$99f9\",\"marks\":\"$99fa\",\"value\":\"âAre you ready?â a nurse asked him.\",\"nodeType\":\"text\"}\n99f7:[\"$99f8\"]\n99f5:{\"data\":\"$99f6\",\"content\":\"$99f7\",\"nodeType\":\"paragraph\"}\n99fc:{}\n99ff:{}\n9a00:[]\n99fe:{\"data\":\"$99ff\",\"marks\":\"$9a00\",\"value\":\"Eli grabbed the rope hanging from the bellâs center and swung it back and forth, as a crowd of doctors and nurses cheered at Childrenâs Medical Center Plano in late June.\",\"nodeType\":\"text\"}\n99fd:[\"$99fe\"]\n99fb:{\"data\":\"$99fc\",\"content\":\"$99fd\",\"nodeType\":\"paragraph\"}\n9a02:{}\n9a05:{}\n9a06:[]\n9a04:{\"data\":\"$9a05\",\"marks\":\"$9a06\",\"value\":\"The bellâs chimes echoed down the hallway, signaling the long-awaited end of Eliâs cancer treatment.\",\"nodeType\":\"text\"}\n9a03:[\"$9a04\"]\n9a01:{\"data\":\"$9a02\",\"content\":\"$9a03\",\"nodeType\":\"paragraph\"}\n9a08:{}\n9a0b:{}\n9a0c:[]\n9a0a:{\"data\":\"$9a0b\",\"marks\":\"$9a0c\",\"value\":\"His parents, Phil and Susan, snapped photos and video, and they thought about how many years they had waited for this moment.\",\"nodeType\":\"text\"}\n9a09:[\"$9a0a\"]\n9a07:{\"data\":\"$9a08\",\"content\":\""])</script>
1<script>self.__next_f.push([1,"$9a09\",\"nodeType\":\"paragraph\"}\n9a0e:{}\n9a11:{}\n9a12:[]\n9a10:{\"data\":\"$9a11\",\"marks\":\"$9a12\",\"value\":\"âEarly on, when we were still kind of deer in headlights after his diagnosis, we saw a young boy ring the bell at one of our first clinic appointments,â Phil said. âWe were happy for him, but at the same time, it felt like such a long way off for us.â\",\"nodeType\":\"text\"}\n9a0f:[\"$9a10\"]\n9a0d:{\"data\":\"$9a0e\",\"content\":\"$9a0f\",\"nodeType\":\"paragraph\"}\n9a14:{}\n9a17:{}\n9a18:[]\n9a16:{\"data\":\"$9a17\",\"marks\":\"$9a18\",\"value\":\"Eli was six years old when he was diagnosed with acute lymphoblastic leukemia, after he woke up crying one morning in February 2018 with a sore arm. For more than three years, heâs endured aggressive rounds of chemotherapy treatments, steroids and monthly spinal taps at Childrenâs Healthâ .\",\"nodeType\":\"text\"}\n9a15:[\"$9a16\"]\n9a13:{\"data\":\"$9a14\",\"content\":\"$9a15\",\"nodeType\":\"paragraph\"}\n9a1a:{}\n9a1b:[]\n9a19:{\"data\":\"$9a1a\",\"content\":\"$9a1b\",\"nodeType\":\"embedded-entry-block\"}\n9a1d:{}\n9a20:{}\n9a21:[]\n9a1f:{\"data\":\"$9a20\",\"marks\":\"$9a21\",\"value\":\"In August, doctors removed his heart port, and his parents let out a sigh of relief.\",\"nodeType\":\"text\"}\n9a1e:[\"$9a1f\"]\n9a1c:{\"data\":\"$9a1d\",\"content\":\"$9a1e\",\"nodeType\":\"paragraph\"}\n9a23:{}\n9a26:{}\n9a27:[]\n9a25:{\"data\":\"$9a26\",\"marks\":\"$9a27\",\"value\":\"âThat really signaled that everything was done because he couldnât remember a time when that port wasnât in his chest,â Phil said.\",\"nodeType\":\"text\"}\n9a24:[\"$9a25\"]\n9a22:{\"data\":\"$9a23\",\"content\":\"$9a24\",\"nodeType\":\"paragraph\"}\n9a29:{}\n9a2c:{}\n9a2d:[]\n9a2b:{\"data\":\"$9a2c\",\"marks\":\"$9a2d\",\"value\":\"Eli, now 10 years old, will continue to be monitored monthly by Childrenâs Health team members, with visits becoming less frequent as his
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1<script>self.__next_f.push([1,"}\n9a2f:{}\n9a32:{}\n9a33:[]\n9a31:{\"data\":\"$9a32\",\"marks\":\"$9a33\",\"value\":\"âHe feels like a regular kid now,â Phil said.\",\"nodeType\":\"text\"}\n9a30:[\"$9a31\"]\n9a2e:{\"data\":\"$9a2f\",\"content\":\"$9a30\",\"nodeType\":\"paragraph\"}\n9a35:{}\n9a38:{}\n9a39:[]\n9a37:{\"data\":\"$9a38\",\"marks\":\"$9a39\",\"value\":\"And in the meantime, Phil has been scheduling all the family vacations they missed over the last three years -- including a trip to Disney Land Park in October, Walt Disney World Resort in November and Disneyland Paris in the spring.\",\"nodeType\":\"text\"}\n9a36:[\"$9a37\"]\n9a34:{\"data\":\"$9a35\",\"content\":\"$9a36\",\"nodeType\":\"paragraph\"}\n9a3b:{}\n9a3e:{}\n9a3f:[]\n9a3d:{\"data\":\"$9a3e\",\"marks\":\"$9a3f\",\"value\":\"âWeâre so thankful to the team at Childrenâs Health, who treated Eli with such empathy, compassion and love,â Phil said. âYou can tell this is not just a job to them. Theyâre making a difference, and theyâre heroes to us.â\",\"nodeType\":\"text\"}\n9a3c:[\"$9a3d\"]\n9a3a:{\"data\":\"$9a3b\",\"content\":\"$9a3c\",\"nodeType\":\"paragraph\"}\n9a41:{}\n9a44:{}\n9a46:{\"type\":\"bold\"}\n9a47:{\"type\":\"italic\"}\n9a45:[\"$9a46\",\"$9a47\"]\n9a43:{\"data\":\"$9a44\",\"marks\":\"$9a45\",\"value\":\"Original Story - December 2019\",\"nodeType\":\"text\"}\n9a42:[\"$9a43\"]\n9a40:{\"data\":\"$9a41\",\"content\":\"$9a42\",\"nodeType\":\"paragraph\"}\n9a49:{}\n9a4c:{}\n9a4d:[]\n9a4b:{\"data\":\"$9a4c\",\"marks\":\"$9a4d\",\"value\":\"âI want Eli to have a normal life,â Eli's dad said. âAnd the only thing I want to be different about him is the scar on his chest, which is a badge of honor for going through what he did.â\",\"nodeType\":\"text\"}\n9a4a:[\"$9a4b\"]\n9a48:{\"data\":\"$9a49\",\"content\":\"$9a4a\",\"nodeType\":\"paragraph\"}\n9a4f:{}\n9a50:[]\n9a4e:{\"data\":\"$9a4f\",\"content\":\"$9a50\",\"nodeType\":\"embedded-entry-block\"}\n9a52:{}\n9a55:{}\n9a56:[]\n9a54:{\"data\":\"$9a55\",\"marks\":\"$9a56\",\"value\":\"Eli Jacobson hadnât eaten a corn dog in years.\",\"nodeType\":\"text\"}\n9a53:[\"$9a54\"]\n9a51:{\"data\":\"$9a52\",\"content\":\"$9a53\",\"nodeType\":\"paragraph\"}\n9a58:{}\n9a5b:{}\n9a5c:[]\n9a5a:{\"data\":\"$9a5b\",\"marks\":\"$9a5c\",\"value\":\"But in the middle o"])</script>
1<script>self.__next_f.push([1,"f the night one year ago, the then-6-year-old woke up craving one. \",\"nodeType\":\"text\"}\n9a59:[\"$9a5a\"]\n9a57:{\"data\":\"$9a58\",\"content\":\"$9a59\",\"nodeType\":\"paragraph\"}\n9a5e:{}\n9a61:{}\n9a62:[]\n9a60:{\"data\":\"$9a61\",\"marks\":\"$9a62\",\"value\":\"And he needed the hot, crispy junk food right then.\",\"nodeType\":\"text\"}\n9a5f:[\"$9a60\"]\n9a5d:{\"data\":\"$9a5e\",\"content\":\"$9a5f\",\"nodeType\":\"paragraph\"}\n9a64:{}\n9a67:{}\n9a68:[]\n9a66:{\"data\":\"$9a67\",\"marks\":\"$9a68\",\"value\":\"âHe marched into our bedroom and said, âI want corn dogs,ââ Eliâs dad Phil Jacobson said. âAnd my wife said, âHoney, you havenât eaten those in years. We donât have any.â And Eli said, âI think you do.ââ\",\"nodeType\":\"text\"}\n9a65:[\"$9a66\"]\n9a63:{\"data\":\"$9a64\",\"content\":\"$9a65\",\"nodeType\":\"paragraph\"}\n9a6a:{}\n9a6d:{}\n9a6e:[]\n9a6c:{\"data\":\"$9a6d\",\"marks\":\"$9a6e\",\"value\":\"The family now laughs at the memory. But last year, Phil and his wife, Susan, were too exhausted and scared to find it funny. \",\"nodeType\":\"text\"}\n9a6b:[\"$9a6c\"]\n9a69:{\"data\":\"$9a6a\",\"content\":\"$9a6b\",\"nodeType\":\"paragraph\"}\n9a70:{}\n9a73:{}\n9a74:[]\n9a72:{\"data\":\"$9a73\",\"marks\":\"$9a74\",\"value\":\"Their goofy, curly-haired boy -- who loves sâmores and dressing up with Yoda ears and a light saber -- was craving corn dogs as a side effect of cancer drugs. And the family was relying on clinicians at Childrenâs Health to save his life.\",\"nodeType\":\"text\"}\n9a71:[\"$9a72\"]\n9a6f:{\"data\":\"$9a70\",\"content\":\"$9a71\",\"nodeType\":\"paragraph\"}\n9a76:{}\n9a79:{}\n9a7a:[]\n9a78:{\"data\":\"$9a79\",\"marks\":\"$9a7a\",\"value\":\"âThereâs nowhere else I would have considered going to take care of him,â Phil said.\",\"nodeType\":\"text\"}\n9a77:[\"$9a78\"]\n9a75:{\"data\":\"$9a76\",\"content\":\"$9a77\",\"nodeType\":\"paragraph\"}\n9a7c:{}\n9a7f:{}\n9a80:[]\n9a7e:{\"data\":\"$9a7f\",\"marks\":\"$9a80\",\"value\":\"âHeâs tough, very toughâ\",\"nodeType\":\"text\"}\n9a7d:[\"$9a7e\"]\n9a7b:{\"data\":\"$9a7c\",\"content\":\"$9a7d\",\"nodeType\":\"heading-3\"}\n9a82:{}\n9a85:{}\n9a86:[]\n9a84:{\"data\":\"$9a85\",\"marks\":\"$9a86\",\"value\":\"Eli was diagnosed with acute l"])</script>
1<script>self.__next_f.push([1,"ymphoblastic leukemia at Childrenâs Medical Center of Dallas, the flagship hospital of Childrenâs Health, after he woke up crying one morning in February 2018 with a sore arm.\",\"nodeType\":\"text\"}\n9a83:[\"$9a84\"]\n9a81:{\"data\":\"$9a82\",\"content\":\"$9a83\",\"nodeType\":\"paragraph\"}\n9a88:{}\n9a89:[]\n9a87:{\"data\":\"$9a88\",\"content\":\"$9a89\",\"nodeType\":\"embedded-entry-block\"}\n9a8b:{}\n9a8e:{}\n9a8f:[]\n9a8d:{\"data\":\"$9a8e\",\"marks\":\"$9a8f\",\"value\":\"The disease meant a routine of chemotherapy medicine and steroids.\",\"nodeType\":\"text\"}\n9a8c:[\"$9a8d\"]\n9a8a:{\"data\":\"$9a8b\",\"content\":\"$9a8c\",\"nodeType\":\"paragraph\"}\n9a91:{}\n9a94:{}\n9a95:[]\n9a93:{\"data\":\"$9a94\",\"marks\":\"$9a95\",\"value\":\"The drugs also brought on uncontrollable cravings for Eli to the point of tears. Corn dogs â middle of the night corn dogs. Garlic bread with every meal. \",\"nodeType\":\"text\"}\n9a92:[\"$9a93\"]\n9a90:{\"data\":\"$9a91\",\"content\":\"$9a92\",\"nodeType\":\"paragraph\"}\n9a97:{}\n9a9a:{}\n9a9b:[]\n9a99:{\"data\":\"$9a9a\",\"marks\":\"$9a9b\",\"value\":\"âHe wasnât himself at all during that time. He was miserable,â Phil said. âAnd if he wasnât miserable, he wanted to eat something.â\",\"nodeType\":\"text\"}\n9a98:[\"$9a99\"]\n9a96:{\"data\":\"$9a97\",\"content\":\"$9a98\",\"nodeType\":\"paragraph\"}\n9a9d:{}\n9aa0:{}\n9aa1:[]\n9a9f:{\"data\":\"$9aa0\",\"marks\":\"$9aa1\",\"value\":\"One day, Eli came to Phil with a fistful of curly, light brown hair and asked to buzz off what was left.\",\"nodeType\":\"text\"}\n9a9e:[\"$9a9f\"]\n9a9c:{\"data\":\"$9a9d\",\"content\":\"$9a9e\",\"nodeType\":\"paragraph\"}\n9aa3:{}\n9aa6:{}\n9aa7:[]\n9aa5:{\"data\":\"$9aa6\",\"marks\":\"$9aa7\",\"value\":\"Phil and Susan smothered the top of their sonâs shiny, perfectly round bald head with kisses.\",\"nodeType\":\"text\"}\n9aa4:[\"$9aa5\"]\n9aa2:{\"data\":\"$9aa3\",\"content\":\"$9aa4\",\"nodeType\":\"paragraph\"}\n9aa9:{}\n9aac:{}\n9aad:[]\n9aab:{\"data\":\"$9aac\",\"marks\":\"$9aad\",\"value\":\"âHeâs tough, very tough,â Phil said. âThatâs been good for us.â\",\"nodeType\":\"text\"}\n9aaa:[\"$9aab\"]\n9aa8:{\"data\":\"$9aa9\",\"content\":\"$9aaa\",\"nodeType\":\"paragraph\"}\n9aaf:{}\n9ab2:{}\n9ab3:[]\n9ab"])</script>
1<script>self.__next_f.push([1,"1:{\"data\":\"$9ab2\",\"marks\":\"$9ab3\",\"value\":\"A life-saving find\",\"nodeType\":\"text\"}\n9ab0:[\"$9ab1\"]\n9aae:{\"data\":\"$9aaf\",\"content\":\"$9ab0\",\"nodeType\":\"heading-3\"}\n9ab5:{}\n9ab8:{}\n9ab9:[]\n9ab7:{\"data\":\"$9ab8\",\"marks\":\"$9ab9\",\"value\":\"The diagnosis shocked the family. Phil and Susan initially thought when Eli woke up crying with a sore arm that maybe he had slept on it funny. Or maybe it was growing pains.\",\"nodeType\":\"text\"}\n9ab6:[\"$9ab7\"]\n9ab4:{\"data\":\"$9ab5\",\"content\":\"$9ab6\",\"nodeType\":\"paragraph\"}\n9abb:{}\n9abe:{}\n9abf:[]\n9abd:{\"data\":\"$9abe\",\"marks\":\"$9abf\",\"value\":\"âYou keep hoping maybe itâs wrong,â Susan said of the diagnosis.\",\"nodeType\":\"text\"}\n9abc:[\"$9abd\"]\n9aba:{\"data\":\"$9abb\",\"content\":\"$9abc\",\"nodeType\":\"paragraph\"}\n9ac1:{}\n9ac4:{}\n9ac5:[]\n9ac3:{\"data\":\"$9ac4\",\"marks\":\"$9ac5\",\"value\":\"When his parents first took him to Childrenâs Health, doctors found a massive infection on Eliâs right arm, surgically removed it and discharged him.\",\"nodeType\":\"text\"}\n9ac2:[\"$9ac3\"]\n9ac0:{\"data\":\"$9ac1\",\"content\":\"$9ac2\",\"nodeType\":\"paragraph\"}\n9ac7:{}\n9aca:{}\n9acb:[]\n9ac9:{\"data\":\"$9aca\",\"marks\":\"$9acb\",\"value\":\"But a couple days later, an employee at Childrenâs Health called, asking the family to bring Eli to the emergency room.\",\"nodeType\":\"text\"}\n9ac8:[\"$9ac9\"]\n9ac6:{\"data\":\"$9ac7\",\"content\":\"$9ac8\",\"nodeType\":\"paragraph\"}\n9acd:{}\n9ad0:{}\n9ad1:[]\n9acf:{\"data\":\"$9ad0\",\"marks\":\"$9ad1\",\"value\":\"A pathologist, who had been out of town over the weekend, had looked at their sonâs bloodwork and noticed an abnormality.\",\"nodeType\":\"text\"}\n9ace:[\"$9acf\"]\n9acc:{\"data\":\"$9acd\",\"content\":\"$9ace\",\"nodeType\":\"paragraph\"}\n9ad3:{}\n9ad6:{}\n9ad7:[]\n9ad5:{\"data\":\"$9ad6\",\"marks\":\"$9ad7\",\"value\":\"âWe think back now, and it was the thoroughness of that pathologist -- who wanted to doublecheck after all doubt had been removed -- that saved Eliâs life,â Susan said.\",\"nodeType\":\"text\"}\n9ad4:[\"$9ad5\"]\n9ad2:{\"data\":\"$9ad3\",\"content\":\"$9ad4\",\"nodeType\":\"paragraph\"}\n9ad9:{}\n9adc:{}\n9add:[]\n9adb:{\"data\":\"$9adc\",\"marks\":\"$9add"])</script>
1<script>self.__next_f.push([1,"\",\"value\":\"New kind of normal\",\"nodeType\":\"text\"}\n9ada:[\"$9adb\"]\n9ad8:{\"data\":\"$9ad9\",\"content\":\"$9ada\",\"nodeType\":\"heading-3\"}\n9adf:{}\n9ae2:{}\n9ae3:[]\n9ae1:{\"data\":\"$9ae2\",\"marks\":\"$9ae3\",\"value\":\"A couple weeks after Eliâs diagnosis, the family celebrated his 7th birthday at home, alone.\",\"nodeType\":\"text\"}\n9ae0:[\"$9ae1\"]\n9ade:{\"data\":\"$9adf\",\"content\":\"$9ae0\",\"nodeType\":\"paragraph\"}\n9ae5:{}\n9ae8:{}\n9ae9:[]\n9ae7:{\"data\":\"$9ae8\",\"marks\":\"$9ae9\",\"value\":\"âWe used to be a family who loved to go out to eat and travel. And suddenly, all of that was gone. You canât even go to McDonaldâs,â Phil said. âEvery weekend is something here at home.â\",\"nodeType\":\"text\"}\n9ae6:[\"$9ae7\"]\n9ae4:{\"data\":\"$9ae5\",\"content\":\"$9ae6\",\"nodeType\":\"paragraph\"}\n9aeb:{}\n9aee:{}\n9aef:[]\n9aed:{\"data\":\"$9aee\",\"marks\":\"$9aef\",\"value\":\"They turned their Frisco home into a fortress against germs.\",\"nodeType\":\"text\"}\n9aec:[\"$9aed\"]\n9aea:{\"data\":\"$9aeb\",\"content\":\"$9aec\",\"nodeType\":\"paragraph\"}\n9af1:{}\n9af4:{}\n9af5:[]\n9af3:{\"data\":\"$9af4\",\"marks\":\"$9af5\",\"value\":\"Family members and friends keep their shoes in a pile by the front door. At the entrance, there is a bottle of Purell hand sanitizer to rub on when entering the house. \",\"nodeType\":\"text\"}\n9af2:[\"$9af3\"]\n9af0:{\"data\":\"$9af1\",\"content\":\"$9af2\",\"nodeType\":\"paragraph\"}\n9af7:{}\n9afa:{}\n9afb:[]\n9af9:{\"data\":\"$9afa\",\"marks\":\"$9afb\",\"value\":\"Eliâs older sister, Sara, 9, had to find a new home for her bearded dragon pet lizard -- a birthday gift from her parents the summer before -- because of the reptileâs salmonella risk to Eli.\",\"nodeType\":\"text\"}\n9af8:[\"$9af9\"]\n9af6:{\"data\":\"$9af7\",\"content\":\"$9af8\",\"nodeType\":\"paragraph\"}\n9afd:{}\n9b00:{}\n9b01:[]\n9aff:{\"data\":\"$9b00\",\"marks\":\"$9b01\",\"value\":\"In the first couple weeks after Eliâs diagnosis, Phil canceled a family trip to Aulani, a Disney resort and spa in Hawaii. \",\"nodeType\":\"text\"}\n9afe:[\"$9aff\"]\n9afc:{\"data\":\"$9afd\",\"content\":\"$9afe\",\"nodeType\":\"paragraph\"}\n9b03:{}\n9b06:{}\n9b07:[]\n9b05:{\"data\":\"$9b06\",\"marks\":\"$9b07\",\"valu"])</script>
1<script>self.__next_f.push([1,"e\":\"Every call to an airline or hotel was a blow, forcing him to relive Eliâs diagnosis and his familyâs new reality.\",\"nodeType\":\"text\"}\n9b04:[\"$9b05\"]\n9b02:{\"data\":\"$9b03\",\"content\":\"$9b04\",\"nodeType\":\"paragraph\"}\n9b09:{}\n9b0c:{}\n9b0d:[]\n9b0b:{\"data\":\"$9b0c\",\"marks\":\"$9b0d\",\"value\":\"âI just wanted to fast forward through that first year,â he said.\",\"nodeType\":\"text\"}\n9b0a:[\"$9b0b\"]\n9b08:{\"data\":\"$9b09\",\"content\":\"$9b0a\",\"nodeType\":\"paragraph\"}\n9b0f:{}\n9b12:{}\n9b13:[]\n9b11:{\"data\":\"$9b12\",\"marks\":\"$9b13\",\"value\":\"Moving forward\",\"nodeType\":\"text\"}\n9b10:[\"$9b11\"]\n9b0e:{\"data\":\"$9b0f\",\"content\":\"$9b10\",\"nodeType\":\"heading-3\"}\n9b15:{}\n9b18:{}\n9b19:[]\n9b17:{\"data\":\"$9b18\",\"marks\":\"$9b19\",\"value\":\"The family is now in the second year of Eliâs treatment.\",\"nodeType\":\"text\"}\n9b16:[\"$9b17\"]\n9b14:{\"data\":\"$9b15\",\"content\":\"$9b16\",\"nodeType\":\"paragraph\"}\n9b1b:{}\n9b1e:{}\n9b1f:[]\n9b1d:{\"data\":\"$9b1e\",\"marks\":\"$9b1f\",\"value\":\"Each night, Eli, now 8, takes chemotherapy medicine mixed with applesauce that his mom spoons into his mouth while he sits on the living room couch and watches a show on his iPad. For a week every month, he also takes steroids.\",\"nodeType\":\"text\"}\n9b1c:[\"$9b1d\"]\n9b1a:{\"data\":\"$9b1b\",\"content\":\"$9b1c\",\"nodeType\":\"paragraph\"}\n9b21:{}\n9b24:{}\n9b25:[]\n9b23:{\"data\":\"$9b24\",\"marks\":\"$9b25\",\"value\":\"And once a month, he visits a Childrenâs Health specialty center in Plano for a check up.\",\"nodeType\":\"text\"}\n9b22:[\"$9b23\"]\n9b20:{\"data\":\"$9b21\",\"content\":\"$9b22\",\"nodeType\":\"paragraph\"}\n9b27:{}\n9b2a:{}\n9b2b:[]\n9b29:{\"data\":\"$9b2a\",\"marks\":\"$9b2b\",\"value\":\"âWe feel extremely comforted with the doctors at Childrenâs and so well supported by the Child Life and nursing staff,â Phil said.\",\"nodeType\":\"text\"}\n9b28:[\"$9b29\"]\n9b26:{\"data\":\"$9b27\",\"content\":\"$9b28\",\"nodeType\":\"paragraph\"}\n9b2d:{}\n9b30:{}\n9b31:[]\n9b2f:{\"data\":\"$9b30\",\"marks\":\"$9b31\",\"value\":\"Last year, Eli attended Camp Esperanza -- a summer camp for kids treated at Childrenâs Medical Center of Dallas -- and plans to return this year. A"])</script>
1<script>self.__next_f.push([1,"nd last fall, the family participated in Childrenâs Oncology Family Retreat, which brings parents, patients and siblings together to meet each other and share their experiences.\",\"nodeType\":\"text\"}\n9b2e:[\"$9b2f\"]\n9b2c:{\"data\":\"$9b2d\",\"content\":\"$9b2e\",\"nodeType\":\"paragraph\"}\n9b33:{}\n9b36:{}\n9b37:[]\n9b35:{\"data\":\"$9b36\",\"marks\":\"$9b37\",\"value\":\"âThat was such a healing moment for us,â Phil said. âAnd we wouldnât have known about any of it if it wasnât for Childrenâs.â\",\"nodeType\":\"text\"}\n9b34:[\"$9b35\"]\n9b32:{\"data\":\"$9b33\",\"content\":\"$9b34\",\"nodeType\":\"paragraph\"}\n9b39:{}\n9b3c:{}\n9b3d:[]\n9b3b:{\"data\":\"$9b3c\",\"marks\":\"$9b3d\",\"value\":\"The Jacobsons still must live under some restrictions. The family canât travel out of the country and can only visit places within an hour of a doctor-approved hospital.\",\"nodeType\":\"text\"}\n9b3a:[\"$9b3b\"]\n9b38:{\"data\":\"$9b39\",\"content\":\"$9b3a\",\"nodeType\":\"paragraph\"}\n9b3f:{}\n9b42:{}\n9b43:[]\n9b41:{\"data\":\"$9b42\",\"marks\":\"$9b43\",\"value\":\"In January, Eli returned to school at Hosp Elementary in Frisco ISD, where he is in first grade.\",\"nodeType\":\"text\"}\n9b40:[\"$9b41\"]\n9b3e:{\"data\":\"$9b3f\",\"content\":\"$9b40\",\"nodeType\":\"paragraph\"}\n9b45:{}\n9b48:{}\n9b49:[]\n9b47:{\"data\":\"$9b48\",\"marks\":\"$9b49\",\"value\":\"âI want Eli to have a normal life,â Phil said, sitting on the couch with his family on a Friday afternoon in April. âAnd the only thing I want to be different about him is the scar on his chest, which is a badge of honor for going through what he did.â \",\"nodeType\":\"text\"}\n9b46:[\"$9b47\"]\n9b44:{\"data\":\"$9b45\",\"content\":\"$9b46\",\"nodeType\":\"paragraph\"}\n9b4b:{}\n9b4e:{}\n9b4f:[]\n9b4d:{\"data\":\"$9b4e\",\"marks\":\"$9b4f\",\"value\":\"Then Eli whispered to Susan and asked her to cook him a corn dog for dinner.\",\"nodeType\":\"text\"}\n9b4c:[\"$9b4d\"]\n9b4a:{\"data\":\"$9b4b\",\"content\":\"$9b4c\",\"nodeType\":\"paragraph\"}\n9b51:{}\n9b54:{}\n9b55:[]\n9b53:{\"data\":\"$9b54\",\"marks\":\"$9b55\",\"value\":\"Read more \",\"nodeType\":\"text\"}\n9b57:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n9b5a:{}\n9b5b:["])</script>
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1<script>self.__next_f.push([1,"Reagan and Leo do not have the most common variant of sickle cell disease, and for most of their lives, there have not been effective treatment options to offer because of a lack of available FDA-approved therapies.\",\"nodeType\":\"text\"}\n9c13:[\"$9c14\"]\n9c11:{\"data\":\"$9c12\",\"content\":\"$9c13\",\"nodeType\":\"paragraph\"}\n9c18:{}\n9c1b:{}\n9c1c:[]\n9c1a:{\"data\":\"$9c1b\",\"marks\":\"$9c1c\",\"value\":\"Even today, there are only a few options available and curative treatments are still being actively researched.\",\"nodeType\":\"text\"}\n9c19:[\"$9c1a\"]\n9c17:{\"data\":\"$9c18\",\"content\":\"$9c19\",\"nodeType\":\"paragraph\"}\n9c1e:{}\n9c1f:[]\n9c1d:{\"data\":\"$9c1e\",\"content\":\"$9c1f\",\"nodeType\":\"embedded-entry-block\"}\n9c21:{}\n9c24:{}\n9c25:[]\n9c23:{\"data\":\"$9c24\",\"marks\":\"$9c25\",\"value\":\"But even though the disease is invisible, the pain is real.\",\"nodeType\":\"text\"}\n9c22:[\"$9c23\"]\n9c20:{\"data\":\"$9c21\",\"content\":\"$9c22\",\"nodeType\":\"paragraph\"}\n9c27:{}\n9c2a:{}\n9c2b:[]\n9c29:{\"data\":\"$9c2a\",\"marks\":\"$9c2b\",\"value\":\"âItâs nice to have Childrenâs Health as a place where the boys know theyâre going to be taken seriouslyâ because being believed is such a question mark for people living with sickle cell disease,â Jaimee said.\",\"nodeType\":\"text\"}\n9c28:[\"$9c29\"]\n9c26:{\"data\":\"$9c27\",\"content\":\"$9c28\",\"nodeType\":\"paragraph\"}\n9c2d:{}\n9c30:{}\n9c31:[]\n9c2f:{\"data\":\"$9c30\",\"marks\":\"$9c31\",\"value\":\"For Reagan, repeated pain has weakened muscles in his right armâthe arm he uses to throw a baseballâ and his left leg. He also has seen a psychologist at Childrenâs Health to learn mental tactics to help cope with the pain. Jaimee and her husband encourage the boys to live life as if they donât have the diseaseââlife without limitsâ is their motto.\",\"nodeType\":\"text\"}\n9c2e:[\"$9c2f\"]\n9c2c:{\"data\":\"$9c2d\",\"content\":\"$9c2e\",\"nodeType\":\"paragraph\"}\n9c33:{}\n9c36:{}\n9c37:[]\n9c35:{\"data\":\"$9c36\",\"marks\":\"$9c37\",\"value\":\"***\",\"nodeType\":\"text\"}\n9c34:[\"$9c35\"]\n9c32:{\"data\":\"$9c33\",\"content\":\"$9c34\",\"nodeType\":\"paragraph\"}\n9c39:{}\n9c3c:{}\n9c3d:[]\n9c3b:{\"data\":\"$9c"])</script>
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1<script>self.__next_f.push([1,"los\",\"nodeType\":\"text\"}\n9cfc:[\"$9cfd\"]\n9cfa:{\"data\":\"$9cfb\",\"content\":\"$9cfc\",\"nodeType\":\"hyperlink\"}\n9d01:{}\n9d02:[]\n9d00:{\"data\":\"$9d01\",\"marks\":\"$9d02\",\"value\":\" and his family found expert care and support at The Heart Center at Children's Health, giving him a second chance at life. \",\"nodeType\":\"text\"}\n9cf2:[\"$9cf3\",\"$9cf7\",\"$9cfa\",\"$9d00\"]\n9cf0:{\"data\":\"$9cf1\",\"content\":\"$9cf2\",\"nodeType\":\"paragraph\"}\n9d04:{}\n9d05:[]\n9d03:{\"data\":\"$9d04\",\"content\":\"$9d05\",\"nodeType\":\"embedded-entry-block\"}\n9d07:{}\n9d0a:{}\n9d0c:{\"type\":\"bold\"}\n9d0b:[\"$9d0c\"]\n9d09:{\"data\":\"$9d0a\",\"marks\":\"$9d0b\",\"value\":\"UPDATE (Aug. 17, 2022):\",\"nodeType\":\"text\"}\n9d0e:{}\n9d0f:[]\n9d0d:{\"data\":\"$9d0e\",\"marks\":\"$9d0f\",\"value\":\"When Carlos grows up, his dream is to care for animals and be a dad. \",\"nodeType\":\"text\"}\n9d08:[\"$9d09\",\"$9d0d\"]\n9d06:{\"data\":\"$9d07\",\"content\":\"$9d08\",\"nodeType\":\"paragraph\"}\n9d11:{}\n9d14:{}\n9d15:[]\n9d13:{\"data\":\"$9d14\",\"marks\":\"$9d15\",\"value\":\"That's what he told of a crowd of parents at his pre-kindergarten graduation in May. \",\"nodeType\":\"text\"}\n9d12:[\"$9d13\"]\n9d10:{\"data\":\"$9d11\",\"content\":\"$9d12\",\"nodeType\":\"paragraph\"}\n9d17:{}\n9d1a:{}\n9d1b:[]\n9d19:{\"data\":\"$9d1a\",\"marks\":\"$9d1b\",\"value\":\"Now more than two years since his life-saving heart transplant, his mom, Karla, is grateful for the care team at Childrenâs Healthâ and donor family that gave him a second chance to make those dreams come true. \",\"nodeType\":\"text\"}\n9d18:[\"$9d19\"]\n9d16:{\"data\":\"$9d17\",\"content\":\"$9d18\",\"nodeType\":\"paragraph\"}\n9d1d:{}\n9d20:{}\n9d21:[]\n9d1f:{\"data\":\"$9d20\",\"marks\":\"$9d21\",\"value\":\"Because since his transplant, Carlos hasnât stopped jumping, kicking and flipping like a ninja. And Karla is savoring every moment. \",\"nodeType\":\"text\"}\n9d1e:[\"$9d1f\"]\n9d1c:{\"data\":\"$9d1d\",\"content\":\"$9d1e\",\"nodeType\":\"paragraph\"}\n9d23:{}\n9d26:{}\n9d27:[]\n9d25:{\"data\":\"$9d26\",\"marks\":\"$9d27\",\"value\":\"âI used to take so many things for granted,â Karla said. âNow, every moment is special.â \",\"nodeType\":\"text\"}\n9d24:[\"$9d25\"]\n9d22:{\"data\":\"$9d23\",\"c"])</script>
1<script>self.__next_f.push([1,"ontent\":\"$9d24\",\"nodeType\":\"paragraph\"}\n9d29:{}\n9d2c:{}\n9d2d:[]\n9d2b:{\"data\":\"$9d2c\",\"marks\":\"$9d2d\",\"value\":\"That includes moments like the hug Carlos gave his teacher during his pre-school graduation; his dance moves at his first wedding this spring; blowing out his candles on his fifth birthday surrounded by extended family in Mexico City; and of course, playdates at the park with his best friend Harrison, who has a matching scar down the center of his chest. \",\"nodeType\":\"text\"}\n9d2a:[\"$9d2b\"]\n9d28:{\"data\":\"$9d29\",\"content\":\"$9d2a\",\"nodeType\":\"paragraph\"}\n9d2f:{}\n9d32:{}\n9d33:[]\n9d31:{\"data\":\"$9d32\",\"marks\":\"$9d33\",\"value\":\"In 2020, both boys received heart transplants within months of each other at Childrenâs Health that saved their lives. \",\"nodeType\":\"text\"}\n9d30:[\"$9d31\"]\n9d2e:{\"data\":\"$9d2f\",\"content\":\"$9d30\",\"nodeType\":\"paragraph\"}\n9d35:{}\n9d38:{}\n9d39:[]\n9d37:{\"data\":\"$9d38\",\"marks\":\"$9d39\",\"value\":\"Two years ago, the families met in a break room at Childrenâs Medical Center Dallas. \",\"nodeType\":\"text\"}\n9d36:[\"$9d37\"]\n9d34:{\"data\":\"$9d35\",\"content\":\"$9d36\",\"nodeType\":\"paragraph\"}\n9d3b:{}\n9d3e:{}\n9d3f:[]\n9d3d:{\"data\":\"$9d3e\",\"marks\":\"$9d3f\",\"value\":\"Carlos -- who was diagnosed suddenly with restrictive cardiomyopathy -- had just been admitted to the hospital to wait for a new heart. And Harrison -- who was diagnosed with dilated cardiomyopathy after his first birthday -- was recovering from his heart transplant. \",\"nodeType\":\"text\"}\n9d3c:[\"$9d3d\"]\n9d3a:{\"data\":\"$9d3b\",\"content\":\"$9d3c\",\"nodeType\":\"paragraph\"}\n9d41:{}\n9d44:{}\n9d45:[]\n9d43:{\"data\":\"$9d44\",\"marks\":\"$9d45\",\"value\":\"Both boys have been cared for by Nathanya Baez Hernandez, M.D., Pediatric Cardiologist at Childrenâs Health. For Karla and her husband, Johnny, they were grateful to be paired with a physician who could explain Carlosâ diagnosis and complex medical terminology in Spanish, which is the bilingual coupleâs first language. \",\"nodeType\":\"text\"}\n9d42:[\"$9d43\"]\n9d40:{\"data\":\"$9d41\",\"content\":\"$9d42\",\"nodeType\":\"paragraph\"}\n9d4"])</script>
1<script>self.__next_f.push([1,"7:{}\n9d4a:{}\n9d4b:[]\n9d49:{\"data\":\"$9d4a\",\"marks\":\"$9d4b\",\"value\":\"âI loved the fact that Dr. Hernandez spoke to me in Spanish. My English is good, but a diagnosis like that was hard for me to understand,â Karla said. âAnd Dr. Hernandez gave me hope.â \",\"nodeType\":\"text\"}\n9d48:[\"$9d49\"]\n9d46:{\"data\":\"$9d47\",\"content\":\"$9d48\",\"nodeType\":\"paragraph\"}\n9d4d:{}\n9d50:{}\n9d51:[]\n9d4f:{\"data\":\"$9d50\",\"marks\":\"$9d51\",\"value\":\"This fall, Carlos and Harrison will start kindergarten. And while both familiesâ schedules have been busier with work and school post-transplant, they still make time to celebrate together. \",\"nodeType\":\"text\"}\n9d4e:[\"$9d4f\"]\n9d4c:{\"data\":\"$9d4d\",\"content\":\"$9d4e\",\"nodeType\":\"paragraph\"}\n9d53:{}\n9d56:{}\n9d57:[]\n9d55:{\"data\":\"$9d56\",\"marks\":\"$9d57\",\"value\":\"Carlos even shared the story of his unique bond with Harrison with classmates during an âabout meâ presentation at school. \",\"nodeType\":\"text\"}\n9d54:[\"$9d55\"]\n9d52:{\"data\":\"$9d53\",\"content\":\"$9d54\",\"nodeType\":\"paragraph\"}\n9d59:{}\n9d5c:{}\n9d5d:[]\n9d5b:{\"data\":\"$9d5c\",\"marks\":\"$9d5d\",\"value\":\"âHe wanted to include a photo of him and Harrison and told his school friends, âThatâs my best friend Harrison, and he had a heart transplant just like me,ââ Karla said. âThey know they have this special experience in common.â \",\"nodeType\":\"text\"}\n9d5a:[\"$9d5b\"]\n9d58:{\"data\":\"$9d59\",\"content\":\"$9d5a\",\"nodeType\":\"paragraph\"}\n9d5f:{}\n9d62:{}\n9d63:[]\n9d61:{\"data\":\"$9d62\",\"marks\":\"$9d63\",\"value\":\"***\",\"nodeType\":\"text\"}\n9d60:[\"$9d61\"]\n9d5e:{\"data\":\"$9d5f\",\"content\":\"$9d60\",\"nodeType\":\"paragraph\"}\n9d65:{}\n9d68:{}\n9d6a:{\"type\":\"bold\"}\n9d69:[\"$9d6a\"]\n9d67:{\"data\":\"$9d68\",\"marks\":\"$9d69\",\"value\":\"ORIGINAL STORY\",\"nodeType\":\"text\"}\n9d66:[\"$9d67\"]\n9d64:{\"data\":\"$9d65\",\"content\":\"$9d66\",\"nodeType\":\"paragraph\"}\n9d6c:{}\n9d6f:{}\n9d70:[]\n9d6e:{\"data\":\"$9d6f\",\"marks\":\"$9d70\",\"value\":\"Carlos and Harrison donât have a lot of common interests. \",\"nodeType\":\"text\"}\n9d6d:[\"$9d6e\"]\n9d6b:{\"data\":\"$9d6c\",\"content\":\"$9d6d\",\"nodeType\":\"paragraph\"}\n9d72:{}\n9d"])</script>
1<script>self.__next_f.push([1,"75:{}\n9d76:[]\n9d74:{\"data\":\"$9d75\",\"marks\":\"$9d76\",\"value\":\"One loves to roar like a dinosaur, go on explorations for insects and read National Geographic books. \",\"nodeType\":\"text\"}\n9d73:[\"$9d74\"]\n9d71:{\"data\":\"$9d72\",\"content\":\"$9d73\",\"nodeType\":\"paragraph\"}\n9d78:{}\n9d7b:{}\n9d7c:[]\n9d7a:{\"data\":\"$9d7b\",\"marks\":\"$9d7c\",\"value\":\"The other prefers to shoot his web like Spiderman, kick and jump like the next karate kid and is bilingual, speaking Spanish and English. \",\"nodeType\":\"text\"}\n9d79:[\"$9d7a\"]\n9d77:{\"data\":\"$9d78\",\"content\":\"$9d79\",\"nodeType\":\"paragraph\"}\n9d7e:{}\n9d81:{}\n9d82:[]\n9d80:{\"data\":\"$9d81\",\"marks\":\"$9d82\",\"value\":\"But the 4-year-old boys are best friends, united by matching scars down the center of their chests. \",\"nodeType\":\"text\"}\n9d7f:[\"$9d80\"]\n9d7d:{\"data\":\"$9d7e\",\"content\":\"$9d7f\",\"nodeType\":\"paragraph\"}\n9d84:{}\n9d87:{}\n9d88:[]\n9d86:{\"data\":\"$9d87\",\"marks\":\"$9d88\",\"value\":\"Last year, both received heart transplants at Childrenâs Health that saved their lives. \",\"nodeType\":\"text\"}\n9d85:[\"$9d86\"]\n9d83:{\"data\":\"$9d84\",\"content\":\"$9d85\",\"nodeType\":\"paragraph\"}\n9d8a:{}\n9d8b:[]\n9d89:{\"data\":\"$9d8a\",\"content\":\"$9d8b\",\"nodeType\":\"embedded-entry-block\"}\n9d8d:{}\n9d90:{}\n9d91:[]\n9d8f:{\"data\":\"$9d90\",\"marks\":\"$9d91\",\"value\":\"âI owe the team at Childrenâs Health everything. They gave me my baby back, and they treated him with so much respect and love,â Carlosâ mom, Karla, said. âAnd Harrisonâs family is like our family now.â \",\"nodeType\":\"text\"}\n9d8e:[\"$9d8f\"]\n9d8c:{\"data\":\"$9d8d\",\"content\":\"$9d8e\",\"nodeType\":\"paragraph\"}\n9d93:{}\n9d96:{}\n9d97:[]\n9d95:{\"data\":\"$9d96\",\"marks\":\"$9d97\",\"value\":\"The families met last spring in a break room on the 8th floor at Childrenâs Medical Center Dallas, the flagship hospital of Childrenâs Health. \",\"nodeType\":\"text\"}\n9d94:[\"$9d95\"]\n9d92:{\"data\":\"$9d93\",\"content\":\"$9d94\",\"nodeType\":\"paragraph\"}\n9d99:{}\n9d9c:{}\n9d9d:[]\n9d9b:{\"data\":\"$9d9c\",\"marks\":\"$9d9d\",\"value\":\"Carlos -- who was diagnosed suddenly with restrictive cardiomyopathy -- had just been admi"])</script>
1<script>self.__next_f.push([1,"tted to the hospital to wait for a new heart. And Harrison -- who was diagnosed with dilated cardiomyopathy after his first birthday -- was recovering from his heart transplant. \",\"nodeType\":\"text\"}\n9d9a:[\"$9d9b\"]\n9d98:{\"data\":\"$9d99\",\"content\":\"$9d9a\",\"nodeType\":\"paragraph\"}\n9d9f:{}\n9da2:{}\n9da3:[]\n9da1:{\"data\":\"$9da2\",\"marks\":\"$9da3\",\"value\":\"Born 15 days apart, the boys received their transplants within two months of each other, and since then, the unique life experience has bonded the families. \",\"nodeType\":\"text\"}\n9da0:[\"$9da1\"]\n9d9e:{\"data\":\"$9d9f\",\"content\":\"$9da0\",\"nodeType\":\"paragraph\"}\n9da5:{}\n9da8:{}\n9da9:[]\n9da7:{\"data\":\"$9da8\",\"marks\":\"$9da9\",\"value\":\"âWe probably never would have met each other if it wasnât for this shared experience,â Harrisonâs mom, Gabrielle, said. âAnd since meeting, weâve been together almost every weekend. We're lifelong friends now.â \",\"nodeType\":\"text\"}\n9da6:[\"$9da7\"]\n9da4:{\"data\":\"$9da5\",\"content\":\"$9da6\",\"nodeType\":\"paragraph\"}\n9dab:{}\n9dae:{}\n9daf:[]\n9dad:{\"data\":\"$9dae\",\"marks\":\"$9daf\",\"value\":\"*** \",\"nodeType\":\"text\"}\n9dac:[\"$9dad\"]\n9daa:{\"data\":\"$9dab\",\"content\":\"$9dac\",\"nodeType\":\"paragraph\"}\n9db1:{}\n9db2:[]\n9db0:{\"data\":\"$9db1\",\"content\":\"$9db2\",\"nodeType\":\"embedded-entry-block\"}\n9db4:{}\n9db5:[]\n9db3:{\"data\":\"$9db4\",\"content\":\"$9db5\",\"nodeType\":\"embedded-entry-block\"}\n9db7:{}\n9dba:{}\n9dbb:[]\n9db9:{\"data\":\"$9dba\",\"marks\":\"$9dbb\",\"value\":\"Initially, Karla, and her husband, Johnny, thought Carlos had asthma. \",\"nodeType\":\"text\"}\n9db8:[\"$9db9\"]\n9db6:{\"data\":\"$9db7\",\"content\":\"$9db8\",\"nodeType\":\"paragraph\"}\n9dbd:{}\n9dc0:{}\n9dc1:[]\n9dbf:{\"data\":\"$9dc0\",\"marks\":\"$9dc1\",\"value\":\"Maybe thatâs why his stomach hurt when he walked more than a block, why heâd had difficulty breathing for a year and why his lips turned blue in the bath. \",\"nodeType\":\"text\"}\n9dbe:[\"$9dbf\"]\n9dbc:{\"data\":\"$9dbd\",\"content\":\"$9dbe\",\"nodeType\":\"paragraph\"}\n9dc3:{}\n9dc6:{}\n9dc7:[]\n9dc5:{\"data\":\"$9dc6\",\"marks\":\"$9dc7\",\"value\":\"But Carlos also began to dramatically lose weight. \",\"nodeTyp"])</script>
1<script>self.__next_f.push([1,"e\":\"text\"}\n9dc4:[\"$9dc5\"]\n9dc2:{\"data\":\"$9dc3\",\"content\":\"$9dc4\",\"nodeType\":\"paragraph\"}\n9dc9:{}\n9dcc:{}\n9dcd:[]\n9dcb:{\"data\":\"$9dcc\",\"marks\":\"$9dcd\",\"value\":\"Karla and Johnny took him to a local hospital and visited with several doctors, who eventually diagnosed Carlos with restrictive cardiomyopathy and referred them to Childrenâs Health. \",\"nodeType\":\"text\"}\n9dca:[\"$9dcb\"]\n9dc8:{\"data\":\"$9dc9\",\"content\":\"$9dca\",\"nodeType\":\"paragraph\"}\n9dcf:{}\n9dd2:{}\n9dd3:[]\n9dd1:{\"data\":\"$9dd2\",\"marks\":\"$9dd3\",\"value\":\"There, they met Nathanya Baez Hernandez, M.D., Pediatric Cardiologist. She explained Carlosâ diagnosis to Karla and Johnny in Spanish, which is the bilingual coupleâs first language. \",\"nodeType\":\"text\"}\n9dd0:[\"$9dd1\"]\n9dce:{\"data\":\"$9dcf\",\"content\":\"$9dd0\",\"nodeType\":\"paragraph\"}\n9dd5:{}\n9dd8:{}\n9dd9:[]\n9dd7:{\"data\":\"$9dd8\",\"marks\":\"$9dd9\",\"value\":\"âI loved the fact that Dr. Hernandez spoke to me in Spanish. My English is good, but a diagnosis like that was hard for me to understand,â Karla said. âBut the staff explained everything to us. They told us the truth.â \",\"nodeType\":\"text\"}\n9dd6:[\"$9dd7\"]\n9dd4:{\"data\":\"$9dd5\",\"content\":\"$9dd6\",\"nodeType\":\"paragraph\"}\n9ddb:{}\n9dde:{}\n9ddf:[]\n9ddd:{\"data\":\"$9dde\",\"marks\":\"$9ddf\",\"value\":\"âAnd Dr. Hernandez gave me hope.â \",\"nodeType\":\"text\"}\n9ddc:[\"$9ddd\"]\n9dda:{\"data\":\"$9ddb\",\"content\":\"$9ddc\",\"nodeType\":\"paragraph\"}\n9de1:{}\n9de4:{}\n9de5:[]\n9de3:{\"data\":\"$9de4\",\"marks\":\"$9de5\",\"value\":\"She also told them that Carlos needed to be listed for a heart transplant. \",\"nodeType\":\"text\"}\n9de2:[\"$9de3\"]\n9de0:{\"data\":\"$9de1\",\"content\":\"$9de2\",\"nodeType\":\"paragraph\"}\n9de7:{}\n9dea:{}\n9deb:[]\n9de9:{\"data\":\"$9dea\",\"marks\":\"$9deb\",\"value\":\"Karla and Johnny were shocked. \",\"nodeType\":\"text\"}\n9de8:[\"$9de9\"]\n9de6:{\"data\":\"$9de7\",\"content\":\"$9de8\",\"nodeType\":\"paragraph\"}\n9ded:{}\n9dee:[]\n9dec:{\"data\":\"$9ded\",\"content\":\"$9dee\",\"nodeType\":\"embedded-entry-block\"}\n9df0:{}\n9df3:{}\n9df4:[]\n9df2:{\"data\":\"$9df3\",\"marks\":\"$9df4\",\"value\":\"Carlos had never had a serious medical co"])</script>
1<script>self.__next_f.push([1,"ndition. Heâd never been hospitalized. And suddenly, they were told they would need to be admitted and remain at Childrenâs Health while they waited for a heart, since the status of restrictive cardiomyopathy patients can suddenly change. \",\"nodeType\":\"text\"}\n9df1:[\"$9df2\"]\n9def:{\"data\":\"$9df0\",\"content\":\"$9df1\",\"nodeType\":\"paragraph\"}\n9df6:{}\n9df9:{}\n9dfa:[]\n9df8:{\"data\":\"$9df9\",\"marks\":\"$9dfa\",\"value\":\"But amidst the tears and the waiting, Karla found joy in small moments. \",\"nodeType\":\"text\"}\n9df7:[\"$9df8\"]\n9df5:{\"data\":\"$9df6\",\"content\":\"$9df7\",\"nodeType\":\"paragraph\"}\n9dfc:{}\n9dff:{}\n9e00:[]\n9dfe:{\"data\":\"$9dff\",\"marks\":\"$9e00\",\"value\":\"A music therapist lent Johnny a guitar to play songs to Carlos in their hospital room. \",\"nodeType\":\"text\"}\n9dfd:[\"$9dfe\"]\n9dfb:{\"data\":\"$9dfc\",\"content\":\"$9dfd\",\"nodeType\":\"paragraph\"}\n9e02:{}\n9e05:{}\n9e06:[]\n9e04:{\"data\":\"$9e05\",\"marks\":\"$9e06\",\"value\":\"A fluffy, Goldendoodle \",\"nodeType\":\"text\"}\n9e08:{\"uri\":\"https://give.childrens.com/about-us/news/articles/therapy-dogs\"}\n9e0b:{}\n9e0c:[]\n9e0a:{\"data\":\"$9e0b\",\"marks\":\"$9e0c\",\"value\":\"therapy dog\",\"nodeType\":\"text\"}\n9e09:[\"$9e0a\"]\n9e07:{\"data\":\"$9e08\",\"content\":\"$9e09\",\"nodeType\":\"hyperlink\"}\n9e0e:{}\n9e0f:[]\n9e0d:{\"data\":\"$9e0e\",\"marks\":\"$9e0f\",\"value\":\" named Badger came for back scratches and to show Carlos his tricks. \",\"nodeType\":\"text\"}\n9e03:[\"$9e04\",\"$9e07\",\"$9e0d\"]\n9e01:{\"data\":\"$9e02\",\"content\":\"$9e03\",\"nodeType\":\"paragraph\"}\n9e11:{}\n9e14:{}\n9e15:[]\n9e13:{\"data\":\"$9e14\",\"marks\":\"$9e15\",\"value\":\"And Karla befriended another heart patient mom, whose son also was waiting for a transplant. Together, the boys drove battery-powered jeeps down the hospital hallways. They played like they were superheroes. And every week, they had a pizza party by the windows. \",\"nodeType\":\"text\"}\n9e12:[\"$9e13\"]\n9e10:{\"data\":\"$9e11\",\"content\":\"$9e12\",\"nodeType\":\"paragraph\"}\n9e17:{}\n9e1a:{}\n9e1b:[]\n9e19:{\"data\":\"$9e1a\",\"marks\":\"$9e1b\",\"value\":\"For a moment, Karla felt like she and Carlos were on a playdate at the park.\",\"nodeType\":\"text\"}\n"])</script>
1<script>self.__next_f.push([1,"9e18:[\"$9e19\"]\n9e16:{\"data\":\"$9e17\",\"content\":\"$9e18\",\"nodeType\":\"paragraph\"}\n9e1d:{}\n9e1e:[]\n9e1c:{\"data\":\"$9e1d\",\"content\":\"$9e1e\",\"nodeType\":\"embedded-entry-block\"}\n9e20:{}\n9e23:{}\n9e24:[]\n9e22:{\"data\":\"$9e23\",\"marks\":\"$9e24\",\"value\":\" âI thought I was going to be sad all the time, but I wasnât. Sometimes, I even forgot that we were waiting on a heart,â Karla said. âThe team at Childrenâs Health was so caring, and we met so many people who are now our best friends.â \",\"nodeType\":\"text\"}\n9e21:[\"$9e22\"]\n9e1f:{\"data\":\"$9e20\",\"content\":\"$9e21\",\"nodeType\":\"paragraph\"}\n9e26:{}\n9e29:{}\n9e2a:[]\n9e28:{\"data\":\"$9e29\",\"marks\":\"$9e2a\",\"value\":\"But as the days went by, Karla worried that a new heart wouldnât come in time. \",\"nodeType\":\"text\"}\n9e27:[\"$9e28\"]\n9e25:{\"data\":\"$9e26\",\"content\":\"$9e27\",\"nodeType\":\"paragraph\"}\n9e2c:{}\n9e2f:{}\n9e30:[]\n9e2e:{\"data\":\"$9e2f\",\"marks\":\"$9e30\",\"value\":\"âNot everybody on the transplant list makes it to transplant,â Dr. Hernandez cautioned. âAnd there are so many children waiting on one heart.â \",\"nodeType\":\"text\"}\n9e2d:[\"$9e2e\"]\n9e2b:{\"data\":\"$9e2c\",\"content\":\"$9e2d\",\"nodeType\":\"paragraph\"}\n9e32:{}\n9e35:{}\n9e36:[]\n9e34:{\"data\":\"$9e35\",\"marks\":\"$9e36\",\"value\":\"But Karla found support in an online community of other heart patient families, where she received a message from Gabrielle, Harrisonâs mom, asking if she wanted to talk. \",\"nodeType\":\"text\"}\n9e33:[\"$9e34\"]\n9e31:{\"data\":\"$9e32\",\"content\":\"$9e33\",\"nodeType\":\"paragraph\"}\n9e38:{}\n9e3b:{}\n9e3c:[]\n9e3a:{\"data\":\"$9e3b\",\"marks\":\"$9e3c\",\"value\":\"Harrison has been under the care of Childrenâs Health team members since 2018, when his parents, Gabrielle and Bobby, relocated from their home in North Carolina to Dallas for Harrison to be treated at the Heart Center. \",\"nodeType\":\"text\"}\n9e39:[\"$9e3a\"]\n9e37:{\"data\":\"$9e38\",\"content\":\"$9e39\",\"nodeType\":\"paragraph\"}\n9e3e:{}\n9e41:{}\n9e42:[]\n9e40:{\"data\":\"$9e41\",\"marks\":\"$9e42\",\"value\":\"âWe talked for four hours that night. It was like weâd been friends for 12 years,â K"])</script>
1<script>self.__next_f.push([1,"arla said. \",\"nodeType\":\"text\"}\n9e3f:[\"$9e40\"]\n9e3d:{\"data\":\"$9e3e\",\"content\":\"$9e3f\",\"nodeType\":\"paragraph\"}\n9e44:{}\n9e47:{}\n9e48:[]\n9e46:{\"data\":\"$9e47\",\"marks\":\"$9e48\",\"value\":\"And the next day, Karla received the call: Carlosâ heart was here. \",\"nodeType\":\"text\"}\n9e45:[\"$9e46\"]\n9e43:{\"data\":\"$9e44\",\"content\":\"$9e45\",\"nodeType\":\"paragraph\"}\n9e4a:{}\n9e4d:{}\n9e4e:[]\n9e4c:{\"data\":\"$9e4d\",\"marks\":\"$9e4e\",\"value\":\"*** \",\"nodeType\":\"text\"}\n9e4b:[\"$9e4c\"]\n9e49:{\"data\":\"$9e4a\",\"content\":\"$9e4b\",\"nodeType\":\"paragraph\"}\n9e50:{}\n9e53:{}\n9e54:[]\n9e52:{\"data\":\"$9e53\",\"marks\":\"$9e54\",\"value\":\"Carlos ran through the creek, splashing water on his shorts and T-shirt. \",\"nodeType\":\"text\"}\n9e51:[\"$9e52\"]\n9e4f:{\"data\":\"$9e50\",\"content\":\"$9e51\",\"nodeType\":\"paragraph\"}\n9e56:{}\n9e57:[]\n9e55:{\"data\":\"$9e56\",\"content\":\"$9e57\",\"nodeType\":\"embedded-entry-block\"}\n9e59:{}\n9e5c:{}\n9e5d:[]\n9e5b:{\"data\":\"$9e5c\",\"marks\":\"$9e5d\",\"value\":\"On a warm June morning, a group of family and friends hiked down the shady trail at a neighborhood park to commemorate the one-year anniversary of his heart transplant. Carlosâ parents and his sister, Isabella, carried rocks painted by his aunt with hearts and rainbows and placed the stones in the shallow creek bed. Karla and Johnny stood by the rock formation, holding hands and watching their son run through the creek. They thought about the donor family. And they thought about their son and where they were a year ago. âIâm happy and thankful, but Iâm emotional,â Karla said, wiping tears from her eyes. âA year ago, everything was so different.â This park is special because it is one of the first places the family visited last year after Carlos returned home from Childrenâs Health. âI was worried then that he wouldnât be able to finish the hike. That heâd be too tired and want to go home,â Karla said. âBut he took off running and hasnât stopped since.â Read more \",\"nodeType\":\"text\"}\n9e5f:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n9e62:{}\n9e63:[]\n9e61:{\"data\":\""])</script>
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1<script>self.__next_f.push([1,"type\":\"Entry\",\"createdAt\":\"2025-02-07T17:22:39.022Z\",\"updatedAt\":\"2026-01-29T21:22:55.509Z\",\"environment\":\"$9edb\",\"publishedVersion\":20,\"revision\":3,\"contentType\":\"$9edd\",\"locale\":\"en-US\"}\n9ee1:{}\n9ee4:{}\n9ee7:{}\n9ee8:[]\n9ee6:{\"data\":\"$9ee7\",\"marks\":\"$9ee8\",\"value\":\"When Harrison and his mom, Gabrielle, left their home for an appointment at Childrenâs Medical Center Dallas in January 2020, Gabrielle packed an overnight bag. She suspected her 3-year-old son, who loves learning about animals and roaring like a dinosaur, was in heart failure and that they wouldnât be coming home that night. And she braced herself for news sheâd spent the last two years anticipating since Harrison received his cardiomyopathy diagnosis: He would need a new heart. \",\"nodeType\":\"text\"}\n9ee5:[\"$9ee6\"]\n9ee3:{\"data\":\"$9ee4\",\"content\":\"$9ee5\",\"nodeType\":\"paragraph\"}\n9eea:{}\n9eed:{}\n9eee:[]\n9eec:{\"data\":\"$9eed\",\"marks\":\"$9eee\",\"value\":\"Harrison has been under the care of our team members since 2018, when his parents, Gabrielle and Bobby, relocated from their home in North Carolina to Dallas for Harrison to be treated at the Heart Center. They were impressed with the level of care offered by our clinical team and were prepared to list Harrison for transplant if necessary, but everyone agreed he deserved a chance with his own heart. They also were given the option to enroll Harrison in a research drug study. \",\"nodeType\":\"text\"}\n9eeb:[\"$9eec\"]\n9ee9:{\"data\":\"$9eea\",\"content\":\"$9eeb\",\"nodeType\":\"paragraph\"}\n9ef0:{}\n9ef1:[]\n9eef:{\"data\":\"$9ef0\",\"content\":\"$9ef1\",\"nodeType\":\"embedded-entry-block\"}\n9ef3:{}\n9ef6:{}\n9ef7:[]\n9ef5:{\"data\":\"$9ef6\",\"marks\":\"$9ef7\",\"value\":\"In April 2020 â one day after the two-year anniversary of Harrisonâs cardiomyopathy diagnosis â Harrison was placed on the heart transplant list. Later that month, Gabrielle received the call that Harrisonâs new heart was here. âWeâve never doubted for a second that we made the right decision coming to Childrenâs Health. Weâre really comfortable here,â Gabrielle"])</script>
1<script>self.__next_f.push([1," said. \",\"nodeType\":\"text\"}\n9ef4:[\"$9ef5\"]\n9ef2:{\"data\":\"$9ef3\",\"content\":\"$9ef4\",\"nodeType\":\"paragraph\"}\n9ef9:{}\n9efc:{}\n9efd:[]\n9efb:{\"data\":\"$9efc\",\"marks\":\"$9efd\",\"value\":\"Months since his heart transplant, Harrison continues to improve. When the weather is nice, he and his parents go to the park and on bike rides. A fellow Childrenâs Health patient, who received a heart transplant a couple months after Harrison, comes over to play once a week. And Harrison still loves dinosaurs ⦠and roaring like them! Gabrielle spends a lot of time reading him National Geographic books before bed, and he enjoys learning about invertebrate and different types of bacteria. âThis is such a difference from where we were a year ago,â Gabrielle said. âThe transplant has improved his quality of life like you wouldnât believe.â \",\"nodeType\":\"text\"}\n9efa:[\"$9efb\"]\n9ef8:{\"data\":\"$9ef9\",\"content\":\"$9efa\",\"nodeType\":\"paragraph\"}\n9eff:{}\n9f02:{}\n9f03:[]\n9f01:{\"data\":\"$9f02\",\"marks\":\"$9f03\",\"value\":\"During the holiday season, Gabrielle launched a GoFundMe to raise money to feed families in the Cardiac ICU at Childrenâs Medical Center Dallas. She said she knows what itâs like to live in the ICU -- eating the same thing every day, eating Hot Pockets. She and her husband spent two wedding anniversaries and one of Harrisonâs birthdays in the ICU. She wants these families to know that even though she and Harrison are home, they still think about them. âWeâre so grateful to Childrenâs Health,â Gabrielle said. âWe love everyone on Harrisonâs care team. When I came home, I missed them. Theyâre like family to me.â \",\"nodeType\":\"text\"}\n9f00:[\"$9f01\"]\n9efe:{\"data\":\"$9eff\",\"content\":\"$9f00\",\"nodeType\":\"paragraph\"}\n9f05:{}\n9f08:{}\n9f0a:{\"type\":\"bold\"}\n9f09:[\"$9f0a\"]\n9f07:{\"data\":\"$9f08\",\"marks\":\"$9f09\",\"value\":\"ORIGINAL STORY (4/21/20): \",\"nodeType\":\"text\"}\n9f06:[\"$9f07\"]\n9f04:{\"data\":\"$9f05\",\"content\":\"$9f06\",\"nodeType\":\"paragraph\"}\n9f0c:{}\n9f0f:{}\n9f10:[]\n9f0e:{\"data\":\"$9f0f\",\"marks\":\"$9f10\",\"value\":\"Gabrielle cl"])</script>
1<script>self.__next_f.push([1,"imbed into her sonâs hospital bed, stroking his curly blonde hair that sheâd trimmed herself earlier that day.\",\"nodeType\":\"text\"}\n9f0d:[\"$9f0e\"]\n9f0b:{\"data\":\"$9f0c\",\"content\":\"$9f0d\",\"nodeType\":\"paragraph\"}\n9f12:{}\n9f13:[]\n9f11:{\"data\":\"$9f12\",\"content\":\"$9f13\",\"nodeType\":\"embedded-entry-block\"}\n9f15:{}\n9f18:{}\n9f19:[]\n9f17:{\"data\":\"$9f18\",\"marks\":\"$9f19\",\"value\":\"She held him close as they began to drift to sleep, amid beeping monitors and dozens of stuffed dinosaurs (Harrisonâs favorite!), including an oversized T-Rex tucked by his side.\",\"nodeType\":\"text\"}\n9f16:[\"$9f17\"]\n9f14:{\"data\":\"$9f15\",\"content\":\"$9f16\",\"nodeType\":\"paragraph\"}\n9f1b:{}\n9f1e:{}\n9f1f:[]\n9f1d:{\"data\":\"$9f1e\",\"marks\":\"$9f1f\",\"value\":\"Day No. 64 at Childrenâs Health.\",\"nodeType\":\"text\"}\n9f1c:[\"$9f1d\"]\n9f1a:{\"data\":\"$9f1b\",\"content\":\"$9f1c\",\"nodeType\":\"paragraph\"}\n9f21:{}\n9f24:{}\n9f25:[]\n9f23:{\"data\":\"$9f24\",\"marks\":\"$9f25\",\"value\":\"âIâm so proud of you, Harrison,â she told her 3-year-old son, as his eyes fought to stay open.\",\"nodeType\":\"text\"}\n9f22:[\"$9f23\"]\n9f20:{\"data\":\"$9f21\",\"content\":\"$9f22\",\"nodeType\":\"paragraph\"}\n9f27:{}\n9f2a:{}\n9f2b:[]\n9f29:{\"data\":\"$9f2a\",\"marks\":\"$9f2b\",\"value\":\"âIâm proud of you, too, mommy,â he replied.\",\"nodeType\":\"text\"}\n9f28:[\"$9f29\"]\n9f26:{\"data\":\"$9f27\",\"content\":\"$9f28\",\"nodeType\":\"paragraph\"}\n9f2d:{}\n9f30:{}\n9f31:[]\n9f2f:{\"data\":\"$9f30\",\"marks\":\"$9f31\",\"value\":\"Gabrielle reached for her phone and typed a quick post to update friends and family, finishing the message with a photo of Harrison cross-legged in the oversized hospital bed at Childrenâs Healthâ with his fresh haircut.\",\"nodeType\":\"text\"}\n9f2e:[\"$9f2f\"]\n9f2c:{\"data\":\"$9f2d\",\"content\":\"$9f2e\",\"nodeType\":\"paragraph\"}\n9f33:{}\n9f36:{}\n9f37:[]\n9f35:{\"data\":\"$9f36\",\"marks\":\"$9f37\",\"value\":\"âThis boy melts me every day,â she wrote of her son who loves to wiggle his eyebrows up and down and roar like a dinosaur.\",\"nodeType\":\"text\"}\n9f34:[\"$9f35\"]\n9f32:{\"data\":\"$9f33\",\"content\":\"$9f34\",\"nodeType\":\"paragraph\"}\n9f39:{}\n9f3c:{}\n9f"])</script>
1<script>self.__next_f.push([1,"3d:[]\n9f3b:{\"data\":\"$9f3c\",\"marks\":\"$9f3d\",\"value\":\"âIâd live in this hospital until the end of time to keep him if I had to.â\",\"nodeType\":\"text\"}\n9f3a:[\"$9f3b\"]\n9f38:{\"data\":\"$9f39\",\"content\":\"$9f3a\",\"nodeType\":\"paragraph\"}\n9f3f:{}\n9f42:{}\n9f43:[]\n9f41:{\"data\":\"$9f42\",\"marks\":\"$9f43\",\"value\":\"Because as she typed this, Harrisonâs heart was failing. \",\"nodeType\":\"text\"}\n9f40:[\"$9f41\"]\n9f3e:{\"data\":\"$9f3f\",\"content\":\"$9f40\",\"nodeType\":\"paragraph\"}\n9f45:{}\n9f48:{}\n9f49:[]\n9f47:{\"data\":\"$9f48\",\"marks\":\"$9f49\",\"value\":\"And this room, with its cold, tile floor and fluorescent lighting, had become the familyâs temporary home during a global pandemic as Harrison waited for a heart.\",\"nodeType\":\"text\"}\n9f46:[\"$9f47\"]\n9f44:{\"data\":\"$9f45\",\"content\":\"$9f46\",\"nodeType\":\"paragraph\"}\n9f4b:{}\n9f4e:{}\n9f4f:[]\n9f4d:{\"data\":\"$9f4e\",\"marks\":\"$9f4f\",\"value\":\"***\",\"nodeType\":\"text\"}\n9f4c:[\"$9f4d\"]\n9f4a:{\"data\":\"$9f4b\",\"content\":\"$9f4c\",\"nodeType\":\"paragraph\"}\n9f51:{}\n9f52:[]\n9f50:{\"data\":\"$9f51\",\"content\":\"$9f52\",\"nodeType\":\"embedded-entry-block\"}\n9f54:{}\n9f57:{}\n9f58:[]\n9f56:{\"data\":\"$9f57\",\"marks\":\"$9f58\",\"value\":\"The wheezing started a couple months after Harrisonâs first birthday.\",\"nodeType\":\"text\"}\n9f55:[\"$9f56\"]\n9f53:{\"data\":\"$9f54\",\"content\":\"$9f55\",\"nodeType\":\"paragraph\"}\n9f5a:{}\n9f5d:{}\n9f5e:[]\n9f5c:{\"data\":\"$9f5d\",\"marks\":\"$9f5e\",\"value\":\"Concerned, Gabrielle took him to his pediatrician in their then-home of North Carolina. He diagnosed Harrison with a virus and prescribed an inhaler.\",\"nodeType\":\"text\"}\n9f5b:[\"$9f5c\"]\n9f59:{\"data\":\"$9f5a\",\"content\":\"$9f5b\",\"nodeType\":\"paragraph\"}\n9f60:{}\n9f63:{}\n9f64:[]\n9f62:{\"data\":\"$9f63\",\"marks\":\"$9f64\",\"value\":\"But Harrisonâs wheezing worsened, eventually developing into grunting. Harrisonâs lungs were filled with fluid, and he had to hold his breath to clear them.\",\"nodeType\":\"text\"}\n9f61:[\"$9f62\"]\n9f5f:{\"data\":\"$9f60\",\"content\":\"$9f61\",\"nodeType\":\"paragraph\"}\n9f66:{}\n9f69:{}\n9f6a:[]\n9f68:{\"data\":\"$9f69\",\"marks\":\"$9f6a\",\"value\":\"He was rushed to the emergency room, "])</script>
1<script>self.__next_f.push([1,"where a test confirmed he was in heart failure and was airlifted to a hospital more than two hours away.\",\"nodeType\":\"text\"}\n9f67:[\"$9f68\"]\n9f65:{\"data\":\"$9f66\",\"content\":\"$9f67\",\"nodeType\":\"paragraph\"}\n9f6c:{}\n9f6f:{}\n9f70:[]\n9f6e:{\"data\":\"$9f6f\",\"marks\":\"$9f70\",\"value\":\"Harrison was admitted to the pediatric intensive care unit and eventually diagnosed with dilated cardiomyopathy â a disease that affects the heartâs ability to pump blood to the rest of the body.\",\"nodeType\":\"text\"}\n9f6d:[\"$9f6e\"]\n9f6b:{\"data\":\"$9f6c\",\"content\":\"$9f6d\",\"nodeType\":\"paragraph\"}\n9f72:{}\n9f75:{}\n9f76:[]\n9f74:{\"data\":\"$9f75\",\"marks\":\"$9f76\",\"value\":\"His parents, Gabrielle and Bobby, watched for almost a month as their son fought for his life.\",\"nodeType\":\"text\"}\n9f73:[\"$9f74\"]\n9f71:{\"data\":\"$9f72\",\"content\":\"$9f73\",\"nodeType\":\"paragraph\"}\n9f78:{}\n9f7b:{}\n9f7c:[]\n9f7a:{\"data\":\"$9f7b\",\"marks\":\"$9f7c\",\"value\":\"âWe discussed medicines, transplant and the possibility of death,â Gabrielle said. âMy husband and I took turns showering at the Ronald McDonald House. We slept in the ICU each night, and we attended rounds each morning.\",\"nodeType\":\"text\"}\n9f79:[\"$9f7a\"]\n9f77:{\"data\":\"$9f78\",\"content\":\"$9f79\",\"nodeType\":\"paragraph\"}\n9f7e:{}\n9f81:{}\n9f82:[]\n9f80:{\"data\":\"$9f81\",\"marks\":\"$9f82\",\"value\":\"But we knew we had to do everything we could to get closer to a great hospital.â\",\"nodeType\":\"text\"}\n9f7f:[\"$9f80\"]\n9f7d:{\"data\":\"$9f7e\",\"content\":\"$9f7f\",\"nodeType\":\"paragraph\"}\n9f84:{}\n9f87:{}\n9f88:[]\n9f86:{\"data\":\"$9f87\",\"marks\":\"$9f88\",\"value\":\"Gabrielle and Bobby wanted Harrison to have a chance with his own heart and preferred that he not immediately be listed for transplant. They researched hospitals around the country and other treatment plans, advocating for Harrison to participate in a clinical research study to see if a drug that was already FDA-approved to treat adults with cardiomyopathy could successfully help kids. (The study has now ended, and the drug has been FDA approved for children 1 year and older.)\",\"nodeType\":\"tex"])</script>
1<script>self.__next_f.push([1,"t\"}\n9f85:[\"$9f86\"]\n9f83:{\"data\":\"$9f84\",\"content\":\"$9f85\",\"nodeType\":\"paragraph\"}\n9f8a:{}\n9f8d:{}\n9f8e:[]\n9f8c:{\"data\":\"$9f8d\",\"marks\":\"$9f8e\",\"value\":\"In September 2018, they moved to Dallas for treatment at the Childrenâs Health Heart Center. They were impressed with the level of care offered by the clinical team and were prepared to list Harrison for transplant if necessary, but everyone agreed he deserved a chance with his own heart. \",\"nodeType\":\"text\"}\n9f8b:[\"$9f8c\"]\n9f89:{\"data\":\"$9f8a\",\"content\":\"$9f8b\",\"nodeType\":\"paragraph\"}\n9f90:{}\n9f93:{}\n9f94:[]\n9f92:{\"data\":\"$9f93\",\"marks\":\"$9f94\",\"value\":\"They also were given the option to enroll Harrison in the research drug study.\",\"nodeType\":\"text\"}\n9f91:[\"$9f92\"]\n9f8f:{\"data\":\"$9f90\",\"content\":\"$9f91\",\"nodeType\":\"paragraph\"}\n9f96:{}\n9f99:{}\n9f9a:[]\n9f98:{\"data\":\"$9f99\",\"marks\":\"$9f9a\",\"value\":\"âWe agreed this drug could not only be a life-saver for him, but for other children suffering from cardiomyopathy,â Gabrielle said. âAnd we knew we had to take advantage of the opportunity to improve his heart function before transplant was his only option.â\",\"nodeType\":\"text\"}\n9f97:[\"$9f98\"]\n9f95:{\"data\":\"$9f96\",\"content\":\"$9f97\",\"nodeType\":\"paragraph\"}\n9f9c:{}\n9f9f:{}\n9fa0:[]\n9f9e:{\"data\":\"$9f9f\",\"marks\":\"$9fa0\",\"value\":\"Research Coordinator Maria Martinez, who helped oversee the study, has been with the family since the beginning, accompanying them on their hospital visits, bringing a toy for Harrison to receive after his blood draw and playing with him and his plastic sharks and dinosaurs while they waited in the hospital room for the doctor.\",\"nodeType\":\"text\"}\n9f9d:[\"$9f9e\"]\n9f9b:{\"data\":\"$9f9c\",\"content\":\"$9f9d\",\"nodeType\":\"paragraph\"}\n9fa2:{}\n9fa5:{}\n9fa6:[]\n9fa4:{\"data\":\"$9fa5\",\"marks\":\"$9fa6\",\"value\":\"âWeâve never doubted for a second that we made the right decision coming to Childrenâs Health. Weâre really comfortable here,â Gabrielle said in an interview last year.\",\"nodeType\":\"text\"}\n9fa3:[\"$9fa4\"]\n9fa1:{\"data\":\"$9fa2\",\"content\":\"$9fa3\",\"n"])</script>
1<script>self.__next_f.push([1,"odeType\":\"paragraph\"}\n9fa8:{}\n9fab:{}\n9fac:[]\n9faa:{\"data\":\"$9fab\",\"marks\":\"$9fac\",\"value\":\"âWe know it could be tomorrow that Harrison wakes up and is in active heart failure again and could have to be listed for transplant. But we wanted to give him a chance.â\",\"nodeType\":\"text\"}\n9fa9:[\"$9faa\"]\n9fa7:{\"data\":\"$9fa8\",\"content\":\"$9fa9\",\"nodeType\":\"paragraph\"}\n9fae:{}\n9fb1:{}\n9fb2:[]\n9fb0:{\"data\":\"$9fb1\",\"marks\":\"$9fb2\",\"value\":\"***\",\"nodeType\":\"text\"}\n9faf:[\"$9fb0\"]\n9fad:{\"data\":\"$9fae\",\"content\":\"$9faf\",\"nodeType\":\"paragraph\"}\n9fb4:{}\n9fb5:[]\n9fb3:{\"data\":\"$9fb4\",\"content\":\"$9fb5\",\"nodeType\":\"embedded-entry-block\"}\n9fb7:{}\n9fba:{}\n9fbb:[]\n9fb9:{\"data\":\"$9fba\",\"marks\":\"$9fbb\",\"value\":\"In April â one day after the two-year anniversary of Harrisonâs cardiomyopathy diagnosis â Harrison was placed on the heart transplant list.\",\"nodeType\":\"text\"}\n9fb8:[\"$9fb9\"]\n9fb6:{\"data\":\"$9fb7\",\"content\":\"$9fb8\",\"nodeType\":\"paragraph\"}\n9fbd:{}\n9fc0:{}\n9fc1:[]\n9fbf:{\"data\":\"$9fc0\",\"marks\":\"$9fc1\",\"value\":\"âWe have a lot of emotions,â Gabrielle wrote in a Facebook post on April 7. âItâs wonderful that he is listed again, but I canât help feeling a pit in my stomach knowing another child has to die so mine can live.â\",\"nodeType\":\"text\"}\n9fbe:[\"$9fbf\"]\n9fbc:{\"data\":\"$9fbd\",\"content\":\"$9fbe\",\"nodeType\":\"paragraph\"}\n9fc3:{}\n9fc6:{}\n9fc7:[]\n9fc5:{\"data\":\"$9fc6\",\"marks\":\"$9fc7\",\"value\":\"Harrison was already admitted to Childrenâs Medical Center Dallas before the early onset of the COVID-19 virus in North Texas.\",\"nodeType\":\"text\"}\n9fc4:[\"$9fc5\"]\n9fc2:{\"data\":\"$9fc3\",\"content\":\"$9fc4\",\"nodeType\":\"paragraph\"}\n9fc9:{}\n9fcc:{}\n9fcd:[]\n9fcb:{\"data\":\"$9fcc\",\"marks\":\"$9fcd\",\"value\":\"In January, before his last hospital visit for the research drug study, Gabrielle suspected Harrison was in heart failure again.\",\"nodeType\":\"text\"}\n9fca:[\"$9fcb\"]\n9fc8:{\"data\":\"$9fc9\",\"content\":\"$9fca\",\"nodeType\":\"paragraph\"}\n9fcf:{}\n9fd2:{}\n9fd3:[]\n9fd1:{\"data\":\"$9fd2\",\"marks\":\"$9fd3\",\"value\":\"She packed a bag before driving to his appointme"])</script>
1<script>self.__next_f.push([1,"nt -- knowing they might not be coming home that day -- and braced herself for the news sheâd spent the last two years preparing for and fighting against:\",\"nodeType\":\"text\"}\n9fd0:[\"$9fd1\"]\n9fce:{\"data\":\"$9fcf\",\"content\":\"$9fd0\",\"nodeType\":\"paragraph\"}\n9fd5:{}\n9fd8:{}\n9fd9:[]\n9fd7:{\"data\":\"$9fd8\",\"marks\":\"$9fd9\",\"value\":\"Harrison would need a new heart.\",\"nodeType\":\"text\"}\n9fd6:[\"$9fd7\"]\n9fd4:{\"data\":\"$9fd5\",\"content\":\"$9fd6\",\"nodeType\":\"paragraph\"}\n9fdb:{}\n9fde:{}\n9fdf:[]\n9fdd:{\"data\":\"$9fde\",\"marks\":\"$9fdf\",\"value\":\"And as the outside world began to change, so did her familyâs world. \",\"nodeType\":\"text\"}\n9fdc:[\"$9fdd\"]\n9fda:{\"data\":\"$9fdb\",\"content\":\"$9fdc\",\"nodeType\":\"paragraph\"}\n9fe1:{}\n9fe4:{}\n9fe5:[]\n9fe3:{\"data\":\"$9fe4\",\"marks\":\"$9fe5\",\"value\":\"A left ventricular assist device the size of an AA battery was implanted in Harrisonâs heart to help pump blood to the rest of his body. Heâs been intubated and sedated. At one point, he went into kidney failure.\",\"nodeType\":\"text\"}\n9fe2:[\"$9fe3\"]\n9fe0:{\"data\":\"$9fe1\",\"content\":\"$9fe2\",\"nodeType\":\"paragraph\"}\n9fe7:{}\n9fea:{}\n9feb:[]\n9fe9:{\"data\":\"$9fea\",\"marks\":\"$9feb\",\"value\":\"One day in the Intensive Care Unit, Gabrielle snapped a photo of Harrison surrounded by his army of machines. Tubes covered his face and chest. The outline of his ribs poked through his skin. The photo makes her sick to look at.\",\"nodeType\":\"text\"}\n9fe8:[\"$9fe9\"]\n9fe6:{\"data\":\"$9fe7\",\"content\":\"$9fe8\",\"nodeType\":\"paragraph\"}\n9fed:{}\n9ff0:{}\n9ff1:[]\n9fef:{\"data\":\"$9ff0\",\"marks\":\"$9ff1\",\"value\":\"And that night, he coded.\",\"nodeType\":\"text\"}\n9fee:[\"$9fef\"]\n9fec:{\"data\":\"$9fed\",\"content\":\"$9fee\",\"nodeType\":\"paragraph\"}\n9ff3:{}\n9ff6:{}\n9ff7:[]\n9ff5:{\"data\":\"$9ff6\",\"marks\":\"$9ff7\",\"value\":\"âItâs a scary, scary time,â Gabrielle said. âItâs really weird right now. I feel safe at Childrenâs, but yes, Iâm worried about this virus. You would be too if your kid was sick like this.â \",\"nodeType\":\"text\"}\n9ff4:[\"$9ff5\"]\n9ff2:{\"data\":\"$9ff3\",\"content\":\"$9ff4\",\"nodeType\":\"paragraph\"}\n9"])</script>
1<script>self.__next_f.push([1,"ff9:{}\n9ffc:{}\n9ffd:[]\n9ffb:{\"data\":\"$9ffc\",\"marks\":\"$9ffd\",\"value\":\"For the last two months, the family has watched the hospital shift as itâs implemented additional safety precautions, and people began to self-isolate to slow the spread of COVID-19.\",\"nodeType\":\"text\"}\n9ffa:[\"$9ffb\"]\n9ff8:{\"data\":\"$9ff9\",\"content\":\"$9ffa\",\"nodeType\":\"paragraph\"}\n9fff:{}\na002:{}\na003:[]\na001:{\"data\":\"$a002\",\"marks\":\"$a003\",\"value\":\"The hallways are quieter as elective procedures are postponed. Signs are posted in hallways and by the elevators reminding people to stay six feet apart and wash their hands. Red tape markers spaced out on the cafeteria floor keep people separated while waiting in line. Pet therapy dogs that often provide emotional support to patients are temporarily at home. \",\"nodeType\":\"text\"}\na000:[\"$a001\"]\n9ffe:{\"data\":\"$9fff\",\"content\":\"$a000\",\"nodeType\":\"paragraph\"}\na005:{}\na006:[]\na004:{\"data\":\"$a005\",\"content\":\"$a006\",\"nodeType\":\"embedded-entry-block\"}\na008:{}\na00b:{}\na00c:[]\na00a:{\"data\":\"$a00b\",\"marks\":\"$a00c\",\"value\":\"Sometimes, Maria comes by Harrisonâs room and waves, but she doesnât come in.\",\"nodeType\":\"text\"}\na009:[\"$a00a\"]\na007:{\"data\":\"$a008\",\"content\":\"$a009\",\"nodeType\":\"paragraph\"}\na00e:{}\na011:{}\na012:[]\na010:{\"data\":\"$a011\",\"marks\":\"$a012\",\"value\":\"âItâs overwhelming. All we can do is limit his exposure to unnecessary people and keep ourselves clean,â Gabrielle said. âBut when youâre living in the hospital, youâre just trying to survive.â\",\"nodeType\":\"text\"}\na00f:[\"$a010\"]\na00d:{\"data\":\"$a00e\",\"content\":\"$a00f\",\"nodeType\":\"paragraph\"}\na014:{}\na017:{}\na018:[]\na016:{\"data\":\"$a017\",\"marks\":\"$a018\",\"value\":\"And right now, survival is the little things.\",\"nodeType\":\"text\"}\na015:[\"$a016\"]\na013:{\"data\":\"$a014\",\"content\":\"$a015\",\"nodeType\":\"paragraph\"}\na01a:{}\na01d:{}\na01e:[]\na01c:{\"data\":\"$a01d\",\"marks\":\"$a01e\",\"value\":\"Gabrielle is grateful for nights when she can take a warm bath at home while the rain outside hits the windows.\",\"nodeType\":\"text\"}\na01b:[\"$a01c\"]\na019:{\"data\":\"$a01"])</script>
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1<script>self.__next_f.push([1," she scrolled past âlikes,â photos of smiling faces, cat videos and a snap of someoneâs breakfast. \",\"nodeType\":\"text\"}\na103:[\"$a104\"]\na101:{\"data\":\"$a102\",\"content\":\"$a103\",\"nodeType\":\"paragraph\"}\na108:{}\na10b:{}\na10c:[]\na10a:{\"data\":\"$a10b\",\"marks\":\"$a10c\",\"value\":\"She had friends. Or, she thought she had friends. \",\"nodeType\":\"text\"}\na109:[\"$a10a\"]\na107:{\"data\":\"$a108\",\"content\":\"$a109\",\"nodeType\":\"paragraph\"}\na10e:{}\na111:{}\na112:[]\na110:{\"data\":\"$a111\",\"marks\":\"$a112\",\"value\":\"âThey would be really juvenile comments, but it made me feel like, âWow, there are people who donât like me,ââ Abby said. âIt made me question my worth.â \",\"nodeType\":\"text\"}\na10f:[\"$a110\"]\na10d:{\"data\":\"$a10e\",\"content\":\"$a10f\",\"nodeType\":\"paragraph\"}\na114:{}\na117:{}\na118:[]\na116:{\"data\":\"$a117\",\"marks\":\"$a118\",\"value\":\"Abby has fiery red hair with bangs that skim her eyebrows and a spunky personality that greets you at the door. \",\"nodeType\":\"text\"}\na115:[\"$a116\"]\na113:{\"data\":\"$a114\",\"content\":\"$a115\",\"nodeType\":\"paragraph\"}\na11a:{}\na11b:[]\na119:{\"data\":\"$a11a\",\"content\":\"$a11b\",\"nodeType\":\"embedded-entry-block\"}\na11d:{}\na120:{}\na121:[]\na11f:{\"data\":\"$a120\",\"marks\":\"$a121\",\"value\":\"She talks with her hands and doesnât try to hide the freckles that sprinkle her nose and cheeks. \",\"nodeType\":\"text\"}\na11e:[\"$a11f\"]\na11c:{\"data\":\"$a11d\",\"content\":\"$a11e\",\"nodeType\":\"paragraph\"}\na123:{}\na126:{}\na127:[]\na125:{\"data\":\"$a126\",\"marks\":\"$a127\",\"value\":\"A self-proclaimed nerd, she loves to read â The Fault in Our Stars by John Green and Emma by Jane Austen are a couple of her favorites. And those who know her say she brings out the best in people, even when itâs difficult to do that for herself. \",\"nodeType\":\"text\"}\na124:[\"$a125\"]\na122:{\"data\":\"$a123\",\"content\":\"$a124\",\"nodeType\":\"paragraph\"}\na129:{}\na12c:{}\na12d:[]\na12b:{\"data\":\"$a12c\",\"marks\":\"$a12d\",\"value\":\"But the online bullying coupled with family issues weighed heavily on the then-middle schooler. \",\"nodeType\":\"text\"}\na12a:[\"$a12b\"]\na128:{\"data\":\"$a129\",\"conte"])</script>
1<script>self.__next_f.push([1,"nt\":\"$a12a\",\"nodeType\":\"paragraph\"}\na12f:{}\na132:{}\na133:[]\na131:{\"data\":\"$a132\",\"marks\":\"$a133\",\"value\":\"Worn out from fighting, she withdrew to her room. Feeling alone, she lashed out at family. \",\"nodeType\":\"text\"}\na130:[\"$a131\"]\na12e:{\"data\":\"$a12f\",\"content\":\"$a130\",\"nodeType\":\"paragraph\"}\na135:{}\na138:{}\na139:[]\na137:{\"data\":\"$a138\",\"marks\":\"$a139\",\"value\":\"âI thought a solution would be âWhat if I wasnât here anymore?ââ Abby said. âI thought that would make everything better.â \",\"nodeType\":\"text\"}\na136:[\"$a137\"]\na134:{\"data\":\"$a135\",\"content\":\"$a136\",\"nodeType\":\"paragraph\"}\na13b:{}\na13e:{}\na13f:[]\na13d:{\"data\":\"$a13e\",\"marks\":\"$a13f\",\"value\":\"Abby was 12 years old when she made her first suicide attempt. \",\"nodeType\":\"text\"}\na13c:[\"$a13d\"]\na13a:{\"data\":\"$a13b\",\"content\":\"$a13c\",\"nodeType\":\"paragraph\"}\na141:{}\na144:{}\na145:[]\na143:{\"data\":\"$a144\",\"marks\":\"$a145\",\"value\":\"Her family brought her to the Childrenâs Healthâ Day Treatment Program, where she attended counseling and group therapy sessions and was taught coping skills to handle big emotions. \",\"nodeType\":\"text\"}\na142:[\"$a143\"]\na140:{\"data\":\"$a141\",\"content\":\"$a142\",\"nodeType\":\"paragraph\"}\na147:{}\na14a:{}\na14b:[]\na149:{\"data\":\"$a14a\",\"marks\":\"$a14b\",\"value\":\"She began to improve, but then she relapsed. \",\"nodeType\":\"text\"}\na148:[\"$a149\"]\na146:{\"data\":\"$a147\",\"content\":\"$a148\",\"nodeType\":\"paragraph\"}\na14d:{}\na150:{}\na151:[]\na14f:{\"data\":\"$a150\",\"marks\":\"$a151\",\"value\":\"After her second attempt, she was enrolled in the Suicide Prevention and Resilience in Children (SPARC) program at Childrenâs Health. An intensive outpatient program, SPARC is specifically designed to target the risk factors for teens with suicidal behaviors. \",\"nodeType\":\"text\"}\na14e:[\"$a14f\"]\na14c:{\"data\":\"$a14d\",\"content\":\"$a14e\",\"nodeType\":\"paragraph\"}\na153:{}\na156:{}\na157:[]\na155:{\"data\":\"$a156\",\"marks\":\"$a157\",\"value\":\"In SPARC, Abbyâs life started to change. \",\"nodeType\":\"text\"}\na154:[\"$a155\"]\na152:{\"data\":\"$a153\",\"content\":\"$a154\",\"nodeType\":\"paragraph\"}\na1"])</script>
1<script>self.__next_f.push([1,"59:{}\na15a:[]\na158:{\"data\":\"$a159\",\"content\":\"$a15a\",\"nodeType\":\"embedded-entry-block\"}\na15c:{}\na15f:{}\na160:[]\na15e:{\"data\":\"$a15f\",\"marks\":\"$a160\",\"value\":\"She met her longtime counselor, Jackie Matney, Licensed Professional Counselor at SPARC, whose energetic and positive outlook connected with Abby. \",\"nodeType\":\"text\"}\na15d:[\"$a15e\"]\na15b:{\"data\":\"$a15c\",\"content\":\"$a15d\",\"nodeType\":\"paragraph\"}\na162:{}\na165:{}\na166:[]\na164:{\"data\":\"$a165\",\"marks\":\"$a166\",\"value\":\"âJackie understood that she wouldnât know exactly what I was going through, but she also understood that I needed somebody to talk to,â Abby said. âShe comes from an outside perspective, which I needed.â \",\"nodeType\":\"text\"}\na163:[\"$a164\"]\na161:{\"data\":\"$a162\",\"content\":\"$a163\",\"nodeType\":\"paragraph\"}\na168:{}\na16b:{}\na16c:[]\na16a:{\"data\":\"$a16b\",\"marks\":\"$a16c\",\"value\":\"At SPARC, Abby met other teenagers grappling with similar difficulties. She found healing in expressing her feelings through poetry. \",\"nodeType\":\"text\"}\na169:[\"$a16a\"]\na167:{\"data\":\"$a168\",\"content\":\"$a169\",\"nodeType\":\"paragraph\"}\na16e:{}\na171:{}\na172:[]\na170:{\"data\":\"$a171\",\"marks\":\"$a172\",\"value\":\"And for the first time, she didnât feel alone. \",\"nodeType\":\"text\"}\na16f:[\"$a170\"]\na16d:{\"data\":\"$a16e\",\"content\":\"$a16f\",\"nodeType\":\"paragraph\"}\na174:{}\na177:{}\na178:[]\na176:{\"data\":\"$a177\",\"marks\":\"$a178\",\"value\":\"âI used to be so worried about what everyone thought of me,â Abby said. âThen I realized, why am I trying to change myself to fit other peopleâs ideals of me? Iâm fine the way I am.â \",\"nodeType\":\"text\"}\na175:[\"$a176\"]\na173:{\"data\":\"$a174\",\"content\":\"$a175\",\"nodeType\":\"paragraph\"}\na17a:{}\na17d:{}\na17f:{\"type\":\"italic\"}\na17e:[\"$a17f\"]\na17c:{\"data\":\"$a17d\",\"marks\":\"$a17e\",\"value\":\"I look up from the ground and take a deep breath \",\"nodeType\":\"text\"}\na17b:[\"$a17c\"]\na179:{\"data\":\"$a17a\",\"content\":\"$a17b\",\"nodeType\":\"paragraph\"}\na181:{}\na184:{}\na186:{\"type\":\"italic\"}\na185:[\"$a186\"]\na183:{\"data\":\"$a184\",\"marks\":\"$a185\",\"value\":\"I finally realized what Iâv"])</script>
1<script>self.__next_f.push([1,"e found \",\"nodeType\":\"text\"}\na182:[\"$a183\"]\na180:{\"data\":\"$a181\",\"content\":\"$a182\",\"nodeType\":\"paragraph\"}\na188:{}\na18b:{}\na18d:{\"type\":\"italic\"}\na18c:[\"$a18d\"]\na18a:{\"data\":\"$a18b\",\"marks\":\"$a18c\",\"value\":\"I donât want to leave \",\"nodeType\":\"text\"}\na189:[\"$a18a\"]\na187:{\"data\":\"$a188\",\"content\":\"$a189\",\"nodeType\":\"paragraph\"}\na18f:{}\na192:{}\na194:{\"type\":\"italic\"}\na193:[\"$a194\"]\na191:{\"data\":\"$a192\",\"marks\":\"$a193\",\"value\":\"Iâve found happiness. \",\"nodeType\":\"text\"}\na190:[\"$a191\"]\na18e:{\"data\":\"$a18f\",\"content\":\"$a190\",\"nodeType\":\"paragraph\"}\na196:{}\na199:{}\na19b:{\"type\":\"italic\"}\na19a:[\"$a19b\"]\na198:{\"data\":\"$a199\",\"marks\":\"$a19a\",\"value\":\"And love, too. More or less. \",\"nodeType\":\"text\"}\na197:[\"$a198\"]\na195:{\"data\":\"$a196\",\"content\":\"$a197\",\"nodeType\":\"paragraph\"}\na19d:{}\na1a0:{}\na1a2:{\"type\":\"italic\"}\na1a1:[\"$a1a2\"]\na19f:{\"data\":\"$a1a0\",\"marks\":\"$a1a1\",\"value\":\"When people yell boo \",\"nodeType\":\"text\"}\na19e:[\"$a19f\"]\na19c:{\"data\":\"$a19d\",\"content\":\"$a19e\",\"nodeType\":\"paragraph\"}\na1a4:{}\na1a7:{}\na1a9:{\"type\":\"italic\"}\na1a8:[\"$a1a9\"]\na1a6:{\"data\":\"$a1a7\",\"marks\":\"$a1a8\",\"value\":\"I feel a sense of self \",\"nodeType\":\"text\"}\na1a5:[\"$a1a6\"]\na1a3:{\"data\":\"$a1a4\",\"content\":\"$a1a5\",\"nodeType\":\"paragraph\"}\na1ab:{}\na1ae:{}\na1b0:{\"type\":\"italic\"}\na1af:[\"$a1b0\"]\na1ad:{\"data\":\"$a1ae\",\"marks\":\"$a1af\",\"value\":\"Why was I changing \",\"nodeType\":\"text\"}\na1ac:[\"$a1ad\"]\na1aa:{\"data\":\"$a1ab\",\"content\":\"$a1ac\",\"nodeType\":\"paragraph\"}\na1b2:{}\na1b5:{}\na1b7:{\"type\":\"italic\"}\na1b6:[\"$a1b7\"]\na1b4:{\"data\":\"$a1b5\",\"marks\":\"$a1b6\",\"value\":\"To match someone else? \",\"nodeType\":\"text\"}\na1b3:[\"$a1b4\"]\na1b1:{\"data\":\"$a1b2\",\"content\":\"$a1b3\",\"nodeType\":\"paragraph\"}\na1b9:{}\na1bc:{}\na1bd:[]\na1bb:{\"data\":\"$a1bc\",\"marks\":\"$a1bd\",\"value\":\"*** \",\"nodeType\":\"text\"}\na1ba:[\"$a1bb\"]\na1b8:{\"data\":\"$a1b9\",\"content\":\"$a1ba\",\"nodeType\":\"paragraph\"}\na1bf:{}\na1c2:{}\na1c3:[]\na1c1:{\"data\":\"$a1c2\",\"marks\":\"$a1c3\",\"value\":\"Abby sat in front of the laptop screen as waiting room music chimed through the computer speakers. She swung her legs underneath the dining ro"])</script>
1<script>self.__next_f.push([1,"om table and fluffed her hair. \",\"nodeType\":\"text\"}\na1c0:[\"$a1c1\"]\na1be:{\"data\":\"$a1bf\",\"content\":\"$a1c0\",\"nodeType\":\"paragraph\"}\na1c5:{}\na1c8:{}\na1c9:[]\na1c7:{\"data\":\"$a1c8\",\"marks\":\"$a1c9\",\"value\":\"âHi! How are you?â Abby said with a smile, when her counselor, Jackie, logged onto the Childrenâs Health Virtual Care appointment. \",\"nodeType\":\"text\"}\na1c6:[\"$a1c7\"]\na1c4:{\"data\":\"$a1c5\",\"content\":\"$a1c6\",\"nodeType\":\"paragraph\"}\na1cb:{}\na1ce:{}\na1cf:[]\na1cd:{\"data\":\"$a1ce\",\"marks\":\"$a1cf\",\"value\":\"âIâm well. How are you?â Jackie said, grinning on the other side of the video call. \",\"nodeType\":\"text\"}\na1cc:[\"$a1cd\"]\na1ca:{\"data\":\"$a1cb\",\"content\":\"$a1cc\",\"nodeType\":\"paragraph\"}\na1d1:{}\na1d4:{}\na1d5:[]\na1d3:{\"data\":\"$a1d4\",\"marks\":\"$a1d5\",\"value\":\"Since March, the pair have been holding their counseling sessions virtually instead of in Jackieâs office to safely continue meeting as the virus that causes COVID-19 enveloped the North Texas area. \",\"nodeType\":\"text\"}\na1d2:[\"$a1d3\"]\na1d0:{\"data\":\"$a1d1\",\"content\":\"$a1d2\",\"nodeType\":\"paragraph\"}\na1d7:{}\na1da:{}\na1db:[]\na1d9:{\"data\":\"$a1da\",\"marks\":\"$a1db\",\"value\":\"On the other side of the screen, Jackie starts the call as she does every appointment: She asks Abby to name her highs and lows. \",\"nodeType\":\"text\"}\na1d8:[\"$a1d9\"]\na1d6:{\"data\":\"$a1d7\",\"content\":\"$a1d8\",\"nodeType\":\"paragraph\"}\na1dd:{}\na1de:[]\na1dc:{\"data\":\"$a1dd\",\"content\":\"$a1de\",\"nodeType\":\"embedded-entry-block\"}\na1e0:{}\na1e3:{}\na1e4:[]\na1e2:{\"data\":\"$a1e3\",\"marks\":\"$a1e4\",\"value\":\"Abby tells her about an outing to the bookstore with her grandmother, an upcoming trip to the DMV to pick up her driving learnerâs permit and how she got sunburnt swimming the other day. \",\"nodeType\":\"text\"}\na1e1:[\"$a1e2\"]\na1df:{\"data\":\"$a1e0\",\"content\":\"$a1e1\",\"nodeType\":\"paragraph\"}\na1e6:{}\na1e9:{}\na1ea:[]\na1e8:{\"data\":\"$a1e9\",\"marks\":\"$a1ea\",\"value\":\"She tells Jackie about her throbbing headache and how sheâs anxious about her health. \",\"nodeType\":\"text\"}\na1e7:[\"$a1e8\"]\na1e5:{\"data\":\"$a1e6\",\"content\":\"$a1e7\",\"nod"])</script>
1<script>self.__next_f.push([1,"eType\":\"paragraph\"}\na1ec:{}\na1ef:{}\na1f0:[]\na1ee:{\"data\":\"$a1ef\",\"marks\":\"$a1f0\",\"value\":\"âThrough SPARC, itâs been neat to see Abbyâs resilience develop,â Jackie said. âLittle things used to get to her. There will always be hardships, but sheâs able to manage those a lot better now.â \",\"nodeType\":\"text\"}\na1ed:[\"$a1ee\"]\na1eb:{\"data\":\"$a1ec\",\"content\":\"$a1ed\",\"nodeType\":\"paragraph\"}\na1f2:{}\na1f5:{}\na1f6:[]\na1f4:{\"data\":\"$a1f5\",\"marks\":\"$a1f6\",\"value\":\"This fall, Abby will enter her junior year of high school. Sheâs taking advanced placement and college-level dual credit classes. \",\"nodeType\":\"text\"}\na1f3:[\"$a1f4\"]\na1f1:{\"data\":\"$a1f2\",\"content\":\"$a1f3\",\"nodeType\":\"paragraph\"}\na1f8:{}\na1fb:{}\na1fc:[]\na1fa:{\"data\":\"$a1fb\",\"marks\":\"$a1fc\",\"value\":\"She has dreams of going to college and becoming a pediatric surgeon. She wants to help people. \",\"nodeType\":\"text\"}\na1f9:[\"$a1fa\"]\na1f7:{\"data\":\"$a1f8\",\"content\":\"$a1f9\",\"nodeType\":\"paragraph\"}\na1fe:{}\na201:{}\na202:[]\na200:{\"data\":\"$a201\",\"marks\":\"$a202\",\"value\":\"âWhen I was 12, all I could think about was being 12. Now, Iâm able to hope for the future,â she said. \",\"nodeType\":\"text\"}\na1ff:[\"$a200\"]\na1fd:{\"data\":\"$a1fe\",\"content\":\"$a1ff\",\"nodeType\":\"paragraph\"}\na204:{}\na207:{}\na208:[]\na206:{\"data\":\"$a207\",\"marks\":\"$a208\",\"value\":\"Read more \",\"nodeType\":\"text\"}\na20a:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\na20d:{}\na20e:[]\na20c:{\"data\":\"$a20d\",\"marks\":\"$a20e\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\na20b:[\"$a20c\"]\na209:{\"data\":\"$a20a\",\"content\":\"$a20b\",\"nodeType\":\"hyperlink\"}\na210:{}\na211:[]\na20f:{\"data\":\"$a210\",\"marks\":\"$a211\",\"value\":\" like Abby's to learn how Children's Medical Center Foundation impacts the lives of North Texas children.\",\"nodeType\":\"text\"}\na205:[\"$a206\",\"$a209\",\"$a20f\"]\na203:{\"data\":\"$a204\",\"content\":\"$a205\",\"nodeType\":\"paragraph\"}\na213:{}\na216:{}\na217:[]\na215:{\"data\":\"$a216\",\"marks\":\"$a217\",\"value\":\"*** \",\"nodeType\":\"text\"}\na214:[\"$a215\"]\na212:{\"data\":\"$a213\",\"content\":\"$a214\",\"nodeType\":\"paragraph\"}\na219:{}"])</script>
1<script>self.__next_f.push([1,"\na21c:{}\na21e:{\"type\":\"bold\"}\na21d:[\"$a21e\"]\na21b:{\"data\":\"$a21c\",\"marks\":\"$a21d\",\"value\":\"WHAT ELSE YOU NEED TO KNOW ABOUT ABBYâS STORY: \",\"nodeType\":\"text\"}\na21a:[\"$a21b\"]\na218:{\"data\":\"$a219\",\"content\":\"$a21a\",\"nodeType\":\"paragraph\"}\na220:{}\na223:{}\na224:[]\na222:{\"data\":\"$a223\",\"marks\":\"$a224\",\"value\":\"Abby isnât alone in her mental health struggles. \",\"nodeType\":\"text\"}\na221:[\"$a222\"]\na21f:{\"data\":\"$a220\",\"content\":\"$a221\",\"nodeType\":\"paragraph\"}\na226:{}\na229:{}\na22a:[]\na228:{\"data\":\"$a229\",\"marks\":\"$a22a\",\"value\":\"Despite rising youth suicide rates and an increase in online bullying, Texas ranks near last in the nation for child and adolescent access to mental health services, according to the \",\"nodeType\":\"text\"}\na22c:{\"uri\":\"https://www.childrens.com/keeping-families-healthy/dfw-childrens-health-assessment\"}\na22f:{}\na230:[]\na22e:{\"data\":\"$a22f\",\"marks\":\"$a230\",\"value\":\"2019 Beyond ABC report published by Children's Health\",\"nodeType\":\"text\"}\na22d:[\"$a22e\"]\na22b:{\"data\":\"$a22c\",\"content\":\"$a22d\",\"nodeType\":\"hyperlink\"}\na232:{}\na233:[]\na231:{\"data\":\"$a232\",\"marks\":\"$a233\",\"value\":\". \",\"nodeType\":\"text\"}\na227:[\"$a228\",\"$a22b\",\"$a231\"]\na225:{\"data\":\"$a226\",\"content\":\"$a227\",\"nodeType\":\"paragraph\"}\na235:{}\na238:{}\na239:[]\na237:{\"data\":\"$a238\",\"marks\":\"$a239\",\"value\":\"Suicide is the second leading cause of death among U.S. adolescents ages 15 to 24. In 2016, Dallas County saw adolescent suicides increase 27%, the report states. \",\"nodeType\":\"text\"}\na236:[\"$a237\"]\na234:{\"data\":\"$a235\",\"content\":\"$a236\",\"nodeType\":\"paragraph\"}\na23b:{}\na23e:{}\na23f:[]\na23d:{\"data\":\"$a23e\",\"marks\":\"$a23f\",\"value\":\"As a response to COVID-19 and an increasing number of patient referrals, the Suicide Prevention Intensive Outpatient Program at Childrenâs Health has been creatively adapting their programming, moving their group and individual therapy sessions online. \",\"nodeType\":\"text\"}\na23c:[\"$a23d\"]\na23a:{\"data\":\"$a23b\",\"content\":\"$a23c\",\"nodeType\":\"paragraph\"}\na241:{}\na244:{}\na245:[]\na243:{\"data\":\"$a244\",\"marks\":\"$a245\",\"value\""])</script>
1<script>self.__next_f.push([1,":\"In the last five years, more than 50 donors have given more than $1.5 million to support SPARC and its initiatives. While generous donors have been instrumental in advancing this program, support still is needed to help more children in our community. \",\"nodeType\":\"text\"}\na242:[\"$a243\"]\na240:{\"data\":\"$a241\",\"content\":\"$a242\",\"nodeType\":\"paragraph\"}\na247:{}\na24a:{}\na24c:{\"type\":\"bold\"}\na24b:[\"$a24c\"]\na249:{\"data\":\"$a24a\",\"marks\":\"$a24b\",\"value\":\"Look for Warning Signs \",\"nodeType\":\"text\"}\na248:[\"$a249\"]\na246:{\"data\":\"$a247\",\"content\":\"$a248\",\"nodeType\":\"paragraph\"}\na24e:{}\na251:{}\na252:[]\na250:{\"data\":\"$a251\",\"marks\":\"$a252\",\"value\":\"Itâs important for parents and other family members to recognize the signs of suicide and make sure teens get help. Warning signs include your child talking about wanting to die, expressing feelings of hopelessness or worthlessness, changes in mood and withdrawing from others. \",\"nodeType\":\"text\"}\na24f:[\"$a250\"]\na24d:{\"data\":\"$a24e\",\"content\":\"$a24f\",\"nodeType\":\"paragraph\"}\na254:{}\na257:{}\na258:[]\na256:{\"data\":\"$a257\",\"marks\":\"$a258\",\"value\":\"If your child appears to be in crisis, donât hesitate to take him to a mental health care professional or even an emergency room. You can reach SPARC at 214-456-8899 or 214-456-3600 or the National Suicide Prevention Lifeline at 1-800-273-8255.\",\"nodeType\":\"text\"}\na255:[\"$a256\"]\na253:{\"data\":\"$a254\",\"content\":\"$a255\",\"nodeType\":\"paragraph\"}\na0b8:[\"$a0b9\",\"$a0bf\",\"$a0c2\",\"$a0c8\",\"$a0ce\",\"$a0d4\",\"$a0da\",\"$a0e0\",\"$a0e6\",\"$a0ec\",\"$a0ef\",\"$a0f5\",\"$a0fb\",\"$a101\",\"$a107\",\"$a10d\",\"$a113\",\"$a119\",\"$a11c\",\"$a122\",\"$a128\",\"$a12e\",\"$a134\",\"$a13a\",\"$a140\",\"$a146\",\"$a14c\",\"$a152\",\"$a158\",\"$a15b\",\"$a161\",\"$a167\",\"$a16d\",\"$a173\",\"$a179\",\"$a180\",\"$a187\",\"$a18e\",\"$a195\",\"$a19c\",\"$a1a3\",\"$a1aa\",\"$a1b1\",\"$a1b8\",\"$a1be\",\"$a1c4\",\"$a1ca\",\"$a1d0\",\"$a1d6\",\"$a1dc\",\"$a1df\",\"$a1e5\",\"$a1eb\",\"$a1f1\",\"$a1f7\",\"$a1fd\",\"$a203\",\"$a212\",\"$a218\",\"$a21f\",\"$a225\",\"$a234\",\"$a23a\",\"$a240\",\"$a246\",\"$a24d\",\"$a253\"]\na0b6:{\"data\":\"$a0b7\",\"content\":\"$a0b8\",\"nodeType\":\"document\"}\na0b5:{"])</script>
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1<script>self.__next_f.push([1,":\"Environment\"}\na2d0:{\"sys\":\"$a2d1\"}\na2d3:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\na2d2:{\"sys\":\"$a2d3\"}\na2cd:{\"space\":\"$a2ce\",\"id\":\"5dKOnZIbSnZtoAFjiXaYsR\",\"type\":\"Entry\",\"createdAt\":\"2025-02-11T19:15:11.682Z\",\"updatedAt\":\"2026-01-29T21:24:32.554Z\",\"environment\":\"$a2d0\",\"publishedVersion\":18,\"revision\":3,\"contentType\":\"$a2d2\",\"locale\":\"en-US\"}\na2d6:{}\na2d9:{}\na2dc:{}\na2dd:[]\na2db:{\"data\":\"$a2dc\",\"marks\":\"$a2dd\",\"value\":\"Myra had only been gone a couple of days when Leigh picked up the phone with an offer to fly her best friends to Dallas.\",\"nodeType\":\"text\"}\na2da:[\"$a2db\"]\na2d8:{\"data\":\"$a2d9\",\"content\":\"$a2da\",\"nodeType\":\"paragraph\"}\na2df:{}\na2e2:{}\na2e3:[]\na2e1:{\"data\":\"$a2e2\",\"marks\":\"$a2e3\",\"value\":\"âWe called them and said, âWe donât know why or how this is possible, but we are able to get your whole family here to celebrate Myraâs life,ââ Leigh said.\",\"nodeType\":\"text\"}\na2e0:[\"$a2e1\"]\na2de:{\"data\":\"$a2df\",\"content\":\"$a2e0\",\"nodeType\":\"paragraph\"}\na2e5:{}\na2e8:{}\na2e9:[]\na2e7:{\"data\":\"$a2e8\",\"marks\":\"$a2e9\",\"value\":\"Leigh needed her friends close as she grappled with the loss of her baby daughter, who in her young life had fought cancer twice. \",\"nodeType\":\"text\"}\na2e6:[\"$a2e7\"]\na2e4:{\"data\":\"$a2e5\",\"content\":\"$a2e6\",\"nodeType\":\"paragraph\"}\na2eb:{}\na2ee:{}\na2ef:[]\na2ed:{\"data\":\"$a2ee\",\"marks\":\"$a2ef\",\"value\":\"These friends, Ryon and Rebecca, were like brother and sister to Leigh and her husband, Kenneth. They were the ones who helped the couple get past their fear of getting married and having kids.\",\"nodeType\":\"text\"}\na2ec:[\"$a2ed\"]\na2ea:{\"data\":\"$a2eb\",\"content\":\"$a2ec\",\"nodeType\":\"paragraph\"}\na2f1:{}\na2f4:{}\na2f5:[]\na2f3:{\"data\":\"$a2f4\",\"marks\":\"$a2f5\",\"value\":\"And she needed a way to get them here.\",\"nodeType\":\"text\"}\na2f2:[\"$a2f3\"]\na2f0:{\"data\":\"$a2f1\",\"content\":\"$a2f2\",\"nodeType\":\"paragraph\"}\na2f7:{}\na2fa:{}\na2fb:[]\na2f9:{\"data\":\"$a2fa\",\"marks\":\"$a2fb\",\"value\":\"Through a medical transportation grant from Southwest Airlines, Leigh was able to fly the friends and their three "])</script>
1<script>self.__next_f.push([1,"children, Claire, Eden and Eleazar, from their Colorado home to Texas for Myraâs funeral.\",\"nodeType\":\"text\"}\na2f8:[\"$a2f9\"]\na2f6:{\"data\":\"$a2f7\",\"content\":\"$a2f8\",\"nodeType\":\"paragraph\"}\na2fd:{}\na300:{}\na301:[]\na2ff:{\"data\":\"$a300\",\"marks\":\"$a301\",\"value\":\"âThey were there to take care of our daily needs while we did these horrible, impossible things that you never want to do as a parent. Having them here was immensely helpful during that time,â Leigh said.\",\"nodeType\":\"text\"}\na2fe:[\"$a2ff\"]\na2fc:{\"data\":\"$a2fd\",\"content\":\"$a2fe\",\"nodeType\":\"paragraph\"}\na303:{}\na306:{}\na307:[]\na305:{\"data\":\"$a306\",\"marks\":\"$a307\",\"value\":\"-----\",\"nodeType\":\"text\"}\na304:[\"$a305\"]\na302:{\"data\":\"$a303\",\"content\":\"$a304\",\"nodeType\":\"paragraph\"}\na309:{}\na30a:[]\na308:{\"data\":\"$a309\",\"content\":\"$a30a\",\"nodeType\":\"embedded-entry-block\"}\na30c:{}\na30f:{}\na310:[]\na30e:{\"data\":\"$a30f\",\"marks\":\"$a310\",\"value\":\"It started with bruises that wouldnât go away.\",\"nodeType\":\"text\"}\na30d:[\"$a30e\"]\na30b:{\"data\":\"$a30c\",\"content\":\"$a30d\",\"nodeType\":\"paragraph\"}\na312:{}\na315:{}\na316:[]\na314:{\"data\":\"$a315\",\"marks\":\"$a316\",\"value\":\"Myra was eight months old, full of joy and eager to explore as she entered the crawling and wobbling stage of life. Her twin brother, Collin, was the same, scooting around and collecting scrapes and bruises along the way â but his bruises always healed in a day or two. Myraâs didnât.\",\"nodeType\":\"text\"}\na313:[\"$a314\"]\na311:{\"data\":\"$a312\",\"content\":\"$a313\",\"nodeType\":\"paragraph\"}\na318:{}\na31b:{}\na31c:[]\na31a:{\"data\":\"$a31b\",\"marks\":\"$a31c\",\"value\":\"By this time, Leigh began to recognize other differences. Collin had caught up and surpassed Myra developmentally. The normally energetic and excitable Myra was also sleeping more, wasnât eating as much and her skin tone had turned slightly gray.\",\"nodeType\":\"text\"}\na319:[\"$a31a\"]\na317:{\"data\":\"$a318\",\"content\":\"$a319\",\"nodeType\":\"paragraph\"}\na31e:{}\na321:{}\na322:[]\na320:{\"data\":\"$a321\",\"marks\":\"$a322\",\"value\":\"A visit to their pediatrician led to a same-day appoin"])</script>
1<script>self.__next_f.push([1,"tment at Childrenâs Medical Center Plano, where Myra got her blood drawn.\",\"nodeType\":\"text\"}\na31f:[\"$a320\"]\na31d:{\"data\":\"$a31e\",\"content\":\"$a31f\",\"nodeType\":\"paragraph\"}\na324:{}\na327:{}\na328:[]\na326:{\"data\":\"$a327\",\"marks\":\"$a328\",\"value\":\"As Leigh sat helplessly and watched her young daughter get pricked with a needle, she noticed the phlebotomist was struggling to extract blood from Myraâs little arm. âShould it really be this difficult?â she thought.\",\"nodeType\":\"text\"}\na325:[\"$a326\"]\na323:{\"data\":\"$a324\",\"content\":\"$a325\",\"nodeType\":\"paragraph\"}\na32a:{}\na32d:{}\na32e:[]\na32c:{\"data\":\"$a32d\",\"marks\":\"$a32e\",\"value\":\"A few hours that felt like a lifetime passed before Leigh got a phone call with a shocking instruction: âTake Myra to Childrenâs Medical Center Dallas immediately.â\",\"nodeType\":\"text\"}\na32b:[\"$a32c\"]\na329:{\"data\":\"$a32a\",\"content\":\"$a32b\",\"nodeType\":\"paragraph\"}\na330:{}\na333:{}\na334:[]\na332:{\"data\":\"$a333\",\"marks\":\"$a334\",\"value\":\"Myraâs bloodwork was abnormal, and they needed to take a closer look.\",\"nodeType\":\"text\"}\na331:[\"$a332\"]\na32f:{\"data\":\"$a330\",\"content\":\"$a331\",\"nodeType\":\"paragraph\"}\na336:{}\na339:{}\na33a:[]\na338:{\"data\":\"$a339\",\"marks\":\"$a33a\",\"value\":\"Thoughts raced through Leigh and her husband Kennethâs head as they rushed to Dallas.\",\"nodeType\":\"text\"}\na337:[\"$a338\"]\na335:{\"data\":\"$a336\",\"content\":\"$a337\",\"nodeType\":\"paragraph\"}\na33c:{}\na33f:{}\na340:[]\na33e:{\"data\":\"$a33f\",\"marks\":\"$a340\",\"value\":\"Once they arrived, they were floored by the news: Myra had leukemia.\",\"nodeType\":\"text\"}\na33d:[\"$a33e\"]\na33b:{\"data\":\"$a33c\",\"content\":\"$a33d\",\"nodeType\":\"paragraph\"}\na342:{}\na345:{}\na346:[]\na344:{\"data\":\"$a345\",\"marks\":\"$a346\",\"value\":\"âWhen you hear that, itâs like your head could explode,â Leigh said. âThereâs no way your child could have cancer.â\",\"nodeType\":\"text\"}\na343:[\"$a344\"]\na341:{\"data\":\"$a342\",\"content\":\"$a343\",\"nodeType\":\"paragraph\"}\na348:{}\na34b:{}\na34c:[]\na34a:{\"data\":\"$a34b\",\"marks\":\"$a34c\",\"value\":\"***\",\"nodeType\":\"text\"}\na349:[\"$a34a\"]\na347:"])</script>
1<script>self.__next_f.push([1,"{\"data\":\"$a348\",\"content\":\"$a349\",\"nodeType\":\"paragraph\"}\na34e:{}\na34f:[]\na34d:{\"data\":\"$a34e\",\"content\":\"$a34f\",\"nodeType\":\"embedded-entry-block\"}\na351:{}\na354:{}\na355:[]\na353:{\"data\":\"$a354\",\"marks\":\"$a355\",\"value\":\"Myraâs condition when she first arrived at Childrenâs Medical Center Dallas was more dire than Leigh and Kenneth could have imagined.\",\"nodeType\":\"text\"}\na352:[\"$a353\"]\na350:{\"data\":\"$a351\",\"content\":\"$a352\",\"nodeType\":\"paragraph\"}\na357:{}\na35a:{}\na35b:[]\na359:{\"data\":\"$a35a\",\"marks\":\"$a35b\",\"value\":\"Her white blood cell count was extremely high â more than 35 times above the normal level. Doctors ordered an immediate admission and blood exchange until her entire blood supply was completely new.\",\"nodeType\":\"text\"}\na358:[\"$a359\"]\na356:{\"data\":\"$a357\",\"content\":\"$a358\",\"nodeType\":\"paragraph\"}\na35d:{}\na360:{}\na361:[]\na35f:{\"data\":\"$a360\",\"marks\":\"$a361\",\"value\":\"As Leigh watched Myraâs blood flowing out of her body, she stared, confused as a strange orange-colored liquid began to fill the tubes.\",\"nodeType\":\"text\"}\na35e:[\"$a35f\"]\na35c:{\"data\":\"$a35d\",\"content\":\"$a35e\",\"nodeType\":\"paragraph\"}\na363:{}\na366:{}\na367:[]\na365:{\"data\":\"$a366\",\"marks\":\"$a367\",\"value\":\"âAre they mixing her blood with something on the way out?â she thought.\",\"nodeType\":\"text\"}\na364:[\"$a365\"]\na362:{\"data\":\"$a363\",\"content\":\"$a364\",\"nodeType\":\"paragraph\"}\na369:{}\na36c:{}\na36d:[]\na36b:{\"data\":\"$a36c\",\"marks\":\"$a36d\",\"value\":\"But the thick, orange liquid was Myraâs blood, discolored by the incredibly high white blood cell count, explaining why it had been difficult for the phlebotomist to draw her blood in Plano.\",\"nodeType\":\"text\"}\na36a:[\"$a36b\"]\na368:{\"data\":\"$a369\",\"content\":\"$a36a\",\"nodeType\":\"paragraph\"}\na36f:{}\na372:{}\na373:[]\na371:{\"data\":\"$a372\",\"marks\":\"$a373\",\"value\":\"At that moment, Leigh realized her baby girl was very sick.\",\"nodeType\":\"text\"}\na370:[\"$a371\"]\na36e:{\"data\":\"$a36f\",\"content\":\"$a370\",\"nodeType\":\"paragraph\"}\na375:{}\na378:{}\na379:[]\na377:{\"data\":\"$a378\",\"marks\":\"$a379\",\"value\":\"Myra had about a"])</script>
1<script>self.__next_f.push([1," 50-50 chance to beat her mixed phenotype acute leukemia, a very rare type of leukemia.\",\"nodeType\":\"text\"}\na376:[\"$a377\"]\na374:{\"data\":\"$a375\",\"content\":\"$a376\",\"nodeType\":\"paragraph\"}\na37b:{}\na37e:{}\na37f:[]\na37d:{\"data\":\"$a37e\",\"marks\":\"$a37f\",\"value\":\"***\",\"nodeType\":\"text\"}\na37c:[\"$a37d\"]\na37a:{\"data\":\"$a37b\",\"content\":\"$a37c\",\"nodeType\":\"paragraph\"}\na381:{}\na382:[]\na380:{\"data\":\"$a381\",\"content\":\"$a382\",\"nodeType\":\"embedded-entry-block\"}\na384:{}\na387:{}\na388:[]\na386:{\"data\":\"$a387\",\"marks\":\"$a388\",\"value\":\"After more than six months of intense treatments and sleepless nights, Myraâs bone marrow biopsy came back with no signs of leukemia. She was in remission.\",\"nodeType\":\"text\"}\na385:[\"$a386\"]\na383:{\"data\":\"$a384\",\"content\":\"$a385\",\"nodeType\":\"paragraph\"}\na38a:{}\na38d:{}\na38e:[]\na38c:{\"data\":\"$a38d\",\"marks\":\"$a38e\",\"value\":\"Leigh was grateful for the care Myra received at Childrenâs Health from the doctors and nurses to the concierge and janitorial staff. She even befriended workers in the cafeteria who served her a hot meal on a hard day. \",\"nodeType\":\"text\"}\na38b:[\"$a38c\"]\na389:{\"data\":\"$a38a\",\"content\":\"$a38b\",\"nodeType\":\"paragraph\"}\na390:{}\na393:{}\na394:[]\na392:{\"data\":\"$a393\",\"marks\":\"$a394\",\"value\":\"âThere was this sense of respect, camaraderie and care,â Leigh said. âEveryone was supportive, helpful and kind. Not everyone knew what we were dealing with, but they cared that we were supported.â\",\"nodeType\":\"text\"}\na391:[\"$a392\"]\na38f:{\"data\":\"$a390\",\"content\":\"$a391\",\"nodeType\":\"paragraph\"}\na396:{}\na399:{}\na39a:[]\na398:{\"data\":\"$a399\",\"marks\":\"$a39a\",\"value\":\"After being discharged, Myra wasted no time exploring the world around her. She learned to walk, filled the familyâs home with constant jabbering and danced to her favorite tunes.\",\"nodeType\":\"text\"}\na397:[\"$a398\"]\na395:{\"data\":\"$a396\",\"content\":\"$a397\",\"nodeType\":\"paragraph\"}\na39c:{}\na39f:{}\na3a0:[]\na39e:{\"data\":\"$a39f\",\"marks\":\"$a3a0\",\"value\":\"But after seven weeks of being home, Leigh noticed some changes that worried her â a co"])</script>
1<script>self.__next_f.push([1,"nstant runny nose and a swollen eye among them.\",\"nodeType\":\"text\"}\na39d:[\"$a39e\"]\na39b:{\"data\":\"$a39c\",\"content\":\"$a39d\",\"nodeType\":\"paragraph\"}\na3a2:{}\na3a5:{}\na3a6:[]\na3a4:{\"data\":\"$a3a5\",\"marks\":\"$a3a6\",\"value\":\"A quick trip to the doctor confirmed the familyâs worst fear: The cancer was back.\",\"nodeType\":\"text\"}\na3a3:[\"$a3a4\"]\na3a1:{\"data\":\"$a3a2\",\"content\":\"$a3a3\",\"nodeType\":\"paragraph\"}\na3a8:{}\na3ab:{}\na3ac:[]\na3aa:{\"data\":\"$a3ab\",\"marks\":\"$a3ac\",\"value\":\"But this time, it was back in a different way, which made the disease more difficult to treat after Myraâs first cancer fight. \",\"nodeType\":\"text\"}\na3a9:[\"$a3aa\"]\na3a7:{\"data\":\"$a3a8\",\"content\":\"$a3a9\",\"nodeType\":\"paragraph\"}\na3ae:{}\na3b1:{}\na3b2:[]\na3b0:{\"data\":\"$a3b1\",\"marks\":\"$a3b2\",\"value\":\"The family enrolled Myra in a groundbreaking treatment trial for a few weeks, but it wasnât successful.\",\"nodeType\":\"text\"}\na3af:[\"$a3b0\"]\na3ad:{\"data\":\"$a3ae\",\"content\":\"$a3af\",\"nodeType\":\"paragraph\"}\na3b4:{}\na3b7:{}\na3b8:[]\na3b6:{\"data\":\"$a3b7\",\"marks\":\"$a3b8\",\"value\":\"On Nov. 5, Myra went home on hospice care and passed away 11 days later, sleeping in the arms of her loving mother.\",\"nodeType\":\"text\"}\na3b5:[\"$a3b6\"]\na3b3:{\"data\":\"$a3b4\",\"content\":\"$a3b5\",\"nodeType\":\"paragraph\"}\na3ba:{}\na3bd:{}\na3be:[]\na3bc:{\"data\":\"$a3bd\",\"marks\":\"$a3be\",\"value\":\"â¢â¢â¢\",\"nodeType\":\"text\"}\na3bb:[\"$a3bc\"]\na3b9:{\"data\":\"$a3ba\",\"content\":\"$a3bb\",\"nodeType\":\"paragraph\"}\na3c0:{}\na3c1:[]\na3bf:{\"data\":\"$a3c0\",\"content\":\"$a3c1\",\"nodeType\":\"embedded-entry-block\"}\na3c3:{}\na3c6:{}\na3c7:[]\na3c5:{\"data\":\"$a3c6\",\"marks\":\"$a3c7\",\"value\":\"Although their Southwest Airlines flight landed five days after Myraâs passing, the moment Ryon and Rebecca arrived with their children brought a wave of emotion to Leigh and Kenneth.\",\"nodeType\":\"text\"}\na3c4:[\"$a3c5\"]\na3c2:{\"data\":\"$a3c3\",\"content\":\"$a3c4\",\"nodeType\":\"paragraph\"}\na3c9:{}\na3cc:{}\na3cd:[]\na3cb:{\"data\":\"$a3cc\",\"marks\":\"$a3cd\",\"value\":\"âIt was an overwhelming moment because the kids were so sad that they didnât get to see Myra agai"])</script>
1<script>self.__next_f.push([1,"n,â Leigh said.\",\"nodeType\":\"text\"}\na3ca:[\"$a3cb\"]\na3c8:{\"data\":\"$a3c9\",\"content\":\"$a3ca\",\"nodeType\":\"paragraph\"}\na3cf:{}\na3d2:{}\na3d3:[]\na3d1:{\"data\":\"$a3d2\",\"marks\":\"$a3d3\",\"value\":\"And while they were happy to be together once more, a piece was missing without Myra.\",\"nodeType\":\"text\"}\na3d0:[\"$a3d1\"]\na3ce:{\"data\":\"$a3cf\",\"content\":\"$a3d0\",\"nodeType\":\"paragraph\"}\na3d5:{}\na3d8:{}\na3d9:[]\na3d7:{\"data\":\"$a3d8\",\"marks\":\"$a3d9\",\"value\":\"âAt Southwest, we are all about connecting people to whatâs most important in their lives. In this case, a memorial to celebrate sweet little Myra,â said Laura Nieto, Director of Community Outreach at Southwest Airlines. âWe are humbled to have connected these families so they could support one another.â\",\"nodeType\":\"text\"}\na3d6:[\"$a3d7\"]\na3d4:{\"data\":\"$a3d5\",\"content\":\"$a3d6\",\"nodeType\":\"paragraph\"}\na3db:{}\na3de:{}\na3df:[]\na3dd:{\"data\":\"$a3de\",\"marks\":\"$a3df\",\"value\":\"Living without their little girl will never be normal, but at the memorial service and in the months following her passing, they have done their best to remember Myraâs smile, her personality and her spirit.\",\"nodeType\":\"text\"}\na3dc:[\"$a3dd\"]\na3da:{\"data\":\"$a3db\",\"content\":\"$a3dc\",\"nodeType\":\"paragraph\"}\na3e1:{}\na3e2:[]\na3e0:{\"data\":\"$a3e1\",\"content\":\"$a3e2\",\"nodeType\":\"embedded-entry-block\"}\na3e4:{}\na3e7:{}\na3e8:[]\na3e6:{\"data\":\"$a3e7\",\"marks\":\"$a3e8\",\"value\":\"âThe things we remember about Myra the most are that she was easy going, she loved music, she loved to dance, and she loved to eat,â Leigh said. âEven when she had to do all these horrible treatments, she would protest, but she would get it done and then snuggle us. She was the most easy-going child Iâve never known.â\",\"nodeType\":\"text\"}\na3e5:[\"$a3e6\"]\na3e3:{\"data\":\"$a3e4\",\"content\":\"$a3e5\",\"nodeType\":\"paragraph\"}\na3ea:{}\na3ed:{}\na3ee:[]\na3ec:{\"data\":\"$a3ed\",\"marks\":\"$a3ee\",\"value\":\"As for the care they received at Childrenâs, Leigh is eternally grateful.\",\"nodeType\":\"text\"}\na3eb:[\"$a3ec\"]\na3e9:{\"data\":\"$a3ea\",\"content\":\"$a3eb\",\"nodeTyp"])</script>
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1<script>self.__next_f.push([1,"sorder -- Lylahâs muscles are weak. She relies on a wheelchair and walker to move. Sheâs had to work to be able to hold her head up, sit on the edge of a bed and wiggle her hands and feet.\",\"nodeType\":\"text\"}\na4df:[\"$a4e0\"]\na4dd:{\"data\":\"$a4de\",\"content\":\"$a4df\",\"nodeType\":\"paragraph\"}\na4e4:{}\na4e7:{}\na4e8:[]\na4e6:{\"data\":\"$a4e7\",\"marks\":\"$a4e8\",\"value\":\"Her parents largely credit the research treatment and the clinical team at Childrenâs Health for giving their daughter a chance at life.\",\"nodeType\":\"text\"}\na4e5:[\"$a4e6\"]\na4e3:{\"data\":\"$a4e4\",\"content\":\"$a4e5\",\"nodeType\":\"paragraph\"}\na4ea:{}\na4ed:{}\na4ee:[]\na4ec:{\"data\":\"$a4ed\",\"marks\":\"$a4ee\",\"value\":\"For Holly, Lylahâs survival depended on this drug research trial.\",\"nodeType\":\"text\"}\na4eb:[\"$a4ec\"]\na4e9:{\"data\":\"$a4ea\",\"content\":\"$a4eb\",\"nodeType\":\"paragraph\"}\na4f0:{}\na4f3:{}\na4f4:[]\na4f2:{\"data\":\"$a4f3\",\"marks\":\"$a4f4\",\"value\":\"And the treatment came at a time when the family was desperate for a glimmer of hope.\",\"nodeType\":\"text\"}\na4f1:[\"$a4f2\"]\na4ef:{\"data\":\"$a4f0\",\"content\":\"$a4f1\",\"nodeType\":\"paragraph\"}\na4f6:{}\na4f9:{}\na4fa:[]\na4f8:{\"data\":\"$a4f9\",\"marks\":\"$a4fa\",\"value\":\"âI knew it was the only way she was going to live,â Holly said. âAnd I knew if we didnât get in, then that was it.â\",\"nodeType\":\"text\"}\na4f7:[\"$a4f8\"]\na4f5:{\"data\":\"$a4f6\",\"content\":\"$a4f7\",\"nodeType\":\"paragraph\"}\na4fc:{}\na4ff:{}\na500:[]\na4fe:{\"data\":\"$a4ff\",\"marks\":\"$a500\",\"value\":\"***\",\"nodeType\":\"text\"}\na4fd:[\"$a4fe\"]\na4fb:{\"data\":\"$a4fc\",\"content\":\"$a4fd\",\"nodeType\":\"paragraph\"}\na502:{}\na505:{}\na506:[]\na504:{\"data\":\"$a505\",\"marks\":\"$a506\",\"value\":\"March 21, 2014. Diagnosis day.\",\"nodeType\":\"text\"}\na503:[\"$a504\"]\na501:{\"data\":\"$a502\",\"content\":\"$a503\",\"nodeType\":\"paragraph\"}\na508:{}\na50b:{}\na50c:[]\na50a:{\"data\":\"$a50b\",\"marks\":\"$a50c\",\"value\":\"Holly and Don donât talk much about it anymore.\",\"nodeType\":\"text\"}\na509:[\"$a50a\"]\na507:{\"data\":\"$a508\",\"content\":\"$a509\",\"nodeType\":\"paragraph\"}\na50e:{}\na511:{}\na512:[]\na510:{\"data\":\"$a511\",\"marks\":\"$a512\",\"value\":\"âI ke"])</script>
1<script>self.__next_f.push([1,"pt feeling like it was a dream for the first couple of days,â Holly said. âIt was like I was living in a nightmare -- wake up, this isnât real.â\",\"nodeType\":\"text\"}\na50f:[\"$a510\"]\na50d:{\"data\":\"$a50e\",\"content\":\"$a50f\",\"nodeType\":\"paragraph\"}\na514:{}\na515:[]\na513:{\"data\":\"$a514\",\"content\":\"$a515\",\"nodeType\":\"embedded-entry-block\"}\na517:{}\na51a:{}\na51b:[]\na519:{\"data\":\"$a51a\",\"marks\":\"$a51b\",\"value\":\"Spinal Muscular Atrophy is caused by a loss of specialized nerve cells â called motor neurons â located throughout the spinal cord and in the part of the brain that is connected to the brainstem. The loss of motor neurons causes weakness and wasting of the muscles that children use for many activities like crawling, walking, sitting up and controlling their heads. \",\"nodeType\":\"text\"}\na518:[\"$a519\"]\na516:{\"data\":\"$a517\",\"content\":\"$a518\",\"nodeType\":\"paragraph\"}\na51d:{}\na520:{}\na521:[]\na51f:{\"data\":\"$a520\",\"marks\":\"$a521\",\"value\":\"Initially, doctors estimated Lylah had another six months to a year to live. \",\"nodeType\":\"text\"}\na51e:[\"$a51f\"]\na51c:{\"data\":\"$a51d\",\"content\":\"$a51e\",\"nodeType\":\"paragraph\"}\na523:{}\na526:{}\na527:[]\na525:{\"data\":\"$a526\",\"marks\":\"$a527\",\"value\":\"The severity of the condition shocked Don and Holly.\",\"nodeType\":\"text\"}\na524:[\"$a525\"]\na522:{\"data\":\"$a523\",\"content\":\"$a524\",\"nodeType\":\"paragraph\"}\na529:{}\na52c:{}\na52d:[]\na52b:{\"data\":\"$a52c\",\"marks\":\"$a52d\",\"value\":\"They had suspected something was wrong when Lylah was about four months old and still weak, barely rolling her head from side to side and struggling to reach her arms up for her toys. She had difficulty sitting up and didnât want to put any weight on her legs.\",\"nodeType\":\"text\"}\na52a:[\"$a52b\"]\na528:{\"data\":\"$a529\",\"content\":\"$a52a\",\"nodeType\":\"paragraph\"}\na52f:{}\na532:{}\na533:[]\na531:{\"data\":\"$a532\",\"marks\":\"$a533\",\"value\":\"âShe was just limp,â Holly said. âWe would call her a noodle.â\",\"nodeType\":\"text\"}\na530:[\"$a531\"]\na52e:{\"data\":\"$a52f\",\"content\":\"$a530\",\"nodeType\":\"paragraph\"}\na535:{}\na538:{}\na539:[]\na537:{"])</script>
1<script>self.__next_f.push([1,"\"data\":\"$a538\",\"marks\":\"$a539\",\"value\":\"But they never suspected a disease that could be fatal, in some cases.\",\"nodeType\":\"text\"}\na536:[\"$a537\"]\na534:{\"data\":\"$a535\",\"content\":\"$a536\",\"nodeType\":\"paragraph\"}\na53b:{}\na53e:{}\na53f:[]\na53d:{\"data\":\"$a53e\",\"marks\":\"$a53f\",\"value\":\"âWe would not accept the diagnosis they gave us,â Don said.\",\"nodeType\":\"text\"}\na53c:[\"$a53d\"]\na53a:{\"data\":\"$a53b\",\"content\":\"$a53c\",\"nodeType\":\"paragraph\"}\na541:{}\na544:{}\na545:[]\na543:{\"data\":\"$a544\",\"marks\":\"$a545\",\"value\":\"The family traveled across the country to other hospitals, hoping for a different opinion and for better news.\",\"nodeType\":\"text\"}\na542:[\"$a543\"]\na540:{\"data\":\"$a541\",\"content\":\"$a542\",\"nodeType\":\"paragraph\"}\na547:{}\na54a:{}\na54b:[]\na549:{\"data\":\"$a54a\",\"marks\":\"$a54b\",\"value\":\"Holly joined Spinal Muscular Atrophy groups on social media, which eventually led her to a website with a list of clinical trials and a new study that was accepting babies older than six months for the drug treatment Spinraza (Nusinersen), which is now FDA-approved.\",\"nodeType\":\"text\"}\na548:[\"$a549\"]\na546:{\"data\":\"$a547\",\"content\":\"$a548\",\"nodeType\":\"paragraph\"}\na54d:{}\na54e:[]\na54c:{\"data\":\"$a54d\",\"content\":\"$a54e\",\"nodeType\":\"embedded-entry-block\"}\na550:{}\na553:{}\na554:[]\na552:{\"data\":\"$a553\",\"marks\":\"$a554\",\"value\":\"The drug contains a molecule that increases the bodyâs ability to produce a protein called survival motor neuron, which spinal muscular atrophy patients donât produce enough of and is essential for motor neuron health.\",\"nodeType\":\"text\"}\na551:[\"$a552\"]\na54f:{\"data\":\"$a550\",\"content\":\"$a551\",\"nodeType\":\"paragraph\"}\na556:{}\na559:{}\na55a:[]\na558:{\"data\":\"$a559\",\"marks\":\"$a55a\",\"value\":\"Research Coordinator Tammy Ramm currently oversees the studies more than a dozen patients at Childrenâs Health on this drug.\",\"nodeType\":\"text\"}\na557:[\"$a558\"]\na555:{\"data\":\"$a556\",\"content\":\"$a557\",\"nodeType\":\"paragraph\"}\na55c:{}\na55f:{}\na560:[]\na55e:{\"data\":\"$a55f\",\"marks\":\"$a560\",\"value\":\"âWhen we first opened the study, it wasnât "])</script>
1<script>self.__next_f.push([1,"FDA-approved. Families from all over were calling, wanting to be able to participate in this treatment for their child,â Tammy said. âThis is providing therapy for this rare disease when there was none before.â\",\"nodeType\":\"text\"}\na55d:[\"$a55e\"]\na55b:{\"data\":\"$a55c\",\"content\":\"$a55d\",\"nodeType\":\"paragraph\"}\na562:{}\na565:{}\na566:[]\na564:{\"data\":\"$a565\",\"marks\":\"$a566\",\"value\":\"In the last several years, Tammy has seen babies like Lylah, whose arms and legs could barely move, be able to sit up, play and talk. \",\"nodeType\":\"text\"}\na563:[\"$a564\"]\na561:{\"data\":\"$a562\",\"content\":\"$a563\",\"nodeType\":\"paragraph\"}\na568:{}\na56b:{}\na56c:[]\na56a:{\"data\":\"$a56b\",\"marks\":\"$a56c\",\"value\":\"âWe love Lylah the way she is, but this gives her a chance,â Don said of the research trial.\",\"nodeType\":\"text\"}\na569:[\"$a56a\"]\na567:{\"data\":\"$a568\",\"content\":\"$a569\",\"nodeType\":\"paragraph\"}\na56e:{}\na571:{}\na572:[]\na570:{\"data\":\"$a571\",\"marks\":\"$a572\",\"value\":\"In the last several years, Don and Holly have seen Lylah hit milestones they didnât think would be possible after her diagnosis.\",\"nodeType\":\"text\"}\na56f:[\"$a570\"]\na56d:{\"data\":\"$a56e\",\"content\":\"$a56f\",\"nodeType\":\"paragraph\"}\na574:{}\na577:{}\na578:[]\na576:{\"data\":\"$a577\",\"marks\":\"$a578\",\"value\":\"Last year, she performed in her first ballet recital and played on a baseball team (the Detroit Tigers is her favorite). She also started kindergarten. And earlier this year, with the help of a new walker, she skated on the ice for the first time like her older brother.\",\"nodeType\":\"text\"}\na575:[\"$a576\"]\na573:{\"data\":\"$a574\",\"content\":\"$a575\",\"nodeType\":\"paragraph\"}\na57a:{}\na57d:{}\na57e:[]\na57c:{\"data\":\"$a57d\",\"marks\":\"$a57e\",\"value\":\"âChildrenâs Health gave us hope for our child when we had no hope,â Holly said. âComing here has changed her life.â\",\"nodeType\":\"text\"}\na57b:[\"$a57c\"]\na579:{\"data\":\"$a57a\",\"content\":\"$a57b\",\"nodeType\":\"paragraph\"}\na580:{}\na583:{}\na584:[]\na582:{\"data\":\"$a583\",\"marks\":\"$a584\",\"value\":\"***\",\"nodeType\":\"text\"}\na581:[\"$a582\"]\na57f:{\"data\":\"$a580\",\"co"])</script>
1<script>self.__next_f.push([1,"ntent\":\"$a581\",\"nodeType\":\"paragraph\"}\na586:{}\na587:[]\na585:{\"data\":\"$a586\",\"content\":\"$a587\",\"nodeType\":\"embedded-entry-block\"}\na589:{}\na58c:{}\na58d:[]\na58b:{\"data\":\"$a58c\",\"marks\":\"$a58d\",\"value\":\"A nurse with a blue cap covering her hair wheeled Lylah down the hallway toward a set of double doors that led to the operating room, pausing by Don and Holly for a quick goodbye.\",\"nodeType\":\"text\"}\na58a:[\"$a58b\"]\na588:{\"data\":\"$a589\",\"content\":\"$a58a\",\"nodeType\":\"paragraph\"}\na58f:{}\na592:{}\na593:[]\na591:{\"data\":\"$a592\",\"marks\":\"$a593\",\"value\":\"Time for the next drug treatment dosage.\",\"nodeType\":\"text\"}\na590:[\"$a591\"]\na58e:{\"data\":\"$a58f\",\"content\":\"$a590\",\"nodeType\":\"paragraph\"}\na595:{}\na598:{}\na599:[]\na597:{\"data\":\"$a598\",\"marks\":\"$a599\",\"value\":\"Don rubbed Lylahâs arm, reassuring her the procedure would be quick.\",\"nodeType\":\"text\"}\na596:[\"$a597\"]\na594:{\"data\":\"$a595\",\"content\":\"$a596\",\"nodeType\":\"paragraph\"}\na59b:{}\na59e:{}\na59f:[]\na59d:{\"data\":\"$a59e\",\"marks\":\"$a59f\",\"value\":\"And Holly leaned over for a kiss on the cheek.\",\"nodeType\":\"text\"}\na59c:[\"$a59d\"]\na59a:{\"data\":\"$a59b\",\"content\":\"$a59c\",\"nodeType\":\"paragraph\"}\na5a1:{}\na5a4:{}\na5a5:[]\na5a3:{\"data\":\"$a5a4\",\"marks\":\"$a5a5\",\"value\":\"âBye, sweetie. Weâll see you soon,â she said, stroking Lylahâs silky blonde hair swept in a ponytail.\",\"nodeType\":\"text\"}\na5a2:[\"$a5a3\"]\na5a0:{\"data\":\"$a5a1\",\"content\":\"$a5a2\",\"nodeType\":\"paragraph\"}\na5a7:{}\na5aa:{}\na5ab:[]\na5a9:{\"data\":\"$a5aa\",\"marks\":\"$a5ab\",\"value\":\"The nurse gave Holly a reassuring smile as she wheeled the bed through the double doors.\",\"nodeType\":\"text\"}\na5a8:[\"$a5a9\"]\na5a6:{\"data\":\"$a5a7\",\"content\":\"$a5a8\",\"nodeType\":\"paragraph\"}\na5ad:{}\na5b0:{}\na5b1:[]\na5af:{\"data\":\"$a5b0\",\"marks\":\"$a5b1\",\"value\":\"âWeâll take good care of her.â\",\"nodeType\":\"text\"}\na5ae:[\"$a5af\"]\na5ac:{\"data\":\"$a5ad\",\"content\":\"$a5ae\",\"nodeType\":\"paragraph\"}\na5b3:{}\na5b6:{}\na5b7:[]\na5b5:{\"data\":\"$a5b6\",\"marks\":\"$a5b7\",\"value\":\"Read more \",\"nodeType\":\"text\"}\na5b9:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\n"])</script>
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1<script>self.__next_f.push([1,"6e:{}\na66f:[]\na66d:{\"data\":\"$a66e\",\"content\":\"$a66f\",\"nodeType\":\"embedded-entry-block\"}\na671:{}\na674:{}\na675:[]\na673:{\"data\":\"$a674\",\"marks\":\"$a675\",\"value\":\"And each year, Mitchell crosses the finish line in what has become his trademark arms-raised-above-his-head pose.\",\"nodeType\":\"text\"}\na672:[\"$a673\"]\na670:{\"data\":\"$a671\",\"content\":\"$a672\",\"nodeType\":\"paragraph\"}\na677:{}\na67a:{}\na67b:[]\na679:{\"data\":\"$a67a\",\"marks\":\"$a67b\",\"value\":\"âIâve done it now for so many years that every time I cross it, I feel like I can keep doing this, keep pushing myself, keep finishing,â Mitchell said.\",\"nodeType\":\"text\"}\na678:[\"$a679\"]\na676:{\"data\":\"$a677\",\"content\":\"$a678\",\"nodeType\":\"paragraph\"}\na67d:{}\na680:{}\na681:[]\na67f:{\"data\":\"$a680\",\"marks\":\"$a681\",\"value\":\"The moment is always emotional for Tonya, who wasnât sure when Mitchell was born with a congenital brain tumor that he would live.\",\"nodeType\":\"text\"}\na67e:[\"$a67f\"]\na67c:{\"data\":\"$a67d\",\"content\":\"$a67e\",\"nodeType\":\"paragraph\"}\na683:{}\na686:{}\na687:[]\na685:{\"data\":\"$a686\",\"marks\":\"$a687\",\"value\":\"And she certainly didnât know if heâd be able to run.\",\"nodeType\":\"text\"}\na684:[\"$a685\"]\na682:{\"data\":\"$a683\",\"content\":\"$a684\",\"nodeType\":\"paragraph\"}\na689:{}\na68c:{}\na68d:[]\na68b:{\"data\":\"$a68c\",\"marks\":\"$a68d\",\"value\":\"***\",\"nodeType\":\"text\"}\na68a:[\"$a68b\"]\na688:{\"data\":\"$a689\",\"content\":\"$a68a\",\"nodeType\":\"paragraph\"}\na68f:{}\na692:{}\na693:[]\na691:{\"data\":\"$a692\",\"marks\":\"$a693\",\"value\":\"Mitchell was six days old when he had a craniotomy to remove his brain tumor.\",\"nodeType\":\"text\"}\na690:[\"$a691\"]\na68e:{\"data\":\"$a68f\",\"content\":\"$a690\",\"nodeType\":\"paragraph\"}\na695:{}\na698:{}\na699:[]\na697:{\"data\":\"$a698\",\"marks\":\"$a699\",\"value\":\"But intracranial bleeding weakened his mobility on his left side. Since he was four months old, heâs received physical therapy at Childrenâs Health to help him run, kick a soccer ball and jump rope with his friends.\",\"nodeType\":\"text\"}\na696:[\"$a697\"]\na694:{\"data\":\"$a695\",\"content\":\"$a696\",\"nodeType\":\"paragraph\"}\na69b:{}\na69e:{}\na69"])</script>
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1<script>self.__next_f.push([1,"{}\na7e3:{}\na7e4:[]\na7e2:{\"data\":\"$a7e3\",\"marks\":\"$a7e4\",\"value\":\"And then late that night, Hollis began leaking amniotic fluid, putting she and the baby at risk for infection.\",\"nodeType\":\"text\"}\na7e1:[\"$a7e2\"]\na7df:{\"data\":\"$a7e0\",\"content\":\"$a7e1\",\"nodeType\":\"paragraph\"}\na7e6:{}\na7e9:{}\na7ea:[]\na7e8:{\"data\":\"$a7e9\",\"marks\":\"$a7ea\",\"value\":\"Five days later, Kepley was born at a local hospital and later transferred to a higher level NICU at Childrenâs Medical Center Dallas, the flagship hospital of Children's Health\",\"nodeType\":\"text\"}\na7ec:{}\na7ee:{\"type\":\"superscript\"}\na7ed:[\"$a7ee\"]\na7eb:{\"data\":\"$a7ec\",\"marks\":\"$a7ed\",\"value\":\"SM\",\"nodeType\":\"text\"}\na7f0:{}\na7f1:[]\na7ef:{\"data\":\"$a7f0\",\"marks\":\"$a7f1\",\"value\":\".\",\"nodeType\":\"text\"}\na7e7:[\"$a7e8\",\"$a7eb\",\"$a7ef\"]\na7e5:{\"data\":\"$a7e6\",\"content\":\"$a7e7\",\"nodeType\":\"paragraph\"}\na7f3:{}\na7f6:{}\na7f7:[]\na7f5:{\"data\":\"$a7f6\",\"marks\":\"$a7f7\",\"value\":\"***\",\"nodeType\":\"text\"}\na7f4:[\"$a7f5\"]\na7f2:{\"data\":\"$a7f3\",\"content\":\"$a7f4\",\"nodeType\":\"paragraph\"}\na7f9:{}\na7fc:{}\na7fd:[]\na7fb:{\"data\":\"$a7fc\",\"marks\":\"$a7fd\",\"value\":\"Hollis and Courtney received the call in the middle of the night: Clinicians at a local hospital had been struggling to insert a central venous line in Kepley, and she would need to be transferred to Childrenâs Health for emergency surgery.\",\"nodeType\":\"text\"}\na7fa:[\"$a7fb\"]\na7f8:{\"data\":\"$a7f9\",\"content\":\"$a7fa\",\"nodeType\":\"paragraph\"}\na7ff:{}\na802:{}\na803:[]\na801:{\"data\":\"$a802\",\"marks\":\"$a803\",\"value\":\"When team members of the Childrenâs Health transport team arrived, they were quickly able to place an intravenous line in Kepleyâs forehead.\",\"nodeType\":\"text\"}\na800:[\"$a801\"]\na7fe:{\"data\":\"$a7ff\",\"content\":\"$a800\",\"nodeType\":\"paragraph\"}\na805:{}\na808:{}\na809:[]\na807:{\"data\":\"$a808\",\"marks\":\"$a809\",\"value\":\"She looked like a little unicorn.\",\"nodeType\":\"text\"}\na806:[\"$a807\"]\na804:{\"data\":\"$a805\",\"content\":\"$a806\",\"nodeType\":\"paragraph\"}\na80b:{}\na80e:{}\na80f:[]\na80d:{\"data\":\"$a80e\",\"marks\":\"$a80f\",\"value\":\"âThe Childrenâs Health transport t"])</script>
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1<script>self.__next_f.push([1,"\"}\na8c9:{\"sys\":\"$a8ca\"}\na8cc:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\na8cb:{\"sys\":\"$a8cc\"}\na8c6:{\"space\":\"$a8c7\",\"id\":\"CcbfBGWD8YTzv8oivfs1m\",\"type\":\"Entry\",\"createdAt\":\"2025-02-05T16:29:21.472Z\",\"updatedAt\":\"2026-01-29T21:19:44.951Z\",\"environment\":\"$a8c9\",\"publishedVersion\":15,\"revision\":3,\"contentType\":\"$a8cb\",\"locale\":\"en-US\"}\na8cf:{}\na8d2:{}\na8d5:{}\na8d6:[]\na8d4:{\"data\":\"$a8d5\",\"marks\":\"$a8d6\",\"value\":\"Elli was theirs. Officially theirs.\",\"nodeType\":\"text\"}\na8d3:[\"$a8d4\"]\na8d1:{\"data\":\"$a8d2\",\"content\":\"$a8d3\",\"nodeType\":\"paragraph\"}\na8d8:{}\na8db:{}\na8dc:[]\na8da:{\"data\":\"$a8db\",\"marks\":\"$a8dc\",\"value\":\"Almost a year of waiting weighed on these minutes beneath fluorescent lights in a Dallas County courtroom.\",\"nodeType\":\"text\"}\na8d9:[\"$a8da\"]\na8d7:{\"data\":\"$a8d8\",\"content\":\"$a8d9\",\"nodeType\":\"paragraph\"}\na8de:{}\na8e1:{}\na8e2:[]\na8e0:{\"data\":\"$a8e1\",\"marks\":\"$a8e2\",\"value\":\"With their right hands raised, Jennifer and Angie promised to protect this baby and care for this baby.\",\"nodeType\":\"text\"}\na8df:[\"$a8e0\"]\na8dd:{\"data\":\"$a8de\",\"content\":\"$a8df\",\"nodeType\":\"paragraph\"}\na8e4:{}\na8e7:{}\na8e8:[]\na8e6:{\"data\":\"$a8e7\",\"marks\":\"$a8e8\",\"value\":\"They promised to love her.\",\"nodeType\":\"text\"}\na8e5:[\"$a8e6\"]\na8e3:{\"data\":\"$a8e4\",\"content\":\"$a8e5\",\"nodeType\":\"paragraph\"}\na8ea:{}\na8eb:[]\na8e9:{\"data\":\"$a8ea\",\"content\":\"$a8eb\",\"nodeType\":\"embedded-entry-block\"}\na8ed:{}\na8f0:{}\na8f1:[]\na8ef:{\"data\":\"$a8f0\",\"marks\":\"$a8f1\",\"value\":\"âCongratulations,â the judge said, as Jennifer, holding a wiggly Elli in a gold headband and lacy dress, discreetly wiped tears from her eyes. Not one to typically show her emotions publicly, she said this day was equivalent to the Christmas of her childhood. \",\"nodeType\":\"text\"}\na8ee:[\"$a8ef\"]\na8ec:{\"data\":\"$a8ed\",\"content\":\"$a8ee\",\"nodeType\":\"paragraph\"}\na8f3:{}\na8f6:{}\na8f7:[]\na8f5:{\"data\":\"$a8f6\",\"marks\":\"$a8f7\",\"value\":\"The three turned to face the courtroom for their first family photo.\",\"nodeType\":\"text\"}\na8f4:[\"$a8f5\"]\na8f2:{\"data\":\"$a8f3\",\"content\":\"$a8f4\",\"nodeType"])</script>
1<script>self.__next_f.push([1,"\":\"paragraph\"}\na8f9:{}\na8fc:{}\na8fd:[]\na8fb:{\"data\":\"$a8fc\",\"marks\":\"$a8fd\",\"value\":\"The camera shutter snapped.\",\"nodeType\":\"text\"}\na8fa:[\"$a8fb\"]\na8f8:{\"data\":\"$a8f9\",\"content\":\"$a8fa\",\"nodeType\":\"paragraph\"}\na8ff:{}\na902:{}\na903:[]\na901:{\"data\":\"$a902\",\"marks\":\"$a903\",\"value\":\"Click, click.\",\"nodeType\":\"text\"}\na900:[\"$a901\"]\na8fe:{\"data\":\"$a8ff\",\"content\":\"$a900\",\"nodeType\":\"paragraph\"}\na905:{}\na908:{}\na909:[]\na907:{\"data\":\"$a908\",\"marks\":\"$a909\",\"value\":\"âYou got it?â the bailiff asked.\",\"nodeType\":\"text\"}\na906:[\"$a907\"]\na904:{\"data\":\"$a905\",\"content\":\"$a906\",\"nodeType\":\"paragraph\"}\na90b:{}\na90e:{}\na90f:[]\na90d:{\"data\":\"$a90e\",\"marks\":\"$a90f\",\"value\":\"***\",\"nodeType\":\"text\"}\na90c:[\"$a90d\"]\na90a:{\"data\":\"$a90b\",\"content\":\"$a90c\",\"nodeType\":\"paragraph\"}\na911:{}\na914:{}\na915:[]\na913:{\"data\":\"$a914\",\"marks\":\"$a915\",\"value\":\"Elli was two days old when Jennifer and Angie met her on Nov. 17, 2018. She weighed four pounds, five ounces and had a head of wispy dark hair. \",\"nodeType\":\"text\"}\na912:[\"$a913\"]\na910:{\"data\":\"$a911\",\"content\":\"$a912\",\"nodeType\":\"paragraph\"}\na917:{}\na91a:{}\na91b:[]\na919:{\"data\":\"$a91a\",\"marks\":\"$a91b\",\"value\":\"The call announcing she had arrived came one day earlier as the couple sat in a movie theater watching previews before the showing of âInstant Family,â a comedy-drama about foster care adoption.\",\"nodeType\":\"text\"}\na918:[\"$a919\"]\na916:{\"data\":\"$a917\",\"content\":\"$a918\",\"nodeType\":\"paragraph\"}\na91d:{}\na920:{}\na921:[]\na91f:{\"data\":\"$a920\",\"marks\":\"$a921\",\"value\":\"âOur adoption counselor said, âThe birth mom wants to meet you tomorrow. This doesnât normally happen,ââ Jennifer said, replaying the conversation almost a year later. \",\"nodeType\":\"text\"}\na91e:[\"$a91f\"]\na91c:{\"data\":\"$a91d\",\"content\":\"$a91e\",\"nodeType\":\"paragraph\"}\na923:{}\na926:{}\na927:[]\na925:{\"data\":\"$a926\",\"marks\":\"$a927\",\"value\":\"Jennifer and Angie had waited five months for this call, but they had waited years for a baby.\",\"nodeType\":\"text\"}\na924:[\"$a925\"]\na922:{\"data\":\"$a923\",\"content\":\"$a924\",\"nodeType\":\""])</script>
1<script>self.__next_f.push([1,"paragraph\"}\na929:{}\na92c:{}\na92d:[]\na92b:{\"data\":\"$a92c\",\"marks\":\"$a92d\",\"value\":\"Together for about a decade, after meeting when they played on opposing softball teams, Jennifer and Angie first tried to have a child four years ago via intrauterine insemination. But the procedure wasnât successful.\",\"nodeType\":\"text\"}\na92a:[\"$a92b\"]\na928:{\"data\":\"$a929\",\"content\":\"$a92a\",\"nodeType\":\"paragraph\"}\na92f:{}\na932:{}\na933:[]\na931:{\"data\":\"$a932\",\"marks\":\"$a933\",\"value\":\"Jennifer is adopted and Angieâs brother also is adopted, so the couple was open to bringing a child who wasnât biologically related to them into their family. And they were open to almost any child, checking all the boxes for race and nearly all of them for medical conditions.\",\"nodeType\":\"text\"}\na930:[\"$a931\"]\na92e:{\"data\":\"$a92f\",\"content\":\"$a930\",\"nodeType\":\"paragraph\"}\na935:{}\na938:{}\na939:[]\na937:{\"data\":\"$a938\",\"marks\":\"$a939\",\"value\":\"They wanted a kid to love.\",\"nodeType\":\"text\"}\na936:[\"$a937\"]\na934:{\"data\":\"$a935\",\"content\":\"$a936\",\"nodeType\":\"paragraph\"}\na93b:{}\na93e:{}\na93f:[]\na93d:{\"data\":\"$a93e\",\"marks\":\"$a93f\",\"value\":\"But they were nervous as they walked into the neonatal intensive care unit with the birth mother to meet Elli for the first time.\",\"nodeType\":\"text\"}\na93c:[\"$a93d\"]\na93a:{\"data\":\"$a93b\",\"content\":\"$a93c\",\"nodeType\":\"paragraph\"}\na941:{}\na944:{}\na945:[]\na943:{\"data\":\"$a944\",\"marks\":\"$a945\",\"value\":\"âWhat if I donât connect with her?â Jennifer remembers thinking. âOr what if Iâm not sure?â\",\"nodeType\":\"text\"}\na942:[\"$a943\"]\na940:{\"data\":\"$a941\",\"content\":\"$a942\",\"nodeType\":\"paragraph\"}\na947:{}\na94a:{}\na94b:[]\na949:{\"data\":\"$a94a\",\"marks\":\"$a94b\",\"value\":\"As they peered over the isolette in the NICU, they saw past the crooked smile of Elliâs cleft lip and the congenital heart defect that doctors initially thought wasnât severe.\",\"nodeType\":\"text\"}\na948:[\"$a949\"]\na946:{\"data\":\"$a947\",\"content\":\"$a948\",\"nodeType\":\"paragraph\"}\na94d:{}\na950:{}\na951:[]\na94f:{\"data\":\"$a950\",\"marks\":\"$a951\",\"value\":\"âShe was beau"])</script>
1<script>self.__next_f.push([1,"tiful to us despite her medical issues. Once we met her, we were done,â Angie said.\",\"nodeType\":\"text\"}\na94e:[\"$a94f\"]\na94c:{\"data\":\"$a94d\",\"content\":\"$a94e\",\"nodeType\":\"paragraph\"}\na953:{}\na956:{}\na957:[]\na955:{\"data\":\"$a956\",\"marks\":\"$a957\",\"value\":\"âIt was instant love.â\",\"nodeType\":\"text\"}\na954:[\"$a955\"]\na952:{\"data\":\"$a953\",\"content\":\"$a954\",\"nodeType\":\"paragraph\"}\na959:{}\na95c:{}\na95d:[]\na95b:{\"data\":\"$a95c\",\"marks\":\"$a95d\",\"value\":\"***\",\"nodeType\":\"text\"}\na95a:[\"$a95b\"]\na958:{\"data\":\"$a959\",\"content\":\"$a95a\",\"nodeType\":\"paragraph\"}\na95f:{}\na960:[]\na95e:{\"data\":\"$a95f\",\"content\":\"$a960\",\"nodeType\":\"embedded-entry-block\"}\na962:{}\na965:{}\na966:[]\na964:{\"data\":\"$a965\",\"marks\":\"$a966\",\"value\":\"Elli was almost two months old when Jennifer and Angie took her home for the first time.\",\"nodeType\":\"text\"}\na963:[\"$a964\"]\na961:{\"data\":\"$a962\",\"content\":\"$a963\",\"nodeType\":\"paragraph\"}\na968:{}\na96b:{}\na96c:[]\na96a:{\"data\":\"$a96b\",\"marks\":\"$a96c\",\"value\":\"About a month later, they noticed signs of heart failure.\",\"nodeType\":\"text\"}\na969:[\"$a96a\"]\na967:{\"data\":\"$a968\",\"content\":\"$a969\",\"nodeType\":\"paragraph\"}\na96e:{}\na971:{}\na972:[]\na970:{\"data\":\"$a971\",\"marks\":\"$a972\",\"value\":\"Elli was gaining weight slowly, had a heart rate of 160 and a high respiratory rate.\",\"nodeType\":\"text\"}\na96f:[\"$a970\"]\na96d:{\"data\":\"$a96e\",\"content\":\"$a96f\",\"nodeType\":\"paragraph\"}\na974:{}\na977:{}\na978:[]\na976:{\"data\":\"$a977\",\"marks\":\"$a978\",\"value\":\"But the biggest clue was the sweating when she ate. \",\"nodeType\":\"text\"}\na975:[\"$a976\"]\na973:{\"data\":\"$a974\",\"content\":\"$a975\",\"nodeType\":\"paragraph\"}\na97a:{}\na97d:{}\na97e:[]\na97c:{\"data\":\"$a97d\",\"marks\":\"$a97e\",\"value\":\"âI said, âOh gosh, do you think she has diabetes, too?ââ Angie said. But Jennifer, a nurse and former high school teacher, feared it was her heart and called the cardiologist.\",\"nodeType\":\"text\"}\na97b:[\"$a97c\"]\na979:{\"data\":\"$a97a\",\"content\":\"$a97b\",\"nodeType\":\"paragraph\"}\na980:{}\na983:{}\na984:[]\na982:{\"data\":\"$a983\",\"marks\":\"$a984\",\"value\":\"After receiving numerous rec"])</script>
1<script>self.__next_f.push([1,"ommendations, the couple first came to Childrenâs Healthâ for Elliâs heart catherization -- a minimally invasive diagnostic treatment that involves passing a catheter through the vessels supplying blood to the heart to test her heart function.\",\"nodeType\":\"text\"}\na981:[\"$a982\"]\na97f:{\"data\":\"$a980\",\"content\":\"$a981\",\"nodeType\":\"paragraph\"}\na986:{}\na989:{}\na98a:[]\na988:{\"data\":\"$a989\",\"marks\":\"$a98a\",\"value\":\"âBased on that experience, we moved all of her medical care to Childrenâs Health,â said Angie, who serves on the board of the Texas Chapter of the Pediatric Congenital Heart Association. That included care for gastrointestinal issues and cleft lip and palate. âThe doctors were amazing. They sat down and talked to us and were very empathetic to the kind of news they had to share.â\",\"nodeType\":\"text\"}\na987:[\"$a988\"]\na985:{\"data\":\"$a986\",\"content\":\"$a987\",\"nodeType\":\"paragraph\"}\na98c:{}\na98f:{}\na990:[]\na98e:{\"data\":\"$a98f\",\"marks\":\"$a990\",\"value\":\"Elli had a small ventricular septal defect -- a hole in the wall separating the ventricles of her heart that doctors expect to eventually close.\",\"nodeType\":\"text\"}\na98d:[\"$a98e\"]\na98b:{\"data\":\"$a98c\",\"content\":\"$a98d\",\"nodeType\":\"paragraph\"}\na992:{}\na995:{}\na996:[]\na994:{\"data\":\"$a995\",\"marks\":\"$a996\",\"value\":\"But she also had an atrial septal defect -- a hole in the wall between the two upper chambers of her heart. And for Elli, it meant practically her whole wall was missing.\",\"nodeType\":\"text\"}\na993:[\"$a994\"]\na991:{\"data\":\"$a992\",\"content\":\"$a993\",\"nodeType\":\"paragraph\"}\na998:{}\na99b:{}\na99c:[]\na99a:{\"data\":\"$a99b\",\"marks\":\"$a99c\",\"value\":\"The only option was open heart surgery at almost six months old.\",\"nodeType\":\"text\"}\na999:[\"$a99a\"]\na997:{\"data\":\"$a998\",\"content\":\"$a999\",\"nodeType\":\"paragraph\"}\na99e:{}\na9a1:{}\na9a2:[]\na9a0:{\"data\":\"$a9a1\",\"marks\":\"$a9a2\",\"value\":\"And the procedure needed to happen quickly because Elli wasnât gaining weight.\",\"nodeType\":\"text\"}\na99f:[\"$a9a0\"]\na99d:{\"data\":\"$a99e\",\"content\":\"$a99f\",\"nodeType\":\"paragraph\"}\na9a4:"])</script>
1<script>self.__next_f.push([1,"{}\na9a7:{}\na9a8:[]\na9a6:{\"data\":\"$a9a7\",\"marks\":\"$a9a8\",\"value\":\"A complication during the surgery with her pulmonary artery kept her on oxygen at Childrenâs Medical Center Dallas for three weeks.\",\"nodeType\":\"text\"}\na9a5:[\"$a9a6\"]\na9a3:{\"data\":\"$a9a4\",\"content\":\"$a9a5\",\"nodeType\":\"paragraph\"}\na9aa:{}\na9ad:{}\na9ae:[]\na9ac:{\"data\":\"$a9ad\",\"marks\":\"$a9ae\",\"value\":\"During that time, a Childrenâs Health music therapist came to visit Elli in her room, playing a ukulele and soothing her with a lullaby. The baby kicked her feet and wiggled her arms as the therapist leaned over her crib, smiling softly.\",\"nodeType\":\"text\"}\na9ab:[\"$a9ac\"]\na9a9:{\"data\":\"$a9aa\",\"content\":\"$a9ab\",\"nodeType\":\"paragraph\"}\na9b0:{}\na9b3:{}\na9b4:[]\na9b2:{\"data\":\"$a9b3\",\"marks\":\"$a9b4\",\"value\":\"And Elli smiled back for the first time since surgery. \",\"nodeType\":\"text\"}\na9b1:[\"$a9b2\"]\na9af:{\"data\":\"$a9b0\",\"content\":\"$a9b1\",\"nodeType\":\"paragraph\"}\na9b6:{}\na9b9:{}\na9ba:[]\na9b8:{\"data\":\"$a9b9\",\"marks\":\"$a9ba\",\"value\":\"âThere is a level of true care at Childrenâs Health,â Angie said. âThe doctors, nurses and all the staff truly care about the patients, which is really comforting and makes it feel more like a family.â\",\"nodeType\":\"text\"}\na9b7:[\"$a9b8\"]\na9b5:{\"data\":\"$a9b6\",\"content\":\"$a9b7\",\"nodeType\":\"paragraph\"}\na9bc:{}\na9bf:{}\na9c0:[]\na9be:{\"data\":\"$a9bf\",\"marks\":\"$a9c0\",\"value\":\"***\",\"nodeType\":\"text\"}\na9bd:[\"$a9be\"]\na9bb:{\"data\":\"$a9bc\",\"content\":\"$a9bd\",\"nodeType\":\"paragraph\"}\na9c2:{}\na9c3:[]\na9c1:{\"data\":\"$a9c2\",\"content\":\"$a9c3\",\"nodeType\":\"embedded-entry-block\"}\na9c5:{}\na9c8:{}\na9c9:[]\na9c7:{\"data\":\"$a9c8\",\"marks\":\"$a9c9\",\"value\":\"Jennifer and Angie took deep breaths and leaned in to blow out the candle.\",\"nodeType\":\"text\"}\na9c6:[\"$a9c7\"]\na9c4:{\"data\":\"$a9c5\",\"content\":\"$a9c6\",\"nodeType\":\"paragraph\"}\na9cb:{}\na9ce:{}\na9cf:[]\na9cd:{\"data\":\"$a9ce\",\"marks\":\"$a9cf\",\"value\":\"One candle for one little babyâs first birthday.\",\"nodeType\":\"text\"}\na9cc:[\"$a9cd\"]\na9ca:{\"data\":\"$a9cb\",\"content\":\"$a9cc\",\"nodeType\":\"paragraph\"}\na9d1:{}\na9d4:{}"])</script>
1<script>self.__next_f.push([1,"\na9d5:[]\na9d3:{\"data\":\"$a9d4\",\"marks\":\"$a9d5\",\"value\":\"Jennifer dabbed a bit of yellow frosting on Elliâs lips for her first taste of sugar.\",\"nodeType\":\"text\"}\na9d2:[\"$a9d3\"]\na9d0:{\"data\":\"$a9d1\",\"content\":\"$a9d2\",\"nodeType\":\"paragraph\"}\na9d7:{}\na9da:{}\na9db:[]\na9d9:{\"data\":\"$a9da\",\"marks\":\"$a9db\",\"value\":\"That Sunday in early November was Elliâs first birthday party. But it was also a celebration for Jennifer, Angie and everyone in their circle.\",\"nodeType\":\"text\"}\na9d8:[\"$a9d9\"]\na9d6:{\"data\":\"$a9d7\",\"content\":\"$a9d8\",\"nodeType\":\"paragraph\"}\na9dd:{}\na9e0:{}\na9e1:[]\na9df:{\"data\":\"$a9e0\",\"marks\":\"$a9e1\",\"value\":\"The table of little sandwiches, chips and sherbet punch celebrated an adoption ceremony that legally made Elli their daughter. The party also marked a year of lawyers, legal proceedings, doctor visits and surgeries, which arenât over for Elli.\",\"nodeType\":\"text\"}\na9de:[\"$a9df\"]\na9dc:{\"data\":\"$a9dd\",\"content\":\"$a9de\",\"nodeType\":\"paragraph\"}\na9e3:{}\na9e6:{}\na9e7:[]\na9e5:{\"data\":\"$a9e6\",\"marks\":\"$a9e7\",\"value\":\"A month earlier, the couple had waited at the Specialty Center at Childrenâs Medical Center Dallas for a check-up following a surgery to repair Elliâs cleft lip. \",\"nodeType\":\"text\"}\na9e4:[\"$a9e5\"]\na9e2:{\"data\":\"$a9e3\",\"content\":\"$a9e4\",\"nodeType\":\"paragraph\"}\na9e9:{}\na9ec:{}\na9ed:[]\na9eb:{\"data\":\"$a9ec\",\"marks\":\"$a9ed\",\"value\":\"There, Angie bounced a cooing Elli on her knee as Jennifer leaned in to give her a kiss on the cheek.\",\"nodeType\":\"text\"}\na9ea:[\"$a9eb\"]\na9e8:{\"data\":\"$a9e9\",\"content\":\"$a9ea\",\"nodeType\":\"paragraph\"}\na9ef:{}\na9f2:{}\na9f3:[]\na9f1:{\"data\":\"$a9f2\",\"marks\":\"$a9f3\",\"value\":\"âHi, goose!â Jennifer said. âCan you say mamma?â\",\"nodeType\":\"text\"}\na9f0:[\"$a9f1\"]\na9ee:{\"data\":\"$a9ef\",\"content\":\"$a9f0\",\"nodeType\":\"paragraph\"}\na9f5:{}\na9f8:{}\na9f9:[]\na9f7:{\"data\":\"$a9f8\",\"marks\":\"$a9f9\",\"value\":\"This spring, Elli will have another surgery to repair her cleft palate. And sheâll continue to have surgeries throughout the course of her life to repair her palate and treat her"])</script>
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1<script>self.__next_f.push([1,"\"Link\",\"linkType\":\"Environment\"}\naa95:{\"sys\":\"$aa96\"}\naa98:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\naa97:{\"sys\":\"$aa98\"}\naa92:{\"space\":\"$aa93\",\"id\":\"bnYYw3J2iPJ0ouMxiCA2R\",\"type\":\"Entry\",\"createdAt\":\"2025-02-04T21:41:41.033Z\",\"updatedAt\":\"2026-01-29T21:18:50.992Z\",\"environment\":\"$aa95\",\"publishedVersion\":19,\"revision\":3,\"contentType\":\"$aa97\",\"locale\":\"en-US\"}\naa9b:{}\naa9e:{}\naaa1:{}\naaa2:[]\naaa0:{\"data\":\"$aaa1\",\"marks\":\"$aaa2\",\"value\":\"Arya sat in a plastic chair before the class of wide-eyed preschoolers. She wrapped her arms around the squishy teddy bear on her lap.\",\"nodeType\":\"text\"}\naa9f:[\"$aaa0\"]\naa9d:{\"data\":\"$aa9e\",\"content\":\"$aa9f\",\"nodeType\":\"paragraph\"}\naaa4:{}\naaa7:{}\naaa8:[]\naaa6:{\"data\":\"$aaa7\",\"marks\":\"$aaa8\",\"value\":\"The yellow-haired bear looked like any other stuffed teddy â two eyes, brown nose and a thin-lipped smile â but with one exception.\",\"nodeType\":\"text\"}\naaa5:[\"$aaa6\"]\naaa3:{\"data\":\"$aaa4\",\"content\":\"$aaa5\",\"nodeType\":\"paragraph\"}\naaaa:{}\naaad:{}\naaae:[]\naaac:{\"data\":\"$aaad\",\"marks\":\"$aaae\",\"value\":\"âI see itâs a special teddy bear,â Aryaâs teacher said to the class during show-and-tell. âWhat is so special about him?â\",\"nodeType\":\"text\"}\naaab:[\"$aaac\"]\naaa9:{\"data\":\"$aaaa\",\"content\":\"$aaab\",\"nodeType\":\"paragraph\"}\naab0:{}\naab3:{}\naab4:[]\naab2:{\"data\":\"$aab3\",\"marks\":\"$aab4\",\"value\":\"âHeâs got a heart,â Arya replied, pointing to the red cloth pinned to the teddyâs chest. She squeezed the bear tight like the hug was their last and swung her legs.\",\"nodeType\":\"text\"}\naab1:[\"$aab2\"]\naaaf:{\"data\":\"$aab0\",\"content\":\"$aab1\",\"nodeType\":\"paragraph\"}\naab6:{}\naab9:{}\naaba:[]\naab8:{\"data\":\"$aab9\",\"marks\":\"$aaba\",\"value\":\"Martha, Aryaâs nurse, explained to the class that teddy, like Arya, has half a heart â medically known as hypoplastic left heart syndrome, meaning the left side of her heart canât effectively pump blood to the rest of her body.\",\"nodeType\":\"text\"}\naab7:[\"$aab8\"]\naab5:{\"data\":\"$aab6\",\"content\":\"$aab7\",\"nodeType\":\"paragraph\"}\naabc:{}\na"])</script>
1<script>self.__next_f.push([1,"abf:{}\naac0:[]\naabe:{\"data\":\"$aabf\",\"marks\":\"$aac0\",\"value\":\"And like 4-year-old Arya, teddy needs his full heart to function.\",\"nodeType\":\"text\"}\naabd:[\"$aabe\"]\naabb:{\"data\":\"$aabc\",\"content\":\"$aabd\",\"nodeType\":\"paragraph\"}\naac2:{}\naac5:{}\naac6:[]\naac4:{\"data\":\"$aac5\",\"marks\":\"$aac6\",\"value\":\"âHer teddy bear has the full heart, the zipper and the stitches that she has,â Martha said. âArya, besides teddy bear, who has a zipper, too?â\",\"nodeType\":\"text\"}\naac3:[\"$aac4\"]\naac1:{\"data\":\"$aac2\",\"content\":\"$aac3\",\"nodeType\":\"paragraph\"}\naac8:{}\naacb:{}\naacc:[]\naaca:{\"data\":\"$aacb\",\"marks\":\"$aacc\",\"value\":\"Arya pulled down the front couple buttons of her navy polo dress, exposing the scar in the middle of her chest â a permanent marker left behind after three surgeries to repair her congenital heart defect. \",\"nodeType\":\"text\"}\naac9:[\"$aaca\"]\naac7:{\"data\":\"$aac8\",\"content\":\"$aac9\",\"nodeType\":\"paragraph\"}\naace:{}\naad1:{}\naad2:[]\naad0:{\"data\":\"$aad1\",\"marks\":\"$aad2\",\"value\":\"A year ago, she would have been embarrassed for a crowd of kids to stare at her like this.\",\"nodeType\":\"text\"}\naacf:[\"$aad0\"]\naacd:{\"data\":\"$aace\",\"content\":\"$aacf\",\"nodeType\":\"paragraph\"}\naad4:{}\naad7:{}\naad8:[]\naad6:{\"data\":\"$aad7\",\"marks\":\"$aad8\",\"value\":\"And she would have been ashamed of this mark that made her different.\",\"nodeType\":\"text\"}\naad5:[\"$aad6\"]\naad3:{\"data\":\"$aad4\",\"content\":\"$aad5\",\"nodeType\":\"paragraph\"}\naada:{}\naadd:{}\naade:[]\naadc:{\"data\":\"$aadd\",\"marks\":\"$aade\",\"value\":\"But this time, she just grinned. She was proud.\",\"nodeType\":\"text\"}\naadb:[\"$aadc\"]\naad9:{\"data\":\"$aada\",\"content\":\"$aadb\",\"nodeType\":\"paragraph\"}\naae0:{}\naae1:[]\naadf:{\"data\":\"$aae0\",\"content\":\"$aae1\",\"nodeType\":\"hr\"}\naae3:{}\naae6:{}\naae7:[]\naae5:{\"data\":\"$aae6\",\"marks\":\"$aae7\",\"value\":\"Aryaâs birth was unexpected.\",\"nodeType\":\"text\"}\naae4:[\"$aae5\"]\naae2:{\"data\":\"$aae3\",\"content\":\"$aae4\",\"nodeType\":\"paragraph\"}\naae9:{}\naaec:{}\naaed:[]\naaeb:{\"data\":\"$aaec\",\"marks\":\"$aaed\",\"value\":\"Her mother, Seher, already had twins and a six-month-old baby at home when"])</script>
1<script>self.__next_f.push([1," she found out Arya was on the way.\",\"nodeType\":\"text\"}\naaea:[\"$aaeb\"]\naae8:{\"data\":\"$aae9\",\"content\":\"$aaea\",\"nodeType\":\"paragraph\"}\naaef:{}\naaf0:[]\naaee:{\"data\":\"$aaef\",\"content\":\"$aaf0\",\"nodeType\":\"embedded-entry-block\"}\naaf2:{}\naaf5:{}\naaf6:[]\naaf4:{\"data\":\"$aaf5\",\"marks\":\"$aaf6\",\"value\":\"âWe never anticipated having her. She literally came on her own,â Seher said, sitting on the familyâs living room floor in Frisco with memorabilia from Aryaâs hospital stays â scrubs, photos, courage beads for every time she was poked and pricked â scattered around her.\",\"nodeType\":\"text\"}\naaf3:[\"$aaf4\"]\naaf1:{\"data\":\"$aaf2\",\"content\":\"$aaf3\",\"nodeType\":\"paragraph\"}\naaf8:{}\naafb:{}\naafc:[]\naafa:{\"data\":\"$aafb\",\"marks\":\"$aafc\",\"value\":\"And news that something might be wrong with Aryaâs heart hit her like a two-by-four at the 22-week sonogram.\",\"nodeType\":\"text\"}\naaf9:[\"$aafa\"]\naaf7:{\"data\":\"$aaf8\",\"content\":\"$aaf9\",\"nodeType\":\"paragraph\"}\naafe:{}\nab01:{}\nab02:[]\nab00:{\"data\":\"$ab01\",\"marks\":\"$ab02\",\"value\":\"âAs of that moment, our lives would never be the same,â Seher said. âI felt strongly that if God had chosen me to care for her, then my job was to do whatever it takes to do exactly that.â\",\"nodeType\":\"text\"}\naaff:[\"$ab00\"]\naafd:{\"data\":\"$aafe\",\"content\":\"$aaff\",\"nodeType\":\"paragraph\"}\nab04:{}\nab05:[]\nab03:{\"data\":\"$ab04\",\"content\":\"$ab05\",\"nodeType\":\"embedded-entry-block\"}\nab07:{}\nab0a:{}\nab0b:[]\nab09:{\"data\":\"$ab0a\",\"marks\":\"$ab0b\",\"value\":\"About three months later, Seher and her husband, Sayeed, met Dr. Eric Mendeloff, the pediatric cardiothoracic surgeon who would be performing heart surgery on their daughter when she was less than a week old.\",\"nodeType\":\"text\"}\nab08:[\"$ab09\"]\nab06:{\"data\":\"$ab07\",\"content\":\"$ab08\",\"nodeType\":\"paragraph\"}\nab0d:{}\nab10:{}\nab11:[]\nab0f:{\"data\":\"$ab10\",\"marks\":\"$ab11\",\"value\":\"The surgery was the first of three that Arya would receive under Dr. Mendeloffâs care to create optimal blood flow in and out of her heart. It meant that she would spend three-quarters of th"])</script>
1<script>self.__next_f.push([1,"e first year of her life in a hospital.\",\"nodeType\":\"text\"}\nab0e:[\"$ab0f\"]\nab0c:{\"data\":\"$ab0d\",\"content\":\"$ab0e\",\"nodeType\":\"paragraph\"}\nab13:{}\nab16:{}\nab17:[]\nab15:{\"data\":\"$ab16\",\"marks\":\"$ab17\",\"value\":\"And it also would earn the spunky baby with silky, black hair the title of Warrior Princess Arya.\",\"nodeType\":\"text\"}\nab14:[\"$ab15\"]\nab12:{\"data\":\"$ab13\",\"content\":\"$ab14\",\"nodeType\":\"paragraph\"}\nab19:{}\nab1c:{}\nab1d:[]\nab1b:{\"data\":\"$ab1c\",\"marks\":\"$ab1d\",\"value\":\"âItâs not easy to hand over your 6-day-old to anyone,â Seher said. âAnd somehow, Dr. Mendeloff has always been beyond humble and beyond understanding and comforting.â\",\"nodeType\":\"text\"}\nab1a:[\"$ab1b\"]\nab18:{\"data\":\"$ab19\",\"content\":\"$ab1a\",\"nodeType\":\"paragraph\"}\nab1f:{}\nab22:{}\nab23:[]\nab21:{\"data\":\"$ab22\",\"marks\":\"$ab23\",\"value\":\"âHeâs the only man I wholeheartedly trust with a scalpel near my daughter,â she said.\",\"nodeType\":\"text\"}\nab20:[\"$ab21\"]\nab1e:{\"data\":\"$ab1f\",\"content\":\"$ab20\",\"nodeType\":\"paragraph\"}\nab25:{}\nab28:{}\nab29:[]\nab27:{\"data\":\"$ab28\",\"marks\":\"$ab29\",\"value\":\"And when Dr. Mendeloff moved to practice at Childrenâs Healthâ in January 2019, Seher and her family followed him here.\",\"nodeType\":\"text\"}\nab26:[\"$ab27\"]\nab24:{\"data\":\"$ab25\",\"content\":\"$ab26\",\"nodeType\":\"paragraph\"}\nab2b:{}\nab2c:[]\nab2a:{\"data\":\"$ab2b\",\"content\":\"$ab2c\",\"nodeType\":\"embedded-entry-block\"}\nab2e:{}\nab31:{}\nab32:[]\nab30:{\"data\":\"$ab31\",\"marks\":\"$ab32\",\"value\":\"For Seher, that meant a new team of nurses and clinical staff to meet. A new maze to navigate.\",\"nodeType\":\"text\"}\nab2f:[\"$ab30\"]\nab2d:{\"data\":\"$ab2e\",\"content\":\"$ab2f\",\"nodeType\":\"paragraph\"}\nab34:{}\nab37:{}\nab38:[]\nab36:{\"data\":\"$ab37\",\"marks\":\"$ab38\",\"value\":\"But she said she quickly learned that Childrenâs Health was the best place for her daughter and other cardiac patients because of its dedication not only to quality care but research and innovation.\",\"nodeType\":\"text\"}\nab35:[\"$ab36\"]\nab33:{\"data\":\"$ab34\",\"content\":\"$ab35\",\"nodeType\":\"paragraph\"}\nab3a:{}\nab3d:{}\nab3e:[]\na"])</script>
1<script>self.__next_f.push([1,"b3c:{\"data\":\"$ab3d\",\"marks\":\"$ab3e\",\"value\":\"And last year, as part of Aryaâs annual birthday donation drive, the family carted a carload of donations â blankets, socks and beanie caps â to the Cardiovascular Intensive Care Unit at the Childrenâs Health Heart Center.\",\"nodeType\":\"text\"}\nab3b:[\"$ab3c\"]\nab39:{\"data\":\"$ab3a\",\"content\":\"$ab3b\",\"nodeType\":\"paragraph\"}\nab40:{}\nab43:{}\nab44:[]\nab42:{\"data\":\"$ab43\",\"marks\":\"$ab44\",\"value\":\"âNow I have Dr. Mendeloff -- the person that I wholly trust -- and a facility that truly cares about my child,â Seher said. âChildrenâs Health understands that itâs not just important to keep your child well. Itâs about keeping them well and moving forward with a good quality of life.â\",\"nodeType\":\"text\"}\nab41:[\"$ab42\"]\nab3f:{\"data\":\"$ab40\",\"content\":\"$ab41\",\"nodeType\":\"paragraph\"}\nab46:{}\nab47:[]\nab45:{\"data\":\"$ab46\",\"content\":\"$ab47\",\"nodeType\":\"hr\"}\nab49:{}\nab4c:{}\nab4d:[]\nab4b:{\"data\":\"$ab4c\",\"marks\":\"$ab4d\",\"value\":\"Itâs almost bedtime, and Arya â dressed in a mermaid nightgown -- sits on the couch cuddled next to Martha, her home nurse. \",\"nodeType\":\"text\"}\nab4a:[\"$ab4b\"]\nab48:{\"data\":\"$ab49\",\"content\":\"$ab4a\",\"nodeType\":\"paragraph\"}\nab4f:{}\nab52:{}\nab53:[]\nab51:{\"data\":\"$ab52\",\"marks\":\"$ab53\",\"value\":\"A mask covers the little girlâs mouth as the breathing machine hisses. The nightly treatment helps mitigate respiratory distress as needed for Aryaâs lungs. \",\"nodeType\":\"text\"}\nab50:[\"$ab51\"]\nab4e:{\"data\":\"$ab4f\",\"content\":\"$ab50\",\"nodeType\":\"paragraph\"}\nab55:{}\nab58:{}\nab59:[]\nab57:{\"data\":\"$ab58\",\"marks\":\"$ab59\",\"value\":\"Whoosh. Whoosh.\",\"nodeType\":\"text\"}\nab56:[\"$ab57\"]\nab54:{\"data\":\"$ab55\",\"content\":\"$ab56\",\"nodeType\":\"paragraph\"}\nab5b:{}\nab5e:{}\nab5f:[]\nab5d:{\"data\":\"$ab5e\",\"marks\":\"$ab5f\",\"value\":\"After three surgical repairs, doctors no longer describe Aryaâs condition as critical. Last year, she celebrated her fourth birthday. When sheâs well enough, she attends pre-school with kids her own age. \",\"nodeType\":\"text\"}\nab5c:[\"$ab5d\"]\nab5a:{\"d"])</script>
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1<script>self.__next_f.push([1,"s\":\"$ac14\",\"value\":\"Looking at this bubbly 5-year-old, you wouldnât know she had a complex medical history, and that when she was a baby, the Childrenâs Healthâ foster clinic saved her life.\",\"nodeType\":\"text\"}\nac11:[\"$ac12\"]\nac0f:{\"data\":\"$ac10\",\"content\":\"$ac11\",\"nodeType\":\"paragraph\"}\nac16:{}\nac19:{}\nac1a:[]\nac18:{\"data\":\"$ac19\",\"marks\":\"$ac1a\",\"value\":\"Amelia was 4 months old when her now adoptive mother, Robin, met her. Sheâd spent the first 11 weeks of her life in a local NICU because she was born prematurely.\",\"nodeType\":\"text\"}\nac17:[\"$ac18\"]\nac15:{\"data\":\"$ac16\",\"content\":\"$ac17\",\"nodeType\":\"paragraph\"}\nac1c:{}\nac1f:{}\nac20:[]\nac1e:{\"data\":\"$ac1f\",\"marks\":\"$ac20\",\"value\":\"The baby wasnât the first child for Robin and her husband, Henk, to adopt or foster, having already fostered 16 children and adopted two after the couple became an approved foster home in 2008.\",\"nodeType\":\"text\"}\nac1d:[\"$ac1e\"]\nac1b:{\"data\":\"$ac1c\",\"content\":\"$ac1d\",\"nodeType\":\"paragraph\"}\nac22:{}\nac25:{}\nac26:[]\nac24:{\"data\":\"$ac25\",\"marks\":\"$ac26\",\"value\":\"But a note from Ameliaâs birth mom worried Robin.\",\"nodeType\":\"text\"}\nac23:[\"$ac24\"]\nac21:{\"data\":\"$ac22\",\"content\":\"$ac23\",\"nodeType\":\"paragraph\"}\nac28:{}\nac2b:{}\nac2c:[]\nac2a:{\"data\":\"$ac2b\",\"marks\":\"$ac2c\",\"value\":\"âIt said that sometimes when Amelia ate, she stopped breathing,â Robin said.\",\"nodeType\":\"text\"}\nac29:[\"$ac2a\"]\nac27:{\"data\":\"$ac28\",\"content\":\"$ac29\",\"nodeType\":\"paragraph\"}\nac2e:{}\nac31:{}\nac32:[]\nac30:{\"data\":\"$ac31\",\"marks\":\"$ac32\",\"value\":\"Quick intervention saves Amelia's life\",\"nodeType\":\"text\"}\nac2f:[\"$ac30\"]\nac2d:{\"data\":\"$ac2e\",\"content\":\"$ac2f\",\"nodeType\":\"heading-3\"}\nac34:{}\nac37:{}\nac38:[]\nac36:{\"data\":\"$ac37\",\"marks\":\"$ac38\",\"value\":\"Within 24 hours, Robin was on the phone with Elsa Alexander, RN, Clinical Coordinator at the foster care clinic at Children's Health.\",\"nodeType\":\"text\"}\nac35:[\"$ac36\"]\nac33:{\"data\":\"$ac34\",\"content\":\"$ac35\",\"nodeType\":\"paragraph\"}\nac3a:{}\nac3d:{}\nac3e:[]\nac3c:{\"data\":\"$ac3d\",\"marks\":\"$ac3e\",\"value\":\"As Robin"])</script>
1<script>self.__next_f.push([1," described Amelia's respiratory and feeding issues, Elsa recognized that something was drastically wrong.\",\"nodeType\":\"text\"}\nac3b:[\"$ac3c\"]\nac39:{\"data\":\"$ac3a\",\"content\":\"$ac3b\",\"nodeType\":\"paragraph\"}\nac40:{}\nac43:{}\nac44:[]\nac42:{\"data\":\"$ac43\",\"marks\":\"$ac44\",\"value\":\"Robin soon received a call back from a physician at the foster care clinic. She told Robin to bring Amelia to the emergency room (ER) as soon as she could.\",\"nodeType\":\"text\"}\nac41:[\"$ac42\"]\nac3f:{\"data\":\"$ac40\",\"content\":\"$ac41\",\"nodeType\":\"paragraph\"}\nac46:{}\nac49:{}\nac4a:[]\nac48:{\"data\":\"$ac49\",\"marks\":\"$ac4a\",\"value\":\"Robin said the family didnât know it at the time, but that intervention is what saved Ameliaâs life.\",\"nodeType\":\"text\"}\nac47:[\"$ac48\"]\nac45:{\"data\":\"$ac46\",\"content\":\"$ac47\",\"nodeType\":\"paragraph\"}\nac4c:{}\nac4d:[]\nac4b:{\"data\":\"$ac4c\",\"content\":\"$ac4d\",\"nodeType\":\"embedded-entry-block\"}\nac4f:{}\nac52:{}\nac53:[]\nac51:{\"data\":\"$ac52\",\"marks\":\"$ac53\",\"value\":\"âIâm at a loss for words to try and explain the gratitude that we feel for the care she got, which was only made possible because of donors who recognized that there was a need,â Robin said. âIn this particular case, that need had a name. And sheâs as beautiful as she is today â and sheâs alive today â because somebody stepped up to support the foster care clinic.â\",\"nodeType\":\"text\"}\nac50:[\"$ac51\"]\nac4e:{\"data\":\"$ac4f\",\"content\":\"$ac50\",\"nodeType\":\"paragraph\"}\nac55:{}\nac58:{}\nac59:[]\nac57:{\"data\":\"$ac58\",\"marks\":\"$ac59\",\"value\":\"At the ER, Amelia tested positive for respiratory syncytial virus (RSV). Recognizing the importance of continuity of care, the Children's Health foster care team recommended that Amelia be transferred to the NICU where she had spent her first 11 weeks of life.\",\"nodeType\":\"text\"}\nac56:[\"$ac57\"]\nac54:{\"data\":\"$ac55\",\"content\":\"$ac56\",\"nodeType\":\"paragraph\"}\nac5b:{}\nac5e:{}\nac5f:[]\nac5d:{\"data\":\"$ac5e\",\"marks\":\"$ac5f\",\"value\":\"The foster care team stayed in constant communication with the nearby NICU, advocating for Amelia.\",\"nod"])</script>
1<script>self.__next_f.push([1,"eType\":\"text\"}\nac5c:[\"$ac5d\"]\nac5a:{\"data\":\"$ac5b\",\"content\":\"$ac5c\",\"nodeType\":\"paragraph\"}\nac61:{}\nac64:{}\nac65:[]\nac63:{\"data\":\"$ac64\",\"marks\":\"$ac65\",\"value\":\"That persistence made all the difference. The NICU was finally able to locate Amelia's original medical records, which were under a different name, and discovered that she had a patent ductus arteriosus (PDA) â an opening in her heart â and needed cardiac care.\",\"nodeType\":\"text\"}\nac62:[\"$ac63\"]\nac60:{\"data\":\"$ac61\",\"content\":\"$ac62\",\"nodeType\":\"paragraph\"}\nac67:{}\nac6a:{}\nac6b:[]\nac69:{\"data\":\"$ac6a\",\"marks\":\"$ac6b\",\"value\":\"Amelia underwent heart surgery, and 18 days later, she returned to Robin and Henk's home.\",\"nodeType\":\"text\"}\nac68:[\"$ac69\"]\nac66:{\"data\":\"$ac67\",\"content\":\"$ac68\",\"nodeType\":\"paragraph\"}\nac6d:{}\nac70:{}\nac71:[]\nac6f:{\"data\":\"$ac70\",\"marks\":\"$ac71\",\"value\":\"Multidisciplinary support for a cerebral palsy diagnosis\",\"nodeType\":\"text\"}\nac6e:[\"$ac6f\"]\nac6c:{\"data\":\"$ac6d\",\"content\":\"$ac6e\",\"nodeType\":\"heading-3\"}\nac73:{}\nac76:{}\nac77:[]\nac75:{\"data\":\"$ac76\",\"marks\":\"$ac77\",\"value\":\"The foster care clinic team stayed by Robin and Henk's side as Amelia continued to face setbacks. She was a poor feeder and began to miss key developmental milestones.\",\"nodeType\":\"text\"}\nac74:[\"$ac75\"]\nac72:{\"data\":\"$ac73\",\"content\":\"$ac74\",\"nodeType\":\"paragraph\"}\nac79:{}\nac7c:{}\nac7d:[]\nac7b:{\"data\":\"$ac7c\",\"marks\":\"$ac7d\",\"value\":\"Sara Moore, nurse practitioner, monitored Amelia's progress through weekly check-ins and ordered early interventions such as speech, feeding and occupational therapy. But as Amelia continued to miss milestones, Sara and the team suspected a neurological issue.\",\"nodeType\":\"text\"}\nac7a:[\"$ac7b\"]\nac78:{\"data\":\"$ac79\",\"content\":\"$ac7a\",\"nodeType\":\"paragraph\"}\nac7f:{}\nac82:{}\nac83:[]\nac81:{\"data\":\"$ac82\",\"marks\":\"$ac83\",\"value\":\"\\\"She wasn't doing things that you would expect a baby at her age to do, even as a preterm baby,\\\" Sara said.\",\"nodeType\":\"text\"}\nac80:[\"$ac81\"]\nac7e:{\"data\":\"$ac7f\",\"content\":\"$ac80\",\"nodeType\":\"paragra"])</script>
1<script>self.__next_f.push([1,"ph\"}\nac85:{}\nac88:{}\nac89:[]\nac87:{\"data\":\"$ac88\",\"marks\":\"$ac89\",\"value\":\"They ordered an MRI, and at 22 months old, Amelia was diagnosed with cerebral palsy.\",\"nodeType\":\"text\"}\nac86:[\"$ac87\"]\nac84:{\"data\":\"$ac85\",\"content\":\"$ac86\",\"nodeType\":\"paragraph\"}\nac8b:{}\nac8e:{}\nac8f:[]\nac8d:{\"data\":\"$ac8e\",\"marks\":\"$ac8f\",\"value\":\"Now, Robin said the diagnosis does not define or limit Amelia, and that is largely due to the level of care and interventions provided by the foster care team and Children's Health.\",\"nodeType\":\"text\"}\nac8c:[\"$ac8d\"]\nac8a:{\"data\":\"$ac8b\",\"content\":\"$ac8c\",\"nodeType\":\"paragraph\"}\nac91:{}\nac94:{}\nac95:[]\nac93:{\"data\":\"$ac94\",\"marks\":\"$ac95\",\"value\":\"\\\"If you look at Amelia, you would never guess that she has chronic health issues,\\\" Sara says. \\\"It has been amazing to watch her grow and see her personality flourish.\\\"\",\"nodeType\":\"text\"}\nac92:[\"$ac93\"]\nac90:{\"data\":\"$ac91\",\"content\":\"$ac92\",\"nodeType\":\"paragraph\"}\nac97:{}\nac98:[]\nac96:{\"data\":\"$ac97\",\"content\":\"$ac98\",\"nodeType\":\"embedded-entry-block\"}\nac9a:{}\nac9d:{}\nac9e:[]\nac9c:{\"data\":\"$ac9d\",\"marks\":\"$ac9e\",\"value\":\"Amelia visits Our Children's House three days a week for therapy and Children's Medical Center Plano for specialist visits at least once a month. Robin and Henk are grateful for each and every provider Amelia has seen: Dr. Didem Inanoglu in Physical Medicine and Rehabilitation; Dr. Norberto Rodriquez-Baez in Gastroenterology; Kellye King and Danielle Mathews in Occupational Therapy; Franck Vautrin in Orthotics; Dr. Jeffrey Waugh in Neurology; Dr. Luis Umana in Genetics; Diane Rosics in Physical Therapy; Rachel Jeffords in Feeding Therapy, Dr. Laura Lamminen in Psychology â just to name a few.\",\"nodeType\":\"text\"}\nac9b:[\"$ac9c\"]\nac99:{\"data\":\"$ac9a\",\"content\":\"$ac9b\",\"nodeType\":\"paragraph\"}\naca0:{}\naca3:{}\naca4:[]\naca2:{\"data\":\"$aca3\",\"marks\":\"$aca4\",\"value\":\"Robin stresses that this team not only provides expert medical care for Amelia, but also constant encouragement and support for Robin and Henk â which in turn, makes th"])</script>
1<script>self.__next_f.push([1,"em more confident caregivers.\",\"nodeType\":\"text\"}\naca1:[\"$aca2\"]\nac9f:{\"data\":\"$aca0\",\"content\":\"$aca1\",\"nodeType\":\"paragraph\"}\naca6:{}\naca9:{}\nacaa:[]\naca8:{\"data\":\"$aca9\",\"marks\":\"$acaa\",\"value\":\"In 2016, that confidence helped with the decision to make Amelia, and her biological brother and sister, permanent members of their family.\",\"nodeType\":\"text\"}\naca7:[\"$aca8\"]\naca5:{\"data\":\"$aca6\",\"content\":\"$aca7\",\"nodeType\":\"paragraph\"}\nacac:{}\nacaf:{}\nacb0:[]\nacae:{\"data\":\"$acaf\",\"marks\":\"$acb0\",\"value\":\"âWhatâs done in the foster care clinic has such a huge impact on what happens in the lives of those children going forward. To the donors, âthank youâ cannot convey a story like Ameliaâs,â Robin said. âWhen she becomes an adult, she can look back and think, âWithout these people, my story wouldnât look the way that it does.ââ\",\"nodeType\":\"text\"}\nacad:[\"$acae\"]\nacab:{\"data\":\"$acac\",\"content\":\"$acad\",\"nodeType\":\"paragraph\"}\nacb2:{}\nacb5:{}\nacb6:[]\nacb4:{\"data\":\"$acb5\",\"marks\":\"$acb6\",\"value\":\"Amelia's story inspires change\",\"nodeType\":\"text\"}\nacb3:[\"$acb4\"]\nacb1:{\"data\":\"$acb2\",\"content\":\"$acb3\",\"nodeType\":\"heading-3\"}\nacb8:{}\nacbb:{}\nacbc:[]\nacba:{\"data\":\"$acbb\",\"marks\":\"$acbc\",\"value\":\"Looking back, Robin and Henk believe that without the foster care clinic, life would be much different for their daughter.\",\"nodeType\":\"text\"}\nacb9:[\"$acba\"]\nacb7:{\"data\":\"$acb8\",\"content\":\"$acb9\",\"nodeType\":\"paragraph\"}\nacbe:{}\nacc1:{}\nacc2:[]\nacc0:{\"data\":\"$acc1\",\"marks\":\"$acc2\",\"value\":\"\\\"A lot of things happened that very first day with Amelia that decided whether she would live or die,\\\" Robin said. \\\"If the foster care clinic wasn't there, we wouldn't have been able to get care so quickly. To say that we have a debt of gratitude to Children's Health is an understatement.\\\"\",\"nodeType\":\"text\"}\nacbf:[\"$acc0\"]\nacbd:{\"data\":\"$acbe\",\"content\":\"$acbf\",\"nodeType\":\"paragraph\"}\nacc4:{}\nacc7:{}\nacc8:[]\nacc6:{\"data\":\"$acc7\",\"marks\":\"$acc8\",\"value\":\"Robin and Henk use that gratitude as fuel to help other children in fos"])</script>
1<script>self.__next_f.push([1,"ter care, serving on the Family Advisory Board at the Rees-Jones Center.\",\"nodeType\":\"text\"}\nacc5:[\"$acc6\"]\nacc3:{\"data\":\"$acc4\",\"content\":\"$acc5\",\"nodeType\":\"paragraph\"}\nacca:{\"target\":\"$eb0\"}\naccb:[]\nacc9:{\"data\":\"$acca\",\"content\":\"$accb\",\"nodeType\":\"embedded-entry-block\"}\naccd:{}\nacd0:{}\nacd1:[]\naccf:{\"data\":\"$acd0\",\"marks\":\"$acd1\",\"value\":\"Amelia's story has also inspired change on a larger level. Her case led to a foster care consortium to help improve care for medically fragile children. This gave footing to legislative change: Children entering state custody are now required to see a physician within the first three days of entering care, rather than 30 days.\",\"nodeType\":\"text\"}\nacce:[\"$accf\"]\naccc:{\"data\":\"$accd\",\"content\":\"$acce\",\"nodeType\":\"paragraph\"}\nacd3:{}\nacd6:{}\nacd7:[]\nacd5:{\"data\":\"$acd6\",\"marks\":\"$acd7\",\"value\":\"\\\"It all started with one little girl and a phone call from a concerned parent,\\\" Sara said.\",\"nodeType\":\"text\"}\nacd4:[\"$acd5\"]\nacd2:{\"data\":\"$acd3\",\"content\":\"$acd4\",\"nodeType\":\"paragraph\"}\nacd9:{}\nacdc:{}\nacdd:[]\nacdb:{\"data\":\"$acdc\",\"marks\":\"$acdd\",\"value\":\"Robin is grateful that she at least knew who to call â and wants to spread the word to others.\",\"nodeType\":\"text\"}\nacda:[\"$acdb\"]\nacd8:{\"data\":\"$acd9\",\"content\":\"$acda\",\"nodeType\":\"paragraph\"}\nacdf:{}\nace2:{}\nace3:[]\nace1:{\"data\":\"$ace2\",\"marks\":\"$ace3\",\"value\":\"\\\"Amelia is a walking, talking example of the difference great medical care can make,\\\" she said. \\\"As foster parents, we get very used to having to advocate for our children â and at the foster care clinic, it's not like that. They're leading us, not the other way around.\\\"\",\"nodeType\":\"text\"}\nace0:[\"$ace1\"]\nacde:{\"data\":\"$acdf\",\"content\":\"$ace0\",\"nodeType\":\"paragraph\"}\nace5:{}\nace8:{}\nace9:[]\nace7:{\"data\":\"$ace8\",\"marks\":\"$ace9\",\"value\":\"Read more \",\"nodeType\":\"text\"}\naceb:{\"uri\":\"https://give.childrens.com/about-us/patient-stories\"}\nacee:{}\nacef:[]\naced:{\"data\":\"$acee\",\"marks\":\"$acef\",\"value\":\"patient stories\",\"nodeType\":\"text\"}\nacec:[\"$aced\"]\nacea:{\"data\":\"$aceb\",\""])</script>
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1<script>self.__next_f.push([1,"eyes down on the pegboard and the brown-haired dog taking shape with each plastic bead.\",\"nodeType\":\"text\"}\nafc0:[\"$afc1\"]\nafbe:{\"data\":\"$afbf\",\"content\":\"$afc0\",\"nodeType\":\"paragraph\"}\nafc5:{}\nafc8:{}\nafc9:[]\nafc7:{\"data\":\"$afc8\",\"marks\":\"$afc9\",\"value\":\"One red bead for its tongue. A few black-and-white beads sprinkled in for spots.\",\"nodeType\":\"text\"}\nafc6:[\"$afc7\"]\nafc4:{\"data\":\"$afc5\",\"content\":\"$afc6\",\"nodeType\":\"paragraph\"}\nafcb:{}\nafce:{}\nafcf:[]\nafcd:{\"data\":\"$afce\",\"marks\":\"$afcf\",\"value\":\"The craft keeps her hands busy as the 17-year-old talks about why sheâs in psychologist Dr. Andy McGarrahanâs office this day.\",\"nodeType\":\"text\"}\nafcc:[\"$afcd\"]\nafca:{\"data\":\"$afcb\",\"content\":\"$afcc\",\"nodeType\":\"paragraph\"}\nafd1:{}\nafd4:{}\nafd5:[]\nafd3:{\"data\":\"$afd4\",\"marks\":\"$afd5\",\"value\":\"âI donât want to only be thought of as âthe anorexic girl,ââ said Ava as she slowly filled in the pegboard dog outline at the Childrenâs Healthâ Center for Pediatric Eating Disorders in Plano.\",\"nodeType\":\"text\"}\nafd2:[\"$afd3\"]\nafd0:{\"data\":\"$afd1\",\"content\":\"$afd2\",\"nodeType\":\"paragraph\"}\nafd7:{}\nafda:{}\nafdb:[]\nafd9:{\"data\":\"$afda\",\"marks\":\"$afdb\",\"value\":\"The teenager with dark curly hair swooped into a high ponytail and gold hoop earrings loves Broadway musicals (ââInto the Woods is so cute!ââ); is obsessed with sharks; and has dreamed since elementary school of being a marine biologist. \",\"nodeType\":\"text\"}\nafd8:[\"$afd9\"]\nafd6:{\"data\":\"$afd7\",\"content\":\"$afd8\",\"nodeType\":\"paragraph\"}\nafdd:{}\nafe0:{}\nafe1:[]\nafdf:{\"data\":\"$afe0\",\"marks\":\"$afe1\",\"value\":\"And like many people, she hasnât always liked how she looks.\",\"nodeType\":\"text\"}\nafde:[\"$afdf\"]\nafdc:{\"data\":\"$afdd\",\"content\":\"$afde\",\"nodeType\":\"paragraph\"}\nafe3:{}\nafe4:[]\nafe2:{\"data\":\"$afe3\",\"content\":\"$afe4\",\"nodeType\":\"embedded-entry-block\"}\nafe6:{}\nafe9:{}\nafea:[]\nafe8:{\"data\":\"$afe9\",\"marks\":\"$afea\",\"value\":\"But for Ava, it wasnât just about dropping a few pounds. Food controlled her life. And a few years ago, her weight dropped so alarm"])</script>
1<script>self.__next_f.push([1,"ingly low that she had to be hospitalized for a month at Childrenâs Health. \",\"nodeType\":\"text\"}\nafe7:[\"$afe8\"]\nafe5:{\"data\":\"$afe6\",\"content\":\"$afe7\",\"nodeType\":\"paragraph\"}\nafec:{}\nafef:{}\naff0:[]\nafee:{\"data\":\"$afef\",\"marks\":\"$aff0\",\"value\":\"âI didnât want to crave food. I didnât want to be hungry because I didnât want food in my life,â Ava said. âAnd that was my mindset for the longest time: Food is bad. Donât eat it, and if you donât eat it, then youâll be happy.â\",\"nodeType\":\"text\"}\nafed:[\"$afee\"]\nafeb:{\"data\":\"$afec\",\"content\":\"$afed\",\"nodeType\":\"paragraph\"}\naff2:{}\naff5:{}\naff6:[]\naff4:{\"data\":\"$aff5\",\"marks\":\"$aff6\",\"value\":\"Since beginning treatment at Childrenâs Health, Ava has made dozens of these bead trinkets from a chair next to Dr. Andyâs desk as sheâs wrestled with challenging questions like her relationship with food and what beauty means to her.\",\"nodeType\":\"text\"}\naff3:[\"$aff4\"]\naff1:{\"data\":\"$aff2\",\"content\":\"$aff3\",\"nodeType\":\"paragraph\"}\naff8:{}\naffb:{}\naffc:[]\naffa:{\"data\":\"$affb\",\"marks\":\"$affc\",\"value\":\"A fish for her mom, Tiffany. A heart for Dr. Andy.\",\"nodeType\":\"text\"}\naff9:[\"$affa\"]\naff7:{\"data\":\"$aff8\",\"content\":\"$aff9\",\"nodeType\":\"paragraph\"}\naffe:{}\nb001:{}\nb002:[]\nb000:{\"data\":\"$b001\",\"marks\":\"$b002\",\"value\":\"And a second heart that her mom keeps in the side door of her car as a memory token.\",\"nodeType\":\"text\"}\nafff:[\"$b000\"]\naffd:{\"data\":\"$affe\",\"content\":\"$afff\",\"nodeType\":\"paragraph\"}\nb004:{}\nb007:{}\nb008:[]\nb006:{\"data\":\"$b007\",\"marks\":\"$b008\",\"value\":\"âSome of the sessions can be really emotional. Every one of these is a reminder of taking one more step forward,â Tiffany said.\",\"nodeType\":\"text\"}\nb005:[\"$b006\"]\nb003:{\"data\":\"$b004\",\"content\":\"$b005\",\"nodeType\":\"paragraph\"}\nb00a:{}\nb00d:{}\nb00e:[]\nb00c:{\"data\":\"$b00d\",\"marks\":\"$b00e\",\"value\":\"New year, new Ava\",\"nodeType\":\"text\"}\nb00b:[\"$b00c\"]\nb009:{\"data\":\"$b00a\",\"content\":\"$b00b\",\"nodeType\":\"heading-3\"}\nb010:{}\nb013:{}\nb014:[]\nb012:{\"data\":\"$b013\",\"marks\":\"$b014\",\"value\":\"January 2016 was "])</script>
1<script>self.__next_f.push([1,"the year of the new Ava.\",\"nodeType\":\"text\"}\nb011:[\"$b012\"]\nb00f:{\"data\":\"$b010\",\"content\":\"$b011\",\"nodeType\":\"paragraph\"}\nb016:{}\nb019:{}\nb01a:[]\nb018:{\"data\":\"$b019\",\"marks\":\"$b01a\",\"value\":\"She was 14 years old and promised herself that sheâd adhere to a strict diet and exercise regimen. \",\"nodeType\":\"text\"}\nb017:[\"$b018\"]\nb015:{\"data\":\"$b016\",\"content\":\"$b017\",\"nodeType\":\"paragraph\"}\nb01c:{}\nb01f:{}\nb020:[]\nb01e:{\"data\":\"$b01f\",\"marks\":\"$b020\",\"value\":\"âNew year, new me,â she said, sarcastically. âIâm going to have to prepare for summer. I need that âsummer body.â And I started by destroying my body from the inside.â\",\"nodeType\":\"text\"}\nb01d:[\"$b01e\"]\nb01b:{\"data\":\"$b01c\",\"content\":\"$b01d\",\"nodeType\":\"paragraph\"}\nb022:{}\nb025:{}\nb026:[]\nb024:{\"data\":\"$b025\",\"marks\":\"$b026\",\"value\":\"She wanted to be healthier. But she also wanted to be popular, and at the time, that meant skinnier.\",\"nodeType\":\"text\"}\nb023:[\"$b024\"]\nb021:{\"data\":\"$b022\",\"content\":\"$b023\",\"nodeType\":\"paragraph\"}\nb028:{}\nb02b:{}\nb02c:[]\nb02a:{\"data\":\"$b02b\",\"marks\":\"$b02c\",\"value\":\"âI was consumed by the need to look a certain way. Middle school was miserable for me because I felt like I wasnât good enough,â Ava said. âAnd because I wasnât popular. And the popular girls in school were tall, skinny, white girls.â\",\"nodeType\":\"text\"}\nb029:[\"$b02a\"]\nb027:{\"data\":\"$b028\",\"content\":\"$b029\",\"nodeType\":\"paragraph\"}\nb02e:{}\nb031:{}\nb032:[]\nb030:{\"data\":\"$b031\",\"marks\":\"$b032\",\"value\":\"What began as healthier choices snowballed into a cycle of restrictive eating and over-exercising.\",\"nodeType\":\"text\"}\nb02f:[\"$b030\"]\nb02d:{\"data\":\"$b02e\",\"content\":\"$b02f\",\"nodeType\":\"paragraph\"}\nb034:{}\nb037:{}\nb038:[]\nb036:{\"data\":\"$b037\",\"marks\":\"$b038\",\"value\":\"During the day, Ava would consume almost nothing â a piece of bread in the morning, a salad at lunch â enough to give her energy for the hours of cardio sheâd do in her upstairs room after school.\",\"nodeType\":\"text\"}\nb035:[\"$b036\"]\nb033:{\"data\":\"$b034\",\"content\":\"$b035\",\"nodeTy"])</script>
1<script>self.__next_f.push([1,"pe\":\"paragraph\"}\nb03a:{}\nb03d:{}\nb03e:[]\nb03c:{\"data\":\"$b03d\",\"marks\":\"$b03e\",\"value\":\"âThen Iâd wake up in the morning and have a panic attack because I binged last night, hate my body and pull at my stomach just wanting it off,â she said. \",\"nodeType\":\"text\"}\nb03b:[\"$b03c\"]\nb039:{\"data\":\"$b03a\",\"content\":\"$b03b\",\"nodeType\":\"paragraph\"}\nb040:{}\nb043:{}\nb044:[]\nb042:{\"data\":\"$b043\",\"marks\":\"$b044\",\"value\":\"She also avoided the sun because she didnât want her caramel-colored skin to darken and straightened her natural curly hair.\",\"nodeType\":\"text\"}\nb041:[\"$b042\"]\nb03f:{\"data\":\"$b040\",\"content\":\"$b041\",\"nodeType\":\"paragraph\"}\nb046:{}\nb049:{}\nb04a:[]\nb048:{\"data\":\"$b049\",\"marks\":\"$b04a\",\"value\":\"âNot only did my relationship with food become rocky, but my relationship with myself and not just with my body but my complexion, my hair. It all just started discombobulating,â she said. âIt was garbage.â\",\"nodeType\":\"text\"}\nb047:[\"$b048\"]\nb045:{\"data\":\"$b046\",\"content\":\"$b047\",\"nodeType\":\"paragraph\"}\nb04c:{}\nb04f:{}\nb050:[]\nb04e:{\"data\":\"$b04f\",\"marks\":\"$b050\",\"value\":\"Initially, Avaâs parents were impressed by her decision to eat healthy foods, cut sugar and exercise. As the more regimented and perfectionistic of their two children, her focus didnât surprise them. \",\"nodeType\":\"text\"}\nb04d:[\"$b04e\"]\nb04b:{\"data\":\"$b04c\",\"content\":\"$b04d\",\"nodeType\":\"paragraph\"}\nb052:{}\nb055:{}\nb056:[]\nb054:{\"data\":\"$b055\",\"marks\":\"$b056\",\"value\":\"âWhen Ava decides to do something, she goes in 200%. We monitored and watched it, but it wasnât alarming. It wasnât anything that we thought was an indicator of an eating disorder,â Tiffany said. âThat totally caught us off guard.â\",\"nodeType\":\"text\"}\nb053:[\"$b054\"]\nb051:{\"data\":\"$b052\",\"content\":\"$b053\",\"nodeType\":\"paragraph\"}\nb058:{}\nb05b:{}\nb05c:[]\nb05a:{\"data\":\"$b05b\",\"marks\":\"$b05c\",\"value\":\"Getting help\",\"nodeType\":\"text\"}\nb059:[\"$b05a\"]\nb057:{\"data\":\"$b058\",\"content\":\"$b059\",\"nodeType\":\"heading-3\"}\nb05e:{}\nb061:{}\nb062:[]\nb060:{\"data\":\"$b061\",\"marks\":\"$b06"])</script>
1<script>self.__next_f.push([1,"2\",\"value\":\"Ava dreaded bedtime.\",\"nodeType\":\"text\"}\nb05f:[\"$b060\"]\nb05d:{\"data\":\"$b05e\",\"content\":\"$b05f\",\"nodeType\":\"paragraph\"}\nb064:{}\nb067:{}\nb068:[]\nb066:{\"data\":\"$b067\",\"marks\":\"$b068\",\"value\":\"The next morning would usher in guilt and panic over what she had eaten the day before and was a new beginning to obsess over her daily food calculation.\",\"nodeType\":\"text\"}\nb065:[\"$b066\"]\nb063:{\"data\":\"$b064\",\"content\":\"$b065\",\"nodeType\":\"paragraph\"}\nb06a:{}\nb06d:{}\nb06e:[]\nb06c:{\"data\":\"$b06d\",\"marks\":\"$b06e\",\"value\":\"She isolated herself from friends and family and avoided social gatherings to dodge questions about why she wasnât eating. \",\"nodeType\":\"text\"}\nb06b:[\"$b06c\"]\nb069:{\"data\":\"$b06a\",\"content\":\"$b06b\",\"nodeType\":\"paragraph\"}\nb070:{}\nb073:{}\nb074:[]\nb072:{\"data\":\"$b073\",\"marks\":\"$b074\",\"value\":\"âI felt so hopeless and helpless, and I didnât want to continue this cycle of constantly thinking about my body and wearing myself out,â she said.\",\"nodeType\":\"text\"}\nb071:[\"$b072\"]\nb06f:{\"data\":\"$b070\",\"content\":\"$b071\",\"nodeType\":\"paragraph\"}\nb076:{}\nb079:{}\nb07a:[]\nb078:{\"data\":\"$b079\",\"marks\":\"$b07a\",\"value\":\"Middle school angst, Avaâs parents thought when she told them she was unhappy. Puberty, hormones.\",\"nodeType\":\"text\"}\nb077:[\"$b078\"]\nb075:{\"data\":\"$b076\",\"content\":\"$b077\",\"nodeType\":\"paragraph\"}\nb07c:{}\nb07f:{}\nb080:[]\nb07e:{\"data\":\"$b07f\",\"marks\":\"$b080\",\"value\":\"They took her to a counseling center for help. But the therapist referred the family to the eating disorder clinic at Childrenâs Medical Center Plano.\",\"nodeType\":\"text\"}\nb07d:[\"$b07e\"]\nb07b:{\"data\":\"$b07c\",\"content\":\"$b07d\",\"nodeType\":\"paragraph\"}\nb082:{}\nb083:[]\nb081:{\"data\":\"$b082\",\"content\":\"$b083\",\"nodeType\":\"embedded-entry-block\"}\nb085:{}\nb088:{}\nb089:[]\nb087:{\"data\":\"$b088\",\"marks\":\"$b089\",\"value\":\"The hospital and the clinicians who cared for Ava were a safe haven, she said. They made her feel normal, like she wasnât in a hospital fighting an eating disorder. \",\"nodeType\":\"text\"}\nb086:[\"$b087\"]\nb084:{\"data\":\"$b085\",\"conten"])</script>
1<script>self.__next_f.push([1,"t\":\"$b086\",\"nodeType\":\"paragraph\"}\nb08b:{}\nb08e:{}\nb08f:[]\nb08d:{\"data\":\"$b08e\",\"marks\":\"$b08f\",\"value\":\"âIt wouldnât matter what you said to them â theyâd always be there, and they were always on your side,â Ava said, tearily. âThey didnât treat me like I was this fragile little creature that needed to be cradled and watched over for every second of every day. They helped me so much.â\",\"nodeType\":\"text\"}\nb08c:[\"$b08d\"]\nb08a:{\"data\":\"$b08b\",\"content\":\"$b08c\",\"nodeType\":\"paragraph\"}\nb091:{}\nb094:{}\nb095:[]\nb093:{\"data\":\"$b094\",\"marks\":\"$b095\",\"value\":\"Eating disorders are not lifestyle choices but serious and sometimes fatal illnesses that cause severe disturbances to a personâs eating behaviors, thoughts and emotions. They can affect people of all ages, racial and ethnic backgrounds and genders, according to the National Institute of Mental Health.\",\"nodeType\":\"text\"}\nb092:[\"$b093\"]\nb090:{\"data\":\"$b091\",\"content\":\"$b092\",\"nodeType\":\"paragraph\"}\nb097:{}\nb09a:{}\nb09b:[]\nb099:{\"data\":\"$b09a\",\"marks\":\"$b09b\",\"value\":\"Eating disorders also have the highest mortality rate of any mental illness, the National Association of Anorexia Nervosa and Associated Disorders states.\",\"nodeType\":\"text\"}\nb098:[\"$b099\"]\nb096:{\"data\":\"$b097\",\"content\":\"$b098\",\"nodeType\":\"paragraph\"}\nb09d:{}\nb0a0:{}\nb0a1:[]\nb09f:{\"data\":\"$b0a0\",\"marks\":\"$b0a1\",\"value\":\"For kids with eating disorders, you canât simply offer them their favorite foods or threaten them to get them to eat, Dr. Andy said.\",\"nodeType\":\"text\"}\nb09e:[\"$b09f\"]\nb09c:{\"data\":\"$b09d\",\"content\":\"$b09e\",\"nodeType\":\"paragraph\"}\nb0a3:{}\nb0a6:{}\nb0a7:[]\nb0a5:{\"data\":\"$b0a6\",\"marks\":\"$b0a7\",\"value\":\"âPeople donât understand that eating disorders are really based on fear, anxiety, shame and guilt. For some kids, they look at what they can control, and what they can control is how much food they eat, what size their body is, and unfortunately for those kids with eating disorders, itâs never good enough. It keeps driving them downward, which is pretty scary,â he "])</script>
1<script>self.__next_f.push([1,"said.\",\"nodeType\":\"text\"}\nb0a4:[\"$b0a5\"]\nb0a2:{\"data\":\"$b0a3\",\"content\":\"$b0a4\",\"nodeType\":\"paragraph\"}\nb0a9:{}\nb0ac:{}\nb0ad:[]\nb0ab:{\"data\":\"$b0ac\",\"marks\":\"$b0ad\",\"value\":\"He said kids with eating disorders are âsome of the most incredible kids heâs ever met,â and yet they donât see themselves the way other people do. \",\"nodeType\":\"text\"}\nb0aa:[\"$b0ab\"]\nb0a8:{\"data\":\"$b0a9\",\"content\":\"$b0aa\",\"nodeType\":\"paragraph\"}\nb0af:{}\nb0b2:{}\nb0b3:[]\nb0b1:{\"data\":\"$b0b2\",\"marks\":\"$b0b3\",\"value\":\"âKids donât want eating disorders. They like most people wanted to look a certain way, but most people donât develop eating disorders because of that. It is the perfect storm of factors that that they and their parents didnât create,â Dr. Andy said.\",\"nodeType\":\"text\"}\nb0b0:[\"$b0b1\"]\nb0ae:{\"data\":\"$b0af\",\"content\":\"$b0b0\",\"nodeType\":\"paragraph\"}\nb0b5:{}\nb0b8:{}\nb0b9:[]\nb0b7:{\"data\":\"$b0b8\",\"marks\":\"$b0b9\",\"value\":\"But Ava didnât think finding help for her eating disorder would mean a hospital. She didnât think recovery would take years.\",\"nodeType\":\"text\"}\nb0b6:[\"$b0b7\"]\nb0b4:{\"data\":\"$b0b5\",\"content\":\"$b0b6\",\"nodeType\":\"paragraph\"}\nb0bb:{}\nb0be:{}\nb0bf:[]\nb0bd:{\"data\":\"$b0be\",\"marks\":\"$b0bf\",\"value\":\"And on the first day at Childrenâs Health during mealtime, she cried.\",\"nodeType\":\"text\"}\nb0bc:[\"$b0bd\"]\nb0ba:{\"data\":\"$b0bb\",\"content\":\"$b0bc\",\"nodeType\":\"paragraph\"}\nb0c1:{}\nb0c4:{}\nb0c5:[]\nb0c3:{\"data\":\"$b0c4\",\"marks\":\"$b0c5\",\"value\":\"âI thought, âYou expect me to eat? No,ââ Ava said. âI was crying because I didnât want to do this, but also crying out of joy and relief because I was getting help, and maybe one day, I would be able to eat this.â\",\"nodeType\":\"text\"}\nb0c2:[\"$b0c3\"]\nb0c0:{\"data\":\"$b0c1\",\"content\":\"$b0c2\",\"nodeType\":\"paragraph\"}\nb0c7:{}\nb0ca:{}\nb0cb:[]\nb0c9:{\"data\":\"$b0ca\",\"marks\":\"$b0cb\",\"value\":\"âYouâre pretty. You know?â\",\"nodeType\":\"text\"}\nb0c8:[\"$b0c9\"]\nb0c6:{\"data\":\"$b0c7\",\"content\":\"$b0c8\",\"nodeType\":\"heading-3\"}\nb0cd:{}\nb0d0:{}\nb0d1:[]\nb0cf:{\"data\":\"$b0d0\",\"marks\":\"$b0"])</script>
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1<script>self.__next_f.push([1,"ata\":\"$b383\",\"marks\":\"$b384\",\"value\":\"A 4-year-old puzzle master -- as her parents call her -- Finley began whizzing through puzzles shortly after she learned to walk. Sometimes, sheâd even do them flipped over with the picture facing the ground.\",\"nodeType\":\"text\"}\nb381:[\"$b382\"]\nb37f:{\"data\":\"$b380\",\"content\":\"$b381\",\"nodeType\":\"paragraph\"}\nb386:{}\nb389:{}\nb38a:[]\nb388:{\"data\":\"$b389\",\"marks\":\"$b38a\",\"value\":\"âShe could do puzzles that were multiple years beyond her age,â said Finleyâs dad, Steven. âShe had this laser focus.â\",\"nodeType\":\"text\"}\nb387:[\"$b388\"]\nb385:{\"data\":\"$b386\",\"content\":\"$b387\",\"nodeType\":\"paragraph\"}\nb38c:{}\nb38f:{}\nb390:[]\nb38e:{\"data\":\"$b38f\",\"marks\":\"$b390\",\"value\":\"As a toddler, there was no noise to distract her. No sound of someone calling her name, a television show or song to shift her focus. \",\"nodeType\":\"text\"}\nb38d:[\"$b38e\"]\nb38b:{\"data\":\"$b38c\",\"content\":\"$b38d\",\"nodeType\":\"paragraph\"}\nb392:{}\nb395:{}\nb396:[]\nb394:{\"data\":\"$b395\",\"marks\":\"$b396\",\"value\":\"Finley couldnât hear those sounds because she is deaf.\",\"nodeType\":\"text\"}\nb393:[\"$b394\"]\nb391:{\"data\":\"$b392\",\"content\":\"$b393\",\"nodeType\":\"paragraph\"}\nb398:{}\nb39b:{}\nb39c:[]\nb39a:{\"data\":\"$b39b\",\"marks\":\"$b39c\",\"value\":\"Her newborn screening did not detect any abnormalities in her hearing, but her parents were concerned. They took her to Childrenâs Health, where clinicians diagnosed Finley with Auditory Neuropathy -- a hearing disorder where the inner ear successfully detects sound but has a problem sending sound from the ear to the brain. \",\"nodeType\":\"text\"}\nb399:[\"$b39a\"]\nb397:{\"data\":\"$b398\",\"content\":\"$b399\",\"nodeType\":\"paragraph\"}\nb39e:{}\nb3a1:{}\nb3a2:[]\nb3a0:{\"data\":\"$b3a1\",\"marks\":\"$b3a2\",\"value\":\"âWeâd sang her a million-and-one songs trying to put her to bed or rock her to sleep at night, and sheâd never heard any of it,â Madeline said. âSheâd never even heard us say, âI love you.ââ\",\"nodeType\":\"text\"}\nb39f:[\"$b3a0\"]\nb39d:{\"data\":\"$b39e\",\"content\":\"$b39f\",\"nodeType\":\"paragraph\"}\nb3"])</script>
1<script>self.__next_f.push([1,"a4:{}\nb3a5:[]\nb3a3:{\"data\":\"$b3a4\",\"content\":\"$b3a5\",\"nodeType\":\"embedded-entry-block\"}\nb3a7:{}\nb3aa:{}\nb3ab:[]\nb3a9:{\"data\":\"$b3aa\",\"marks\":\"$b3ab\",\"value\":\"Since Madeline and Steven are hearing parents, they turned to cochlear implant surgery at Childrenâs Health to help Finley hear and speak, in addition to using sign language to communicate.\",\"nodeType\":\"text\"}\nb3a8:[\"$b3a9\"]\nb3a6:{\"data\":\"$b3a7\",\"content\":\"$b3a8\",\"nodeType\":\"paragraph\"}\nb3ad:{}\nb3b0:{}\nb3b1:[]\nb3af:{\"data\":\"$b3b0\",\"marks\":\"$b3b1\",\"value\":\"âI knew sheâd be in really good hands at Childrenâs. They have some of the best surgeons in the world there,â Madeline said. âWe didnât look anywhere else, honestly.â\",\"nodeType\":\"text\"}\nb3ae:[\"$b3af\"]\nb3ac:{\"data\":\"$b3ad\",\"content\":\"$b3ae\",\"nodeType\":\"paragraph\"}\nb3b3:{}\nb3b6:{}\nb3b7:[]\nb3b5:{\"data\":\"$b3b6\",\"marks\":\"$b3b7\",\"value\":\"Finleyâs cochlear implants, which her parents nicknamed her âears,â were first turned on when she was 18 months old. She cried when the audiologist banged on a block (a normal initial reaction for children after cochlear implant surgery).\",\"nodeType\":\"text\"}\nb3b4:[\"$b3b5\"]\nb3b2:{\"data\":\"$b3b3\",\"content\":\"$b3b4\",\"nodeType\":\"paragraph\"}\nb3b9:{}\nb3bc:{}\nb3bd:[]\nb3bb:{\"data\":\"$b3bc\",\"marks\":\"$b3bd\",\"value\":\"Now 4 years old, Finley is enrolled in a deaf education pre-school and speaks at almost a 3-year-old level, using a mix of sign language and speech to communicate with her parents. She wears the cochlear implants most of the time, only removing them before bed and baths (unless her parents waterproof her âearsâ). \",\"nodeType\":\"text\"}\nb3ba:[\"$b3bb\"]\nb3b8:{\"data\":\"$b3b9\",\"content\":\"$b3ba\",\"nodeType\":\"paragraph\"}\nb3bf:{}\nb3c2:{}\nb3c3:[]\nb3c1:{\"data\":\"$b3c2\",\"marks\":\"$b3c3\",\"value\":\"At home, Finley shuffles alphabet flash cards in a heap on the living room coffee table, searching for the letters to spell out her first and middle names. She signs and says the name of the letter as she finds each one.\",\"nodeType\":\"text\"}\nb3c0:[\"$b3c1\"]\nb3be:{\"data\":\"$b3bf\",\"co"])</script>
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1<script>self.__next_f.push([1," a fleece blanket covered a green upholstered couch as a makeshift slipcover, and a rainbow bedspread draped over Elsa-studded âFrozenâ sheets.\",\"nodeType\":\"text\"}\nb6a4:[\"$b6a5\"]\nb6a2:{\"data\":\"$b6a3\",\"content\":\"$b6a4\",\"nodeType\":\"paragraph\"}\nb6a9:{}\nb6ac:{}\nb6ad:[]\nb6ab:{\"data\":\"$b6ac\",\"marks\":\"$b6ad\",\"value\":\"âWelcome to our home,â said Kenda Caffey, mother of 2-year-old Zena Caffey-Arteese.\",\"nodeType\":\"text\"}\nb6aa:[\"$b6ab\"]\nb6a8:{\"data\":\"$b6a9\",\"content\":\"$b6aa\",\"nodeType\":\"paragraph\"}\nb6af:{}\nb6b2:{}\nb6b3:[]\nb6b1:{\"data\":\"$b6b2\",\"marks\":\"$b6b3\",\"value\":\"Sitting in a high chair in her hospital room at Childrenâs Medical Center Dallas, Zena was halfway through a chocolate chip cookie, gripping the sweet with two glittery-polished hands. She ran her tongue across her lip, trying to reach the melted chocolate smeared above her mouth.\",\"nodeType\":\"text\"}\nb6b0:[\"$b6b1\"]\nb6ae:{\"data\":\"$b6af\",\"content\":\"$b6b0\",\"nodeType\":\"paragraph\"}\nb6b5:{}\nb6b6:[]\nb6b4:{\"data\":\"$b6b5\",\"content\":\"$b6b6\",\"nodeType\":\"embedded-entry-block\"}\nb6b8:{}\nb6bb:{}\nb6bc:[]\nb6ba:{\"data\":\"$b6bb\",\"marks\":\"$b6bc\",\"value\":\"For six months, this Childrenâs Healthâ hospital room adorned with cutouts of butterflies, hearts and unicorns has been a temporary home for Zena and Kenda. The room that overlooked the downtown Dallas skyline is where mom and daughter fell asleep at night. Itâs where Kenda potty-trained Zena and where Childrenâs Health therapy dogs visited and climbed in her bed. Itâs where Zena brushed watercolor paint on paper and squished Play-Doh between her hands.\",\"nodeType\":\"text\"}\nb6b9:[\"$b6ba\"]\nb6b7:{\"data\":\"$b6b8\",\"content\":\"$b6b9\",\"nodeType\":\"paragraph\"}\nb6be:{}\nb6c1:{}\nb6c2:[]\nb6c0:{\"data\":\"$b6c1\",\"marks\":\"$b6c2\",\"value\":\"And this room, with its fluorescent lighting, is where Kenda and Zena waited on a heart.\",\"nodeType\":\"text\"}\nb6bf:[\"$b6c0\"]\nb6bd:{\"data\":\"$b6be\",\"content\":\"$b6bf\",\"nodeType\":\"paragraph\"}\nb6c4:{}\nb6c7:{}\nb6c8:[]\nb6c6:{\"data\":\"$b6c7\",\"marks\":\"$b6c8\",\"value\":\"A blue-eyed toddler who loves to talk, da"])</script>
1<script>self.__next_f.push([1,"nce and sing, Zena is the youngest of Kendaâs six living children and her heart is failing. \",\"nodeType\":\"text\"}\nb6c5:[\"$b6c6\"]\nb6c3:{\"data\":\"$b6c4\",\"content\":\"$b6c5\",\"nodeType\":\"paragraph\"}\nb6ca:{}\nb6cd:{}\nb6ce:[]\nb6cc:{\"data\":\"$b6cd\",\"marks\":\"$b6ce\",\"value\":\"âBack home, back home, back home,â Zena said, wiggling in her chair at the hospital.\",\"nodeType\":\"text\"}\nb6cb:[\"$b6cc\"]\nb6c9:{\"data\":\"$b6ca\",\"content\":\"$b6cb\",\"nodeType\":\"paragraph\"}\nb6d0:{}\nb6d3:{}\nb6d4:[]\nb6d2:{\"data\":\"$b6d3\",\"marks\":\"$b6d4\",\"value\":\"âThatâs right,â Kenda said. âWhen do you get to go back home?â\",\"nodeType\":\"text\"}\nb6d1:[\"$b6d2\"]\nb6cf:{\"data\":\"$b6d0\",\"content\":\"$b6d1\",\"nodeType\":\"paragraph\"}\nb6d6:{}\nb6d9:{}\nb6da:[]\nb6d8:{\"data\":\"$b6d9\",\"marks\":\"$b6da\",\"value\":\"âNew heart,â Zena replied.\",\"nodeType\":\"text\"}\nb6d7:[\"$b6d8\"]\nb6d5:{\"data\":\"$b6d6\",\"content\":\"$b6d7\",\"nodeType\":\"paragraph\"}\nb6dc:{}\nb6df:{}\nb6e0:[]\nb6de:{\"data\":\"$b6df\",\"marks\":\"$b6e0\",\"value\":\"Born with hypoplastic left heart syndrome â a birth defect that affects normal blood flow through the heart -- Zena has been in and out of the hospital for about half her life.\",\"nodeType\":\"text\"}\nb6dd:[\"$b6de\"]\nb6db:{\"data\":\"$b6dc\",\"content\":\"$b6dd\",\"nodeType\":\"paragraph\"}\nb6e2:{}\nb6e5:{}\nb6e6:[]\nb6e4:{\"data\":\"$b6e5\",\"marks\":\"$b6e6\",\"value\":\"She also was born blind in her right eye and deaf in her right ear. Kenda said doctors could not find a connection between her hearing and sight loss and her heart condition.\",\"nodeType\":\"text\"}\nb6e3:[\"$b6e4\"]\nb6e1:{\"data\":\"$b6e2\",\"content\":\"$b6e3\",\"nodeType\":\"paragraph\"}\nb6e8:{}\nb6e9:[]\nb6e7:{\"data\":\"$b6e8\",\"content\":\"$b6e9\",\"nodeType\":\"embedded-entry-block\"}\nb6eb:{}\nb6ee:{}\nb6ef:[]\nb6ed:{\"data\":\"$b6ee\",\"marks\":\"$b6ef\",\"value\":\"Clinicians at Childrenâs Health have cared for Zena since she was born, when she had her first six-month stay at Childrenâs Medical Center Dallas. \",\"nodeType\":\"text\"}\nb6ec:[\"$b6ed\"]\nb6ea:{\"data\":\"$b6eb\",\"content\":\"$b6ec\",\"nodeType\":\"paragraph\"}\nb6f1:{}\nb6f4:{}\nb6f5:[]\nb6f3:{\"data\":\"$b6f4\",\"marks\":\"$b6f"])</script>
1<script>self.__next_f.push([1,"5\",\"value\":\"âThis is where my family is. Itâs where our people are,â Kenda said. âI believe sheâs getting the best care here in this moment than she could have anywhere else.â \",\"nodeType\":\"text\"}\nb6f2:[\"$b6f3\"]\nb6f0:{\"data\":\"$b6f1\",\"content\":\"$b6f2\",\"nodeType\":\"paragraph\"}\nb6f7:{}\nb6fa:{}\nb6fb:[]\nb6f9:{\"data\":\"$b6fa\",\"marks\":\"$b6fb\",\"value\":\"Zena was admitted to the hospital again late last year after Kenda noticed her lips would turn blue and she was easily worn out when playing with her 6-year-old brother.\",\"nodeType\":\"text\"}\nb6f8:[\"$b6f9\"]\nb6f6:{\"data\":\"$b6f7\",\"content\":\"$b6f8\",\"nodeType\":\"paragraph\"}\nb6fd:{}\nb700:{}\nb701:[]\nb6ff:{\"data\":\"$b700\",\"marks\":\"$b701\",\"value\":\"She brought Zena to Childrenâs Health, hoping the cause was a virus. Instead, doctors told Kenda that Zena would need a heart transplant. \",\"nodeType\":\"text\"}\nb6fe:[\"$b6ff\"]\nb6fc:{\"data\":\"$b6fd\",\"content\":\"$b6fe\",\"nodeType\":\"paragraph\"}\nb703:{}\nb706:{}\nb707:[]\nb705:{\"data\":\"$b706\",\"marks\":\"$b707\",\"value\":\"Kenda and her husband knew this was a possibility down the road. Maybe when Zena was in her 20s, they thought. They werenât prepared for her to need a new heart at 2 years old.\",\"nodeType\":\"text\"}\nb704:[\"$b705\"]\nb702:{\"data\":\"$b703\",\"content\":\"$b704\",\"nodeType\":\"paragraph\"}\nb709:{}\nb70c:{}\nb70d:[]\nb70b:{\"data\":\"$b70c\",\"marks\":\"$b70d\",\"value\":\"âAnd because weâre waiting on a heart transplant, I think about that other family and what it means to get a heart transplant,â Kenda said. âYou know that another child is somewhere losing their life so that she can gain hers.â \",\"nodeType\":\"text\"}\nb70a:[\"$b70b\"]\nb708:{\"data\":\"$b709\",\"content\":\"$b70a\",\"nodeType\":\"paragraph\"}\nb70f:{}\nb710:[]\nb70e:{\"data\":\"$b70f\",\"content\":\"$b710\",\"nodeType\":\"embedded-entry-block\"}\nb712:{}\nb715:{}\nb716:[]\nb714:{\"data\":\"$b715\",\"marks\":\"$b716\",\"value\":\"She sympathizes with the situation because she has been on the other side. Zenaâs older sister, Zala, died from Batten Disease, a rare group of fatal nervous system disorders, when she was 9 years o"])</script>
1<script>self.__next_f.push([1,"ld, and Kenda donated her organs to be used for research.\",\"nodeType\":\"text\"}\nb713:[\"$b714\"]\nb711:{\"data\":\"$b712\",\"content\":\"$b713\",\"nodeType\":\"paragraph\"}\nb718:{}\nb71b:{}\nb71c:[]\nb71a:{\"data\":\"$b71b\",\"marks\":\"$b71c\",\"value\":\"In the last five years, donors have given nearly $500,000 to Childrenâs Health to support the Pediatric Transplant Program at Childrenâs Health and to help care for kids like Zena. \",\"nodeType\":\"text\"}\nb719:[\"$b71a\"]\nb717:{\"data\":\"$b718\",\"content\":\"$b719\",\"nodeType\":\"paragraph\"}\nb71e:{}\nb721:{}\nb722:[]\nb720:{\"data\":\"$b721\",\"marks\":\"$b722\",\"value\":\"âYouâre talking about helping children. Youâre talking about saving this next generation,â Kenda said.\",\"nodeType\":\"text\"}\nb71f:[\"$b720\"]\nb71d:{\"data\":\"$b71e\",\"content\":\"$b71f\",\"nodeType\":\"paragraph\"}\nb724:{}\nb727:{}\nb728:[]\nb726:{\"data\":\"$b727\",\"marks\":\"$b728\",\"value\":\"Thereâs no timeline for when a new heart may arrive. But the wait could be longer because Zena is only open to about 5 percent of the population for a heart transplant.\",\"nodeType\":\"text\"}\nb725:[\"$b726\"]\nb723:{\"data\":\"$b724\",\"content\":\"$b725\",\"nodeType\":\"paragraph\"}\nb72a:{}\nb72d:{}\nb72e:[]\nb72c:{\"data\":\"$b72d\",\"marks\":\"$b72e\",\"value\":\"Dozens of surgical procedures and a few blood transfusions to correct various issues, including craniofacial surgery, poured a high number of antibodies into Zenaâs blood stream that limit the number of donor hearts she can accept.\",\"nodeType\":\"text\"}\nb72b:[\"$b72c\"]\nb729:{\"data\":\"$b72a\",\"content\":\"$b72b\",\"nodeType\":\"paragraph\"}\nb730:{}\nb733:{}\nb734:[]\nb732:{\"data\":\"$b733\",\"marks\":\"$b734\",\"value\":\"âWe donât know when. We donât know how,â Kenda said of a donor heart. âWe just wait and know that the day is going to come eventually. And we hope that sheâs as stable then as she is now.â\",\"nodeType\":\"text\"}\nb731:[\"$b732\"]\nb72f:{\"data\":\"$b730\",\"content\":\"$b731\",\"nodeType\":\"paragraph\"}\nb736:{}\nb739:{}\nb73a:[]\nb738:{\"data\":\"$b739\",\"marks\":\"$b73a\",\"value\":\"Clinicians at Childrenâs Health put Zena through a desensitization treatmen"])</script>
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1<script>self.__next_f.push([1,"graph\"}\nb7f7:{}\nb7fa:{}\nb7fb:[]\nb7f9:{\"data\":\"$b7fa\",\"marks\":\"$b7fb\",\"value\":\"She had no visible bleeding but was having trouble breathing and had a bruise across her abdomen. First responders feared she may be suffering from internal bleeding, so Hanna was airlifted to the only Level I Trauma Center in the area caring specifically for children, Childrenâs Medical Center Dallas.\",\"nodeType\":\"text\"}\nb7f8:[\"$b7f9\"]\nb7f6:{\"data\":\"$b7f7\",\"content\":\"$b7f8\",\"nodeType\":\"paragraph\"}\nb7fd:{}\nb800:{}\nb801:[]\nb7ff:{\"data\":\"$b800\",\"marks\":\"$b801\",\"value\":\"When Hanna arrived in the ER, a trauma team of 22 people was waiting to immediately take care of her. An initial CT scan showed severe lacerations to her organs causing significant internal bleeding. Hanna's injuries were too severe for her to undergo surgery stably, so Childrenâs Health Interventional Radiology experts had another treatment option. They utilized state-of-the-art imaging technology and advanced techniques to help slow the bleeding and allow her blood to begin clotting on its own.\",\"nodeType\":\"text\"}\nb7fe:[\"$b7ff\"]\nb7fc:{\"data\":\"$b7fd\",\"content\":\"$b7fe\",\"nodeType\":\"paragraph\"}\nb803:{}\nb806:{}\nb807:[]\nb805:{\"data\":\"$b806\",\"marks\":\"$b807\",\"value\":\"Hanna was then transferred to the Trauma ICU, where she would stay for the next 38 days.\",\"nodeType\":\"text\"}\nb804:[\"$b805\"]\nb802:{\"data\":\"$b803\",\"content\":\"$b804\",\"nodeType\":\"paragraph\"}\nb809:{}\nb80c:{}\nb80d:[]\nb80b:{\"data\":\"$b80c\",\"marks\":\"$b80d\",\"value\":\"âSome days were harder than others - especially in the beginning,â says Tonya, Hannaâs mom. âBut the team of doctors and nurses were amazing.â\",\"nodeType\":\"text\"}\nb80a:[\"$b80b\"]\nb808:{\"data\":\"$b809\",\"content\":\"$b80a\",\"nodeType\":\"paragraph\"}\nb80f:{}\nb812:{}\nb813:[]\nb811:{\"data\":\"$b812\",\"marks\":\"$b813\",\"value\":\"Hanna was sedated and intubated for the first four weeks to help give her body time to heal. For three weeks, she needed continuous dialysis and at one point, she had as many as a dozen lines connected. Still, her family held onto their hope that"])</script>
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1<script>self.__next_f.push([1,"en's Health and fund whatâs needed most, like critical life-saving treatments and healthcare services, innovative research, vital pediatric medical equipment, child life services that put kidsâ and familiesâ minds at ease during difficult hospital stays, and financial assistance for families who could not otherwise afford these health services.\",\"nodeType\":\"text\"}\ncc0f:[\"$cc10\"]\ncc0d:{\"data\":\"$cc0e\",\"content\":\"$cc0f\",\"nodeType\":\"paragraph\"}\ncc00:[\"$cc01\",\"$cc07\",\"$cc0d\"]\ncbfe:{\"data\":\"$cbff\",\"content\":\"$cc00\",\"nodeType\":\"document\"}\ncbfd:{\"adminTitle\":\"Main Content: CMN | What is the Children's Miracle Network?\",\"heading\":\"What is the Children's Miracle Network?\",\"headingLevel\":\"h2\",\"body\":\"$cbfe\",\"contentAccordion\":\"Disabled\"}\ncbf2:{\"metadata\":\"$cbf3\",\"sys\":\"$cbf6\",\"fields\":\"$cbfd\"}\ncc15:[]\ncc16:[]\ncc14:{\"tags\":\"$cc15\",\"concepts\":\"$cc16\"}\ncc19:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\ncc18:{\"sys\":\"$cc19\"}\ncc1b:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\ncc1a:{\"sys\":\"$cc1b\"}\ncc1d:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\ncc1c:{\"sys\":\"$cc1d\"}\ncc17:{\"space\":\"$cc18\",\"id\":\"4fEzpsUi8pfQhTdojyqh5t\",\"type\":\"Entry\",\"createdAt\":\"2025-05-02T15:28:10.309Z\",\"updatedAt\":\"2026-01-29T22:18:22.564Z\",\"environment\":\"$cc1a\",\"publishedVersion\":8,\"revision\":3,\"contentType\":\"$cc1c\",\"locale\":\"en-US\"}\ncc20:{}\ncc23:{}\ncc26:{}\ncc27:[]\ncc25:{\"data\":\"$cc26\",\"marks\":\"$cc27\",\"value\":\"What Does it Mean to be a Childrenâs Miracle Network Hospital?\",\"nodeType\":\"text\"}\ncc24:[\"$cc25\"]\ncc22:{\"data\":\"$cc23\",\"content\":\"$cc24\",\"nodeType\":\"heading-2\"}\ncc29:{}\ncc2c:{}\ncc2d:[]\ncc2b:{\"data\":\"$cc2c\",\"marks\":\"$cc2d\",\"value\":\"Children's Health is the Childrenâs Miracle Network Hospital for the greater Dallas region: Dallas, Collin, Denton, Grayson, Rockwall, Ellis, Navarro, Van Zandt, Kaufman, Henderson, Hunt, Wood, Lamar, Fannin, Delta, Hopkins, Rains, Anderson and Freestone counties. The mission of Childrenâs Miracle Network Hospitals (CMN Hospitals) is to increase funds and awareness for local childrenâ"])</script>
1<script>self.__next_f.push([1,"s hospitals, in support of its vision of working together to save kidsâ lives. One of Childrenâs Miracle Network Hospitals' core philosophies is to keep 100 percent of donations in the local area in which they are raised. That means whatever you give to local fundraisers like \",\"nodeType\":\"text\"}\ncc2f:{\"uri\":\"https://give.childrens.com/get-involved/featured/extra-life\"}\ncc32:{}\ncc33:[]\ncc31:{\"data\":\"$cc32\",\"marks\":\"$cc33\",\"value\":\"Extra Life\",\"nodeType\":\"text\"}\ncc30:[\"$cc31\"]\ncc2e:{\"data\":\"$cc2f\",\"content\":\"$cc30\",\"nodeType\":\"hyperlink\"}\ncc35:{}\ncc36:[]\ncc34:{\"data\":\"$cc35\",\"marks\":\"$cc36\",\"value\":\" and \",\"nodeType\":\"text\"}\ncc38:{\"uri\":\"https://give.childrens.com/get-involved/featured/golf\"}\ncc3b:{}\ncc3c:[]\ncc3a:{\"data\":\"$cc3b\",\"marks\":\"$cc3c\",\"value\":\"Play Yellow\",\"nodeType\":\"text\"}\ncc39:[\"$cc3a\"]\ncc37:{\"data\":\"$cc38\",\"content\":\"$cc39\",\"nodeType\":\"hyperlink\"}\ncc3e:{}\ncc3f:[]\ncc3d:{\"data\":\"$cc3e\",\"marks\":\"$cc3f\",\"value\":\" is sent directly to Children's Health, and 100 percent of donations come to our hospital. \",\"nodeType\":\"text\"}\ncc2a:[\"$cc2b\",\"$cc2e\",\"$cc34\",\"$cc37\",\"$cc3d\"]\ncc28:{\"data\":\"$cc29\",\"content\":\"$cc2a\",\"nodeType\":\"paragraph\"}\ncc21:[\"$cc22\",\"$cc28\"]\ncc1f:{\"data\":\"$cc20\",\"content\":\"$cc21\",\"nodeType\":\"document\"}\ncc1e:{\"adminTitle\":\"Main Content: CMN | What Does it Mean to be a Childrenâs Miracle Network Hospital?\",\"heading\":\"What Does it Mean to be a Childrenâs Miracle Network Hospital?\",\"headingLevel\":\"h2\",\"body\":\"$cc1f\",\"contentAccordion\":\"Disabled\"}\ncc13:{\"metadata\":\"$cc14\",\"sys\":\"$cc17\",\"fields\":\"$cc1e\"}\ncc42:[]\ncc43:[]\ncc41:{\"tags\":\"$cc42\",\"concepts\":\"$cc43\"}\ncc46:{\"type\":\"Link\",\"linkType\":\"Space\",\"id\":\"a4tg2xqej328\"}\ncc45:{\"sys\":\"$cc46\"}\ncc48:{\"id\":\"master\",\"type\":\"Link\",\"linkType\":\"Environment\"}\ncc47:{\"sys\":\"$cc48\"}\ncc4a:{\"type\":\"Link\",\"linkType\":\"ContentType\",\"id\":\"textBlock\"}\ncc49:{\"sys\":\"$cc4a\"}\ncc44:{\"space\":\"$cc45\",\"id\":\"3ZxbmOJwQHTtNqSo41gYlI\",\"type\":\"Entry\",\"createdAt\":\"2025-05-02T15:28:50.179Z\",\"updatedAt\":\"2026-01-29T22:18:29.230Z\",\"environment\":\"$cc47\",\"publishedVersion\":7,\"revi"])</script>
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1Electronic Mail (Emails) Only\u0026lt;/option\u0026gt; \u0026lt;option value=\"4\"\u0026gt;Both Physical \u0026amp;amp; Electronic Mail\u0026lt;/option\u0026gt; \t\t\u0026lt;/select\u0026gt; \t\t\u0026lt;/div\u0026gt; \t\t\u0026lt;/li\u0026gt;\t\t\u0026lt;li id=\"li_6\" class=\"address\" style=\"display: none;\"\u0026gt; \t\t\u0026lt;fieldset\u0026gt; \t\t\u0026lt;legend style=\"color: transparent;height: 0px;font-size: 0px;\"\u0026gt;Mailing Address\u0026lt;/legend\u0026gt; \t\t\u0026lt;span class=\"description\"\u0026gt;Mailing Address \u0026lt;span id=\"required_6\" aria-hidden=\"true\" class=\"required\"\u0026gt;*\u0026lt;/span\u0026gt;\u0026lt;/span\u0026gt; \t\t \t\t\u0026lt;div\u0026gt; \t\t\t\t\t\t\u0026lt;span id=\"li_6_span_1\"\u0026gt; \t\t\t\t\u0026lt;label for=\"element_6_1\"\u0026gt;Street Address\u0026lt;/label\u0026gt; \t\t\t\t\u0026lt;input id=\"element_6_1\" name=\"element_6_1\" class=\"element text large\" aria-required=\"true\" value=\"\" type=\"text\"\u0026gt; \t\t\t\u0026lt;/span\u0026gt; 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\u0026lt;option value=\"Germany\"\u0026gt;Germany\u0026lt;/option\u0026gt; \u0026lt;option value=\"-------\"\u0026gt;-------\u0026lt;/option\u0026gt; \u0026lt;option value=\"Afghanistan\"\u0026gt;Afghanistan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Albania\"\u0026gt;Albania\u0026lt;/option\u0026gt; \u0026lt;option value=\"Algeria\"\u0026gt;Algeria\u0026lt;/option\u0026gt; \u0026lt;option value=\"Andorra\"\u0026gt;Andorra\u0026lt;/option\u0026gt; \u0026lt;option value=\"Antigua and Barbuda\"\u0026gt;Antigua and Barbuda\u0026lt;/option\u0026gt; \u0026lt;option value=\"Argentina\"\u0026gt;Argentina\u0026lt;/option\u0026gt; \u0026lt;option value=\"Armenia\"\u0026gt;Armenia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Austria\"\u0026gt;Austria\u0026lt;/option\u0026gt; \u0026lt;option value=\"Azerbaijan\"\u0026gt;Azerbaijan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Bahamas\"\u0026gt;Bahamas\u0026lt;/option\u0026gt; \u0026lt;option value=\"Bahrain\"\u0026gt;Bahrain\u0026lt;/option\u0026gt; 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\u0026lt;option value=\"Bulgaria\"\u0026gt;Bulgaria\u0026lt;/option\u0026gt; \u0026lt;option value=\"Burkina Faso\"\u0026gt;Burkina Faso\u0026lt;/option\u0026gt; \u0026lt;option value=\"Burundi\"\u0026gt;Burundi\u0026lt;/option\u0026gt; \u0026lt;option value=\"Cambodia\"\u0026gt;Cambodia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Cameroon\"\u0026gt;Cameroon\u0026lt;/option\u0026gt; \u0026lt;option value=\"Cape Verde\"\u0026gt;Cape Verde\u0026lt;/option\u0026gt; \u0026lt;option value=\"Cayman Islands\"\u0026gt;Cayman Islands\u0026lt;/option\u0026gt; \u0026lt;option value=\"Central African Republic\"\u0026gt;Central African Republic\u0026lt;/option\u0026gt; \u0026lt;option value=\"Chad\"\u0026gt;Chad\u0026lt;/option\u0026gt; \u0026lt;option value=\"Chile\"\u0026gt;
1Chile\u0026lt;/option\u0026gt; \u0026lt;option value=\"China\"\u0026gt;China\u0026lt;/option\u0026gt; \u0026lt;option value=\"Colombia\"\u0026gt;Colombia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Comoros\"\u0026gt;Comoros\u0026lt;/option\u0026gt; \u0026lt;option value=\"Congo\"\u0026gt;Congo\u0026lt;/option\u0026gt; \u0026lt;option value=\"Costa Rica\"\u0026gt;Costa Rica\u0026lt;/option\u0026gt; \u0026lt;option value=\"Côte d'Ivoire\"\u0026gt;Côte d'Ivoire\u0026lt;/option\u0026gt; \u0026lt;option value=\"Croatia\"\u0026gt;Croatia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Cuba\"\u0026gt;Cuba\u0026lt;/option\u0026gt; \u0026lt;option value=\"Cyprus\"\u0026gt;Cyprus\u0026lt;/option\u0026gt; \u0026lt;option value=\"Czech Republic\"\u0026gt;Czech Republic\u0026lt;/option\u0026gt; \u0026lt;option value=\"Denmark\"\u0026gt;Denmark\u0026lt;/option\u0026gt; \u0026lt;option value=\"Djibouti\"\u0026gt;Djibouti\u0026lt;/option\u0026gt; \u0026lt;option value=\"Dominica\"\u0026gt;Dominica\u0026lt;/option\u0026gt; \u0026lt;option value=\"Dominican Republic\"\u0026gt;Dominican Republic\u0026lt;/option\u0026gt; \u0026lt;option value=\"East Timor\"\u0026gt;East Timor\u0026lt;/option\u0026gt; \u0026lt;option value=\"Ecuador\"\u0026gt;Ecuador\u0026lt;/option\u0026gt; \u0026lt;option value=\"Egypt\"\u0026gt;Egypt\u0026lt;/option\u0026gt; \u0026lt;option value=\"El Salvador\"\u0026gt;El Salvador\u0026lt;/option\u0026gt; \u0026lt;option value=\"Equatorial Guinea\"\u0026gt;Equatorial Guinea\u0026lt;/option\u0026gt; \u0026lt;option value=\"Eritrea\"\u0026gt;Eritrea\u0026lt;/option\u0026gt; \u0026lt;option value=\"Estonia\"\u0026gt;Estonia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Ethiopia\"\u0026gt;Ethiopia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Fiji\"\u0026gt;Fiji\u0026lt;/option\u0026gt; \u0026lt;option value=\"Finland\"\u0026gt;Finland\u0026lt;/option\u0026gt; \u0026lt;option value=\"Gabon\"\u0026gt;Gabon\u0026lt;/option\u0026gt; \u0026lt;option value=\"Gambia\"\u0026gt;Gambia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Georgia\"\u0026gt;Georgia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Ghana\"\u0026gt;Ghana\u0026lt;/option\u0026gt; \u0026lt;option value=\"Gibraltar\"\u0026gt;Gibraltar\u0026lt;/option\u0026gt; \u0026lt;option value=\"Greece\"\u0026gt;Greece\u0026lt;/option\u0026gt; \u0026lt;option value=\"Grenada\"\u0026gt;Grenada\u0026lt;/option\u0026gt; \u0026lt;option value=\"Guatemala\"\u0026gt;Guatemala\u0026lt;/option\u0026gt; \u0026lt;option value=\"Guernsey\"\u0026gt;Guernsey\u0026lt;/option\u0026gt; \u0026lt;option value=\"Guinea\"\u0026gt;Guinea\u0026lt;/option\u0026gt; \u0026lt;option value=\"Guinea-Bissau\"\u0026gt;Guinea-Bissau\u0026lt;/option\u0026gt; \u0026lt;option value=\"Guyana\"\u0026gt;Guyana\u0026lt;/option\u0026gt; \u0026lt;option value=\"Haiti\"\u0026gt;Haiti\u0026lt;/option\u0026gt; \u0026lt;option value=\"Honduras\"\u0026gt;Honduras\u0026lt;/option\u0026gt; \u0026lt;option value=\"Hong Kong\"\u0026gt;Hong Kong\u0026lt;/option\u0026gt; \u0026lt;option value=\"Hungary\"\u0026gt;Hungary\u0026lt;/option\u0026gt; \u0026lt;option value=\"Iceland\"\u0026gt;Iceland\u0026lt;/option\u0026gt; \u0026lt;option value=\"India\"\u0026gt;India\u0026lt;/option\u0026gt; \u0026lt;option value=\"Indonesia\"\u0026gt;Indonesia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Iran\"\u0026gt;Iran\u0026lt;/option\u0026gt; \u0026lt;option value=\"Iraq\"\u0026gt;Iraq\u0026lt;/option\u0026gt; \u0026lt;option value=\"Ireland\"\u0026gt;Ireland\u0026lt;/option\u0026gt; \u0026lt;option value=\"Israel\"\u0026gt;Israel\u0026lt;/option\u0026gt; \u0026lt;option value=\"Italy\"\u0026gt;Italy\u0026lt;/option\u0026gt; \u0026lt;option value=\"Jamaica\"\u0026gt;Jamaica\u0026lt;/option\u0026gt; \u0026lt;option value=\"Japan\"\u0026gt;Japan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Jersey\"\u0026gt;Jersey\u0026lt;/option\u0026gt; \u0026lt;option value=\"Jordan\"\u0026gt;Jordan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Kazakhstan\"\u0026gt;Kazakhstan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Kenya\"\u0026gt;Kenya\u0026lt;/option\u0026gt; \u0026lt;option value=\"Kiribati\"\u0026gt;Kiribati\u0026lt;/option\u0026gt; \u0026lt;option value=\"Kosovo\"\u0026gt;Kosovo\u0026lt;/option\u0026gt; \u0026lt;option value=\"Kuwait\"\u0026gt;Kuwait\u0026lt;/option\u0026gt; \u0026lt;option value=\"Kyrgyzstan\"\u0026gt;Kyrgyzstan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Laos\"\u0026gt;Laos\u0026lt;/option\u0026gt; \u0026lt;option value=\"Latvia\"\u0026gt;Latvia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Lebanon\"\u0026gt;Lebanon\u0026lt;/option\u0026gt; \u0026lt;option value=\"Lesotho\"\u0026gt;Lesotho\u0026lt;/option\u0026gt; \u0026lt;option value=\"Liberia\"\u0026gt;Liberia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Libya\"\u0026gt;Libya\u0026lt;/option\u0026gt; \u0026lt;option value=\"Liechtenstein\"\u0026gt;Liechtenstein\u0026lt;/option\u0026gt; \u0026lt;option value=\"Lithuania\"\u0026gt;Lithuania\u0026lt;/option\u0026gt; \u0026lt;option value=\"Luxembourg\"\u0026gt;Luxembourg\u0026lt;/option\u0026gt; \u0026lt;option value=\"Macedonia\"\u0026gt;Macedonia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Madagascar\"\u0026gt;Madagascar\u0026lt;/option\u0026gt; \u0026lt;option value=\"Malawi\"\u0026gt;Malawi\u0026lt;/option\u0026gt; \u0026lt;option value=\"Malaysia\"\u0026gt;Malaysia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Maldives\"\u0026gt;Maldives\u0026lt;/option\u0026gt; \u0026lt;option value=\"Mali\"\u0026gt;Mali\u0026lt;/option\u0026gt; \u0026lt;option value=\"Malta\"\u0026gt;Malta\u0026lt;/option\u0026gt; \u0026lt;option value=\"Marshall Islands\"\u0026gt;Marshall Islands\u0026lt;/option\u0026gt; \u0026lt;option value=\"Mauritania\"\u0026gt;Mauritania\u0026lt;/option\u0026gt; \u0026lt;option value=\"Mauritius\"\u0026gt;Mauritius\u0026lt;/option\u0026gt; \u0026lt;option value=\"Mexico\"\u0026gt;Mexico\u0026lt;/option\u0026gt; \u0026lt;option value=\"Micronesia\"\u0026gt;Micronesia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Moldova\"\u0026gt;Moldova\u0026lt;/option\u0026gt; \u0026lt;option value=\"Monaco\"\u0026gt;Monaco\u0026lt;/option\u0026gt; \u0026lt;option value=\"Mongolia\"\u0026gt;Mongolia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Montenegro\"\u0026gt;Montenegro\u0026lt;/option\u0026gt; \u0026lt;option value=\"Morocco\"\u0026gt;Morocco\u0026lt;/option\u0026gt; \u0026lt;option value=\"Mozambique\"\u0026gt;Mozambique\u0026lt;/option\u0026gt; \u0026lt;option value=\"Myanmar\"\u0026gt;Myanmar\u0026lt;/option\u0026gt; \u0026lt;option value=\"Namibia\"\u0026gt;Namibia\u0026lt;/option\u0026gt; \u0026lt;option value=\"Nauru\"\u0026gt;Nauru\u0026lt;/option\u0026gt; \u0026lt;option value=\"Nepal\"\u0026gt;Nepal\u0026lt;/option\u0026gt; \u0026lt;option value=\"New Zealand\"\u0026gt;New Zealand\u0026lt;/option\u0026gt; \u0026lt;option value=\"Nicaragua\"\u0026gt;Nicaragua\u0026lt;/option\u0026gt; \u0026lt;option value=\"Niger\"\u0026gt;Niger\u0026lt;/option\u0026gt; \u0026lt;option value=\"Nigeria\"\u0026gt;Nigeria\u0026lt;/option\u0026gt; \u0026lt;option value=\"Norway\"\u0026gt;Norway\u0026lt;/option\u0026gt; \u0026lt;option value=\"North Korea\"\u0026gt;North Korea\u0026lt;/option\u0026gt; \u0026lt;option value=\"Oman\"\u0026gt;Oman\u0026lt;/option\u0026gt; \u0026lt;option value=\"Pakistan\"\u0026gt;Pakistan\u0026lt;/option\u0026gt; \u0026lt;option value=\"Palau\"\u0026gt;Palau\u0026lt;/option\u0026gt; \u0026lt;option value=\"Palestine\"\u0026gt;Palestine\u0026lt;/option\u0026gt; \u0026lt;option value=\"Panama\"\u0026gt;Panama\u0026lt;/option\u0026gt; \u0026lt;option value=\"Papua New Guinea\"\u0026gt;Papua New Guinea\u0026lt;/option\u0026gt; \u0026lt;option value=\"Paraguay\"\u0026gt;Paraguay\u0026lt;/option\u0026gt; \u0026lt;option value=\"Peru\"\u0026gt;Peru\u0026lt;/option\u0026gt; \u0026lt;option value=\"Philippines\"\u0026gt;Philippines\u0026lt;/option\u0026gt; \u0026lt;option value=\"Poland\"\u0026gt;Poland\u0026lt;/option\u0026gt; \u0026lt;option value=\"Portugal\"\u0026gt;Portugal\u0026lt;/option\u0026gt; \u0
Line numbers count LF bytes from the start of the resource, as the search results do. Vendor segments are library code the classifier recognised; they are stored but not indexed. Bytes are shown as Latin1 characters, one per byte.